Twinkie50
11-13-2008, 06:16 PM
Hi. I was wondering if anyone here with FM has issues with tinnitus? I have, in my right ear, a pulsing, swooshing sound that at times beats in sync with my heart. I have had it many years. But, lately its gotten so bad its driving me mad. I just went to an ENT Head/Neck Surgeon who informed me that this kind of tinnitus can be due to vascular problems within the head, ear, neck. Or blood flow problems and can sometimes be pin-pointed and helped. I just went for an MRI of my inner ear to check for tumors, blood vessel problems, anuresyms (scary) and it came back normal. However, I have to go back to have further tests.
Anyone? And if so, has anything helped???????????? MaryAnn :(
Anyone? And if so, has anything helped???????????? MaryAnn :(
Sponsor
ruzalily
11-13-2008, 09:19 PM
Hi MaryAnn,
Yes, I believe that tinnitus can be caused by fibro. i have had a high pitched sound in my ears since my fibro symptoms started, and for about three weeks I also had a clicking sound in my left ear, along with TMJ. In the reading that I have done about this condition, I have learned that there are "deep masseter tender points" that can cause ringing, roaring, or crackling sounds in the ears - all associated with fibro. I don't know how to advise you about making it go away, but I have massaged the areas in front of my ear, (on the back of my jaw over my back teeth) and that has helped the clicking. I still have the ringing, but it isn't as prominent. I have seen a myofacial pain therapist because I have symptoms of FMS/MPS, and this treatment has helped immensely. You may want to look into this as a possible treatment for your symptoms. Wishing you peace (and quiet!) Lily
Yes, I believe that tinnitus can be caused by fibro. i have had a high pitched sound in my ears since my fibro symptoms started, and for about three weeks I also had a clicking sound in my left ear, along with TMJ. In the reading that I have done about this condition, I have learned that there are "deep masseter tender points" that can cause ringing, roaring, or crackling sounds in the ears - all associated with fibro. I don't know how to advise you about making it go away, but I have massaged the areas in front of my ear, (on the back of my jaw over my back teeth) and that has helped the clicking. I still have the ringing, but it isn't as prominent. I have seen a myofacial pain therapist because I have symptoms of FMS/MPS, and this treatment has helped immensely. You may want to look into this as a possible treatment for your symptoms. Wishing you peace (and quiet!) Lily
bluelakelady
11-14-2008, 10:28 AM
hi twinkie,
when my doc put me on one aspirin a day to thin my blood the swooshing thing went away. must mention when i went off the aspirin recently for other procedures it did not return.
related to fibro? who really knows. we all speculate, including the doctors. i hope everything works out for you. keep us posted. what other tests will you be facing?
peace,
bluelakelady
when my doc put me on one aspirin a day to thin my blood the swooshing thing went away. must mention when i went off the aspirin recently for other procedures it did not return.
related to fibro? who really knows. we all speculate, including the doctors. i hope everything works out for you. keep us posted. what other tests will you be facing?
peace,
bluelakelady
1stBlush
11-14-2008, 02:52 PM
I have a constant ringing in both ears. Sometimes extremely loud. I don't have the swooshing sounds though. Sorry to hear it's so bad for you.
Twinkie50
11-14-2008, 07:00 PM
He mentioned doing an MRA which I think is an MRI with injection that checks your vascular/circulatory system. Just with everything I have read about pulsating tinnitus, it can be dangerous - it also can be pinpointed to NOTHING - also may have to have jugular vein/carotid artery checked. I am only 50 and do not have high blood pressure or high cholesterol, but you never know where a blockage could be. Thing is, I have had it for over 12 years, but lately it has gotten almost constant and it used to come and go....
MaryAnn
MaryAnn
beth67
11-14-2008, 08:15 PM
I'm so glad to know I'm not the only one with this. My ears have been ringing for years. Usually it would only bother me at night when it was quiet but now I hear it all the time. The high pitched ring has been joined by a low pitch and now to add to the orchestra in my head is what I would say sounds a bit like a world war 2 bomber in the distance, like what you would hear in one of those old black and white war movies. Relieved that other people know what I'm going through and it isn't all in my head. Ha Ha
Beth
Beth
DeBeachSiren
11-15-2008, 05:20 AM
Hi,
I have the swooshing sometimes. But whenever I am waiting for the washing machine to fill or when I am running the vacuum I hear a ringing that sounds like my phone. It drives me nuts.
