rosebuddy
11-19-2008, 08:36 AM
i think a lot of my fibro was triggered by stress. And at onset i became hypersensitive to sounds like the crickets outside sounded like they were in my ears, the fan sounded like an airplane propeller. I couldn't stand the sound of a baseball game on tv; it was just too much noise.
I couldn't stand a/c and it burned my skin and caused my muscles to knot up.
I also couldn't take the smell of hairspray or perfume on someone even if i was just walking by. Or the smell of the laundry isle in the grocery store.
I was sensitive to touch also. i had to wear soft clothes with no tags at the neck. the tags would drive me me absolutely nuts.
I was cold all the time and would stay in my room with the a/c vent closed. when i went to the doctor, which is the only place i went practically, i had to take a blanket.
My skin burned once from head to toe and i was jumping around because the soles of my feet were burning.
My muscles lurched.
And i could not complete a single sentence. i would forget my words every time. I could not sort bills let alone write out the checks. i would just get overwhelmed. It took me hours to get ready for doctor appointments, someone would have to drive me and when i got there i couldn't communicate clearly and many times i would cry. all of these things would throw me into a worse flare.
i couldn't cook a can of beans without burning it. my family had to do everything. they were great.
i also had cmp all over my body in chains from neck to my feet with nerve entrapment.
I just think it was my body saying enough. Stop multi tasking, stop rushing around, turn down the radio, stop worrying, and stop working out at 4:30 am. etc. My central nervous system just went haywire. (Which Devin Starlanyl states in her book that fms is a cns disorder not an audio-immune disorder. Many times triggered by whiplash, old whiplash, and other injuries, but not always) I had an old whiplash.
The good news is none of those things bother me anymore. I am back to work part time. I can wear clothes with tags sometimes! I can listen to the radio and drive. I still don't like strong perfume, but i love scented candles which before i couldn't tolerate either. I can multi task. and i don't have any active trigger points. but my tender points around my clavical and elbows hurt sometimes. the burning skin is gone. I am back to normal. the only thing i have is stiffness in the morning, and tiredess and muscle pain when the weather changes or if i really over do it, like when i painted 3 rooms in the house. it is still hard for me to learn to do new things. It takes a lot of repitetion.
I just wondered if anyone else experienced these things and to let you know that you can get better. Just because you have fibro doesn't mean that it will get worse, like lupus or ms. and it can even go away for the most part.
I feel very blessed and am grateful. I wish you all feel better soon too.
I couldn't stand a/c and it burned my skin and caused my muscles to knot up.
I also couldn't take the smell of hairspray or perfume on someone even if i was just walking by. Or the smell of the laundry isle in the grocery store.
I was sensitive to touch also. i had to wear soft clothes with no tags at the neck. the tags would drive me me absolutely nuts.
I was cold all the time and would stay in my room with the a/c vent closed. when i went to the doctor, which is the only place i went practically, i had to take a blanket.
My skin burned once from head to toe and i was jumping around because the soles of my feet were burning.
My muscles lurched.
And i could not complete a single sentence. i would forget my words every time. I could not sort bills let alone write out the checks. i would just get overwhelmed. It took me hours to get ready for doctor appointments, someone would have to drive me and when i got there i couldn't communicate clearly and many times i would cry. all of these things would throw me into a worse flare.
i couldn't cook a can of beans without burning it. my family had to do everything. they were great.
i also had cmp all over my body in chains from neck to my feet with nerve entrapment.
I just think it was my body saying enough. Stop multi tasking, stop rushing around, turn down the radio, stop worrying, and stop working out at 4:30 am. etc. My central nervous system just went haywire. (Which Devin Starlanyl states in her book that fms is a cns disorder not an audio-immune disorder. Many times triggered by whiplash, old whiplash, and other injuries, but not always) I had an old whiplash.
The good news is none of those things bother me anymore. I am back to work part time. I can wear clothes with tags sometimes! I can listen to the radio and drive. I still don't like strong perfume, but i love scented candles which before i couldn't tolerate either. I can multi task. and i don't have any active trigger points. but my tender points around my clavical and elbows hurt sometimes. the burning skin is gone. I am back to normal. the only thing i have is stiffness in the morning, and tiredess and muscle pain when the weather changes or if i really over do it, like when i painted 3 rooms in the house. it is still hard for me to learn to do new things. It takes a lot of repitetion.
