I am a suffer of patulous eustachian tube of five years and seek anyone who may have this same rare ear disorder. I have seen many ent doctors without any good advice or solution. May symptoms are fullness in the ears with crackling and popping sounds. I've been told that the eustachian tube is always open which is the reason for the loudness of my voice. Under any sort of duress my ears pop open and my voice gets extreemly loud as if my vocal cords are right next to my eardrum.
This has been very difficult to deal with since the loudness is so distracting that it effects my concentration and speaking ability. I totally avoid social engagements and dread holding staff meetings as my job requires. I am very curious to know if anyone else has this disorder and what may be the cause.

------------------
Jay Werner

Your answer to your problem from what I have been told is Dr. Dennis Poe in Boston MA. From what I have been told he is the EXPERT in PETD and all other ETD problems. I myself have an appointment with him this month. I have spoken to many people who have our problems and they all confirm that he is the doctor to see when all others cant seem to find a solution.
I don't know if this helps, but if your like me, any news is good news. ETD problems are maddening and most ENT are unable or unwilling to help.

Hello Asian eyes,
I'm still receiving post from Healthboards.com. Tell me about your symptoms, how long and and what you do for relief.

Jay

eman22,
I'm interested in talking with Dr. Poe and possibly setting up an appointment. Do you happen to have his
Phone number? Also, let me know how your appointment goes.

Jay

Due to the fact that the moderator wont let me pst phone numbers on this site, you will have to do a search for Dr. Dennis Poe. He's real easy to find. Just do a google search under Dr. Dennis Poe, Boston MA. Unfortunately I had to cancel my apt with him last month and I rescheduled for Oct 2nd! Be prepared to wait a LONG time to see this man. All I can say, is that from talking to SEVERAL people, he is THE man to see for P/ETD problems. I guess I'll just to have to see for myself.
I have made and appointment with a doctor from the Johns Hopkins Medical Center in Maryland. Dr. Carey is his name I beleive. Anyways, He is one of the few ear doctors that I was told look for specific problems that others tend to over look. At this point, I just want to see someone who specializes in eustation tube dysfunctions, PERIOD! Im hoping there are some answers I can get other than "I can't find anything unusual."
I will let you know how my apointment goes next Wednsday. Like you all, talking on this site and sharing ideas and treatments have been a real source of comfort for me. Hopefully I will be able to gather some treatment options that may help everyone else as well.
Take care

I've got some questions for anyone that has been diagnosed with PET and is willing to answer - Tough questions but important to know.

1) Have you ever had an eating disorder where you vomit on a regular basis for longer than 1 year?

2) Ever have a drug addition to cocaine where you snorted through the nose for longer than 6 months?

3) Have you been diagnosed with any type of allergies? Food or otherwise? Milk? Specify types.

4) Do you have high blood pressure or hypertension?

5) Do you have any type of stomach issues with digestion?

Everyones reply would sure be appreciated.

Thanks!

jay,
i have had pet since the age of ten. over the past sixteen years, it has progressed very slowly to a point where i am without the symptoms only when i lie down. i hear my voice and respirations in my left ear at deafening volumes. i have tried sniffing chlorinated water, drinking iodine tincture, and have been doing allergy shots for sixteen months without relief. i am interested in what you find during your appointments. please keep us posted.

I think I have PET, My ear pop and feel "full", they always have done.

When I was young an ear doc said I might need gromets, but I didn't get them.

These days I control it by holding my nose and mouth shut, and then trying to sniff really hard. I guess the pressure causes the eustachian tube to shut.

If I get a cold it doesn't work as well, but usually it does.

Hope this helps someone!

Basatum,
I am very interested in how the Prozac works out for you. Someone in the past (can't remember who) suggested trying to use an antidepressant drug. I never tried, but might consider it if there is good results from others like yourself.

Questions:
What percentage of relief are you getting while on Prozac?

How long have you been depressed? Is there a possiblity that you were depressed prior to PET?

Good Luck to you, this is encouraging news.

Basatum,
Did you by any chance snort cocaine during your college years? Is it possible that tissue around the eustachian tube may have been damaged if you did.
Just a thought...

Anyone else out there with the same history?

Hi,

I am taking Jia Wei Gui Pi Tang right now for PET. I have been taking it for almost two weeks. So far, no improvement. Has anyone had any recovery from PET. My doctor says its because I lost 15-18 lbs in a short period of time. Says to gain it back and it would go away. I put 5 lbs back on but hasn't helped. This is driving my crazy. I am looking for someone to say that they have a cure.

Hi: I am new to this site and have been going through as many posts as possible to see if I could find someone with symptoms similar to mine. It sounds like most of us have some of the classic symptoms like fullness and the autophony where our voice sounds amplified. Your note is one of the first that complained of speaking and avoiding social engagements. I find that the speaking has become almost impossible in any setting outside of a quiet room with no background music, tv etc. i have become isolated socially and occasionally feel housebound and try again only to come home and say it isn't worth the discomfort. My voice seems stuck in the soft mode although I could speak loudly if it was critical but over time have just learned to be quiet. That has not been easy but any sound inside my mouth is amplified. I find the electric toothbrush horribly loud and I can't hear anything someone is saying to me if I am brushing my teeth or talking or chewing. Otherwise my hearing tests are perfect. I have tried earplugs and that helps the resonance in my own head but people still have a hard time hearing my soft voice and the problem is everyone is muffled at that point. I even tried to buy one of the amplification systems hoping that I could speak softly but my voice would be loud enough for others to hear. The problem with that is you have to speak at least loud enough that the vibrations can be amplified and I found that the only thing comfortable for me was to have speech that was soft and didn't vibrate as much. So it did help others to hear me but didn't help my situation of speaking being uncomfortable. I just went back to one on one and quiet environments. It must be really hard if you have to give presentations. I find the phone is the easiest way to communicate because I don't have to project my voice --it feels even more comfortable than sitting across a table in a quiet room trying to talk. Just that little bit of distance seems to make a big difference inside my head. Have you found any ways of doing your work and presentations since your last post? I am really anxious to see what others are doing about the speaking problem. Thanks

Jay -

Historically, I fall into everyone of your noted scenarios with the exception of the first one (weight loss). Very freaky.

Recently diagnoses with ETD and cervical adenitis...

Curious to know if this is also your background as well...

Does this board facilitate private messages? - I wasn't able to find it...

Jay

Does this board facilitate private messages? - I wasn't able to find it...

Hi: I am fairly new to the board also but from what I read about the rules there are no private contacts or web links etc--there is a section you can go in and read about policies that is very helpful.

