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shrtcak81
09-03-2008, 03:09 PM
Hi everyone! I'm new to this board. I'm 27 years old and have had fibromyalgia since I was 22. I've always had pain/stiffness/achiness. I've been taking Lyrica for over a year and it really has done wonders for my pain. However in the last couple months I've noticed that it's loosing its effectiveness so I'm thinking of increasing the dose. A little over a month ago I started to become really stressed out with horrible anxiety. During this time I started to get symptoms such as tingling/burning. I thought that it was a combo of my anxiety/fibro causing the symptoms and when the anxiety subsided I thought it would go away. Well, I'm on Lexapro and I'm feeling less anxious, but I still feel the tingling/burning and it's really bad. It feels like my whole upper half of my body is on fire and my skin hurts to touch. I thought that Lyrica would help these symptoms, but maybe it isn't because I need to increase the dose. I just hate this burning feeling, and my skin hurts to touch. Does anyone else have these symptoms? It's been coming and going, but for the most part I been feeling like this everyday. Yuck...I hate it:( Is there anything else that helps with this? Thanks!

Crystal

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Twinkie50
09-03-2008, 08:51 PM
Hi - I have had the skin burning/pain off and on for many years. Sometimes so badly the seams of my jeans just hurt touching my skin - like I am severely sunburned. Nothing much helps it seems - maybe try to wear soft clothing...like everything else, it too will pass and then something else will pop up !!!!! Seems we never get a break. :confused:

MaryAnn

jessbcuz10
09-03-2008, 08:59 PM
I found wearing softer clothing helps as well. Sometimes though Nothing seems to help.

As far as meds go I maxxed out 3 within 1 year before I found the one that works best for me.

I take efexxor (225 mg a day), Lyrica (75 mg a day) and Valium when I feel vertigo coming on. Other then that the rest I just deal with. Don't get me wrong, I still have bad and worse days---but the skin thing I haven't been able to do to much about. ALthough I have noticed, taking a warm shower at night, (and for some odd reason even putting on just regular skin lotion) and doing the same in the mornings have helped.

Keep in mind we tend to lose hydration quicker then other so drinking water and putting on lotion have been kinda making it easier for me.



Jess

shrtcak81
09-03-2008, 09:01 PM
Thanks for your reply! I didn't really have this symptom until recently so it's got me bumbed out. Well now that I think about it, my skin is pretty sensitive to touch. Now it's just turned into burning pain. Just like you said, it may pass and then something else pops up, because there always has to be something going on with this syndrome:(

Crystal

shrtcak81
09-03-2008, 09:07 PM
Thanks Jess! It helps to know that others are suffering from this as well. I'm on Lyrica also, 100mg 3x daily and it did wonders for my pain for a whole year, but now it seems to be wearing off and my pain is creeping back up on me. I'm going to increase the dose soon and she if that helps. It's been the only drug that has relieved my pain so much. Although it's not doing anything for this burning/tingling thing going on. As for dehydration, I do find myself feeling more thirsty these days and I have frequent urination...which I'm going to get checked out tomorrow. I've already ruled out UTIs and diabetes. My guess is that its Interstatial Cystitis...another pain condition that has surfaced along with the many others. I just hate always being in pain!:(
Crystal

shrtcak81
09-03-2008, 10:39 PM
Hey guys....does anyone know if it's the skin burning or is it the muscles burning? I'm a little confused on which it is.:confused:

jessbcuz10
09-04-2008, 12:19 AM
Hey guys....does anyone know if it's the skin burning or is it the muscles burning? I'm a little confused on which it is.:confused:

I believe its actually your nerves as the pain is as well.

kirstee
09-05-2008, 08:00 PM
I believe it is the skin which is actually burning. You might try using a bath brush in a bath with Epsom salts, sea salts, and baking soda (1 cup each). Take a shower afterwards to wash off the salt. Then apply Lac-Hydrin or Aquaphor lotion. If you are experiencing any itching, in combination with the burning, Benadryl at night might help you sleep.

People with FMS have a higher-than-normal blood and tissue levels of histamine. This might be why you are suffering this burning sensation. I really sympathize.

Blessings,
Kirstee

mimgregg
09-05-2008, 08:37 PM
Hi Crystal, something that Krystee said made me think of guafusenin (spelling??). It helps with the histine effect that seems to aggravate those of us with this problem than "normies". If you search the fibro board, there should be many posts that show about this and can give you more info than I could. It IS frustrating to have so many symptoms and so few answers! I hope you find something that helps. Sometimes, even though it hurts at first, I will take the hottest shower I can stand and then put on all cotton thin pjs and just cover up with a sheet to ease the pain. I have pain medicine that has acetaminophen in it that I take along with the muscle relaxers, antidepressant, lyrica, and when needed xanax. I know, a lot to take but my body is toast sometimes and needs the medicating to calm it down. Hope you find some relief!
Mim Gregg

shrtcak81
09-05-2008, 09:47 PM
Hi Mim! Thanks for the reply! I have actually tried guaifenisen before. It's supposed to reverse the symptoms. It wasn't very pleasant, I was getting worse when taking it, as that is what it's supposed to do. I took it for about 3-4 months, but there was so much to watch for (you have to use all sal-free products) and I became frustrated with it. It's a long process. Around the time I gave up I discovered Lyrica and it has helped me for over a year. I think I need to increase the dose though because my pain has been creeping up on me again these last couple months. It's done wonders for me though. I also take xanax at night to sleep. I was taking Zanaflex for a while and Ultram, but they didn't seem to help much. Right now I'm on my 4th week of Lexapro and it seems to be helping me with my anxiety/depression. I've also been prescribed Elavil and I'm going to start taking that tonight for sleep and various other pain conditions I have (vulvodynia, IC). Hopefully that will help me. It seems as though us fibro-sufferers have to take a few different meds to help us cope. What antidepressant do you take?

Crystal

shrtcak81
09-05-2008, 09:53 PM
Thanks for your reply Kristee! I think I will try your suggestions:) One thing that happens to me, and I'm not sure it has to do with fibro, but my skin itches really bad when there is a lot of heat. Things that set it off is exercise, tanning beds, hot water. I think it might be heat rash. Well it started before the fibro did, so it might just be that my skin is super sensitive. It also itches a lot when it gets cold and dry, but I think that's normal.

Crystal

mimgregg
09-05-2008, 10:10 PM
Hey there, I take Effexor XR. I have been on antiD's for about 15 years and this one has helped me the most. It is different for everyone as to which seems to help. The downfall of it is if you forget a dose you REALLY know it. Swimmy headed and my tongue goes numb. I guess you have tried a bunch from what you have posted, meds that is, and it seems like you are on a good mix right now. The elavil made me really sleepy, and helped some for a while. I deal with nerve pain as well as arthritis and fibro pain and degenerative disc pain so I take Lortab as needed and try to really take little as getting narcotics from my doctor is harder than if you went on the street and bought illegal dope. Go figure! It is a shame that so many on these boards have such a hard time getting relief. I seem to hear more about med schools teaching pain management more in depth than they used to. My brother graduated med school about 9 years ago and admits they really don't go in depth into pain management for chronic pain. I have taught him about fibromyalgia and brain injury complications on the nervous system and pain receptors more than he ever got in medical school. Sad but true. I went through a stage recently where for about 6 weeks I was in so much pain I just barely functioned, but it has slowly eased to a livable level. The lyrica is great and is very effective but I have read where others (as well as myself) seem to lose effectiveness and have to have it raised. I try to keep my intake below max level so I can use the maximum level when it gets really bad. I have 2 poochies that are my babies but when I hurt it is miserable to have them sleep with me. They have slowly learned to step around me most times instead of across me....lol. I know that there are a lot of homeopathic remedies that can help, but to be honest I have tried only a few and when I am in really bad pain not much seems to help. I hope you find an answer to what helps so you can share! take care!
Mim Gregg

shrtcak81
09-05-2008, 10:57 PM
I've heard of people having great success with Effexor XR. I was on Zoloft for 8 years and it completely changed my life. I got off of it a year ago because I was at the max dose. Lexapro seems to be helping so far and I know it will get better in the next coming weeks. I haven't tried any narcotics because I'm so afraid of becoming addicted, but if the pain gets that bad...which it has been....I may need to result to those one day. It is sad how much professionals in the medical field know about fibro....but it is getting better. I'm relieved that I live in a time when the word about this condition is getting out. When I saw the commercial for Lyrica, I cried because they were actually advertising a drug for fibro. It feels great to know that people know fibro is real and isn't just in our heads. What dosage do you take of Lyrica? I take 100mg 3x a day, but I want to up the dose to 150 3x a day. I think the max is 600mg a day, right? I'm just worried that when the Lyrica doesn't work anymore, what will I find next. I was thinking to try Cymbalta when it gets to that point.

