tinyt3
09-28-2008, 12:14 PM
Nessie,
I am so happy for you and I wanted so much for you to get good news. You are one of the ones that said things to help get me through. You deserved good news and now you deserve a good time! I am almost four months out and when you told me I would be okay I thought sure. You were right I am doing pretty good. I think now that you know you are doing good you can concentrate on your family and your happiness. Best wishes and hugs to you.
TinyT3
I am so happy for you and I wanted so much for you to get good news. You are one of the ones that said things to help get me through. You deserved good news and now you deserve a good time! I am almost four months out and when you told me I would be okay I thought sure. You were right I am doing pretty good. I think now that you know you are doing good you can concentrate on your family and your happiness. Best wishes and hugs to you.
TinyT3
Sponsor
nessie1
09-29-2008, 02:39 PM
thanks so much for all the well wishes.
tiny - im glad i could help you hun - its so nice to hear that- it makes it all worthwhile!
i had a fab weekend i got VERY drunk and vomited several times - not good!!!
everyone has been laughing at me today!! i just feel so happy and free from all this stress!!!
thank you all for listening to me. i hope we are all still talking this time next year once i have my next scan!!
take care my loves
nessie x
tiny - im glad i could help you hun - its so nice to hear that- it makes it all worthwhile!
i had a fab weekend i got VERY drunk and vomited several times - not good!!!
everyone has been laughing at me today!! i just feel so happy and free from all this stress!!!
thank you all for listening to me. i hope we are all still talking this time next year once i have my next scan!!
take care my loves
nessie x
kt8889
09-29-2008, 10:47 PM
Hello ladies, I am so sorry I have not been around much lately. I will be better, I promise. I need to share a story with you. This Friday night, Will and I were trying to figure out where to go to eat. We eat out almost every Friday for date night. I was very tired and wanted an easy place, so we went to Claddagh Pub, and Irish chain here in the states. Will saw a flier on the bar that said..Liver on the River. It was yesterday, Sunday a benefit for a server with no insurance that needed a liver transplant.
So Will and I went. I met the servers husband and she still did not have a doctor. I felt like I was meant to be there. I told him what I had been through and gave him my doctors name and his nurses direct line. Will spent some money on raffle stuff, God love him, but I know God had a hand in me being there.
I am bless that we are all still checking in here. Tina, I know you have been giving out a lot a support lately to the new ladies, thank you for that. We all make a good team. I am lucky to know all of you and I feel like we have a story to tell still. Our mission is not over.
Hugs to all of you. Ness, I am so glad your scans came back with good news. I tell you, when we do meet, it will have to be Vegas, where the bars never close, you and I will be out of control girl! ;)
:wave:
Katie
So Will and I went. I met the servers husband and she still did not have a doctor. I felt like I was meant to be there. I told him what I had been through and gave him my doctors name and his nurses direct line. Will spent some money on raffle stuff, God love him, but I know God had a hand in me being there.
I am bless that we are all still checking in here. Tina, I know you have been giving out a lot a support lately to the new ladies, thank you for that. We all make a good team. I am lucky to know all of you and I feel like we have a story to tell still. Our mission is not over.
Hugs to all of you. Ness, I am so glad your scans came back with good news. I tell you, when we do meet, it will have to be Vegas, where the bars never close, you and I will be out of control girl! ;)
:wave:
Katie
granolawife
09-30-2008, 04:14 PM
wow, katie, i love your story and i very much agree with you. i want to continue to help as many people as possible and i am so glad to know that when i am busy, there are others to "fill in"!
nessie, I am SO HAPPY to hear your good news!!! Definitely deserves celebrating!!!! So i have to ask...how much of it did they say grew back? I keep wondering how much grows back -- same size, or smaller? wow, i wish we could all get together for a cocktail to celebrate with you! :)
speaking of, I just got back from los angeles where i was visiting friends and had a few nights of boozing. i held up fairly well, but it gave me the worst heartburn i've ever had in my life. do you think that could be from the surgery? it was really ridiculous and lasted for a couple of days. i've never had that problem previously.
tiny, how are you feeling?
xx arlyn
nessie, I am SO HAPPY to hear your good news!!! Definitely deserves celebrating!!!! So i have to ask...how much of it did they say grew back? I keep wondering how much grows back -- same size, or smaller? wow, i wish we could all get together for a cocktail to celebrate with you! :)
speaking of, I just got back from los angeles where i was visiting friends and had a few nights of boozing. i held up fairly well, but it gave me the worst heartburn i've ever had in my life. do you think that could be from the surgery? it was really ridiculous and lasted for a couple of days. i've never had that problem previously.
tiny, how are you feeling?
xx arlyn
tinyt3
09-30-2008, 07:26 PM
Arlyn,
Katie's story was inspiring and it is good to help give back. I know when I help others it helps me. I am feeling still at little sore at the inscision site and I get tired easily. Other than that I am doing pretty well. I try to enjoy my kids and help others. My daugher who is bipolar got into some trouble and that really stressed me out. We are pulling her out of the big high school and putting her into a small one of hundred kids. I hope this helps as I don't handle stress as well these days. How are you feeling? Are you one that is trying to have a baby? Sorry I mix up and lose track. You were very good at answering my questions when I needed so I felt like I could help some new ones coming in. This is a very remarkable board with some fantastic people. I would so love to meet everyone face to face. I believe someday we will
TinyT3
Katie's story was inspiring and it is good to help give back. I know when I help others it helps me. I am feeling still at little sore at the inscision site and I get tired easily. Other than that I am doing pretty well. I try to enjoy my kids and help others. My daugher who is bipolar got into some trouble and that really stressed me out. We are pulling her out of the big high school and putting her into a small one of hundred kids. I hope this helps as I don't handle stress as well these days. How are you feeling? Are you one that is trying to have a baby? Sorry I mix up and lose track. You were very good at answering my questions when I needed so I felt like I could help some new ones coming in. This is a very remarkable board with some fantastic people. I would so love to meet everyone face to face. I believe someday we will
TinyT3
neens7982
09-30-2008, 11:46 PM
Hey everyone, '
Katie....I think there is a reason for everything we go through! I'm glad you were able to help the man out! That is great!
I'm so jealous of my drinking friends. Since my liver didn't regenerate, I really try not to drink too much (one beer, maybe...) and I don't take meds unless I absolutely need them...not even ibuprofen. It just worries me even though my liver functions are fine. My liver that is left is the size of a softball.
Arlyn...i'm glad to hear you are doing well too!
Hang in there tiny and all my other beautiful ladies!
xoxo
Katie....I think there is a reason for everything we go through! I'm glad you were able to help the man out! That is great!
I'm so jealous of my drinking friends. Since my liver didn't regenerate, I really try not to drink too much (one beer, maybe...) and I don't take meds unless I absolutely need them...not even ibuprofen. It just worries me even though my liver functions are fine. My liver that is left is the size of a softball.
Arlyn...i'm glad to hear you are doing well too!
Hang in there tiny and all my other beautiful ladies!
xoxo
LindaG40
10-01-2008, 01:46 AM
Hi Ladies!
I'm back from Italy and thought I'd check in for a little inspiration from you all. It's finally here, my six-month checkup! I go in tomorrow morning for a CT scan, and then I meet with Dr. Bass on Oct. 13. I still notice some pain from time-to-time, so we'll see what happens tomorrow with the scan. In the meantime, I'm still waiting for Oprah to call!
:)Linda
I'm back from Italy and thought I'd check in for a little inspiration from you all. It's finally here, my six-month checkup! I go in tomorrow morning for a CT scan, and then I meet with Dr. Bass on Oct. 13. I still notice some pain from time-to-time, so we'll see what happens tomorrow with the scan. In the meantime, I'm still waiting for Oprah to call!
:)Linda
tinyt3
10-01-2008, 01:49 PM
Linda,
I hope you had a great trip and welcome back. You are going to have a good checkup just like Nessie did. We are all here for you and behind you all the way. Glad you checked in and hope your dating life is still going good. Hang in there and Mr. Right will come along. Let us know how things go and we will be right here with all the love and support you need. I am glad to give back to all of you who helped me through my ordeal.
TinyT3
I hope you had a great trip and welcome back. You are going to have a good checkup just like Nessie did. We are all here for you and behind you all the way. Glad you checked in and hope your dating life is still going good. Hang in there and Mr. Right will come along. Let us know how things go and we will be right here with all the love and support you need. I am glad to give back to all of you who helped me through my ordeal.
TinyT3
susanfg
10-02-2008, 05:49 AM
I'm new and have found this thread interesting. I've had a fairly full on 6 months. After a month's strange upper stomach pain (which I thought was an ulcer or something), in April, I went to the Dr. After a gastroscopy showed nothing, an ultrasound showed multiple liver lesions. An immediate CT scan confirmed there were 8 liver lesions including one about 3cm. I was given a really clear message that they thought these had to be secondary liver cancer so they started to look for the primary tumour. All my blood tests were normal. A colonscopy, bone scan, MR scans, pelvic ultrasound, PET scans etc showed nothing more - although the large lesion 'lit up' in the PET scan. Finally I had a biopsy (via laparoscopy) of the large lesion. Pathology showed that it was benign notwithstanding the PET scan.
Then a hiatus while everyone relaxed and I realised how lucky I was to have 8 adenomas. Well, maybe. Certainly that's so compared to what I faced for a good eight weeks when my days seemed numbered. I've since had more scans and a whole heap of differing advice. The gastroenterologist wants to monitor me with scans and tells me the risk of the adenomas turning malignant or rupturing is small. The liver surgeon wants to remove half my liver because adenomas aren't good to have because, guess what - they rupture or turn malignant. And as he tells me I have only had one biopsied. He says leaving them in situ is too big a risk to take.
Meanwhile I still have the pain, so operate at 70-80% of what I was capable of a year ago when I ran a half marathon. I'm 47 with a pretty big job and two teenagers. I'm back at work. The doctors don't think that the adenomas should cause the pain. But they can't find any other answer. The surgeon tentatively thinks they could be the cause. I'm sure the large one is the problem, particularly because it's where the pain which shifts into the back - a gnawing, burning pain - seems to come from.
Right now, I have a surgery date for end October with the first surgeon but my local doctor wants me to get another out of town opinion with an even more experienced specialist (who operates out of a special liver unit). While it's probably sensible from a surgical point of view, it means more delays. What have I learnt - is that there is absolutely no certainty in any of this and the best we can do is get as informed as possible though all decisions come with risk. It's hard work, and after 6 months, I'm still not sure what and when the next step will be.
Then a hiatus while everyone relaxed and I realised how lucky I was to have 8 adenomas. Well, maybe. Certainly that's so compared to what I faced for a good eight weeks when my days seemed numbered. I've since had more scans and a whole heap of differing advice. The gastroenterologist wants to monitor me with scans and tells me the risk of the adenomas turning malignant or rupturing is small. The liver surgeon wants to remove half my liver because adenomas aren't good to have because, guess what - they rupture or turn malignant. And as he tells me I have only had one biopsied. He says leaving them in situ is too big a risk to take.
Meanwhile I still have the pain, so operate at 70-80% of what I was capable of a year ago when I ran a half marathon. I'm 47 with a pretty big job and two teenagers. I'm back at work. The doctors don't think that the adenomas should cause the pain. But they can't find any other answer. The surgeon tentatively thinks they could be the cause. I'm sure the large one is the problem, particularly because it's where the pain which shifts into the back - a gnawing, burning pain - seems to come from.
Right now, I have a surgery date for end October with the first surgeon but my local doctor wants me to get another out of town opinion with an even more experienced specialist (who operates out of a special liver unit). While it's probably sensible from a surgical point of view, it means more delays. What have I learnt - is that there is absolutely no certainty in any of this and the best we can do is get as informed as possible though all decisions come with risk. It's hard work, and after 6 months, I'm still not sure what and when the next step will be.
nessie1
10-02-2008, 02:22 PM
katie - hi there my love - wow how strange is that you being there ?? it was meant to be - yes vegas sounds so good!!! you would have to look after me as i would be out of control - take care hun and keep checking in x
arlyn - hey there you , lovely to hear from you too and you are doing well. thanks for the kind words
tina - hows your incision hun?? hows your daughter ? its lovely you are helping the newbies - im proud of you hun
neens- hey there - if your liver functions are normal a drink or two wont hurt? let your hair down love- after all you wont be drinking once you have a bun in the oven;)
linda - glad you had fun in italy - how was the scan?? keep us informed hun - hows the love life - dave??
susan - welcome hun. it sounds like you have had a similar journey to a lot of us im sorry. my advice is go to the other surgeon and get another informed decision. the bigger the hospital the more experience they have of these. a large teaching hospital is the best with a specialised liver centre who do transplants. yes adenomas can rupture or turn malignant but it is a small risk but nevertheless still there. get a second opinion and see what they say. surgery is hard but a lot of us have had it now on here and we are fine. we will help you all we can love. let us know how you get on - the waiting is the hardest part unfortunately. the pain you have sounds like the same as mine - a burning pinching pain that radiates around the back especially if standing for too long. take care x x
as for me - not much to say really. im still on cloud 9 and have several social events coming up. im increasing my hours at work from 2 weeks time which will be handy with this credit crunch going on.
take care my loves - and all the other ladies out there who help me x x
arlyn - hey there you , lovely to hear from you too and you are doing well. thanks for the kind words
tina - hows your incision hun?? hows your daughter ? its lovely you are helping the newbies - im proud of you hun
neens- hey there - if your liver functions are normal a drink or two wont hurt? let your hair down love- after all you wont be drinking once you have a bun in the oven;)
linda - glad you had fun in italy - how was the scan?? keep us informed hun - hows the love life - dave??
susan - welcome hun. it sounds like you have had a similar journey to a lot of us im sorry. my advice is go to the other surgeon and get another informed decision. the bigger the hospital the more experience they have of these. a large teaching hospital is the best with a specialised liver centre who do transplants. yes adenomas can rupture or turn malignant but it is a small risk but nevertheless still there. get a second opinion and see what they say. surgery is hard but a lot of us have had it now on here and we are fine. we will help you all we can love. let us know how you get on - the waiting is the hardest part unfortunately. the pain you have sounds like the same as mine - a burning pinching pain that radiates around the back especially if standing for too long. take care x x
as for me - not much to say really. im still on cloud 9 and have several social events coming up. im increasing my hours at work from 2 weeks time which will be handy with this credit crunch going on.
take care my loves - and all the other ladies out there who help me x x
tinyt3
10-02-2008, 04:34 PM
Susanfg,
I understand what you are going through. My adenoma was on the back side of my liver and I had terrible back pain. It would seem nice to have a more experienced liver surgeon. My surgeon said they never can guarantee what they are until they are removed and sent to pathology. I had one adenoma but had to have 55% of my liver removed. The back pain is gone and I feel better then before. It is hard but like Nessie said we all made it through. I can't tell you which way to go but just listen to your gut feeling as only you know how much pain you are in. We are all here for you and will be every step of the way. Ask anything you need answers too and we will do our best.
Nessie, Yes my inscision is still pretty tender. I sometimes put a cold wash cloth on it in the evenings. That is a small price to pay for getting that adenoma out of my body. As for my daughter not doing to good but is starting a new school that is much smaller. I hope that will help. Thanks for asking. I would love to meet someday.
TinyT
I understand what you are going through. My adenoma was on the back side of my liver and I had terrible back pain. It would seem nice to have a more experienced liver surgeon. My surgeon said they never can guarantee what they are until they are removed and sent to pathology. I had one adenoma but had to have 55% of my liver removed. The back pain is gone and I feel better then before. It is hard but like Nessie said we all made it through. I can't tell you which way to go but just listen to your gut feeling as only you know how much pain you are in. We are all here for you and will be every step of the way. Ask anything you need answers too and we will do our best.
Nessie, Yes my inscision is still pretty tender. I sometimes put a cold wash cloth on it in the evenings. That is a small price to pay for getting that adenoma out of my body. As for my daughter not doing to good but is starting a new school that is much smaller. I hope that will help. Thanks for asking. I would love to meet someday.
