salty
11-01-2008, 04:49 PM
Hi everyone. I tested 35 on the Vit. D scale of 35-100. My dr. put me on 50,000 i u per week. I have been on this for 5 weeks and haven't noticed anything.
Has anyone experienced this?
I thought for sure I'd notice some difference somehow.
Thank you.
Salty
Has anyone experienced this?
I thought for sure I'd notice some difference somehow.
Thank you.
Salty
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AuntieLeela
11-01-2008, 11:32 PM
My vit D was 18, I was put on 50K IU twice a week and after two months my vit D level was 50, and I haven't notice any difference.
Hopefully my bones noticed the difference.;)
Hopefully my bones noticed the difference.;)
Nature Made
11-02-2008, 01:36 AM
I have been taking 1,000IU of Vitamin D for the past weeks, and I have not notice any difference, which will make sense. All the information I have found online suggest taking 1,000IU of Vitamin D for various of reasons, cancer prevention being the top reason, but they also stated that one will have take that amount for three years or so for any "decrease in various cancers". Vitamin D has been showed to prevent several types of cancer (i.e., colon cancer, etc) and other illnesses, but that is only after a long period use of at least 1,000IU of vitamin D.
You may not notice any changes, but your body is definitely feeling the changes ;)
We may not always notice any changes when using vitamins, minerals, and herbs (probably more energy or whatever).
Hope that helps!
You may not notice any changes, but your body is definitely feeling the changes ;)
We may not always notice any changes when using vitamins, minerals, and herbs (probably more energy or whatever).
Hope that helps!
salty
11-02-2008, 03:47 PM
Thank you AuntieLeela and Nature Made. You both made me feel better with your posts.
As long as it's helping my bones and body, that's what counts.
Thank you very much for writing and letting me know I'm not alone with not noticing any difference.
Salty
As long as it's helping my bones and body, that's what counts.
Thank you very much for writing and letting me know I'm not alone with not noticing any difference.
Salty
kellibear
11-06-2008, 03:02 PM
vit d is important, but can be toxic at high doses--how long does your dr. want you on that high dose? i take 400u everyday (along with calcium and magnesium). it really won't make you "feel" any different, but your bones will thank you!:D
salty
11-06-2008, 10:19 PM
25 weeks, kellibear. Your vit. D is included in your calcium and magnesium?--it's a blend?
Thank you.
Salty
Thank you.
Salty
susu2007
11-07-2008, 06:53 AM
Hi Salty,
If your vitamin levels were 35, you will hardly notice much difference from taking supplements because 35 does not put you in the deficient category or even the insufficient. My own vitamin D levels were 12 and after taking vitamin D (2000 IU a day) for a month, they went up to 19 and I am starting to notice that my fatigue levels are not as bad as they used to be.
To be honest with you, I think that taking 50,000 IU for 24 weeks is too much. You should get your levels tested again just to make are still in the safe zone. You were not deficient to begin with and it seems odd to me that your doctor would put you on such very high doses for so long.
I think very low vitamin D levels can result in incredible fatigue which has been the case with me. It is only now that I am starting to notice the difference after I started taking supplements, getting more sun exposure and eating fish three times a week.
If your vitamin levels were 35, you will hardly notice much difference from taking supplements because 35 does not put you in the deficient category or even the insufficient. My own vitamin D levels were 12 and after taking vitamin D (2000 IU a day) for a month, they went up to 19 and I am starting to notice that my fatigue levels are not as bad as they used to be.
To be honest with you, I think that taking 50,000 IU for 24 weeks is too much. You should get your levels tested again just to make are still in the safe zone. You were not deficient to begin with and it seems odd to me that your doctor would put you on such very high doses for so long.
I think very low vitamin D levels can result in incredible fatigue which has been the case with me. It is only now that I am starting to notice the difference after I started taking supplements, getting more sun exposure and eating fish three times a week.
kellibear
11-07-2008, 01:51 PM
i agree--that's alot of vit. d! the supplement i take has the cal/vit d combined--i get the puritans brand, but they do have a pill with the magnesium added--or it comes in a liquid also.
hopalong_too
11-07-2008, 06:22 PM
I think everyone is different. Salty's reference range puts her at the very bottom and from my own experience and MY doctor's lab reference range of 40-100, 35 is definitely below the normal (or at least what the doctor would like to see). ;) My doctor has also told me I will have to keep supplementing until I can get the Vitamin D level to 70!!! and keep it there. That will definitely be an uphill battle!
