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janalee
01-23-2009, 06:08 PM
hey there,

My Mom had a stroke back in August. Since that time her life and mine have change significantly. We had to place her in a nursing home a few weeks ago. I am finding that now all my Mom wants to do is sleep. I am starting to get concerned and am wondering if this is normal. Part of me wants to believe it is part of the healing process. If anyone out there has any advice or stories to share I would greatly appreciate it. I am not dealing with things all that well right now. If you would have asked me six months ago if this was the life my Mom would be leading I would have said "no way".

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writeleft
01-23-2009, 06:21 PM
I am so sorry about your mom's stroke, but I hope I can help you. I do not know the nature of your mother's stroke, or what other health issues she might have, but I am a 48 year old woman who survived 4 strokes (five years ago, due to malignant hypertension).

The sleeping is very common following a stroke. It is a time of healing. The brain is an amazing thing that will try and heal itself immediatly, thus the sleep. Be very patient with your mother, let her take her time.

sumptersam
01-24-2009, 10:51 AM
I am so sorry about your mom's stroke, but I hope I can help you. I do not know the nature of your mother's stroke, or what other health issues she might have, but I am a 48 year old woman who survived 4 strokes (five years ago, due to malignant hypertension).

The sleeping is very common following a stroke. It is a time of healing. The brain is an amazing thing that will try and heal itself immediatly, thus the sleep. Be very patient with your mother, let her take her time.

after my stroke, nurses just let me sleep...I don't think I have ever felt so sleepy but now (a few months later) I keep to a schedule, don't sleep too much and my wife wakes me up...but I still have to sneak a nap in sometimes.....of course, depends on meds too...I take meds for my seizures which make me sleepy......

writeleft
01-24-2009, 07:38 PM
My sleeping pattern following my strokes has been very differant than before.

I actually spent the whole first year basically asleep. The second year I began to walk around again, but never alone. The third year, my speech got better. The fourth year, I began to drive again. Now, in the fifth year, I am back to riding my motorcycle in the desert, restoring my 48 year old truck, and feeling more and more like myself everyday.

Now, I'm not suggesting your moms case is anything like mine, but time does heal. I had some other signifigant health issues with the strokes, kidney failure, strokes on the retina's, heart attack, etc.

Now days, I still need 10-12 hours of sleep, mostly due to medications, as sumptersam mentioned. I've just adjusted to sleeping much more, and that's ok. My recovery is still in progress, and thank god for my understanding husband and kids.

I hope your mother continues to heal, and she is very lucky to have such a caring, loving daughter.

janalee
01-25-2009, 12:07 PM
Thanks to the both of you for your comments on my post. It gives me hope for my Mom. I have been having a bit of a hard time myself with the whole experience. We have placed my Mom in a nursing home and that has been a challenge for me. It is a struggle to trust anyone enough with the care of my little Mom.
My Mom has done well physically but cognitively she has some issues. She has alot of confused thoughts and sometimes sees or hears things that are not there. I wish for her that her mind will clear and she can have peace......and live a good life.

Thank you again for taking the time to reply to my....it really means alot.

writeleft
01-25-2009, 08:26 PM
Of course...She will be confused for a while, just try to assure her she will get much better. I follow these boards just for the purpose of sharing some positive light on this very difficult time.

sumptersam
01-26-2009, 10:40 AM
Of course...She will be confused for a while, just try to assure her she will get much better. I follow these boards just for the purpose of sharing some positive light on this very difficult time.

It's comforting just to know someone else understands what life is like....I understand the confused state....but of course, my wife says I was always like that it's just that now I have an excuse! I will think of your mother and others when I pray.....:angel::

writeleft
01-26-2009, 11:31 PM
Contributing on the boards is "just what the doctor ordered" for me. I had my strokes young (43), and was spared the worst, somehow. I feel lucky to connect with other survivors, and support one another.

sumptersam
01-27-2009, 10:47 AM
Contributing on the boards is "just what the doctor ordered" for me. I had my strokes young (43), and was spared the worst, somehow. I feel lucky to connect with other survivors, and support one another.

