sammyo1
12-05-2008, 09:17 AM
Hello everyone, I am sitting here without the ability to raise my arms past this key board. The pain is unreal & could not even lift my coffee cup with one hand. I am wondering how many of you experiance this type of thing. My entire upper back & neck hurt, kind of feels really inflammed. I could not undress myself if I tried right now, does this sound like anything you all experiance? I am wondering how much worse can it get?
How bad has it been for you? what limitations has it caused you? I am curious & really am trying to imagine 2 discs can cause all of this. Can you share your experiances with me please. Thank you all & god bless, Sammy
How bad has it been for you? what limitations has it caused you? I am curious & really am trying to imagine 2 discs can cause all of this. Can you share your experiances with me please. Thank you all & god bless, Sammy
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rayefaye
12-05-2008, 10:24 AM
Hi Sammy, sorry to hear that you're suffering so bad without no relief. I been in your shoes so many times due to both of conditions which are not related to disc problems but with similar pain and limitations. I glad to know that a least you do have a chance to fix your problem with surgery. There's unfortunately no type of surgery they can do to fix my problem. I can relate to the problems you have with your arms and the pain in your neck and upper back though. Even though the medications help alot with my pain there are still days that the pain can be out of control and leave me unable to do anything. For the last few days I've had real bad spasms in my upper and lower back in which I can't seem to get under control and have been very painful. I wish there was some way I knew how to take away your pain. It's awful that you have to suffer this way especially everything you're going through at this time. My thoughts and prayers are with you that you'll soon find some relief from this awful pain you're suffering through.
rootsy13
12-05-2008, 11:42 AM
hi sammy-
i'm sorry to hear you're in so much pain. have you started therapy? 6 years ago i was in an accident. i was not able to move my left arm at all! i mean it was completely limp. and, i could only move my neck in VERY limited movements. i did p.t. and it worked wonders. fast forward to 1 1/2 months ago. i was in another accident that aggravated my prior injuries. so now i am dealing with 2 herniated cervical discs, bone spurs and major degeneration in my old injury area. what's funny is this accident was not as major but my issues are still lingering. i have had 8 p.t. appointment so far and i am still in pain. in fact last night i couldn't sleep because my shoulder blade hurt. if things don't improve by next month, my doctor will be doing an emg to test for nerve damage.
all i can suggest is stay on it...let your doctors know every symptom you are having. i keep a daily log...stick with p.t. and moist heating pads work wonders!
i'm sorry to hear you're in so much pain. have you started therapy? 6 years ago i was in an accident. i was not able to move my left arm at all! i mean it was completely limp. and, i could only move my neck in VERY limited movements. i did p.t. and it worked wonders. fast forward to 1 1/2 months ago. i was in another accident that aggravated my prior injuries. so now i am dealing with 2 herniated cervical discs, bone spurs and major degeneration in my old injury area. what's funny is this accident was not as major but my issues are still lingering. i have had 8 p.t. appointment so far and i am still in pain. in fact last night i couldn't sleep because my shoulder blade hurt. if things don't improve by next month, my doctor will be doing an emg to test for nerve damage.
all i can suggest is stay on it...let your doctors know every symptom you are having. i keep a daily log...stick with p.t. and moist heating pads work wonders!
sammyo1
12-07-2008, 09:37 AM
Ray, bless you, at least I stand a chance of getting rid of some of this. Thanks for reminding me to be grateful for that. My heart breaks for you, I feel alittle guilty here for complaining so much. I am just worried I guess.
Rootsy, I cant have PT, after several attempts it made matters worse. Surgery is soon & we will see how it goes. I just cant believe how it all is progressing. I am starting to worry about nerve damage with all this burning pain I know the nerves are involved. The surgeon already warned me that some may be left. I just hope its in the areas I can work around.
Ray please forgive me for being selfish here. I am just tired of it all I guess. I am trying to convince myself this surgery will work. After the shoulder surgery I was so disappointed with all the pain that was left. I really am scared. I will have to change my attitude & start having more faith.