DeBeachSiren
I have the swooshing sometimes. But whenever I am waiting for the washing machine to fill or when I am running the vacuum I hear a ringing that sounds like my phone. It drives me nuts.
DeBeachSiren
DBoucher
11-18-2008, 12:08 AM
Hi ruzalily,
Where do you get this info about the tinitus and fibro connection? I have been searching "everywhere" and have drawn a blank. I have asked my rheumatologist, my ENT, and even the top Dr. at the House Ear Institute in L.A. and none of them have heard anything of the sort. I would like to be able link the two with some clinical evidence so I can present it to the VA. Thinking about going in soon for a re-eval of my fibro to see if they will increase my disability rating.
Where do you get this info about the tinitus and fibro connection? I have been searching "everywhere" and have drawn a blank. I have asked my rheumatologist, my ENT, and even the top Dr. at the House Ear Institute in L.A. and none of them have heard anything of the sort. I would like to be able link the two with some clinical evidence so I can present it to the VA. Thinking about going in soon for a re-eval of my fibro to see if they will increase my disability rating.
precious49
11-20-2008, 04:59 PM
I'm so glad to know I'm not the only one with this. My ears have been ringing for years. Usually it would only bother me at night when it was quiet but now I hear it all the time. The high pitched ring has been joined by a low pitch and now to add to the orchestra in my head is what I would say sounds a bit like a world war 2 bomber in the distance, like what you would hear in one of those old black and white war movies. Relieved that other people know what I'm going through and it isn't all in my head. Ha Ha
Beth
I know just how you feel. I've had ringing in my ears since 1980 when I had a horrible flu and it has never stopped. At times my ringing has ringing--I know what you mean about the orchestra--so many different high pitched tones--I have to keep noise (tv,radio,etc.) on all the time especially when I try to sleep. Today I can hear the ringing above even that. It has never quit--I've just learned to ignore it for the most part. I would love to hear silence again. I pray that the medical Drs. that do research will someday find something to help all of us who suffer with this. Also, when I run water in the sink a nerve in my left (I guess its a nerve) goes crazy. If someone wanted to torture me, all they would have to do is play the warning that they give on tv over and over and I'd tell them anything : )
Beth
I know just how you feel. I've had ringing in my ears since 1980 when I had a horrible flu and it has never stopped. At times my ringing has ringing--I know what you mean about the orchestra--so many different high pitched tones--I have to keep noise (tv,radio,etc.) on all the time especially when I try to sleep. Today I can hear the ringing above even that. It has never quit--I've just learned to ignore it for the most part. I would love to hear silence again. I pray that the medical Drs. that do research will someday find something to help all of us who suffer with this. Also, when I run water in the sink a nerve in my left (I guess its a nerve) goes crazy. If someone wanted to torture me, all they would have to do is play the warning that they give on tv over and over and I'd tell them anything : )
ruzalily
11-22-2008, 12:02 AM
Hi DBoucher,
Sorry for the delay in responding - it has been a very busy week. I have gotten a lot of information about fibro in a book called "Fibromyalgia & Chronic Myofascial Pain Syndrome - A Survival Manual" by Devin Starlanyl, MD. The ringing in the ears is on p.78This is an amazing book and I recommend it to anyone suffering with this awful condition. It has helped me understand so much about my pain, and what I can do to help myself. It's a must read for anyone on this board! Lily :)
Sorry for the delay in responding - it has been a very busy week. I have gotten a lot of information about fibro in a book called "Fibromyalgia & Chronic Myofascial Pain Syndrome - A Survival Manual" by Devin Starlanyl, MD. The ringing in the ears is on p.78This is an amazing book and I recommend it to anyone suffering with this awful condition. It has helped me understand so much about my pain, and what I can do to help myself. It's a must read for anyone on this board! Lily :)
beth67
11-22-2008, 12:17 AM
Here is another lovely thing that happens with my ears on top of the ringing and I'm wondering if anyone else experiences this. My eardrums will feel like their fluttering as if a moth was in my ears. This doesn't happen a lot but it definetly happens when I go to the eye dr. and he shines a light in my eyes and then the fluttering is extremely overpowering and my eyes start to water and go out of control and I have to close them. Very inconvienent for the eye dr. I would be amazed if anyone else gets this. Would be nice to know I'm not the only one.
