Orelisa
09-04-2008, 05:32 AM
Hello everybody Frenchy Girl needs you again :D
For those who didn't read me yet I'm a french fibro girl who looks forward informations about it because in France this disease is a "mind illness" (for doctors and for other persons) and so I have fibro but I'm not really inform by it.
I had sleep trouble a little bit before the diagnostic fell but now it's more and more present and i would like to know if it's fibro or not :
I go to bed for example at 9:30 or 10 pm i sleep without problem (as i'm often tired) but when mornig comes i'm as tired than yesterday and sometimes more ! Do you have this too ? If It's the case : What can help me to have a good sleep ?
I expect your answers see you later :)
I apologize for grammar and vocabulary again :jester:
For those who didn't read me yet I'm a french fibro girl who looks forward informations about it because in France this disease is a "mind illness" (for doctors and for other persons) and so I have fibro but I'm not really inform by it.
I had sleep trouble a little bit before the diagnostic fell but now it's more and more present and i would like to know if it's fibro or not :
I go to bed for example at 9:30 or 10 pm i sleep without problem (as i'm often tired) but when mornig comes i'm as tired than yesterday and sometimes more ! Do you have this too ? If It's the case : What can help me to have a good sleep ?
I expect your answers see you later :)
I apologize for grammar and vocabulary again :jester:
Sponsor
Paddy55
09-04-2008, 10:51 AM
Orelisa - Welcome to the board!
Fatigue is a common symptom of fibro. It is because the fibro somehow deprives us of restorative sleep, meaning we sleep and sleep, but we can never get the right kind of sleep. We could sleep all night and wake up exhausted - that is very common.
Some doctors prescribe amitryptaline (branded Elavil here) for improving your sleep. I take 3 - 10 mg tablets about 2 hours before bed, and it has really helped. I wake up less from the pain. There are other medications but this one is common. It is used in larger doses for depression, but at these small doses seems to help with sleep.
Hopes this helps.
Wishing you peace and comfort,
Paddy
Fatigue is a common symptom of fibro. It is because the fibro somehow deprives us of restorative sleep, meaning we sleep and sleep, but we can never get the right kind of sleep. We could sleep all night and wake up exhausted - that is very common.
Some doctors prescribe amitryptaline (branded Elavil here) for improving your sleep. I take 3 - 10 mg tablets about 2 hours before bed, and it has really helped. I wake up less from the pain. There are other medications but this one is common. It is used in larger doses for depression, but at these small doses seems to help with sleep.
Hopes this helps.
Wishing you peace and comfort,
Paddy
TexMom85
09-04-2008, 02:47 PM
Orelisa,
Have you noticed if you snore (breathe abnormally) or if your feet thrash about while you are sleeping? If so, your fatigue (which is very normal for Fibromyalgia patients) could be made worse by either sleep apnea (where the body stops breathing for short moments due to obstruction in the soft tissue in the throat) and/or Restless Legs Syndrome, where the feet and legs move involuntarily and can cause disruptions to the sleep. Do you have a partner who has observed you sleeping who can tell if you are restless?
J'espere que tu dormires (sp?) ce soir (I hope you sleep tonight).
There are things you can take that might help with your energy but you must be careful not to overstimulate yourself, then sleep will be hard to achieve.
I think amitriptylline is an option, but be careful, as many people gain weight on it.
Let us know how you are doing.
Blessings,
TexMom
Have you noticed if you snore (breathe abnormally) or if your feet thrash about while you are sleeping? If so, your fatigue (which is very normal for Fibromyalgia patients) could be made worse by either sleep apnea (where the body stops breathing for short moments due to obstruction in the soft tissue in the throat) and/or Restless Legs Syndrome, where the feet and legs move involuntarily and can cause disruptions to the sleep. Do you have a partner who has observed you sleeping who can tell if you are restless?
J'espere que tu dormires (sp?) ce soir (I hope you sleep tonight).
There are things you can take that might help with your energy but you must be careful not to overstimulate yourself, then sleep will be hard to achieve.
I think amitriptylline is an option, but be careful, as many people gain weight on it.
Let us know how you are doing.
Blessings,
TexMom
Orelisa
09-05-2008, 03:36 AM
Dear TexMom 85,
I don't snore or have feet trash that can explicate this fatigue but the only little rumor I ear will wake me up I will sleep again but not as well as before. But the thing that retains my attention is that in the weekend I can have a well night sleep without being waking up by something I'm also so tired ! I can't make It up ! And with 3 children It's sometimes very hard to support.
