Sidekick01
11-19-2008, 11:04 PM
why does the pain in my feet get worse after I am off them for awhile?Ihave been diagnosed with PN which they say is due to undiagnosed diabetes type 2. At times I can barely walk due to the numbness and pain.
Sponsor
cream9518
11-20-2008, 02:49 PM
Dear sidekick01, being not diabetic, like me, you have idiopathic neuropathy. Have been like this for a couple of years with numbness and burning in my feet going up my legs. The burning is now in buttocks, especially when sitting and sleeping. Neurologist jokingly said I have restless butt syndrome. I am taking 300mgs of lyrica and also percocet for pain. I take ambien because I would never be able to sleep because the pain is worse at night What medications are you taking. Please let me know hou you are coping with this,
Cream78:angel:
Cream78:angel:
Sidekick01
11-20-2008, 03:48 PM
Dear sidekick01, being not diabetic, like me, you have idiopathic neuropathy. Have been like this for a couple of years with numbness and burning in my feet going up my legs. The burning is now in buttocks, especially when sitting and sleeping. Neurologist jokingly said I have restless butt syndrome. I am taking 300mgs of lyrica and also percocet for pain. I take ambien because I would never be able to sleep because the pain is worse at night What medications are you taking. Please let me know hou you are coping with this,
Cream78:angel:
I am sorry, guess I didn't say it right. I am diabetic ( just diagnosed this year) but have had the numbness for years in my feet for about 6 years and never was checked for diabetes. I am on metformin 250mg 3x daily for the diabetes and just this last year since diagnosed also on gabapentin 400 mg 4x daily for the pain in my feet. I find it hard to walk and particularly stand. I have had jabbing pains as well this last year in my feet and sometimes my hands. I feel unbalanced because of the numbness. I am still trying to work as I have 1 year left till early retirement but questionable whether I will make it. My question was regarding the fact that I have noticed when I am not on my feet (sitting or after sleeping ) my feet seem unbearably worse to the point I can hardly bear to stand up or walk. The pain decreases after a few minutes although still very painful. Just wondering if this is the same with others and why? Thanks for your reply
Cream78:angel:
I am sorry, guess I didn't say it right. I am diabetic ( just diagnosed this year) but have had the numbness for years in my feet for about 6 years and never was checked for diabetes. I am on metformin 250mg 3x daily for the diabetes and just this last year since diagnosed also on gabapentin 400 mg 4x daily for the pain in my feet. I find it hard to walk and particularly stand. I have had jabbing pains as well this last year in my feet and sometimes my hands. I feel unbalanced because of the numbness. I am still trying to work as I have 1 year left till early retirement but questionable whether I will make it. My question was regarding the fact that I have noticed when I am not on my feet (sitting or after sleeping ) my feet seem unbearably worse to the point I can hardly bear to stand up or walk. The pain decreases after a few minutes although still very painful. Just wondering if this is the same with others and why? Thanks for your reply
woondog
11-22-2008, 01:21 AM
Hi there. I've had pn for about 28 years. I have had an argument with the department
head of the Neuropathy Division, Kaiser Hospital who said that while exercise is
important in treating pn, there is no need for any "pressure sensitive " kinds of exercise
such as pounding on the treadmill. While I have little medical knowledge,I disagreed with
him because exercise, exercise that includes pounding, is a very effective tool in
reducing pain.
Listen up...this is very important. Don't look at this as the end of your life. I want
you to declare war on your PN. If your heart, etc., is ok, get on the treadmill or start
walking. At first, go slow and long. After awhile, go fast and long. At the beginning, it will be painful....but keep at it with dedication. After awhile, the pain will go away. Then
your PN pain will go away while on the treadmill and for some time afterwards.
Take as much pain killer as will assuage your pain.If you are offered just percoset and
you still have intense pain, get something stronger. There is no need to live with
lightening strikes of pain. If you watch your blood sugars, reading labels on foods
as if they were life and death items so that you learn that a product can state:
Sugar free but then you read sugar alcohols, corn syrup, Maliton, and many other
ingredients which really are sugars, lose weight if you're obese, and walk then run
for your life. You will beat it. Don't surrender. Treat the PN like a scurvy sucker that
is about to maul you. Confront it. And when you beat it.......be proud. This is your
personal battle and there is nobody out there who will be able to fight it but you.
head of the Neuropathy Division, Kaiser Hospital who said that while exercise is
important in treating pn, there is no need for any "pressure sensitive " kinds of exercise
such as pounding on the treadmill. While I have little medical knowledge,I disagreed with
him because exercise, exercise that includes pounding, is a very effective tool in
reducing pain.
Listen up...this is very important. Don't look at this as the end of your life. I want
you to declare war on your PN. If your heart, etc., is ok, get on the treadmill or start
walking. At first, go slow and long. After awhile, go fast and long. At the beginning, it will be painful....but keep at it with dedication. After awhile, the pain will go away. Then
your PN pain will go away while on the treadmill and for some time afterwards.