Take care & god bless, Sammy
Rootsy, I cant have PT, after several attempts it made matters worse. Surgery is soon & we will see how it goes. I just cant believe how it all is progressing. I am starting to worry about nerve damage with all this burning pain I know the nerves are involved. The surgeon already warned me that some may be left. I just hope its in the areas I can work around.
Ray please forgive me for being selfish here. I am just tired of it all I guess. I am trying to convince myself this surgery will work. After the shoulder surgery I was so disappointed with all the pain that was left. I really am scared. I will have to change my attitude & start having more faith.
Take care & god bless, Sammy
Hearpy
12-08-2008, 01:36 PM
You must be in bad shape Sammy! Have you seen a Dr.? If you can't raise your arms up to reach the key board, you must really hurt. Can you lay down and type or surf the internet, such as a laptop? It may help a lot.
SpineAZ
12-09-2008, 12:43 AM
Before I had my ACDF I was at a 9/10 on a pain scale constantly. I was barely functioning in the month or so prior to my surgery. The ACDF significantly (but not totally) releived my symptoms. I still have bad days (and had a subsequent surgery this year) but am sill miles ahead of where I was before my first surgery.
Nicole74
12-14-2008, 08:20 AM
Hi Sammy. I'm in the same boat where your at. I'm in such severe pain most of the time. That's why I haven't been online in a while. When the pain is unbearable, it's unbearable for days and days at a time. I'm bringing this up at my next appointment on Tuesday. I can't believe how quickly this has worsened. I'm so glad your able to have your surgery soon. Good luck.
sammyo1
12-15-2008, 09:11 AM
I can see I am not alone. If anyone of you see this could you tell me where is most of your pain? I am curious. I believe some of us have problems in simulair areas. Do any of you manage to sleep through the night? I am really tired of waking up & am know on meds around the clock. God knows I have tried to avoid that.
I am so sorry Nicole I would definantly let your doctor know how your feeling. I am not sure if your in pain mangament but if they are not opting for surgery & your not in PM you need to be. I would be calling my PM if surgery was not so near. I have to say before all of this I did not know pain like this existed.
God bless you all, Sammy
I am so sorry Nicole I would definantly let your doctor know how your feeling. I am not sure if your in pain mangament but if they are not opting for surgery & your not in PM you need to be. I would be calling my PM if surgery was not so near. I have to say before all of this I did not know pain like this existed.
God bless you all, Sammy
feelbad
12-15-2008, 12:40 PM
sammy sammy sammy,yes,what you have going on CAN very easily be causing you the agony you are currently living with. you also have to keep in mind what never actually was able to be rehabbed after your rotator surgery too. that does make a huge difference,believe me. when i miss even one appt with my release guy things in the bone pain area up there along with that whole dang shoulder area can at times get just plain ugly. my hubby told me last week that i woke up before he did like 4;00 am? and was rocking back and forth in bed and holding onto my right arm and moaning. don;t remeber that part,but i did wake up in absolute hell and have no idea why,EVERYTHING in that whole rotator/shoulder area for some reason just freaking exploded on me. it was really bad. the next day,things were better,but man,even this far out post op,i still am having issues up there.i can only imagine what you have going on without ever being able to try and get that back into working shape,ya know?
you just have a combination of different issues going on up there sammy that make everything kind of constantly inflammed. once this surgery takes place and you get more into the healing process,at least then you can better define what was or is stemming from the c spine crap. with what i have dealt with before my fusion was done,i can personally tell you it was rather hellish at best at certain times. you have ALOT of factors up there that just need fixing. once that gets done,we will just have to wait and see what gets left behind to deal with and go from there ya know? just keep your eye on the surgery date sweetie. hopefully alot of what has been the most significant pain generators will be taken care of and gone for you when you wake up. like i have told you before hon, there has most definitely been "something' underlying in all this since the very start post op rotator,ya kow? its been 'feeding the fire' so to speak. this could be that one thing. unfortunetly for you its a wait and see type deal. but it IS coming up soon. ya just have to get thru the next weeks til it gets here.
