Hi Brina - we have posted so many times on the other thread that it seems to be that we now have to click on to page 2 to view my response to you both. So do you want to start a new one. If you know of a better solution let me know......I am not at all IT orientated!! catch you later.

hi i robertson ,
great idea ,
yesterday was a busy day... we have to travel a quite a way to the orthodontists.... and even though i feel more normal in a car it can upset the sypmtoms after....my daughter cant believe how it now feels without her brace her teeth look wonderful.... she has a very small mouth and the overcrowding was unbelivable, to start with she had 4 teeth out...and next week has to get her retainer........

even though my symps feel more gentle in the morning
the minute i open my eyes every thing i look at appears to be slightly shifting or jumping about and i see tiny tiny white dots , when i get going this seems to fade out........ wierd...........also when i sit down in the evening its the same but without the dots

the lightheaded feeling can happen to me in situations
like if i get up to fast from lying or sitting....and sometimes bending, i feel for a few minutes off balance and my vision can go for a few seconds... it goes black....then clears again... i have to sit straight back down for a min or two......another situation will be with the missing heartbeats which i used to get daily for years,,, i would feel like i am going to faint , but never have... this could happen quite a few times in a day... even 20 seconds apart.....
i can get a lightheaded feeling like my head is filled with helium or the feeling like when a plane is coming down to land and your head feels left behind, not as severe but resembles.......i can get this feeling when i sneeze.....
when i feel sudden panic.... like if one of the babes fell over or someone told me something i interpreted as shocking like......
one evening my husb and i went to a concert my daughter was appearing in at school
we got there early and was only a few of us, but sitting nearby was a nan with i presume 2 grandaughters
and the nan fell to the ground the girls freaked out and my lovely husb anounced to me, i think shes dead.
well the initial shock ... for a few secs...
of course she had fainted.... and so nearly did i,lol..

when i had a bad spells of vertigo after my 1st daughter i remeber having to come down stairs with her and i was on my own...the vertigo was bad enough but not that i would have fell to the ground... so i felt around the walls and floor with my arms and feet and when i was sure enough i sat on the stairs and slowly bumped down. so i become more focused on touch rather than sight.....till it wore off..... and i new at the time it would wear off....as it always did atsome point....but now.... i would never have believed that it could seem to go on indefinatly.. and a variant of vertigo.....not the one i was used to.... i hope there aint any more types lurking about lol...

we have lived in this house for 5 &1/2 years and r going to get the floor tiled soon , in the hall,cloakroom,kitchen and utility... lot of work and dont want to be amongst it ... might go and stay at my brothers at least during the day....

my little one still sleeps in our room , and is sleeping well though she doesnt go to bed early... wont... untill the others go....
we still have a lot to do in our house decorating wise....that was another thing i was doing before this came.......... i was painting the plaster coving which is quite elaborate still havent finished it been on hold dont feel safe to go up the steps..
hows u today?????
take care
brina

Hi Brina - thanks for your reply - hey I bet your daughters teeth look gorgeous - I had the same problem of over crowding myself and boy after having been pinned down and anethatised (against my will) I have a real phobia of dentists........another anxiety thing...LOL.

I was laughing and laughing when I read the bit about your husband at the school production saying 'shes dead!!' I probably would have fainted. From your symptoms i can tell you that mine are idnetical - I get all the same things form the dots in fornt of the eyes to panic or sudden fright making it worse! so that is a bit reasuuring for us both. I have an appointment at the ENt chap on Friday afternoon so I will post as soon as i am back form that and let yo know what he says I sincerely hope it is worth the trip. Hey I ma the same in the car in that the symptoms seem better - i asked the ENt the last time about that and he said it is because the motion in the car is greater than the internal illusions of motion that we have and hence over ride them. Like you my symptoms are worse after a long journey too - hey do you think we are twins?? My lightheadeness is like your too - pretty intermitent throughout the days but I can have spells when it is worse. I tell you an annoying thing is that when I have people round it can provoke the dizzies - do you get that? It is annoying and can put me off socialising - how abou=t you? The only other thing I get is sort of exagerated feelings of movement - like if I am sitting on the edge of the bed and the mattress shifts ever so slightly I get the feeling that I am slipping/falling or that the mattress has moved alot. likewise I can get that senstaion on and off during the day - looking down is a bad one for me. Or having to stand still - If I am caught by some-one and have to stand and chat - I tend to lean on something to stabalise myself and try to make an excuse to get away - these poor people probably think I am a bit weird ..LOL.

Oh how I love this inner ear thing. Tell me did you get your diagnosis purely from you describing your symptoms? have they said that it will entirely clear up or that it will just improve? I wonder this myself as our symptoms have been so long standing...albeit yours started years ago.

Dear sweet NON SLEEPING william is real cute but will not settle at night. Last night he was moaning non-stop between 11pm and 4.30am - needless to say i feel like I have been dragged through a bush backwards!! but its 'just a phase' I know. But tiring none the less. The little one is currently in lala land and I cannot sleep cause the other 2 are dotting about. Enough already I hear you say.

Catch you later - hope your brood are all well.

hi i robertson,
know what you mean about the dentist......when i was youngeri used to visibly shake, it was awful.... as i got a bit older i was ok..... but since having tinnitus i became wary..... because of the loud drill and the vibration.... wondered if it could dislodge something..... the worse situation i had with tinnitus was i had to ahve 2 wisdom teeth extracted and a complicated molar , id had it filled and most of it was filling attatched around a post...when i bit onto a roll the filling fell away and the metal pin sliced away at me tounge.... i had to go to the london hosp. to get them sorted .. i was more worried about the wisdom teeth but that other one they couldnt get out so i had to have emergency surgery while awake. they had to saw it out......couldnt believe it when the consultant called for the team....and it all going on in front of me eyes........ the wisdom teeth were a doddle compares to that...... i was deathly pale when i got outa there...... it never even affected my tinnitus........ but now once again i fear the dentis because of the dizzy and wondering when i have to go will it make it worse ,

the exagerated movement ....... yes i still get that
i have new exercises that involve lying on the bed and turning my head left to right eyes open then closed and rolling on to my left side over to the right this is quite disorinenting and feels exagerated..... and with the little ones fighting to sit next to me on the sofa.... boing boing it feels like a trampoline...... when the all start fighting and arguing i cant stand all the movement they make running about crazy aaaaarrrrghhhhhh.... the little darlings... lol
yes my diagnosis had been based on my description.......and the feel confident that it will go... all of it......... the prof said its self limiting ..... and it will go....

im glad to hear u r seeing the ent ..... find out when u can start th vrt.... they will make u feel worse to start .... in the long run they r going to help...
..........
do you ever get the feeling that one of your ears suddenly goes deaf (not entirely ) and then get a very low rumbling noise for several seconds then clears again?????

wishing you well
brina

Hi Brina - you always make me laugh!!