09/07, my level was 19 (40-100). I was prescribed 50,000IU twice weekly and 11/07 had my levels tested and they were 47. I was switched to one 50,000IU tablet per week and my levels dropped to 35 by 03/08 and then 27 07/01/08. I had them tested again and it dropped to 20.1 by 07/14/08. This all while TAKING the supplement once weekly! I have been taking it again twice weekly since then and it has gone up to 24.9 by 10/08. My calcium level is at the high end of normal 10.5 (8.5-10.5) but PTH is normal. My ionized calcium is always high 1.35, 1.41, 1.42 (1.17-1.32) I am just wondering if my body limits and/or even fights the production of Vitamin D because my calcium level is so high. The doctor says there is no way I have hyperparathyroidism because my PTH is so low. I get plenty of sun without sunscreen but once I stop the megadoses my levels drop FAST! I have suffered horribly with fatigue and bone pain in my hips but it seems to have eased ever so slightly as my levels rise. I will have it tested again in December. Hoppy
09/07, my level was 19 (40-100). I was prescribed 50,000IU twice weekly and 11/07 had my levels tested and they were 47. I was switched to one 50,000IU tablet per week and my levels dropped to 35 by 03/08 and then 27 07/01/08. I had them tested again and it dropped to 20.1 by 07/14/08. This all while TAKING the supplement once weekly! I have been taking it again twice weekly since then and it has gone up to 24.9 by 10/08. My calcium level is at the high end of normal 10.5 (8.5-10.5) but PTH is normal. My ionized calcium is always high 1.35, 1.41, 1.42 (1.17-1.32) I am just wondering if my body limits and/or even fights the production of Vitamin D because my calcium level is so high. The doctor says there is no way I have hyperparathyroidism because my PTH is so low. I get plenty of sun without sunscreen but once I stop the megadoses my levels drop FAST! I have suffered horribly with fatigue and bone pain in my hips but it seems to have eased ever so slightly as my levels rise. I will have it tested again in December. Hoppy
salty
11-07-2008, 07:12 PM
Thank you all for writing and for your help. I don't know, I'm just going by what my gyn. says. I am bleeding from the cervix and he does not know why--all tests came back fine. He thinks it is inflamed for some reason.
I am having a fibroid removed in early Jan. and he said it will help my immunity.
He is also my surgeon and has been for many many years.
What I don't understand is when I go off the high dose, won't the levels just go low again as in Hoppy's case?
Thank you.
Salty
I am having a fibroid removed in early Jan. and he said it will help my immunity.
He is also my surgeon and has been for many many years.
What I don't understand is when I go off the high dose, won't the levels just go low again as in Hoppy's case?
Thank you.
Salty
hopalong_too
11-07-2008, 11:20 PM
Have you had your calcium and PTH tested? Vitamin D can cause your calcium levels to rise.
salty
11-07-2008, 11:42 PM
Hoppy, I've had all the thyroid tests done and they were fine. When you do a complete blood work-up, is calcium in there? If so, the dr. didn't mention he was alarmed.
Why would it be bad for my calcium levels to rise? I drink skim milk and eat probiotic yogurt. I don't take a calcium supplement, just what I get in a multi-vitamin.
Would the calcium I eat and drink keep my vit. D levels from staying up?
Thanks,
Salty
Why would it be bad for my calcium levels to rise? I drink skim milk and eat probiotic yogurt. I don't take a calcium supplement, just what I get in a multi-vitamin.
Would the calcium I eat and drink keep my vit. D levels from staying up?
Thanks,
Salty
hopalong_too
11-08-2008, 12:23 AM
Vitamin D, PTH and calcium are all tightly regulated. you can easily look up the relationship between low Vitamin D, calcium and parathyroid hormone (PTH). Calcium is not measured with a CBC (complete blood count) but it is in another panel which includes Sodium, Potassium, Chloride, Total CO2 and Albumin (and sometimes a few others).
salty
11-08-2008, 12:43 AM
Hoppy, I'm answering your other post here as well. It was getting confusing going back and forth.