TinyT
granolawife
10-02-2008, 05:40 PM
susanfg...Definitely get another opinion. a delay is not a big deal in the big picture and this is a major surgery that you are considering. i got more than one opinion prior to having surgery to remove my 2 FNHs and was so glad that i did. my first consult with a surgeon and gastro dr. ended with them telling me not to do anything until i became "jaundiced", at which point they said they would do surgery. They also suggested an endoscopy and colonoscopy to see why i was having so much nausea, since it "couldnt' be from the FNH". ridiculous!! This did not sound appropriate to me obviously, so i went to a special liver surgeon/center where they told me i had no choice but to remove them ASAP. Post-surgery, turns out they were right. My liver and gall bladder were not functioning properly as they were being blocked and I could have gotten much sicker and might not have been able to surgically remove them at all if they had continued to grow. i am still angry about the previous horrible advice i was given, but thankful that i was smart enough to know that it wasn't right. good luck...please keep us posted!
Tiny, again, you are so strong and sound like such a good person. you certainly have dealt with so much while trying to heal yourself. i hope that things are going better for you and your family. i am very glad to hear you are healing well!
Nessie, how much did your liver grow back? could they estimate the size? i am wondering how much actually replaces the old...?
Neens, seems my period is finally getting back on track, so we'll see how the trying to conceive goes. keep me posted on how you're doing over there... :)
Linda, welcome back!
:)
Tiny, again, you are so strong and sound like such a good person. you certainly have dealt with so much while trying to heal yourself. i hope that things are going better for you and your family. i am very glad to hear you are healing well!
Nessie, how much did your liver grow back? could they estimate the size? i am wondering how much actually replaces the old...?
Neens, seems my period is finally getting back on track, so we'll see how the trying to conceive goes. keep me posted on how you're doing over there... :)
Linda, welcome back!
:)
granolawife
10-02-2008, 05:42 PM
ps, Beth, are you still out there? how are you doing? how is your incision, etc.?
misschatty10
10-03-2008, 04:05 AM
Hi again everyone! I've not really had a chance to get online the last couple weeks, so I just spent some time reading the more recent posts. I'm fairly new to this site, so I'm sorry I'm not familiar with all of you and your stories yet. I'm trying to read some of the old posts when I have time. I have written a couple of posts previously.
After suffering from abdominal pain and discomfort that seemed to only be getting worse, and several tests I was diagnosed with FNH. The last surgeon I saw in September who supposedly had some experience with the liver decided after not really examining me that the pain couldn't be caused by the FNH because that is rare. So he decided that it was muscle spasms. I had done alot of research on FNH, and almost every description seemed to fit what I was experiencing. I also researched abdominal muscle spasms and I just couldn't relate to anything I found on spasms. After posting my story on this message board, I was advised to find a hepatibiliary surgeon that does transplants so I went on-line and researched this and found a couple in my area. They do work at a large teaching hospital here in Portland, so I'm hoping I'm on the right track. I went back to my primary physician and she disagreed with the surgeons diagnosis, so she agreed to refer me to the specialist I found on-line. My appointment is scheduled for the 17th of October. The nurse I spoke to said she had several people contact their office after seeing the surgeon I went to originally because they were unhappy with him as well.
I know I haven't been dealing with this for nearly as long as most you on this site, but I get so frustrated being uncomfortable or in pain all the time that I can't imagine dealing with this that long. It also scares me to think of having surgery. I've read about several of your surgeries and the surgery itself is enough to be scared of, but I'm really concerned because I am a single mother. Are any of you who have had the surgery a single mom? If so, I would appreciate your story. I appreciate all the information that I can get from all you.
Take care and good luck to everyone! Thank you.
After suffering from abdominal pain and discomfort that seemed to only be getting worse, and several tests I was diagnosed with FNH. The last surgeon I saw in September who supposedly had some experience with the liver decided after not really examining me that the pain couldn't be caused by the FNH because that is rare. So he decided that it was muscle spasms. I had done alot of research on FNH, and almost every description seemed to fit what I was experiencing. I also researched abdominal muscle spasms and I just couldn't relate to anything I found on spasms. After posting my story on this message board, I was advised to find a hepatibiliary surgeon that does transplants so I went on-line and researched this and found a couple in my area. They do work at a large teaching hospital here in Portland, so I'm hoping I'm on the right track. I went back to my primary physician and she disagreed with the surgeons diagnosis, so she agreed to refer me to the specialist I found on-line. My appointment is scheduled for the 17th of October. The nurse I spoke to said she had several people contact their office after seeing the surgeon I went to originally because they were unhappy with him as well.
I know I haven't been dealing with this for nearly as long as most you on this site, but I get so frustrated being uncomfortable or in pain all the time that I can't imagine dealing with this that long. It also scares me to think of having surgery. I've read about several of your surgeries and the surgery itself is enough to be scared of, but I'm really concerned because I am a single mother. Are any of you who have had the surgery a single mom? If so, I would appreciate your story. I appreciate all the information that I can get from all you.
Take care and good luck to everyone! Thank you.
tinyt3
10-03-2008, 12:06 PM
Misschatty10,
I applaud you because you are taking charge of your own health. After they said my gall bladder did not have any stones they were going to give me a stronger antacid. I told them I needed a specialist because my pain was too severe. They sent me to a gastrointerologist and he found the spot on a sonogram. Then after he checked me with an upper gi and made sure everything was okay in his line of work, I was referred to a liver surgeon. He immediately said 80% chance surgery and that it was an adenoma. He said still he wanted one more test and sent for an mri. Then he told me they never know 100% what it is until they cut it out and send it to lab. He was correct about mine. I am not a single mother but a mother of three. My daugher who is 16 is bipolar so she cut me no slack as I was recovering. Then I have an 11 year old daugher and a four year old son. I will not lie it was hard but I made it. You will need some help if you have a parent or sibling. I think you will need someone to stay home you for the first couple weeks you are home. As soon as you have a surgery date if you do then I would get a support system going. Some of the ladies on here they just watch their fnh. I was told people don't have symptoms with adenomas but I had severe labor like pains in my back. Hang in there and keep reading. Nessie has fnh so you can read some of her posts.
We will wait to hear what the new surgeon says. Hugs to you and hope everything works out for what is best for you.
TinyT3
I applaud you because you are taking charge of your own health. After they said my gall bladder did not have any stones they were going to give me a stronger antacid. I told them I needed a specialist because my pain was too severe. They sent me to a gastrointerologist and he found the spot on a sonogram. Then after he checked me with an upper gi and made sure everything was okay in his line of work, I was referred to a liver surgeon. He immediately said 80% chance surgery and that it was an adenoma. He said still he wanted one more test and sent for an mri. Then he told me they never know 100% what it is until they cut it out and send it to lab. He was correct about mine. I am not a single mother but a mother of three. My daugher who is 16 is bipolar so she cut me no slack as I was recovering. Then I have an 11 year old daugher and a four year old son. I will not lie it was hard but I made it. You will need some help if you have a parent or sibling. I think you will need someone to stay home you for the first couple weeks you are home. As soon as you have a surgery date if you do then I would get a support system going. Some of the ladies on here they just watch their fnh. I was told people don't have symptoms with adenomas but I had severe labor like pains in my back. Hang in there and keep reading. Nessie has fnh so you can read some of her posts.
We will wait to hear what the new surgeon says. Hugs to you and hope everything works out for what is best for you.
TinyT3
LindaG40
10-03-2008, 02:19 PM
Hey everyone!
Have any of you ever experienced chest pain? I've noticed in the past month that I've had some tightness from time-to-time in my chest. Actually, I only recall it happening once while I was on my trip, but it happened again last night. I feel it when I take a deep breath, usually in the area of my left breast, and it will go away after a few minutes. I don't feel it when I'm standing, only when lying down. Last night I noticed that it seemed to feel worse when I turned onto my side. I'm just wondering if anyone else has felt this, if it's related to my adenoma's, or if it's heart related. I have been told that I might have a slight heart murmur, but very faint and nothing to be of concern about.
Linda:confused:
Have any of you ever experienced chest pain? I've noticed in the past month that I've had some tightness from time-to-time in my chest. Actually, I only recall it happening once while I was on my trip, but it happened again last night. I feel it when I take a deep breath, usually in the area of my left breast, and it will go away after a few minutes. I don't feel it when I'm standing, only when lying down. Last night I noticed that it seemed to feel worse when I turned onto my side. I'm just wondering if anyone else has felt this, if it's related to my adenoma's, or if it's heart related. I have been told that I might have a slight heart murmur, but very faint and nothing to be of concern about.
Linda:confused:
tinyt3
10-03-2008, 04:17 PM
Linda,
I had chest pains and was told it was anxiety so not sure which to think. If it persists or gets worse you should consult your doctor. They claim you have no symptoms with adenomas but I beg to differ. I had chest pain, back pain, and severe diahrrea. Along with severe stomach pain. Hope you are doing okay otherwise.
TinyT
I had chest pains and was told it was anxiety so not sure which to think. If it persists or gets worse you should consult your doctor. They claim you have no symptoms with adenomas but I beg to differ. I had chest pain, back pain, and severe diahrrea. Along with severe stomach pain. Hope you are doing okay otherwise.
TinyT
neens7982
10-04-2008, 01:05 AM
Linda,
I would definitlely check with the doc. I had chest pain but it was because my hemangioma began to press on my diaphragm as it grew. It hurt to breath deeply. But, it would be good to get it checked out regardless. I am sooo envious of you.....I have always wanted to go to Italy! I bet it was gorgeous! Hang in there and know we are here for you!
MissChatty, it is a tough surgery and there isn't any easy way around it. You will definitley need the support of family or friends in the first several weeks. I had just gotten engaged 6 months prior to my surgery, so my fiancee was a true blessing. But even with him around, I still had my mom and sisters help out with my two boys (who were 8 and 11 at the time). You can't lift anything over a couple of pounds for several weeks. Being 29 and otherwise fit and healthy, I was astonished at how tired I was. Surgery kicked my ass so to speak. There are many of us that have had this surgey. I had my whole right lobe removed. If you click on my name and read threads at the end of Dec 2007 and beginning of Jan 2008, you can see what I went through with the surgery. My surgical decision was made for me due to the position of my tumor. But, I had lived with pain for nearly 4 years. This is a great board so please let us know if you have any other questions. When I first had the surgery, I couldn't find any stories or resources. So, I told myself that I was going to post my story. It has been amazing to see so many women afflicted by these liver tumors. You aren't alone. Hang in there! xox
Arlyn,
I had my IUD out at the end of July and my cycles are still irregular. I went 34 days and then 30 and now 27.....so no baby luck yet. But maybe my body is still adjusting. Who knows. How are you feeling? Are you a 100% yet? Hopefully it will happen for the both of us soon!
Love to my ladies out there!!
I would definitlely check with the doc. I had chest pain but it was because my hemangioma began to press on my diaphragm as it grew. It hurt to breath deeply. But, it would be good to get it checked out regardless. I am sooo envious of you.....I have always wanted to go to Italy! I bet it was gorgeous! Hang in there and know we are here for you!
MissChatty, it is a tough surgery and there isn't any easy way around it. You will definitley need the support of family or friends in the first several weeks. I had just gotten engaged 6 months prior to my surgery, so my fiancee was a true blessing. But even with him around, I still had my mom and sisters help out with my two boys (who were 8 and 11 at the time). You can't lift anything over a couple of pounds for several weeks. Being 29 and otherwise fit and healthy, I was astonished at how tired I was. Surgery kicked my ass so to speak. There are many of us that have had this surgey. I had my whole right lobe removed. If you click on my name and read threads at the end of Dec 2007 and beginning of Jan 2008, you can see what I went through with the surgery. My surgical decision was made for me due to the position of my tumor. But, I had lived with pain for nearly 4 years. This is a great board so please let us know if you have any other questions. When I first had the surgery, I couldn't find any stories or resources. So, I told myself that I was going to post my story. It has been amazing to see so many women afflicted by these liver tumors. You aren't alone. Hang in there! xox
Arlyn,
I had my IUD out at the end of July and my cycles are still irregular. I went 34 days and then 30 and now 27.....so no baby luck yet. But maybe my body is still adjusting. Who knows. How are you feeling? Are you a 100% yet? Hopefully it will happen for the both of us soon!
Love to my ladies out there!!
LindaG40
10-04-2008, 02:02 AM
When my adenoma ruptured, the pain I felt started in my mid-back, and then progressed to my right shoulder. As the day went on, I also felt a lot of pressure in my chest that felt more like gastric pain (I kept popping Tums hoping for relief). By the second day, the pain in my right shoulder and chest increased and I also felt pain in my right abdominal area. I also felt nauseous, and the pain was so intense that I could not lay down and it hurt to breathe.
This pain I have been feeling in my chest (left breast) is different from the last time, so I'm wondering if it's just a side effect from the adenomas or something else. I also still feel a sharp pain in my right side from time-to-time. I usually don't feel any pressure when I exercise, with the exception of hiking/walking uphill. It obviously has something to do with the position of my body because I do not feel any pain when I do yoga, swim, kayak, or ride my bike (geez, I sound like a super-athlete! Wish I had the hard-body that goes with all the sports!). I guess I should write down all of these symptoms and questions for my appointment with my doctor.
Linda:cool:
P.S. I'm still seeing Dave, but between the distance and our busy schedules, it's been difficult. I wish we a) lived closer together, and b) were ready to make a bigger effort and commitment to each other. We both need time, and time together, which I hope will happen. Keep me in your romance prayers!;)
This pain I have been feeling in my chest (left breast) is different from the last time, so I'm wondering if it's just a side effect from the adenomas or something else. I also still feel a sharp pain in my right side from time-to-time. I usually don't feel any pressure when I exercise, with the exception of hiking/walking uphill. It obviously has something to do with the position of my body because I do not feel any pain when I do yoga, swim, kayak, or ride my bike (geez, I sound like a super-athlete! Wish I had the hard-body that goes with all the sports!). I guess I should write down all of these symptoms and questions for my appointment with my doctor.
Linda:cool:
P.S. I'm still seeing Dave, but between the distance and our busy schedules, it's been difficult. I wish we a) lived closer together, and b) were ready to make a bigger effort and commitment to each other. We both need time, and time together, which I hope will happen. Keep me in your romance prayers!;)
nessie1
10-04-2008, 03:22 PM
hi linda
get the pain checked out hun - you sound super fit so im sure its all gonna be ok, but to be on the safe side have it checked- please.
misschatty. i am married but my hubby is more like another kid to me!!! you will need help for a few weeks, getting meals ready made and shopping , washing etc as neens said you cannot lift anything over 5lbs for a few weeks. good luck on the 17th babe, have you got family and friends who can help out ?? my boy was 5 when i had mine out and it is hard - but they are stronger than you think. take care x
Also i forgot to say the otherday - surgeon said i CAN go back on the pill with my remaining FNH's!!! - arghhhhhh no way!!! but my cycle is driving me nuts - its about 30-35 days apart now but this time i only had 7 days off and now im bleeding again!!! This was exactly how it was as a teenager! i started my periods aged 9 and i was on the pill by aged 14 to regulate them - any sugestions anyone???
hope you are all ok, miss you all, beth?? juliet?? cailea?? where are you my lovelys??
Have a nice weekend x
get the pain checked out hun - you sound super fit so im sure its all gonna be ok, but to be on the safe side have it checked- please.
misschatty. i am married but my hubby is more like another kid to me!!! you will need help for a few weeks, getting meals ready made and shopping , washing etc as neens said you cannot lift anything over 5lbs for a few weeks. good luck on the 17th babe, have you got family and friends who can help out ?? my boy was 5 when i had mine out and it is hard - but they are stronger than you think. take care x
Also i forgot to say the otherday - surgeon said i CAN go back on the pill with my remaining FNH's!!! - arghhhhhh no way!!! but my cycle is driving me nuts - its about 30-35 days apart now but this time i only had 7 days off and now im bleeding again!!! This was exactly how it was as a teenager! i started my periods aged 9 and i was on the pill by aged 14 to regulate them - any sugestions anyone???
hope you are all ok, miss you all, beth?? juliet?? cailea?? where are you my lovelys??
Have a nice weekend x
misschatty10
10-05-2008, 12:58 AM
Linda,
The pain you decribed having when your adenoma ruptured sounds exactly like the pain I had after the biopsy of my FNH. The extremely sharp pain started in my mid back shooting up into my right shoulder. I couldn't lay flat for two weeks. They said it was because they had gone in so close to my diaphram. It was horrible. It sounds like your pretty healthy but it's always best to get it checked. And it's a good idea to jot your questions down and take the list with you. I've started doing that because I would always forget to ask something. I've also put all my symtoms down on paper to provide to the doctor so I don't have list to them everytime I go in and it can just be put in my file. It's made it easier.
