duhbutlerdidit
08-31-2008, 01:53 AM
I was wondering if someone might have some ideas on what could be wrong with my little boy.It started off about 3 years ago when he was diagnosed with h-pylori and bad reflux.he will go through spells like he is hypoglycemic but he's not.he gets constant headaches.they ran some blood work and something came back high wich supposebly ment he had parasites but he was negative.then recently he came down with pseutamonis in his ears really bad and that was a real struggle to get rid of.now he is hospitalized because of dehydration.he was continuously sleeping and you couldnt touch his kidneys or anything,they felt bruised.i took him to the dr. and they thought he had mono because his lymph nodes were swollen and they did a cat scan and what was hurting him was his spleen because it was enlarged.anyways he's more alert now but is complainig of bruising type pain in different places of his abdomen and back wich i beleive are his lymph nodes swelling.bilirubin came back in his urine wich usually signals liver trouble but all that is fine they say.he was negative for mono which they thought he had and epstein bar virus.they said everything looked viral.is it possible this could be something more of danger not showing up?????and can your bloodwork be ok and this be something more seriuos?????does anyone know????
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maria8910
09-10-2008, 05:43 AM
Hi, I posted the following note on one of your posts from a year ago I didn't notice the date, it was regarding your daughter. I hope she is recovered and doing find now. I just am sending you what i typed because i feel strongly about what happened to my friend and her daughter and maybe it will help you if you feel you are not getting answers from your current doctors. I wish you luck with your kids.
Hi, I just noticed your post. I have a friend with a 19 year old daughter, for years she had stomach problems and finally had very severe pains, would not eat, many problems that i am not even aware of. Anyway, long story short, the doctors could not figure out what it was and she got thinner and sicker (over 3-4 years). Some of the tests and medicines you mention sound very similar to things she described to me over time. Finally she took her to Mayo clinic in desperation because she got critically ill and they figured out she has Lupus. This was about 2 years ago they figured it out. She was in the hospital because she couldn't eat or digest food and was losing so much weight. Because of all the long standing problems she has only 50% kidney function now, but doing basically fine, going to college, working, etc. Turned out there is some genetic disposition for Lupus in her ex-husbands family i think she told me. My friend works in the medical industry. Physicians assistant for internal medicine doctors, and she feels so bad she didn't recognize the signs of serious illness in her own child for years. She feels had she not gone to another city to Mayo clinic, her daughter would not be alive now. I am only writing this to say that if you have access to a well known research type hospital like mayo Clinic (minnesota, florida, and arizona locations) or other children's hospital, you should take advantage of it if at all feasible. it can really make the difference in getting a diagnosis. Good luck to you and your daughter. Maria
Hi, I just noticed your post. I have a friend with a 19 year old daughter, for years she had stomach problems and finally had very severe pains, would not eat, many problems that i am not even aware of. Anyway, long story short, the doctors could not figure out what it was and she got thinner and sicker (over 3-4 years). Some of the tests and medicines you mention sound very similar to things she described to me over time. Finally she took her to Mayo clinic in desperation because she got critically ill and they figured out she has Lupus. This was about 2 years ago they figured it out. She was in the hospital because she couldn't eat or digest food and was losing so much weight. Because of all the long standing problems she has only 50% kidney function now, but doing basically fine, going to college, working, etc. Turned out there is some genetic disposition for Lupus in her ex-husbands family i think she told me. My friend works in the medical industry. Physicians assistant for internal medicine doctors, and she feels so bad she didn't recognize the signs of serious illness in her own child for years. She feels had she not gone to another city to Mayo clinic, her daughter would not be alive now. I am only writing this to say that if you have access to a well known research type hospital like mayo Clinic (minnesota, florida, and arizona locations) or other children's hospital, you should take advantage of it if at all feasible. it can really make the difference in getting a diagnosis. Good luck to you and your daughter. Maria