I need to ask my dr. if I had that panel done. If not, I will get it done. What am I looking for though? I know my thyroid is okay.
I take the Omegas. They seem to help me a little. I can understand why you want to keep your levels up.
Exercise does help, too. It's hard to do when you are really depressed, I know that.
You had clinical depression and you're off the meds? I think your thyroid meds have helped you a lot. I hear you can be terribly depressed with thyroid issues.
I'm not getting any answers to my post re the new depression add-on and I really don't know what to do. I haven't known for months. I never expected my med to quit on me.
You said you were on effexor. What would you do if you had been on it for many years and it stopped working? Would you try another SSRI?
The lexapro was so good because it lifted the depression and it was calming so it also helped my anxiety.
I'm thinking about posting again tomorrow if I don't get any answers. But I'm really tired of bugging people and I'm sure they are tired of me trying to find a solution.
I'm scared of this drug I'm trying.
I appreciate any ideas you have. Thank you.
Hugs,
Salty
I need to ask my dr. if I had that panel done. If not, I will get it done. What am I looking for though? I know my thyroid is okay.
I take the Omegas. They seem to help me a little. I can understand why you want to keep your levels up.
Exercise does help, too. It's hard to do when you are really depressed, I know that.
You had clinical depression and you're off the meds? I think your thyroid meds have helped you a lot. I hear you can be terribly depressed with thyroid issues.
I'm not getting any answers to my post re the new depression add-on and I really don't know what to do. I haven't known for months. I never expected my med to quit on me.
You said you were on effexor. What would you do if you had been on it for many years and it stopped working? Would you try another SSRI?
The lexapro was so good because it lifted the depression and it was calming so it also helped my anxiety.
I'm thinking about posting again tomorrow if I don't get any answers. But I'm really tired of bugging people and I'm sure they are tired of me trying to find a solution.
I'm scared of this drug I'm trying.
I appreciate any ideas you have. Thank you.
Hugs,
Salty
hopalong_too
11-08-2008, 01:33 AM
I must have missed the post that said what drug you were on. What are you taking? What was your thyroid level? Hopefully between 0.5 and 3.0. Closer to 1 is best! Did you have the FT4 and FT3 tested as well? How about your B12 level? Mine was low in that as well and I take 5mg (not mcg) per day sublingual methylcobalamin. It is 83,000% of the recommended daily allowance but the doctor said it is fine as it is not stored in the body but you just get rid of the excess. Raising that level has helped a bit as well, I think.
I do not believe I was EVER clinically depressed. I had HORRIBLE hip pain (and still do sometimes), felt cold all the time and was extremely fatigued, among other things. Since no problem could be found for the hip pain, the doctor said.... "You MUST be depressed....let's try this antidepressant". When it didn't make any difference, the dosage was raised and then I was switched to another. It didn't help either. The dosage of the new one was raised twice and I just kept feeling worse and worse and not at all myself and I just decided enough was enough and titrated myself off of it. I lowered the dose every couple weeks by half. Getting off it was a HORRIBLE experience with the brain zaps! I am just exercising and telling myself constantly to be upbeat although sometimes I falter. I can become irritable without reason. Thank goodness I have a wonderful, understanding and loving husband who just says.....oh oh, your being irritable for no reason! I still believe there is some issue but don't know what it is that is causing me to be so tired, irritable, moody, and sore! Sometimes at night my hips are so sore that I can barely roll over but I really need to to relieve the pain. I am hoping that it is a Vitamin D issue and it can be resolved by increasing my levels. Time will tell.
There are a lot of people here that are willing to listen but we are not doctors. Sometimes just airing your thoughts helps. Does your doctor know that you believe the AD stopped working? What did he/she say? Sometimes a combination of different medications works. I just know I am better off without them. My mind is so much clearer. I hope you can get some answers. Hoppy
I do not believe I was EVER clinically depressed. I had HORRIBLE hip pain (and still do sometimes), felt cold all the time and was extremely fatigued, among other things. Since no problem could be found for the hip pain, the doctor said.... "You MUST be depressed....let's try this antidepressant". When it didn't make any difference, the dosage was raised and then I was switched to another. It didn't help either. The dosage of the new one was raised twice and I just kept feeling worse and worse and not at all myself and I just decided enough was enough and titrated myself off of it. I lowered the dose every couple weeks by half. Getting off it was a HORRIBLE experience with the brain zaps! I am just exercising and telling myself constantly to be upbeat although sometimes I falter. I can become irritable without reason. Thank goodness I have a wonderful, understanding and loving husband who just says.....oh oh, your being irritable for no reason! I still believe there is some issue but don't know what it is that is causing me to be so tired, irritable, moody, and sore! Sometimes at night my hips are so sore that I can barely roll over but I really need to to relieve the pain. I am hoping that it is a Vitamin D issue and it can be resolved by increasing my levels. Time will tell.
