seaturtle
11-30-2008, 08:05 PM
Hello, everyone.
I just need to whine a bit. I'm in a flare, and the fatigue is getting to me. I force myself to keep going as much as I can, but I feel about 100 years old, no energy for anything. And there's so much I want to do, it's frustrating me and depressing me no end. And I ache, ache...
That's all, thanks for listening, and any advice is welcome. I know that what I'm saying is, hmmmm, no news to anyone here. (She attempts to giggle a la Blue and Glojer.
Best to all,
Seaturtle
I just need to whine a bit. I'm in a flare, and the fatigue is getting to me. I force myself to keep going as much as I can, but I feel about 100 years old, no energy for anything. And there's so much I want to do, it's frustrating me and depressing me no end. And I ache, ache...
That's all, thanks for listening, and any advice is welcome. I know that what I'm saying is, hmmmm, no news to anyone here. (She attempts to giggle a la Blue and Glojer.
Best to all,
Seaturtle
Sponsor
kirstee
11-30-2008, 08:13 PM
That fatigue is really a killer. Feels like your trying to keep your legs walking but the battery conked. Be kind to yourself and get rested, because the holidays will plow you under if you are not careful. Quite frankly, being fatigued at this level is horrible and I find it to be worse than the pain of FMS.
Blessings,
Kirstee
Blessings,
Kirstee
rosebud49
12-01-2008, 01:26 AM
i know how you feel, it is like you are missing out on doing some things, then you feel guilty that you are not doing others. but you know i think that the only thing that fixes the dreadful fatique is rest, rest and more rest.
rosebud49
rosebud49
seaturtle
12-01-2008, 03:12 AM
Thank you both for answering. Yes, Kirstee, this is much, much worse than the pain. The pain I can sometimes push through, the fatigue, no. And my mind just does not work.
I just woke up from another "just lie down for a few minutes", 7-hour nap, so seeing your responses was so comforting.
I just woke up from another "just lie down for a few minutes", 7-hour nap, so seeing your responses was so comforting.
Snickers60
12-01-2008, 07:15 AM
Ditto on the fatigue. I'd rather have pain any day. Do you take sub=lingual B-12 ? It has helped me a lot. Don't let the holidays get you down......I gave up the IDEA of them a long time ago, as this is always, always a rough time of year for me. So much of the hoopla is just that.........HOOPLA, and it won't be missed. We are different and have to do things differently NO DOUBT. TAKE CARE OF YOU FIRST.......love the one's you're with....and let the rest fall by the wayside. It's just POMP and CIRCUMSTANCE. Not the REAL STUFF of life. This is how I priortize it.
FEEL BETTER and just go with the fatigue and REST......if you fight it and PUSH on, you'll just get worse.
BLESSINGS, SNICKERS60
FEEL BETTER and just go with the fatigue and REST......if you fight it and PUSH on, you'll just get worse.
BLESSINGS, SNICKERS60
bevann26
12-01-2008, 02:50 PM
i have been in a flareup for a few days now....the fatigue is real bad.
until this yr, i'd had my christmas cards in the mail today. they are not even made out yet! i am just about done with shopping...i start that in sept. nothing is wrapped yet though, and i have alot to ship out of state. hubby brought my christmas boxes full of all my decorations etc. in from the garage yesterday. i have not taken 1 thing out yet to put up!
i always go to the christmas fair and get a tree ornament to send to my 4 out of state grandchildren. the fair is over and i never got to go!
also i only have use of my left hand (i am right handed) so i need to wait for hubby's help most of the time. i'm getting my elbow replaced on 1/6/09..probably have had alot of anxiety about it, which does'nt help my fibro.
my hubby said my average nap is at least 4 hrs, sometimes more!
i posted this so you all know you're not alone!
get plenty of rest and don't push yourself...i keep telling myself that everything will come together and be fine..feel better...take care, bevann
until this yr, i'd had my christmas cards in the mail today. they are not even made out yet! i am just about done with shopping...i start that in sept. nothing is wrapped yet though, and i have alot to ship out of state. hubby brought my christmas boxes full of all my decorations etc. in from the garage yesterday. i have not taken 1 thing out yet to put up!
i always go to the christmas fair and get a tree ornament to send to my 4 out of state grandchildren. the fair is over and i never got to go!
also i only have use of my left hand (i am right handed) so i need to wait for hubby's help most of the time. i'm getting my elbow replaced on 1/6/09..probably have had alot of anxiety about it, which does'nt help my fibro.
my hubby said my average nap is at least 4 hrs, sometimes more!