Nessie and Neens,
Thank you for your posts. My son is 11, so he's pretty self sufficient and I haven't been able to pick him up in years so that's not a problem. LOL. But I have been on my own for several years. I haven't had to rely on anybody to take care of me, which is part of my worries. I do have my whole family here in town. My sons dad is here and we have a good enough relationship that he would help out with him. I know I have a good support system but my family and friends have jobs, and families, it's just a lot to ask of them to take care of me. I shouldn't be worrying about it yet. I haven't even found someone whose agreed to remove it. But it's hard not to think about it when I have a daily reminder of pain & discomfort.
In the meantime I will continue to read all of your posts. Thanks again everyone. Take care!
The pain you decribed having when your adenoma ruptured sounds exactly like the pain I had after the biopsy of my FNH. The extremely sharp pain started in my mid back shooting up into my right shoulder. I couldn't lay flat for two weeks. They said it was because they had gone in so close to my diaphram. It was horrible. It sounds like your pretty healthy but it's always best to get it checked. And it's a good idea to jot your questions down and take the list with you. I've started doing that because I would always forget to ask something. I've also put all my symtoms down on paper to provide to the doctor so I don't have list to them everytime I go in and it can just be put in my file. It's made it easier.
Nessie and Neens,
Thank you for your posts. My son is 11, so he's pretty self sufficient and I haven't been able to pick him up in years so that's not a problem. LOL. But I have been on my own for several years. I haven't had to rely on anybody to take care of me, which is part of my worries. I do have my whole family here in town. My sons dad is here and we have a good enough relationship that he would help out with him. I know I have a good support system but my family and friends have jobs, and families, it's just a lot to ask of them to take care of me. I shouldn't be worrying about it yet. I haven't even found someone whose agreed to remove it. But it's hard not to think about it when I have a daily reminder of pain & discomfort.
In the meantime I will continue to read all of your posts. Thanks again everyone. Take care!
nessie1
10-06-2008, 11:58 AM
misschaty
it sounds like you have a good support network which is good, it will only be for a few weeks and you will be fine. please try not to worry too much and ask away any questions. when is your next appt?
it sounds like you have a good support network which is good, it will only be for a few weeks and you will be fine. please try not to worry too much and ask away any questions. when is your next appt?
essgirl35
10-07-2008, 03:12 PM
Hi hope youre all doing well.Glad to read your good news Nessie.
I had been meaning to come back on here and update you all when i got home but i had to go back into hospital and have a drain fitted because i had an infection and a temp of 104. So i had to spend another 5 days in the hospital, that wasnt fun cos im a terrible patient.
I was doing really well until last week( i was even getting my appetite back,i have lost about 15 lbs since the op and i was skinny to start with)I went back to see the consultant who told me i didnt have FNH after all and the that the tumour wasnt benign(still cant get my head round using the other word). I first went to the the Drs in feb of this year, i have had blood tests,ultrasounds,CT scans and an MRI. In April i met with the consultant who said it was FNH.He even sent the MRIs away to another consultant who agreed with him that i had FNH. I was told that it was upto me whether i had it removed or not. So i went home and researched it on the internet(where i came across this board). I met withthe consultant again in MAy and told him yes i would have it removed.As he assured me it was benign and would not turn otherwise i said i would leave having it removed till after the kids summer holidays, so it was booked for Sept 8th.As a single mother of 2 children i even thought of cancelling it and leaving it till they were older but the week before i thought i should just get it over and done with then i would be fine by xmas.I was nervous before the op but once it was done i was glad i had gone ahead with it.I knew it would go off to be biopsied but it never even crossed my mind that it would be anything more than benign.When he told me on friday my mind just shut down i didnt even have any questions for him.I dont recall much of what he said, he mentioned chemotherapy. I have to go back on fri and see him. I still dont know what to say. Theres the obvious questions but im not ready to hear the answers to them at the moment.im so angry at myself for taking his word on what it was, i should have had it removed in may. I havent told my children yet, i dont know what to say to them. I think the oldest one(14) may know something is up as i havent eaten since friday . I know i have to pull myself together but at the moment i dont know whether im coming or going.This is turning out to be the longest week of my life. In one way i want it to be friday but in another way im petrified of what im going to hear.
I had been meaning to come back on here and update you all when i got home but i had to go back into hospital and have a drain fitted because i had an infection and a temp of 104. So i had to spend another 5 days in the hospital, that wasnt fun cos im a terrible patient.
I was doing really well until last week( i was even getting my appetite back,i have lost about 15 lbs since the op and i was skinny to start with)I went back to see the consultant who told me i didnt have FNH after all and the that the tumour wasnt benign(still cant get my head round using the other word). I first went to the the Drs in feb of this year, i have had blood tests,ultrasounds,CT scans and an MRI. In April i met with the consultant who said it was FNH.He even sent the MRIs away to another consultant who agreed with him that i had FNH. I was told that it was upto me whether i had it removed or not. So i went home and researched it on the internet(where i came across this board). I met withthe consultant again in MAy and told him yes i would have it removed.As he assured me it was benign and would not turn otherwise i said i would leave having it removed till after the kids summer holidays, so it was booked for Sept 8th.As a single mother of 2 children i even thought of cancelling it and leaving it till they were older but the week before i thought i should just get it over and done with then i would be fine by xmas.I was nervous before the op but once it was done i was glad i had gone ahead with it.I knew it would go off to be biopsied but it never even crossed my mind that it would be anything more than benign.When he told me on friday my mind just shut down i didnt even have any questions for him.I dont recall much of what he said, he mentioned chemotherapy. I have to go back on fri and see him. I still dont know what to say. Theres the obvious questions but im not ready to hear the answers to them at the moment.im so angry at myself for taking his word on what it was, i should have had it removed in may. I havent told my children yet, i dont know what to say to them. I think the oldest one(14) may know something is up as i havent eaten since friday . I know i have to pull myself together but at the moment i dont know whether im coming or going.This is turning out to be the longest week of my life. In one way i want it to be friday but in another way im petrified of what im going to hear.
tinyt3
10-07-2008, 08:18 PM
essgirl35,
I am so sorry of your outcome but glad you had the surgery. Sorry you had such a rough time. Always know that we are all here to support you and you just vent as you need. You will be in my thoughts and prayers for Friday. I know everyone on here will be thinking of you. When you go through things like this with each other we become like sisters. You are one of us and we care so please ask anything or just let us listen. I wish we could be there holding your hand but know we are still there for you. It is so scary when you have children and you are wise to wait until you know all the facts before you tell them. Hugs to you!
TinyT3
I am so sorry of your outcome but glad you had the surgery. Sorry you had such a rough time. Always know that we are all here to support you and you just vent as you need. You will be in my thoughts and prayers for Friday. I know everyone on here will be thinking of you. When you go through things like this with each other we become like sisters. You are one of us and we care so please ask anything or just let us listen. I wish we could be there holding your hand but know we are still there for you. It is so scary when you have children and you are wise to wait until you know all the facts before you tell them. Hugs to you!
TinyT3
nessie1
10-08-2008, 06:55 AM
essgirl
i really dont know what to say to you hun. I am shocked so god knows how you feel ? It bad enough having to go thru this surgery to then have to deal with what you are dealing with. i too would have gone into shut down mode. We are all here for you and you know we will all be praying for you. i so wish i could call you or something. i hope and pray things will be ok for you. i cant believe that 2 surgeons have said its FNH? thank god you have had it removed. Please keep us updated when you can and vent all you want on here- thats why we are here. What about family? have you got family and friends you can talk to?
take care honey, if there is anything i can do -just ask. :angel:
nessie x
i really dont know what to say to you hun. I am shocked so god knows how you feel ? It bad enough having to go thru this surgery to then have to deal with what you are dealing with. i too would have gone into shut down mode. We are all here for you and you know we will all be praying for you. i so wish i could call you or something. i hope and pray things will be ok for you. i cant believe that 2 surgeons have said its FNH? thank god you have had it removed. Please keep us updated when you can and vent all you want on here- thats why we are here. What about family? have you got family and friends you can talk to?
take care honey, if there is anything i can do -just ask. :angel:
nessie x
granolawife
10-08-2008, 05:35 PM
essgirl,
i am completely shocked and upset to hear your news. i know you were hoping that this was the end of this whole thing, but please take one day at a time. no time or energy should be wasted on "what if". you had the surgery and it's gone -- now... moving forward to addressing the best way to approach your treatment to 'finish the job' and be done with this. i know you have a difficult road ahead. please know that we are all here for you, even though we may not be able to talk on the phone or visit. you will be in my thoughts and prayers every day. we are here whenever you need us.
giant hugs -
arlyn
i am completely shocked and upset to hear your news. i know you were hoping that this was the end of this whole thing, but please take one day at a time. no time or energy should be wasted on "what if". you had the surgery and it's gone -- now... moving forward to addressing the best way to approach your treatment to 'finish the job' and be done with this. i know you have a difficult road ahead. please know that we are all here for you, even though we may not be able to talk on the phone or visit. you will be in my thoughts and prayers every day. we are here whenever you need us.
giant hugs -
arlyn
neens7982
10-08-2008, 10:55 PM
Essgirl,
I too am shocked at your news as I'm sure you are!! And like Arlyn said, one day at a time!! I know that we are all spread out over the world, but just know that we are here for you and we will be praying for you. All you can do is look ahead and try to stay positive. I know how hard it is! My mother in law just had a stem cell transplant for leukemia Sept. 16. She had been fighting leukemia for two years before we were able to do the transplant. But her drive and will to be better and cured has been amazing. We just learned that her transplant is working. Have faith!
Huge hugs to you! If you need absolutely anything, please let us know!
xoxo
nina
I too am shocked at your news as I'm sure you are!! And like Arlyn said, one day at a time!! I know that we are all spread out over the world, but just know that we are here for you and we will be praying for you. All you can do is look ahead and try to stay positive. I know how hard it is! My mother in law just had a stem cell transplant for leukemia Sept. 16. She had been fighting leukemia for two years before we were able to do the transplant. But her drive and will to be better and cured has been amazing. We just learned that her transplant is working. Have faith!
Huge hugs to you! If you need absolutely anything, please let us know!
xoxo
nina
LindaG40
10-09-2008, 03:34 AM
Essgirl,
I read your message yesterday, and had to sit and think about what you're going through and how hard this must be before I could respond. Wow, I'm so shocked and upset to hear about this. We all have been hearing from our physicians that these tumors are benign, yet there is still that small percentage that become...well, you know. I can't say it now either. It's something that has always been in the back of my mind, especially since mine are still in me and being monitored. Did they run any bloodwork on you? If so, what did they show? I have my follow-up appointment next week, so I will definitely have some hard questions to ask Dr. Bass.
Please know that I am here for you and will say a prayer for you to have the strength to get through this and come out the other end healthy and happy. I wish that I could be there in person to help out, or go to the doctor with you, but know that I am there in spirit. You have a lot to live for, so keep that in focus as you get through this. We are all here to give you the strength you need in spirit. Keep us posted.
Linda:angel:
I read your message yesterday, and had to sit and think about what you're going through and how hard this must be before I could respond. Wow, I'm so shocked and upset to hear about this. We all have been hearing from our physicians that these tumors are benign, yet there is still that small percentage that become...well, you know. I can't say it now either. It's something that has always been in the back of my mind, especially since mine are still in me and being monitored. Did they run any bloodwork on you? If so, what did they show? I have my follow-up appointment next week, so I will definitely have some hard questions to ask Dr. Bass.
Please know that I am here for you and will say a prayer for you to have the strength to get through this and come out the other end healthy and happy. I wish that I could be there in person to help out, or go to the doctor with you, but know that I am there in spirit. You have a lot to live for, so keep that in focus as you get through this. We are all here to give you the strength you need in spirit. Keep us posted.
Linda:angel:
kt8889
10-09-2008, 11:38 PM
Essgirl, I am so sorry to hear your news. I spent some time looking on here. There was another women with the same thing you are going through. Nessie or Linda, you might help me remember. I can not remember if she was on here this year or if she was from years ago, but I remember reading it.
You are in our prayers. Please take care of yourself, eat well and rest whenever possible. You are in for a road that none of us had to take, but you are one of us and we will all be here to support you. You can vent to us in any way and we will give you feed back if you need it or just listen if that is what you would like.
You sound like a strong wonderful women and we are proud of you for just coming on here and posting to let us know your results.
Please keep us updated and let us help you in any way we can.
:angel: (I am sending you my angel)
Peace and Love,
Katie
You are in our prayers. Please take care of yourself, eat well and rest whenever possible. You are in for a road that none of us had to take, but you are one of us and we will all be here to support you. You can vent to us in any way and we will give you feed back if you need it or just listen if that is what you would like.
You sound like a strong wonderful women and we are proud of you for just coming on here and posting to let us know your results.
Please keep us updated and let us help you in any way we can.
:angel: (I am sending you my angel)
Peace and Love,
Katie
essgirl35
10-11-2008, 05:08 AM
Thank you for all your messages of support, i read them all but couldnt post again as my head has been all over the place this week.
I went back to see the consultant yesterday and he told me he thinks he got it all out.He removed the left portion of my liver and a small portion of the right.I asked him if he knew what it was when he was operating on me,he said it didnt look like he expected it to look!
He has referred me to an oncologist at my local hospital,where he said i will decide with him whether to have chemotherapy.I will of course have this if he thinks i need it so i can be sure there is nothing left floating around.I will also be scanned every 6 months for the next 3 years and then once a year for 2 years and if nothing has happened after 5 then he said thats the end of it.
He also checked my drain and as it is still draining he has decided to leave it in.He is going to check it again in 2 weeks and then again 2 weeks after that when he said he will have to take it out.If it is still draining then he said he may have to go back in and put a shunt in so that it just drains into my stomach.I wanted the drain out as its been in almost 3 weeks and im getting so fed up with it,but i remember how ill i was before i had it put it(I had a grapefruit sized abcess and this caused sepsis, it also caused my heart to "not work properly"as the Dr said).So in the scheme of things i cant really complain about the drain.I asked him how many people need to have a drain fitted after surgery and he said about 1 in 20.
I feel so much better today, i know i may have to have chemo and knowing my luck my hair will fall out but i think thats a small price to pay.Both my parents died from cancer,my mum died of breast cancer when i was 5 and my dad died of prostate cancer 4 years.I do think that maybe if the Dr had said there was even a 1% of it not being benign then i would have had it removed sooner.I am obviously glad it is now gone and maybe had i known straight after the surgery that it wasnt benign i wouldnt have recovered so quickly.It will be 5 weeks on monday since i had my op and apart from some discomfort around the incision(still have a dressing on the incision so i dont actually know what it looks like cos when ever they change it im always too scared to look,so i guess im in for a shock lol) i feel almost back to normal. I have also got my appetite back so im hoping to put back on all the weight i lost.
Linda i had all sorts of blood tests since february when i first found the lump,they all came back back normal apart from one which said my liver function was slightly down,but they said this was only to be expected.I presumed that if anything was really wrong it would have shown up on the blood tests.I had them done at 3 different hospitals so it wasnt an error on their part,i guess its just one of those things.I still have many questions for the Dr but the last 2 appointments i have been too stressed to ask them. i used to write a long list of questions for him and we would go through them 1 at a time. I think in the next 2 weeks i will have to start a new list, its gonna be a long one lol.
Once again thank you for all your messages of support and prayers.I hope you all are feeling well.I will continue to post on here as i have found it to be a great help.
Essgirl35
I went back to see the consultant yesterday and he told me he thinks he got it all out.He removed the left portion of my liver and a small portion of the right.I asked him if he knew what it was when he was operating on me,he said it didnt look like he expected it to look!
He has referred me to an oncologist at my local hospital,where he said i will decide with him whether to have chemotherapy.I will of course have this if he thinks i need it so i can be sure there is nothing left floating around.I will also be scanned every 6 months for the next 3 years and then once a year for 2 years and if nothing has happened after 5 then he said thats the end of it.
