k2626
09-10-2008, 02:34 AM
Hi guys, I get my parathyroid and should have my lyme test back this Friday. After these tests and a nerve test is ruled out I think my dr will dx me with fibro.
My question (aside from all the others!) is how many of you have muscle twitches all over your body? This symptom onset about 3 wks ago, started with my thumb....now I get them all over my body, mainly at night. Literally I will sit there and my calf, foot, shoulder, butt, thigh will all start going...just rapid little twitches that move around-just like my pain and joint cracking.
Is this unusual? At first I was paranoid about ALS but I hear that starts usually in one area for a bit.
Your feedback is appreciated!!
My question (aside from all the others!) is how many of you have muscle twitches all over your body? This symptom onset about 3 wks ago, started with my thumb....now I get them all over my body, mainly at night. Literally I will sit there and my calf, foot, shoulder, butt, thigh will all start going...just rapid little twitches that move around-just like my pain and joint cracking.
Is this unusual? At first I was paranoid about ALS but I hear that starts usually in one area for a bit.
Your feedback is appreciated!!
Sponsor
shrtcak81
09-10-2008, 02:51 AM
Hi there! Yes, I get muscle twitches all over my body as well. They come and go and like you said, I get them mainly at night in all different places. I'm not sure about getting a whole lot of them at once, but I get one here and there off and on. I also get a lot of burning pain that has been happening lately. It literally feels like parts of my body are on fire....very strange. There are a lot of weird, crazy symptoms with this condition that's for sure! Hope this helps you:)
Crystal
Crystal
Paddy55
09-10-2008, 09:56 AM
Hi K. Yes, I get twitches, like when your eyelid flutters on its own - you can feel a tiny muscle twitching. I also get twitches in larger muscles, especially my legs, and they feel more like a very quick clench.
Wishing you peace and comfort,
Paddy
Wishing you peace and comfort,
Paddy
Kris0120
09-10-2008, 05:35 PM
Hi, yes I get muscle twitches all the time. I have hypothyroidism and fibro. so I'm not sure which one would be causing these. It's really annoying to get these and I've started taking more vitamins hoping it will help. I read somewhere it could be caused by a lack of magnesium. I hope you get answers and some relief. Take care, Kris
k2626
09-10-2008, 05:37 PM
Thanks Kris, I am getting my PTH tested actually. Can you tell me what your thyroid symtpoms were? Thanks a bunch
seaturtle1
09-11-2008, 12:38 AM
hi,,Yes, I can go into "twitch mode". I have found taking Magnesium Maleate in a somewhat high dosage every day has helped this a lot.
Do you have muscle relaxants? Ask your doc - maybe this will help.
Muscle twitches can be caused by nutritional deficiences, so you'd do well to have yourself checked out for that.
Do you have muscle relaxants? Ask your doc - maybe this will help.
Muscle twitches can be caused by nutritional deficiences, so you'd do well to have yourself checked out for that.
k2626
09-11-2008, 01:01 AM
Mine are all over my body mostly at night. Like one area will twitch for a second then a second later another area. Is that what happens with you?
I guess my main concern is my bone pain
I guess my main concern is my bone pain
Kris0120
09-13-2008, 10:30 PM
Hi again, my thyroid symptoms were, a lot of weight gain, exhausted all the time. Puffy, swollen eyelids and face. Dry brittle nails and hair, felt like I was walking around in a daze, and could cry at every little thing ( which normally isn't like me) Insomnia was a problem, but I don't know for sure which of these were thyroid related or if some overlapped with fibro. I get the muscle twitches and am very stiff and sore in the morning. Some mornings I would have to crawl out of bed and had back spasms. I still get the back spasms but am trying to get healthy and diet and walk. It's really difficult to lose weight with the combination of the thyroid and fibro. problems. Either I am stiff and sore or am too tired to even think about the walking. I am really hoping to be able to get going and get the weight off though. The extra weight just aggravates everything. I was told if I didn't lose weight I might get diabetes on top of everything else. It's a vicious cycle with these diseases, but I remain hopeful to pull myself together. Good luck to you. Kris
DeBeachSiren
09-14-2008, 06:31 AM
Wow,
I have knots all over, I get spasms especially between my shoulders, but I've never had the twitches. Yikes.........I'm glad I was spared this one.
My thoughts will be with you.
AnneBoleyn
I have knots all over, I get spasms especially between my shoulders, but I've never had the twitches. Yikes.........I'm glad I was spared this one.
My thoughts will be with you.