you are always on my mind hon. no one deserves to be pain free more than you sammy. i KNOW how hard this has been for getting close to a year now?? not too far ya know? hopefully this will at least knock things down for you and better define the other contributors once this is all said and done. just take care of yourself and don;t overly do things. i know thats hard for you hon,but you do not want to make this even worse than it is already ya know? you are in my thoughts and prayers sammy. take er easy,and of course keep us all posted. i am here. Marcia
you just have a combination of different issues going on up there sammy that make everything kind of constantly inflammed. once this surgery takes place and you get more into the healing process,at least then you can better define what was or is stemming from the c spine crap. with what i have dealt with before my fusion was done,i can personally tell you it was rather hellish at best at certain times. you have ALOT of factors up there that just need fixing. once that gets done,we will just have to wait and see what gets left behind to deal with and go from there ya know? just keep your eye on the surgery date sweetie. hopefully alot of what has been the most significant pain generators will be taken care of and gone for you when you wake up. like i have told you before hon, there has most definitely been "something' underlying in all this since the very start post op rotator,ya kow? its been 'feeding the fire' so to speak. this could be that one thing. unfortunetly for you its a wait and see type deal. but it IS coming up soon. ya just have to get thru the next weeks til it gets here.
you are always on my mind hon. no one deserves to be pain free more than you sammy. i KNOW how hard this has been for getting close to a year now?? not too far ya know? hopefully this will at least knock things down for you and better define the other contributors once this is all said and done. just take care of yourself and don;t overly do things. i know thats hard for you hon,but you do not want to make this even worse than it is already ya know? you are in my thoughts and prayers sammy. take er easy,and of course keep us all posted. i am here. Marcia
Nicole74
12-16-2008, 03:34 PM
Yes, I'm in PM. I went there today and he says that we have to try one more shot before surgery to prove that we've tried all conservative methods. He is going to do a cervical medial block on 4 levels. Eeeek. I just had one two weeks ago on two levels and it did nothing and it was targeted right where the pain was the worst. I'm so not looking foward to this next set of shots, but am greatly relieved it will be the last. Most of my pain is at the back of the neck. It's horrible that it's unbearable a lot of the time.
sammyo1
12-17-2008, 10:02 AM
Nicole I had to go through that process to before another MRi was done & surgery was decided. I feel for you, would be nice if the next set brought you even alittle relief. I have a great PM & his staff made it all so much easier to go through. They actually took the time to tell me how much they all hoped I would get relief & did everything they could to make me comfortable.
At least this will be the last set & if surgery is in your future you know you wont be alone there,lol. Let us know how it goes. What does your PM have you on? Anything to try to help relax that area? I will keep you in my prayers.
Marcia, I am so sorry, wow cant believe your having problems with that.
Then again you have such a complex condition I wonder if that can contribute you know?
I am tired of it all now, I cant handle these headaches & they scare me, no relief. I am ready to get some relief. Had to make myself not go into ER last night. Nothing helps with those darn things. I feel like something is happening in there. All of a sudden the pain moves. Like I'll get relief in the shoulders & arms & then the headaches will start. I just have a feeling something is not right. I have deep pain down in my throat or front of my neck. Its so strange. I have a hard time desribing it. I am worried that something has changed but does not matter till surgery. I am praying this headache go away, I cant make it till then with this pain. Something is not right. I have been feeling like I will choke at times when laying down & I go to swallow. Really strange.
My husband just reminds me of how many days are left till surgery. By then I dont think I'll care much. Just get the darn surgery over with.
I have to say I never thought pain like this existed & I feel so bad for everyone who has to go through this. We have to be some tough cookies after all of this. I just dont feel like I am tough right now,lol. Girl I thought the dang shoulder was bad but these headaches take the cake & I am sick of it all. Thank god for all of you, its to hard for people to understand.
I hope I can return all the kindness you have given to me Marcia. I am blessed to have such good friends. ***REMOVED*** God bless & I am counting down here my friend. Sammy
At least this will be the last set & if surgery is in your future you know you wont be alone there,lol. Let us know how it goes. What does your PM have you on? Anything to try to help relax that area? I will keep you in my prayers.