Beth
Beth
ruzalily
11-22-2008, 11:42 AM
oh yes, it happens to me too. usually in one ear more than the other, but it has happened in both. it happens a lot if i squint, and as you said, bright lights are involved. i have noticed it when i go outside into the bright sunlight, or after turning on the light or television after being in a room when the lights have been dimmed or are off. my ear gets kind of a tight feeling inside and then the wing flapping sound starts. that's a good way that you described it. it's weird, but no, you aren't the only one that it happens to. somehow, it makes it a little less weird, huh? lily :)
1sunny1
11-22-2008, 01:38 PM
I get the ringing in the ear also, at night when I go to bed, it keeps me from sleeping. When this happens, I take an extra dose of Lyrica which I am on for FMS. It stops the ringing pretty quick.
Sunny
Sunny
DBoucher
11-23-2008, 02:38 PM
Lily,
Thanks for the info. I looked online for the book and it is reasonably priced, so I will probably consider ordering it around December 5th.
Dave
P.S.
Does it say anything about hearing loss? Along with the tinnitus, my ENT and audiologist tell me I have permanent hearing loss in my left ear.
Thanks for the info. I looked online for the book and it is reasonably priced, so I will probably consider ordering it around December 5th.
Dave
P.S.
Does it say anything about hearing loss? Along with the tinnitus, my ENT and audiologist tell me I have permanent hearing loss in my left ear.
Twinkie50
11-23-2008, 07:46 PM
Any kind of noise in the ear is considered tinnitus. It can be ringing, swooshing, clicking, pulsing, etc. I have the pulsing which goes along with my heartbeat and it also feels like my ear is filled with water. Sometimes I get the fluttering and it feels like my eardrum is moving. This is making me insane because its gotten so much worse lately. Apparently the ringing type of tinnitus is the more common and usually they cannot find any reason for it. The type I am having can be dangerous as it can be related to blockages in the arteries or veins in the head or neck. Like I said, my first MRI of the inner ear came back negative. I go back to the ENT tomorrow and I want more tests. I want to make sure I don't have something bad going on. Weirdest thing ever, is when I put pressure on my carotid artery/jugular area on that side of my neck, the sound completely goes away. MaryAnn
ruzalily
11-24-2008, 09:35 PM
hello dave,
i haven't come across anything in the book about permanent hearing loss, either associated with having had tinnitus or not. there is a lot of information to read and digest, and it is very possible that it's in there somewhere. also, the book i checked out from the library was the first edition. i purchased the book this weekend, and i found a second edition with more updated information, so i bought that one. also, what i read about tinnitus in the new edition is on p. 80. i hope you share the information with your doc to see what he thinks, and keep me posted! all the best, lily :)
i haven't come across anything in the book about permanent hearing loss, either associated with having had tinnitus or not. there is a lot of information to read and digest, and it is very possible that it's in there somewhere. also, the book i checked out from the library was the first edition. i purchased the book this weekend, and i found a second edition with more updated information, so i bought that one. also, what i read about tinnitus in the new edition is on p. 80. i hope you share the information with your doc to see what he thinks, and keep me posted! all the best, lily :)
Navy Mom
11-25-2008, 12:14 AM
About 3-4 weeks ago I began to have a wierd flapping sound in my right ear, similiar to what others have said about the "moth flapping it's wing sound" I can go days without it happening and then suddenly it starts and will come and go all day, sometimes several days in a row...My ear does not hurt but I do have that full feeling a little like having flown and your ears get a little stopped up. I noticed today when it started up again I felt a little out of sorts and proceeded to get a headache. Any word from your ENTon what he thinks is going on with you? I could use some feedback just to see if anyone else has this. I recently started a new job and the health insurance will not kick in until Jan. so I cannot afford expensive visits to a doctor just yet!