There are a lot of people here that are willing to listen but we are not doctors. Sometimes just airing your thoughts helps. Does your doctor know that you believe the AD stopped working? What did he/she say? Sometimes a combination of different medications works. I just know I am better off without them. My mind is so much clearer. I hope you can get some answers. Hoppy
salty
11-09-2008, 04:14 PM
Hoppy, sorry it took me so long to get back. I'm having so many bad side effects from the new add-on that I couldn't even use the computer.
I'll get back to that in a minute...I don't know my thyroid number. I had it tested twice (full work-up including FT3 and FT4) by my gyn. and my dr. My gyn is an expert on all that, he's the one who put me on the vit. D. Both drs said they were good.
I am going to call my gyn's office and get my readings. I would think they would be able to give them to me over the phone, wouldn't you think? When I get them, I will let you know.
He said they were good and that I'm not in menopause yet. I thought I might be.
I don't know about the B-12. I have a feeling that was not tested. I have been taking a really good B-complex for a long time, but I can ask my reg. dr. to check that when I ask him about the electrolyte panel.
I just checked a copy of the tests before they were taken and my reg. dr. did a comp. metabolic panel, would that include the electrolytes?
Is it a problem if my calcium is up?
My dr. knows all about the lex. not working. It's been my major concern for so long. We have tried many things and I tried many things before I found that. It worked within minutes of taking it...it was unreal.
abilify is the new add-on to ADs. Well, this is the second go round and I can't take it...the nausea is horrible, i think it helped a little, but I think anything would considering i've been on a med that has stopped working for so long. I thought it helped me think more clearly but then the next day, I can't put my thoughts together. I think it's messing with my cycle too and I can't have that because of my gyn. problems. I'm done with it.
The problem now is trying to get off the lex. and what to try next. My dr. keeps saying he really doesn't want to take me off the lex. and I don't want to go off it either, but I can't keep going on the way I am. I'm on the highest dose.
I guess I'm thinking paxil or prozac. Tried both of them many years ago, but they seem like the best for least side effects. I don't know. I'm going to have to search again. I know I can't deal with weight gain...that always makes me more depressed so I hope they don't have that.
I have anxiety and pms and I read that paxil is for those too, so maybe it will help. I'm always concerned whether the generic is as good as the brand name. Do you know anything about either of these?
I'd love to be off of ADs but when the lex. worked so well it was wonderful. I felt normal.
I hate to have to post again, but I will probably have to unless I can find enough info just searching.
Thanks for listening and helping, Hoppy. You really don't know how much I appreciate it.
Salty
I'll get back to that in a minute...I don't know my thyroid number. I had it tested twice (full work-up including FT3 and FT4) by my gyn. and my dr. My gyn is an expert on all that, he's the one who put me on the vit. D. Both drs said they were good.
I am going to call my gyn's office and get my readings. I would think they would be able to give them to me over the phone, wouldn't you think? When I get them, I will let you know.
He said they were good and that I'm not in menopause yet. I thought I might be.
I don't know about the B-12. I have a feeling that was not tested. I have been taking a really good B-complex for a long time, but I can ask my reg. dr. to check that when I ask him about the electrolyte panel.
I just checked a copy of the tests before they were taken and my reg. dr. did a comp. metabolic panel, would that include the electrolytes?
Is it a problem if my calcium is up?
My dr. knows all about the lex. not working. It's been my major concern for so long. We have tried many things and I tried many things before I found that. It worked within minutes of taking it...it was unreal.
abilify is the new add-on to ADs. Well, this is the second go round and I can't take it...the nausea is horrible, i think it helped a little, but I think anything would considering i've been on a med that has stopped working for so long. I thought it helped me think more clearly but then the next day, I can't put my thoughts together. I think it's messing with my cycle too and I can't have that because of my gyn. problems. I'm done with it.