Marcia, I am so sorry, wow cant believe your having problems with that.
Then again you have such a complex condition I wonder if that can contribute you know?
I am tired of it all now, I cant handle these headaches & they scare me, no relief. I am ready to get some relief. Had to make myself not go into ER last night. Nothing helps with those darn things. I feel like something is happening in there. All of a sudden the pain moves. Like I'll get relief in the shoulders & arms & then the headaches will start. I just have a feeling something is not right. I have deep pain down in my throat or front of my neck. Its so strange. I have a hard time desribing it. I am worried that something has changed but does not matter till surgery. I am praying this headache go away, I cant make it till then with this pain. Something is not right. I have been feeling like I will choke at times when laying down & I go to swallow. Really strange.
My husband just reminds me of how many days are left till surgery. By then I dont think I'll care much. Just get the darn surgery over with.
I have to say I never thought pain like this existed & I feel so bad for everyone who has to go through this. We have to be some tough cookies after all of this. I just dont feel like I am tough right now,lol. Girl I thought the dang shoulder was bad but these headaches take the cake & I am sick of it all. Thank god for all of you, its to hard for people to understand.
I hope I can return all the kindness you have given to me Marcia. I am blessed to have such good friends. ***REMOVED*** God bless & I am counting down here my friend. Sammy
feelbad
12-17-2008, 12:52 PM
honestly sammy,out of every single pain i have suffered over the years,head pain wins hands down over everything else as far as how it just effects you and puts you down. head pain sucks,just sucks. my migranes actually atarted when i was only 13 and nothing had been invented yet to abort them?oh my freaking god,there was times i just wanted to die,lying there in my bed,in a very dark room with my head packed in ice. i lived like that for nine years til midrin came out when i was like 21 years old? godsend,just a godsend that midrin. i sucked up one hell of alot of pain in those nine years.geez what a flippin nightmare that was.
that feeling you are having in your throat? you DO have spinal cord compression going on right? also,depending upon just what is actually there in your spine can also be affecting your throat too. even having something compressing/affecting our cords can create alot of "perceptionary" crap? pain and sensation or the feeling like 'something' is being 'done" to our bodies in some way? i had insane crap going on before my spinal cord surgery that got even more insane after that angioma was removed. you could very well also have some level of nerve involvement of the cranials that come down from the head,then loop back up into the head again. they run thru that c spine to the c 8 junction then loop back up again. so you could be having headaches just from that too ya know? with so much going on that all casue their own types of inflammation/symptoms,its just really hard to say hon just what the head pain generator actually is. hopefully this will all just be a bad memory post op. just keep hangin in there sammy,that date it getting closer. i do feel for ya sweetie and do hope this surgery helps with alot of what you have been suffering with. always here for my friend sammy,marcia
that feeling you are having in your throat? you DO have spinal cord compression going on right? also,depending upon just what is actually there in your spine can also be affecting your throat too. even having something compressing/affecting our cords can create alot of "perceptionary" crap? pain and sensation or the feeling like 'something' is being 'done" to our bodies in some way? i had insane crap going on before my spinal cord surgery that got even more insane after that angioma was removed. you could very well also have some level of nerve involvement of the cranials that come down from the head,then loop back up into the head again. they run thru that c spine to the c 8 junction then loop back up again. so you could be having headaches just from that too ya know? with so much going on that all casue their own types of inflammation/symptoms,its just really hard to say hon just what the head pain generator actually is. hopefully this will all just be a bad memory post op. just keep hangin in there sammy,that date it getting closer. i do feel for ya sweetie and do hope this surgery helps with alot of what you have been suffering with. always here for my friend sammy,marcia
sammyo1
12-20-2008, 09:08 AM
Marcia I took the midrin for years to. As for me I started with migraines around 18-19, thought I was dying. My father & sister get them to.
This headache was so much like one but I could not touch part of my neck & most of all my temple. Super sensitive. In fact my temple stayed sore to touch. I have both the left & right compression but the left is worse & the symtoms can go from left to right. Its odd but I can feel it change. For example the arm/shoulder pain will cut down & then the headaches will start.