i posted this so you all know you're not alone!
get plenty of rest and don't push yourself...i keep telling myself that everything will come together and be fine..feel better...take care, bevann
Willow97
12-01-2008, 04:02 PM
Hi, I just had to jump in on this one...I used to love Christmas and all the festivities...but now I am finding it very difficult, because I feel very guilty that I can't make the holiday's the same as before I just don't have the energy or enthusiasm anymore and I find it very sad....what do you do to reinvent the holidays.....Any suggestions welcome! Heather
seaturtle
12-01-2008, 09:39 PM
Thanks again. I feel so much better now. Today, I just could not rest at all: things were piled up from the long weekend that I had to get done. And tonight, one of my cats had to go the vet on emergency, so I landed home late, too.
The rest of the week is loaded with appointments and meetings I feel obligated to attend. I will re-assess these in light of what everyone has said about resting. I don't want to totally crash.
Going to go lie down down, finally. My body doesn't want to move at all.
Peace to everyone,
Seaturtle
P.S. Even without the fibro, I don't like the holidays. Bring back memories of growing up in an acoholic family, when holidays were Explosion Times. Now, with no family, I'm so much better off.
The rest of the week is loaded with appointments and meetings I feel obligated to attend. I will re-assess these in light of what everyone has said about resting. I don't want to totally crash.
Going to go lie down down, finally. My body doesn't want to move at all.
Peace to everyone,
Seaturtle
P.S. Even without the fibro, I don't like the holidays. Bring back memories of growing up in an acoholic family, when holidays were Explosion Times. Now, with no family, I'm so much better off.
BelleoftheSouth
12-02-2008, 10:00 AM
(((SeaTurtle))). I hope you get the rest you need.
Like you I also hate the Holidays and will be glad when they're over. Can't remember anything good about them either.
Be Well All.
Belle~
Like you I also hate the Holidays and will be glad when they're over. Can't remember anything good about them either.
Be Well All.
Belle~
Ladybug222
12-02-2008, 10:59 AM
:yawn: Fatigue for me is also, quite profound, I too lay down for a *SHORT*
nap, & end up sleeping 4 or so hours, then up an hour & then back to sleep....again...sometime yet to slleep another 2-3 hours, & then I will sleep all nite.
My energy is just, Such a >>>>>> Drained feeling. I use to be able to just keep pushing myself, but I can't even forse myself anynore. I have even tryed to watch TV sitting up, & that doesn't work either as I will wake myself up, as I start falling asleep side ways on my couch.
I have also starting falling asleep at the dinner table, at these times.
I asumme this is going threw a Fibro Flare Up.
Anyone else, that has Started falling asleep like at the dinner table, because of been soooooooooooooooo fatigued? I have to just get up & go to bed
Your not alone with the fatigue.
Take Care.... Ladybug222
nap, & end up sleeping 4 or so hours, then up an hour & then back to sleep....again...sometime yet to slleep another 2-3 hours, & then I will sleep all nite.
My energy is just, Such a >>>>>> Drained feeling. I use to be able to just keep pushing myself, but I can't even forse myself anynore. I have even tryed to watch TV sitting up, & that doesn't work either as I will wake myself up, as I start falling asleep side ways on my couch.
I have also starting falling asleep at the dinner table, at these times.
I asumme this is going threw a Fibro Flare Up.
Anyone else, that has Started falling asleep like at the dinner table, because of been soooooooooooooooo fatigued? I have to just get up & go to bed
Your not alone with the fatigue.
Take Care.... Ladybug222
bevann26
12-03-2008, 11:35 AM
yes..lol....i have fallen asleep eating a meal. the worst time was when i was sitting up in bed eating a bowl of chocolate ice-cream while watching...i woke up when i got the cold, wet feeling. my ice-cream had melted then toppled over on my nite gown!
this falling asleep thing however, has not happened since i went off the lyrica. i am however very tired all the time when i'm in a flareup like now.
hope you all feel better soon....bevann
this falling asleep thing however, has not happened since i went off the lyrica. i am however very tired all the time when i'm in a flareup like now.
hope you all feel better soon....bevann
NAPPSIE
12-03-2008, 11:53 AM
hI Friends;
I'm sorry for all of you suffering this illness. I used to post here because I have a herniated disc and for a year now I've also been diagnosed with fibro. Isn't this a very very difficult time of year to find our bodies refusing to cooperate? i work a fulltime job and try to do lots of things at home. i don't like to crybaby to Dh because he has MS. Oh well, my heart goes out to each of you as you make your way through each day.
