k2626
09-10-2008, 04:44 PM
Hi guys. How many of you have 11 of the 18 tender points associated with fibro. I do NOT, so with that does that mean I likley do not have Fibro? My tender points are more like my ankles, shins, wrists, small bones in hand and spine...
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Amystika
09-10-2008, 05:10 PM
I have 17 of the 18 tender points PLUS sore areas that do not normally fall into the typical category for FM pain. Like you, my wrists, hands and spine. My doctor has told me that it is common for FM patients to have pain in those areas as well. So it is possible that you do have FM but I would explore other areas just to be safe. Good luck! :)
sammye
09-11-2008, 03:37 AM
I'm confused on this one. I've never had the tender points tested. I don't think the test would work on me because I can be pressed on. Certain days it might. The pain moves around too much. I'm going to see if I can find someone to do this test. But all these tests what does it matter? You can't get disability for fibro anyway.
k2626
09-11-2008, 03:48 AM
For me I guess it matters in a diagnosis manner. I pressed on the points myself and was fine.
How often does your pain jump around from spot to spot? Also how long do your pains last in one area each time it hits?
How often does your pain jump around from spot to spot? Also how long do your pains last in one area each time it hits?
vickyo
09-11-2008, 10:56 AM
My Rhuemy never told me how many of the tender point I have, but if I were to guess it would be 8 or so, but as others have said the pain moves around alot also. I haveheard of drs. looking at the whoel picture, not just the tender point test to diagnose.
DeBeachSiren
09-12-2008, 06:09 AM
Hi,
Yes you can get disability for fibro. I'll have been on it for two years in Nov.. It's an ugly process and it took 2 turn downs and starting all over again, but I didn't give up. A lot of times I wanted to throw in the towel but didn't. You've got to really be strong to go up against people trying to rook you out of it, it's a battle. There's a little fibro group of girls 5 of us and all but 1 has gotten disability. There's 1 in FL that hasn't yet. There's an agency that does disability cases and they are very good, they used to work for soc. sec. disability rejecting people, but couldn't do it anymore and openned up a place that helps people. It's a place in the mid-west and they have advocates all over the USA and they are on the ball.
AnneBoleyn
Yes you can get disability for fibro. I'll have been on it for two years in Nov.. It's an ugly process and it took 2 turn downs and starting all over again, but I didn't give up. A lot of times I wanted to throw in the towel but didn't. You've got to really be strong to go up against people trying to rook you out of it, it's a battle. There's a little fibro group of girls 5 of us and all but 1 has gotten disability. There's 1 in FL that hasn't yet. There's an agency that does disability cases and they are very good, they used to work for soc. sec. disability rejecting people, but couldn't do it anymore and openned up a place that helps people. It's a place in the mid-west and they have advocates all over the USA and they are on the ball.
AnneBoleyn
1stBlush
09-12-2008, 02:18 PM
I thought that I didn't have any of the tender spots because my pain was everywhere and it moved around all the time. But let me tell you what; when my dr. palpitated the trigger spots...ouch! He knew exactly where to press and how. When I try the spots myself, I can only find a few. When he did it, he found 12.
niecsey
09-12-2008, 02:25 PM
Hi l go to see the rheumy 2 weeks monday lm guessing he will do the test but what if lm not as bad that day? Ive just had 2 weeks of hell in pain this is my first day fingers crossed that lm not hurting somewhere 95% of the day... l have seen a diagram of the trigger points ior is it tender points? and l hurt in all of them and more! So mysterious this disease... lm hoping after along time l will get a diagnosis and some answers its been a long time and lve had enough of been left in this mess! Good luck all xx
k2626
09-12-2008, 02:36 PM
Good luck! I go to my dr today and hopefully will have my lyme results too. I think I may have an issue with my thryoid so we are going to discuss that too...maybe that could be the cause of my pain
niecsey
09-12-2008, 02:58 PM
Hi good luck to you too K2 x lve had thyroid issues for years and now the docs are listening to me after blaming my thyroid for everything and there now saying maybe what your going through is NOT to do with your thyroid! Halleluyah! At last!!! Hears hoping l finally get to know whats wrong with me and can have something done about it so l can get on! Really things have been so bad lately l thought theres something seriously wrong with me and theyve left it too late.... thats how ill ive felt lately :( good luck hope you get the nswers you need x
MidnightDiva
09-12-2008, 06:59 PM
I have all 18 . from head to toe. Everyday is a nightmare
niecsey
09-12-2008, 07:02 PM
Hi Midnight :) can you share some of what you go through please? Does the doc use much pressure when he tests cos there are some places l would rather he didnt incase he triggers it off! if you know what l mean, :wave:
MidnightDiva
09-12-2008, 08:01 PM
He really doesnt have to put much pressure. I have deep muscle pain in all points. I take Lyrica, tramadol, flexeril, celexa and trazadone. I feel I need something more.