I keep thinking that these discs are playing some kind of role with the throat.
It is the strangest thing. Its deep down, towards the front of the neck & at times I can feel when I am trying to swallow food.
Spoke to my sister who had the C done (first 2 discs) she said she had much the same. Everything hurt her. Teeth, jaw, ect. This has been so difficult to figure out with even the side of my nose like sinuses. I have to believe that the C problems are just going crazy. I agree with you, nothing tops the head pain. I can muddle through most every other pain but the head forget it. That & the chest pain I cant handle. My sister also told me her problem caused pain even in the mid area of her body. After her surgery she said it was better but the weather does effect it. I made it through several nights with that headache but the night I went into ER I honestly did not think I could make it. Even when my husband hit bumps in the road I wanted to scream. I'll be happy to make it through with no more headaches as I can feel it linger. Girl I am ready for a break from pain. How about you?
God bless Marcia & hoping you have a nice & comfortable holiday. God bless, Sammy
This headache was so much like one but I could not touch part of my neck & most of all my temple. Super sensitive. In fact my temple stayed sore to touch. I have both the left & right compression but the left is worse & the symtoms can go from left to right. Its odd but I can feel it change. For example the arm/shoulder pain will cut down & then the headaches will start.
I keep thinking that these discs are playing some kind of role with the throat.
It is the strangest thing. Its deep down, towards the front of the neck & at times I can feel when I am trying to swallow food.
Spoke to my sister who had the C done (first 2 discs) she said she had much the same. Everything hurt her. Teeth, jaw, ect. This has been so difficult to figure out with even the side of my nose like sinuses. I have to believe that the C problems are just going crazy. I agree with you, nothing tops the head pain. I can muddle through most every other pain but the head forget it. That & the chest pain I cant handle. My sister also told me her problem caused pain even in the mid area of her body. After her surgery she said it was better but the weather does effect it. I made it through several nights with that headache but the night I went into ER I honestly did not think I could make it. Even when my husband hit bumps in the road I wanted to scream. I'll be happy to make it through with no more headaches as I can feel it linger. Girl I am ready for a break from pain. How about you?
God bless Marcia & hoping you have a nice & comfortable holiday. God bless, Sammy
feelbad
12-20-2008, 12:48 PM
just kind of curious here sammy. what do your pupils look like? are they PERL? do BOTH react normally to light? i know they are more than likely both constricted due to the narcotics,but if you could check their response like in the morning BEFORE you actually take any narcotics,just to see how the response is,i really would like to know. have you noticed ANY unusual 'drooping' of either eyelid? espescially when you are really tired,it would just be a bit more pronounced then. there is a reason for the questiions hon. just check it when you can and let me know,K? Marcia
feelbad
12-21-2008, 12:55 PM
just one more thing i wanted to add here hon. the possibility of your SNS being involved in some form? that has never actually been ruled in or out with that stellate block being done,ya know? also,considering the direct compression you have going on,there is another possible pain syndrome that could be involved in your facial problems and the head pain,espescially that hypersensitivity to touch? that spinothalamic tract has two seperate tracts within that cord. one sits directly between the backs of the vertebrae and the very front of that cord area,and the other sits left lateral in the cord. the left lat is where my tract and my SNS was damaged at. but the fact you have the compression,it could be affecting that spino tract right behind it.
i am in no way saying that this is what you have,but these are very real possibilities considering what you have and where ya know? if the SNS is being affected in some way,it can create that set of symptoms,but on the other hand,having the spino tract affected also can create its own pain syndromes too. the central pain syndrome that i have in my left arm elbow area and that used to be across both shoulder blades was casued to direct damage to that spino tract. what exactly does that area feel like? just how hypersensitive to touch is it? intolerable or extreme? how about when you push into it,does it feel better or worse to you? the thing about the central is when i push into the worst most painful areas really hard,the pain actually gets better not worse like you would think. very insane let me tell ya. but i really do think that the trigeminal is definitely involved here too given where your pain actually is. if you looked it up(i know on the other board you said you did?),you would see just how that nerve actually runs,right thru the areas where you are complaining of pain.