Take as much pain killer as will assuage your pain.If you are offered just percoset and
you still have intense pain, get something stronger. There is no need to live with
lightening strikes of pain. If you watch your blood sugars, reading labels on foods
as if they were life and death items so that you learn that a product can state:
Sugar free but then you read sugar alcohols, corn syrup, Maliton, and many other
ingredients which really are sugars, lose weight if you're obese, and walk then run
for your life. You will beat it. Don't surrender. Treat the PN like a scurvy sucker that
is about to maul you. Confront it. And when you beat it.......be proud. This is your
personal battle and there is nobody out there who will be able to fight it but you.
woondog
11-22-2008, 01:23 AM
I am sorry, guess I didn't say it right. I am diabetic ( just diagnosed this year) but have had the numbness for years in my feet for about 6 years and never was checked for diabetes. I am on metformin 250mg 3x daily for the diabetes and just this last year since diagnosed also on gabapentin 400 mg 4x daily for the pain in my feet. I find it hard to walk and particularly stand. I have had jabbing pains as well this last year in my feet and sometimes my hands. I feel unbalanced because of the numbness. I am still trying to work as I have 1 year left till early retirement but questionable whether I will make it. My question was regarding the fact that I have noticed when I am not on my feet (sitting or after sleeping ) my feet seem unbearably worse to the point I can hardly bear to stand up or walk. The pain decreases after a few minutes although still very painful. Just wondering if this is the same with others and why? Thanks for your reply
Hi there. I've had pn for about 28 years. I have had an argument with the department
head of the Neuropathy Division, Kaiser Hospital who said that while exercise is
important in treating pn, there is no need for any "pressure sensitive " kinds of exercise
such as pounding on the treadmill. While I have little medical knowledge,I disagreed with
him because exercise, exercise that includes pounding, is a very effective tool in
reducing pain.
Listen up...this is very important. Don't look at this as the end of your life. I want
you to declare war on your PN. If your heart, etc., is ok, get on the treadmill or start
walking. At first, go slow and long. After awhile, go fast and long. At the beginning, it will be painful....but keep at it with dedication. After awhile, the pain will go away. Then
your PN pain will go away while on the treadmill and for some time afterwards.
Take as much pain killer as will assuage your pain.If you are offered just percoset and
you still have intense pain, get something stronger. There is no need to live with
lightening strikes of pain. If you watch your blood sugars, reading labels on foods
as if they were life and death items so that you learn that a product can state:
Sugar free but then you read sugar alcohols, corn syrup, Maliton, and many other
ingredients which really are sugars, lose weight if you're obese, and walk then run
for your life. You will beat it. Don't surrender. Treat the PN like a scurvy sucker that
is about to maul you. Confront it. And when you beat it.......be proud. This is your
personal battle and there is nobody out there who will be able to fight it but you.
Hi there. I've had pn for about 28 years. I have had an argument with the department
head of the Neuropathy Division, Kaiser Hospital who said that while exercise is
important in treating pn, there is no need for any "pressure sensitive " kinds of exercise
such as pounding on the treadmill. While I have little medical knowledge,I disagreed with
him because exercise, exercise that includes pounding, is a very effective tool in
reducing pain.
Listen up...this is very important. Don't look at this as the end of your life. I want
you to declare war on your PN. If your heart, etc., is ok, get on the treadmill or start
walking. At first, go slow and long. After awhile, go fast and long. At the beginning, it will be painful....but keep at it with dedication. After awhile, the pain will go away. Then
your PN pain will go away while on the treadmill and for some time afterwards.
Take as much pain killer as will assuage your pain.If you are offered just percoset and
you still have intense pain, get something stronger. There is no need to live with
lightening strikes of pain. If you watch your blood sugars, reading labels on foods
as if they were life and death items so that you learn that a product can state:
Sugar free but then you read sugar alcohols, corn syrup, Maliton, and many other
ingredients which really are sugars, lose weight if you're obese, and walk then run
for your life. You will beat it. Don't surrender. Treat the PN like a scurvy sucker that
is about to maul you. Confront it. And when you beat it.......be proud. This is your
personal battle and there is nobody out there who will be able to fight it but you.
Sidekick01
11-22-2008, 07:29 AM
Thank you for the advise. I do have some weight to loose and no tredmill at this time but have bought an exercise bike so will have to make that work. Appreciate your encouragement ty
:)
:)
Aussie100
11-22-2008, 06:23 PM
Hi, i am not really sure why nerve signaling can go erractic when resting, i know i had the same trouble myself and many others do as well.
I do know a few neuropathy patients that had elavated blood sugars and once they get their blood sugars under very good control for some time, their neuropathic pain has reduced [dramaticly in some cases].
I also think exercise is very important, insulin resistance can be helped by exercise, a good way to unlock " the keys " to the insulin receptors thus lowering blood glucose levels more efficently, a healthy but low carb diet is also very helpfull to control blood sugars, white bread, rice, pasta & sugary carbs etc, can very quickly elavate blood sugars & should be avoided when diabetic.