To answer your question - yep I get that sudden temporary dullness in hearing - I also get intermitent ringing noises - a bit like the washing machine on the spin cycle. I used to actually check the machine to see if it was that or just in my head. It was me not the machine....LOL

I have the same diagnosis as you - in that it is self-limiting and will 'burn itself out' eventually. Like you sooner rather than later would be ideal.

My appointment is at 2.45pm tommorrow - by the time that I drive back home (2 hours) it will likely be after 6ish that I post. The poor guy I have a list a mile long. I took some of the SERk - to absolutely no effect - so I have stopped. I read all about it on the internet and it seems most suited to severe vertigo attacks such as experienced by some-one with Miniere's - I don't have that so its not surprising that it did not help.

Thats funny about the dentsist - I like you am avoiding that too because of the ........dizzies. It really does have an impact.

Hope you are having a dizzy free day!!

hi i robertson,
*****************GOOD LUCK AT THE ENT****************

let us know how you get on

best wishes
brina

hey Brina - well mixed results form the ENt doc. Firstly I asked is this will wver go away - yep he says the vast 'majority' do - I was like so not all? he was like yep. But most likley it will but who knows when. he then said all my symptoms pointed to an over sensative inner ear as a result of the Lab's that I had. So like you he recomends VT - I am now waiting for an appointment. He says that I must start again on the STUGERON (the travel sickness tablets) to settle the symptoms down - I took it in the past with success. He also thought I should see a neurologist if I have not improved in another couple of months - oh deep joy. Apparently not because he suspects anything like a tumour or MS (as I have had the MRI) but apparently unstable blood pressure or nipped arteries in the neck can reduce blood flow to the inner ear and hence cause these symptoms. I don't really know what to think!!!!!!!!!!!!!!!!!!!!!! lets hope the VT works and the tablets!! I actually cried at the appointment so as he would realise the impact that this is having on my life. I feel a bit worried about the prospect of seeing a neurologist - eeeckkkkkk. I asked if I needed another MRI - he said no - that was reasuring at least. I asked about a neurotoligist and he said that they all tended to be ENT surgeons like himself albeit with a specialisation - he saw no benefit form that for me?? my ENT has an excellent reputation for the dizzies any how. What do you think? should I be worried?

hi i robertson,

sometimes u get your hopes up a bit and these docs can let u right down again........... no i dont think u should be concerned about seeing a neuro...... i am under one myself ...... and have thought oh bl**dy hell, im on the roundabout getting nowhere here... id rather be seeing the combined neuro otologist..... I think he's just going to cover all aspects......u could stick out and insist for the combined??

i think in some of us maybe we become hyper-viligant
our brain has experienced the symps of the vertigo etc
and annoyingly searches them out.......hence the oversensitivity......... maybe not??????

look forward the the vrt its something positive .... when i had my first visit with the physio i came home and felt depressed... felt like they were fobbing me off with something to occupy my mind..... but i think there is some hope here...........

i robertson, i think u mentioned in a past posting that u had some remmision of symps.... if it happened once it can happen again.....

if u see the neuro and its what your ent suspected. that is treatable..... nipped nerves or arteries......
iknow 2 people with this condition. one chap that does work for my father in law... he wears a neck brace sometimes... because what happenes to him is he acctually passes out when he bends his neck.... my husbs cousin had vertigo for years went for several mris with hers she had pain in her neck and it turned out to be arthritis and she was treated for it so she still gets it occasionally, but she knows the cause...


i hope i havent worried depressed you that is never an intention

go with the flow

brina

hi i robertson
the neuro can check for m a v .. as well????
brina

Hi Brina - I do soooo agree with what you said about the hypervigilant state our brains get into searching out every little sensation of vertigo and movement. I think that this is classis with some-one with what they describe as a Personality A type - that is some-one who worries alot any way - thats me for deffinately. I think that my ENT guy thinks that stress is an element to the problem but not the route cause. As form every thing I have read and experinced personally - whilst anxiety can cause dizzyness it sure as heck doesn't cause vertigo. As the ENT guy said yesturday any illusion of movement wether it is yourself moving or the enviroment is vertigo it is not just the severe spinning thing. You did not worry me by the way with your comments - I thought they were very constructive - I would just soooo love to know whats at the route of it all and try to get better. Like all of us I guess. Albeit I do think the ENT is pretty sure its a sequel to the Lab's.......I siad what about having an ENG ......he said thats a waste as it would only confirm what we already know......whatever that meant. I have decided to try to get on and not to worry - well today any way.......LOL. How are you? thanks for your support.

Hi Brina - you have obviously been busy - lucky thing - I am talking to Fighter on the thread 'feel these symtoms' its about anxiety and the role it plays - you may be interested.

hi i robertson,
hey u r right about being busy, but not so lucky, ive been chasing about yesterday (sat) looking for wall tiles for the bathrooms..... too much driving to diff places felt awful last night ......feeling down about it again........i hate the rollercoaster of emotions....hey its a fight isnt it...... i fight it , it fights me,,,,, ggrrrrrrr
we have the workmen coming on tuesday to do the floors....... just dont feel up to it at the mo... but its been on hold for long enough.........

if i look at the computer screen for to long... the effect of my eyes tracking the words to the end of the sentence and then back again really makes the dizzy exaggerated, do u get that??????

going to look at the other thread now
hope you r feeling better today
let us know
best wishes
brina

Hey Brina - sorry you are feeling bad - me too. Like you it is a roler coaster of emotions - one hour you feel yes i can get through this. Then you do something and its still there and you feel tired so then you feel down and then that in itself is upsetting - like why me - why now- when will it end - will i ever get better etc. It drives ya crazy!! I feel a bit freaked out I read on a MAV link that a cerebellum tumour presents with this imbalance sensation when standing and moving......yes that is the damn anxiety working over time. I do get the same thing that you do when reading the writing on the screen - do you use a VDU galre screen that simply sits over the top of the screen - they are not expensive £10 and may be worth a shot - they reduce glare and also reduce the resolution of the screen as like flourescent lights they kinda flicker although indesernible to the eye. Do you have this imbalance thing that I keep going on and on and on about (I even bore myself with this at times). Hows the rocking sensation? chin up girl we will get through this - its jsut a long flipping tunel. You know that likely you are feeling worse too as you know you are getting the floor done etc and that creates stress even though you want it done - just think that it will all be finished soon enough and likley you will feel pleased with the results when its done. Hope your brood ara all ok - william is finally finally settling down a bit more a night - he really is a little love. By the way my name is Ilia - its unusual I guess - like yours too - I have never heard of Brina before - where does it originate from? Hope you are ok - I will send you a hug - last night I was crying again!! and my dh was like - oh for god sake what now - ok you feel imbalanced and dizzy so what - its not something new - get over it - i felt like throttling him.....LOL.