I just wondered if anyone else experienced these things and to let you know that you can get better. Just because you have fibro doesn't mean that it will get worse, like lupus or ms. and it can even go away for the most part.
I feel very blessed and am grateful. I wish you all feel better soon too.
Sponsor
1stBlush
11-19-2008, 10:04 AM
I'm so happy for you! Celebrate every victory.
seaturtle
11-19-2008, 08:40 PM
May I ask what you think helped you get better?
Thanks!
Seaturtle
Thanks!
Seaturtle
rosebuddy
11-20-2008, 07:13 AM
Gosh, you know I don't really know. The sensory stuff just faded slowly away. Then the burning skin was just in patches. Magnesium made a huge difference in my muscle pain. I didn't mention that i was bedridden for a month and then holed up in my room. Onset of fibro hit me like a ton of bricks. The chronic myofascial pain in my back and neck was so bad that i couldn't turn my head. I had a lot of injections and physical therapy for about 2 years. and that entire time i couldn't sit for long periods because of trigger points. all that stuff is gone. I do have foot pain but i think it mostly because i went from 125 to 210. and i can't walk it off, i recently started swimming and so i have some hope of losing the weight. I used to take malic acid, but i ran out and haven't got more. I dunno, i just gradually got better.
Pammyann
11-24-2008, 05:32 PM
Good for you that you feel better!
Sounds very much like me last year for about 2 months. I got better after I went to rehabilitation and physical therapy specialist. They put me on meds (Lyrica and Cymbalta) and put me through physical therapy. It took quite a while but I feel quite good these days.
Sounds very much like me last year for about 2 months. I got better after I went to rehabilitation and physical therapy specialist. They put me on meds (Lyrica and Cymbalta) and put me through physical therapy. It took quite a while but I feel quite good these days.
caroleye
01-04-2009, 02:10 PM
i think a lot of my fibro was triggered by stress. And at onset i became hypersensitive to sounds like the crickets outside sounded like they were in my ears, the fan sounded like an airplane propeller. I couldn't stand the sound of a baseball game on tv; it was just too much noise.
I couldn't stand a/c and it burned my skin and caused my muscles to knot up.
I also couldn't take the smell of hairspray or perfume on someone even if i was just walking by. Or the smell of the laundry isle in the grocery store.
I was sensitive to touch also. i had to wear soft clothes with no tags at the neck. the tags would drive me me absolutely nuts.
I was cold all the time and would stay in my room with the a/c vent closed. when i went to the doctor, which is the only place i went practically, i had to take a blanket.
My skin burned once from head to toe and i was jumping around because the soles of my feet were burning.
My muscles lurched.
And i could not complete a single sentence. i would forget my words every time. I could not sort bills let alone write out the checks. i would just get overwhelmed. It took me hours to get ready for doctor appointments, someone would have to drive me and when i got there i couldn't communicate clearly and many times i would cry. all of these things would throw me into a worse flare.
i couldn't cook a can of beans without burning it. my family had to do everything. they were great.
i also had cmp all over my body in chains from neck to my feet with nerve entrapment.
I just think it was my body saying enough. Stop multi tasking, stop rushing around, turn down the radio, stop worrying, and stop working out at 4:30 am. etc. My central nervous system just went haywire. (Which Devin Starlanyl states in her book that fms is a cns disorder not an audio-immune disorder. Many times triggered by whiplash, old whiplash, and other injuries, but not always) I had an old whiplash.
The good news is none of those things bother me anymore. I am back to work part time. I can wear clothes with tags sometimes! I can listen to the radio and drive. I still don't like strong perfume, but i love scented candles which before i couldn't tolerate either. I can multi task. and i don't have any active trigger points. but my tender points around my clavical and elbows hurt sometimes. the burning skin is gone. I am back to normal. the only thing i have is stiffness in the morning, and tiredess and muscle pain when the weather changes or if i really over do it, like when i painted 3 rooms in the house. it is still hard for me to learn to do new things. It takes a lot of repitetion.