There was a study once done on diabetic polyneuropathy patients using supplements, the majority of them did show improvement in symptoms, it was using three supplements: Alpha Lipoic Acid (ALA), Gamma Linolenic Acid (GLA) as contained in Evening Primrose Oil (EPO), and Vitamin C.
I personaly had a slight reaction to Alpha Lipioc acid in the form of a rash, but i switched to the newer better form " R- lipioc acid " [ 100 mg ] and had no trouble at all, lipioc acid can lower glucose levels so one has to monitor your personal reaction if taken diabetic meds as well.,[may not affect them at all ] it didn't to me but i think it wise to play carefully.
The Gamma Linolenic Acid can be bought by itself, typicaly 480 mg daily.
Vitamin C 500 mg daily
I have added other supplements myself called Acetyl-l-carnitine, it can help heal nerves, b12 methylcobalin 1mg daily [taken on an empty stomach] and in the mornings i take a good quality multi B, all have a purpose for nerve support.
A little more info about carnitine, it is a natural substance that bodies produce, but in order for the body to produce carnitine, it needs the amino acids lysine or methionine and vitamin C, so a shortage of one or both amino acids and/or vitamin C will lead to inadequate production of carnitine.
In the human body, carnitine transports long chain fatty acids into the cells, so that they can be used for energy. Several steps are required for this process and dysfunction at any or all of the steps leads to genetic disorders including primary carnitine deficiency, in which the body cannot convert fat into energy, because carnitine is necessary to convert fat to energy, acetyl l carnitine is commonly added to “fat burners” and other weight loss supplements.
Some studies have shown that supplements combining acetyl l-carnitine and alpha lipoic acid appear to reverse the damage done to certain cellular structures, known as mitochondria, by the aging process. mitochondria exist in all of the cells of the body.
They are the cellular structures that have been described as “cellular power plants”. These structures churn out energy for the cell by converting other compounds into ATP, which has multiple functions at the cellular level, including energy transfer, mitochondria also store and release calcium, in nerve cells, the release of calcium back into the cell initiates events that cause the release of neurotransmitters, which transmit signals among different nerve cells in the brain and body. In other words, neurotransmitters tell the muscles and organs what to do.
i hope this helps
best of luck to you
Aussie :)
I do know a few neuropathy patients that had elavated blood sugars and once they get their blood sugars under very good control for some time, their neuropathic pain has reduced [dramaticly in some cases].
I also think exercise is very important, insulin resistance can be helped by exercise, a good way to unlock " the keys " to the insulin receptors thus lowering blood glucose levels more efficently, a healthy but low carb diet is also very helpfull to control blood sugars, white bread, rice, pasta & sugary carbs etc, can very quickly elavate blood sugars & should be avoided when diabetic.
There was a study once done on diabetic polyneuropathy patients using supplements, the majority of them did show improvement in symptoms, it was using three supplements: Alpha Lipoic Acid (ALA), Gamma Linolenic Acid (GLA) as contained in Evening Primrose Oil (EPO), and Vitamin C.
I personaly had a slight reaction to Alpha Lipioc acid in the form of a rash, but i switched to the newer better form " R- lipioc acid " [ 100 mg ] and had no trouble at all, lipioc acid can lower glucose levels so one has to monitor your personal reaction if taken diabetic meds as well.,[may not affect them at all ] it didn't to me but i think it wise to play carefully.
The Gamma Linolenic Acid can be bought by itself, typicaly 480 mg daily.
Vitamin C 500 mg daily
I have added other supplements myself called Acetyl-l-carnitine, it can help heal nerves, b12 methylcobalin 1mg daily [taken on an empty stomach] and in the mornings i take a good quality multi B, all have a purpose for nerve support.
A little more info about carnitine, it is a natural substance that bodies produce, but in order for the body to produce carnitine, it needs the amino acids lysine or methionine and vitamin C, so a shortage of one or both amino acids and/or vitamin C will lead to inadequate production of carnitine.
In the human body, carnitine transports long chain fatty acids into the cells, so that they can be used for energy. Several steps are required for this process and dysfunction at any or all of the steps leads to genetic disorders including primary carnitine deficiency, in which the body cannot convert fat into energy, because carnitine is necessary to convert fat to energy, acetyl l carnitine is commonly added to “fat burners” and other weight loss supplements.
Some studies have shown that supplements combining acetyl l-carnitine and alpha lipoic acid appear to reverse the damage done to certain cellular structures, known as mitochondria, by the aging process. mitochondria exist in all of the cells of the body.
They are the cellular structures that have been described as “cellular power plants”. These structures churn out energy for the cell by converting other compounds into ATP, which has multiple functions at the cellular level, including energy transfer, mitochondria also store and release calcium, in nerve cells, the release of calcium back into the cell initiates events that cause the release of neurotransmitters, which transmit signals among different nerve cells in the brain and body. In other words, neurotransmitters tell the muscles and organs what to do.
i hope this helps
best of luck to you
Aussie :)
Sidekick01
11-22-2008, 06:56 PM
Hi, i am not really sure why nerve signaling can go erractic when resting, i know i had the same trouble myself and many others do as well.
