Mica09
01-10-2003, 10:42 AM
I've posted here a long time ago and since then I still feel the same. The last doctor (neurologist) that I saw told me that I had recuring Labyrinthitis. I would like your opinion, here is my story.
I've been dizzy (not the spinning type) 24 hours a day, 7 day a week for the past 15 months. The first symptom that I had was a feeling that I was walking on a very mild slant (feeling pulled to one side) but never lost my balance. After about a week of that the dizziness started.
Symptoms:
I could describe my dizziness as sometimes being borderline vertigo. There is no spinning more like a mild wax and wane type of feeling.
I sometime have periods were I feel more unsteady or being pulled to one side, but I always walk in a straight line. My balance feels worse in the darkness.
I feel more unsteady or dizzy in a room full of people or full of objects.
At my worst I also can feel my brain (numbness when I move my head) and a fuzzier vision.
I sometime feel pressure or ringing in my ears, but these are mild,last a few seconds and doesn't happen very often.
What bothers me the most is that dizziness that never goes away.
I saw many doctors: ENT, neurlogists, GP's etc.
I had an Xray, CTscan, MRI, multiple blood tests, all negative.
I tried several medication. Nothing helps.
Doctors don't know what I have cause my symptoms are not classic.
A few weeks ago I saw a neurologist that told be that my condition was probably due to recurring Labyrinthis. He said that sometimes when it comes back the symptoms are not as severe (vertigo wise I guess), to hang in there and that the symptoms would eventually go away.
That is very encouraging but it's been 15 months!!!! Do you think Labyrinthitis could last that long??
I've been dizzy (not the spinning type) 24 hours a day, 7 day a week for the past 15 months. The first symptom that I had was a feeling that I was walking on a very mild slant (feeling pulled to one side) but never lost my balance. After about a week of that the dizziness started.
Symptoms:
I could describe my dizziness as sometimes being borderline vertigo. There is no spinning more like a mild wax and wane type of feeling.
I sometime have periods were I feel more unsteady or being pulled to one side, but I always walk in a straight line. My balance feels worse in the darkness.
I feel more unsteady or dizzy in a room full of people or full of objects.
At my worst I also can feel my brain (numbness when I move my head) and a fuzzier vision.
I sometime feel pressure or ringing in my ears, but these are mild,last a few seconds and doesn't happen very often.
What bothers me the most is that dizziness that never goes away.
I saw many doctors: ENT, neurlogists, GP's etc.
I had an Xray, CTscan, MRI, multiple blood tests, all negative.
I tried several medication. Nothing helps.
Doctors don't know what I have cause my symptoms are not classic.
A few weeks ago I saw a neurologist that told be that my condition was probably due to recurring Labyrinthis. He said that sometimes when it comes back the symptoms are not as severe (vertigo wise I guess), to hang in there and that the symptoms would eventually go away.
That is very encouraging but it's been 15 months!!!! Do you think Labyrinthitis could last that long??
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Emsybobs
01-10-2003, 01:21 PM
From what I know about the dreaded Labrynthitis (I also have it)your symptoms sound just like mine and do match the typical diagnosis of the ailment. I have had it for 3 mths and it is improving. I also have an off balance feeling, not dizziness as such and crowds make it far worse as does the dark. I had ear popping and ear fullness but it has now gone. My ENT told me L'itis could last for "several months". 15 mths is a long time. Has it got ANY better? Were you on the medication a lot? As medication can hinder the adaption process.
After 3 mths, I have recently found that I now have "good days" as opposed to the dizziness feeling being bad all the time. I am doing exercises given by my ENT. Were you given any?
It does sound like L'itis to me. Maybe you are just unlucky in that it keeps reccurring. I would perhaps see a different specialist. Keep me updated and the best of luck.
After 3 mths, I have recently found that I now have "good days" as opposed to the dizziness feeling being bad all the time. I am doing exercises given by my ENT. Were you given any?
It does sound like L'itis to me. Maybe you are just unlucky in that it keeps reccurring. I would perhaps see a different specialist. Keep me updated and the best of luck.
Mica09
01-10-2003, 01:38 PM
Thank you for your reply.
I don't find that my symptoms have improved that much but I guess I can say I'm more used to them. There is not a day that goes by that I can say I'm symptom free. The dizziness is always there. On medication or off, I feel exactly the same.
What are the exercises you are doing?
I don't find that my symptoms have improved that much but I guess I can say I'm more used to them. There is not a day that goes by that I can say I'm symptom free. The dizziness is always there. On medication or off, I feel exactly the same.
What are the exercises you are doing?
Subs30
01-10-2003, 01:54 PM
Sounds like "L's" to me on one side--also. I have it--got it about 6 months ago. Some times "L" is followed by BPPV--says some of the medical research. The hyper-link below--is a good(at least as far as I could find) write-up on it all. These guy's(Doc's) located in PA--are not the " Center of Excellence" for this condition--as is Northwestern Univ. How ever it is a good write-up to understand this little understood condition. And yes as you will see from the various medical research--it can last a long time--but only for a few. My guess is like me you got "L" from a virual infection---which led to BPPV--the BPPV will not clear up--until the "L" is gone--but as I say just a guess. (click on it):
http://www.pneuro.com/publications/dizzy/bppv.html
Good Luck
http://www.pneuro.com/publications/dizzy/bppv.html
Good Luck
Emsybobs
01-10-2003, 08:47 PM
They are exercises for Vertigo and being off balance - the main one being moving head sharply to left then centre (whilst holding a finger out infront of you and focussing on the finger when your head is in the centre) then sharply to the right - repeat this all quickly until you feel unsteady. Do it while sitting down.
The explanation above sounds likely. Let me know how you get on.
The explanation above sounds likely. Let me know how you get on.
Subs30
01-10-2003, 11:16 PM
For exercises--try the one's posted under "treatment" at the below web site:
http://www.tchain.com/otoneurology/disorders/bppv/bppv.html
The site is operated by one of the Doc's at Northwestern--which is prob the best for this condition--with LA & John Hopkins being next in that order.
http://www.tchain.com/otoneurology/disorders/bppv/bppv.html
The site is operated by one of the Doc's at Northwestern--which is prob the best for this condition--with LA & John Hopkins being next in that order.
Mica09
01-11-2003, 02:00 PM
Thank you for your replies. They are greatly appreciated. I do hope that it is Labyrinthitis because it's giving me hope that it will someday go away.