precious49
11-25-2008, 09:36 AM
Navy Mom-I know what you're talking about. Please as soon as your insurance kicks in see a Dr. I've had the best help from a Neuro-Opthomologist in OKC. I've had the ear tests 3 different times with no conclusion. It is so very frustrating. I've had this problem since 1980 when I had the flu. Fullness in the ears, my left ear is the one that has the fluttering. When I run water in the sink, a nerve in my ear goes crazy and like you it doesn't happen all the time. I've really not had much help from Dr.s, YET, but I pray that one day I will. I have alot of other problems from that flu and a Dr. that I'm seeing now ( I've been to about 50 over the yrs.--even went to Mayo Clinic) is so great-she really cares and I think that if God doesn't heal me that she will keep going till she finds the answer. And that is so important because I've had alot of Dr.s treat me like I was crazy--just because it doesn't show up on a test doesn't mean that it's not happening to all of us suffering with this!!!!! So never give up-I've wanted to and have even quit seeing Dr.s for stretches of times but I know that they are learning more and more about our bodies and how they work. And just because a drug or procedure works for one dose not mean it will work for me. Each one of us is made different. I pray that you will have a good day today. God Bless You and Yours Today and EveryDay!!!!!!!!!
precious49
11-25-2008, 06:40 PM
Twinkie 50--Tinnitus is a hard thing to live with but I've just learned to ignore it and to keep the tv,radio,etc. going all the time for distraction noise. I had the maskers at first and they helped but when working they were also in the way when answering the phone. I have more than just the ringing in my ears and the fluttering in my left ear. I have what is called episodic vertigo--but they should call mine--all the time vertigo. When I had the flu in 1980, it caused all kinds of health problems. My vertigo is a jumpiness of vision--not a spinning like most vertigo. The ringing in my ears has been constant since 1980--it's very high pitched and sometimes I hear 2 or 3 different tones at the same time. One Dr. told me that he could fix it with surgery but that I would be deaf afterwards. No thanks--I just learned to live with it just like all the other things that awful flu caused. I will pray for you that your Dr. can help but never give up!!!!!!! God Bless You and Yours Today and EveryDay!!!!!!!!!!
Twinkie50
11-30-2008, 11:22 AM
Well I had the MRI with IAC's. All nomal - thank god, but it does not explain the pulsatile tinnitus. The MRI checked my brain for tumors, bleeding, and my entire auditory canals. Went back to ENT and he said to wait another 3 months and see if it continues to get worse or stays about the same. Next step would be MRA/MRV which is an MRI with injection dye that checks and veins and arteries in head and neck. I've had this for many years but lately its gotten worse which is what sent me to the ENT.
Now, last few days, I am having shortness of breath - its always something with this FM - it never ends......
MaryAnn
Now, last few days, I am having shortness of breath - its always something with this FM - it never ends......
MaryAnn
precious49
12-01-2008, 10:51 AM
Well I had the MRI with IAC's. All nomal - thank god, but it does not explain the pulsatile tinnitus. The MRI checked my brain for tumors, bleeding, and my entire auditory canals. Went back to ENT and he said to wait another 3 months and see if it continues to get worse or stays about the same. Next step would be MRA/MRV which is an MRI with injection dye that checks and veins and arteries in head and neck. I've had this for many years but lately its gotten worse which is what sent me to the ENT.
Now, last few days, I am having shortness of breath - its always something with this FM - it never ends......