I read the posts in this thread and someone had asked about symptoms like weight loss and stress and a few other things. I looked at the list and didn't match up with any of those. I have had allergies when I was young but never any ear infections or problems with the ears. This PET condition is certainly stressful and irritating to say the least but I am about as calm and chilled out as they come. Even on the worse days of ear pressure I still enjoy life but I have had to make some major changes in how I interact with people. I speak softly so friends know to stand close if they want to converse. Forget trying to chat with someone across the parking lot or even at a distance of 6 feet. Not worth all the noise that I hear inside my own head. I have never read anything that relates PET to stress but we all know that stress impacts the body in lots of ways --certainly can't help. The allergies I had were treated with nasal sprays to reduce inflammation so perhaps that contributed but no evidence. My nose is always stuffy on the side that has the PET. But even if that side was completely blocked a healthy ET should open when I swallow or yawn. So who knows? Sure would be nice if we knew what caused it or even what made it worse. I have tried all sorts of things to see what triggers bad days but it always seems to be the same from the moment I wake up until I go to bed. I get no relief from putting my head between my legs or lying down like some folks do but that is probably due to the fact that I have patulous vs semi-patulous. The only help seems to be drinking lots of water and I mean lots!! Something about hydration --drinking lots only makes it slightly better but being dehydrated really cranks up the symptoms. Anything that dehydrates me like teas or coffees or alcohol worsens the condition so I avoid them now. Anybody else notice that dehydration worsens their ear pressure?

I have PET. I'll explain.

2 1/2 weeks ago I hit the water very hard while water skiiing. I immediately felt pain in my right ear along with a plugged up feeling. This was quite annoying and has lasted for the 2 weeks following.

A few days after the injury I went to an ENT. He explained that I had fluid in the middle ear and that there was nothing I could do but wait. I understood this because a couple years ago I received a blow to my head which caused the same thing and it went away in a few weeks.

Here's the problem. Now I have the exact symptoms of PET. After a couble of weeks following my injury, my eustachian tube has finally opened to release some of the fluid in the middle ear. However, now the tube will not close. For about 3 days I have been suffering all the symptoms of PET that I have been researching on the internet. The PET problems are worse than the original. It's driving me nuts.

Symptoms Include:
Popping and crackling in ear all the time
roaring tinnitus, synchronous with respiration
feeling of fullness in the ear
voice is heard clearly though the auscultation tube and has a rough, hollow quality, or alternatively stated as my
voice is too loud, distorted, or has an echo-- this symptom is called "autophony (This is what is really annoying for me)

Unlike many other people I have read about, I know that my skiiing injury caused my condition and that because of this I hope that this is short term problem. I sure feel for those that have had PET long term.

Well, I shouldn't say that my injury caused my PET. As I stated above, it caused my ear to be plugged and filled with fluid. I was so annoyed by this that I tried a number of things to get my eustachian tube open. Some of the things I tried were:

Excersing hard (I've subsequently read this can make PET worse)
Shaking my head
Holding my nose shut and blowing nasally to "pop" the tube open.
Taking flonase
Taking a decongestant.

I wonder if any of these actions has induced my PET symptoms?

I just wanted to post this in case it helps anyone in anyway. I know it was a relief to me when I discovered this thing called "Patulous Eustachian tube" My ENT did not mention it. I found it on the internet.

Hi: I am new to this site and have been going through as many posts as possible to see if I could find someone with symptoms similar to mine. It sounds like most of us have some of the classic symptoms like fullness and the autophony where our voice sounds amplified. Your note is one of the first that complained of speaking and avoiding social engagements. I find that the speaking has become almost impossible in any setting outside of a quiet room with no background music, tv etc. i have become isolated socially and occasionally feel housebound and try again only to come home and say it isn't worth the discomfort. My voice seems stuck in the soft mode although I could speak loudly if it was critical but over time have just learned to be quiet. That has not been easy but any sound inside my mouth is amplified. I find the electric toothbrush horribly loud and I can't hear anything someone is saying to me if I am brushing my teeth or talking or chewing. Otherwise my hearing tests are perfect. I have tried earplugs and that helps the resonance in my own head but people still have a hard time hearing my soft voice and the problem is everyone is muffled at that point. I even tried to buy one of the amplification systems hoping that I could speak softly but my voice would be loud enough for others to hear. The problem with that is you have to speak at least loud enough that the vibrations can be amplified and I found that the only thing comfortable for me was to have speech that was soft and didn't vibrate as much. So it did help others to hear me but didn't help my situation of speaking being uncomfortable. I just went back to one on one and quiet environments. It must be really hard if you have to give presentations. I find the phone is the easiest way to communicate because I don't have to project my voice --it feels even more comfortable than sitting across a table in a quiet room trying to talk. Just that little bit of distance seems to make a big difference inside my head. Have you found any ways of doing your work and presentations since your last post? I am really anxious to see what others are doing about the speaking problem. Thanks
I've have had this @$#%^@ condition for 11 years. My story is to long to tell. Off to see Dr Dennis Poe referred to me by Mayo. My app is Sept 7th/04 If I can figure out this message board I'll fill you in on how it goes. Rumor has it he is the authority on this *********** annoying problem. (Did I say that or was I just thing that?)

macky

hi mackey,
dr poe is a wonderful, smart, careing doctor...hes a one of a kind and he takes outstanding care of his patients...i am one...good luck! lib

Hi,

I suffered PET for 20 years. Recently I feel much better by drinking hot water and soup and avoiding any cold water...

:bouncing:

I have experienced similar things such as the fullness in the ear, ear popping etc and have also had to alter speech levels to avoid excessive popping and autophony -very very frustrating indeed.

here are some points I have found regarding this.

I first encountered it upon my return from a wet climate to a dry climate.

hydration plays a big role in alleviating the problem.

drinking a bottle of mineral water upon waking and continuing to drink water all day seems to help.

coffee and alcohol aggravate the problem. (as you may have found, having a coffee or a drink with friends becomes a huge obstacle)

after years of a dry climate I went to spend some time in a humid climate.
On the way, on the long (8hr) bus ride, I massaged around my jaw, ears, cheekbones and upon arrival in this climate, I used garlic ear drops one night before sleep and woke in the morning absolutely cured!

the symptoms/problems returned after a week or so, but not as strong. Unfortunately I could not spend forever in this eden and had to return to a (big) city. car fumes, etc aggravated the problem.

steam rooms, hot baths, warm wet climates and spaces all help.

try a steam room/cold shower treatment.

cigarette smoke aggravates the problem

Yes, I have noticed a connection between anxiety and these problems.

an asian herbal medicine called 'bi yan pian' has helped a bit, I have just begun trying it.

excessive exercise aggravates the problem.

refined sugar, enriched white flour, pastas, banana etc are not so good, I know there is a lot of info on these sorts of foods and their relation to respiratory problems.

a healthy, informed diet is (obviously) helpful

oil of oregano has been a good help, applied externally to cheekbones, jaw, behind ears etc. holding the oil in the mouth (with water) and swishing around the back of the throat and up towards the ears can help.

