brclrk80
09-07-2008, 10:10 AM
I experience delusions, hallucinations, and social withdraw. I have never seen a psychologist about these, that would not be possible at this point. I have spoken to my neurologist about these. He said they can be triggered/caused by MS, however it is very rare and not well documented.
I have noticed a gradual increase in these issues over the past few years and increasingly so in the last few months (leading up to my diagnosis). Does anyone here experience anything similar and if so, has it been linked to MS?
I have noticed a gradual increase in these issues over the past few years and increasingly so in the last few months (leading up to my diagnosis). Does anyone here experience anything similar and if so, has it been linked to MS?
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Bearygood
09-07-2008, 11:35 AM
Social withdrawal is not uncommon, simply on the basis of depression. As far as the other things, I personally have never seen anyone talk about them, or at least attribute these things to MS.
brclrk80
09-07-2008, 11:55 AM
Ok, I was not sure. I believe these things may be an underlying condition, but I didn't know if MS was a factor in it.
Bearygood
09-07-2008, 12:01 PM
It's honestly so hard to say for sure. Just when you say that no, something can absolutely NOT be MS related, someone comes along with that symptom! Question --are you taking any medication that it could possibly be a side effect of?
MSNik
09-07-2008, 06:00 PM
Beary is right, medication can be a side effect of what you are describing, but also anxiety can cause it. People scoff at me when i say that anxiety can cause alot of similar to MS symtoms, but its true that it can. Especially in a new dx, being unsure of your future, uncertain of what is next and the stages of grief that we go thru learning to accept having this disease can certainly cause social withdraw as well as some feelings of hallucinations and delusions..
Please talk to your doctor about this becaue help is out there.
Nikki
Please talk to your doctor about this becaue help is out there.
Nikki
brclrk80
09-08-2008, 09:29 AM
I am currently on Neurontin and Xanax. I start Rebif tomorrow.
I believe it all started around the time I began college, it may be stress. Now since my diagnosis and all of this disability stuff and not being able to do anything anymore, this may be the cause too.
I will speak to someone about it when it becomes possible. Until then, I assure you its not that bad. I am a not danger to myself or others, I just have some issues needing some attention. I hope you don't think I am some crazy mental person now. Thank you for the support :)
I believe it all started around the time I began college, it may be stress. Now since my diagnosis and all of this disability stuff and not being able to do anything anymore, this may be the cause too.
I will speak to someone about it when it becomes possible. Until then, I assure you its not that bad. I am a not danger to myself or others, I just have some issues needing some attention. I hope you don't think I am some crazy mental person now. Thank you for the support :)
MSNik
09-08-2008, 05:20 PM
Best of luck to you with starting Rebif!! If you need any support or have any questions, shout out. I have been on it two years now and absolutely love it, but quite clearly remember what it took to get to this place.....I hope it works as well for you as it has for me!
Nikki
Nikki
Snoopy61
09-08-2008, 07:55 PM
I don't know how long you have been on Neurontin but, be aware a side affect of this drug are mental health issues and personality changes.
Here is more information:
http://www.nlm.nih.gov/medlineplus/druginfo/medmaster/a694007.html
Here is more information:
http://www.nlm.nih.gov/medlineplus/druginfo/medmaster/a694007.html
brclrk80
09-09-2008, 09:49 AM
I don't know how long you have been on Neurontin but, be aware a side affect of this drug are mental health issues and personality changes.
Here is more information:
http://www.nlm.nih.gov/medlineplus/druginfo/medmaster/a694007.html
I have been on it a little under a month, I am currently taking 600 mg. It hasn't helped me at all, though it does knock me out for a good night sleep most of the time :)
I don't know what it is about me, but any medicine I take it seems I always have a ton of side effects from it. The worst being the Methylprednisolone, I gained about 15 pounds (didn't eat bad at all), my face/head broke out terrible, heart burn, palpitations, dizziness, insomnia, mood swings, flushed face, muscle pain. The good thing is I shouldn't have to take it anymore since it doesn't seem to help. My neuro said it may be causing more harm than good.
My Rebif should be arriving today. A nurse from MS Lifelines called last week to set up an appointment to give me my first injection but we didn't know at that point when the medicine was arriving. At this point, she won't answer he phone or return my calls, so I will have to call the company and complain. I can only imagine what side effects I'm gonna get from this stuff.