I just wondered if anyone else experienced these things and to let you know that you can get better. Just because you have fibro doesn't mean that it will get worse, like lupus or ms. and it can even go away for the most part.
I feel very blessed and am grateful. I wish you all feel better soon too.
I couldn't stand a/c and it burned my skin and caused my muscles to knot up.
I also couldn't take the smell of hairspray or perfume on someone even if i was just walking by. Or the smell of the laundry isle in the grocery store.
I was sensitive to touch also. i had to wear soft clothes with no tags at the neck. the tags would drive me me absolutely nuts.
I was cold all the time and would stay in my room with the a/c vent closed. when i went to the doctor, which is the only place i went practically, i had to take a blanket.
My skin burned once from head to toe and i was jumping around because the soles of my feet were burning.
My muscles lurched.
And i could not complete a single sentence. i would forget my words every time. I could not sort bills let alone write out the checks. i would just get overwhelmed. It took me hours to get ready for doctor appointments, someone would have to drive me and when i got there i couldn't communicate clearly and many times i would cry. all of these things would throw me into a worse flare.
i couldn't cook a can of beans without burning it. my family had to do everything. they were great.
i also had cmp all over my body in chains from neck to my feet with nerve entrapment.
I just think it was my body saying enough. Stop multi tasking, stop rushing around, turn down the radio, stop worrying, and stop working out at 4:30 am. etc. My central nervous system just went haywire. (Which Devin Starlanyl states in her book that fms is a cns disorder not an audio-immune disorder. Many times triggered by whiplash, old whiplash, and other injuries, but not always) I had an old whiplash.
The good news is none of those things bother me anymore. I am back to work part time. I can wear clothes with tags sometimes! I can listen to the radio and drive. I still don't like strong perfume, but i love scented candles which before i couldn't tolerate either. I can multi task. and i don't have any active trigger points. but my tender points around my clavical and elbows hurt sometimes. the burning skin is gone. I am back to normal. the only thing i have is stiffness in the morning, and tiredess and muscle pain when the weather changes or if i really over do it, like when i painted 3 rooms in the house. it is still hard for me to learn to do new things. It takes a lot of repitetion.
I just wondered if anyone else experienced these things and to let you know that you can get better. Just because you have fibro doesn't mean that it will get worse, like lupus or ms. and it can even go away for the most part.
I feel very blessed and am grateful. I wish you all feel better soon too.
caroleye
01-04-2009, 02:11 PM
The complete description of your symptoms are mine "now". Please share what you have done to become so much better.
I live the life of a hermit to avoid as much stress as possible. Of course being in my 60's isn't of help either.
Thanks for sharing & congrats on your progress.
I live the life of a hermit to avoid as much stress as possible. Of course being in my 60's isn't of help either.
Thanks for sharing & congrats on your progress.
rosebuddy
01-04-2009, 04:08 PM
Hi,
The hypersensitivity slowly faded. As did the burning skin. Neurontin was the only med that gave me relief by the way. I had many trips to my pain mgmt doc who gave me trigger point injections (not tender points) into the knots of muscles that were referring pain to other parts of my body or that just hurt. She does the trp injections under an xray machine. She shot me all over and it must have been the perfect combination because I could finally sit in a chair. Actually i had a flare last week with a 24 hour bug and i was just so sore and achey. And my but had started to hurt because i lifted a 40 lb bag of rock salt to the under part of a grocery cart. i was really scared because i couldn't sit for more than a few minutes and i was having muscle pain in my back. i started crying in her office because i thought i was out of remission or something and would have to quit my job. i was scared. Get this... she injected a trp in my clavical/shoulder area that released the muscle so my shoulder was back like my other shoulder. She gave me a few other quick shots in my lower back and wa-la. i could sit again. and i was better by morning and went to work.
i know i have to be careful though. I find my self stressing at work, it takes me so long to learn a task and i had to make a notebook of just about everything i do. i completely forget how to do a task and i have been there 3 months. But i have my notebook to refer to. i have a fear of not getting my work done and getting fired, so i bring work home to finish. I have been holding my breath and breathing shallow. stress. And i gotta change my thought patterns because i think stress was the biggest trigger to my getting fibromyaglia and chronic myofascial pain. It is just a part time job. I'm not going to cause a relapse of all my symptoms over it. it just is not worth it. I refuse to multi task. I don't think God made us that way. I refuse to rush around. And i am so glad i learned this and remembered the way i used to feel. God, i was so sick and in so much pain i was bedridden, alone in my bedroom. i never want to go back to that.
so i don't know what else to tell you. it was not a magical vitamin or exercise. although the balance ball is not good for me. i used one for about 6 months before my doc said it undoing what she was doing. I strongly believe in the body mind connection. I take meds for depression and anxiety and i don't let things get to me like i used to. Central nervous system does include the brain.