I have found that a combination of breathing exercises, facial/sinus massage, natural ear drops (garlic), warm wet conditions or climates and a strict diet, including massive amounts of water has helped the most.

however the problem still persists in different (often unexpected) frequency and in different levels of 'attack' (from mild to debilitating)

If youve experienced this problem, I urge you to keep this thread going with as much info and advice as possible.

many thanks

I have had patulous eustachian tube dysfunction for 1 1/2 years now, and it is so frustrating. Crackling,popping,fullness, the only relief is when I lie down. Two ENT Drs. have told me it is because I am overweight. They say a pad of fat occurs around the eustachian tube and affects it. Has anyone had this sort of diagnosis, because of being overweight? I have tried nasal sprays, decongestants, prednisone, a tube in one ear, which helped for a while. It drives me nuts!

I have PET only in my left ear. It was diagnosed 3 years ago. Totally by accident last year I found that if I listen to music/radio through earpods (headphones that go directly into your ears) for a few hours in the morning that I am fine for the rest of the day. It truly has made a tremendous difference for me. I hope that this information will help all of you as well.

Teeejayy

I have had patulous eustachian tube dysfunction for 1 1/2 years now, and it is so frustrating. Crackling,popping,fullness, the only relief is when I lie down. Two ENT Drs. have told me it is because I am overweight. They say a pad of fat occurs around the eustachian tube and affects it. Has anyone had this sort of diagnosis, because of being overweight? I have tried nasal sprays, decongestants, prednisone, a tube in one ear, which helped for a while. It drives me nuts!

i think you need an opinion from another dr., i was told by dr poe who is an expert in p e t that weight is not an issue.
do you hear your voice and breathing?
the treatments you mention are for eustachian tube dysfuction...not p e t , in fact decongestant and such will make it worse.
i think a new doc would be better for you.

Thanks so much for your post concerning weight related to p.e.t. Yes, I can hear air moving by my ear drum sometimes, but never my voice. It is mainly the crackling, fullness and feeling the need to pinch my nose and blow out of my ears to try and get some relief. Where is Dr. Poe located, and do you know what kind of treatments he uses?

Thanks so much for your post concerning weight related to p.e.t. Yes, I can hear air moving by my ear drum sometimes, but never my voice. It is mainly the crackling, fullness and feeling the need to pinch my nose and blow out of my ears to try and get some relief. Where is Dr. Poe located, and do you know what kind of treatments he uses?

dr. poe is in boston mass., he is wonderful! is it possible your feeling your eardrum move because of a muscle spasm in the middle ear? describe it as best you can.i have this and had the muscle cut and it no longer moves or makes that sound.
the crackling, popping and fullness can be muscular.
do not pinch and blow, that can cause p e t, dr told me never do that again, never, its a very bad thing to do to the ear.
where do you live?
lib
oh, dr poe does surgery for p e t, hes the only one that can...

Thanks again, Lib. I seem to feel air moving by the eardrum at times. Usually just the left ear. Both ears seem to be worse lately as far as the crackling, fullness. I wonder if it is ever related to fluid retention, just guessing. I live in eastern NC. New Bern NC, near the coast. Sea level. When I go to the mts, it is much worse, crackling and fullness. I did have a tube in the left ear for 5 mths. that fell out on its own. It helped some.
Thanks again so much.
Pat
[ please carefully review the posting rules - no emails ]

:rolleyes: It's interesting my doctor wants me to gain weight.
And I really feel much better after I gain 10 pounds than I was skinny.

I have PET only in my left ear. It was diagnosed 3 years ago. Totally by accident last year I found that if I listen to music/radio through earpods (headphones that go directly into your ears) for a few hours in the morning that I am fine for the rest of the day. It truly has made a tremendous difference for me. I hope that this information will help all of you as well.

Teeejayy
Teejay, that is the first I have heard of that treatment..I am going to try it..something has to help....
cl

I have recently been put on Prozac for re-occuring depression (probably due to my patulous eustachian tube). I have noticed that prozac has increased my concentration, and helped with the PET. Has anyone else taken antidepressants and noticed any change in their eustachian tube dysfunction?

bas, I can't say I have noticed due to this-but I got off Zoloft in aug, got on birthcontrol pills (to regulate hormones so I had less pms, which was what I was on zoloft for) and my PET (which is what I have assumed I have) is the worst it has ever been..had it for over 10 yrs with a 2 yr break a while ago..don't k now why..I have also lost 40 lb in the past 9 mos, which I think isn't "rapid". I am at a much healthier, normal weight now. I just can't figure any of this out.
cl

Nutmeg,

Like I said, I found this method totally by accident. I would love to somehow contact Dr. Poe and let him know about it but I lost his email address after my initial contact with him 3 years ago.

I'm no doctor, but I think that somehow the noise directly into the ear stimulates the tensor tympani muscle. The music doesn't even have to be loud.

If I recall it may have taken a couple of days for the "cure" to kick in, but after a year and a half of using this method it works 99.9% of the time. I hope it works for you too.

Teeejayy

Nutmeg,

Like I said, I found this method totally by accident. I would love to somehow contact Dr. Poe and let him know about it but I lost his email address after my initial contact with him 3 years ago.

I'm no doctor, but I think that somehow the noise directly into the ear stimulates the tensor tympani muscle. The music doesn't even have to be loud.

If I recall it may have taken a couple of days for the "cure" to kick in, but after a year and a half of using this method it works 99.9% of the time. I hope it works for you too.

Teeejayy

teeejayy,
i have tensor tympani myoclonus, and music or any white noise will stop the spasms. my myo was dxed by poe, you could write to him and or fax him on this i think it would be interesting for you, as myoclonus may actually be what you have. dr poe told me p e t has nothing to do with outside sounds.
good luck, lib

Thanks for the info lib, but I have already been diagnosed with PET and not Tensor Tympani Myoclonus. My implication of the Tensor tympani muscle is just my own theory. I haven't approached any doctor with my findings. All I know is that it works for me, and I'm glad it does!

