celticgrl
08-31-2008, 01:22 AM
I am a 28 year old female who has MS in her family. I first really started to notice symptoms about a year or two ago (longer though if I think about it). I also had herniated discs which caused me to dismiss these symptoms. I did go and see a neurologist in January of this year who sent me for a Evoked Potential Test and an MRI.
I went for my EPT and had to cancel my MRI due to circumstances beyond my controll. Then before I could reschedule my MRI I was called in to have my surgery for the herniated discs. That was in June of this year. So now that I am 3 months past my recovery I thought that I should reschedule my MRI and contact my Neurologist with regards to the MS diagnosis. But to my shock she has left and moved to another province. So now what???
I would like to list my symptoms and see what you all think!
1) Tremor in right hand and foot (when pushing on gas peddle my foot goes crazy). Not upon rest but when doing things.
2) numbness and tingling in arm, leg, side and head. Not all along these but in spots.
3) Tingling along bra line, still there when not wearing a bra.
4) Confused thoughts. Just feel less sharp than usual.
5) Heat sensitivity. I find these symptoms get worse when exposed to heat.
If you could let me know what you think I would greatly appreciate it!
Thank you all in advance.
Tiffaney
I went for my EPT and had to cancel my MRI due to circumstances beyond my controll. Then before I could reschedule my MRI I was called in to have my surgery for the herniated discs. That was in June of this year. So now that I am 3 months past my recovery I thought that I should reschedule my MRI and contact my Neurologist with regards to the MS diagnosis. But to my shock she has left and moved to another province. So now what???
I would like to list my symptoms and see what you all think!
1) Tremor in right hand and foot (when pushing on gas peddle my foot goes crazy). Not upon rest but when doing things.
2) numbness and tingling in arm, leg, side and head. Not all along these but in spots.
3) Tingling along bra line, still there when not wearing a bra.
4) Confused thoughts. Just feel less sharp than usual.
5) Heat sensitivity. I find these symptoms get worse when exposed to heat.
If you could let me know what you think I would greatly appreciate it!
Thank you all in advance.
Tiffaney
Sponsor
Nenu
08-31-2008, 04:14 AM
Welcome Tiffaney! :) Sorry that a possibility of Multiple Sclerosis has brought you this way, but you will find a lot of support here, so don't fret!
The symptoms you mention do sound like ones that are found with MS, but those same symptoms can be found in a number of conditions.
Since you mention a family history of MS, certainly now you'll need to be diligent about finding a new neurologist and getting that MRI done. Generally that's the first step in the process. As far as finding a neurologist in your area, it may not be a bad idea to contact your family doctor to ask them if they have any idea of good neurologists, specifically in the area of MS. Not all neurologists are as keen as others are when it comes to looking for and diagnosing MS. Trust me on this one :).
Sometimes neuros are also in the yellow or white pages of a phone book. Might be worth checking into. You can call and ask some questions about their practices to get a better idea.
Just stay proactive about getting your answers. And keep in touch here and let us know how things progress for you. :)
The symptoms you mention do sound like ones that are found with MS, but those same symptoms can be found in a number of conditions.
Since you mention a family history of MS, certainly now you'll need to be diligent about finding a new neurologist and getting that MRI done. Generally that's the first step in the process. As far as finding a neurologist in your area, it may not be a bad idea to contact your family doctor to ask them if they have any idea of good neurologists, specifically in the area of MS. Not all neurologists are as keen as others are when it comes to looking for and diagnosing MS. Trust me on this one :).
Sometimes neuros are also in the yellow or white pages of a phone book. Might be worth checking into. You can call and ask some questions about their practices to get a better idea.
Just stay proactive about getting your answers. And keep in touch here and let us know how things progress for you. :)
celticgrl
08-31-2008, 04:35 AM
Thank you for your input and suggestions!
I went to a local medical clinic as my family doctor has just recently moved as well...seems to be a trend, lol. Anyhow, the medi-centre doc is going to send me to UBC to see a neurologist (apparently they deal with people faster than most?)
I was just really surprised and let down that no one advised me as to my neuro moving away or where my file has gone to? Not very impressed. I would like to know what my EPT showed.
Thanks again, I will be diligent with getting this figured out. I have to!
I figured once I had my surgery done that all of these symptoms would go away. I guess not all of my symptoms were related to my back :(
Oh well, that is how things go I guess.
I will keep you posted on what happens.
Tiffaney
I went to a local medical clinic as my family doctor has just recently moved as well...seems to be a trend, lol. Anyhow, the medi-centre doc is going to send me to UBC to see a neurologist (apparently they deal with people faster than most?)
I was just really surprised and let down that no one advised me as to my neuro moving away or where my file has gone to? Not very impressed. I would like to know what my EPT showed.
Thanks again, I will be diligent with getting this figured out. I have to!
I figured once I had my surgery done that all of these symptoms would go away. I guess not all of my symptoms were related to my back :(
Oh well, that is how things go I guess.
I will keep you posted on what happens.