I'm sorry for all of you suffering this illness. I used to post here because I have a herniated disc and for a year now I've also been diagnosed with fibro. Isn't this a very very difficult time of year to find our bodies refusing to cooperate? i work a fulltime job and try to do lots of things at home. i don't like to crybaby to Dh because he has MS. Oh well, my heart goes out to each of you as you make your way through each day.
DReeves313
12-03-2008, 04:39 PM
Hi, I don't know how you do it. I am fortunate enough to rest my body when I need it. I was in your position once years ago, and I had to give it up. I couldn't stand the pain. I left work and am now at home. I listen to my body and rest when I can, and my family knows this. I honestly don't know how you'll do this....keep up lives, work full time, and all that stuff. I just couldn't handle it, and I feel so much for you. I did this once upon a time, worked full time, and all that but couldn't do it. My prayers are with you and your family.
seaturtle
12-03-2008, 08:59 PM
Falling asleep while eating, oh, yes. I woke up to find my right hand covered with chocolate pudding, it dripping down my front Another time, I landed in a bowl of oatmeal.
I have to jerk myself awake, then may fall asleep again.
Fortunately, this has not happened when I've been eating with someone. I can't imagine the embarrassment from that!
I have to jerk myself awake, then may fall asleep again.
Fortunately, this has not happened when I've been eating with someone. I can't imagine the embarrassment from that!
DeBeachSiren
12-04-2008, 04:44 AM
Bless your hearts all of you.
I do feel tired, but not so much when I get sleep at night. I have no idea what it's like to take a nap. I've taken Ambien for ever. My mind races and I can't sleep. I have fallen asleep 1 time with nothing in about 10 years or so now. How I wish I could take a nap or fall asleep on my own. When I first started getting sick with this I slept alot, but then after a few years of that I can't shut off thoughts. Ya know like when you're moving to a new place and you lie in bed and think of the stuff you have to do and where you'll hang a picture, or lavender might be a good color for the bedroom, etc...... Yikes!!!!!!!! I guess if you do fall asleep what better way can you do it than with chocolate, haha?
For the most part my procedures and a good combo of medication helps me to sleep and usually get good rest. I am on disability now and my kids are married and on their own. I go to bed late and get up at 2 or 3pm. This seems to be what my internal clock seems to be. I've always been a night owl.
Now I have to finish Christmas shopping, wrap it, make caramal corn to send back home mega-tons (I started doing it when my Gram couldn't anymore, she's gone now and it's a tradition that I plan to carry on and when I can't, hopefully someone else will) and get it in the mail at the latest the 15th. I've got to power grocery shop to get us through Christmas, etc.. I have knee surgery the 18th and my husband found out today he has a low risk prostate cancer, but we have to decide with that doc the 10th on what's the best treatment, some sort of radiation will be involved. I'm not seeing the whole cookie baking thing happenning unless my daughter helps me. She and my new son-in-law love to decorate them.....to fancy to eat. My family used to exchange gifts and after pretty much everyone losing $ as so many people have we are just buying for kids. It's for them anyhow. My girls are taking one another out for a nice dinner. We'll get a bit for them, but that's pretty much it. We'll have extra medical bills now.
So as Cousin Eddie says from Christmas Vacation (in a nicer version, haha)......Merry Christmas Crapper's Full! Actually I think every one of us should be sickening wealthy and have it all hired done by a holiday planner. Holidays are hard, especially when we get older and have lost loved ones or have not seen them as happy times. I'd like to go from Halloween right to April....too many bad memories.
I think though really, those of us that celebrate Christmas, we should think of why it is we have this celebration in the first place. It's religious, it's traditions, making the best memories that we can and being together. So many people in the past few months have been shocked back into reality $-wise. It's not corporations that we honor Christmas for.
Bunchers of Hugs to Everyone,
DeBeachSiren
I do feel tired, but not so much when I get sleep at night. I have no idea what it's like to take a nap. I've taken Ambien for ever. My mind races and I can't sleep. I have fallen asleep 1 time with nothing in about 10 years or so now. How I wish I could take a nap or fall asleep on my own. When I first started getting sick with this I slept alot, but then after a few years of that I can't shut off thoughts. Ya know like when you're moving to a new place and you lie in bed and think of the stuff you have to do and where you'll hang a picture, or lavender might be a good color for the bedroom, etc...... Yikes!!!!!!!! I guess if you do fall asleep what better way can you do it than with chocolate, haha?
For the most part my procedures and a good combo of medication helps me to sleep and usually get good rest. I am on disability now and my kids are married and on their own. I go to bed late and get up at 2 or 3pm. This seems to be what my internal clock seems to be. I've always been a night owl.