The problem now is trying to get off the lex. and what to try next. My dr. keeps saying he really doesn't want to take me off the lex. and I don't want to go off it either, but I can't keep going on the way I am. I'm on the highest dose.
I guess I'm thinking paxil or prozac. Tried both of them many years ago, but they seem like the best for least side effects. I don't know. I'm going to have to search again. I know I can't deal with weight gain...that always makes me more depressed so I hope they don't have that.
I have anxiety and pms and I read that paxil is for those too, so maybe it will help. I'm always concerned whether the generic is as good as the brand name. Do you know anything about either of these?
I'd love to be off of ADs but when the lex. worked so well it was wonderful. I felt normal.
I hate to have to post again, but I will probably have to unless I can find enough info just searching.
Thanks for listening and helping, Hoppy. You really don't know how much I appreciate it.
Salty
salty
11-10-2008, 10:35 PM
Hoppy, the lady reading me my results was a little confused, but she said my thyroid w/FT3 was 3.5 and the scale was 2.3-4.2. She said the TSH was 0.985 and the FT4 was 1.24. She was very confused though and the scale was not .5-3.0 as yours was.
I see my surgeon in a week, I will find out then. She said they were all fine and right in the middle of the scale. I don't know. She had me confused too.
Salty
I see my surgeon in a week, I will find out then. She said they were all fine and right in the middle of the scale. I don't know. She had me confused too.
Salty
hopalong_too
11-11-2008, 12:29 PM
Hey, Sorry I didn't get back sooner! The TSH looks good. That is the number that should be around 1 and yours is 0.985. That is the one with the reference range .5-3.0, old reference range .5-5.0. The problems with HYpoT happen when the number is higher.....yours is great. Your FT3 3.5 (reference range 2.3-4.2) is great too! The FT4 1.24 looks great as well.......if your reference range is similar to mine (.58-1.64). I don't think you have any kind of problem with your thyroid.
I tried Effexor XR and Sertraline (generic for Zoloft) and in the past have also tried Paxil and Prozac. NOT ONE of those have made me feel any better....in fact, they ALL made me feel worse and sorry for myself. I have found the best mood lifter for me to be exercise and meditation and telling myself to cheer up. As my wonderful husband always reminds me....Fake it 'til you make it. It is working so far BUT hasn't helped with the horrible hip pain. One day (I hope not too late), someone will be able to help me with that! I hope you have a great day! Hoppy
I tried Effexor XR and Sertraline (generic for Zoloft) and in the past have also tried Paxil and Prozac. NOT ONE of those have made me feel any better....in fact, they ALL made me feel worse and sorry for myself. I have found the best mood lifter for me to be exercise and meditation and telling myself to cheer up. As my wonderful husband always reminds me....Fake it 'til you make it. It is working so far BUT hasn't helped with the horrible hip pain. One day (I hope not too late), someone will be able to help me with that! I hope you have a great day! Hoppy
mod-anon
11-11-2008, 12:51 PM
Please read and follow the posting rules.
Please share information in your own words. Members come here for support and advice, not to be told to go elsewhere to find answers. Do not post commercial websites.
Please share information in your own words. Members come here for support and advice, not to be told to go elsewhere to find answers. Do not post commercial websites.
salty
11-11-2008, 07:19 PM
Thank you Hoppy, I appreciate you going through my readings. I was hoping you'd say they were okay. I was confused because she was confused reading them.
Your hip pain...what to do about that...hmmm. Have you gone on the hip/knee board or one of the other boards? Maybe you should post on there about your hip pain. Someone may be experiencing what you are. I don't know if you posted on the vit. board about it, but you never know, someone may have the same thing and be able to help.
I really hope you get relief from that...pain is...well, a pain in the you know what, that's for sure.
I think it's great that you exercise and meditate. I'm not recommending any AD except the one that worked for me, but I know people use cymbalta for nerve pain.
It didn't help my depression, but I did notice a difference pain-wise. Your husband sounds great. It's so important to have that support.
Is there a problem if my calcium is high? And are the electr. in the metabolic panel? I go Thurs. so I'm going to ask about the b-12. Anything else I should ask?