Tiffaney
Bearygood
08-31-2008, 10:17 AM
Hi, Tiffaney. I think that youi're doing the correct thing by finally getting that MRI and wanted to wish you luck. I look forward to seeing your update. :)
flowerpopgirl
09-21-2008, 07:22 AM
I am not sure if I have ms, but friends have told me I have all the symptoms, I get shakes numbness forgetfullness picking up things without relising they are hot, drop things, loss of speech, forgetting what I say. I also suffer with osteoarthities in all of my joints from feet to head, I also suffer with calpnol tunnel.
I was rushed into hospital but this silly nurse said the shakes were panick attacks after becoming good friends with lady on ward, she became concerned when I was having shakes while asleep. the worst is forgetting what you say and the numbness at night, thats when the numbness appears. it can take 2 3 hours just to write a simple letter, these symptoms have been appearing over years.
I am seeing a general surgeon in october and I am also going to pain clinic on 3 october :confused:
I was rushed into hospital but this silly nurse said the shakes were panick attacks after becoming good friends with lady on ward, she became concerned when I was having shakes while asleep. the worst is forgetting what you say and the numbness at night, thats when the numbness appears. it can take 2 3 hours just to write a simple letter, these symptoms have been appearing over years.
I am seeing a general surgeon in october and I am also going to pain clinic on 3 october :confused:
Nenu
09-21-2008, 11:47 AM
Welcome flowerpopgirl!
I suggest making a new thread, which will get more attention, and give us a full run down of all the symptoms and testing you've had thus far.
If you are suspecting MS, make sure you have a full blood panel done if you'll be seeing a regular doctor (they can request this) or ask the general surgeon if he can order this.
MS diagnosis generally begins with an MRI, with and without contrast. You can also ask the surgeon about this if you suspect this may be on your radar.
Best! :)
I suggest making a new thread, which will get more attention, and give us a full run down of all the symptoms and testing you've had thus far.
If you are suspecting MS, make sure you have a full blood panel done if you'll be seeing a regular doctor (they can request this) or ask the general surgeon if he can order this.
MS diagnosis generally begins with an MRI, with and without contrast. You can also ask the surgeon about this if you suspect this may be on your radar.
Best! :)
robinegg
09-22-2008, 02:34 AM
Hi ther
I can empathise with you as I thought I had MS too
It turned out to be a simple B12 deficiency......Not really that simple as it too causes demylation and attacks the nervous system....
It all started 5 years ago when I was unwell & nobody knew what it was spent a week in hospital with every possible test B12 read normal at 372 although this is low normal now my level was at 130 severe deficiency doc said....I had to go to a new doc as mine was on holidays & I was just to ill to wait I couldnt talk properly,confused,foggy head,dizzy,numbness and tingling,shock like pain in my sides of my torso,balance issues I couldnt stand with my eyes closed would just fall over,vision problems, anxiety, rapid heart beat and the list goes on all mimicking MS
I would advise you to have your B12 checked and ask for a uMMA & Homocysteine levels as well...
I have to have injections and this has helped somethings got better quickly others longer and others would go then rear there head again for a bit and got worse before it got bettter but that is to be expected as it has a lot of repair to do.....Some nerve damage may not get better but I am confident it will I will accept nothing less.....
Even if one has MS B12 is of great value I believe as the MS will cause B12 to be used greatly due to mylation so it wont do any harm it may just do some good
Good luck
I can empathise with you as I thought I had MS too
It turned out to be a simple B12 deficiency......Not really that simple as it too causes demylation and attacks the nervous system....
It all started 5 years ago when I was unwell & nobody knew what it was spent a week in hospital with every possible test B12 read normal at 372 although this is low normal now my level was at 130 severe deficiency doc said....I had to go to a new doc as mine was on holidays & I was just to ill to wait I couldnt talk properly,confused,foggy head,dizzy,numbness and tingling,shock like pain in my sides of my torso,balance issues I couldnt stand with my eyes closed would just fall over,vision problems, anxiety, rapid heart beat and the list goes on all mimicking MS
I would advise you to have your B12 checked and ask for a uMMA & Homocysteine levels as well...
I have to have injections and this has helped somethings got better quickly others longer and others would go then rear there head again for a bit and got worse before it got bettter but that is to be expected as it has a lot of repair to do.....Some nerve damage may not get better but I am confident it will I will accept nothing less.....
Even if one has MS B12 is of great value I believe as the MS will cause B12 to be used greatly due to mylation so it wont do any harm it may just do some good
Good luck
denegirl
01-25-2009, 03:28 PM
Its very important to have contrast with MRI. Denegirl
MSNik
01-25-2009, 03:37 PM
This post you responded to, is over 8 months old, most of the people who posted on this thread are no longer posting here..but for the record, its only important to have contrast if something is actively going on....if its a routine MRI, its not that important. Contrast shows active lesions- but any old lesions or damage will still show up, even without contrast..
just wanted to point that out..
Nikki
just wanted to point that out..
Nikki