DeBeachSiren
09-13-2008, 06:39 AM
If you have tender points you'll know it, it doesn't take much to make them hurt. They barely have to touch them on me anyway. Just barely brushing them hurts. If you notice, some of them are right above the joint, like the knees for instance. It's not a big deal it only takes a couple minutes for the dr. to press on them.
Trigger points are the epi-center of a muscle spasm.
Midnight,
Lyrica caused me to have more muscular pain. Also cholestral medicines can make your muscle hurt too, in case you may be taking that too. I rarely take morphine or vicadin, because I'm not a pill taker by nature and it makes me makes me barf if I'm not lying down, but ask for some pain medication for the really bad days. I at least know it's there if I need it. Some dr.'s are really funny about prescribing opiates. They make a whole bunch of chronic pain people feel better, not crazed people trying to score drugs on the street. They are cheap too. Soma is a skeletal/muscular drug, I take that and it works for me pretty darn well. Flexeril doesn't help me either. Some docs give you the drugs like Ultram, etc. and it doesn't really work for us too well. I read alot of stuff on this. Sounds like you also have myofascial disease, if you can afford it go for a bit of massage......I like the deep tissue massage better than myofascial release. Sometimes it makes me cry when they get into a really bad knot, but I'd rather have the knots worked out and feel better later. I tell the PT to keep going til it's loose. Lots can be loosened up with a tennisball or a cut up pool noodle. I hope that you find something to make you feel some better.
I wish you all a good day.
AnneBoleyn
Trigger points are the epi-center of a muscle spasm.
Midnight,
Lyrica caused me to have more muscular pain. Also cholestral medicines can make your muscle hurt too, in case you may be taking that too. I rarely take morphine or vicadin, because I'm not a pill taker by nature and it makes me makes me barf if I'm not lying down, but ask for some pain medication for the really bad days. I at least know it's there if I need it. Some dr.'s are really funny about prescribing opiates. They make a whole bunch of chronic pain people feel better, not crazed people trying to score drugs on the street. They are cheap too. Soma is a skeletal/muscular drug, I take that and it works for me pretty darn well. Flexeril doesn't help me either. Some docs give you the drugs like Ultram, etc. and it doesn't really work for us too well. I read alot of stuff on this. Sounds like you also have myofascial disease, if you can afford it go for a bit of massage......I like the deep tissue massage better than myofascial release. Sometimes it makes me cry when they get into a really bad knot, but I'd rather have the knots worked out and feel better later. I tell the PT to keep going til it's loose. Lots can be loosened up with a tennisball or a cut up pool noodle. I hope that you find something to make you feel some better.
I wish you all a good day.
AnneBoleyn
niecsey
09-13-2008, 11:12 AM
well knewit was too good to be true......... im back to square one the muscle pains are really severe today in my back if l dont answer any threads lve taking part in please dont think lm ignoring anyone,, l really shouldnt be on here right now take care all xx
saxlady
09-13-2008, 03:02 PM
I did'nt even know there were trigger points till my first visit to my RA doc. Where I found out I had all 18. Before I got my fm under control, the pain would move around and last anywhere from 2 to 24 hours. And it always moved to the opposit side of my body. If my left arm hurt, then It would switch to the right one. It was nuts. I thought I was going nuts. I would get a small lump on the top of my wrist and that hand would be paralised. I couldn't even use it. I got very good at hiding it. It got so that I had to go to er for a shot once in a while. There was a standing order for me so I did'nt have to be seen by a doctor. The first time I went in, I was almost in shock. That's why the standing order. I am on dissability now and have it more under control but I still have lots of pain but I never let it get so bad that I need a shot.