Thanks, hoppy.
Hugs,
Salty
Your hip pain...what to do about that...hmmm. Have you gone on the hip/knee board or one of the other boards? Maybe you should post on there about your hip pain. Someone may be experiencing what you are. I don't know if you posted on the vit. board about it, but you never know, someone may have the same thing and be able to help.
I really hope you get relief from that...pain is...well, a pain in the you know what, that's for sure.
I think it's great that you exercise and meditate. I'm not recommending any AD except the one that worked for me, but I know people use cymbalta for nerve pain.
It didn't help my depression, but I did notice a difference pain-wise. Your husband sounds great. It's so important to have that support.
Is there a problem if my calcium is high? And are the electr. in the metabolic panel? I go Thurs. so I'm going to ask about the b-12. Anything else I should ask?
Thanks, hoppy.
Hugs,
Salty
salty
02-19-2009, 11:02 PM
I have had hair thinning ever since being on the vit.D. My dr. says it has nothing to do with it.
I read online that people go on vit.D to HELP w/hair thinning.
Any ideas?
Thank you,
Salty
I read online that people go on vit.D to HELP w/hair thinning.
Any ideas?
Thank you,
Salty
lu55
02-20-2009, 02:18 AM
Salty,
I cannot take vit d because it totally whacks out my thyroid. It makes me very hypo, which will cause hair loss.
Are you currently on thryoid meds? I am on meds for hashimoto's (thryoid ailment). I am also severely vit d deficient, but cannot take a supplement.
I cannot take vit d because it totally whacks out my thyroid. It makes me very hypo, which will cause hair loss.
Are you currently on thryoid meds? I am on meds for hashimoto's (thryoid ailment). I am also severely vit d deficient, but cannot take a supplement.
nscrbug
02-20-2009, 01:32 PM
Salty,
I cannot take vit d because it totally whacks out my thyroid. It makes me very hypo, which will cause hair loss.
Are you currently on thryoid meds? I am on meds for hashimoto's (thryoid ailment). I am also severely vit d deficient, but cannot take a supplement.
Does not being able to take Vit. D supplements apply to everyone that is hypo on meds? Or is this just an issue with you? I'm hypo (on Levoxyl) and my endo tested me for Vit. D deficiency (haven't got the results yet). Now I'm worried that I won't be able to supplement, since I'm hypo on meds.
I cannot take vit d because it totally whacks out my thyroid. It makes me very hypo, which will cause hair loss.
Are you currently on thryoid meds? I am on meds for hashimoto's (thryoid ailment). I am also severely vit d deficient, but cannot take a supplement.
Does not being able to take Vit. D supplements apply to everyone that is hypo on meds? Or is this just an issue with you? I'm hypo (on Levoxyl) and my endo tested me for Vit. D deficiency (haven't got the results yet). Now I'm worried that I won't be able to supplement, since I'm hypo on meds.
salty
02-20-2009, 03:59 PM
lu55, thank you for writing...i sure hope my thyroid isn't out of whack...it wasn't BEFORE i took the vit.d, but who knows now...guess i'll find out after i have the operation to remove a fibroid early next week.
I'll have my gyn. run the tests again when i go back for my follow-up in 2 weeks...i'm telling you i feel weird on the vit. d.--the next day my body aches from it.
I sure hope it hasn't done damage to my thyroid...hope it's reversible if it has.
Can't stand the hair loss...it's driving me crazy!
Salty
I'll have my gyn. run the tests again when i go back for my follow-up in 2 weeks...i'm telling you i feel weird on the vit. d.--the next day my body aches from it.
I sure hope it hasn't done damage to my thyroid...hope it's reversible if it has.
Can't stand the hair loss...it's driving me crazy!
Salty
ambo02
02-26-2009, 12:46 PM
I've been on Vit D for 2wks (50,000 once a week) and I'm feeling better already. BUT, I was Hypo. TSH 54 changed meds to Synthroid 100. So, I don't know if its my TSH is coming down or the Vit D making me feel better. I had 2 thyroid surgeries and was on Armour. And found out I have Osteopenia.
Does Vit D cause problems with Thyroid patients? Isn't this all related with Thyroid patients?:angel:
Does Vit D cause problems with Thyroid patients? Isn't this all related with Thyroid patients?:angel: