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kimiesoscared
11-07-2008, 05:41 PM
Oh God here we go again - I have HPV diagnosed 1 year ago at age 40. First ASCUS Pap - then colp-showed chronic cervicitis. 6 months ago-pap-normal still HPV active. Now ACSUS pap again-unsure of HPV results-have not come in yet. I am sick of it - just sick-I did not expect this again. I am stressed and want to cry my eyes out - but I am at work and can not do that. I don't know what to say-Dr. said they have to wait for HPV results to come in on Tues and she said they will see what to do next. I am soooooo worried this is the same pap result I had 1 year ago and it is back-I was so sure it would be normal-God help me with my nerves-my weekend is ruined and I feel like all I want to do is cry my eyes out. I see everyone else around me going for the routine pap and they are normal and it always has to be me with this damn crap-I am so sick of it. My father died a month ago and now this stress to add to my already stressed out body.

Any ideas or opinions is appreciated. Thanks:)

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Pickle Eyes
11-07-2008, 10:54 PM
((((Kimie)))) It is difficult, I hope I say a few things that might help.

First of all, are you *sure* everyone else's paps are coming back normal? I've never heard anyone (except a pretty close friend) complain about a bad pap. I'm certain others (especially single women) have bad paps, but just don't advertise it.

Secondly, worrying isn't going to help. You can't learn anything else this weekend. I've learned (the very hard way) that worrying doesn't change the outcome. It is what it is (or was, at the time of the biopsy). The report will show that when it comes in. ((((hugs)))) And finally, someone I know online has said, "never waste a good worry, until you KNOW you have something to worry about." It is far easier to say than to do, but it can give comfort later on.

((((hugs))))) Please let us know how you are doing!

kimiesoscared
11-08-2008, 01:23 AM
hi pickle eyes (that name give me a chuckle-I need that) thanks. My husband said the same thing about worrying but it is difficult. what I can say is that i am not so broken apart as the first time over a year ago when I first had abnormal pap-so that is good-but I am still scared and frustrated. I just feel puzzled-because it was normal 6+ months ago-so I was expecting the same result-won't do that again. anyway here we go again with colp or other stuff which I really hate so much.

Pickle Eyes
11-08-2008, 09:28 AM
Kimie, I'm glad my "name" gave you a chuckle :) That was partially my intent on selecting it! :) (it gives a hint of my personality! ;)

I can't remember, when is your next colpo? How old are you? You might ask your doctor if he/she will also do an ECC at that time (I can't remember if I've suggested that or not). It checks the cervical canal that can't be seen, even with the colpo.

kimiesoscared
11-08-2008, 11:46 AM
Hi Pickle eyes-I will find out on tues when I can schedule it they are waiting for my HPV results which was active 6 months ago. Oh and I am 41 and yes you did mention the ecc before which I will request. thanks so much

charlit01
11-13-2008, 10:36 AM
everything you have said, has happened to me. I feel for you so much!
I can't believe this whole process has been so awful, Im currently only 24 but have been in pain since i was 16. I have seen at least 20 different medical professionals. ????I'm from the uk and have been so down about it somedays because I knew there was something wrong, i had a smear when i was 19 it was clear, then i was told by a doctor i'm not allowed another until 24! Rules at home-no idea why!!!
Have seen numerous doctors and gyns and have also been told it's all in my head! Helpful......
I almost had given up even though i felt gross in myself, dirty , pain, the list goes on.I had just assumed that was that, trust me many tears were shed. Until I got a job in america and needed a medical, obviously the pap smear came back positive, colposopy then biopsy. I had HPV, chronic cervitis and cysts, then laser to remove the bad cells and cysts in the space of two days! Whirl, im now across the pond, alone, relieved but angry!!!!!! How could it have been left to this point? With a fairly straight forward infection! I literally have been in pain my whole adult life!
The doctor was so so nice but did not speak english which is why i looked for this site, sigh with happiness(yay im not crazy).
I still have so many questions............ It's so horrible to have felt so alone.
Should i tell my long term boyfriend(which obviously he has been very much a part of it) that he may have an std or doe it not effect him? can i have un protected sex with him?

I was told to get a pap in six months, but im at sea, difficult(i obviously will but.....), could i need surgery again?
I will have this forever?
Am i freakily young for all of this? 24
Should i get a fertility test? sorry so many question jusy my head is in whirl wind.
I think i maybe posting in the wrong spot too.help!
thanks for listening pickle eyes and kimiesoscared.
xxxxxxxxxxxxxxxxxxxxxxxxx

Pickle Eyes
11-13-2008, 09:06 PM
Charlit, I'm sorry to hear about all of that, but am curious as to how the HPV is causing so much pain. It causes emotional pain (for many people), but not physical pain.

I hope you continue to get good medical care!

charlit01
11-13-2008, 09:43 PM
Mostly pain during sex, i would also get lower back pain too. It also stung when i passed urine and stung a huge amount during sex.I'm certainly not a wimp to pain, because im a dancer, ballet etc, definatley not push over.I understand that this is not caused by the HPV but have been informed this can be side effects through chronic cervicitix and cysts. Well lets hope so else there is something else crazy going on with me! xxxxxxx It's all so very complex ha? I just wish it was all over. So much.xthank you

kimiesoscared
11-14-2008, 07:10 AM
Hi

I got my pap results and it was ascus but my hpv results came in two days ago and they were negative. The doctor said since hpv is neg (for now) no need for colp. I must come back in 6 months. So this is a nice relief for now-truly. I have chronic cerv. and it is frustrating-I don't have any pain or symptoms at all-no hpv symptoms-I have emotional symtoms and I totally know how scary this is and I am frightened everytime it gets near to my next pap exam. It is a horrible feeling-but I still go and do what I have to do-because I will never do what I used to do years back which was skip a year or 3 or 4. Now that I know I have HPv there is no skipping an exam because the one thing I don't want to ever hear from a doctor is "if you had only come sooner". I dont know what will happen with all this but I do know one thing is that as scared as hell as I am and probably always will be I will be in that doctor's office ready to spread um (sorry) ok that may have been innapropriate but I have to find some humor in all this. You all are so supportive-thanks-I wish everyone good health in every way.

catforever
12-06-2008, 05:42 PM
hey. I'm not meaning to argue with you about this. But I have had chronic cervicitis for the past 6 years, now I'm sterile and not able to have a baby. I'm 20 years old, and it does cause alot of pain with or without having sex.....I'm sorry but I just had to say something about that. It does cause pain. I know it did alot for me. I have HPV, polycystic ovarian syndrome and pelvic inflammatory disease, and now I was diagnosed FINALLY with chronic cervicitis. I was 14 when all of this started....





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