Crystal

mimgregg
09-06-2008, 12:44 AM
I have access to up to 600mg of Lyrica but take about 1/2 of that. I took the full dosage after Cspine surgery. The narcotics issue is an old one, but if your body needs the pain controlled it uses the narcotic to block the pain and you don't become addicted. Now I might get booed on that one, but as one of my docs said (of course the one that does not do my pain meds) so long as you take the minimal amount to control the pain and function you are not addicted. When your body needs it whether you are at the same pain level or not is an indication of addiction. Of course, I had one idiot doc tell me if I had to take one Lortab a day then I was addicted. I almost hurt myself laughing at him. I then asked him where he went to medical school and what experience he had with addiction and narcotics. ANY medication can be abused, it is the individual that must stay very aware of how different medications affect alertness and functioning as well as pain control. I don't think we should be drugged and zombified, but no one should have to suffer even with chronic pain. There are so many different alternatives. I may eventually look into a spinal stimulator to block nerve signals, but the thought of someone messing with my spine yet again makes me almost gag. I have told my doctors that if my quality of life is miserable, then there is no use for quantity of life. I would rather have medications than not be able to get out of the bed and have a semblance of my life. Have any of your docs done a combine antiD therapy such as wellbutrin and zoloft or another med? I know I tried that with not much success, but have had others with fibro tell me that it helped them. I also liked Cymbalta, but had to stop because I had the adverse side effects that were a little scarey. Sometimes switching to a similar med and coming off of one you have been on allows for the body to lose it's high tolerance and you can eventually go back on the other med (like from Lyrica to Cymbalta and eventually back to Lyrica). You said you were on elavil, it is used as an anti seizure med also. My neuro has tried me on several of those even though I don't have seizures (surprising since I have multiple head injuries) and they have helped with some of my symptoms. I can tell though when my body does not need them just from how it begins to react differently. Eventually we should all just sit for the board certification in multiple areas of medicine at the rate we are going. I have even tried to get in on medical studies for this as well as my head injury. So far no luck b/c I have too much wrong with me. Geez! Thanks! LOL, laugh about it or cry, it is raining with TS Hanna, so I will just laugh.

1stBlush
09-06-2008, 01:18 AM
With me, I believe it's the nerves. I have muscles that burn, like when you've worked out too hard and ripped a muscle. I also have burning? that feels like ants stinging me all over my legs.

Haven't had much problems with skin sensitivies, (knock on wood), just a slight discomfort sometimes on my arms, neck and shoulders. A kind of "ooh, don't touch me" feeling.

Lost Robin
09-06-2008, 06:17 PM
Hi Everyone,

I have also had this burning sensation you're all talking about. Mine feels like I have a bad rug burn. I started having it a couple of years ago. It started out on my upper right arm where it is most of the time. Once in a while, I feel it on other areas of my body. For a while last year, it started on my thighs and got pretty bad.

As far as what's causing it ... I've been told that it's neuropathy - disease or malfunction of the nerves or nerve damage. We feel like the skin on our bodies is burning, but in reality it's our nerves (and/or brain) playing tricks on us!

Just one more fun thing we fibromytes get to deal with! :dizzy:

Wishing everyone a pain-free day! :wave:

Robin

Moonlady
09-06-2008, 06:44 PM
Mine feels like I have a bad rug burn.

I have not been able to find the words for a lot of my pains to help describe what I am feeling. But that is one of them! A bad rug burn that only lasts for a few seconds then goes away like it was never there. I get those mostly on my arms and legs. Itusually only feels about the size of a quarter when that type of pain hits





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