Hey Brina - I hope that you are OK!

hi i robertson,
thank you for your kind words.....the rocking is slightly increased to how its been lately,or ive just tuned into it more.....and my energy levels feel lower,not that they are great to start with.... know what you mean when you said about feeling 92 instead of 29.......im 44 and feeling 104........lol

hey my name is lorraine and you know when you register here , they ask you for a password, well id noticed that they were not real names mostly..... so for quickness , the first thing i see was one of the girls books.... and they love "sabrina the teenage witch" ......

your name is very unusual is it a scottish name?
i think my dads name is scottish origin, kenneth leslie?

i do have the feeling of imbalance but i do not fall.........sometimes i feel im leaning over and it intensifies till i hold someone of somthing otherwise i think i would fall, i could be walking or just hanging out the washing.... when i was hanging out the washing the other day it happened then.... i have a garden chair next to the rotary line and i staggered and held onto the chair then the feeling went....... i have had episodes like this on and off for a while. i dont understand why one can feel ok for long periods of time and then it can all start up again for some unknown reason..... do u ever get when you r walking along side someone u walk into them like a magnet pulls u over........

kids r ok...... getting bored...... my mum and dad have bought the house next door went through in early feb this year.. needs a lot of work...... i was helping out ... till this happened........ i had wondered if by what i was doing ie stripping of the old paper in the main living room which is quite big.
spent a lot of time looking upwards soaking the top with a broom and mop never could have my neck back for long lenght of time could never do ceiling painting.
hey i think im rambling on bit now..
how r the babes

how r u feeling today

take care
lorraine (brina)

Hi Lorraine (Brina)

Am I dumb or what - I never noticed the fact that every one used a different name - but I was kinda cautious which is why I put I Robertson on. Thats too funny about Sabrina the teenage witch - my daughter thinks that she is super cool too! its a small small world.

To answer your questions - yes - I get that pulling over thing - in fact I have been known to actually bump into things. I think deffinately that stripping the walls/tiredness will be exazerbating your rocking senstaion. Mine was like that too - I know it sounds crazy but one fine day that senstaion will go - just like you never felt it in the first place - weird but true. My doc called me at home today - she was like - ok so you do have an over sensative vestibular system but it is not anything more than that - you have to try to over come the anxiety over it being something else and try as best you can to ignore it. I asked about seeing a neurologist - she said she thought that was an expensive waste of time!.........she said if it was anything ghastly I would have ataxia and unsteady gaze and likely speech and memory recall problems....so I guess my mind is a bit more at rest. Strangely enough as I do not feel so stressed and anxiuos about it I feel alot better - ok the imbalance is still there but not as bad.....so maybe part of it is anxiety. But I ma not going to dwell on that one - my poor head needs a break. But I will deffinately try to work through the bad feelings with less awful thoughts. So we will see.

I get exactly what you descibe 'falling feeling when hanging out the washing' that is the exact same thing I get - thats what I describe as the dizy thing I suppose. Hows the VT going? do they help ease your mind any? do they say oh yes lots of folks have these same symptoms etc or is it very much a lesson in the exercises?

I know how itr is when you feel you are having a set back especially when things had been getting better - you know that this has happened to me on many occasions - do not worry - you will get over the hump...again!! You gotta love this problem...LOL

My babes are all well - William weighs 10lbs 4ozs today - and hes looking all chubby and gorgeous. I bought a cool kit to get a mould of his adorable feet and hands .......seems a bit messy so I ma waiting for the eldest 2 to go to bed 1st. My kids are back to school tommorrow -- YAHOO - a bit of peace and quiet - what a mean mama! but its been a long summer with all of this.

What type of tiles have you gone for? Hope you and your brood are all well.

Catch ya later.ILia

hi ilia,

i know what u mean about your head needs a break...#
you know, when i first started with this new dizzy wocha ma call it...........i couldnt sleep or eat and went into hyper worry, panic, i went onto the computer for hours and hours day or night , my husb didnt know what to do with me...... i came across nearly every site that contained info on vertigo etc.....stored it all in my favorites , read it all over and over again and done my head in.............
i thought about all the nasties it might be...but as your doc pointed out ther would be all sorts of other sympts....

ilia , if you try the heel to toe walk in line, how r u...... can u do it ok?????/
ive walked in a line with my eyes closed over and over with my husb watching..... at first i did this for the neuro... and he said that i veered to the left both times...... bu when i done it at home... i almost perfected it into a straight line?>? i have stood on one leg and then with my eyes closed and really tried to controll it..... you can get a bit better after a while....... though i gave up on it a while ago......
i was amazed that i could actually walk in a line with my eyes closed and not fall over..... it doesnt make sence........

hey would u beleive it the workmen have put off the tiles for another week....... we have tham stored in the garage at the mo...... they r kind of mottled beige, sand and light grey .quite neutral....
they r mostly plain but some have a floral pattern in and these are oblong the others r square but thet r all the same colour.

did u ever suffer with your ears as a child?????/
i used to get middle ear infections quite a bit and onwe especially i remember was an abscess in the middle ear......it was sooooooooooo sickly painfull.. my mum gave me a hot water bottle to lay my ear on and it eventually caused it to burst , i can remember the muck that came out of that ear but what a relief. i could sleep after ... and i remember the horrid antibiotics medicine one bottle of red and one bottle of orange coloured , i think i 2 weeks off school.....

speak soon

lorraine

hi ilia,
you ok today????????????

lorraine

Hi Lorraine

To answer your questions - as a kid no I was not really bothered with ear infections - well none that I can remeber. However I have had a few sore ears that I caught form my son when he was a toddler - he would get a temp and scream, red ears etc then wham a couple of days later wham me too - less the screaming of course. I have wondered from time to time if that kicked off my inner ear issues - I am not sure.