MaryAnn
Dearest Twinkie 50,
I'm so thankful that your test turned out good. But I'm so sorry that they didn't find the problem. That's been how it is with me since 1980. Test after test with no results--I got to the point that I wanted them to find something--no matter what it was. But nothing so far. It is so very frustrating to live with this especially because it's not an illness that is visible to anyone else. But my family and friends that know me can see it in my eyes when I'm really bad. If you're having shortness of breath, that's not good. Maybe you should see a heart Dr. I'll be praying for you. I truly believe that the Lord Jesus Christ can do miracles--He's helped me thru alot of hard times and I wonder why He hasn't healed me. But I know that I wouldn't be communicating with those of us that have this if I was healed now. So I will use the knowledge that I've obtained thru all of this to try to help someone else. I'm just so thankful to Him that I feel good enough to function half-way normally now, because 5 mths. ago I was homebound and in bad shape--2yrs and 6mths. of being very ill took it's toll on me. But with God's help--I made it--some days all I coiuld say to Him is That I'm A Child of The King!!! Now I'm able to read again--The Bible is my favorite--Driving is a joy--Just feeling alive again--I'm so Thankful and Grateful that I serve the Lord and that I'm His Child because one day none of this will matter. During my prayer time this morning--You will be at the top of my list. I pray that you have a good day today and remember to never give up on finding an answer. There is a sight I've found that is doing research--I haven't had time to give them my info but it looks promising--at least someone is doing research. The sight is https--survey.uiowa.edu-w I hope to do the survey today after I see my Dr. this afternoon. She had a test run on my legs to check the blood flow and hope that she has the results by now. Finding a Dr. who believes you and cares is so important. Have a good day and know that I truly care about you.
God Bless You and Yours Today and EveryDay precious49
Now, last few days, I am having shortness of breath - its always something with this FM - it never ends......
MaryAnn
Dearest Twinkie 50,
I'm so thankful that your test turned out good. But I'm so sorry that they didn't find the problem. That's been how it is with me since 1980. Test after test with no results--I got to the point that I wanted them to find something--no matter what it was. But nothing so far. It is so very frustrating to live with this especially because it's not an illness that is visible to anyone else. But my family and friends that know me can see it in my eyes when I'm really bad. If you're having shortness of breath, that's not good. Maybe you should see a heart Dr. I'll be praying for you. I truly believe that the Lord Jesus Christ can do miracles--He's helped me thru alot of hard times and I wonder why He hasn't healed me. But I know that I wouldn't be communicating with those of us that have this if I was healed now. So I will use the knowledge that I've obtained thru all of this to try to help someone else. I'm just so thankful to Him that I feel good enough to function half-way normally now, because 5 mths. ago I was homebound and in bad shape--2yrs and 6mths. of being very ill took it's toll on me. But with God's help--I made it--some days all I coiuld say to Him is That I'm A Child of The King!!! Now I'm able to read again--The Bible is my favorite--Driving is a joy--Just feeling alive again--I'm so Thankful and Grateful that I serve the Lord and that I'm His Child because one day none of this will matter. During my prayer time this morning--You will be at the top of my list. I pray that you have a good day today and remember to never give up on finding an answer. There is a sight I've found that is doing research--I haven't had time to give them my info but it looks promising--at least someone is doing research. The sight is https--survey.uiowa.edu-w I hope to do the survey today after I see my Dr. this afternoon. She had a test run on my legs to check the blood flow and hope that she has the results by now. Finding a Dr. who believes you and cares is so important. Have a good day and know that I truly care about you.
God Bless You and Yours Today and EveryDay precious49
Paddy55
12-01-2008, 01:40 PM
Hello. I thought I should let you know about Meniere's Disease. Tinnitus is a symptom of it. I am being treated for it for about a week now. The med I'm taking is Betahistine Hydrochloride. My symptoms? ringing and whooshing in my left ear, with generalized pain on the face and neck around my left ear. I was very dizzy, resulting in extreme nausea for about 3 weeks before we figured out what was happening. I had a sinus infection for which I went through 2 series of antibiotic treatment, and we thought perhaps it was "just that". I understand that Meniere's is most times found in folks over 50, the dizziness and tinnitus leading in some cases to severe disability - hearing loss, inability to drive/operate machinery, job loss, etc. It is caused by damage and/or disruption of the hair cells and fluid levels in the inner ear.