TJ

I have suffered for about 6 months with (what I have diagnosed as) Patulous Eustachian Tube. My ENT at first treated me for Eustachian Tube Disorder which is a different animal altogether. But after doing much investigating I suggested to him that it might be possible that I have PET. He did a bit more testing and then (sort of) agreed. He has made an appointment with Dr. Poe in Boston. The appoint is in May. So I am assuming that everything we are all hearing about Dr. Poe is correct. I am in hopes that he is a miracle worker. I think that my biggest problem is hearing my own voice. although I am finding that I am also getting much more "light-headed" as time goes on. I am also hearing my neck snap when I twist my head around. (through my LEFT EAR only.) I think in reading these Medical Postings that there are more than a few of us out there. Each of us having the same or similar symptoms. I must admit that it was in fact a bit comforting to find these websites. I think misery likes company is an accurate statement for all of us. I will continue to visit this board and communicate to everyone my progress. Mike

I have suffered for about 6 months with (what I have diagnosed as) Patulous Eustachian Tube. My ENT at first treated me for Eustachian Tube Disorder which is a different animal altogether. But after doing much investigating I suggested to him that it might be possible that I have PET. He did a bit more testing and then (sort of) agreed. He has made an appointment with Dr. Poe in Boston. The appoint is in May. So I am assuming that everything we are all hearing about Dr. Poe is correct. I am in hopes that he is a miracle worker. I think that my biggest problem is hearing my own voice. although I am finding that I am also getting much more "light-headed" as time goes on. I am also hearing my neck snap when I twist my head around. (through my LEFT EAR only.) I think in reading these Medical Postings that there are more than a few of us out there. Each of us having the same or similar symptoms. I must admit that it was in fact a bit comforting to find these websites. I think misery likes company is an accurate statement for all of us. I will continue to visit this board and communicate to everyone my progress. Mike

hi mike,
dr poe is wonderful, and very smart.
i am wondering other than hearing your voice do you have any other symptoms? he will check you for other disorders that cause autophoney as well.
where are you located?
good luck!
lib

Hi Lib
I am located in Portland Maine....and yes I do have other syptoms....Lightheaded....Dizzy....pain in the ear....my eyes "flicker" at times....I have discovered (the same as others)....If I bend over while sitting in a chair the problems goes away....absolutely shocked me the first time I did it....but I do it it about 3 or 4 times a day now....but of course it's only temporary....I have also discovered that when I put a phone up to my ear and talk into the phone it seems to alleviate the problem....so I have started putting an ear plug or a piece of cotton in there.....It does help a little but I also find that it's a double-edged sword....If I push on the plug or cotton it makes my eyes "flicker" and causes dizziness and pain in my ear....the pain is actually like an electrical shock....not exactly....but it's the only way I can describe it....I think everyone has a different description of what's happening to them.....I know that this is long-winded....but there is absolutley no one else that I (we) can relate this problem to....and to be honest with you....I don't know if I'm using this board correctly....and responding in the right place....but I certainly thank you for replying....tell me about your situation and of course about Dr. Poe....did he help you....Mike

Hi Lib
I am located in Portland Maine....and yes I do have other syptoms....Lightheaded....Dizzy....pain in the ear....my eyes "flicker" at times....I have discovered (the same as others)....If I bend over while sitting in a chair the problems goes away....absolutely shocked me the first time I did it....but I do it it about 3 or 4 times a day now....but of course it's only temporary....I have also discovered that when I put a phone up to my ear and talk into the phone it seems to alleviate the problem....so I have started putting an ear plug or a piece of cotton in there.....It does help a little but I also find that it's a double-edged sword....If I push on the plug or cotton it makes my eyes "flicker" and causes dizziness and pain in my ear....the pain is actually like an electrical shock....not exactly....but it's the only way I can describe it....I think everyone has a different description of what's happening to them.....I know that this is long-winded....but there is absolutley no one else that I (we) can relate this problem to....and to be honest with you....I don't know if I'm using this board correctly....and responding in the right place....but I certainly thank you for replying....tell me about your situation and of course about Dr. Poe....did he help you....Mike

dr poe is wonderful, you need to see him, to be honest, your symptoms do not sound like pet. he will figure out what is wrong. pet is hearing your voice loud in your head like a megaphone and your breathing loudly. they eye movement and dizziness sound like a different problem. he will send you for a ct of the inner ear and test for other causes. please keep me posted.
yes dr poe has helped me, i have myoclonus in the ears. read my posts.
lib

Lib
My voice is extremely loud in my head and ear....I avoid talking at all costs....
Mike

Lib
My voice is extremely loud in my head and ear....I avoid talking at all costs....
Mike

do you hear a feel your breathing in that ear loudly?
dr poe will help, when do you go?
lib

I don't necessarily hear my breathing....but I do hear my footsteps when I walk....or sometimes my heartbeat is quite loud in my ear....I'm happy to hear that you have so much condidence in Dr. Poe....I guess my question is....will he "CURE" me or help me....and from all that I read it seems that I do have a eustachian tube that is constantly open....hence the term patulous....I also at times have pain in my left eye....not bad but enough to get your attention....do you still see Dr. Poe....and where are you from....I really haven't looked back at the postings to check out all that you have said....are you retired....Mike

hi mike,
no i am not retired, i work in a salon.
i can not tell you for sure what will happen, there are no gaurentees in medicine. you have to understand a lot of people think they have or have been dxed with pet and they dont have it at all. i know 3 people who were dxed with pet and it turned out they had sscd, one guy posted here a long time ago. thats why i asked about your symptoms, they are very close.
pet is voice and loud breathing. i think you need dr poes opinion for sure.
the flickering eyes sound inner ear, these are nystagmus, this is another big clue. does loud noise bother you? by chance had you had any injury to your head at all even a hard bump?
dr poe is by far the absolute best, he is amazing.
when do you go?
i live in virginia, i have not needed to go back scince dr poe figured it all out.
lib

Loud noises don't necessarily bother me....I can play the radio loud and it doesn't bother....shouting (at a ball game) is a killer....I go to see him in May....but i'm hoping a cancellation comes sooner....but very doubtful....You travelled from Virginia to see Dr. Poe???? How many times have you seen him....and it sounds like you in fact stay in touch....is that correct....You work in a salon?? or a saloon?? just kidding....Mike