Hey - your tiles sound really nice - neutral is deffinately the best choice - it would be hard to get sick of them and theyw ould go with lots of different decor styles. That is typical that the tradesman called off for another week - that always happens to me too. Typical - I bet you were getting excited too about seeing it all finished. Let me know how it all looks when its done.

As for the heel to toe thing - I am not really sure - I have not been asked to do that except when I had severe lab's so hang on a tick and I willk check. Well I can do it ok with my eyes open but I can't do it at all with my eyes shut - eeekkkkkkk - is that a serious sign?? like I can't do it at all my balance is all over the place. Oh now I am worried - let me know if that matters or not. Thanks

Hope you are OK today

hi ilia,
sorry about that.... please dont worry........
no i dont think its anything to worry about.....
did u see the program about ears ...........
they got some ordinary people with no balance probs and asked them to do some standing on one leg with eyes open then closed and they were all over the place.....i even asked my girls to have a go of walking in a line with their eyes closed (in safety).... they were all over the place too.........they found it funny....... not like us............. also on that prog they demonstrated how gymnasts can climb up onto each other and make a pyramid tower......... their control was excellent..........until they turned out the lights......and all toppled down.................
when i first tried it i was very scared of my footing,
but after getting my confidence i could step out , only about 5 steps but i didnt sway........just one of my crazy ideas.....................

have you an appointment for your v.r.t. im going again tomorrow..... see what else i get given........

hows baby william i bet he will miss his brother and sister when they r back to school........

take care
lorraine

Hi Brina - this is a rollercoaster - one minute I am ok about this whole thing and the next I am scared anxious and so not ok with it. I ma currently crying with just being soooooooooooooo fed up with it. I do not feel lightheaded really just this imbalance sensation. I feel freaked out again!! I really am not sure footed at all its like walking on a bouncy floor and standing still is the worst. You have reassured me about the foot to heel thing with your eyes closed - I got my husband to do it and he was perfect - ot is sooooo annoying. Did you find your neurologist any good? I am considering going privately instead of waiting another few months to see if its going to subside. I personally do not think that it will - today my symptoms are worse than yesturday - ahhhhhhhhhh. I just feel soooooo scared and tired of it - I soooooo just want to feel my normal sense of balance less - just to feel normal would be soooo great. My dh is going away for 2 days and I feel really scared - walking around is soo unpleasant I know being scared is making it worse but what can I do?

I robertson,

How long have you had yours going on for?.....cant remember. can you read books ok? this can temporarily take your mind off things.----Eric---

Hi eric - well I had lab's just over 2 years ago and to be honest my balance has never gone back to being 100% since then. But I have gone through periods when its ok enough for it naot to cause me any stress or worry. I do not really have the vertigo any more but its the imbalance that drives me up the spout. I just feel so not right whenever I stand still or walk although Ihave noticed that it is less noticable while I am actually on the move and I cannot notice it when travelling in the car. I am sooooo scared that something sinister is going on even though they all keep saying no. I even freaked out with the heel toe test as I cannot do it at all with my eyes closed. Our symptoms are pretty much the same - how long has it been for you? can you do that test with your eyes closed? do you think thats a bad sign? I have never asked about it before but I will. I am ocnsidering going to a nuerologist - but that freaks me out too. I hate this head thing....................Yep I can read OK only bothers me when I am really tired and then it can be a bit fuzzy. Thanks for trying to cheer me up - I just am sooooooo sick of it. How do you cope with not being scared of the imbalance senstaions? how does that symptom feel for you? I even find making a sandwich upsetting as the balance thing is there 24/7 and looking down makes it worse. I almost feel normal when sitting down or lying down and then I wonder if i ma imaagining it. Unfortunately I am not!!

hi ilia,

hey sending you a hug..........i know how this thing can make u cry..... done some too.........today the symptoms seem worse for u........ anything spark it off???? or just doing its thing.......how r u for post natal depression? ........ if u r not getting enough sleep it can intensify.......can u get anyone to come and stay with u perhaps...... to help out.....under normal circumstances its hard for a new mum.... but with balance issues as well............
its horrible when u r normally an independent person to have this move in on you , a most unwelcome visitor......
i have seen my neuro twice so far, he is a very reassuring assertive man, who makes you feel confident while u r there..... my mum came with me on my first visit..... shows how bad i was, at my age, to have your mum go with u. he really looks at you taking in....he asked my history of dizziness....then did some in office tests....they were heel to toe walking....walking with eyes closed toward him.....
nose to finger tip touch back and forth.....turn my hand over on the other hand front back and so on........finger tips starting with the little touch thumb tip next one til all then speed it up... hard to explain that one...... look in eyes with light.. had to follow the light with my eyes.....several times he asked me to show my teeth?? but he wasnt looknig at my teeth i think he was looking at facial muscle tone.....
and some i cant remember ........he was certain it is coming from the inner ear but has ordered the mri in any case. he said that it was inner ear from my description and not being able to walk straight with eyes closed he also said the rocking sensation was mal de mer............or sea sickness i suppose.....

do u like herbal teas... cammomile tea is supposed to be calming , recall all the past cognitive training u had..... u beat it before u will do it again

let us know how u r doing
take care
lorraine

hi ilia ,
sorry, i think i confused you........... heel to toe walking with eyes open only.....
normal walking with eyes closed.........to see if you veer off left or right......... hey i tried heel to toe walking with my eyes closed....no way..... thats toooooo difficult........
i did not explain myself sufficiently in the previous post and did not realize it...

[This message has been edited by brina (edited 08-19-2003).]

[This message has been edited by brina (edited 08-19-2003).]

Hi Lorraine - crisis over - now I read your post right - it is sincerely this damn anxiety over it that just freaks me out. It really has me up one minute and disparing the next - I don't think its post-natal depression (ohh I hope not - but seriously I think its not because my sis had it and she was sick really sick not like this type of anxiety thing). Thank you for your very kind words - very very reassuring. Hey you know that those nuero checks are the sdame that I had and like yours mine were all normal - you are right about the teeth thing it is facial tone and not your teeth he is looking at.........but that sure made me smile any how. Whilst sitting here I have had that gross dropping senstaion several times - deep bretahing and trying not to freak out!! Lorraine how on earth do you manage to get out of the house? does this thing not make you want to sit down and astay there? By the way when I ain't in the dizzy thing you would noit thing I was sooooooo crazy....honest.