i really am so hoping that once that surgery gets done and over that you will be free of the crap you have going on hon. i sooo feel for you sammy,i really do. i wish i could do more to help you. just know that i AM here and will be both pre and post op too,K?
just wanted to mention about the collar? you mentioned that it is hard on your chin? if thats the case,you may need to go down one size smaller(or up,depending upon just 'how' this is affecting your chin). your chin should not be taking any type of real "hit' when the size is right. just what type of collar do you have on hon? believe me sweetie,not only did i have to wear one of these suckers twice,but i spent fourteen years also fitting them on trauma patients too. your chin should NOT be suffering with the right fit(does this go up over your chin/or block your mouth in any way when you sit? or is it hitting the underside of your chin?). just ask about going down one size if its going up and over too far. i actually fit really nicely into a PEDS size collar. it all depends upon neck area size. i wore that miami J PEDS for my second surgery and man what a difference from the first agonizing collar nightmare it was. just ask them to double check that fit or see an orthotics tech before your surgery,they DO know how to properly fit a collar to a patient too. just call your surgeons office on monday for a place that fits collars for you. you have to remember you are going to be wearing this little wonder for many weeks,the fit does matter alot in your comfort sammy. you just want the most comfy/proper fit,thats all. please keep us posted sweetie.marcia
i am in no way saying that this is what you have,but these are very real possibilities considering what you have and where ya know? if the SNS is being affected in some way,it can create that set of symptoms,but on the other hand,having the spino tract affected also can create its own pain syndromes too. the central pain syndrome that i have in my left arm elbow area and that used to be across both shoulder blades was casued to direct damage to that spino tract. what exactly does that area feel like? just how hypersensitive to touch is it? intolerable or extreme? how about when you push into it,does it feel better or worse to you? the thing about the central is when i push into the worst most painful areas really hard,the pain actually gets better not worse like you would think. very insane let me tell ya. but i really do think that the trigeminal is definitely involved here too given where your pain actually is. if you looked it up(i know on the other board you said you did?),you would see just how that nerve actually runs,right thru the areas where you are complaining of pain.
i really am so hoping that once that surgery gets done and over that you will be free of the crap you have going on hon. i sooo feel for you sammy,i really do. i wish i could do more to help you. just know that i AM here and will be both pre and post op too,K?
just wanted to mention about the collar? you mentioned that it is hard on your chin? if thats the case,you may need to go down one size smaller(or up,depending upon just 'how' this is affecting your chin). your chin should not be taking any type of real "hit' when the size is right. just what type of collar do you have on hon? believe me sweetie,not only did i have to wear one of these suckers twice,but i spent fourteen years also fitting them on trauma patients too. your chin should NOT be suffering with the right fit(does this go up over your chin/or block your mouth in any way when you sit? or is it hitting the underside of your chin?). just ask about going down one size if its going up and over too far. i actually fit really nicely into a PEDS size collar. it all depends upon neck area size. i wore that miami J PEDS for my second surgery and man what a difference from the first agonizing collar nightmare it was. just ask them to double check that fit or see an orthotics tech before your surgery,they DO know how to properly fit a collar to a patient too. just call your surgeons office on monday for a place that fits collars for you. you have to remember you are going to be wearing this little wonder for many weeks,the fit does matter alot in your comfort sammy. you just want the most comfy/proper fit,thats all. please keep us posted sweetie.marcia
sammyo1
12-24-2008, 09:36 AM
Marcia, At times it could be ultra sestive between the shoulders. I am telling you this is all to strange. As my arm, shoulder & hands have cut down in agony the headaches increased. Makes me truely wonder it something is just changing in there, what do you think?
Went into my PM yestruday. Could not stand the headaches & he just kind of blew it off In my opinion. This close to surgery I dont think he wanted to mess with it.
He explained that because of my size he was hesitant to give me more of anything. What do you think about that? I know you are pint size like me.
He then went on to tell me how people accidently OD because of taking more & more for the pain. I let him know that I have not had my post dated scripts filled that could have been last week so I am not over taking my meds. He then went into it could be a rebound headache, that I doubt.