Loud noises don't necessarily bother me....I can play the radio loud and it doesn't bother....shouting (at a ball game) is a killer....I go to see him in May....but i'm hoping a cancellation comes sooner....but very doubtful....You travelled from Virginia to see Dr. Poe???? How many times have you seen him....and it sounds like you in fact stay in touch....is that correct....You work in a salon?? or a saloon?? just kidding....Mike

hi,
yes i traveled twice to boston, once with another patient of his. the other patient and i do keep in touch, in fact i will prob write to him here soon with an update.i would go again and again if needed, dr poe is the absolute best....
no question.
in the waiting time mike you might want to ask your ent to send you for a high resolution ct scan of the inner ear bones and a vemp test, this will help speed up the process, as poe will most likley want those tests. i had mine prior to my appt. just an idea scince i have been down this road and know many that have.
also the patulend drops are on the market from santa barbara you could give them a try and see if in fact they help.
keep me posted!
lib

Mike, I live in durham maine, about 30 miles north of you....maybe I can get an appt. with dr poe for may and we can carpool..lol, kidding as I guess there is no way to actually contact anyone from these boards..not that any of us would really enjoy talking on the phone with this awful ear problem..
Lib, since your surgery in aug ( I think I read you had the 2nd ear done now too) are you symptom free? better or still working on improving? Also, you mention to mike to get a CT scan and vemp..what is the vemp? and I have had an MRI, which showed nothing. I might add that my PET seems to be sporadic and the day of the mri it wasn't acting up at all..Will the ct be more helpful?

c

Nutmeg
evidently Dr. Poe is "THE MAN" when it comes to ear disorders....I couldn't believe it when they told me it would be May for my appt.....Here is info on VEMP>>>>
Vestibular evoked myogenic potentials (VEMPs) are tiny variations in neck muscle contraction that occur when one hears a sudden sound. Some balance-related parts of the inner ear cause these tiny muscle contractions. To record VEMPs, a special skin electrode patch is placed over the larger neck muscles and on the wrists. You will be asked to tilt your head while listening to a clicking sound. The patch will detect the tiny muscle contractions and send the information to a special computer for analysis.

Hope this helps a bit....How long have you had this problem....and has it (in fact) been diagnosed as PET....I didn't think PET would come and go....I thought that the Eustacian Tube was always open....thus always a problem...Mike

Hey Aja and e'one else suffering from PET,
This is my first time on this message, and after viewing all your post,I am amazed to find out that our symptoms are so similar. And I thought I was the only one in the world who had this.
I have been suffering from PET for the past two years and its been hell since then. I am from India and was studying in the US. I had to leave and come back to the motherland once this disorder struck.
Cutting it short, I read your posts regarding Dr.Poe and his "Patul-End" drops. I called his office and was told that he has never prescribed those drops and he has not found a definite cure for PET. Does anyone have a way of getting hold of him personally, email maybe?
This thing has brought about a huge change in my life, mostly for the worse and I am losing my patience.
Looking forward to interacting with you guys.
Thanks,
-Kunal

Hi lib,
I have been following your posts regularly. I wanted to ask you a couple of questions.
1) Where can you purchase the "Patul-end" drops? How much do they cost and are there any side -effects?
2) I called Dr.Poe's office and I was told he hasn't found a definite cure for PET and he has never prescribed Patul-end.
I am thinking of visiting him all the way from india, and would like as much info as possible before I make the move.
Thanks,looking forward to hearing from you.
-Kunal



hi,
yes i traveled twice to boston, once with another patient of his. the other patient and i do keep in touch, in fact i will prob write to him here soon with an update.i would go again and again if needed, dr poe is the absolute best....
no question.
in the waiting time mike you might want to ask your ent to send you for a high resolution ct scan of the inner ear bones and a vemp test, this will help speed up the process, as poe will most likley want those tests. i had mine prior to my appt. just an idea scince i have been down this road and know many that have.
also the patulend drops are on the market from santa barbara you could give them a try and see if in fact they help.
keep me posted!
lib

Kunal
Lib is the one that mentioned the drops....I know nothing about them....I'm just looking forward to getting this appointment ....the only relief I get is by putting a small piece of cotton in my ear....and not too far or it makes my eyes flicker....and causes pain....and of course to talk as little as possible....
Mike

Hi lib,
I have been following your posts regularly. I wanted to ask you a couple of questions.
1) Where and how can you purchase the "Patul-end" drops? How much do they cost and are there any side -effects?
2) I called Dr.Poe's office and I was told he hasn't found a definite cure for PET and he has never prescribed Patul-end.
I am thinking of visiting him all the way from india, and would like as much info as possible before I make the move.
Thanks,looking forward to hearing from you.
-Kunal
patulend is not from dr poe, its a dr in santa barbara i have never tried them, and i think its about 50.00 for the bottle.
i only have read or meet people that have used it.
lib

Mike, I live in durham maine, about 30 miles north of you....maybe I can get an appt. with dr poe for may and we can carpool..lol, kidding as I guess there is no way to actually contact anyone from these boards..not that any of us would really enjoy talking on the phone with this awful ear problem..
Lib, since your surgery in aug ( I think I read you had the 2nd ear done now too) are you symptom free? better or still working on improving? Also, you mention to mike to get a CT scan and vemp..what is the vemp? and I have had an MRI, which showed nothing. I might add that my PET seems to be sporadic and the day of the mri it wasn't acting up at all..Will the ct be more helpful?

c

mike explains the tests.
i have not had both ears done, my second was to sever the middle ear muscles. i have myoclonus and need to do the left ear.
the ct is for sscd not p e t .
good luck,
lib

Hi lib,
I have been following your posts regularly. I wanted to ask you a couple of questions.
1) Where and how can you purchase the "Patul-end" drops? How much do they cost and are there any side -effects?
2) I called Dr.Poe's office and I was told he hasn't found a definite cure for PET and he has never prescribed Patul-end.
I am thinking of visiting him all the way from india, and would like as much info as possible before I make the move.
Thanks,looking forward to hearing from you.
-Kunal

One thing you might want to try for PET is a few swimming pool water sprays into the nose. I tried this when I thought I had PET. The pool water chemicals cause a little irritation and swelling around the e-tube opening, which is the point - it helps keep the e-tube closed. Basically, I filled up a small pump aerosol bottle(from a nasal spray) with pool water and sprayed it into my nose a few times.