I do know a few neuropathy patients that had elavated blood sugars and once they get their blood sugars under very good control for some time, their neuropathic pain has reduced [dramaticly in some cases].
I also think exercise is very important, insulin resistance can be helped by exercise, a good way to unlock " the keys " to the insulin receptors thus lowering blood glucose levels more efficently, a healthy but low carb diet is also very helpfull to control blood sugars, white bread, rice, pasta & sugary carbs etc, can very quickly elavate blood sugars & should be avoided when diabetic.
There was a study once done on diabetic polyneuropathy patients using supplements, the majority of them did show improvement in symptoms, it was using three supplements: Alpha Lipoic Acid (ALA), Gamma Linolenic Acid (GLA) as contained in Evening Primrose Oil (EPO), and Vitamin C.
I personaly had a slight reaction to Alpha Lipioc acid in the form of a rash, but i switched to the newer better form " R- lipioc acid " [ 100 mg ] and had no trouble at all, lipioc acid can lower glucose levels so one has to monitor your personal reaction if taken diabetic meds as well.,[may not affect them at all ] it didn't to me but i think it wise to play carefully.
The Gamma Linolenic Acid can be bought by itself, typicaly 480 mg daily.
Vitamin C 500 mg daily
I have added other supplements myself called Acetyl-l-carnitine, it can help heal nerves, b12 methylcobalin 1mg daily [taken on an empty stomach] and in the mornings i take a good quality multi B, all have a purpose for nerve support.
A little more info about carnitine, it is a natural substance that bodies produce, but in order for the body to produce carnitine, it needs the amino acids lysine or methionine and vitamin C, so a shortage of one or both amino acids and/or vitamin C will lead to inadequate production of carnitine.
In the human body, carnitine transports long chain fatty acids into the cells, so that they can be used for energy. Several steps are required for this process and dysfunction at any or all of the steps leads to genetic disorders including primary carnitine deficiency, in which the body cannot convert fat into energy, because carnitine is necessary to convert fat to energy, acetyl l carnitine is commonly added to “fat burners” and other weight loss supplements.
Some studies have shown that supplements combining acetyl l-carnitine and alpha lipoic acid appear to reverse the damage done to certain cellular structures, known as mitochondria, by the aging process. mitochondria exist in all of the cells of the body.
They are the cellular structures that have been described as “cellular power plants”. These structures churn out energy for the cell by converting other compounds into ATP, which has multiple functions at the cellular level, including energy transfer, mitochondria also store and release calcium, in nerve cells, the release of calcium back into the cell initiates events that cause the release of neurotransmitters, which transmit signals among different nerve cells in the brain and body. In other words, neurotransmitters tell the muscles and organs what to do.
i hope this helps
best of luck to you
Aussie :)
Thanks Aussie, I may have to try this out if it works out to be ok with my other meds. I have a number of other health issues so have to be careful with interaction with my other drugs. I am a cancer survivor (3 x) and on meds for that yet as well as bloodpressure and heart and kidney problems so have to be careful. I will check things over with my doctor and may try your suggestions or part of them if he agrees. Thanks ever so much...
I do know a few neuropathy patients that had elavated blood sugars and once they get their blood sugars under very good control for some time, their neuropathic pain has reduced [dramaticly in some cases].
I also think exercise is very important, insulin resistance can be helped by exercise, a good way to unlock " the keys " to the insulin receptors thus lowering blood glucose levels more efficently, a healthy but low carb diet is also very helpfull to control blood sugars, white bread, rice, pasta & sugary carbs etc, can very quickly elavate blood sugars & should be avoided when diabetic.
There was a study once done on diabetic polyneuropathy patients using supplements, the majority of them did show improvement in symptoms, it was using three supplements: Alpha Lipoic Acid (ALA), Gamma Linolenic Acid (GLA) as contained in Evening Primrose Oil (EPO), and Vitamin C.
I personaly had a slight reaction to Alpha Lipioc acid in the form of a rash, but i switched to the newer better form " R- lipioc acid " [ 100 mg ] and had no trouble at all, lipioc acid can lower glucose levels so one has to monitor your personal reaction if taken diabetic meds as well.,[may not affect them at all ] it didn't to me but i think it wise to play carefully.
The Gamma Linolenic Acid can be bought by itself, typicaly 480 mg daily.
Vitamin C 500 mg daily
I have added other supplements myself called Acetyl-l-carnitine, it can help heal nerves, b12 methylcobalin 1mg daily [taken on an empty stomach] and in the mornings i take a good quality multi B, all have a purpose for nerve support.
A little more info about carnitine, it is a natural substance that bodies produce, but in order for the body to produce carnitine, it needs the amino acids lysine or methionine and vitamin C, so a shortage of one or both amino acids and/or vitamin C will lead to inadequate production of carnitine.