AnneBoleyn
lallerb
09-14-2008, 08:50 PM
I get muscle twitches all over. I usually don't really notice it until I'm trying to sleep. For awhile I thought my partner was all twitchy and restless, but I watched her sleeping peaceful as could be a few times before I figured out it was ME! :D I was getting so frustrated with her, too. What a dufus I can be.
I've been on the trial pack of Nortriptyline for about four weeks now. I'm falling asleep easier, and my partner says she notices I'm not as jerky and restless through the night. I still wake up all the time, though.
I've been on the trial pack of Nortriptyline for about four weeks now. I'm falling asleep easier, and my partner says she notices I'm not as jerky and restless through the night. I still wake up all the time, though.
k2626
09-14-2008, 10:18 PM
Laugh--that is pretty funny!
Do you notice your muscle twitching while you sit vs being jerky?
Do you notice your muscle twitching while you sit vs being jerky?
shrtcak81
09-14-2008, 11:20 PM
Lately I've had a lot of muscle twitches, which I usually don't get very often. It's really weird when you can actually see the muscle twitching and it won't stop.
Crystal
Crystal
TEdds83
09-15-2008, 12:37 AM
I have had muscle twitches on and off for the past year. I was so worried I went and had tests run at the neurologist. We have come to conclude it was the consistant doses of Sudefed I was on for my allergies. You may want to consider that if you take certain allergy meds. :)
Paddy55
09-15-2008, 09:51 AM
I guess I get 2 kinds of "muscle twitches" - the simple spasm of a muscle, like a twitching. The 2nd kind, like TEdwards, I jerk when I'm sleeping - major big jerks. My h says I am like an alligator in a trap. Nightmares too. But that can happen and I don't remember a thing, unless he has to wake me right up from a nightmare. I'm actually trying to reduce caffeine, down to 1 cup of coffee a day now, hoping that might help. Sugar too.
Wishing you peace and comfort,
Paddy
Wishing you peace and comfort,
Paddy
rosebuddy
09-16-2008, 06:17 PM
I used to have muscle twitches where my limbs, neck, or even the whole side of my body jerked and it was during the day. It was when i was really flaring or right before a flare. At that time, rushing, mult-tasking, or anything like that was just too much for my nervous system and i would flare. burning skin in patches and all over my body was part of my flares too. I am doing so much better now at least this time of year. the main trigger for a flare for me is when a cold front is moving in.
k2626
10-12-2008, 05:57 PM
Hi guys, I am still getting this EVERYDAY. Its been over a month now and I am scared! I was ruled out for ALS and am getting my cpine mri tomorrow (my head mri was okay). Scared now its MS.
Anyone else get muscle twitches for this long!? My other symptoms remain too...
Anyone else get muscle twitches for this long!? My other symptoms remain too...
ctheri
10-12-2008, 07:58 PM
Hi! I admit, I didn't read all the responses, so maybe someone said this already... try taking magnesium for the twitches at night.. I found it really helped. I also took melatonin to help me sleep.. so the combination of both meant the twitching was less severe and didn't wake me up. Which is all good! :-)
Good luck!
Good luck!
k2626
10-12-2008, 09:06 PM
Mag has not helped sadly Did you have twitches daily? If my C spine MRI comes back clear tomorrow I will try cymbalta. Cross your fingers on the MRI for me! I am scared
julieleaps
10-12-2008, 09:32 PM
I do experience random muscle twitches, as well as sharp nerve pain. It's not on any particular schedule, and obviously I notice it more when I'm at rest, or at least, trying to. I read someplace that "distraction" is one of the treatments for fibro: take your mind off it, do something, and it won't hurt as much. One of these days I'll have to try that. ;)
Anyway, I can totally relate to your fears, and have been where you are. All my tests did not lead to an MS diagnosis, but for whatever reason, I am having a hard time ruling it out. I recently learned of an acquaintance who went from CFS, to Fibro, and now dx'd with MS. It is difficult to sort these things out. It's good that you are getting tests done, and it's even better when you are on the other side of them!
I myself have developed a new symptom today. (BTW, I was dx'd w/Fibro in April of this year, following neck surgery done in Jan 07.) I have been going through an awful flare, where I've missed more work in the past two weeks than I've been able to make it. Today, I woke up after a brief morning nap, and found myself shivering, tremor-like, and couldn't get it under control. I ended up going to the ER, they ran blood and urine tests, and couldn't find anything other than the elevated sed rate and C-reactive protein that were discovered in my GP's office last Wednesday. The ER doc told me my sed rate has been elevated for months, back to April when I had blood work done for the rheumy visit. I had not realized that. I do have osteoarthritis of the spine, so that may account for the inflammation being picked up by the sed rate. But, with this new symptom, it opens the door again to question exactly what I'm dealing with, or what isn't being seen.