One thing you might want to try for PET is a few swimming pool water sprays into the nose. I tried this when I thought I had PET. The pool water chemicals cause a little irritation and swelling around the e-tube opening, which is the point - it helps keep the e-tube closed. Basically, I filled up a small pump aerosol bottle(from a nasal spray) with pool water and sprayed it into my nose a few times.
hi nick,

you thought you had p e t also?

how did they determine it was not and conclude myoclonus?

lib

hi nick,

you thought you had p e t also?

how did they determine it was not and conclude myoclonus?

lib

lib,
the definitive diagnosis came when they used the video scope and saw the movement of the palate, etc. I could also see this movement in the mirror.
nick

lib,
the definitive diagnosis came when they used the video scope and saw the movement of the palate, etc. I could also see this movement in the mirror.
nick

what made you think you had p e t before that? im curious, this is all i have been through too.
lib

Hi All,
I have PET in my left ear. My situation was really bad till about 2 years back when I had a tube inserted in my left ear. It gives me relief as the irritating movement of the ear drum is no longer there. That is the only benefit of the tube. It doesn't take away PET just the popping of the ear drum.
I have these clicking sounds in my left ear whenever I swallow. Also I have hot sensations in my left ear sometimes. I do find speech difficult at times. I guess this is because of the open eustachian tube. Also I am perfectly fine in the mornings right after I get up.

Does anyone out there have similar symptons?

I have a appointment with Dr. Poe in June. Hopefully he can do something to further improve my situation.

Hi All,
I have PET in my left ear. My situation was really bad till about 2 years back when I had a tube inserted in my left ear. It gives me relief as the irritating movement of the ear drum is no longer there. That is the only benefit of the tube. It doesn't take away PET just the popping of the ear drum.
I have these clicking sounds in my left ear whenever I swallow. Also I have hot sensations in my left ear sometimes. I do find speech difficult at times. I guess this is because of the open eustachian tube. Also I am perfectly fine in the mornings right after I get up.

Does anyone out there have similar symptons?

I have a appointment with Dr. Poe in June. Hopefully he can do something to further improve my situation.

hi petboy,
do you hear your voice loudly in your head and hear your breathing?
dr poe is wonderful!!
lib

Hi Lib,
No I do not hear my voice loudly. About the breathing do u mean the ear popping - the sensation of the ear drum moving when one breathes. Yes I was having that before the tube was inserted. Its been 2 years now that I have the tube and it has given me relief from this irritating ear popping problem.

Also I was getting thumping sounds in my left ear couple of months back, the same one with the tube. Had been to the ENT doc and he took out some debris that was kind of touching some nerves. That got rid of the thumping to a great extent. I do however sometimes feel a slight thumping sound when lying down. But this is very rare.

Mine main problem is the open eustachian tube. I just do not feel at ease. Also speaking in noisy environment and in low tones is a problem.

What about you? Did Dr.Poe cure you completely? Are there still any symptoms of PET?

Hi Lib,
No I do not hear my voice loudly. About the breathing do u mean the ear popping - the sensation of the ear drum moving when one breathes. Yes I was having that before the tube was inserted. Its been 2 years now that I have the tube and it has given me relief from this irritating ear popping problem.

Also I was getting thumping sounds in my left ear couple of months back, the same one with the tube. Had been to the ENT doc and he took out some debris that was kind of touching some nerves. That got rid of the thumping to a great extent. I do however sometimes feel a slight thumping sound when lying down. But this is very rare.

Mine main problem is the open eustachian tube. I just do not feel at ease. Also speaking in noisy environment and in low tones is a problem.

What about you? Did Dr.Poe cure you completely? Are there still any symptoms of PET?

hi petboy,
so no loud voice, what about hearing your breathing loudly?
i suspect you have myoclonus...that can cause popping, and thumping....please describe the popping prior to the tubes.was the ear drum fluttering? if you could not hear your breathing....it could be muscular.
what makes speaking a problem if you dont hear your voice?
all this is very important.
dr poe figured out what was going on with me, and he told me what i needed to do, i live 10 hours away, i found a dr here who has been working with me....dr poe is by far the best...
lib

Hi Lib.
It all depends on how I talk. At low tones I do hear my voice and that what makes it difficult.
Before the tubes it was just the movement of the left ear drum as I breathed in and out. And that is what was discomforting. A open eustachian tube is enough to cause some problems in speech though not severe. One's voice just doesn't sound right.

Hi Lib.
It all depends on how I talk. At low tones I do hear my voice and that what makes it difficult.
Before the tubes it was just the movement of the left ear drum as I breathed in and out. And that is what was discomforting. A open eustachian tube is enough to cause some problems in speech though not severe. One's voice just doesn't sound right.

so you do hear your breathing loudly?
are you still getting the popping?
im wondering who diagnosed the p e t as well.
poe is who you should see....
lib

Hi Everyone,
I've reading posts for a few months. I've been told I have ETD from 2 ENT doctors. They don't seem to be giving me any direction other than one told me to grin and bare it. I do have an appt. with Dr. Poe in May. My symptoms are pop or click sound in my left ear when I swallow. By mid day the popping then becomes autophony. I can here my breathing and my own voice in my left ear. I find that if I pinch my nose and blow it will clear it untill I swallow again. Sometimes it will clear up but most of the time it will last hours usally until I lie down (face down) for 30 min to an hour. What I don't understand is if my ET is open why is it when I pinch my nose and blow it reliefs it. Shouldn't that only work if it's closed? Does it sound like PET?

Any suggestions?
FJ

Hi Everyone,
I've reading posts for a few months. I've been told I have ETD from 2 ENT doctors. They don't seem to be giving me any direction other than one told me to grin and bare it. I do have an appt. with Dr. Poe in May. My symptoms are pop or click sound in my left ear when I swallow. By mid day the popping then becomes autophony. I can here my breathing and my own voice in my left ear. I find that if I pinch my nose and blow it will clear it untill I swallow again. Sometimes it will clear up but most of the time it will last hours usally until I lie down (face down) for 30 min to an hour. What I don't understand is if my ET is open why is it when I pinch my nose and blow it reliefs it. Shouldn't that only work if it's closed? Does it sound like PET?

Any suggestions?
FJ

very interesting, do you hear your voice loudly and breathing loudly, ir do you hear it like when you have a cold?
the fact that blowing in the ear helps is strange....btw, do not do that, dr. poe will tell you this too....it can cause a patulous tube.
good luck, lib

Hi Everyone,
I've reading posts for a few months. I've been told I have ETD from 2 ENT doctors. They don't seem to be giving me any direction other than one told me to grin and bare it. I do have an appt. with Dr. Poe in May. My symptoms are pop or click sound in my left ear when I swallow. By mid day the popping then becomes autophony. I can here my breathing and my own voice in my left ear. I find that if I pinch my nose and blow it will clear it untill I swallow again. Sometimes it will clear up but most of the time it will last hours usally until I lie down (face down) for 30 min to an hour. What I don't understand is if my ET is open why is it when I pinch my nose and blow it reliefs it. Shouldn't that only work if it's closed? Does it sound like PET?