In the human body, carnitine transports long chain fatty acids into the cells, so that they can be used for energy. Several steps are required for this process and dysfunction at any or all of the steps leads to genetic disorders including primary carnitine deficiency, in which the body cannot convert fat into energy, because carnitine is necessary to convert fat to energy, acetyl l carnitine is commonly added to “fat burners” and other weight loss supplements.
Some studies have shown that supplements combining acetyl l-carnitine and alpha lipoic acid appear to reverse the damage done to certain cellular structures, known as mitochondria, by the aging process. mitochondria exist in all of the cells of the body.
They are the cellular structures that have been described as “cellular power plants”. These structures churn out energy for the cell by converting other compounds into ATP, which has multiple functions at the cellular level, including energy transfer, mitochondria also store and release calcium, in nerve cells, the release of calcium back into the cell initiates events that cause the release of neurotransmitters, which transmit signals among different nerve cells in the brain and body. In other words, neurotransmitters tell the muscles and organs what to do.
i hope this helps
best of luck to you
Aussie :)
Thanks Aussie, I may have to try this out if it works out to be ok with my other meds. I have a number of other health issues so have to be careful with interaction with my other drugs. I am a cancer survivor (3 x) and on meds for that yet as well as bloodpressure and heart and kidney problems so have to be careful. I will check things over with my doctor and may try your suggestions or part of them if he agrees. Thanks ever so much...
robinegg
11-27-2008, 06:44 AM
I am sorry, guess I didn't say it right. I am diabetic ( just diagnosed this year) but have had the numbness for years in my feet for about 6 years and never was checked for diabetes. I am on metformin 250mg 3x daily for the diabetes and just this last year since diagnosed also on gabapentin 400 mg 4x daily for the pain in my feet. I find it hard to walk and particularly stand. I have had jabbing pains as well this last year in my feet and sometimes my hands. I feel unbalanced because of the numbness. I am still trying to work as I have 1 year left till early retirement but questionable whether I will make it. My question was regarding the fact that I have noticed when I am not on my feet (sitting or after sleeping ) my feet seem unbearably worse to the point I can hardly bear to stand up or walk. The pain decreases after a few minutes although still very painful. Just wondering if this is the same with others and why? Thanks for your reply
Hi There
Just reading your post and I am curious if you have ever had you B12 level schecked.....Deficiencies can occur when using metformin....It would be worth considering as it causes pins & needles,numbness and balance problems........I used to literally drag my legs to the tiolet in the middle of the night and my arms would go dead....I would also get jabbing pains at any time............
Best of luck
Hi There
Just reading your post and I am curious if you have ever had you B12 level schecked.....Deficiencies can occur when using metformin....It would be worth considering as it causes pins & needles,numbness and balance problems........I used to literally drag my legs to the tiolet in the middle of the night and my arms would go dead....I would also get jabbing pains at any time............
Best of luck
Sidekick01
11-27-2008, 11:08 AM
Hi There
Just reading your post and I am curious if you have ever had you B12 level schecked.....Deficiencies can occur when using metformin....It would be worth considering as it causes pins & needles,numbness and balance problems........I used to literally drag my legs to the tiolet in the middle of the night and my arms would go dead....I would also get jabbing pains at any time............
Best of luck
Thanks for the note Rainbows End,
I am not sure but think I was checked for B-12 but will check with my doctor when I see him next. The problem with the numbness, pains and balance started years before the diabetis was diagnosed and I was put on any medication for anything associated but could be the b12 was off then too I suppose. Thanks for the info... much appreciated
Just reading your post and I am curious if you have ever had you B12 level schecked.....Deficiencies can occur when using metformin....It would be worth considering as it causes pins & needles,numbness and balance problems........I used to literally drag my legs to the tiolet in the middle of the night and my arms would go dead....I would also get jabbing pains at any time............
Best of luck
Thanks for the note Rainbows End,
I am not sure but think I was checked for B-12 but will check with my doctor when I see him next. The problem with the numbness, pains and balance started years before the diabetis was diagnosed and I was put on any medication for anything associated but could be the b12 was off then too I suppose. Thanks for the info... much appreciated
robinegg
11-27-2008, 07:07 PM
Thanks for the note Rainbows End,
I am not sure but think I was checked for B-12 but will check with my doctor when I see him next. The problem with the numbness, pains and balance started years before the diabetis was diagnosed and I was put on any medication for anything associated but could be the b12 was off then too I suppose. Thanks for the info... much appreciated
Hi sidekick01
yes dont presume that docs just check B12 as a standard if you are not anemic a lot wont which is just stupid.....
Anyway yes you could have had this for a lonnnnng time......please notethat the ranges for B12 are set to prevent PA but you can get neurological damage at around 550 that is the lowest level set in Japan & they have very low rates of alzheimers there.....