Now here is the thing, he said he does not think this is all coming from the neck & that scared the heck out of me. I dont want these headaches after this surgery. I cant even touch my temple with my fingers. The top of my head is ultra sensitive. I had a sinus Xray to rule that out because my left nostril has pain, I could feel the spray they wanted me to use going up the right & not the left. Must have been some kind of inflammation.
He did give me Fioricet to try but it did nothing. These are like a migraine & may very well be. All left side, last couple days most of my pain in at the temple & eye & the area going up to behind the ear. My jaw is really painful at times so maybe something happened to it during the root canal. Then again I did some research & it does say the cervical can cause this type of pain.
Yes I looked up the nerve & it was mentioned in one of the articles I read through about cervical & headaches, if it is that nerve will the surgery help get rid of this pain?
These are so bad I am praying it is the cervical, if not the only other thing it can be is the jaw or TMJ. Better not be the teeth after 4hrs at the dentist.
It can be confusing as there are alot of things that can cause this pain.
I know you said you have had the migraines, were they like I am describing?
As I have had them for years in the past the pain is this bad but I did not have all the pain in the jaw area but it was much the same. Even goes down the throat. The front of my neck down past the throat even hurts thats the one thing that makes me think it could be the cervical that & why the change in pain in other areas you know?
I have been so upset & lost the last week of most of my work hrs. It been really stressful & I told myself enough.
AS for the collar, I thought the same, I probably needed a ped collar. I am taking my sisters with me as it fits better & my husband will let them know that the one they gave me which is a small, is to big. It does not keep my chin propped & allows some movement, more then the one my sister let me use. yes its uncomfortable on my chin. With the one the surgeon gave me my chin can fall into it. The one my sister lent me can be tightened to prop the chin. It barely tightens enough for that. As you know like you I am a shrimp.
I keep going back to the one my sister gave me to use but would rather have my own, after all I am paying for it & she may need hers in the future.
I think all these doctors are so rushed they dont really take the time to really check things out. I tried twice to wear the one they sent home with me but its just to uncomfortable. My sisters is somewhat different & harder to get on.
Girl I am worried. I would feel alot more confident if I knew these headaches were indeed caused from the cervical. I told my husband I cant live with these headaches. Just like when all of this started the doctors just would push it all aside, well this time I am not allowing it. If these are left behind I want it looked into asap.
Sorry its so long but I am so worried about going through all this & these headaches remaining. I just cant live with that pain. The only good thing is I learned from this & learned to not let the doctors ingore or push my complaints aside. I am not going to let this go if it remains after surgery. For now I have to think its cervical other wise I would go crazy.
God bless you Marica, you have been so very good to me & here for me & I cant tell you how much I value having you as a friend. I have been in so much pain I cant think straight & you have no clue how much you have helped me. Thank you, Sammy
Went into my PM yestruday. Could not stand the headaches & he just kind of blew it off In my opinion. This close to surgery I dont think he wanted to mess with it.
He explained that because of my size he was hesitant to give me more of anything. What do you think about that? I know you are pint size like me.
He then went on to tell me how people accidently OD because of taking more & more for the pain. I let him know that I have not had my post dated scripts filled that could have been last week so I am not over taking my meds. He then went into it could be a rebound headache, that I doubt.
Now here is the thing, he said he does not think this is all coming from the neck & that scared the heck out of me. I dont want these headaches after this surgery. I cant even touch my temple with my fingers. The top of my head is ultra sensitive. I had a sinus Xray to rule that out because my left nostril has pain, I could feel the spray they wanted me to use going up the right & not the left. Must have been some kind of inflammation.
He did give me Fioricet to try but it did nothing. These are like a migraine & may very well be. All left side, last couple days most of my pain in at the temple & eye & the area going up to behind the ear. My jaw is really painful at times so maybe something happened to it during the root canal. Then again I did some research & it does say the cervical can cause this type of pain.
Yes I looked up the nerve & it was mentioned in one of the articles I read through about cervical & headaches, if it is that nerve will the surgery help get rid of this pain?