Any suggestions?
FJ


I think it is the mucous resulting from the blowing of the nose that closes the eustachian tube. Same with me - when I sneeze or if I have a runny nose I get relief right away

I do hear my voice and breathing loudly. I get this almost daily and had it for about 3 years. But what i don't understand is if the ET is open and causes autophony why is it when I pinch my nose, close my mouth and blow (force air into the middle ear) it seems to relieve it. Wouldn't that only work if the ET was closed? Is there other causes for Autophony other than PET?
FJ

I do hear my voice and breathing loudly. I get this almost daily and had it for about 3 years. But what i don't understand is if the ET is open and causes autophony why is it when I pinch my nose, close my mouth and blow (force air into the middle ear) it seems to relieve it. Wouldn't that only work if the ET was closed? Is there other causes for Autophony other than PET?
FJ
that is strange, it does sound like p e t but it may be something else, there a some other conditions that cause autophoney....you should see dr poe in boston.
lib

Lib,
I see Dr Poe in May and I'm having allergy tests done next week. I'm also meeting with my primary doc next week. Should I ask him to order the ct scan test now for Dr Poe? What other conditions cause autophoney?
FJ

yes...you could have a special ct scan....looking for sscd, its a hole in the bone of the inner ear. its very specialized....
what are all of your symptoms? dr poe is wonderful!!!!!
lib

My symptoms are popping, cracking in my ears when swallowing (this new) By mid day I may here a pop or I swallow and the autophoney starts. This will last until I try popping my ears (pinch my nose close my mouth and blow) which would only work temporarily or lying down (face down) for about 30min to hour. If I was not to talk or breath I wouldn't even know i had a problem. I have no pain. The autophoney may last 1 - several hours. I find this happens usally under any type of anxiety, stress, or physical exertion.
FJ

My symptoms are popping, cracking in my ears when swallowing (this new) By mid day I may here a pop or I swallow and the autophoney starts. This will last until I try popping my ears (pinch my nose close my mouth and blow) which would only work temporarily or lying down (face down) for about 30min to hour. If I was not to talk or breath I wouldn't even know i had a problem. I have no pain. The autophoney may last 1 - several hours. I find this happens usally under any type of anxiety, stress, or physical exertion.
FJ

it does sound like p e t, i have popping and cracking with my myoclonus.
what does the popping sound like? is it really loud? the fact that thats new makes me wonder...i would have thought this would have been first...also the blowing air does not make sense to me either....
i wonder are you sensitive to noise?
lib

The pop is just a small quick pop. The cracking sounds more crunch/snap which is what I here when swallowing. I'm not sensitive to any noise. The blowing air is what doesn't make any sence if the tube is open.
FJ

yes...you could have a special ct scan....looking for sscd, its a hole in the bone of the inner ear. its very specialized....
what are all of your symptoms? dr poe is wonderful!!!!!
lib

Lib,
What are the tests required by Dr.Poe? Can you be a little more descriptive.
What should I tell my primary care physician?
CT scan of inner ear looking for sscd (what is sscd) and I remember reading somewhere of a vemp test.
Please let us know the proper medical terms that identify these tests.

Thanks.

pet boy,
yes a vemp and a high resolution scan of the inner ear bones...looking for abnormalities.
thats it, just those two....if they are neg i would look for someone who knows about middle ear myoclonus....that sounds more like your symptoms.
lib

My aunt is getting the "there's nothing we can do you will just have to learn to live with it". We live in Northern Indiana. There doesn't seem to be many specialists around here.

Can anyone give me some advice for my aunt on where she can get help?

My aunt is getting the "there's nothing we can do you will just have to learn to live with it". We live in Northern Indiana. There doesn't seem to be many specialists around here.

Can anyone give me some advice for my aunt on where she can get help?
dr dennis poe in boston mass is the expert on p e t.....look him up.
good luck

This is my first posting, so bear with me. I was diagnosed with PET in March 2005.It started out as fullness, pressure and hearing myself speak. Since the onset I now have horrific tinnitus. My ears have 2 stages they go through on a daily basis. 1. When I talk, turn my head, take a step there is a boom sound that echoes inside my ears. It will get louder as the day progresses. 2.This one is hard to explain. It starts out as a vibrating sound or spasm inside my ears,it starts and stops within a second. when I turn or tilt my head up or down or side to side the intensity gets louder. After about 1 hour the vibrating is constant. My ENT started me off with 2 different nasal spray's, then the nose drops. None of these helped so he put a tube in my right ear. I have had no relieve. Two weeks ago he gave me 2 mg of valium 3 times a day because I can not handle all the noise inside my head any longer and I have been having thoughts of taking a bottle of pain meds so I can go to sleep and not wake up to this every day. I feel that my life is over, I can't go any where or do any thing as this makes the noise louder. the trip to the Dr. is terrible because it is a 180 mile round trip. Doe's anyone out there have any suggestions on my condition? I am at my wits end!!!!!!!!!!!!

This is my first posting, so bear with me. I was diagnosed with PET in March 2005.It started out as fullness, pressure and hearing myself speak. Since the onset I now have horrific tinnitus. My ears have 2 stages they go through on a daily basis. 1. When I talk, turn my head, take a step there is a boom sound that echoes inside my ears. It will get louder as the day progresses. 2.This one is hard to explain. It starts out as a vibrating sound or spasm inside my ears,it starts and stops within a second. when I turn or tilt my head up or down or side to side the intensity gets louder. After about 1 hour the vibrating is constant. My ENT started me off with 2 different nasal spray's, then the nose drops. None of these helped so he put a tube in my right ear. I have had no relieve. Two weeks ago he gave me 2 mg of valium 3 times a day because I can not handle all the noise inside my head any longer and I have been having thoughts of taking a bottle of pain meds so I can go to sleep and not wake up to this every day. I feel that my life is over, I can't go any where or do any thing as this makes the noise louder. the trip to the Dr. is terrible because it is a 180 mile round trip. Doe's anyone out there have any suggestions on my condition? I am at my wits end!!!!!!!!!!!!
hi,
first, are you sure you have p.e.t? who diagnosed you and how?
there are other conditions that cause these symptoms.
do you hear your breathing loudly in your ear as well?
the movement, vibrating sound and spasms could very well be middle ear myoclonus, i have that. where do you live and what kind of dr did you see?
lib

HI Lib,
No, I am not sure I have P.E.T. I have had meneriers disease in my left ear for about 15 years. I have been seeing Dr's at the Michigan Ear Institute. My doctor ( he is a otolaryngologist) based his diagnosis on the fact that I am a recovering anorexic. I have been at this weight for about 2 years with no problems. I have gained about 10 lbs since this all started. No I do not hear breathing in my ears. When I first saw him about this condition my symptoms were just the pressure, autophony, fullness. After he gave me the premarin nasal drops thats when I started having the boom sound that echoes inside my head even if I turn my head slightly, walk softly, talk very softly. The vibrating or spasms is the most annoying. It does the same thing, it intensifies when I turn or tilt my head, walk, talk. I had back surgery for a herniated disc last year, so I have a very good supply of pain meds. I feel like you do that there is something else going on. The Dr. will not do anything until my weight is 135 Lbs.