If you have the tests again and I would recommend that you do esp when on the metformin....Make sure you get the following
B12 serum
Homocysteine ( can be elevated in deficiencies)
uMMA urine test ( elevated in B12 def) used when the levels of serum are within normal values)
Folate
Iron studies
good luck;)
CBC
I am not sure but think I was checked for B-12 but will check with my doctor when I see him next. The problem with the numbness, pains and balance started years before the diabetis was diagnosed and I was put on any medication for anything associated but could be the b12 was off then too I suppose. Thanks for the info... much appreciated
Hi sidekick01
yes dont presume that docs just check B12 as a standard if you are not anemic a lot wont which is just stupid.....
Anyway yes you could have had this for a lonnnnng time......please notethat the ranges for B12 are set to prevent PA but you can get neurological damage at around 550 that is the lowest level set in Japan & they have very low rates of alzheimers there.....
If you have the tests again and I would recommend that you do esp when on the metformin....Make sure you get the following
B12 serum
Homocysteine ( can be elevated in deficiencies)
uMMA urine test ( elevated in B12 def) used when the levels of serum are within normal values)
Folate
Iron studies
good luck;)
CBC
woondog
11-30-2008, 02:37 AM
While you are waiting for your next diagnosis, demand that you received strong
medications for the pain. There is no good reason to be in pain. I take Dilaudio
a pre morphine drug and it has helped me immeasureably.
The pain is worse at night but I don't know why except to say, part of this
happening is just before you go to sleep, you are not doing anything to take your mind
off the pain. What might help,also, is when the pain is too intense,sleep in an Easy\
Boy with your legs outward. That will help some.
medications for the pain. There is no good reason to be in pain. I take Dilaudio
a pre morphine drug and it has helped me immeasureably.
The pain is worse at night but I don't know why except to say, part of this
happening is just before you go to sleep, you are not doing anything to take your mind
off the pain. What might help,also, is when the pain is too intense,sleep in an Easy\
Boy with your legs outward. That will help some.
woondog
11-30-2008, 02:41 AM
I'd give a lot of credence to what Aussie says.He is an expert in this field and
a real mensch to spend a lot of his time helping others. Here's to you Aussie
the woondog
a real mensch to spend a lot of his time helping others. Here's to you Aussie
the woondog
Sidekick01
11-30-2008, 10:30 AM
While you are waiting for your next diagnosis, demand that you received strong
medications for the pain. There is no good reason to be in pain. I take Dilaudio
a pre morphine drug and it has helped me immeasureably.
The pain is worse at night but I don't know why except to say, part of this
happening is just before you go to sleep, you are not doing anything to take your mind
off the pain. What might help,also, is when the pain is too intense,sleep in an Easy\
Boy with your legs outward. That will help some.
Thanks Woondog
My pain is bad at night but for some reason becomes almost unbearable for the first few minutes when I first stand up on them. To the point where I can hardly stand or walk. This is also the same in the daytime when I have been sitting or resting for a short time(1/2 hr. or so). Any ideas why this would be??Any ideas would be greatly appreciated. Thanks again....
medications for the pain. There is no good reason to be in pain. I take Dilaudio
a pre morphine drug and it has helped me immeasureably.
The pain is worse at night but I don't know why except to say, part of this
happening is just before you go to sleep, you are not doing anything to take your mind
off the pain. What might help,also, is when the pain is too intense,sleep in an Easy\
Boy with your legs outward. That will help some.
Thanks Woondog
My pain is bad at night but for some reason becomes almost unbearable for the first few minutes when I first stand up on them. To the point where I can hardly stand or walk. This is also the same in the daytime when I have been sitting or resting for a short time(1/2 hr. or so). Any ideas why this would be??Any ideas would be greatly appreciated. Thanks again....
Aussie100
12-02-2008, 02:19 AM
I'd give a lot of credence to what Aussie says.He is an expert in this field and
a real mensch to spend a lot of his time helping others. Here's to you Aussie
the woondog
Thanks woondog for your kind words :)
a real mensch to spend a lot of his time helping others. Here's to you Aussie
the woondog
Thanks woondog for your kind words :)
Aussie100
12-02-2008, 02:36 AM
Thanks Woondog
My pain is bad at night but for some reason becomes almost unbearable for the first few minutes when I first stand up on them. To the point where I can hardly stand or walk. This is also the same in the daytime when I have been sitting or resting for a short time(1/2 hr. or so). Any ideas why this would be??Any ideas would be greatly appreciated. Thanks again....
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Could be poor blood circulation, before trying to stand, maybe if you try some feet exercises & wiggling your toes for a few minutes to increase blood circulation.
Aussie :)
My pain is bad at night but for some reason becomes almost unbearable for the first few minutes when I first stand up on them. To the point where I can hardly stand or walk. This is also the same in the daytime when I have been sitting or resting for a short time(1/2 hr. or so). Any ideas why this would be??Any ideas would be greatly appreciated. Thanks again....
........................................ ........................................ ..........................
Could be poor blood circulation, before trying to stand, maybe if you try some feet exercises & wiggling your toes for a few minutes to increase blood circulation.