Here is more information:
http://www.nlm.nih.gov/medlineplus/druginfo/medmaster/a694007.html
I have been on it a little under a month, I am currently taking 600 mg. It hasn't helped me at all, though it does knock me out for a good night sleep most of the time :)
I don't know what it is about me, but any medicine I take it seems I always have a ton of side effects from it. The worst being the Methylprednisolone, I gained about 15 pounds (didn't eat bad at all), my face/head broke out terrible, heart burn, palpitations, dizziness, insomnia, mood swings, flushed face, muscle pain. The good thing is I shouldn't have to take it anymore since it doesn't seem to help. My neuro said it may be causing more harm than good.
My Rebif should be arriving today. A nurse from MS Lifelines called last week to set up an appointment to give me my first injection but we didn't know at that point when the medicine was arriving. At this point, she won't answer he phone or return my calls, so I will have to call the company and complain. I can only imagine what side effects I'm gonna get from this stuff.
brclrk80
09-09-2008, 09:50 AM
Best of luck to you with starting Rebif!! If you need any support or have any questions, shout out. I have been on it two years now and absolutely love it, but quite clearly remember what it took to get to this place.....I hope it works as well for you as it has for me!
Nikki
Thank you, I appreciate it.
Nikki
Thank you, I appreciate it.
Bearygood
09-09-2008, 10:03 AM
brclrk80, glad to hear you've got it under control but it's still a little troubling. I'm glad you're conscious of it and no, we don't think you're crazy, LOL. So could it be the Neurontin? Just in general (and in response to your statement) there absolutely are people who are very sensitive to almost every type of medication. You're definitely not alone here -- I've seen it with others.
Good luck with Rebif!
Good luck with Rebif!
brclrk80
09-09-2008, 10:07 AM
Thanks Bearygood, if I have any trouble with the Rebif this would be the first place I would post. I do have some questions for those taking it, but I don't want to get OT from the thread so if the nurse can't help me with it, I will make a new one.
Dave17522
09-09-2008, 02:31 PM
I have been on Rebif for over two years now and have had no problems with it, in fact it was because of the Rebif that I am not in a wheel chair. I have been on Neurton for over a year now ( 300 mg twice a day) and I have had no complaints about it. I am also on 2 mg of zanaflex that I take at bed time to help reduce my muscle spasms at night. The only issue that my doctor advised me of with neurton is weight gain.
In the past two years I have learned one thing about MS and that is that it affects not one person the same! Until last November I worked as a transportation dispatcher till the stress got to me. It was not the work itself, but with new management coming in and all the changes I just could not handle it any longer. I have a severe right dropped foot which causes me a lot of issues in mobility and I just figured it was not worth it any longer. Along with the MS I have a genetic heart disease that has weakened my heart considerably. The nursing school that is involved with the Medical Center did a study on patients that are in congestive heart failure along with another disease like MS and the person that interviewed me for 6 months could never understand why I continued to work. Not to preach, but it really is in your attitude that will get you through life living with MS. I motto is never quit! I do not care how hard it is for you to do something or how long it takes you, just do it and don't worry that someone else can do it better or faster. I just had a new grand daughter born in June and it breaks my heart that I can not pick her up and walk with her in my arms, but I does my heart good to sit with her and rock her and play with her on the couch.
So learn all you can about MS, and the medications and the things that are being developed everyday, just do not give up.
In the past two years I have learned one thing about MS and that is that it affects not one person the same! Until last November I worked as a transportation dispatcher till the stress got to me. It was not the work itself, but with new management coming in and all the changes I just could not handle it any longer. I have a severe right dropped foot which causes me a lot of issues in mobility and I just figured it was not worth it any longer. Along with the MS I have a genetic heart disease that has weakened my heart considerably. The nursing school that is involved with the Medical Center did a study on patients that are in congestive heart failure along with another disease like MS and the person that interviewed me for 6 months could never understand why I continued to work. Not to preach, but it really is in your attitude that will get you through life living with MS. I motto is never quit! I do not care how hard it is for you to do something or how long it takes you, just do it and don't worry that someone else can do it better or faster. I just had a new grand daughter born in June and it breaks my heart that I can not pick her up and walk with her in my arms, but I does my heart good to sit with her and rock her and play with her on the couch.
So learn all you can about MS, and the medications and the things that are being developed everyday, just do not give up.