I think I will try to stop tea to see If It's a little bit better. But What can I take If I'm tired during the day can I take things like orange juice, fruits or vitamins ?
I don't snore or have feet trash that can explicate this fatigue but the only little rumor I ear will wake me up I will sleep again but not as well as before. But the thing that retains my attention is that in the weekend I can have a well night sleep without being waking up by something I'm also so tired ! I can't make It up ! And with 3 children It's sometimes very hard to support.
I think I will try to stop tea to see If It's a little bit better. But What can I take If I'm tired during the day can I take things like orange juice, fruits or vitamins ?
Orelisa
09-05-2008, 06:38 AM
I didn't know its existence what you others think about this idea ? Some have already tested It before ? :)
Paddy55
09-05-2008, 10:31 AM
Orelisa - do you mean have any of us experienced sleep apnea or restless leg syndrome?
I definitely have restless leg syndrome. I do not take medicine for it, although there are medications available. I try to get increased amounts of iron and magnesium in my everyday diet. This may help. Another thing I do that helps is gentle stretching. I have a mat I put down beside my bed, do some very gentle stretching of my legs, arms and back, for about 15 minutes, and then climb into bed. Getting less caffeine, alcohol and tobacco, and ideally getting none of those things, will help RLS as well.
I have actually been tested in a sleep lab for sleep apnea. That was very strange. They attached electrodes all over my body - about 8 of them - then put me to bed around 9 and said "see ya in the morning". They watched me through a monitor. I felt like I thrashed all night. But sleep apnea diagnosis requires that you stop breathing (yes, actually stop breathing) in the night more than 6 times. In the morning the doc told me I "only stopped breathing 4 times", so therefore I did not have sleep apnea. I was really looking for a way to get a better sleep, and left even more confused than before.
Now I realize my struggle is more to do with pain than anything. I mean, who can sleep through that? Also, I have chronic sinusitis - inflammation of the sinus cavities - which causes heavy congestion at night, so struggling for every breath tires you out too.
Orelisa - do you think you have either of these problems?
Wishing you peace and comfort,
Paddy
I definitely have restless leg syndrome. I do not take medicine for it, although there are medications available. I try to get increased amounts of iron and magnesium in my everyday diet. This may help. Another thing I do that helps is gentle stretching. I have a mat I put down beside my bed, do some very gentle stretching of my legs, arms and back, for about 15 minutes, and then climb into bed. Getting less caffeine, alcohol and tobacco, and ideally getting none of those things, will help RLS as well.
I have actually been tested in a sleep lab for sleep apnea. That was very strange. They attached electrodes all over my body - about 8 of them - then put me to bed around 9 and said "see ya in the morning". They watched me through a monitor. I felt like I thrashed all night. But sleep apnea diagnosis requires that you stop breathing (yes, actually stop breathing) in the night more than 6 times. In the morning the doc told me I "only stopped breathing 4 times", so therefore I did not have sleep apnea. I was really looking for a way to get a better sleep, and left even more confused than before.
Now I realize my struggle is more to do with pain than anything. I mean, who can sleep through that? Also, I have chronic sinusitis - inflammation of the sinus cavities - which causes heavy congestion at night, so struggling for every breath tires you out too.
Orelisa - do you think you have either of these problems?
Wishing you peace and comfort,
Paddy
Orelisa
09-05-2008, 01:50 PM
Dear Paddy 55,
For my precedent post in fact there was a person who erases his post about a berry juice (publicity) and I asked if someone have already tested It (there was a confusion) I apologize.
To answer to your question I also have a problem of nose's congestion at night but for apnea I don't really know If I have that or not ...:confused: But I'm sure not having restless leg syndrom (my husband would have killed me ;))
I try to reduce sugar as many of you recommended me. I don't drink coffee and today I have just drunk a tea at morning but not during the afternoon.
I wish It will change a little thing.
For my precedent post in fact there was a person who erases his post about a berry juice (publicity) and I asked if someone have already tested It (there was a confusion) I apologize.
To answer to your question I also have a problem of nose's congestion at night but for apnea I don't really know If I have that or not ...:confused: But I'm sure not having restless leg syndrom (my husband would have killed me ;))
I try to reduce sugar as many of you recommended me. I don't drink coffee and today I have just drunk a tea at morning but not during the afternoon.
I wish It will change a little thing.