I would say the number one thing that helped me was the trigger point injections. #2 is taking an antidepressant ( i take wellbutrin) I take lamictal which is a mood stablizer and i sleep 7 to 8 hours a night without waking up. flexeril also helps me sleep as does valium.
I hope i helped. all this is in the book "Fibromyalgia and Chronic Myofascial Pain" by Devin Starlanyl. I saw a few copies at the book store yesterday. I do not know what i would have done without this book. I thought i was going crazy.
I hope you feel better soon.
The hypersensitivity slowly faded. As did the burning skin. Neurontin was the only med that gave me relief by the way. I had many trips to my pain mgmt doc who gave me trigger point injections (not tender points) into the knots of muscles that were referring pain to other parts of my body or that just hurt. She does the trp injections under an xray machine. She shot me all over and it must have been the perfect combination because I could finally sit in a chair. Actually i had a flare last week with a 24 hour bug and i was just so sore and achey. And my but had started to hurt because i lifted a 40 lb bag of rock salt to the under part of a grocery cart. i was really scared because i couldn't sit for more than a few minutes and i was having muscle pain in my back. i started crying in her office because i thought i was out of remission or something and would have to quit my job. i was scared. Get this... she injected a trp in my clavical/shoulder area that released the muscle so my shoulder was back like my other shoulder. She gave me a few other quick shots in my lower back and wa-la. i could sit again. and i was better by morning and went to work.
i know i have to be careful though. I find my self stressing at work, it takes me so long to learn a task and i had to make a notebook of just about everything i do. i completely forget how to do a task and i have been there 3 months. But i have my notebook to refer to. i have a fear of not getting my work done and getting fired, so i bring work home to finish. I have been holding my breath and breathing shallow. stress. And i gotta change my thought patterns because i think stress was the biggest trigger to my getting fibromyaglia and chronic myofascial pain. It is just a part time job. I'm not going to cause a relapse of all my symptoms over it. it just is not worth it. I refuse to multi task. I don't think God made us that way. I refuse to rush around. And i am so glad i learned this and remembered the way i used to feel. God, i was so sick and in so much pain i was bedridden, alone in my bedroom. i never want to go back to that.
so i don't know what else to tell you. it was not a magical vitamin or exercise. although the balance ball is not good for me. i used one for about 6 months before my doc said it undoing what she was doing. I strongly believe in the body mind connection. I take meds for depression and anxiety and i don't let things get to me like i used to. Central nervous system does include the brain.
I would say the number one thing that helped me was the trigger point injections. #2 is taking an antidepressant ( i take wellbutrin) I take lamictal which is a mood stablizer and i sleep 7 to 8 hours a night without waking up. flexeril also helps me sleep as does valium.
I hope i helped. all this is in the book "Fibromyalgia and Chronic Myofascial Pain" by Devin Starlanyl. I saw a few copies at the book store yesterday. I do not know what i would have done without this book. I thought i was going crazy.
I hope you feel better soon.
caroleye
01-04-2009, 06:42 PM
Thanks for all your helpful info. I've put the book on hold at the library. And will do some research on triggr point injections.
lifonahil
01-05-2009, 12:55 AM
i think a lot of my fibro was triggered by stress. And at onset i became hypersensitive to sounds like the crickets outside sounded like they were in my ears, the fan sounded like an airplane propeller. I couldn't stand the sound of a baseball game on tv; it was just too much noise.
I couldn't stand a/c and it burned my skin and caused my muscles to knot up.
I also couldn't take the smell of hairspray or perfume on someone even if i was just walking by. Or the smell of the laundry isle in the grocery store.