niecsey
09-13-2008, 03:09 PM
Hi Sax :)lm sure l get shock to esp with the spasms l get l shake like mad and cant move becasue of the pain it really wipes the floor with me. Trying not to stay on net much as my back is really bad today as it has been since 14 days ago now thought l was sort of ok last night but its started after l got up again this morning. Also whatever l do esp with my right hand the pain is terrible at moment :( lm wondering how long a 'flare-up' can last if anyone knows? This is the worst and longest lve had back pains ever really bad spasms that are either up the middle of my back in the middle or either side of my back or lower rumpy part of back... lm trying to work out if lve done anything to start this off but lve been so careful lately l cant think of anything l may of done :(I seen my doc yday with regards to the amytripyline and she said nice to see you up and about as she had to come to my home the week before as l couldnt move and now lm th same again grrrr. Im glad this board is here thats for sure! Take care all xxx
seaturtle1
09-13-2008, 10:00 PM
Sometimes I think my entire body is one huge tender point, lol!
Seriously, I have all the points and then some. Just all over, especially in back, nek and shoulders, thighs, rump, arms. Today is a bad day for me, and I just can't even touch my elbow joints, upper and lower arms, shoulder blade area, neck, everywhere, it seems.
I think the 18 points they came up with is a pretty arbitary diagnostic tool.
If we have 17, does that disqualify us for fibro?
Take care,
Seaturtle
Seriously, I have all the points and then some. Just all over, especially in back, nek and shoulders, thighs, rump, arms. Today is a bad day for me, and I just can't even touch my elbow joints, upper and lower arms, shoulder blade area, neck, everywhere, it seems.
I think the 18 points they came up with is a pretty arbitary diagnostic tool.
If we have 17, does that disqualify us for fibro?
Take care,
Seaturtle
DeBeachSiren
09-14-2008, 02:34 AM
Niecsey,
Is there anywhere you can go to get a massage? I know they're expensive, but when I can't take it anymore I go get one. When I was working I went twice a week and then down to once a week and I felt pretty good. My therapist, Al, always knew right where to go to get the knots out. He'd go okay where's it hurt worse today? Most insurances in the good old USA don't cover massage, they consider it a luxery. Hopefully in November we'll get a leader that actually gives a poop about his people. I'm thankful I have insurance (there's so many without it) and I'm on disability, it isn't much a month. I get medicare part A (hospital) and they take out of my check for part B (office visits, tests, etc.) and sometimes the 2 of them don't cover the bill. It's insane. So sadly to say, sometimes it's a choice for people to go to the doctor or eat.
Just get to feeling better real soon. You take care of yourself.
AnneBoleyn
Is there anywhere you can go to get a massage? I know they're expensive, but when I can't take it anymore I go get one. When I was working I went twice a week and then down to once a week and I felt pretty good. My therapist, Al, always knew right where to go to get the knots out. He'd go okay where's it hurt worse today? Most insurances in the good old USA don't cover massage, they consider it a luxery. Hopefully in November we'll get a leader that actually gives a poop about his people. I'm thankful I have insurance (there's so many without it) and I'm on disability, it isn't much a month. I get medicare part A (hospital) and they take out of my check for part B (office visits, tests, etc.) and sometimes the 2 of them don't cover the bill. It's insane. So sadly to say, sometimes it's a choice for people to go to the doctor or eat.
Just get to feeling better real soon. You take care of yourself.
AnneBoleyn
niecsey
09-14-2008, 09:12 AM
Hi Anne x at moment l couldnt bear the thought of anybody touching my back:( l dont think l would be up to leaving the house! Just had a shower and lm aching :( my stomach has hurt so bad today l am not having any pain killers today if l can help it! The doc give me lanspoprazole to take but you have to have them on an empty stomach and both mornings l forgot to take them what with taking my thyroxine soon as l wake up. Will wake up in the morning earlier and take the lansoprazole first. I was in agony earlier with stomach pains then read the leaflets that come with the meds why do they all cause stomach probs? even the lansoprazole cause stomach problems!! Ironic or what? Ive started taking manuka honey agai to help with the discomfort it has doubled in price in the last few months but l dont care if it helps. Thank you again for your lovely reply x l hope your feeling ok? Thanks everybody xxx