When are you getting your MRI? had that done myself as you know.

Hows your day - oh - you were right in saying tiredness makes it worse that is the problem. Got to sleep finally at 2.30am then up twice and fully up to get Brook to school by 7 am so I am pretty knacked. Bud (Luke) poor sole did not get out today because of this balance thing and he was stir crazy by the time dh came home. He was ckinging onto his leg etc etc - you got the picture - then dh got sick of it and tried to flick him off and he ended up banging his head very hard on our cast iron rediator - yep- tears - tears etc so that been my last hour. Will is settled and my Brook is sitting beside me cutting up an art attack amagazine - its strange no matter how darn dizzy or imbalanced you are normal life jusrt keeps on going on...thankfully. Hope you are ok -

Hi any other fellow dizzies - join in if you wish!!

hi ilia,

hope things have settled today.........how r u?

i have just got back from the physio..... and the ones that r not having much effect on the dizzy i can leave out... but its not many, and now have some alterations such as..... i had to sit and stand 10x now i have to stand turn full round and sit down10x then standing turn full right then full left10x

and now i have to sit up from lying on side10x left and right.........

yesterday i went to bed quite early for me as i had one of those persistant banging heads with nausea......and still woke up with some of it......i didnt take anything for it and just waiting it out now...... the strange thing is, when i started with this laby... i had been having headaches and neck aches solid the week or two before..and i dont normally suffer with headaches.... so i was trying out different tablets to sort it .. then worried if it was them that caused it.... but prob not......

hey you know for months i didnt go out , not even in the garden......when i first got it i didnt even take the children to school (the two youngest)........as the 2 eldest get taken by car....
no one could take the littl'ns for me at first... i asked someone i knew from along the road to help me till my husb realised i couldnt walk there and he took them.............i was too afraid it was like living in another dimension i couldnt bear to go out the front door.... so i know how your feeling about not wanting to go out.......i think that because im on some anti depress....and i had some diazepam that helped me on my first venture out again to have a visit at the clinic and hospital i was with someone and that helped too........ i realised i didnt fall even though i felt i could... and hated having to sit and wait in a strange environment feeling like i was in a big boat swaying and up an down i felt like i could have fallen from the chair.........

i have never resorted to taking something like diazepam, but this episode i would have done anything to feel some kind of normality.......and it did take the edge off . i think it was because a big chunk of my sypms were being severly aggravated by anxiety...

i had a 10 day supply of diaz..and only had half the supply so i am keeping some for emergency. say if i have a long journey to go on i will take one then...

i do understand the uncertainty of wanting to go out and to be honest i havent been anywhere on my own since. and i have been an independent person.......

i think i will take the youngest to the park in a mo
i havent done this since the onset........ i will let u know.................................... ...........


let me know how u r doing today

take care
lorraine

HI ILIA,
HOPE U R OK???????????

Hi Lorraine - its like a miracle!! no joke for absolutely NO reason at all the dizzies and imbalance was at a manageable level - so much so I cleaned up the whole of my house - cooked a meal and had two lots of visitors - needless to say I am far too long in the tooth with this head monster to hope that tommorrow will be the same....LOL....we can live in hope.

I hope your head is better - I sympathise alot - I had a horrid head after will for 14 days and 2 aura's realy tired me out. Hope you are ok now!!

Sorry for not posting earlier - I have been really busy and my dh is away tommorrow - i also typed this earlier and the laptop crashed before I could sen it...ahhhhhhhhhhhh. So better late than never - hey its 1.30am...eekkkkkk

I think I feel a whole bunch better cause my sis took my middle kid Bud all day and my eldest was at school - so i slept solid form 9.30 - noon. Yipee - I never felt better from the sleep - so maaybe that why the dizzies are less.

Hope your VT goes well - I start mine I found out today in Sept - Once a week for a hour in Aberdeen - unfortunately that is an hours drive away ............LOL.

How did the park trip go - good I hope - you are brave - well done. I am knack'd so I will sign off. Promise i will write earlier tommorow - hope you are ok.

Ilia

HI ILIA,

HEY GOOD NEWS.... glad to hear u had some respite yesterday........its amazing isnt it.......if it lets u alone ...... you can try and make the most of it, it must have been nice to have visitors .....if the symps have lessened you can concentrate a bit more, and then u might not notice so much as well...


my headache has gone, but feeling a bit like if ones had a bit too many to drink.... i havent....its not pleasentbut bearable.... feel foggy headed,.... this is when im likley to talk a lot of babble........

good to here u can start your vrt soon........i didnt so any yesterday will start up today.... i just got my new list yesterday.............

i took phoebe and amelia to the park and started off a bit across the pavement.....but the further along wasnt to bad...... when we got there, the loved it and found some school friends to play with....i talked with one of the mums, but i felt sad that the last time we visited there i felt 'normal' but im glad we did it........................

i hope today is as good as yesterday if not better....

my mums coming to visit this morning...... so i catch u later

take care

lorr

Hi Lorraine - hope that head of yours has lifted - that must have been nice to have your mum visit earlier on today.

Know exactly what you mean about feeling sad about 'the last time I was here I was ok' I went through that exact same phase. I don't get that any more......probably cause I have had it soooo long. Today is not so hot - symptoms are still bearable nut none the less unpleasant - probably cause the baby did not settle till 2.35am and I was up at 5.15 cause dh was going to Stirling. I did manage an hour later on but it ain't enough!! my eyes feel sore form tiredness...lol.......william is sooooooo gorgeous he is worth it....just a phase I guess. I am really pining my hopes on VRT - I really hope that its going to work.

Tell me do you feel lightheaded in addition to the rocking sensation. Say if you move around alot or bend over etc do you get this kinda odd feeling - a bit like feeling faint - except you don't and its different because it feels like a balance thing - it passes off pretty quick - like in a few seconds maybe 10 tops. Just interested.