Didn't mean to derail your train, here - sorry! I guess I needed to vent a little myself. DH is leaving for AZ tomorrow and I so wish it were me! And, at the same time, I find myself not wanting to leave my house or my couch for anything. Don't know what to do about work; I sit and work on a computer and need to be able to concentrate and have a clear head, neither of which I've been able to do lately.
I AM going to keep asking questions until I'm satisfied, and I would highly recommend you do the same. Don't allow some of the things you read online, though, to feed your fears. Do use the information to be better informed, and maybe be able to ask better questions!
Take Care.
Anyway, I can totally relate to your fears, and have been where you are. All my tests did not lead to an MS diagnosis, but for whatever reason, I am having a hard time ruling it out. I recently learned of an acquaintance who went from CFS, to Fibro, and now dx'd with MS. It is difficult to sort these things out. It's good that you are getting tests done, and it's even better when you are on the other side of them!
I myself have developed a new symptom today. (BTW, I was dx'd w/Fibro in April of this year, following neck surgery done in Jan 07.) I have been going through an awful flare, where I've missed more work in the past two weeks than I've been able to make it. Today, I woke up after a brief morning nap, and found myself shivering, tremor-like, and couldn't get it under control. I ended up going to the ER, they ran blood and urine tests, and couldn't find anything other than the elevated sed rate and C-reactive protein that were discovered in my GP's office last Wednesday. The ER doc told me my sed rate has been elevated for months, back to April when I had blood work done for the rheumy visit. I had not realized that. I do have osteoarthritis of the spine, so that may account for the inflammation being picked up by the sed rate. But, with this new symptom, it opens the door again to question exactly what I'm dealing with, or what isn't being seen.
Didn't mean to derail your train, here - sorry! I guess I needed to vent a little myself. DH is leaving for AZ tomorrow and I so wish it were me! And, at the same time, I find myself not wanting to leave my house or my couch for anything. Don't know what to do about work; I sit and work on a computer and need to be able to concentrate and have a clear head, neither of which I've been able to do lately.
I AM going to keep asking questions until I'm satisfied, and I would highly recommend you do the same. Don't allow some of the things you read online, though, to feed your fears. Do use the information to be better informed, and maybe be able to ask better questions!
Take Care.
Paddy55
10-12-2008, 10:00 PM
K - I'll be thinking of you tomorrow when you have the MRI, and hoping that something will be clarified for you. :)
My rheumie wants me to start on Cymbalta too. Little bit nervous about it, but I know that all of us react differently to different drugs, and I should not worry about bad effects others have told us about. I have to wean off of Paxil first, and I know my physical responses to reducing to Paxil already, so it's going to be a bit of a battle. I've been trying Magnesium for the shivers and shakes - not decided yet if it does anything.
So K, all the best tomorrow. Just remember that lots of us have some form of twitching and shaking that is unexplained, and it's "just fibromyalgia".
Peace and comfort,
Paddy
My rheumie wants me to start on Cymbalta too. Little bit nervous about it, but I know that all of us react differently to different drugs, and I should not worry about bad effects others have told us about. I have to wean off of Paxil first, and I know my physical responses to reducing to Paxil already, so it's going to be a bit of a battle. I've been trying Magnesium for the shivers and shakes - not decided yet if it does anything.
So K, all the best tomorrow. Just remember that lots of us have some form of twitching and shaking that is unexplained, and it's "just fibromyalgia".
Peace and comfort,
Paddy
k2626
10-13-2008, 02:06 AM
Thank you guys. Julie, did your friend have an MRI etc to rule out MS? The scary thing is I hear an MRI can come back normal but one can still have MS.
I swear all my symptoms point to this, but those on the MS board said it really doesnt just onset and start jumping around the body so much, and the extreme joint cracking does not sound like it---though the feet buzzing and the twitching and sometimes numbness do. Ugh....I guess I just have to keep a positive outlook whatever the case may be
Its been hard for me NOT to obsess over what it could be though!
Will fill you guys in when I have more news.......
I swear all my symptoms point to this, but those on the MS board said it really doesnt just onset and start jumping around the body so much, and the extreme joint cracking does not sound like it---though the feet buzzing and the twitching and sometimes numbness do. Ugh....I guess I just have to keep a positive outlook whatever the case may be
Its been hard for me NOT to obsess over what it could be though!
