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KATC45
12-19-2008, 12:35 PM
:wave: I have also read the book Myth of osteoporsis. I still would like to know howthey come up the the T scores to measure the test results. How haas this become a major problem in the country when it has no test backup for osteoporis (it appears for only 20 years or less).

I have osteoporsis and taking Forteo for four months now, still not sure if this is the right thing to do? :confused:

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Chicknpea
02-10-2009, 02:28 PM
I read that book also & I got a Dexxa scan in the next county from
mine & my second test showed NO osteoporosis as compared to my
1st test which showed some severe osteoporosis along with moderate
osteoporosis in some bones & also some osteopenia. The book mentioned
the fact that there is no standard calibration in the dexxa machines
& it seems like my testing shows this is probably true.

starfish81
02-10-2009, 04:03 PM
Oh gosh chickpea, that's truly unsettling. Imagine if you'd never had the second DEXA...you could have had some prescription foisted upon you for no reason...scary:eek:!
I've read that osteoporosis reached "epidemic" status in N. America around the time that women began to question HRT. Of course, the pharmaceutical companies then needed another "condition" under which they could medicate a large, gullible segment of the population....voila! We now have DEXA machines all over the continent and the doctors are being "educated" by the pharmaceutical reps that anyone with a certain DEXA score should be on their drugs...no questions asked:mad:!

phylwill1152
02-10-2009, 05:24 PM
Hello everyone...let me add myself to those who've read the book. I think it was when the WHO (world health Organization) lowered the guidelines for osteo to -2.5 that the drug companies came up with the drugs to fix the "problem". It is also very true that not every DEXA machine will give the same results and having different techs do the test can alter the results also. I read somewhere that having the first DEXA shouldn't even happen till a person reaches 65 unless there is a good reason for one.

chicknpea...after having 2 different scores i would have to go to a third place for one to see which one is most accurate. Knowing 2 different versions would make me crazy :dizzy: till i knew which was right or which 2 were closest in scores.

KATC...sometimes you have to go with your gut feeling. If taking forteo doesn't feel right for you you have to decide if you are going to listen to your gut or the dr.

take care...phyllis

JohnR41
02-28-2009, 12:19 PM
>>>I have osteoporsis and taking Forteo for four months now, still not sure if this is the right thing to do? :confused:<<<

KATC45,

I didn't read the book but I just read about some of the possible side effects of Forteo and other Osteoporosis drugs: "blured vision, heartburn, nausea, joint pain, and much more. Some could change your life forever."

It doesn't sound good. If something is supposed to be good for you, why should there be bad side effects? It doesn't make sense to me. The thinking behind taking such a drug must be that most people will not change their lifestyle enough to make any significant impact on their disease.

By the time a person discovers that they have Osteoporosis, they are getting up in age and are set in their ways. Several decades of dietary habits are unlikely to change very much. So a drug is seen as "better than nothing".

Myth
02-28-2009, 03:04 PM
hi everyone, I havent read the book but have read about the dexa machines inaccuracies..... dexa, invented by the pharma companies to cash in on aging bones which naturally thin ;)
even my endo doesnt trust the dexa and says its a crude way of measuring bone thinness and doesnt measure bone quality
so she had a normal xray of my spine done ,not only to confirm the thinness of my bones but to also look for fractures ( I have kyphosis) and curvature of the spine
I still wonder though ..as I have always been slight build so who are they comparing me to ?

regards myth

PikaB
03-01-2009, 01:13 PM
:...I still would like to know howthey come up the the T scores to measure the test results...
T-scores are based on statistical measurements called standard deviations that reflect the differenece between one's bone density and the average bone density of young healthy adults of the same gender.

But the DEXA is a 2-dimensional scan, so a smaller person will naturally have a lower "score" than a larger person, even if their real bone density (based on cubic volume) is the same.

taape
03-01-2009, 04:06 PM
I took Forteo for 2 years and got good results however as soon as I got off of it my T scores went back down. Why have a medication that is time limited with nothing but the medications avoided in the first place to go back to after 2 years of Forteo. This doesn't make sense to me at all.

starfish81
03-02-2009, 03:00 PM
But the DEXA is a 2-dimensional scan, so a smaller person will naturally have a lower "score" than a larger person, even if their real bone density (based on cubic volume) is the same.

Aha! I thought so. So....why is it that this is never taken into account and life-altering decisions are based on T-score alone? (I think I know the answer:mad:)
Having said that, are there any mathematical types out there who could figure out an "acceptable" range/score based on cubic volume?

BrittleD
03-02-2009, 06:52 PM
Oooo that makes me mad! I'm small framed. I have really tiny wrists. Very small bones. I wish I had never gone on Forteo, it didn't do me any good at all after 15 months.

Britt

mitsy
03-02-2009, 07:03 PM
I have also been on Forteo and have had little results. I am taking Ezorb calcium and I think that has helped more than anything. I am horrified by the zometa which gave me jaw necrosis. I need my front tooth pulled and the dentist said he won't do it. the blood test showed I have too much of something still in my system.

KATC45
03-06-2009, 11:01 AM
thanks again for your input, I love this site. I have gotten off of Forteo and am currently taken Strontium and have added K-2 also. Only time will tell, but I
feel being off of any prescription bone denisty medication will not be the answer if the future.

KATC45
03-06-2009, 11:07 AM
I think you might want to research Strontium (Bone Maker) it is the natural
replacement for Forteo and from the research is safe. There is not time limit as to how long you can take it, it is not a prescription medication.

I have gotten off of Forteo after only 5 months, since I feel they do not have any long term research on this drug.





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