HI Lib,
No, I am not sure I have P.E.T. I have had meneriers disease in my left ear for about 15 years. I have been seeing Dr's at the Michigan Ear Institute. My doctor ( he is a otolaryngologist) based his diagnosis on the fact that I am a recovering anorexic. I have been at this weight for about 2 years with no problems. I have gained about 10 lbs since this all started. No I do not hear breathing in my ears. When I first saw him about this condition my symptoms were just the pressure, autophony, fullness. After he gave me the premarin nasal drops thats when I started having the boom sound that echoes inside my head even if I turn my head slightly, walk softly, talk very softly. The vibrating or spasms is the most annoying. It does the same thing, it intensifies when I turn or tilt my head, walk, talk. I had back surgery for a herniated disc last year, so I have a very good supply of pain meds. I feel like you do that there is something else going on. The Dr. will not do anything until my weight is 135 Lbs.
hi,
what symptoms of meiners do you have? how was that diagnosed? and do you think you have that as well? reason i ask is there are other conditions that can cause these symptoms, sscd and myoclonus, so it could be something else for sure. dr denis poe in boston is the top expert in p e t, he says wieght really has nothing to do with it....interestinly enough.
could you see him? with p e t you usually hear your voice and breathing like a megaphone in your ear. is your autophoney different? milder lets say? and do you feel movement in your ear after the sound of your own voice?
could you travel to dr poe?
lib

hi,
the meniers is in my left ear. All this other stuff is in my right ear. My symptoms of meniers are extreme hearing loss, especially low tones. When I have a hearing test most of the time I feel the sound in my ear vibrating, I do not hear it. I have never had vertigo or dizziness. But I do have constant tinnitus, which I have learned to live with. I had stapes surgery for it back in 1991. I do not know how they diagnosed the mineares. I only have the autophony when I have the echoeing and it is very loud. I'm not sure if I feel movement in my ear after the sound of my voice. I will have to check that out. What is sscd? I have never heard of that. I would really like to talk to you over the phone, if that is possible. You seem to know alot about all this, and I have a long history of ear problems. But nothing as bad as this.
Kadida1

hi,
the meniers is in my left ear. All this other stuff is in my right ear. My symptoms of meniers are extreme hearing loss, especially low tones. When I have a hearing test most of the time I feel the sound in my ear vibrating, I do not hear it. I have never had vertigo or dizziness. But I do have constant tinnitus, which I have learned to live with. I had stapes surgery for it back in 1991. I do not know how they diagnosed the mineares. I only have the autophony when I have the echoeing and it is very loud. I'm not sure if I feel movement in my ear after the sound of my voice. I will have to check that out. What is sscd? I have never heard of that. I would really like to talk to you over the phone, if that is possible. You seem to know alot about all this, and I have a long history of ear problems. But nothing as bad as this.
Kadida1
oh believe me mine was bad....very bad. sscd is a hole in the inner ear bone, it can cause autophoney, if your not hearing your breathing you might not have p e t, it could be another problem. i would be happy to talk to you but these boards do not allow us to give our personal info out.
do you have any popping in the ear or crackling?
i think you need a different specialist....where do you live?
could you travel to boston or richmond?
lib

Hi,
What was you're problem? Did you have pet? I don't have any popping in the ear, but I do hear a crackling noise only when I yawn. I live in Michigan. I could travel but I am afraid that I would have to make several visits. If I could have all the tests done within a week that would make it easier. but past experience has been to see the Dr. then come back in a couple of weeks or a month.Try something else then come back. That would be very difficult.
How is you're outcome ? Have they fixed your problem?
kadida1

Hi,
What was you're problem? Did you have pet? I don't have any popping in the ear, but I do hear a crackling noise only when I yawn. I live in Michigan. I could travel but I am afraid that I would have to make several visits. If I could have all the tests done within a week that would make it easier. but past experience has been to see the Dr. then come back in a couple of weeks or a month.Try something else then come back. That would be very difficult.
How is you're outcome ? Have they fixed your problem?
kadida1
i have myoclonus, had the middle ear muscles severed and this has helped.
i think you should go to dr poe in boston, people travel from all over the world to see him, i think he will figure it out and he spends at least an hour examining you, as well he will send you for tests the same day or very next day, you would only need to travel back if you need surgery.
hes also the expert in p e t and sscd so he can give you a proper diagnoses, and tell you if you really have mieners.
hope this helps
lib

Lib,
Is Dr poe at the Mass. eye and ear infirmary? That is the only place I can find anything where his name comes up.
kadida1

Lib,
Is Dr poe at the Mass. eye and ear infirmary? That is the only place I can find anything where his name comes up.
kadida1
yes he operates there but has a private practice, hes across the street from meei, i think its: zero emerson place boston, mass
if you call 411 they will give you the phone number.
hes absolutley wonderful, it will be several months for an appt though....hes very busy. please let me know
lib

hi,
I have been reading all the posts and have not read anything as to your outcome. How have things with your pet been going? What did Dr Poe do for you, and has it helped? What about Dr carey from Johns hopkins? Did he give you any help?

kadida1

i had the middle ear muscles severed in richmond, by dr sismanis.
dr poe thought i had p e t, the next morning after his surgery we could clearly see the eardrum move, but the tube was swollen shut so dr poe told me to have the tendons severed. dr carey was not real willing to cut so i called poe who offered, at the same time i found dr s, it was much closer and he got me in a day later.....the rest is history.....they are all great drs....where do you live?

Hi Lib,
This is kadida1, I don't know how you got my message, I was replying to eman22. Anyway you said Dr Poe said weight has nothing to do with pet. Everything I have read on the subject says weight it a factor. Especially if you are underweight. You do not have enough fat around your e-tube to keep it closed. Just wandering what Dr Poe led you to believing weight has no bearing on pet.
Kadida1