He also checked my drain and as it is still draining he has decided to leave it in.He is going to check it again in 2 weeks and then again 2 weeks after that when he said he will have to take it out.If it is still draining then he said he may have to go back in and put a shunt in so that it just drains into my stomach.I wanted the drain out as its been in almost 3 weeks and im getting so fed up with it,but i remember how ill i was before i had it put it(I had a grapefruit sized abcess and this caused sepsis, it also caused my heart to "not work properly"as the Dr said).So in the scheme of things i cant really complain about the drain.I asked him how many people need to have a drain fitted after surgery and he said about 1 in 20.
I feel so much better today, i know i may have to have chemo and knowing my luck my hair will fall out but i think thats a small price to pay.Both my parents died from cancer,my mum died of breast cancer when i was 5 and my dad died of prostate cancer 4 years.I do think that maybe if the Dr had said there was even a 1% of it not being benign then i would have had it removed sooner.I am obviously glad it is now gone and maybe had i known straight after the surgery that it wasnt benign i wouldnt have recovered so quickly.It will be 5 weeks on monday since i had my op and apart from some discomfort around the incision(still have a dressing on the incision so i dont actually know what it looks like cos when ever they change it im always too scared to look,so i guess im in for a shock lol) i feel almost back to normal. I have also got my appetite back so im hoping to put back on all the weight i lost.
Linda i had all sorts of blood tests since february when i first found the lump,they all came back back normal apart from one which said my liver function was slightly down,but they said this was only to be expected.I presumed that if anything was really wrong it would have shown up on the blood tests.I had them done at 3 different hospitals so it wasnt an error on their part,i guess its just one of those things.I still have many questions for the Dr but the last 2 appointments i have been too stressed to ask them. i used to write a long list of questions for him and we would go through them 1 at a time. I think in the next 2 weeks i will have to start a new list, its gonna be a long one lol.
Once again thank you for all your messages of support and prayers.I hope you all are feeling well.I will continue to post on here as i have found it to be a great help.
Essgirl35
McRegnal87
10-11-2008, 05:26 AM
Hi
wondered if I could join your group? Long story but have a 4cm lesion on liver which was first seen in May (incidental finding)- has been a long time getting to the bottom of it all and now seeing liver specialist in London, different diagnoses so far of FNH then Adenoma, awaiting results of fourth radiologist report and second MRI (teslascan). I have a strong family history of cancer (two siblings died and two survived) so a bit apprehensive about it all. Feel reasonably well but get pain in right ribs and back occasionally- Dr says its not related- my osteopath says it is!
Sorry to hear of your results and your infection Ess girl hope you feel better soon
wondered if I could join your group? Long story but have a 4cm lesion on liver which was first seen in May (incidental finding)- has been a long time getting to the bottom of it all and now seeing liver specialist in London, different diagnoses so far of FNH then Adenoma, awaiting results of fourth radiologist report and second MRI (teslascan). I have a strong family history of cancer (two siblings died and two survived) so a bit apprehensive about it all. Feel reasonably well but get pain in right ribs and back occasionally- Dr says its not related- my osteopath says it is!
Sorry to hear of your results and your infection Ess girl hope you feel better soon
nessie1
10-11-2008, 10:33 AM
mcregnal - welcome! take some time to read back on here and the previous 12 posts and you will find bags of info. are you going to the same hospital essgirl went to ?? i have my 7cm fnh out in birmingham - Dr bramhall - he is amazing and i can highly recommend him. !! These things are so hard to diagnose as you can see. We have all been there hun and will help wherever we can. when are you getting the next results - the waiting is so hard -what about bloodwork?? And yes the pain IS from your livere even though all the docs say its not!! - keep us posted .
essgirl. you sound pretty good today considering. You are a very brave lady. my mum died of cancer when i was 5 too, and my dad has had 2 lots of cancer and a heart bypass so i know its always in the bak of your mind. ! You actually sound quite positive today which im very proud of you for. I cant imagine how you must feel but take one day at a time and i know there will be good and bad days to come, but we are all here for you. I know chemo sounds so scary but its sounds like they got it all . I cant believe you have a few "LOL" on your post - you are amazing! Yes do a new list and take time to adjust. Im sure they will take time to answer your questions one at a time. My heart goes out to you mate - i wish we lived closer! The scar is not too bad - dont worry about that and hopefully the drain will come out soon too which will make you more comfortable. Try not to beat yourself up about not having the op sooner - its out now and thats the main thing - you were'nt to know. As i said we are all here for you and you vent away whenever you feel the need - your one of us .
take care my love :angel:
to all the other fantastic ladies - have a nice weekend - very sunny here which is so nice.
nessie x
essgirl. you sound pretty good today considering. You are a very brave lady. my mum died of cancer when i was 5 too, and my dad has had 2 lots of cancer and a heart bypass so i know its always in the bak of your mind. ! You actually sound quite positive today which im very proud of you for. I cant imagine how you must feel but take one day at a time and i know there will be good and bad days to come, but we are all here for you. I know chemo sounds so scary but its sounds like they got it all . I cant believe you have a few "LOL" on your post - you are amazing! Yes do a new list and take time to adjust. Im sure they will take time to answer your questions one at a time. My heart goes out to you mate - i wish we lived closer! The scar is not too bad - dont worry about that and hopefully the drain will come out soon too which will make you more comfortable. Try not to beat yourself up about not having the op sooner - its out now and thats the main thing - you were'nt to know. As i said we are all here for you and you vent away whenever you feel the need - your one of us .
take care my love :angel:
to all the other fantastic ladies - have a nice weekend - very sunny here which is so nice.
nessie x
neens7982
10-11-2008, 09:24 PM
Essgirl,
Thank you for keeping us up to date! I know it isn't easy! We will hope and pray that they did get it all. My mom had a drain after her liver surgery. However, it was draining directly from one of the main liver ducts. I know it is a pain, but like you said, its there to make things heal better! When it does come out, it may ooze for awhile, which is also a pain, but it will get less and less. But don't worry, it'll come out soon! Hang in there! Stay strong and just know you have us ladies thinking of you every day.
McRegnal, welcome! Please let us know if you have any questions at all! That is what we are here for!
Nessie, how are you my dear? Hope things are well on the homefront! How are you feeling?
I am still getting a little shoulder pain from time to time. I wonder if I have some permanent nerve damage from it all...hmm. I also had a numb area above my belly button near my scar. I think some of the feeling is starting to return. Crazy it has taken so long! No news on the baby front yet. My cycle is still out of whack...maybe it does take a whole year for your body to get back on track, huh?
Hope everyone else is doing okay! Linda, let us know how things go with Dr. Bass.
xoox
Thank you for keeping us up to date! I know it isn't easy! We will hope and pray that they did get it all. My mom had a drain after her liver surgery. However, it was draining directly from one of the main liver ducts. I know it is a pain, but like you said, its there to make things heal better! When it does come out, it may ooze for awhile, which is also a pain, but it will get less and less. But don't worry, it'll come out soon! Hang in there! Stay strong and just know you have us ladies thinking of you every day.
McRegnal, welcome! Please let us know if you have any questions at all! That is what we are here for!
Nessie, how are you my dear? Hope things are well on the homefront! How are you feeling?
I am still getting a little shoulder pain from time to time. I wonder if I have some permanent nerve damage from it all...hmm. I also had a numb area above my belly button near my scar. I think some of the feeling is starting to return. Crazy it has taken so long! No news on the baby front yet. My cycle is still out of whack...maybe it does take a whole year for your body to get back on track, huh?
Hope everyone else is doing okay! Linda, let us know how things go with Dr. Bass.
xoox
McRegnal87
10-12-2008, 07:08 AM
I hope that I get definitive result of second MRI tomorrow (mon) it was promised to me more than 3 weeks ago- I think Dr forgot me- he was in a hurry the day I saw him! I'm not seeing same Dr as Essgirl as I am going to Kings College London and I believe Ess went to Ipswich. My Dr has talked about RFA to treat/eliminate tumor although this has not been done before at Kings for non malignant lesions- I think I might be a guinea pig! although I definitely want to avoid major surgery - it all sounds far too unpleasant, I would like to know what it is for definite but without a biopsy there really is no knowing. Biopsy has the risk of spreading malignancy (seeding ) so I suspect I will probably never know for sure unless it changes dramatically and they remove it. My family history suggests that we have a syndrome for family cancers-have seen geneticist in the past, they think we have Lynch syndrome or HNPCC (both are the same), have been looking up links to liver lesions and it seems there are connections. Will post again when I have received news of MRI , keep well Mc
nessie1
10-12-2008, 11:17 AM
mc - good luck tomorrow hun, i hope you get the answers you are hoping for, RFA - none of us have had that so it would be interesting to know a little more. as we have said they do not always biopsy these things- -some of the ladies on here have had that done but i never as they said the risk of bleeding is too high. even when a biopsy does happen its not always correct - ask katie!!! the sugery is scary but i must say i have no regrets - take care and keep us posted .
neens - hey there you. yes i think it does take a year for our cycles to get back to normal!! mines right up the spout!!! i also am numb below the incision. it does seem a little better or maybe im just used to it now - my scar is still a little red but i keep applying my bio oil in the hope it turns white!! relationship wise - im still confused! im going back to work full time for 6 months. my hubby will pick my son up from after school club at about 16.30 every day and then he will need to come home and get tea on. i will get in about 18.00 so im hoping that more of a joint effort in the home will help things and we will appreciate each other more. also more money means we can do more things together so we will see. i just still feel very confused at the mo. its been a big year to say the least!! anyway - here's to hoping the baby angel will visit you soon my love x x
take careall x x
neens - hey there you. yes i think it does take a year for our cycles to get back to normal!! mines right up the spout!!! i also am numb below the incision. it does seem a little better or maybe im just used to it now - my scar is still a little red but i keep applying my bio oil in the hope it turns white!! relationship wise - im still confused! im going back to work full time for 6 months. my hubby will pick my son up from after school club at about 16.30 every day and then he will need to come home and get tea on. i will get in about 18.00 so im hoping that more of a joint effort in the home will help things and we will appreciate each other more. also more money means we can do more things together so we will see. i just still feel very confused at the mo. its been a big year to say the least!! anyway - here's to hoping the baby angel will visit you soon my love x x
take careall x x
kt8889
10-14-2008, 10:41 AM
Good Morning ladies,
Essgirl, thank you for posting! We are so proud of you for being strong. I did a lot of reading about these lovely tumors when this all first started, and the cancer that you have does not show up in tumor markers in the blood work. There is a very small chance of this, but you are the winner... 1 in a million. That is another reason I feel like we should stay on here and helping women. Liver tumors are crazy to deal with, but you found yours, got it out and you are ready to take on the world with all the treatment you decide to do now. We are here for you and you are in our prayers!
McRegnal87, Welcome to our club! As Nessie said, we have so much information in past threads about appointments, pre-op, post-op, surgery and healing. Feel free to ask us anything. Nothing is too rude, we have been there.
Neens, I am also praying for the baby angel to come your way. :angel: I still have the numb area below my incision also. Some parts are numb, some are very sensitive, so it is crazy.
Arlyn, I am praying for you too!
Nessie, I am so proud of you for working on things at home. I know it is not always easy, but it is worth your best effort and it sounds like you are giving it. We will meet someday, I just know it!
Linda, have you given us an update from your latest scans? I have been thinking you about you, please let us know! For some reason I think you have an appointment today or yesterday. Prayers and Hugs to you!
Well, I need to run here. Life is busy, but things are really good. Hugs to all my wonderful friends on here, you know who you are!
Juliet, if you read on here, we miss you!
:wave:
Katie
Essgirl, thank you for posting! We are so proud of you for being strong. I did a lot of reading about these lovely tumors when this all first started, and the cancer that you have does not show up in tumor markers in the blood work. There is a very small chance of this, but you are the winner... 1 in a million. That is another reason I feel like we should stay on here and helping women. Liver tumors are crazy to deal with, but you found yours, got it out and you are ready to take on the world with all the treatment you decide to do now. We are here for you and you are in our prayers!
McRegnal87, Welcome to our club! As Nessie said, we have so much information in past threads about appointments, pre-op, post-op, surgery and healing. Feel free to ask us anything. Nothing is too rude, we have been there.
Neens, I am also praying for the baby angel to come your way. :angel: I still have the numb area below my incision also. Some parts are numb, some are very sensitive, so it is crazy.
Arlyn, I am praying for you too!
Nessie, I am so proud of you for working on things at home. I know it is not always easy, but it is worth your best effort and it sounds like you are giving it. We will meet someday, I just know it!
Linda, have you given us an update from your latest scans? I have been thinking you about you, please let us know! For some reason I think you have an appointment today or yesterday. Prayers and Hugs to you!
Well, I need to run here. Life is busy, but things are really good. Hugs to all my wonderful friends on here, you know who you are!
Juliet, if you read on here, we miss you!
:wave:
Katie
McRegnal87
10-14-2008, 11:50 AM
hi folks
have received the letter from Dr and although he can't be absolutely sure the consensus is that it is FNH and they will leave it alone, seems it doesnt look like an adenoma but isnt exactly like an FNH either! They've told me to come back in a year for CTscan unless anything else untoward happens in the meantime. Strange to have to live with something in there that shouldn't be there but we've all got things in our bodies that no-one knows about until they do a scan looking for something else.So that's that then, I think I really need to switch off to this- It's amazing how it can take over your life and I have spent far too much time on the internet reading up on all the different scenarios. Keep well, thankyou for the support and I shall drop in from time to time to see how you're all doing
Mc x
have received the letter from Dr and although he can't be absolutely sure the consensus is that it is FNH and they will leave it alone, seems it doesnt look like an adenoma but isnt exactly like an FNH either! They've told me to come back in a year for CTscan unless anything else untoward happens in the meantime. Strange to have to live with something in there that shouldn't be there but we've all got things in our bodies that no-one knows about until they do a scan looking for something else.So that's that then, I think I really need to switch off to this- It's amazing how it can take over your life and I have spent far too much time on the internet reading up on all the different scenarios. Keep well, thankyou for the support and I shall drop in from time to time to see how you're all doing
Mc x
nessie1
10-14-2008, 02:51 PM
mc - glad your ok hun , keep in touch and let us know how things go - im sure we will still be chatting next year!!! take care x
katie - thanks for the kind words. glad your ok. i had a man call at my house last night - collecting and getting volunteers for a liver foundation based at the liver unit where i attended!!! we had such a long chat and he was so nice. he said there are so many chrities out there mainly for cancer awareness which is great but the liver foundation is a small fish compared to them! i signed up straight away and really feel like i can give something back !
essgirl - hope your holding in there
linda - any news ??
take care x x
katie - thanks for the kind words. glad your ok. i had a man call at my house last night - collecting and getting volunteers for a liver foundation based at the liver unit where i attended!!! we had such a long chat and he was so nice. he said there are so many chrities out there mainly for cancer awareness which is great but the liver foundation is a small fish compared to them! i signed up straight away and really feel like i can give something back !
essgirl - hope your holding in there
linda - any news ??
take care x x
LindaG40
10-14-2008, 10:20 PM
HELLO!
Okay, so I saw Dr. Bass yesterday and here's what he had to say. According to my latest CT scan, my liver is "scattered" with lesions. The largest is in segment 2 and is about 4 cm. There is a 1.3 cm in segment 7, and they think the one that ruptured is (was?) in segment 6, because that is where the hematoma is (yes, it's still there). It's now 5.4 cm (it was 5.6 in March). They don't know if the ruptured HA is still there, or if the rupture eliminated it. If it's still there, then it's hidden behind the hematoma and can't be seen in scans.
If we opted for surgery to remove them, it wouldn't make sense to take one or two and leave the rest behind, but if they took all of them, I wouldn't be left with much of a liver. So, the only way to get rid of them completely would be to do a liver transplant.:nono: Yes, my eyes bugged out of my head when he said this, but then he immediately said "you are not going to have a liver transplant, you probably wouldn't even qualify for one!" Dr. Bass said that these hepatic adenomas do not affect liver function, so it will be okay to just monitor them for now. I asked him about the risk of becoming cancer, and he said that these type of adenomas, caused by long-term use of oral contraceptives, usually don't become cancer. There have to be other factors involved, and I have none of them. I am very healthy, and according to the bloodwork that was done a year ago, all tests were normal. The only thing that was elevated is my white blood cell count, which could be attributed to the hematoma. Also, when I had my CT done a couple of weeks ago, they also did a quick chest scan, and that looks normal. Finally, he said that as long as he has been a physician, he has not seen any of them become cancer (he's not young, but not old either...probably in his fifties).
