bcos7
11-17-2008, 10:21 PM
I Dont know where to turn my daughter has been sick for 9 weeks. I came on like the flu and has not been contagious nor has it gone away. (Sadly to say.) She is only 9 and started vomiting and diaherra and hyper senitive sever body pain. Her back and neck hurt severly for aleast 2 to 3 months befor this started. She does have scoliosis and mild spinal biffida and one of her vertabras is fussed together by it self. She has been going to a chiorpractor for 4 year regularly and handled her adjustments no problem then one day and every time after that just touching her back made her scream in extream pain. After 3 months of that came the stomach pain and could not even keep water down took her to er and they did test sent her home for a poop sample to bring back as she puked going out the door and they gave her valium toridol and morphine for the pain and nothing for home it has been several weeks nothing came back on poop test going to gasterologist and he is thinking ibs. Spine doc ordered full spine bone scan and 3 d scan no results. She also has petimal seizures. and has had her apendix and guallbladder out and tonsiles out and adnoids all were need despertly to be removed now I dont know how to help he ped doct has no answers spine doct said go to u of m of no answers soon we see stomach doct tomorrow and neuroligist wed. new symptom sometimes she cant hold her self up to walk she said she is too weak and she all thru this screams in pain cause of back and stomach and when she has bm. Has anyone had this happen before or do you have any suggestion. she does have almost all symptoms of fibromyalgia how do I find out if it is that can not find any doct in michigan who treat children for this in children. PLEASE HELP IT FEEL HOPELESS NOT GETTING ANY WHERE SHE JUST GET WORSE AND WORSE.
mother looking for help to get child well. any suggestions.
mother looking for help to get child well. any suggestions.
Sponsor
bcos7
11-17-2008, 11:49 PM
my daughter has fibromyalgia and I can not find a doctor in michigan to treat children with Fibromyalgia and suggestions?
DeBeachSiren
11-18-2008, 03:41 AM
Hi bc,
Wow, sorry that your little one is so ill. Fibro is fibro no matter how old you are. Do you have any pain specialists? That's what I've done for over 17 years. Maybe you can get info from fibro support groups. She has so many health problems that I imagine it is hard for a doctor to treat her. The only other thing I can think of is maybe to take her to an infectious disease doctor. My daughter was 24 at the time and she had like flu and hurt and was vomiting and losing weight, etc.. Test she had been given came back with false positives, etc.. I made her an appt. with an infectious disease doc and he admitted her to the hospital right from the office. Out of all these symptoms that stumped the other doctors he looked at her and pretty much knew what was wrong with her. Ended up she had a very rare type of heart valve problem and 8 long weeks of IV's 24-7 and goes to a cardiologist evey 4 months. That was five years ago. This is not to scare you or anything, but sometimes when a person sees the same thing over and over they aren't able to look passed it and see something else. When I first got sick with fibro the doctors I think didn't know what to do anymore and rheumys and neuro doctors couldn't get passed things either. I went to a young new doctor and got a new young pain specialist and bingo, my whole world changed. I'm not cured, but I sure have a better quality of life than I did without them. I hope I've been of a little help. My prayers go out to you and your family.
DeBeachSiren
Wow, sorry that your little one is so ill. Fibro is fibro no matter how old you are. Do you have any pain specialists? That's what I've done for over 17 years. Maybe you can get info from fibro support groups. She has so many health problems that I imagine it is hard for a doctor to treat her. The only other thing I can think of is maybe to take her to an infectious disease doctor. My daughter was 24 at the time and she had like flu and hurt and was vomiting and losing weight, etc.. Test she had been given came back with false positives, etc.. I made her an appt. with an infectious disease doc and he admitted her to the hospital right from the office. Out of all these symptoms that stumped the other doctors he looked at her and pretty much knew what was wrong with her. Ended up she had a very rare type of heart valve problem and 8 long weeks of IV's 24-7 and goes to a cardiologist evey 4 months. That was five years ago. This is not to scare you or anything, but sometimes when a person sees the same thing over and over they aren't able to look passed it and see something else. When I first got sick with fibro the doctors I think didn't know what to do anymore and rheumys and neuro doctors couldn't get passed things either. I went to a young new doctor and got a new young pain specialist and bingo, my whole world changed. I'm not cured, but I sure have a better quality of life than I did without them. I hope I've been of a little help. My prayers go out to you and your family.
DeBeachSiren