Aussie :)
Sidekick01
12-02-2008, 07:12 AM
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Could be poor blood circulation, before trying to stand, maybe if you try some feet exercises & wiggling your toes for a few minutes to increase blood circulation.
Aussie :)
Thanks Aussie, Doesn't seem to make a difference . Have tried the exercises before standing and maked no difference. Very frustrating
Could be poor blood circulation, before trying to stand, maybe if you try some feet exercises & wiggling your toes for a few minutes to increase blood circulation.
Aussie :)
Thanks Aussie, Doesn't seem to make a difference . Have tried the exercises before standing and maked no difference. Very frustrating
marklew
01-03-2009, 12:45 PM
:wave::wave:hello i am new to chat forums but here goes. i have had neuropathy in my feet fo 12 years now. after 10 years i was diagnosed with type 2 diabetes. my pain is getting worse. i like you have some weight to lose and so far have lost 4 stone but i am finding that my pain is getting worse and my balance is even worse resulting in me falling down the stairs and using a walking stick to stop myself falling. has anyone got any ideas to stop me going crazy at home.
marklew
01-03-2009, 12:51 PM
it sounds really bad but it is so nice to hear of others with the same problems as myself i have been thinking i was weid but i'm not i want to tell everyone that i am normal. the burning at night i have found putting my feet in a bowel of really cold water helps. in fact it is so wrong but oh so nice
woondog
01-05-2009, 02:02 AM
Marklew: Some diabetics, like you, develop an imbalance. I don't have that aspect
of peripheral neuropothy . I read recently that you can gain your lost imbalance by practicing standing one one leg and increasing the time gradually until it disappers.
Only read that once so am not sure of it. You have intense pain...get thee to a doctor and
get some pain medication. That should do you for awhile. Also, three other
suggestions....exercise, exercise, exercise. Walk on a tread mill....that's just for
you because you can hold on to sidebars. Increase your speed and incline gradually.
And, I am not too computer savvy but if there is anyway you can review all the
previous blogs re: pn,I would do it.
the woondog
of peripheral neuropothy . I read recently that you can gain your lost imbalance by practicing standing one one leg and increasing the time gradually until it disappers.
Only read that once so am not sure of it. You have intense pain...get thee to a doctor and
get some pain medication. That should do you for awhile. Also, three other
suggestions....exercise, exercise, exercise. Walk on a tread mill....that's just for
you because you can hold on to sidebars. Increase your speed and incline gradually.
And, I am not too computer savvy but if there is anyway you can review all the
previous blogs re: pn,I would do it.
the woondog
marklew
01-05-2009, 07:55 AM
thank you for your kind remarks. unfortunatly i do take very strong pain killers and even in hospital recently i was on morphine after a major opp(not feet) and even morphine didn't take all the pain of my feet away. i have lost 4 stone, i have another 3 to go. also i find the more i walk the more pain i am in. if i go shopping in town with a friend or even walking around the corner to the dr's i suffer later infact i am then up all night in more pain than i can described. i have started going to a pain management clinic and they started me on a new drug Cymbalta 30mg which took the pain away but i slept for 18 hours a day and was doopy the rest of the time. so quaulity of life was nill. i stayed on them for a week then came off them. i have narcolpsy and even my meds for that was not able to keep me awake. i have tried everything you suggest. i have been suffering for 12 years now and even asked the pain management dr if i could have both feet of, she said the pain would be worse so i opted to keep the feet. this web site has helped me because i don't feel a freek anymore. sorry about the long response but it is good to talk to people who REALLY know how you feel and i thank you.
woondog
01-06-2009, 03:53 AM
one reason, not the only one,why you might have more pain when you're laying down
is because your mind centers on the effect of the pain while in bed but when you are
out and about or exercising, your attention is diverted to what you are doing rather
than the pain. the woondog
is because your mind centers on the effect of the pain while in bed but when you are
out and about or exercising, your attention is diverted to what you are doing rather
than the pain. the woondog
marklew
01-07-2009, 11:09 AM
:angel:i understand what you are saying, but i can be out and about and want to take my shoes and socks off because the skin on my feey is sooo sour taht it hurts to even breath on them. to look at my feet when they are at their worst they look almost opaque, and feel as though they are frozen but burning at the same time. i know that doesn't make sence. which is why it is soooo comforting to read other peoples threads and see they are having simular problems. i don't let these **** feet stop me, i still go out and shop with my hubby and friends, i just pay the price later and it is worth it. my dr says i am only still walking and not in a weelchair because i am too stubben. :jester:
woondog
01-08-2009, 03:52 AM
Marklew You are really suffering...I know that I considered having my feet cute
off about 10 years ago, but, even though you amputate, there might be "phantom paid"
They you are screwed and relegated to a wheelchair. Please ask your doctor
to give you Dilaudio,2 pills per day,am and pm, and two tablets in the am of
Nortryptilene. I've been taking that for about 8 months and I have pain in my
feet only about 8 times in 8 months.Before that, I would get it every other day and
it would last 24 hours : Such pain......agony......no wonder they call it lightening
strikes. Keep the faith. Perhaps they will come up with an a cure.