So, now I continue to live with these in my liver and have them monitored on a yearly basis. I know what the pain feels like with a rupture, so if that happens again, I am to go to the nearest ER, have an ultrasound or CT done to confirm, and then have them transport me to UCSF immediately.
He did mention my weight and that I need to reduce my caloric intake, which I am currently working on. I told him about all of the activities that I am doing (swimming, yoga, kayaking, biking, hiking), and he said he is very happy to hear that I am not letting these hold me back from being active. I did mention that I feel pressure when I'm hiking, especially uphill, and that I do feel pain from time to time. I also mentioned the pain in my chest. He said that I may experience pain, and some of it could be the hematoma as well. He also said that the pressure I feel while hiking is probably because I am standing and the movement up and down should be controlled (no running).
So that's where things stand...I go back in a year for an MRI and checkup. This is good news...no surgery, right? And there is no way I will ever be allowed to take any kind of hormones EVER!
I'll continue to check in here from time to time, and read up on how everyone is doing. I really wish there was a way we could share e-mail addresses with each other, but until then I'll just wait for Oprah or Ellen to call!
Linda
P.S. On a side (and sad) note, I saw Dave again last night, but it will probably be the last time for a while. He's not ready for any kind of commitment right now (at least not with me), and he wants to simplify his life and sort things out with his divorce. He feels like he got in over his head with dating so many women at once, and needs to just cut back and prioritize things with his son, house, and business. He said he does want to stay in touch with me and continue to see each other as friends, but it's best not to be romantic. We did spend the night together after having this conversation, and he said he hoped it wasn't too awkward. I felt a little sad about it, but then it really hit me after I left his house and drove further and further away. And now here I am again, single at 42. I never thought my life would be like this.
Okay, so I saw Dr. Bass yesterday and here's what he had to say. According to my latest CT scan, my liver is "scattered" with lesions. The largest is in segment 2 and is about 4 cm. There is a 1.3 cm in segment 7, and they think the one that ruptured is (was?) in segment 6, because that is where the hematoma is (yes, it's still there). It's now 5.4 cm (it was 5.6 in March). They don't know if the ruptured HA is still there, or if the rupture eliminated it. If it's still there, then it's hidden behind the hematoma and can't be seen in scans.
If we opted for surgery to remove them, it wouldn't make sense to take one or two and leave the rest behind, but if they took all of them, I wouldn't be left with much of a liver. So, the only way to get rid of them completely would be to do a liver transplant.:nono: Yes, my eyes bugged out of my head when he said this, but then he immediately said "you are not going to have a liver transplant, you probably wouldn't even qualify for one!" Dr. Bass said that these hepatic adenomas do not affect liver function, so it will be okay to just monitor them for now. I asked him about the risk of becoming cancer, and he said that these type of adenomas, caused by long-term use of oral contraceptives, usually don't become cancer. There have to be other factors involved, and I have none of them. I am very healthy, and according to the bloodwork that was done a year ago, all tests were normal. The only thing that was elevated is my white blood cell count, which could be attributed to the hematoma. Also, when I had my CT done a couple of weeks ago, they also did a quick chest scan, and that looks normal. Finally, he said that as long as he has been a physician, he has not seen any of them become cancer (he's not young, but not old either...probably in his fifties).
So, now I continue to live with these in my liver and have them monitored on a yearly basis. I know what the pain feels like with a rupture, so if that happens again, I am to go to the nearest ER, have an ultrasound or CT done to confirm, and then have them transport me to UCSF immediately.
He did mention my weight and that I need to reduce my caloric intake, which I am currently working on. I told him about all of the activities that I am doing (swimming, yoga, kayaking, biking, hiking), and he said he is very happy to hear that I am not letting these hold me back from being active. I did mention that I feel pressure when I'm hiking, especially uphill, and that I do feel pain from time to time. I also mentioned the pain in my chest. He said that I may experience pain, and some of it could be the hematoma as well. He also said that the pressure I feel while hiking is probably because I am standing and the movement up and down should be controlled (no running).
So that's where things stand...I go back in a year for an MRI and checkup. This is good news...no surgery, right? And there is no way I will ever be allowed to take any kind of hormones EVER!
I'll continue to check in here from time to time, and read up on how everyone is doing. I really wish there was a way we could share e-mail addresses with each other, but until then I'll just wait for Oprah or Ellen to call!
Linda
P.S. On a side (and sad) note, I saw Dave again last night, but it will probably be the last time for a while. He's not ready for any kind of commitment right now (at least not with me), and he wants to simplify his life and sort things out with his divorce. He feels like he got in over his head with dating so many women at once, and needs to just cut back and prioritize things with his son, house, and business. He said he does want to stay in touch with me and continue to see each other as friends, but it's best not to be romantic. We did spend the night together after having this conversation, and he said he hoped it wasn't too awkward. I felt a little sad about it, but then it really hit me after I left his house and drove further and further away. And now here I am again, single at 42. I never thought my life would be like this.
texasgirl2000
10-15-2008, 04:54 PM
Hello everyone!
I am new here. You ladies have helped me more than you know! In Feb of this year I had a CT scan to check for kidney stones(which was negative) but they found 3 small lesions on my liver. I was devastated. I have two daughters 10 and 6 and had just lost my sister due to a heart attack, so I was already an emotional mess. Since then I have had 3 MRI's and 2 nuclear medicine colloid spect scans along with 3 rounds of blood work. Everything points to adenomas. My blood work is normal. I am being treated at Baylor College of Medicine in Houston Tx. which is supposed to be an excellent facility. They also do not want to do a biopsy and just want to follow up every 6 months. My lesions are 2.1 x 2.1 and 2.8 x 1 and 8mm. Although they are small, this weighs heavy on my mind everyday. You ladies seem so strong for having already had the surgery. This site has been a life line to me as I go down this road of ups and downs. Just wanted to say Thank You.:)
texasgirl2000
I am new here. You ladies have helped me more than you know! In Feb of this year I had a CT scan to check for kidney stones(which was negative) but they found 3 small lesions on my liver. I was devastated. I have two daughters 10 and 6 and had just lost my sister due to a heart attack, so I was already an emotional mess. Since then I have had 3 MRI's and 2 nuclear medicine colloid spect scans along with 3 rounds of blood work. Everything points to adenomas. My blood work is normal. I am being treated at Baylor College of Medicine in Houston Tx. which is supposed to be an excellent facility. They also do not want to do a biopsy and just want to follow up every 6 months. My lesions are 2.1 x 2.1 and 2.8 x 1 and 8mm. Although they are small, this weighs heavy on my mind everyday. You ladies seem so strong for having already had the surgery. This site has been a life line to me as I go down this road of ups and downs. Just wanted to say Thank You.:)
texasgirl2000
kt8889
10-15-2008, 05:56 PM
Hi Texasgirl, It is women like you why we stick around. We have shared our experience with all of this fun liver stuff so women can help educate themselves. I am so glad to hear that you have found us and found our posts useful. I am glad that you will be watching your adenomas. No doctors seem to agree on what to do 100% of the time with these lovely tumors. Even the liver specialist don't agree all the time. My doctor was the Director of the Liver Transplant Unit of University of Cincinnati. He believes that all Adenomas should be taken out due to the risk of them turning malignant. I don't say that to scare you, I just want to make sure you are educated, but if you have been dealing with this for 8 months already, I am sure you know that. Another woman on here, Linda, is watching hers, and has been for at least a year or two. We are here to support you in any way we can, emotionally, with spouse stuff and any question you might have. Feel free to ask away if needed, there is a group of us that is always checking in.
Linda, I am so glad to here your tumors are still getting a little smaller. You sound like you are good watching them and waiting for surgery. You might one day have the biggest surgery, so I will always keep you in my prayers that you continue to be fine. :angel: On your personal note, I always pray for you too. I know we never think we would be in the position that we are in life.:angel: I wish so badly we lived closer and could go out for girls night out once a week! I think Nessie and I after a couple of drinks would have you set up on more dates then you could handle! :D You are such a kind and giving women, I can tell, that one day, someone is going to sweep you off your feet!
Tina, how are you doing? I hope the kids are doing ok. Remember it takes a while to get back to feeling normal, so hang in there.
For my friends out there, hugs to you! Even though I am not around as much I think of you every day. I am also learning to have a green thumb after Juliet sent me the peace lily from all of you. :D It is growing better than any plant I have every owned and it makes me think of you all every day.
:wave:
Katie
Linda, I am so glad to here your tumors are still getting a little smaller. You sound like you are good watching them and waiting for surgery. You might one day have the biggest surgery, so I will always keep you in my prayers that you continue to be fine. :angel: On your personal note, I always pray for you too. I know we never think we would be in the position that we are in life.:angel: I wish so badly we lived closer and could go out for girls night out once a week! I think Nessie and I after a couple of drinks would have you set up on more dates then you could handle! :D You are such a kind and giving women, I can tell, that one day, someone is going to sweep you off your feet!
Tina, how are you doing? I hope the kids are doing ok. Remember it takes a while to get back to feeling normal, so hang in there.
For my friends out there, hugs to you! Even though I am not around as much I think of you every day. I am also learning to have a green thumb after Juliet sent me the peace lily from all of you. :D It is growing better than any plant I have every owned and it makes me think of you all every day.
:wave:
Katie
tinyt3
10-15-2008, 07:40 PM
Katie,
Thanks for checking on me. My daughter that is bipolar left home last Thursday and here it is Wednesday and don't know where she is. I do know she called my niece so she is okay from one point of view. As far as after surgery I am doing pretty good. I do get really tired but that is only somedays. I feel sorry for the ones just watching their adenomas. It sounds strange but now that I am doing well I am glad to have them out. I also wonder how come doctors all have a different opinion of what to do with them. My surgeon said get them out do to the chance of them becoming malignant. Although they say you are not symptamatic, I had a lot of pain. I guess that is why I went so soon to avoid rupture.
Linda, so sorry about Dave but someone else is out there for you. I believe if it is meant to be it will happen. Hang in there! Sending the romance fairy your way. Hugs to you!
Nessie, How is the girl full of fun? Hope you are doing okay.
Every other fantastic lady hope all is well you all.
TinyT3
Thanks for checking on me. My daughter that is bipolar left home last Thursday and here it is Wednesday and don't know where she is. I do know she called my niece so she is okay from one point of view. As far as after surgery I am doing pretty good. I do get really tired but that is only somedays. I feel sorry for the ones just watching their adenomas. It sounds strange but now that I am doing well I am glad to have them out. I also wonder how come doctors all have a different opinion of what to do with them. My surgeon said get them out do to the chance of them becoming malignant. Although they say you are not symptamatic, I had a lot of pain. I guess that is why I went so soon to avoid rupture.
Linda, so sorry about Dave but someone else is out there for you. I believe if it is meant to be it will happen. Hang in there! Sending the romance fairy your way. Hugs to you!
Nessie, How is the girl full of fun? Hope you are doing okay.
Every other fantastic lady hope all is well you all.
TinyT3
neens7982
10-15-2008, 09:43 PM
texasgirl,
i also went to baylor for my liver resection. the care there is amazing!! I trust their team of docs implicitly!! just know you are in great hands!! i acutally followed my hemangiomas with them for four years before having them removed. they are great!!
katie...you are such a cheerleader!! hugs to you girlie!!
tiny, it is good to hear you are doing well!
and Linda! I'm glad things went well with Dr. Bass! Sorry to hear about Dave, but remember, things always happen for a reason!! Look, without a liver issue, I would have never met all you beautiful ladies!! :)
hugs to you all!
i also went to baylor for my liver resection. the care there is amazing!! I trust their team of docs implicitly!! just know you are in great hands!! i acutally followed my hemangiomas with them for four years before having them removed. they are great!!
katie...you are such a cheerleader!! hugs to you girlie!!
tiny, it is good to hear you are doing well!
and Linda! I'm glad things went well with Dr. Bass! Sorry to hear about Dave, but remember, things always happen for a reason!! Look, without a liver issue, I would have never met all you beautiful ladies!! :)
hugs to you all!
granolawife
10-16-2008, 02:16 PM
:wave:hi everyone!
i am heading on vacation and will be back on the 27th. didn't want anyone to think i'd dropped off of here!
welcome to the newbies! this is a great group!!!!
and thanks again to everyone who still keeps posting on here -- i think it's so important.
linda, my head would have popped off at the mention "transplant"...gheesh!!! i am sorry to hear about dave... the right one is a needle in a haystack, but he is out there!! it only takes one! :) hang in there!
tiny, good to hear from you...i so admire your strength!
juliet, hope you are ok...we miss you!
b/t/w -- i think that i may have to take progesterone supplements to get pregnant -- VERY NERVOUS about that, but i knew it was going to be a possibility. any thoughts...??? feedback??
neens, nessie, katie...everyone else... HI!
i am heading on vacation and will be back on the 27th. didn't want anyone to think i'd dropped off of here!
welcome to the newbies! this is a great group!!!!
and thanks again to everyone who still keeps posting on here -- i think it's so important.
linda, my head would have popped off at the mention "transplant"...gheesh!!! i am sorry to hear about dave... the right one is a needle in a haystack, but he is out there!! it only takes one! :) hang in there!
tiny, good to hear from you...i so admire your strength!
juliet, hope you are ok...we miss you!
b/t/w -- i think that i may have to take progesterone supplements to get pregnant -- VERY NERVOUS about that, but i knew it was going to be a possibility. any thoughts...??? feedback??
neens, nessie, katie...everyone else... HI!
nessie1
10-16-2008, 04:17 PM
texas girl! - thank you hun for posting that - it makes it all worthwhile. keep in touch an let us know how you go x
linda and katie and neens, - yep i would have you married off my now!!! sorry to hear about dave , who knows what will happen love, and as neens said without our liver issues we would never have met. katie - you always make me laugh mate - we so need to meet -it would be such a crack!! it will happen one day im sure.
arlyn - hey you, not sure about those supplements but give it a go - why not - you have nothing to loose - you are a strong lady and will overcme anything.
tina - god love how are you coping?? have you heard anything from your daughter yet?? i pray that it will be ok .
yes im a fun girl- even more so after this year of hell!! live life to the full i say!!
well work really busy at the mo - im training lots of new staff and one is driving me crazy!!!! never mind
must dash
take care my lovelys x x
linda and katie and neens, - yep i would have you married off my now!!! sorry to hear about dave , who knows what will happen love, and as neens said without our liver issues we would never have met. katie - you always make me laugh mate - we so need to meet -it would be such a crack!! it will happen one day im sure.
arlyn - hey you, not sure about those supplements but give it a go - why not - you have nothing to loose - you are a strong lady and will overcme anything.
tina - god love how are you coping?? have you heard anything from your daughter yet?? i pray that it will be ok .
yes im a fun girl- even more so after this year of hell!! live life to the full i say!!
well work really busy at the mo - im training lots of new staff and one is driving me crazy!!!! never mind
must dash
take care my lovelys x x
tinyt3
10-16-2008, 09:10 PM
Nessie,
It has been seven days today since my daughter ran away. I know she contacted my niece back on Sunday but nothing since. I am a nervous wreck and so exhausted. All I can do is give the police any leads I can think of. The rest of the time I just keep busy. I have two other children who need me and have been through enough this year.
As far as recovery after surgery, I am doing better than I could ever imagine. It has been almost five months. I still wish that our story would make the televison because I think more ladies should be aware of the dangers of oral contraceptives. We also deserve to meet and show our strength in helping one another through it.
I am thankful for a second chance at life and I am like you that I am going to live it to the fullest. I am back to college at 34 with three kids so I know the chaos. Hang in there with the job and hope your little guy is doing good.
Arlyn & Neens, I just know when the time is right for a baby you will get it. My cycles still have not returned to normal so I think it just takes time. The best thing is to relax and try not to think about it. I have a friend who had a two year old and an eleven year old. We asked her why so far apart. She said after the first they tried and tried. Then she had a miscarriage and the doctor said she could not have anymore. Well she proved them wrong with an adorable little boy. She just accepted it and then all of a sudden. Hang in there!
Linda, You seem like an awesome lady and I know your right guy is there. Sometimes you just have to get the lemons out of the way! Thinking of you and wishes a special someone for you. Hugs!
Everyone else and all the newbies take care and thinking of you all!
TinyT3
It has been seven days today since my daughter ran away. I know she contacted my niece back on Sunday but nothing since. I am a nervous wreck and so exhausted. All I can do is give the police any leads I can think of. The rest of the time I just keep busy. I have two other children who need me and have been through enough this year.