Will fill you guys in when I have more news.......
k2626
10-14-2008, 03:39 AM
Hi guys, I had my c spine MRI today, though its not an official report the tech said that it looked fine aside from a bulging disc and that he did not see MS. So....back to the drawing board. I got about 10 vials of blood drawn today (testing my thyroid again too) and if that comes back then I will try cymbalta....
Still having twitches..........non stop
Still having twitches..........non stop
LilliePup
10-15-2008, 03:05 AM
I dont understand how anyone could say they didnt see MS. There's nothing to see. Scarring can be found on anyone without it being MS. What is your understanding?
k2626
10-15-2008, 03:14 AM
THey did not see lesions, though I know they always dont show up right away. You cant get an MS dx wout lesions. That is what scares me, my full mri was clear, but really that means nothing!~
LilliePup
10-15-2008, 02:52 PM
I was dianosed with MS in '86, and refused a spinal when I learned that autopsies of many people show lesions without ever having had MS or MS symptoms. I was diagnosed upon clinical study which included a prior "exacerbation", evoked potential results, optic neuritis, and paralysis on the left side; all of which went away within 6 months. In '99 several physicians decided I never had MS, and that I have FM, Myofascial, and possibly RA, all of which make sense now.
k2626
10-15-2008, 02:59 PM
Thanks for your response. That is exactly what is concerning me. I am afraid I have MS even though my full MRI was clear. If I have it, I want to at least know vs wonder. I have been very depressed of this unknown.
See I just seemed to wake up one day and BAM I had pain jumping all around my body-literally. It was my left ankle (thought it was going to snap in half) the next am it was fine, then the following day it was right foot and all toes--felt like they were being crushed, then 30 min later it was fine. Then the next day stabs to my shins, pains in my lower back, feet vibrating, etc.. The pains feel like a toothache. Now the non stop muscle fascilations. All of this hit me about 2 wks after my dad was dx w terminal pc (he has now passed).
Perhaps I should try and visual test? I do not want a spinal tap!
I am just confused, depressed, and not sure what direction to take. I dont want to be misdiagnosed either way....
See I just seemed to wake up one day and BAM I had pain jumping all around my body-literally. It was my left ankle (thought it was going to snap in half) the next am it was fine, then the following day it was right foot and all toes--felt like they were being crushed, then 30 min later it was fine. Then the next day stabs to my shins, pains in my lower back, feet vibrating, etc.. The pains feel like a toothache. Now the non stop muscle fascilations. All of this hit me about 2 wks after my dad was dx w terminal pc (he has now passed).
Perhaps I should try and visual test? I do not want a spinal tap!
I am just confused, depressed, and not sure what direction to take. I dont want to be misdiagnosed either way....
LilliePup
10-16-2008, 02:16 AM
I will tell you how I dealt with it. I searched & read & searched; finally found a capable & caring MD/alternative Medicine healer. Right off he said something I forever repeat to myself-- "Who cares about the label, let's get your immune system working correctly". And that is what he and I worked on .
So, remember that all of these disorders and diseases and syndromes have so many symptoms and so many variances, and who knows what tomorrow looks like for anybody! Get healthy in the ways that you can: diet, supplements, exercise, rest and medications. Most importantly, find a partner in this endeavor. I saw 7 doctors until I found the ONE!
So, remember that all of these disorders and diseases and syndromes have so many symptoms and so many variances, and who knows what tomorrow looks like for anybody! Get healthy in the ways that you can: diet, supplements, exercise, rest and medications. Most importantly, find a partner in this endeavor. I saw 7 doctors until I found the ONE!
k2626
10-16-2008, 02:19 AM
Wow, so you are feeling better? Did I read correct that you were misdiagnosed with MS hence you are on the fibro board?
LilliePup
10-16-2008, 02:25 AM
I actually have much more pain now. More muscle spasms too. The ADD is much worse. But, in many ways, I am much healthier. See, lots of variables, just different!!
k2626
10-16-2008, 02:32 PM
Sorry for not knowing but what is ADD?
keenperception
10-16-2008, 03:30 PM
Paddy
"I jerk when I'm sleeping - major big jerks."
Paddy, does it seem almost like an explosion when you get the big ones? That is what it feels like to me when I too am sleeping and it happens. I also some time, most times bite the side of my tong when it happens. Have any of you asked your doctor about restless leg syndrome? I'm not sure on what that is all about but I hear it described a lot like what most of you are talking. It gets most active they say at night when you try to sleep. But I too get symptoms but am not sure if it would be this "restless leg syndrome." Keep asking question! Keen
"I jerk when I'm sleeping - major big jerks."