The med above is for ongoing treatment. When I have an acute attack, I have to lie very still and take dramamine. Covering the area with a dry facecloth for some reason helps (I think it warms the area). If it is not slowing down after resting like that for half hour, then I take some Ativan (lorazepam) - for some reason, it is suggested, and it most times works!
I'm not saying that any of you with tinnitus have Meniere's, but wanted to explain in case someone has symptoms on top of the tinnitus.
With serious empathy,
Paddy
The med above is for ongoing treatment. When I have an acute attack, I have to lie very still and take dramamine. Covering the area with a dry facecloth for some reason helps (I think it warms the area). If it is not slowing down after resting like that for half hour, then I take some Ativan (lorazepam) - for some reason, it is suggested, and it most times works!
I'm not saying that any of you with tinnitus have Meniere's, but wanted to explain in case someone has symptoms on top of the tinnitus.
With serious empathy,
Paddy
Twinkie50
12-01-2008, 05:46 PM
So sorry Paddy. My ENT did not mention Meniere's but he is a very good ENT and head/neck surgeon and I am sure he would have mentioned it if he thought it was that. I have had the pulsing tinnitus for about 14 years. Its just worse lately.
And, the shortness of breath I have had off/on for many years. However, this past weekend I had shortness of breath along with chest tightness and my heart was pounding. I did go to the ER after 2 days of worrying. Had 2 EKG's and a chest xray and bloodwork to rule out heart attack. My EKG was slightly irregular. Cardio had me come to his office next morning for echo of my heart which was perfect. Nebulizer treatment in the hosp. helped alot. I have to have a stress test to rule out cardiac but he feels its not.
I know shortness of breath can be from many things - I am seeing my regular doctor tomorrow but I like I said, I have had it before many times. They say its very common with FM - WHAT ISN'T !!!!!!!
I think its all cause I just turned 50 last month and I am falling apart!!!!
MaryAnn ;)
And, the shortness of breath I have had off/on for many years. However, this past weekend I had shortness of breath along with chest tightness and my heart was pounding. I did go to the ER after 2 days of worrying. Had 2 EKG's and a chest xray and bloodwork to rule out heart attack. My EKG was slightly irregular. Cardio had me come to his office next morning for echo of my heart which was perfect. Nebulizer treatment in the hosp. helped alot. I have to have a stress test to rule out cardiac but he feels its not.
I know shortness of breath can be from many things - I am seeing my regular doctor tomorrow but I like I said, I have had it before many times. They say its very common with FM - WHAT ISN'T !!!!!!!
I think its all cause I just turned 50 last month and I am falling apart!!!!
MaryAnn ;)
DBoucher
12-01-2008, 11:52 PM
[QUOTE=...I know shortness of breath can be from many things - I am seeing my regular doctor tomorrow but I like I said, I have had it before many times. They say its very common with FM - WHAT ISN'T !!!!!!!
I think its all cause I just turned 50 last month and I am falling apart!!!!
MaryAnn ;)[/QUOTE]
Are you doing an exercise treadmill stress test? If you are, go in with a positive attitude and just do your best.
Anxiety can also cause shortness of breath, (cardio docs call it SOB), chest tightness, and a "pounding heart". But, then again so can asthma...
Best of luck, and let us know how you do :)
Dave
I think its all cause I just turned 50 last month and I am falling apart!!!!
MaryAnn ;)[/QUOTE]
Are you doing an exercise treadmill stress test? If you are, go in with a positive attitude and just do your best.
Anxiety can also cause shortness of breath, (cardio docs call it SOB), chest tightness, and a "pounding heart". But, then again so can asthma...
Best of luck, and let us know how you do :)
Dave
Paddy55
12-02-2008, 10:39 AM
Twinkie - Wanted to wish you all the best with the future tests. It's good that you are going the full testing route to get the final answers.
Sometimes I get more "anxious" than I am usually, and my heart starts to "flutter" and bang around, and I have to practice slow, deep breathing exercises. Over 25 years of fibro, I had to teach myself some way to calm the rattled nerves. Yoga classes started it all, they teach how to breathe properly, how to be "in touch" with your physical being (the screaming pain didn't make me "in touch" enough?!?). Anyway, practising progressive muscle relaxation exercises as well as visualization exercises have helped me deal with the pain mentally, and in really bad situations, helped me with the anxiety-almost-panic part of the pain.