These are so bad I am praying it is the cervical, if not the only other thing it can be is the jaw or TMJ. Better not be the teeth after 4hrs at the dentist.
It can be confusing as there are alot of things that can cause this pain.
I know you said you have had the migraines, were they like I am describing?
As I have had them for years in the past the pain is this bad but I did not have all the pain in the jaw area but it was much the same. Even goes down the throat. The front of my neck down past the throat even hurts thats the one thing that makes me think it could be the cervical that & why the change in pain in other areas you know?
I have been so upset & lost the last week of most of my work hrs. It been really stressful & I told myself enough.
AS for the collar, I thought the same, I probably needed a ped collar. I am taking my sisters with me as it fits better & my husband will let them know that the one they gave me which is a small, is to big. It does not keep my chin propped & allows some movement, more then the one my sister let me use. yes its uncomfortable on my chin. With the one the surgeon gave me my chin can fall into it. The one my sister lent me can be tightened to prop the chin. It barely tightens enough for that. As you know like you I am a shrimp.
I keep going back to the one my sister gave me to use but would rather have my own, after all I am paying for it & she may need hers in the future.
I think all these doctors are so rushed they dont really take the time to really check things out. I tried twice to wear the one they sent home with me but its just to uncomfortable. My sisters is somewhat different & harder to get on.
Girl I am worried. I would feel alot more confident if I knew these headaches were indeed caused from the cervical. I told my husband I cant live with these headaches. Just like when all of this started the doctors just would push it all aside, well this time I am not allowing it. If these are left behind I want it looked into asap.
Sorry its so long but I am so worried about going through all this & these headaches remaining. I just cant live with that pain. The only good thing is I learned from this & learned to not let the doctors ingore or push my complaints aside. I am not going to let this go if it remains after surgery. For now I have to think its cervical other wise I would go crazy.
God bless you Marica, you have been so very good to me & here for me & I cant tell you how much I value having you as a friend. I have been in so much pain I cant think straight & you have no clue how much you have helped me. Thank you, Sammy
feelbad
12-25-2008, 11:41 AM
you have helped me too hon,so there ya go. i think at this point we are in a kind of wait and see type of mode just to really know for certain whether or not the head pain IS or is NOT coming from your c spine. i am thinking there is something up there triggering this all off. hopefully post op,you will know pretty quickly. not only do we have nerves and the spinal cord running thru the area but we also have a vascular structure too. your headaches could be a combo of both. that fascia that surrounds our muscles and organs also surrounds the blood vessels too,so it would make some good sense there given how totally inflammed everything up there has been for so long ya know? is that headpain always there or does it come and go? or is it there and just flares into the nightmare from time to time? it should be interesting to see just what is there post op. hopefully sammy the headaches will be gone for good. only time will tell.
i just wanted to wish you well tomorrow hon and also wish you a merry christmas too. hopefully for christmas,you will get a huge reduction in your pain. i do think you deserve some peace at this point. just have to take things slowly and see what happens and how things develop post op. i truely am hoping that this helps with alot of your ongoing problems and the horrid pain you have been living with for so long sammy. please post when you are up to it,i will be anxiously awaiting to hear from you,and how you are doing. take care sammy. i WILL be here when you are back. i do hope your christmas is a peaceful one. bye for now my friend,marcia
i just wanted to wish you well tomorrow hon and also wish you a merry christmas too. hopefully for christmas,you will get a huge reduction in your pain. i do think you deserve some peace at this point. just have to take things slowly and see what happens and how things develop post op. i truely am hoping that this helps with alot of your ongoing problems and the horrid pain you have been living with for so long sammy. please post when you are up to it,i will be anxiously awaiting to hear from you,and how you are doing. take care sammy. i WILL be here when you are back. i do hope your christmas is a peaceful one. bye for now my friend,marcia
feelbad
12-28-2008, 02:04 PM
just wanted to let you know sammy that you have been on my mind ALOT and am hoping you are doing okay post op and that those dang headaches have gone bye bye. take er easy hon. will be looking for your first post soon. your friend in pain,and surgerys,marica