I was sensitive to touch also. i had to wear soft clothes with no tags at the neck. the tags would drive me me absolutely nuts.
I was cold all the time and would stay in my room with the a/c vent closed. when i went to the doctor, which is the only place i went practically, i had to take a blanket.
My skin burned once from head to toe and i was jumping around because the soles of my feet were burning.
My muscles lurched.
And i could not complete a single sentence. i would forget my words every time. I could not sort bills let alone write out the checks. i would just get overwhelmed. It took me hours to get ready for doctor appointments, someone would have to drive me and when i got there i couldn't communicate clearly and many times i would cry. all of these things would throw me into a worse flare.
i couldn't cook a can of beans without burning it. my family had to do everything. they were great.
i also had cmp all over my body in chains from neck to my feet with nerve entrapment.
I just think it was my body saying enough. Stop multi tasking, stop rushing around, turn down the radio, stop worrying, and stop working out at 4:30 am. etc. My central nervous system just went haywire. (Which Devin Starlanyl states in her book that fms is a cns disorder not an audio-immune disorder. Many times triggered by whiplash, old whiplash, and other injuries, but not always) I had an old whiplash.
The good news is none of those things bother me anymore. I am back to work part time. I can wear clothes with tags sometimes! I can listen to the radio and drive. I still don't like strong perfume, but i love scented candles which before i couldn't tolerate either. I can multi task. and i don't have any active trigger points. but my tender points around my clavical and elbows hurt sometimes. the burning skin is gone. I am back to normal. the only thing i have is stiffness in the morning, and tiredess and muscle pain when the weather changes or if i really over do it, like when i painted 3 rooms in the house. it is still hard for me to learn to do new things. It takes a lot of repitetion.
I just wondered if anyone else experienced these things and to let you know that you can get better. Just because you have fibro doesn't mean that it will get worse, like lupus or ms. and it can even go away for the most part.
I feel very blessed and am grateful. I wish you all feel better soon too.
I feel the same way about my senses. Sometimes i can not stand any smells. They seems so over powering.
I couldn't stand a/c and it burned my skin and caused my muscles to knot up.
I also couldn't take the smell of hairspray or perfume on someone even if i was just walking by. Or the smell of the laundry isle in the grocery store.
I was sensitive to touch also. i had to wear soft clothes with no tags at the neck. the tags would drive me me absolutely nuts.
I was cold all the time and would stay in my room with the a/c vent closed. when i went to the doctor, which is the only place i went practically, i had to take a blanket.
My skin burned once from head to toe and i was jumping around because the soles of my feet were burning.
My muscles lurched.
And i could not complete a single sentence. i would forget my words every time. I could not sort bills let alone write out the checks. i would just get overwhelmed. It took me hours to get ready for doctor appointments, someone would have to drive me and when i got there i couldn't communicate clearly and many times i would cry. all of these things would throw me into a worse flare.
i couldn't cook a can of beans without burning it. my family had to do everything. they were great.
i also had cmp all over my body in chains from neck to my feet with nerve entrapment.
I just think it was my body saying enough. Stop multi tasking, stop rushing around, turn down the radio, stop worrying, and stop working out at 4:30 am. etc. My central nervous system just went haywire. (Which Devin Starlanyl states in her book that fms is a cns disorder not an audio-immune disorder. Many times triggered by whiplash, old whiplash, and other injuries, but not always) I had an old whiplash.
The good news is none of those things bother me anymore. I am back to work part time. I can wear clothes with tags sometimes! I can listen to the radio and drive. I still don't like strong perfume, but i love scented candles which before i couldn't tolerate either. I can multi task. and i don't have any active trigger points. but my tender points around my clavical and elbows hurt sometimes. the burning skin is gone. I am back to normal. the only thing i have is stiffness in the morning, and tiredess and muscle pain when the weather changes or if i really over do it, like when i painted 3 rooms in the house. it is still hard for me to learn to do new things. It takes a lot of repitetion.
I just wondered if anyone else experienced these things and to let you know that you can get better. Just because you have fibro doesn't mean that it will get worse, like lupus or ms. and it can even go away for the most part.
I feel very blessed and am grateful. I wish you all feel better soon too.
I feel the same way about my senses. Sometimes i can not stand any smells. They seems so over powering.