Twinkie - you are right to keep on looking and I hope all turns out to be "just the fibro". Whatever that means. ;)
Paddy
Sometimes I get more "anxious" than I am usually, and my heart starts to "flutter" and bang around, and I have to practice slow, deep breathing exercises. Over 25 years of fibro, I had to teach myself some way to calm the rattled nerves. Yoga classes started it all, they teach how to breathe properly, how to be "in touch" with your physical being (the screaming pain didn't make me "in touch" enough?!?). Anyway, practising progressive muscle relaxation exercises as well as visualization exercises have helped me deal with the pain mentally, and in really bad situations, helped me with the anxiety-almost-panic part of the pain.
Twinkie - you are right to keep on looking and I hope all turns out to be "just the fibro". Whatever that means. ;)
Paddy
Twinkie50
12-02-2008, 07:56 PM
Went to my regular doctor today. He is 100% its broncho spasm - wheezing a bit - cold weather makes it worse. My echo, ekg's all fine - He wants me to have a stress test just to make sure which is fine. My BP is perfect, cholesterol always perfect, and the inhaler helps alot, so that alone probably says its not my heart. Its really not shortness of breath - its more like air hunger - like I cannot get enough air in. I have had that many years, but since this cold hit me a few weeks ago, its been worse. At least I was checked out and will have the stress test just to make sure. Plus it comes and goes, with or without exertion, outside air makes it worse too. I do alot of deep breathing exercises and that helps alot too.
Thanks all - MaryAnn
Thanks all - MaryAnn
Paddy55
12-02-2008, 08:15 PM
Twinkie - I think that's fairly good news. Not really a surprise and you know the cold weather really makes it worse. So you'll get your stress test just to be sure, but there you are. With the good cholesterol and BP, you're sailing!
Take care,
Paddy
Take care,
Paddy
Twinkie50
12-03-2008, 06:11 PM
What amazes me about FM is that we feel HORRID all the time; have all kinds of weird pains, neuro problems, heart problems, skin problems - you name it. Yet, when we go for all kinds of testing, everything always comes back perfect. Its not like I want them to find something wrong, but how can we feel so awful, yet have negative tests???? Its quite a bizarre illness. I think the research is right - its absolutely something to do with our brains and the way they interpret pain and all other types of signals. Maybe viral? :confused: I wish they could find out so all of us could be helped. I've had this illness 1/2 my life, and quite honestly, am sick of it !!!!! :(
MaryAnn
MaryAnn
candy55
12-03-2008, 07:10 PM
hi ive been reading what most have written i too have been to many doctgrs and had blood tests and checkups and they say my problem is anxiety this is the first time im hearing of fibromyalgia what is it really :angel:
Paddy55
12-03-2008, 09:59 PM
Well Candy - there is certainly not a short answer to that question! Fibro is a disease of body pain, must be in the upper and lower parts of the body. The pain must have been around for at least 6 months, accompanied by extreme fatigue and a very large list of symptoms - some very disabling - and some almost inconsequential.
The best place for you to start learning about Fibro is by reading the list of symptoms on this Healthboard that is prepared by people who have it and worked to get an agreed-upon list of all of the symptoms. To find this information, look for a post under the Fibromyalgia list of posts, near the very beginning, along with other posts that are called "Stickies". It is near the top of the list and it's called Fibromyalgia Disease Archive of Symptoms. This is an extensive list, so one person would not likely have all of these symptoms, but each of us suffers from some of those listed.
Once you read the list, you can ask some specific questions related to your symptoms and the tests and treatments you have had so far. It would help if you started a new post saying you are new, that you think you might have fibro, and give us some details.