William is not settling in his pram - so I am going to sort him out. I will check in later. Hope you are ok - Ilia

hi ilia,

the headache has cleared a lot now.........

how r you and william , its a shame hes not settling yet . is he a hungry babe........?.........

my eldest was terrible for sleeping, from 2 weeks old till she went to school....she was always in our bed.......she was always wanting to know what was going on and not wanting to miss anything....and very hungry..... i remember i kept taking her to the doc...because she would bring up all her milk.... i used to put the changing mat out on the floor ready to catch it all.....cos it would shoot out..... she was only a couple of months old ish..... and the doc laughed because she was actually putting on a lot of weight and was having too much.........

its not always easy to fit in sleep when they do but try to if u can.......can u tell the colour of his eyes yet? has he lots of hair .........mine had very blonde fair hair so they looked like baldy from a distance till it stared to grow then it stood up on end

i had the off balance today, i went to the local shops with my mum , and i asked her ....because as we got out of the car and i was looking around to make sure everything was in order i feel the off balance or disoriented like i could fall but dont and it stops soon like u say....... she agreed with me and said she does get it sometimes.... she said especially when i have to get up to the loo in the night , im bouncing off the walls......lol

the littlns wanted to go swimming this evening,so i went, but didnt go in, i just watched from the side, husb went in with them... and just watching the water bobbing about made mee feel like i was in there too being swished about.............................

hope u get a better night sleep

take care

lorr

Hey Lorraine _ you are quiet today - either you computer is broken or you are feeling much better and are busy busy busy. I sincerely hope it is the latter.

Hope you and yours are all OK.
Catch you tommorrow - hopefully. Ilia

Hey all,

Do any of you ever feel kinda like rubber legs or fatigued?....just curious.

hi ilia and all

the girls have bought a lot of new sims games and i hardly getting a chance to get on the computer , along with all the v r t exercises..... and there does seem to be something up with the computer as its so slow. i have been running the maint. progs to try for errors and there is some but wont mend them... so going to run the systems works to clear them..............

still got the rocking in my head unfortunatly.....

know how u feel emys if your reading this

i think the exercises make the symps more noticable, but this is not a bad sign.... wierd isnt it......

hope you r all feeling improvements a.s.a.p

take care
brina

Hi ya all

Fighter - oh yes had that rubber leg symptom - its just another wonderful part of this inner ear disorder - lovely - not!! To me the sensation often feels like your blood sugar levels are way low - so then I eat and no it does not relieve it. How are ya?

Brina
I know what those games are like - my middle one Bud is addicted to all the X-Box games. His father and him will sit and play for hours - it always amazes me that a 4 year old can play games I cannot.

Well I have know had 2 days this week wherby the imbalance has been less severe. Although I still have the feeling - so no cure as yet. I also feel less dizzy. But I have been down this raod sooooooo many times I ain't thinking that this is the end - it so never is.

Today I am going into town for a bit of shopping - I hope I feel ok.......

I will catch up with you later. Glad u r ok. Ilia

HI ILIA,
HOW R U
how did u get on with the shopping day?

take care
brina

Hi Lorr - wondered how you were doing - can't post much as william is crying and I have been really busy with the kids. But will post later on this morning or early afternoon (Tuesday). Hope ya ok. Ilia

Hi Lorr - how are you? are your kids still playing their games??

Well the shoppiong went well - every time I felt really dizzy - I told myself that I was fine etc etc and did abdominal breathing - so although I still felt not great - I did not get anxiety to any great degree on top of it. the next day (Sunday) I actually had a long spell with NO symptoms - ohmygod - however the next day I did and today too. But on Sunday I went for a walk with all the kids and dh to the forest. It was a really warm day and the 2 eldest and dh caught over 30 frogs - sounds a bit dull - but it was fascinating to see them form tiny tadpole through to tiny forg and massive frog depending onwhich bit of the pond they took them. They all went back in the pond and were none the worse for it. It was soooo nice to get some fresh air - but I felt really tired later on. I just cannot wait to get started with the VRT - 11th Sept. Today my dh went away and I felt worse again - so maybe stess has a part to play - I had this weird fuzzy (physical feeling) in my head today as well as the dizzies - it freaked me out - I thoughht os it a stroke etc etc - likely I think it was nothing but when dh is away I feel more vunerable and then worse. Have you ever felt that weird head feeling? I have started weight Watchers as I sooooooo need to loose some excess pg pounds - I have done a week - and like last time it is not hard - it is amazing when you r not used 2 b'ing over weight its easy to resist choc etc as my desire to be back in shape is soooo strong. But if I am only half a stone over weight then its hard as the desire is not soooo strong. I have had to do the ww - 3 times after each of my pg's - it always takes about 5/6 months to get back to normal weight. It is weird I look in the mirror andit is hard to believe that its me - if you have never suddenly put on weight you will not know what I mean. Hey - back to inner ear - has the 2 recent diagnosis (not inner ear) given you food for thought? I know for sure I had Lab's to start with - no doubt of that - nystagmus - intense vertigo etc. My gp thinks that I am crazed - well she did not say that - but I get the impression that I should just get on and try to put it to the back of my mind. Well I have been working harder at that - but it IS still there and I am positive its not imagined and the ENT agrees. I really have my hopes pinned on the VRT. Lets hope. Is it helping you any? are you doing the set exercises of the Cawthorne or are they tailored to your symptoms. Do you ever feel dizzy just standing? I am know feeling that the imbalance almost is not detectable if I keep on moving (its noticable 4 the 1st 15 mins then lessens) I also notive that I ma not having such severe symptoms - god I hopoe this is it clearing up again - we will see. How r u - how r your symptoms? Hope u @ yours r all ok. Ilia

hi ilia
just got back from a day out as husb has his 2 weeks hol now...... we did not book a holiday this year...we always do.... but becauseof the symptoms , i am so glad we didnt.......... but the kids and himself wanted to get to a beach today.... so our nearest is abouot 40 mins drive away on a clear stretch..... i actually took a diazepam cos i was scared of the motion in the car.......... since this has started i have not travelled longer than 20 mins in the car..... anyway..... im a bit more rocking at the moment cos the traffic was bad... and the 40mins turned into 1hr plus.........the sensation u mentioned like a fuzzy feeling... yes ... i think i know what u mean..... believe it or not i had today..... for me it also feels like i slightly buzzy feeling in my head.... ive mentioned it to the prof. and he said it was usual with inner ears ........it was nice to go to the beach though.... and i walked up a steep hill to get to the shops ... on me own ....... i thought i was gonna pass out.........i am so unfit......... i had to stop half way up for a breather......know what u mean about putting on weight quickly.. i have...when i started with this lot..... i lost a stone and half in about 2 weeks..... when i told this to the prof..... he started
me on the anti depress. and now i have gained at back and more........ i have never been this weight outside pregnancy i am ashamed to tell u...... overall i am now about 4 stones over..... and when i look in the mirror its not me ..........my doc said to do more walking..... i will try when the kids go back to school............i used to go power walking with some mums over the park about a year ago.........dont think i could do that now........
i do prefer to be moving... thats why i went to the shops rather than be still sitting on the beach.......
someone i know of, is having some different v.r.t. than the usual... they have a trampet and have to jump up and down while fixing their eyes on some words pu ton the wall.... and have been told to do some reading in the car........ that was a big no no for me deff would end up pukey......