off about 10 years ago, but, even though you amputate, there might be "phantom paid"
They you are screwed and relegated to a wheelchair. Please ask your doctor
to give you Dilaudio,2 pills per day,am and pm, and two tablets in the am of
Nortryptilene. I've been taking that for about 8 months and I have pain in my
feet only about 8 times in 8 months.Before that, I would get it every other day and
it would last 24 hours : Such pain......agony......no wonder they call it lightening
strikes. Keep the faith. Perhaps they will come up with an a cure.
bethvt
01-08-2009, 10:29 AM
I believe the pain in my feet is worse in the morning because they get warm overnight. I've started waking up and letting my feet cool down a bit before I get up and that seems to decrease the sensitivity some. I don't have the intensity of pain that you do but maybe this will help a little.
woondog
01-14-2009, 02:44 AM
Well, it seems to me that you have reached some success with your condition.
I am sure you will agree that while you are sleeping most of the time, you are at
least free from pain and I'd take that over being sleepy. Although we are
co-sufferers, I can feel your pain and will say a prayer that you are finally freed
from PN. You are truly suffering. Tell me something, what is your pain like.
Is it all the time or does it occur at about 20 second intervals? Is the pain so
sharp that you double up with pain? And, once more I will ask you to try again
to go on a treadmill for a wekk. Take the cymbalta if you must. Start with 15 minutes
and every day, increase by 5 minutes. From what you write, you are suffering from
the condition anyway, you might as well suffer while on the treadmill because at least
you are doing healthy stuff with a possible reversal in your pain condition.
I am sure you will agree that while you are sleeping most of the time, you are at
least free from pain and I'd take that over being sleepy. Although we are
co-sufferers, I can feel your pain and will say a prayer that you are finally freed
from PN. You are truly suffering. Tell me something, what is your pain like.
Is it all the time or does it occur at about 20 second intervals? Is the pain so
sharp that you double up with pain? And, once more I will ask you to try again
to go on a treadmill for a wekk. Take the cymbalta if you must. Start with 15 minutes
and every day, increase by 5 minutes. From what you write, you are suffering from
the condition anyway, you might as well suffer while on the treadmill because at least
you are doing healthy stuff with a possible reversal in your pain condition.
marklew
01-18-2009, 12:39 PM
i hav tried doing the tread mill and while i am walking there is no pain, the only symptom is the balance get worse the more tied i get, but, and there is always a but, when i stop walking the pain is excriutating. it is like having the worse pins and needles pain you can imagine but all the time. i do get lightening pain as well, it makes me double up and when i am sat with my feet up i get what my children call happy feet, because my feet start jumping on ther own. no pain in fact it tickles, sometimes it hurts, when i have been out walking . i have learnt to live with it and now i know i'm not a "freak" i can live it. my dr kept telling me the pain would stop that people normarlly only had pain for 2 years and i told him he had better tell my feet that because i think the last 12 years my feet having been listening.
SNOOKERED
01-18-2009, 04:08 PM
why does the pain in my feet get worse after I am off them for awhile?Ihave been diagnosed with PN which they say is due to undiagnosed diabetes type 2. At times I can barely walk due to the numbness and pain.
I can't address "why", but I can help with how to control pain.
Do you have a liver disorder or HepC? HepC can cause peripheral neuropathy. It is not hard to dx diatetes either.
So, if you have these liver issues try not to use morphine or percocet of all things.Even if you don't have liver disease try to avoid narcotics as a relief of the symptoms.
Try these suggestions; ask you Dr. if he would give you a prescription of Gabapentin. Start of with 2x400 p/dy. It has done wonders for me. Must take them as prescribed.
While in pain try freezing a 50% mixture of Isopropyl Alchol in a zip-lock bag and apply to feet. This will alleviate pain.
I can't address "why", but I can help with how to control pain.
Do you have a liver disorder or HepC? HepC can cause peripheral neuropathy. It is not hard to dx diatetes either.
So, if you have these liver issues try not to use morphine or percocet of all things.Even if you don't have liver disease try to avoid narcotics as a relief of the symptoms.
Try these suggestions; ask you Dr. if he would give you a prescription of Gabapentin. Start of with 2x400 p/dy. It has done wonders for me. Must take them as prescribed.
While in pain try freezing a 50% mixture of Isopropyl Alchol in a zip-lock bag and apply to feet. This will alleviate pain.
marklew
01-20-2009, 12:06 PM
hi at last some one who agrees with me the best thing i find for my feet is to sit with them in a bowel of very very cold water. some times at night when they are really bad i sit downstairs and watch old movies. i have my own washing up bowel for my feet. i have to sit with my feet in at when i have been shopping. i haven't got liver problems , i have a very good dr who keeps a close eye on me. i have all the drugs i can have, i take 8 in a morning and 8 at night and 2 at lunch time. all though you all are across the water from me i feel you are close as you all seem to understand and try to give help to one another