I hope this helps Candy. You have come to a good place to find answers and support. Welcome. :)
Wishing you peace and comfort,
Paddy
The best place for you to start learning about Fibro is by reading the list of symptoms on this Healthboard that is prepared by people who have it and worked to get an agreed-upon list of all of the symptoms. To find this information, look for a post under the Fibromyalgia list of posts, near the very beginning, along with other posts that are called "Stickies". It is near the top of the list and it's called Fibromyalgia Disease Archive of Symptoms. This is an extensive list, so one person would not likely have all of these symptoms, but each of us suffers from some of those listed.
Once you read the list, you can ask some specific questions related to your symptoms and the tests and treatments you have had so far. It would help if you started a new post saying you are new, that you think you might have fibro, and give us some details.
I hope this helps Candy. You have come to a good place to find answers and support. Welcome. :)
Wishing you peace and comfort,
Paddy
Snowbird
12-08-2008, 09:48 AM
I've had tinnitus all my life. However I have had 2 operations on my left hear and have always attributed the tinnitus to my hearing loss. I've suffered FM for over 40 years and it never occurred to me to think the tinnitus was related to the FM. The tinnitus was a constant ringing and whirring sound.
Then last year I began suffering pulsatle tinnitus. that is it would pulsate to the beat of my heart. So I had the two types to contend with and it was driving me batty! I had an ultrasound, went to an ENT and I forget right now what other test they did ... all results normal.
For years I was taking a beta blocker to try to alleviate migraine headaches and while on this medication I still had the tinnitus. So the vascular concept didn't really apply in my case.
So yeah I think this tinnitus is just another annoying symptom of FM. If it's any consolation to us, while it is annoying it is not painful like other FM symptoms.
Then last year I began suffering pulsatle tinnitus. that is it would pulsate to the beat of my heart. So I had the two types to contend with and it was driving me batty! I had an ultrasound, went to an ENT and I forget right now what other test they did ... all results normal.
For years I was taking a beta blocker to try to alleviate migraine headaches and while on this medication I still had the tinnitus. So the vascular concept didn't really apply in my case.
So yeah I think this tinnitus is just another annoying symptom of FM. If it's any consolation to us, while it is annoying it is not painful like other FM symptoms.
precious49
12-09-2008, 10:46 AM
Snowbird--Hello,
I would love to be a snowbird. Tinnitus is awful to have to live with--I'll be glad when the Drs. figure it out and won't it be great if they finally find a test that will show something. I'm not sure and my Dr. isn't either, what I have. But with her research, mine and help from God, maybe, we'll figure it out. I have so many weird things happening to my body. I just love what you said Thoughts become things--Choose good ones. God Bless You and Yours Today and EveryDay precious49
I would love to be a snowbird. Tinnitus is awful to have to live with--I'll be glad when the Drs. figure it out and won't it be great if they finally find a test that will show something. I'm not sure and my Dr. isn't either, what I have. But with her research, mine and help from God, maybe, we'll figure it out. I have so many weird things happening to my body. I just love what you said Thoughts become things--Choose good ones. God Bless You and Yours Today and EveryDay precious49
chiclero
12-25-2008, 04:25 AM
oh yes, it happens to me too. usually in one ear more than the other, but it has happened in both. it happens a lot if i squint, and as you said, bright lights are involved. ... and then the wing flapping sound starts....
i get it too -- never noticed a connection to lights before.
but I have had a wierd thing going the other direction -- i bet nobody's had this: I was at an indie rock concert once and the music was pretty quiet except for one really low and loud bass + bass drum sound. every time they hit that note, one or both of my eyes would rotate around the line of sight so that I had a wierd double image - not one image next to the other, but one in one orientation and the other in the same place but rotated around the middle. Then it would take a few seconds to go back to normal. pretty annoying. i had to leave.
i get it too -- never noticed a connection to lights before.
but I have had a wierd thing going the other direction -- i bet nobody's had this: I was at an indie rock concert once and the music was pretty quiet except for one really low and loud bass + bass drum sound. every time they hit that note, one or both of my eyes would rotate around the line of sight so that I had a wierd double image - not one image next to the other, but one in one orientation and the other in the same place but rotated around the middle. Then it would take a few seconds to go back to normal. pretty annoying. i had to leave.