i am thinking of going back to the gp as i have never been to an ent for dizzyness did go for the tinnitus.......... i mentioned to him though when giving history that i hadf spells of vertigo ... so he asked me to close me eyes , arms out in front, and march on the spot , after a few mins i stopped and he declared that i had benign positional vertigo,....but now i wonder because from what i understand that only lasts for a few mins or secs... but mine would last for hours.......what do u think???
glad you have had some good days to get out in the fresh air......not long to your v r t.....

hope u dh and babes all ok

lorr

Hi Lorr- Gosh I bet it is nice to have your dh home for a couple of weeks. I know what you mean about scared to go on hol - I have not been 4 2 years!! my dh is not happy - he loves and says needs 2 go at least 1 time a year - just 4 a complete break - I can tell ya there is nada chance of me going on a place ..no....no....no. Brave emys.....there is no way i could until this is more a distant memeory. Brave you!! for going to the beach - I know what you mean about going to the shops is better than sitting - me too. Yep the feeling that u describe buzzing is EXACTLY what i got - it freaked me out as I had not had that for yonks, I have also started getting ringing in my ears at night time - hope that does not progress........fingers crossed. Wow - the vrt your friend is doing are awful - i owuld have a sever headache etc if I read in the cr in fact that upsets even an in tact vestibular sytem - and eeeeck as for jumping on a trampete!! nononoononono...LOL.
I hope that the rocking subsides - I remember that soooo well - honest it will get better, Will is balling so gotta go. Wish you were closer by so as we could walk together and not feel so alone with this thing!! can u imagine walking - u with the rocking and me feeling like I was unstable!!!!!!! Catch ya later. Ilia

HI ILIA,
husb has just taken the car for mot..... has ideas of going out again..... how is the ringing i your ear, i hope its stopped......
the new of the dx (not inner ears) well im very pleased for them... but it does make u wonder.....
i have thought did i have lab, as it was not classic.....but subs said u can have a virus and not have the other symps , just the dizzy opf bal. thing.... i have wondered if i have mdds...... the woman i told u about is a mdds sufferer.....which is mainly the sensation of rocking.... it can also happen with inner ear disorder.... so it does get confusing...
as for the MAV.... well i have wondereds that too... as the bpv is supposed to be short duration but mine would generally last hours, or sometimes days.....
and i too have had migranes mainly the visual without pain.... but i have had the bad headaches but not usually...... i am also intolerant to strong smells such as heavy perfumes, shoe polish, furniture polish,
hairsprays...etc..... how about u???? my husb not allowed to wear aftershave.....lol, true........
i have been like this since a child... also cannot stand cigarette smoke..... most of my family used to smoke when i was a child..... but this never came naturally to me... cos i hated it so much....my friends at school could not persuade me and thhought i was a goody two shoes, not so,

that buzzy feeling... ive had that on occasions before.... without dizzy and now with.... im going to ask further what it means... even if the docs r not concerned... i think we can be given an explanation....

i did sound good fun to go to the forest and the ponds, i like doing that kinda thing... near us there is aplace of ponds and reed beds.... we go there sometimes to feed the ducks and swans..... lots of dragon flies this time of year..... bit scared of those ...

hope u keep those good days going.........

catch ya soon

lorr...

Hi Lorr - glad that u r ok. U know that it might be a good thing that your dh is about so as u can go out and about - it will build your confidence in coping with the symtoms - I always find it easier if I know dh is around. Plus mentally u can think well look what I have done - sounds a boit weird I know - but I tend 2 kind of 'in my head' critise myself 4 not getting on and not doing what I used 2 do - do u know what I meam.

Hey 0 all the synmptoms that u have written - I have. I also have the intolerance to smeels - in fact it is a running joke in the family that I have such and acute sense of smell - but thats just me. I too cannot abide cig smoke for the same reasons - (I wrote deff.not my scene 2 the smoking ?? thread). Sometimes its great as I can always tell what a certain smell is but in another way its annoting as like music I tend 2 make strong associations with smells and events. Do u know what I mean?? like I can smell something sweet and it will remind me of something thats happened sometimes good sometimes not. I am a blether!! (scottish expression 4 going on and on about nothing)

Yep - I have been round the block with all the diff. diagnosis 2. I think that 4 us our symp's are not specific 2 one specific thing. When do u see your guy next? why don't u ask him about the over sensitive inner ear which they claim is wrong with me and very much sounds like what u have 2. It would b interesting 2 get a perspective on if that even igsists!!.LOL

I personally feel not nearly as concerned about any thing sinister being wrong - from what I have read either it is inner ear or damage to the nerve carrying the balance message in the brain - eithet way its not life threatening.........but very annoying all the same. I can honestly confirm that the less stressed and less attention I give this thing the more managable the symptoms. Although I know that anxiety is not whats causing the symptoms and the same 4 u.

Well dear william is kinda fussing so I am going to bath him and make him smell all adorable. I will be back on line later. Hope u have a great day. Ilia

Hi Lorr,

Ahhhhhhhhhhhhhhhhaaaaaaaaaahhhhhhhhhhh

I just typed you along message and I ran out of battery power and lost the whole darn lot. Annoying!!

How are ya - I hope today went well for you especially since it sounds like you are getting out and about a lotmore than normal with your dh. Its good in a way cause it builds comfidence and you probably feel a little less intimidated by the symptoms because he is there in another way its annoying beacuse no doubt the rocking is a bit more severe.....LOL.

