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sonic
10-28-2008, 07:52 PM
I didnt really know what to make of this..just came from sons 3 month follow up hosp. visit. the dr mentioned when he had his MRI (6 months ago) they thought his kidneys looked "scarred" :confused: she also mentioned fibrosis.
It was really hard to understand her b/c of a heavy accent.:(

shes not sure if this caused the sudden HBP...or this is a result of the HBP.
i am very confused :confused: how serious is this?

quick background on son,,he is 20 was hospitalized due to blurry vision..they put him on 3-4 different meds to stabalize his high blood presure.
does this sound wierd?

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leea1206
10-30-2008, 03:49 PM
Sonic-

I would just make sure he is getting very good follow-up care with an excellent internist to keep BP under control. For someone so young to need 3-4 BP meds, is potentially serious.

High blood pressure is the 2nd leading cause of kidney disease, after diabetes, so it is very possible the scarring has something to do with BP.

writeleft
10-30-2008, 07:30 PM
Sonic,

Your son's experience does make some sense to me, as I have also experienced eye and kidney damage to Hypertension. My diagnosis is malignant hypertension, did anyone use that phrase about your son? Considering his young age and the combination of damage, it might fit.

When one is in a hypertensive state long enough, the high pressure starts injuring the tiniest capilaries in the body, which are on the retina, and in the kidneys. It's very dangerous, and worth attention.

The specialist that deals with this is a nephrologist.

I'm sorry I have to end this now, but it's dinner time. I will watch this thread and keep in touch with you through this, ok? It took me too long to get the proper diagnosis, so I am interested in your son's story, as you go through it. I wish you the best and I will share my experience with it as best as I can.

Your friend...

sonic
10-30-2008, 08:14 PM
wow, cant believe how little i know about this.

i appreciate the replys.
The drs never gave me an answer as to HY this has happened..im assuming its inherited? hubby had the same problem & still takes 2 different BP meds..he was also in his 20.s when it all began.

im worried about the damage to his kidneys? how can they tell how bad it is? &what will another MRI do?

writeleft
10-31-2008, 05:53 PM
Sonic,

I too, began my trip down the hypertension trail in my 20's. It remained unchecked, because I was young, otherwise healthy, active and had no medical issues that I sought medical attention for. By the time I was in my early 30's, the damage had begun. At 43, I had 4 strokes, kidney failure a heart attack, strokes on my retina's, and was practically dead.

It's now 5 years later, and I can only pray your son can get the proper treatment, and does not follow in my footsteps. There was never any specific cause for my condition either.

This is not meant to scare you, I promise. The good news is, it can be managed and the body will begin to recover as soon as the BP is controlled, and you stay with all the follow-up. I am now well enough to camp and ride motorcycles in the desert, and am back to life.

I would advise you to seek the help of a nephrologist, who specializes in the kidney. He/she will have the expertise to evaluate exactly what is going on, and manage his hypertension too. He/she can prescribe the medications that will best protect the kidneys, while keeping his BP in line.

Do you have a BP monitor at home? I wish you well, and want to keep in touch, ok? You are really doing the right thing by following your instincts, stay stong and God bless.

sonic
10-31-2008, 11:12 PM
wow...you have really been through alot! I am glad that we are finding this out NOW & not when its too late.

Ive never heard of a nephrologist..but will certainly look into it.

How did you find out you had hypertension? did you not get your BP taken regularly?

writeleft
11-02-2008, 05:35 PM
Sonic,

I think one big reason my BP got so high without detection is that it started almost 30 years ago, and the word was not yet out, like it is today. There is so much more information now, much better medication and treatment now. The intenet hadn't been discovered yet, making discussions like this with other patients from around the world impossible!

I had my first child at 24, in 1984. I did develop toxemia during my pregnancy, which included dangerous BP, but delivery brings it down, and I really didn't think about it again. A few years went by, and I stepped on a nail while volunteering at a park, so I went to the closest doctor's office and got a tetunus shot.

That's the day my BP was about 220/140, and I was sent directly to the hospitalized for over a week. I was young, never did really understand the whole thing, and wasn't ready to accept it. No one else knew what to do, so I kind of ignored the whole thing. THAT is the last thing I should have done, obviously...I just didn't know what was coming!

I don't want to drag this thing out, but thats how it started. I hope there is any little thing I can do for you, and will be happy to answer any questions you have. I commend you for taking control of this for your son. I'll check for your posts, and keep you in my thoughts.

:cool:





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