As far as recovery after surgery, I am doing better than I could ever imagine. It has been almost five months. I still wish that our story would make the televison because I think more ladies should be aware of the dangers of oral contraceptives. We also deserve to meet and show our strength in helping one another through it.
I am thankful for a second chance at life and I am like you that I am going to live it to the fullest. I am back to college at 34 with three kids so I know the chaos. Hang in there with the job and hope your little guy is doing good.
Arlyn & Neens, I just know when the time is right for a baby you will get it. My cycles still have not returned to normal so I think it just takes time. The best thing is to relax and try not to think about it. I have a friend who had a two year old and an eleven year old. We asked her why so far apart. She said after the first they tried and tried. Then she had a miscarriage and the doctor said she could not have anymore. Well she proved them wrong with an adorable little boy. She just accepted it and then all of a sudden. Hang in there!
Linda, You seem like an awesome lady and I know your right guy is there. Sometimes you just have to get the lemons out of the way! Thinking of you and wishes a special someone for you. Hugs!
Everyone else and all the newbies take care and thinking of you all!
TinyT3
neens7982
10-16-2008, 11:45 PM
Aryln,
How do you know you might need to take it? I'm just curious. I was told by my doc no hormones. But, after having my IUD removed, my cycle is still out of whack. Hmmm.....
xo
How do you know you might need to take it? I'm just curious. I was told by my doc no hormones. But, after having my IUD removed, my cycle is still out of whack. Hmmm.....
xo
LindaG40
10-17-2008, 12:36 AM
Ladies,
You bring tears to my eyes. I hope that someday we can all meet each other in person.
Thank you so much for all of your love and support. You are my angels!:angel:
Linda
You bring tears to my eyes. I hope that someday we can all meet each other in person.
Thank you so much for all of your love and support. You are my angels!:angel:
Linda
granolawife
10-17-2008, 01:07 AM
neens... well, right before all of this liver madness began i had some blood work done when i had an early miscarriage and it showed that i had really low progesterone levels. (in retrospect, thank god i did not become pregnant as that is the same blood test in which i discovered my elevated liver enzymes, etc. and had to schedule my surgery -- crazy how the universe works!) I had wacky cycles to begin with, hence why I was on birth control for so long to regulate it - the problem lies w/ low progesterone / short "luteal phase". I am pretty certain that I am going to have to do something to treat it to keep a pregnancy. I did ask my surgeon about it and he said "well, it would be best for you not to take any hormones, but i understand weighing that against not having children naturally and wanting to assume the risk". I am VERY nervous about taking hormones obviously, but on the other hand, would be devestated if I were not able to carry my future children. I do figure, though, that when i become pregnant my hormones will be elevated anyway, so it's a "risk" in and of itself...what's the real difference?!
I would love to hear any feedback! i've been pretty down about it... thankfully i am on vacation the next 10 days. :)
ps- maybe we should start a "pregnancy after liver resection" thread...? anyone interested?
I would love to hear any feedback! i've been pretty down about it... thankfully i am on vacation the next 10 days. :)
ps- maybe we should start a "pregnancy after liver resection" thread...? anyone interested?
nessie1
10-18-2008, 08:36 AM
hi there arlyn
i hopr the supplements help hun- -where you off on vacation??
have a lovely wekend all - sorry very busy today
nessie x
i hopr the supplements help hun- -where you off on vacation??
have a lovely wekend all - sorry very busy today
nessie x
kristin11
10-18-2008, 10:29 PM
Hello everyone, it's been about a month in a half (had surgery for adenoma on Sep 2) I am doing great, have pain here and there, but overall I am doing wonderfully. I have 2 questions. 1) Do you think it's okay to start taking vitamins and things like Evening Prime Rose (it helps w/ PMS, related junk)?
2) My surgeon told me I didn't ever have to come back for any more yearly visits, as long as I agreed to stay off the pill. I asked about yearly ultrasounds, but he said that those weren't really helpful. Did most of you have to have continue blood work for a while? I just wanted to make sure I am doing the same follow up you ladies did.
ps; Lately I would be interested in starting a post surgery pregnancy group. My finance and I are getting married in April, and hoping to try very soon following.
2) My surgeon told me I didn't ever have to come back for any more yearly visits, as long as I agreed to stay off the pill. I asked about yearly ultrasounds, but he said that those weren't really helpful. Did most of you have to have continue blood work for a while? I just wanted to make sure I am doing the same follow up you ladies did.
ps; Lately I would be interested in starting a post surgery pregnancy group. My finance and I are getting married in April, and hoping to try very soon following.
essgirl35
10-20-2008, 05:59 PM
Hi all,hope youre all doing well. Im doing a lot better than i was the last time i was on here.
I went to see the oncologist today and he said from what the surgeon said and what the pathology report said they are sure they have removed it all:D
He said i dont need chemo(he also said my body wouldnt be upto it after major surgery, and then getting sepsis straight afterwards).They are going to scan me every 6 months, so i will have a CT every December and an MRI every June for the next 5 yrs.I asked what good that would do as they didnt show it last time, but he said now they know what they are looking for.The same with the blood tests,again they showed nothing, had it not been for a big lump sticking out i would never have known i had it.He said it was very rare what i had and that they dont see it very often. He told me the name of it which i have conviently forgotten for the next week or so, otherwise i will scare the life out of my self on google! Im so fed up with it all at the moment but next week when im hopefully feeling a bit better i will research it and still probably scare the life out of me lol.
It has a reoccurance rate of 40%, which is quite high but hopefully i will be in the 60 % where it doesnt reoccur. If it does he said it would have to be surgically removed again,hopefully if it does reoccur they will find it quicker this time.I dont really fancy going through that surgery again but if i have to then i will.
Its six weeks today since my op and i feel really well, my incision still has a dressing on it where it came open, and i still have my drain in,but apart from that i feel fighting fit. I would like to go back to work soon but the Dr has just signed me off for another 6 weeks. I am getting so bored though.
I am now eating normally again so hopefully it wont be too long before i put the weight back on that ive lost over the last 6 weeks.
I go back to see the surgeon this wek so hopefully he will remove the drain, i also have some questions for him, some i dont think he is going to want to answer!
Anyway i must try and get some sleep, i have been waking every couple of hours for the last few weeks,hopefully tonight i will sleep better, as i feel so much better.
Essgirl
I went to see the oncologist today and he said from what the surgeon said and what the pathology report said they are sure they have removed it all:D
He said i dont need chemo(he also said my body wouldnt be upto it after major surgery, and then getting sepsis straight afterwards).They are going to scan me every 6 months, so i will have a CT every December and an MRI every June for the next 5 yrs.I asked what good that would do as they didnt show it last time, but he said now they know what they are looking for.The same with the blood tests,again they showed nothing, had it not been for a big lump sticking out i would never have known i had it.He said it was very rare what i had and that they dont see it very often. He told me the name of it which i have conviently forgotten for the next week or so, otherwise i will scare the life out of my self on google! Im so fed up with it all at the moment but next week when im hopefully feeling a bit better i will research it and still probably scare the life out of me lol.
It has a reoccurance rate of 40%, which is quite high but hopefully i will be in the 60 % where it doesnt reoccur. If it does he said it would have to be surgically removed again,hopefully if it does reoccur they will find it quicker this time.I dont really fancy going through that surgery again but if i have to then i will.
Its six weeks today since my op and i feel really well, my incision still has a dressing on it where it came open, and i still have my drain in,but apart from that i feel fighting fit. I would like to go back to work soon but the Dr has just signed me off for another 6 weeks. I am getting so bored though.
I am now eating normally again so hopefully it wont be too long before i put the weight back on that ive lost over the last 6 weeks.
I go back to see the surgeon this wek so hopefully he will remove the drain, i also have some questions for him, some i dont think he is going to want to answer!
Anyway i must try and get some sleep, i have been waking every couple of hours for the last few weeks,hopefully tonight i will sleep better, as i feel so much better.
Essgirl
neens7982
10-20-2008, 10:37 PM
what GREAT news essgirl! I am so glad they got it all and that you won't have to go through chemo. You just enjoy your next six weeks and relax. You deserve it after everything you've been through. You will continue to be in my prayers!
kristin, glad to hear you are doing well too!!
hugs to my ladies!! xoxo
kristin, glad to hear you are doing well too!!
hugs to my ladies!! xoxo
McRegnal87
10-21-2008, 08:16 AM
Good to hear your news Essgirl.:)
Thought I'd ask what you think about this, I'm afraid it might be a long story! The reason I was diagnosed with a ? FNH / Adenoma is that I was admitted to hospital in May with chest pains- all tests on my heart were fine but they saw the lesion on CT scan at that time. I was then referred on to a gastro enterologist who did gastroscopy and found hiatus hernia, helicobacter and inflammation. Treated for helicobacter and referred on to the hepatologist who has told me to wait a year for further CT scan to review liver lesion. This weekend the symptoms that I had back in May returned with a vengeance - out of hours doctor wanted me to get an ambulance to hospital but I refused as I know its not my heart. Went to see General practitioner yesterday morning and they promptly put me in an ambulance back to A&E where they did all the tests on my heart and told me my heart was fine and sent me on my way (what a waste of time and NHS money). Anyway I am now back to just having aches again in my chest and ribs, could this all be my liver? the pain when it is severe is in the centre of my chest behind the sternum and slightly to the left (hence the query on my heart). Its definitely not muscles and feels like its inside the chest cavity.
Another thing is while I was at the GP's surgery I was able to see some blood results- apart from raised cholesterol there was also raised Plasma Globulin, from what I can find out this is a protein created by the liver? therefore my liver blood results are not normal - I was led to believe that they were normal.
Anyhow I've called up the gastro doctors secretary and have made an appointment to see him which might shed some light on all of this , what do you all think?
Thought I'd ask what you think about this, I'm afraid it might be a long story! The reason I was diagnosed with a ? FNH / Adenoma is that I was admitted to hospital in May with chest pains- all tests on my heart were fine but they saw the lesion on CT scan at that time. I was then referred on to a gastro enterologist who did gastroscopy and found hiatus hernia, helicobacter and inflammation. Treated for helicobacter and referred on to the hepatologist who has told me to wait a year for further CT scan to review liver lesion. This weekend the symptoms that I had back in May returned with a vengeance - out of hours doctor wanted me to get an ambulance to hospital but I refused as I know its not my heart. Went to see General practitioner yesterday morning and they promptly put me in an ambulance back to A&E where they did all the tests on my heart and told me my heart was fine and sent me on my way (what a waste of time and NHS money). Anyway I am now back to just having aches again in my chest and ribs, could this all be my liver? the pain when it is severe is in the centre of my chest behind the sternum and slightly to the left (hence the query on my heart). Its definitely not muscles and feels like its inside the chest cavity.
Another thing is while I was at the GP's surgery I was able to see some blood results- apart from raised cholesterol there was also raised Plasma Globulin, from what I can find out this is a protein created by the liver? therefore my liver blood results are not normal - I was led to believe that they were normal.
Anyhow I've called up the gastro doctors secretary and have made an appointment to see him which might shed some light on all of this , what do you all think?
LindaG40
10-21-2008, 12:43 PM
McRegnal87,
I've had some strange chest pain lately too, and I believe it is related to my liver. The pain is to the left of my sternum, just under my breast. Sometimes it is hard to breathe, so I just try to relax and take shorter breaths until it goes away. When I had my follow-up CT done on Oct 1, they also did a scan of my chest, and everything looked good there, so that's why I think it's related to my liver. I did mention the pain to my hepatologist, and he said that it's most likely due to the location of the adenoma on the left side of my liver.
I'm curious to hear what your doctor has to say, so please post as soon as you have more answers!
Linda:cool:
I've had some strange chest pain lately too, and I believe it is related to my liver. The pain is to the left of my sternum, just under my breast. Sometimes it is hard to breathe, so I just try to relax and take shorter breaths until it goes away. When I had my follow-up CT done on Oct 1, they also did a scan of my chest, and everything looked good there, so that's why I think it's related to my liver. I did mention the pain to my hepatologist, and he said that it's most likely due to the location of the adenoma on the left side of my liver.
I'm curious to hear what your doctor has to say, so please post as soon as you have more answers!
Linda:cool:
nessie1
10-21-2008, 02:50 PM
firstly essgirl!! im so glad for you hun - what fab news - no chemo either. i have been thinking about you lots and i am just so happy -please dont return to work just yet and enjoy the rest - there is no rush. i will have a little drinky this weekend when im out to celebrate for you !!
Mc regnal and linda - hey guys- well how wierd you have the same symptoms- i too had chest pain but in the centre of the sternum . i have not had it since surgery. please keep us updated about what the docs say. linda - hows the love life hun?? you need to come and see me so we can go out together LOL!!!
all my other angels - hope you are all ok - no new news from me
take care x x
Mc regnal and linda - hey guys- well how wierd you have the same symptoms- i too had chest pain but in the centre of the sternum . i have not had it since surgery. please keep us updated about what the docs say. linda - hows the love life hun?? you need to come and see me so we can go out together LOL!!!
all my other angels - hope you are all ok - no new news from me
take care x x
kt8889
10-22-2008, 12:58 PM
Hello to all my lovely friends out there..
Essgirl, I was so happy to read your post! :angel: You have an angel watching over you my dear. It sounds like you have a good team of doctors keeping a close eye on you, so I think you are going to be just fine. Try to enjoy your time off. I know it can get boring, but just take it for what it is. If you lived here in the states, you might have to jump right back into work, so rest and take good care of yourself. You have been in my prayers and will continue to be!
Linda, you are in my prayers too hon. :angel: I like that your doctor listens to your pains and thinks they are due to your tumors. So many of us had doctors say that our tumors should not cause the pain. Keep taking care of yourself! Any new dates lately? We would love to hear about them. :D
McRegnal, I found my tumor from my liver enzymes not being "normal". Thank goodness I have a GP that jumped and got me in for an ultrasound. I think anything it possible with liver tumors, it is a major organ. Hugs to you!
Kristin, My surgeon said the same to me about not having to go back to him as long as I never take hormones When you do get pregnant, have your ultrasound tech check your liver also to help keep an eye on things. It would not hurt.
Nessie, Neens, Tina, Beth (miss you!), Arlyn, Juliet and any of you that I am forgeting right now, hugs to you!
:wave:
Katie
Essgirl, I was so happy to read your post! :angel: You have an angel watching over you my dear. It sounds like you have a good team of doctors keeping a close eye on you, so I think you are going to be just fine. Try to enjoy your time off. I know it can get boring, but just take it for what it is. If you lived here in the states, you might have to jump right back into work, so rest and take good care of yourself. You have been in my prayers and will continue to be!
Linda, you are in my prayers too hon. :angel: I like that your doctor listens to your pains and thinks they are due to your tumors. So many of us had doctors say that our tumors should not cause the pain. Keep taking care of yourself! Any new dates lately? We would love to hear about them. :D
McRegnal, I found my tumor from my liver enzymes not being "normal". Thank goodness I have a GP that jumped and got me in for an ultrasound. I think anything it possible with liver tumors, it is a major organ. Hugs to you!
Kristin, My surgeon said the same to me about not having to go back to him as long as I never take hormones When you do get pregnant, have your ultrasound tech check your liver also to help keep an eye on things. It would not hurt.
Nessie, Neens, Tina, Beth (miss you!), Arlyn, Juliet and any of you that I am forgeting right now, hugs to you!
:wave:
Katie
sibo
10-22-2008, 02:30 PM
McRegnal87,
I am one of the regulars who reads most of the time and writes a little here and there. I've been closely following the threads since April as I had the exact same problem you had. it all started with strange chest pain and lots of panic by the doctors, immediate hearth scans, stress tests and CAT scan which showed only a lesion on my liver. You name it I had it, MRIs, Ultrasounds,biopsies several opinions. Even they found my gallbladder is not working. (I had the GB surgery 12 days ago and doing just fine). The doctors find it strange that I'd have a chest pain due to this liver tumor (mine is not identified, they cannot tell what type of tumor it is-biopsy showed no cancer cells)They claim it has nothing to do with it. Strangely enough my tumor is on the right lobe deep in the liver. Kind of far away from the heart to cause pressure. But here I am with occasional chest pain. So I am not sure what to tell you but I think we know our bodies better than the doctors, and we know when our body is trying to tell something to us. I think we should all listen to it even though the doctors think that we are just a little out of it.
essgirl,
I lost my mom to BC too. a very long story. But try not to concentrate into the past, and the word "C". The best medicine is being optimistic, and trying to enjoy your life and kids to the most extend. Within the last few months I had 2 biopsies, one of course the liver but suddenly they found a lump on my breast and immediately biopsied it. Well I was lucky, and still am I guess. This group of people over here are unbleivable. Everyone will be here for each other. Concentrate on your self and the future...hopefully we will hear more great news!!!