I know what u mean about the daignosis - I think that is beacuse our symptoms do not fit in exactly with any specific diagnosis. Could you ask your doc about the possibility of an over sensatised inner ear - thats what they say is wrong with me - perhaps its worth a mention after all our symptoms are soooooooo the same.

Hey I know hat you mean about the actual feeling of buzzing in your head - me too. Its gone today but I get it from time to time weird. Yep please ask what that is.

How r u getting on with the VRT?? cannot wait to start mine. Tell me did they suggest anything else about your balance diagnosis or do they just tell ya the exercises then leave please??

I love the sound of the dragonflies - I have not seen one since I was a kid - so 20 years ago or so.

I am less concerned with any thing serious or nasty being wrong and like 100% concerned with will it ever go away and if so when. Does this thing put u off walking around. Today was not one of my better efforts I have felt: kinda like I am bouncing when walking, the room is not entirely still, objectas jiggle momentarily and dizzy but also like woozy and also faint feeling - don't u love it.......NOT.

How r u??

hi ilia
read your post
will be in touch soon as i can

lorr

I'm sorry to break in on your conversation here, but I know how you both feel, sort of. I'm a father of 2 sons and feel bad about not being able to pay more attention to the kids.
A question to I Robertson, several months ago we talked about a constant sense of nausea accompanying your problems, do you still have that or did it go away (or did you find something to help??) I still have mine most all of the time, it is very frustrating.
Also, are either of you really disturbed when your windshield wipers are on (that's what we call them here in America, you might call them something different over there). Especially when they are on fast speed my head starts to spin.

Thanks and sorry again for interrupting into your thread.

Hi Brown!! I read your thread on nausea and replied to ya there - do not dispair it will go - I had it to a horrendous extent for ages and it does eventually go!!

Hey ya are nopt interupring this thread at all - any fellow dizzy very very welcome to join in!!

hi ilia,brown,

hi brown nausea, yes , havent got it much now, but i couldnt eat at one point , till the doc gave me something..... i get more dizzy now , form looking at the comp. screen,,,
take care

ilia hi
i will def be asking those q's to the prof and doc
my dh is very demanding at the mo... hes dragging me out every day......... i will try and get back again soon.... and the sims games... the girls love them....


hope u r ok
take care

lorr

Hi Brina and Brown!!

Brown - how r u??

Brina

Hi Lorr - yep I know how it is when the dh is around all the time - it is actually very nice but your normal routine goes out the window - hope you are managing to enjoy your trips out!! bet the kids love having him around!! love Ilia

HI ILIA,
have a moment.....just beat the girls to the computer....also have the workmen in today to work out the layout of the floor tiles......headache already.....as there is a pattern border..and they having trouble working the layout.....
well for all this travelling ive been doing im noticing an increase but im trying to take my mind off it during the day at least, but the evening, its harder....
how did the ringing in your ear end up? has it gone...i hope so....... the same thing happened to me the other night.....i was looking at some old negatives at my parents ...,.when i finished, and i stood up i yawned....and there was an advert on the telly.. the one for walkers crisps.... with the indian lady singing, and i joined in with her , as its high pitch notes,,,, well ............ my ear started right up loud... and it wouldnt stop for ages and when it did , it would come back for quite a long time,, it really got me worried as it was much louder than my normal level of tinnitus , very intrusive... but im glad to say it eventually went back to its normal level
i think that the over tensing of my ear , neck muscles cause this to happen.... dont know why i bothered to sing with her cos i cant sing anyway lol...

apart from the rocky sensation... i could describe it as....... having a helium bubble bouncing inside the head trying to get out..... it doesnt hurt...... just the sensation........that sounds weird doesnt it.....

i also suffer a cracking neck....do you?????????
say i'll be looking at the screen and look up and left...it will happen then...

i havent been doing my exercises for the week, just havent been able to, bu t the physio said it was ok...

i am going top ask her some Qs when i see her again... it think that rachels physio is more flexable than mine....shes very nice but goes through the stuff then bye bye.....

hope today is a good one

take care
lorr

Hello everyone,
I read through some of the messages, here is one thing I get:
1) All of a sudden my hearing in one ear will go almost deaf
2) About 2 seconds later, I will get a high-pitched ringing in that same ear for about 3 seconds
It's all over in 5 seconds, but pretty disturbing nontheless. Two other notes:
1) This happens in both of my ears. However I have had it in my right ear my whole life (maybe once or twice a year at most). Since this innear ear trouble began, I have had it happen in my left ear for the first time in my life, and it happens several times per week, so I'm thinking it must be related.
2) Sometimes I have the hearing go deaf without the ringing, still lasting for a few seconds only.

Does this sound like what you get? Does anyone get it in BOTH ears? Thanks and best of luck!

Brown jtl - yes I do get that, just had it in fact, a momentary deafness with tinnitus and my ears sometimes hurts with it.

I Robertson/Brina - I still have the rocking sensation after thnat blimin plane flight (its better but still there) and I too feel that the ground is bouncing up and down. I too have worried about MDDS but I havr had this ear prob for 10mths prior to the plane flight so am pretty certain it is ear related (and MDDS is not, they believe). Think I have an over sensitive inner ear like you describe I Robertson. Aghhh, I hate this. I also have the feeling insiude my head and my eyes always feel fuzzy, confused, almost stiff. Sorry to vent. Bests wishes to both of you xxx

Hi Brina, Brown and Emys

Brina: Hi for some strange reason even though yje post shows more replies when I am looking at it it fails to show the latest replies.......do ya know why? gald that your floors are getting started....know what u mean about the borders.....I have amtico in my kitchen around the central island and I went for a border.....that took them the most time getting it set off.....LOL......but it will look great I am sure. Yes I know what u mean about the helium balloon thing.....not sore but just gross. Your rocking thing is just worse cause like mys u have been asking your ear to work more,,,,it will reduce,

Brina, Emys & Brrown

Hi hope that your dizzies r ok today!! I do also get the weird ringing thing sporatickily (crickey that is not the right spelling!!). I also get it that all of a sudden myown voice sounds like its really loud and kinda echoey. I get this sorta 'spin cycle' sound in my ear 2 I notice it most when I am in bed and it is quiet. I also get blocked ear feeling. It does however not bother me as much in fact really at all compared to the sensation of unsteadiness...........I HATE THAT.

We should start a new thread....I will leave that to u guys. Hope u r all ok!!!!!!!!thinking of you.