shrtcak81
09-06-2008, 01:48 AM
Thinking back to some of the first symptoms of my fibro, it seems as though it may have started out as CFS. The main symptoms at first for me at first was fatigue followed by pain/achiness. But I remember that the fatigue was horrible and I would always take naps and nod off in class. I also has sore throats (strep throat) a lot before or right at the beginning of fibro. I do have hypogycemia and at the time of onset I was a server and was using so much energy and not eating right so that played a major part in it. Since then however, the pain seems to be the first complaint which causes fatigue. I haven't really had sore throats like I did in the beginning. I read that sore throats are a part of CFS. Anyway, I was just thinking about how all of this started. Anyone's thoughts?
Crystal
Crystal
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Glojer
09-07-2008, 12:19 AM
Is that like which came first the chicken or the egg.....giggle! Fibro and CFS go so hand in hand it would be hard to know the answer to that question. For me fibro is the primary and CFS would be the secondary.
Glojer
Glojer
kirstee
09-07-2008, 08:50 PM
I agree with Glojer. To say which was first is like saying measels does not have spots. CFS is part of the whole dang syndrome.
Bye!
Kirstee
Bye!
Kirstee
mimgregg
09-08-2008, 01:19 AM
Glojer, before I read your post I thought about the chicken and egg thing too! Wow, fibro brains unite! LOL
Actually I have had 2 of my docs say that they are often a hand in hand type of malfunction in the body. I can't figure out if my fatigue comes from the brain injury, thryoid disease, fibromyalgia, chronic pain, sleep apnea, or insert here something else as my brain just froze.
I have never been outright dxed with CFS, but my stepmom has and we have almost identical symptoms. She is 21 years older and still gets around better than me, that stinks....lol.
Mim Gregg
Actually I have had 2 of my docs say that they are often a hand in hand type of malfunction in the body. I can't figure out if my fatigue comes from the brain injury, thryoid disease, fibromyalgia, chronic pain, sleep apnea, or insert here something else as my brain just froze.
I have never been outright dxed with CFS, but my stepmom has and we have almost identical symptoms. She is 21 years older and still gets around better than me, that stinks....lol.
Mim Gregg
daybreak333
09-11-2008, 10:04 PM
hello all,
for me the fibro was most prevalent at first, the pain was gradually becoming debilitating and about a year and a half into it i realized that i was never feeling refreshed after sleeping and most days i am SO weak. eventually my doctor said that he believed that i have cfids too, although i didn't seem to even be fatigued at first (i did have anxiety though). so for me it seems to have started with the fibro/ muscle pain and spasms. after seeing so many doctors and being at a much better place with the fibro, now i need to find help for the chronic fatigue, so far i feel like my life is passing by as i can never get any energy back, (though i have found that mate' tea helps for short periods of time).
:) interesting thread.....
ps shortcake i too have hypoglycemia as well as endometriosis. i have found it interesting to read the various co-existing symptoms that seem to come along with the fibro for many of us
for me the fibro was most prevalent at first, the pain was gradually becoming debilitating and about a year and a half into it i realized that i was never feeling refreshed after sleeping and most days i am SO weak. eventually my doctor said that he believed that i have cfids too, although i didn't seem to even be fatigued at first (i did have anxiety though). so for me it seems to have started with the fibro/ muscle pain and spasms. after seeing so many doctors and being at a much better place with the fibro, now i need to find help for the chronic fatigue, so far i feel like my life is passing by as i can never get any energy back, (though i have found that mate' tea helps for short periods of time).
:) interesting thread.....
ps shortcake i too have hypoglycemia as well as endometriosis. i have found it interesting to read the various co-existing symptoms that seem to come along with the fibro for many of us
DeBeachSiren
09-12-2008, 07:57 AM
Hi,
Mine started with a rear end car accident, then sleeping alot and bladder spasms when I laid down. I'd be so tired, but for like an hour I'd think well maybe I ought to pee again, go lie down just about go to sleep and have to pee again. But when I finally did sleep I'd sleep hard, but still felt like I was getting over the flu, but it wouldn't go away.
Then the myofascial disease happenned. I went to get a massage and had so many trigger points near the tender points, so the PhT said I'm writing all of these muscle groups down take this to your doctor. I did and he started pressing the tender points and said with all of the wierd things you've had over the passed few months, dizziness, bladder spasms, etc., you have fibro.
I really can't say I had CFS, it's the myofascial disease that's the worst for me. I could get along with the fibro part better that the myofascial part. I do feel tired if I don't sleep well or push myself really hard, but it's not that flu-like tired anymore very often. My down time is from soft tissue stuff.
I do know that some doctors believe they go hand in hand, others feel it's a whole thing different from fibro and others believe it's one in the same as fibro. So I guess if you read all that you can about all of them you can go in armed to the doctor and relate your findings. Some doctors work with you and welcome new things like that, some doctors give you the I'm a Dr., so I am a God crap..................I let them know that I do not intimidate, that my time is important too and that they work for me, just like hiring a plumber. I am blessed with my team. Primary is upstairs and the pain specialist downstairs in the same building, what a plus.
Oh well, it a different view of things anyway. We are the same but different.
AnneBoleyn
Mine started with a rear end car accident, then sleeping alot and bladder spasms when I laid down. I'd be so tired, but for like an hour I'd think well maybe I ought to pee again, go lie down just about go to sleep and have to pee again. But when I finally did sleep I'd sleep hard, but still felt like I was getting over the flu, but it wouldn't go away.
Then the myofascial disease happenned. I went to get a massage and had so many trigger points near the tender points, so the PhT said I'm writing all of these muscle groups down take this to your doctor. I did and he started pressing the tender points and said with all of the wierd things you've had over the passed few months, dizziness, bladder spasms, etc., you have fibro.
I really can't say I had CFS, it's the myofascial disease that's the worst for me. I could get along with the fibro part better that the myofascial part. I do feel tired if I don't sleep well or push myself really hard, but it's not that flu-like tired anymore very often. My down time is from soft tissue stuff.
I do know that some doctors believe they go hand in hand, others feel it's a whole thing different from fibro and others believe it's one in the same as fibro. So I guess if you read all that you can about all of them you can go in armed to the doctor and relate your findings. Some doctors work with you and welcome new things like that, some doctors give you the I'm a Dr., so I am a God crap..................I let them know that I do not intimidate, that my time is important too and that they work for me, just like hiring a plumber. I am blessed with my team. Primary is upstairs and the pain specialist downstairs in the same building, what a plus.
Oh well, it a different view of things anyway. We are the same but different.
AnneBoleyn