See you guys later...
sibo
I am one of the regulars who reads most of the time and writes a little here and there. I've been closely following the threads since April as I had the exact same problem you had. it all started with strange chest pain and lots of panic by the doctors, immediate hearth scans, stress tests and CAT scan which showed only a lesion on my liver. You name it I had it, MRIs, Ultrasounds,biopsies several opinions. Even they found my gallbladder is not working. (I had the GB surgery 12 days ago and doing just fine). The doctors find it strange that I'd have a chest pain due to this liver tumor (mine is not identified, they cannot tell what type of tumor it is-biopsy showed no cancer cells)They claim it has nothing to do with it. Strangely enough my tumor is on the right lobe deep in the liver. Kind of far away from the heart to cause pressure. But here I am with occasional chest pain. So I am not sure what to tell you but I think we know our bodies better than the doctors, and we know when our body is trying to tell something to us. I think we should all listen to it even though the doctors think that we are just a little out of it.
essgirl,
I lost my mom to BC too. a very long story. But try not to concentrate into the past, and the word "C". The best medicine is being optimistic, and trying to enjoy your life and kids to the most extend. Within the last few months I had 2 biopsies, one of course the liver but suddenly they found a lump on my breast and immediately biopsied it. Well I was lucky, and still am I guess. This group of people over here are unbleivable. Everyone will be here for each other. Concentrate on your self and the future...hopefully we will hear more great news!!!
See you guys later...
sibo
McRegnal87
10-25-2008, 04:28 AM
Hi folks
a quick update. When I was in the ambulance and the hospital the other day they noted that I had low Oxygen levels, nothing too dramatic 93-94% should be 98%, they did blood gases and told me I could go home. Yesterday GP called me to say that hospital recommended a referral to a respiratory specialist, this is all getting a bit ridiculous. Just a thought- if my blood is faulty in some way perhaps that is not carrying oxygen properly and as I already have a known liver lesion perhaps this is the cause? She felt that I didnt need to see gastro doctor but wouldn't stop me, my appt is on Monday with him. I just feel that medicine is all a bit disjointed- you see a specialist for this and another one for that and no-one joins up the dots. Any one else experienced this ? Sorry for the rant, husband getting a bit fed up with it all
Mc:(
a quick update. When I was in the ambulance and the hospital the other day they noted that I had low Oxygen levels, nothing too dramatic 93-94% should be 98%, they did blood gases and told me I could go home. Yesterday GP called me to say that hospital recommended a referral to a respiratory specialist, this is all getting a bit ridiculous. Just a thought- if my blood is faulty in some way perhaps that is not carrying oxygen properly and as I already have a known liver lesion perhaps this is the cause? She felt that I didnt need to see gastro doctor but wouldn't stop me, my appt is on Monday with him. I just feel that medicine is all a bit disjointed- you see a specialist for this and another one for that and no-one joins up the dots. Any one else experienced this ? Sorry for the rant, husband getting a bit fed up with it all
Mc:(
nessie1
10-26-2008, 08:52 AM
hello my loves- hope you are all ok out there, thinking of you all. I went out last night and had a drink for everyone of you i think!! didnt get to sleep til 6am this morn!!!! sooooooooooooo tired now!!!
mc- it sounds like you are being pushed from pillar to post hun! i really feel for you - the constant strain has an effect i know. Let us know how you get on . how big are your tumors? and where are they located?
sibo - lovely to hear from you again - keep in touch
anyway hope you all had a lovely weekend
take care all x x
mc- it sounds like you are being pushed from pillar to post hun! i really feel for you - the constant strain has an effect i know. Let us know how you get on . how big are your tumors? and where are they located?
sibo - lovely to hear from you again - keep in touch
anyway hope you all had a lovely weekend
take care all x x
McRegnal87
10-27-2008, 07:46 PM
Saw my gastro dr today and he is sending me for a breath test for helicobacter- just in case the antibiotics didn't work the first time. He says the pain I get could well be the hiatus hernia and if I lost weight it would probably get better- hmmmph! I will try although I hate dieting, I'm not obese but could do with losing some weight:(. The liver lesion is about 4cm in size and hepatologist is just going to watch it. So that's me for the moment, hope you're all feeling good
Mc
Mc
granolawife
10-29-2008, 03:26 PM
hi all...
i am back from vacation and back to reality... hope everyone is doing well. i am going to catch up on the posts shortly.
FYI - i am going to start a "pregnancy after liver resection/tumors" thread for anyone that's interested!
talk soon! :)
i am back from vacation and back to reality... hope everyone is doing well. i am going to catch up on the posts shortly.
FYI - i am going to start a "pregnancy after liver resection/tumors" thread for anyone that's interested!
talk soon! :)
nessie1
11-02-2008, 11:16 AM
hi there
sorry i have not been on for a few days .
mc- hope you get on ok my love
arlyn - glad you had a fab hols - good luck with the baby making.
well its been a hard week. me and hubby have decided its the end of the road. im so sad. i never thought my life would go down this route. i still deep down love him and cant imagine life without him in it but he has issues which he cannot control and i cant live with them anymore. he knows that he will never change, councelling hasnt helped and we just need to face facts. he knows he cant keep hurting me the way he does. we will still live together until we can sell the house -which may be a while due to the current housing crisis- but we will have to get along for the sake of our son. We are good friends and are going to the cinema in a minute together to watch the new Bond film . As crazy as it sounds if i hadnt have had the operation this year i would probably have continued to put up with his behaviour, but now i know how precious life is and i cannot tolerate being unhappy. who knows whats around the corner. I know its over the top but facing "death" has changed me. It going to be a very hard few months to come and many tears will be shed but we will all be happier in the end. As long as our son knows we love him very much and mummy and daddy can still be friends thats great. We would even like to still do things together in the future and i hope we can.
Anyway take care all. its a year next weekend that i found my "lump". Gos so much has happened in that year.
Luv you all x x
sorry i have not been on for a few days .
mc- hope you get on ok my love
arlyn - glad you had a fab hols - good luck with the baby making.
well its been a hard week. me and hubby have decided its the end of the road. im so sad. i never thought my life would go down this route. i still deep down love him and cant imagine life without him in it but he has issues which he cannot control and i cant live with them anymore. he knows that he will never change, councelling hasnt helped and we just need to face facts. he knows he cant keep hurting me the way he does. we will still live together until we can sell the house -which may be a while due to the current housing crisis- but we will have to get along for the sake of our son. We are good friends and are going to the cinema in a minute together to watch the new Bond film . As crazy as it sounds if i hadnt have had the operation this year i would probably have continued to put up with his behaviour, but now i know how precious life is and i cannot tolerate being unhappy. who knows whats around the corner. I know its over the top but facing "death" has changed me. It going to be a very hard few months to come and many tears will be shed but we will all be happier in the end. As long as our son knows we love him very much and mummy and daddy can still be friends thats great. We would even like to still do things together in the future and i hope we can.
Anyway take care all. its a year next weekend that i found my "lump". Gos so much has happened in that year.
Luv you all x x
tinyt3
11-03-2008, 12:22 AM
Nessie,
Sorry to hear about things with your husband but I understand where you are coming from. My daughter is home after running away for ten days. She is finally get some help from a new doctor and I am getting help in dealing with it all. Since my surgery end of June, I get tired easily and I even told everyone that I was not hosting the holidays this year. My husband thinks I should be fine after this long and does not have any sympathy left. We are hanging by a thread as well. My shoulder pain is back and I am getting tired of doctors acting like I am just fine. It is my body. Otherwise I feel pretty good for such a big surgery. My inscision is dry and cracking at the top. It is sore but I keep putting vitamin E oil on it. Anyone else know something better? Hang in there Nessie and know I am here for you. You were such a big help to me.
Hello to Arlyn, Neens, Beth, Katie, Linda, Stacey, Juliet, and all the new gals!
Best wishes to all of you!
TinyT3
Sorry to hear about things with your husband but I understand where you are coming from. My daughter is home after running away for ten days. She is finally get some help from a new doctor and I am getting help in dealing with it all. Since my surgery end of June, I get tired easily and I even told everyone that I was not hosting the holidays this year. My husband thinks I should be fine after this long and does not have any sympathy left. We are hanging by a thread as well. My shoulder pain is back and I am getting tired of doctors acting like I am just fine. It is my body. Otherwise I feel pretty good for such a big surgery. My inscision is dry and cracking at the top. It is sore but I keep putting vitamin E oil on it. Anyone else know something better? Hang in there Nessie and know I am here for you. You were such a big help to me.
Hello to Arlyn, Neens, Beth, Katie, Linda, Stacey, Juliet, and all the new gals!
Best wishes to all of you!
TinyT3
McRegnal87
11-03-2008, 05:34 AM
Sorry to hear about all your problems Nessie and Tiny, life never runs smoothly really does it, but life threatening situations definitely make you take stock of what's important, so maybe there is a silver lining?
I just wanted to ask about blood tests that you have had re the liver lesions?
I am going to the hospital tomorrow for this breath test for the helicobacter in stomach and at the same time I will ask about the blood test results that the gastro dr had done earlier in the year. At that time he just said all was normal other than raised cholesterol. I want to see if he did alpha feto protein as well as the liver function tests. I'm pretty sure that the liver function ones were done and came back normal but not so sure he did AFP and if not, why not? :eek:I still think this low oxygen level is something to do with the liver and I want to make sure that they have tested everything they should have. Do you know of any other blood tests they could have done to determine the identity of my tumor? Thanks for your help and support
Mc
I just wanted to ask about blood tests that you have had re the liver lesions?
I am going to the hospital tomorrow for this breath test for the helicobacter in stomach and at the same time I will ask about the blood test results that the gastro dr had done earlier in the year. At that time he just said all was normal other than raised cholesterol. I want to see if he did alpha feto protein as well as the liver function tests. I'm pretty sure that the liver function ones were done and came back normal but not so sure he did AFP and if not, why not? :eek:I still think this low oxygen level is something to do with the liver and I want to make sure that they have tested everything they should have. Do you know of any other blood tests they could have done to determine the identity of my tumor? Thanks for your help and support
Mc
kt8889
11-03-2008, 09:46 AM
My dear friend Nessie, you are in my prayers. I am a divorced women, and I know it is not easy, but I know I am a stronger person from it. I have been divorced for 11 years now. During the first 12-18 months that you are on your own, become your own best friend. When you enjoy staying in by yourself or even going to a movie by yourself, you will know you are ready to date again. You are going to go through a major transformation within yourself and you need to morn the "death" of your marriage. Please let me know if I can help you in any way. I am here for you hon!
Mc, I just had all the normal blood work done with my doctors. Keep asking questions!
Tina, hang in there hon. You know that life has ups and downs. I started drinking coffee for the first time in my life to give me the extra boost to keep me going. I know we all understand the tiredness you are feeling, so take care of yourself.
Arlyn, I am so happy for you and your hubby! I can't wait to hear the good news! I have so many friends around me having babies right now so I am going to pass some of that good karma your way.:D
Linda, Beth, Neens, Juliet, Stacey, Patricia and all of the other wonderful ladies, big hugs to you!
:wave:
Katie
Mc, I just had all the normal blood work done with my doctors. Keep asking questions!
Tina, hang in there hon. You know that life has ups and downs. I started drinking coffee for the first time in my life to give me the extra boost to keep me going. I know we all understand the tiredness you are feeling, so take care of yourself.
Arlyn, I am so happy for you and your hubby! I can't wait to hear the good news! I have so many friends around me having babies right now so I am going to pass some of that good karma your way.:D
Linda, Beth, Neens, Juliet, Stacey, Patricia and all of the other wonderful ladies, big hugs to you!
:wave:
Katie
granolawife
11-03-2008, 09:02 PM
wow, Nessie, I am sorry to hear your news. i do know what you mean about the surgery really making you re-evaluate your life and where you are and where you want to go. i am sure that it is going to be a rough road ahead, and life is going to be much different than what you've known for a while, but it's certainly not worth staying in a relationship that is not fulfilling for you. Life is too short, as we've all come to realize. You have many many (many many!) happy chapters to look forward to...this is the first step towards those.
:) Hugs
:) Hugs
granolawife
11-03-2008, 09:07 PM
Tiny, I am sorry to hear you are still having a hard time... sounds like you are doing what you have to do and taking one day at a time. b/t/w, I am using a product called "kelo-cote" that is working very well on my scar. Keeps it protected and moisturized and has helped with the itchiness I was getting. It's helping with the keloiding i have also been getting. I bought mine on ebay, but not sure if they carry it in the drugstore..? you can get a small tube on ebay for $10 to try it i think...
hugs!
hugs!
kathryn38
11-03-2008, 10:20 PM
Hi everybody and all of you who are helping those like me, new to this and a little unnerved by it all. Katie suggested that I go to a larger area for surgery. Today I called a surgery center in Fort Collins Colorado, and they said since my hemangiomas are both over 10 cm, they would refer me to Denver anyway. So I called my doc and gave him the number for a referral to the University Hospital. So I will patiently await a call back. I don't know if you guys know Wyoming, but if Ft. Collins would have referred, then I doubt any town in Wyoming could do it. This place in Denver deals with livers so I feel better and much much more safe.
so what is the difference between a hemangioma and a adenoma? Any clue if they could remove mine laproscopically or are they too big?
Thanks,
Kathryn
so what is the difference between a hemangioma and a adenoma? Any clue if they could remove mine laproscopically or are they too big?
Thanks,
Kathryn
kt8889
11-04-2008, 12:26 AM
Hi Kathryn, Neens can answer the question best about the difference between the two tumors.
As far as laproscopic surgery, it will be up to your surgeon, but it sounds like you are going to the best place. I had my 9 cm. Adenoma removed hand assisted laproscopically, but it was in just the right place to have that happen. I think I am one of the only ladies on here to have it done that way. We will keep our fingers crossed for you!
I am glad you made the call for a larger hospital, it might seem like a pain, but I know you will be in better hands then a small hospital.
Hugs to you,
Katie
As far as laproscopic surgery, it will be up to your surgeon, but it sounds like you are going to the best place. I had my 9 cm. Adenoma removed hand assisted laproscopically, but it was in just the right place to have that happen. I think I am one of the only ladies on here to have it done that way. We will keep our fingers crossed for you!
I am glad you made the call for a larger hospital, it might seem like a pain, but I know you will be in better hands then a small hospital.
Hugs to you,
Katie
granolawife
11-05-2008, 10:14 PM
Hey everybody...
Bummed out today. Apparently I have what appears to be an abscess deep in my abdominal wall muscle beneath the incision. I have been having progressively worse pain and finally got an ultrasound today and discovered it. Waiting on my surgeon's opinion on what we are going to do about it...
:(
Bummed out today. Apparently I have what appears to be an abscess deep in my abdominal wall muscle beneath the incision. I have been having progressively worse pain and finally got an ultrasound today and discovered it. Waiting on my surgeon's opinion on what we are going to do about it...
:(
kathryn38
11-06-2008, 01:05 AM
Hi,
could this be from your surgery then? Are you running any fevers?
kathryn
could this be from your surgery then? Are you running any fevers?
kathryn
granolawife
11-06-2008, 10:17 AM
hi,
yes, it's from the surgery. i am fedexing my films/CD to my surgeon so he can see them as i am an out of state patient for him. he is out of town at a conference until monday, so i guess i won't have a game plan until then.
i am 5 months out from (open) surgery b/t/w...i am surprised that anything could go wrong at this juncture, although i have been ignoring pain for a while. thought i was just working out too hard!
will keep you guys posted...
xx
yes, it's from the surgery. i am fedexing my films/CD to my surgeon so he can see them as i am an out of state patient for him. he is out of town at a conference until monday, so i guess i won't have a game plan until then.
i am 5 months out from (open) surgery b/t/w...i am surprised that anything could go wrong at this juncture, although i have been ignoring pain for a while. thought i was just working out too hard!
will keep you guys posted...
xx
tinyt3
11-06-2008, 08:24 PM
Arlyn,
This is not welcome news to me. I am so sorry you are going through this. When I went back in with pain a week after my surgery they said if it was an abcess then they would drain it. I assume that could be quite uncomfortable. I will be saying prayers for you. Hope the pain subsides while you are waiting on the doctor. Know you are among friends.