Paddy, does it seem almost like an explosion when you get the big ones? That is what it feels like to me when I too am sleeping and it happens. I also some time, most times bite the side of my tong when it happens. Have any of you asked your doctor about restless leg syndrome? I'm not sure on what that is all about but I hear it described a lot like what most of you are talking. It gets most active they say at night when you try to sleep. But I too get symptoms but am not sure if it would be this "restless leg syndrome." Keep asking question! Keen
Paddy55
10-16-2008, 04:01 PM
Keen - the major big jerks - don't think they are because of restless legs syndrome. Most times I wake up and learn that I was kicking a monster off me in my dream, screaming and yelling - violent nightmares. H says it is very scary, shrill screams, kicking and flailing arms, scared out of my wits.
So that's reactive physical response.
Muscle twitches are totally different. I can be in my lazy-girl chair, feet up reading, and the big muscle in my right thigh will clench, totally isolated from all other muscles tendons etc. Feels like how your eyelid may twitch, but it's just a bigger muscle group.
Some folks really do have restless leg syndrome. It is yet another totally different thing. Picture climbing into bed, sleepy, relaxed and ready to doze off right away. All settled in, big yawn, and then out of the blue, you MUST move your legs. They don't do it on their own, YOU feel like you won't be comfortable unless you move your legs. Massaging them can help, soaking them in the tub, their are prescription meds for it, also vitamin and mineral support that helps some people - has to do with calcium and magnesium and their interactive role in keeping muscles clenched or relaxed as required.
Hope this helps explain a bit Keen.
Wishing you peace and comfort,
Paddy
So that's reactive physical response.
Muscle twitches are totally different. I can be in my lazy-girl chair, feet up reading, and the big muscle in my right thigh will clench, totally isolated from all other muscles tendons etc. Feels like how your eyelid may twitch, but it's just a bigger muscle group.
Some folks really do have restless leg syndrome. It is yet another totally different thing. Picture climbing into bed, sleepy, relaxed and ready to doze off right away. All settled in, big yawn, and then out of the blue, you MUST move your legs. They don't do it on their own, YOU feel like you won't be comfortable unless you move your legs. Massaging them can help, soaking them in the tub, their are prescription meds for it, also vitamin and mineral support that helps some people - has to do with calcium and magnesium and their interactive role in keeping muscles clenched or relaxed as required.
Hope this helps explain a bit Keen.
Wishing you peace and comfort,
Paddy
spruey3
10-17-2008, 01:55 AM
Hi K.
ADD: attention deficite disorder.
MS diagnosis with MRIS: to diagnose MS with MRIS they look at the spine and brian to see if their are any lesions, since, like with FM, there's no blood test available to determine if you have it or not. But, about 5% of MS patients do not have lesions. (so I've heard/read)
I also get muscle twitches all over, I do not have to be resting to get them. They are usually in small localized areas, like a small spot on my back, or one side of my thigh... and they will jump around.
My blood work ruled out every other possiblity, and my MRIS ruled out MS, so I recieved the DX of FM. But, I too am still concerned about MS being a possible DX. Let me know please if your Dr. comes up with anything else :)~Sara.
ADD: attention deficite disorder.
MS diagnosis with MRIS: to diagnose MS with MRIS they look at the spine and brian to see if their are any lesions, since, like with FM, there's no blood test available to determine if you have it or not. But, about 5% of MS patients do not have lesions. (so I've heard/read)
I also get muscle twitches all over, I do not have to be resting to get them. They are usually in small localized areas, like a small spot on my back, or one side of my thigh... and they will jump around.
My blood work ruled out every other possiblity, and my MRIS ruled out MS, so I recieved the DX of FM. But, I too am still concerned about MS being a possible DX. Let me know please if your Dr. comes up with anything else :)~Sara.
k2626
10-17-2008, 02:19 AM
Hi there, well I got some results back from my c spine mri. Apparently I have a protrusion and crack on my disc that is pressing on the surface of my spinal cord-sooo off to neuro surgeon to see if this is the issue w me
spruey3
10-17-2008, 10:05 AM
Good Luck, and I hope he can help you feel better really soon :)
Paddy55
10-17-2008, 11:11 AM
Well K, that is not entirely good news, is it? Bit good, bit bad eh?
Good luck with the neuro etc.
Keep us posted, k?
Paddy
Good luck with the neuro etc.
Keep us posted, k?
Paddy