I Robertson
08-15-2003, 06:23 PM
Well - I saw my ENT consultant today - i had lab's over 2 years ago and he reckons the symptoms I know have - (a very over sensative inner ear which leads to dizzyness and the constant sensation of imbalance when walking or standing)are a sequel (after effect) of the initial viral infection. However as its going on so long he reckoned if I was not improved in another few months (after medication and VT) I should see a nuerologist (not nuerotologist) in case the problem was in my neck and possibly vascular. Any of you seen a nuerologist - if so why - what question did they ask - what tests did they do - what diagnosis if any did they come up with. I have had an MRI scan which was clear so its not MS or a tumour. Advice please. Thanks.
Subs30
08-15-2003, 07:25 PM
Yes I saw one.
Went like this:
Primary Care Doc had MRI(it was negative) done---sent me to the ENT---who did a ENG/Audiogram---ENG(actually a VENG) could not rule out "Central" Prob and showed Dead Right Lab---Audiogram show loss of hearing in right ear----ENT---sent me to Neurologist who:
Looked at the MRI Film---said it was "unremarkable"
Asked a series of questions, when did it start, how did it start, what prescription was I taking, what type of dizziness/imbalance did I feel, did I ever bang my head hard, etc...
Then---using a "Tuning Fork" tested the nerve pathways from feet, hands, etc....did a series of eye exercises---look right, look left, up, down--both eyes one eye, etc...
In the end said it was "BPPV" and not a "Central" problem---therefore "peripheral" and sent me back to the ENT---who sent me to VRT at the Univ. of Penn Hosp.
scant5
08-15-2003, 08:24 PM
Subs:
This means that you were diagnosed by a neurologist not a neurotologist? With your knowledge just wondering why you went with a neurologist. Just curious since my Dr.s tell me to see a neurologist yet the vast majority on this board recommends a neurotologist.
One more question, have you tried weedwacking yet as VRT. I'm tempted to try it. I'm serious, it would be a constant rocking back and forth motion for me as I set the weedwacker on my hip and just rock from side to side. Believe it or not I used to love weedwacking, it was the final touch on my lawn mowing job.
Thanks
Kathy
Subs30
08-15-2003, 09:52 PM
Hi Kathy
Did you lose power????
Yes I weed wack after mowing---with a gas weed wacker---sounds like your talking about manual weed wacker(s)---that would be different & I suspect good VRT.
I ended up with a Nuerologist---because----I did not know then what I know now----otherwise---I would not have seen him---but have to say---what they(My Primary Care Doc & the ENT Doc) were concerned about at the time was that I was showing signs of a "Centeral" problem---so his focus was on the brain and not my ears.
Now that I know its not a "Centeral" prob---I use a neurotologist at the Univ. of Penn.
So I would recommend a neurotologist. By the way if read the post I put up defining a Neurotologist---you can see that it's a Nuerologist who has completed a two or three "Followship" in Nuero-oto-logy or had a practice in it for seven years---I think---don't have it in front of me now.....
Anastasia
08-15-2003, 11:03 PM
hey kids
i saw a neurologist who was worried about absence seizures and a brain tumor but my tests came back "unremarkable". he said it could be early signs of MS but it would be about 1/1000, i'm going for an MRI next to see if its nerve damage.
Anastasia
scant5
08-16-2003, 11:57 AM
Subs;
Just wanted to make sure, because I respect your opinion. Getting a little uptight about who I am going to see, but I trust hbep to lead me in the right direction. Yesterday was not such a good day, the Pollen count was incredibly high and thought that may have been why, who knows. Today is better..
Yes we did lose power, we got it back on at 10:30 that same evening. I had just left my friends house and she lost power, drove 15 min to gas station, they had no power, called husband on cell phone and he said we had no power. First I got pretty worried especially when I stopped a State Trooper and asked him if he knew what was up with the electricity, couldn't believe what he said....was shocked that it was that wide spread. Since I'm a mere pup at 42, I don't ever remember a black out of such magnitude. Unfortunately I still had to cook because we have a gas stove, Yipeee.
Take care subs:
Kathy
PS Sorry I Robertson about buting in on your thread.
I Robertson
08-16-2003, 01:27 PM
Hi Subs - em - another question - how is that if your MRI was clear/negative that they still thought the problem could have been central. I was under the impression that if that was clear you were ok from that perspective. Hi all other dizzies. Scant5 - you are not butting in - you are most welcome!!
Subs30
08-16-2003, 02:46 PM
Yep the MRI showed nothing(unremarkable--they said)---however when the ENT had me take a ENG(VENG really)---the test results could not rule out a "Central" cause---so it was off to see the Nuerologist---who is trained in that area---who re-read the MRI Film & did the test described in my post above.
While the ENG test does---infact---determine(in most cases) which part of the vestibular system has the problem----its main purpose is to confirm that it is a "peripheral" problem and not "Central"---in my case the ENG tests results could not rule out a "Central" cause.
So while the MRI was read/interrupted by the Radiologist to be "negative" the ENT wanted a second option because of the ENG Test from a Nuerologist.
The basic problem that was throwing the ENG test results off---was that---because of a submarine related injury---I do not have binocular vision---in other words---I only use one eye at a time---and I constantly shift between each eye---but the brain has learned to integrate that now---so I am not even aware it is taking place----but that has a way of throwing the ENG tests off in the tracking area---I told them about it---but they wanted to "error on the side of caution"---which was ok by me---{:-}
Subs30
08-16-2003, 03:03 PM
Hi Kathy
Thought you might have been in the group that lost power---quite a mess!
All of that excitement and you got to "cook" to--wow!!
Think I would have explained to all---the advantages of "make your own sandwiches"---education is such a wonderful thing--and it is in the National interest to expose all to it--truly a character building experience!!{;-}
Hang in there---your on the right track!
I Robertson
08-16-2003, 07:32 PM
Hey you all -thanks for your replies - I knew I could count on you.
Anatasia - what causes nerve damage? or what are they suggesting may have caused yours and which nerves are they talking about? is it one in your inner ear or are the talking about the brain. I ask as that same thing has been suggested to me. I know its not MS as I have had a clear MRI. What are your symtoms? and how long have you had them.
Would you all like to start a thread with a brief description of symptoms, diagnsois and length of time its been going on. Its just a thought as I personally keep forgeting and then re-asking the same questions. If so please do and I will join in too. That way whennewbies come in we can bump up the thread and they can quickly find who matches their symptoms as its reasuring not to be alone. Its just a suggestion if you don't want too don't worry.