TinyT
This is not welcome news to me. I am so sorry you are going through this. When I went back in with pain a week after my surgery they said if it was an abcess then they would drain it. I assume that could be quite uncomfortable. I will be saying prayers for you. Hope the pain subsides while you are waiting on the doctor. Know you are among friends.
TinyT
granolawife
11-07-2008, 02:52 PM
Thanks tt...
cailea
11-08-2008, 08:37 AM
Hi all,
First off I am so sorry for taking such a leave of absence, no excuses, just the usual, life thing.
Secondly....OMG....i can't believe what has been going on! essgirl, I don;t think we ever "met" but my thoughts are with you, I cannot even imagine the fear and devastation of receiving your news (i know we all feared it) but your strength and determination and beautiful spirit is shining through in all your post. If there is anything I can do or say.....
Nessie *huggs*, the end of the relationship is horrific and you fought so hard to hang in there. I completely understand what you mean about this experience changing you, my life has turned upside down in the last 6 months too, some for the better and some for the worse!
Arlyn, sounds like you are going through the ringer...not what you need in the midst of baby (:)) plans! *huggs*
I am going to go back and keep reading.....I have missed so much....
Love to you all.....nessie, kt, essgirl, linda, neens, arlyn, beth, tiny......
cailea
x
P.S. Summer is almost here in the Land Down Under..that's something to smile about :)
First off I am so sorry for taking such a leave of absence, no excuses, just the usual, life thing.
Secondly....OMG....i can't believe what has been going on! essgirl, I don;t think we ever "met" but my thoughts are with you, I cannot even imagine the fear and devastation of receiving your news (i know we all feared it) but your strength and determination and beautiful spirit is shining through in all your post. If there is anything I can do or say.....
Nessie *huggs*, the end of the relationship is horrific and you fought so hard to hang in there. I completely understand what you mean about this experience changing you, my life has turned upside down in the last 6 months too, some for the better and some for the worse!
Arlyn, sounds like you are going through the ringer...not what you need in the midst of baby (:)) plans! *huggs*
I am going to go back and keep reading.....I have missed so much....
Love to you all.....nessie, kt, essgirl, linda, neens, arlyn, beth, tiny......
cailea
x
P.S. Summer is almost here in the Land Down Under..that's something to smile about :)
nessie1
11-08-2008, 09:56 AM
hi
arlyn-oh my gosh - how are you hun? heard anything back yet ?? poor you -as if you havent been thru enough.
cailea -g'day hun! so lovely to hear from you . have you heard from juliet ??? i really miss her . im glad you are ok and summer is coming!
thanks for the well wishes all. tina - hope you are doing ok? hows your marriage?
im ok. its been a tough week. got the estate agents coming around to value the property. what with the credit crunch we have probably lost a lot. My hubby wants to get help. he has stopped drinking and will seek more councelling for the jealousy thing - but does a leopard ever change his spots?? - who knows. He is desperate for me to stay with him. He cries lots and i feel so sorry for him, maybe once the house is sold and gets his act together i will feel differently. But at the moment my barriers are up. I need to think of myself and i know if i sweep this eppisode under the carpet i may as well write "muppet" on my forehead. I truly believe this time he wants to change. but is it too late ??
It such a shame cos he is such a nice bloke. everyone likes him, but lurking underneath is a horrible person especially when he drinks. I think i have been hurt too many times now. It really awkward also because we work in the same building. The managers know whats going on and its very embarrasing as this time he has accused me of doing something with someone at work! God im so not like that and i cant be doing with the accusations any more. He has pushed me away. I wish i could wave a majic wand and it all be ok.
Anyway sorry to go on -again!!
take care
me x
arlyn-oh my gosh - how are you hun? heard anything back yet ?? poor you -as if you havent been thru enough.
cailea -g'day hun! so lovely to hear from you . have you heard from juliet ??? i really miss her . im glad you are ok and summer is coming!
thanks for the well wishes all. tina - hope you are doing ok? hows your marriage?
im ok. its been a tough week. got the estate agents coming around to value the property. what with the credit crunch we have probably lost a lot. My hubby wants to get help. he has stopped drinking and will seek more councelling for the jealousy thing - but does a leopard ever change his spots?? - who knows. He is desperate for me to stay with him. He cries lots and i feel so sorry for him, maybe once the house is sold and gets his act together i will feel differently. But at the moment my barriers are up. I need to think of myself and i know if i sweep this eppisode under the carpet i may as well write "muppet" on my forehead. I truly believe this time he wants to change. but is it too late ??
It such a shame cos he is such a nice bloke. everyone likes him, but lurking underneath is a horrible person especially when he drinks. I think i have been hurt too many times now. It really awkward also because we work in the same building. The managers know whats going on and its very embarrasing as this time he has accused me of doing something with someone at work! God im so not like that and i cant be doing with the accusations any more. He has pushed me away. I wish i could wave a majic wand and it all be ok.
Anyway sorry to go on -again!!
take care
me x
tinyt3
11-08-2008, 10:51 AM
Nessie,
So sorry to hear your struggles and sometimes the damage is just done. However, only you can decide what you feel is right. People at work need to mind their own business as it is not their place to judge. We are all here for you and as for my marriage it is rocky but we are trying. The holidays and our finances are putting a big strain on us. As far as surgery I still have terrible pain in my shoulders which I think is from the surgery but of course they say no. Anyway I am doing okay and feel blessed to be here. I am thinking of you and sending some happy wishes your way.
Caelia, So good to hear from you! Glad you checked back in with us.
Arlyn, Thinking of you today and hoping you are doing okay.
TinyT3
So sorry to hear your struggles and sometimes the damage is just done. However, only you can decide what you feel is right. People at work need to mind their own business as it is not their place to judge. We are all here for you and as for my marriage it is rocky but we are trying. The holidays and our finances are putting a big strain on us. As far as surgery I still have terrible pain in my shoulders which I think is from the surgery but of course they say no. Anyway I am doing okay and feel blessed to be here. I am thinking of you and sending some happy wishes your way.
Caelia, So good to hear from you! Glad you checked back in with us.
Arlyn, Thinking of you today and hoping you are doing okay.
TinyT3
cailea
11-09-2008, 12:54 AM
nessie,
nothing from Juilet I'm afraid. I will mail her a card at Xmas and let her know she is missed and we all think of her.
Hang in there babe, do what is best for you...always.
xx
nothing from Juilet I'm afraid. I will mail her a card at Xmas and let her know she is missed and we all think of her.
Hang in there babe, do what is best for you...always.
xx
granolawife
11-10-2008, 11:24 AM
hi alll...
waiting waiting waiting for my surgeon to review my ultrasound films. he is back in town today, so i am sure i will hear from him.
BUT, I have had a few positive pregnancy tests (YAY!!!) :D over the weekend! Way too early to know how that will pan out, but my husband and I are "cautiously" thrilled!!!
Of course, now I am worried about how that will complicate this whole issue that I am having with the abscess/whatever it may be. Still having lots of pain when moving, coughing, sneezing, etc. and now I can't have a CT scan done...:(
Hugs out to you Nessie...and to you as well Tiny...
Thanks to you guys for your encouraging words...they REALLY help!!!
Cailea, so good to hear from you!
waiting waiting waiting for my surgeon to review my ultrasound films. he is back in town today, so i am sure i will hear from him.
BUT, I have had a few positive pregnancy tests (YAY!!!) :D over the weekend! Way too early to know how that will pan out, but my husband and I are "cautiously" thrilled!!!
Of course, now I am worried about how that will complicate this whole issue that I am having with the abscess/whatever it may be. Still having lots of pain when moving, coughing, sneezing, etc. and now I can't have a CT scan done...:(
Hugs out to you Nessie...and to you as well Tiny...
Thanks to you guys for your encouraging words...they REALLY help!!!
Cailea, so good to hear from you!
neens7982
11-10-2008, 10:54 PM
Arlyn!!! Congrats on the baby news! I am so excited for you! I hope they get the abcess thing figured out!! I'm sure all will be fine. Now we have someone to "officially" start the pregnancy blog! Yay! Please keep us posted on the news from the doc. You'll be in my thoughts!
Caliea, it is sooo good to hear from you! Glad things are going well!
Nessie, I'm sorry to hear about your troubles! But hey, with every sunset there is a sunrise my sweet girl! You stay positive and hang in there! Let us know if you need anything!
xox
Caliea, it is sooo good to hear from you! Glad things are going well!
Nessie, I'm sorry to hear about your troubles! But hey, with every sunset there is a sunrise my sweet girl! You stay positive and hang in there! Let us know if you need anything!
xox
granolawife
11-11-2008, 01:05 AM
hi...so spoke with my surgeon today and i am a little freaked out. he said that we should do nothing for now as he doesn't think it's infected, only fluid build-up around a stitch that is irritated and has inflamed the tissue around it. he said if it gets bigger then we will drain it, but sometimes the body takes care of it itself...but he said it could linger on for quite a while. the problem is it HURTS and i am VERY VERY nervous about being pregnant and my abdomen growing larger as i don't want any more pain than i'm in right now! i don't know what the options are if draining it does not work. i don't think you can do surgery when pregnant?!
:( BUMMED OUT...sorry to be a drag...hoping a good night's sleep helps!
:( BUMMED OUT...sorry to be a drag...hoping a good night's sleep helps!
kt8889
11-11-2008, 11:18 AM
Hey Arlyn, hang in there hon. Keep on your surgeon if the pain continues. You have 4-5 months before your will start showing, so you have a little time to work with. Did you tell your surgeon you think you are pregnant? If not, give him a call ASAP, that might change his tune.
Nessie, as always, you are in my prayers love! I understand everything you are going through and neens is right, there is a wonderful sunrise after all this.
Cailea, hugs to you! So glad you checked back in with us. Would you please send your warm weather back up here, it is cold and gray already. :eek: I might have to pack up and show up at Arlyn house, I hate cold weather.
Tiny, hang in there hon. I know I always carry my stress in my shoulders and it feels like a dull pain. Maybe you could try some deep breathing to relieve some of that. Hugs to you.
I think of all of you every day! I might not post as much, but I still read every day and you are in my prayers.
With love, Katie
Nessie, as always, you are in my prayers love! I understand everything you are going through and neens is right, there is a wonderful sunrise after all this.
Cailea, hugs to you! So glad you checked back in with us. Would you please send your warm weather back up here, it is cold and gray already. :eek: I might have to pack up and show up at Arlyn house, I hate cold weather.
Tiny, hang in there hon. I know I always carry my stress in my shoulders and it feels like a dull pain. Maybe you could try some deep breathing to relieve some of that. Hugs to you.
I think of all of you every day! I might not post as much, but I still read every day and you are in my prayers.
With love, Katie
nessie1
11-11-2008, 03:28 PM
arlyn- oh im sooooo happy for you - but tell your surgeon about ur pain my love- thats no good. like katie said you have a few months yet but you need to get it sorted. gosh im so happy for you!!!
thanks for all ur well wishes - its bloody freezing here!
just had estate agents round - not good news - prices are pants! we need to re look at what we are gonna do as we cant afford to live here on our own. im so confused. i want to believe he will change. The operation has screwed my head up. i just cant be doing with the stress anymore. i just want to be happy. how can i ever trust that my hubby will never have a "funny" again. how will he ever get over his jeolousy? he has nothing to be jealous about? will he ever change? - sorry im ranting - just feel trapped. Dont know what to do. if we put the house on the market and it doesnt sell then it drops price by 2% every month - before you know it thats another 10K.
what if we cant sell - we are stuck- all good if we decide to get along - but what if we cant?
me x
thanks for all ur well wishes - its bloody freezing here!
just had estate agents round - not good news - prices are pants! we need to re look at what we are gonna do as we cant afford to live here on our own. im so confused. i want to believe he will change. The operation has screwed my head up. i just cant be doing with the stress anymore. i just want to be happy. how can i ever trust that my hubby will never have a "funny" again. how will he ever get over his jeolousy? he has nothing to be jealous about? will he ever change? - sorry im ranting - just feel trapped. Dont know what to do. if we put the house on the market and it doesnt sell then it drops price by 2% every month - before you know it thats another 10K.
what if we cant sell - we are stuck- all good if we decide to get along - but what if we cant?
me x
kt8889
11-11-2008, 03:58 PM
Nessie, my heart goes out to you. I know how this market sucks so bad. You are forced to reconsider decisions because of money. I believe things happen for a reason, so no matter what you do, you will be stronger from it and hopefully you learn from it. I know I learned so much about myself and relationships from my divorce and it was a big ordeal. We all went through a life changing experience this year. We are better people from it and we are sticking around to help other women.
You are such a wonderful, strong women. We all believe in you and things will work out for the best. Take a deep breath and know we are here for you.
Hugs to you,
Katie
You are such a wonderful, strong women. We all believe in you and things will work out for the best. Take a deep breath and know we are here for you.
Hugs to you,
Katie
kristin11
11-12-2008, 10:33 AM
Ladies..I hope everyone is having an okay week, I am thinking of everyone..Question for you..How many months did it take for everyone to feel 'back to normal'. I am 2 months out, and after a long day of work and everyday life, I am sometimes really really sore and just achy feeling....Just wondered how everyone else felt..xoxo
kt8889
11-12-2008, 11:24 AM
Hi Kristin, I can only speak for myself, but at two months out and trying to have a "normal" day....your butt will feel like it got kicked! :D I think we all went through that, so you are so normal. All you can do is rest when you get a chance and don't clean your house ever again. haha Just kidding, but really, it is still important to take care of yourself, it took me six months to feel normal again and now I am hooked on coffee. There are worse things, right? ;)
Hugs to you,
Katie
Hugs to you,
Katie
granolawife
11-12-2008, 11:34 AM
kristin...katie is right. i didn't feel that great at 2 months out. certainly A LOT better than i had been feeling, but being 5 months out now, i realize that i wasn't near where i could be. keep resting and taking care of yourself. you will get there, i promise!!
katie, i became a coffee addict as well! haha i had to ween myself off the caffeine! i traded wine for coffee during that time -- one vice for another! :)
so...i did mention to my surgeon that i was pregnant when we spoke and i think that's why he is being so conservative and doing the "wait and see" approace for my abscess. i remain REALLY nervous about what that means if i carry this pregnancy to term, but i am trying to have faith that we will figure it out. the pain isn't getting worse, but it's certainly not going away. maybe my body will heal itself over the next few months??!! saying lots of prayers...
nessie & tiny - hugs out to you!
hi cailea!
really wish we knew something about juliet... :(
xx
katie, i became a coffee addict as well! haha i had to ween myself off the caffeine! i traded wine for coffee during that time -- one vice for another! :)
so...i did mention to my surgeon that i was pregnant when we spoke and i think that's why he is being so conservative and doing the "wait and see" approace for my abscess. i remain REALLY nervous about what that means if i carry this pregnancy to term, but i am trying to have faith that we will figure it out. the pain isn't getting worse, but it's certainly not going away. maybe my body will heal itself over the next few months??!! saying lots of prayers...
nessie & tiny - hugs out to you!
hi cailea!
really wish we knew something about juliet... :(
xx
nessie1
11-12-2008, 04:20 PM
OH MY I AM A COFFEE ADDICT ALSO!!
mocca. latte , cappi -any really!! how strange
kristin, yes two months out was still pretty tough. six months for me im afraid. i went back to work after 3.5 months and that was still tough . take it easy my love
thanks again for all your support - cried all day at work and to top it off my best favorite pair of boots broke today and my telly blew up!!! yay!!!
love you all
me x
mocca. latte , cappi -any really!! how strange
kristin, yes two months out was still pretty tough. six months for me im afraid. i went back to work after 3.5 months and that was still tough . take it easy my love
thanks again for all your support - cried all day at work and to top it off my best favorite pair of boots broke today and my telly blew up!!! yay!!!
love you all
me x
moderator2
11-12-2008, 05:28 PM
We need to limit threads to 80 posts or six months. Please feel free to start your own new threads.