Now I have to finish Christmas shopping, wrap it, make caramal corn to send back home mega-tons (I started doing it when my Gram couldn't anymore, she's gone now and it's a tradition that I plan to carry on and when I can't, hopefully someone else will) and get it in the mail at the latest the 15th. I've got to power grocery shop to get us through Christmas, etc.. I have knee surgery the 18th and my husband found out today he has a low risk prostate cancer, but we have to decide with that doc the 10th on what's the best treatment, some sort of radiation will be involved. I'm not seeing the whole cookie baking thing happenning unless my daughter helps me. She and my new son-in-law love to decorate them.....to fancy to eat. My family used to exchange gifts and after pretty much everyone losing $ as so many people have we are just buying for kids. It's for them anyhow. My girls are taking one another out for a nice dinner. We'll get a bit for them, but that's pretty much it. We'll have extra medical bills now.
So as Cousin Eddie says from Christmas Vacation (in a nicer version, haha)......Merry Christmas Crapper's Full! Actually I think every one of us should be sickening wealthy and have it all hired done by a holiday planner. Holidays are hard, especially when we get older and have lost loved ones or have not seen them as happy times. I'd like to go from Halloween right to April....too many bad memories.
I think though really, those of us that celebrate Christmas, we should think of why it is we have this celebration in the first place. It's religious, it's traditions, making the best memories that we can and being together. So many people in the past few months have been shocked back into reality $-wise. It's not corporations that we honor Christmas for.
Bunchers of Hugs to Everyone,
DeBeachSiren
Snickers60
12-04-2008, 09:46 AM
OK LADIES.......please tell me what you are taking that makes you fall asleep eating ? I NEVER SLEEP ! What is making you sleep like that ?
Ladybug222
12-05-2008, 09:25 AM
Hi,
I went threw 5-6 years, I couldn't sleep much at night, maybe 2 hours then wake up. Very Sleep Deprived...
Dr. had me try several things to help me sleep,Ambien..Etc,Etc
I felt awful when I woke up 5-6 hours later.
When I was diagnosed with Thyroid, is when the falling asleep
in odd places started...( I don't do this all of the time, maybe once in 1 -1/2 months) & Yes , very embarasing.
I still have a few nights where I will only sleep 2-3 hours.
Most of the time, (like someone else mention) I will say, I need to just lay down & rest for an hour...
But, this turns into 3,4, hours naps, Fatigue is very severe at these times,as well as the Pain Everwhere.
Even with the long nap, I will sleep all night too.
I just had 2 weeks of Fibro Flare, body aches, felt like the Flu,feverish,So Sleepy...etc...
I just started paying attention the Barometer, I live in Central Missouri.
As for flying, I end up with an awful Migraines & Nosebleeds.
I have, MCS/IBS/RSD....etc,etc,
I honestly don't feel its my meds, my doctor has backed me off, which didn't help, & the pain was unbareable & restarted my meds.
I am wondering , about Narcalepsy & I'm reading up on this.
Then again, I think, with all of the PAIN that we have,
it does drain a persons energy, I know it does mine.
Sending hugs to all,
Ladybug222
I went threw 5-6 years, I couldn't sleep much at night, maybe 2 hours then wake up. Very Sleep Deprived...
Dr. had me try several things to help me sleep,Ambien..Etc,Etc
I felt awful when I woke up 5-6 hours later.
When I was diagnosed with Thyroid, is when the falling asleep
in odd places started...( I don't do this all of the time, maybe once in 1 -1/2 months) & Yes , very embarasing.
I still have a few nights where I will only sleep 2-3 hours.
Most of the time, (like someone else mention) I will say, I need to just lay down & rest for an hour...
But, this turns into 3,4, hours naps, Fatigue is very severe at these times,as well as the Pain Everwhere.
Even with the long nap, I will sleep all night too.
I just had 2 weeks of Fibro Flare, body aches, felt like the Flu,feverish,So Sleepy...etc...
I just started paying attention the Barometer, I live in Central Missouri.
As for flying, I end up with an awful Migraines & Nosebleeds.
I have, MCS/IBS/RSD....etc,etc,
I honestly don't feel its my meds, my doctor has backed me off, which didn't help, & the pain was unbareable & restarted my meds.
I am wondering , about Narcalepsy & I'm reading up on this.
Then again, I think, with all of the PAIN that we have,
it does drain a persons energy, I know it does mine.
Sending hugs to all,
Ladybug222