Me too.....I am 48 and I think the young age is important as I am lucky to be getting most everything back.....some of the guys in thereapy with me weren't so lucky.....and even the therapists have told me how speaking out, finding these boards, etc. is good therapy! :wave:

janalee
01-27-2009, 11:21 AM
I feel very fortunate to have found this board. This is what I needed.....I am grateful to those of you who have taken the time to respond to my post. It is good to know there are people out there who understand. My Mom is 77, much older than you but I still believe that she will continue to recover. I am hoping a year from now she will not be living in such a confused world and that perhaps she can be in a assisted living situation as opposed to a nursing home.

writeleft
01-27-2009, 04:28 PM
Janalee, and Sumptersam,

I spend a little time each day on the boards, and every once in a while I find a good connection, as with you two. I like to focus on the positive aspects of things, but I certainly never forget the tough road that got me this far.

Janalee, I hope for your mother's recovery to be positive, and speedy. I cannot tell you how comforting it was for me to have my husband's voice and his touch, during the worst times for me. No matter how confused I was, I knew he was there, just like your mother does.

Sumptersam, May I ask what led to your stroke?

Hugs to both of you, and of course your mother too...

janalee
01-28-2009, 11:47 AM
Janalee, and Sumptersam,

I spend a little time each day on the boards, and every once in a while I find a good connection, as with you two. I like to focus on the positive aspects of things, but I certainly never forget the tough road that got me this far.

Janalee, I hope for your mother's recovery to be positive, and speedy. I cannot tell you how comforting it was for me to have my husband's voice and his touch, during the worst times for me. No matter how confused I was, I knew he was there, just like your mother does.

Sumptersam, May I ask what led to your stroke?

Hugs to both of you, and of course your mother too...

Hi there,

My Mom had her stroke just before her 77th birthday. My Mom was very active and you certainly would never guess her age. She was in a relationship for 8 years prior to having her stroke. A month or so before her stroke her and her partner broke up. I am not to sure if the stress of that added to her situation or not. There was more to it but I guess I felt it was the stress of that particular situation that increased her chances of the stroke. I also think, at the time, I wanted someone to blame. She did have high blood pressure and cholesteral which always surprised me. My Mom was always so aware of everything she ate and led a very healthy lifestyle.

It is good to have connections with people that can understand or to help you understand what is happening. I know my Mom is comforted by my being there as much as I am. Sometimes it is so hard to leave her.....and I can see it in her eyes. That breaks my heart.......

I am lucky to have the partner I have in my life who does not begrudge the amount of time I spend away from home. He is so supportive and helpful. It is him as well that helps me make it through everyday.

I do have a question for you both. Did eithr of you have any councelling/or otherwise to deal with all the emotional/confusing stuff when you had your stroke?


Thanks again for your kindness

writeleft
01-28-2009, 12:25 PM
Hi Janalee,

I don't know if the stress of your mother's relationship had anything to do with her stroke, but it couldn't have helped! I can certainly feel the pain in your words, and it is just heatbreaking.

As far as emotional counseling...I had quite a bit of therapy and rehabilitation following my strokes, speech, physical, etc., but I don't remember much counseling. I did end up with depression and anxiety issues, that I needed medication for, but I did not go to a therapist...my doctor prescribed the meds for me, and assured me that it was a normal situation following stroke. I had so many doctor appointments for so long, that I couldn't throw in a therapist too. It probably would have served me well, but I already felt like a huge burden to my family, who would have had to drive me, and sit and wait, etc.

Now that some time has passed, I have found my own things that help me. Number one, is definately the support of family and friends. It just kills me to think of you having to leave your mother after your visits, that hurts! One thing I remember when I was hospitalized, were the visits. Seeing my family come in the door was such a relief, but I understood they had to leave, and I imagine I slept most of the time they were not there.

In my case, most of that first year has been forgotten, probably for the best.
The fact that your mother was so vibrant, and young at heart will certainly serve her well in her recovery.

I have no idea if my words offer you any kind of support, but I hope they do. I'll be watching for your next post...

sumptersam
01-28-2009, 12:58 PM
Hi there,

My Mom had her stroke just before her 77th birthday. My Mom was very active and you certainly would never guess her age. She was in a relationship for 8 years prior to having her stroke. A month or so before her stroke her and her partner broke up. I am not to sure if the stress of that added to her situation or not. There was more to it but I guess I felt it was the stress of that particular situation that increased her chances of the stroke. I also think, at the time, I wanted someone to blame. She did have high blood pressure and cholesteral which always surprised me. My Mom was always so aware of everything she ate and led a very healthy lifestyle.

It is good to have connections with people that can understand or to help you understand what is happening. I know my Mom is comforted by my being there as much as I am. Sometimes it is so hard to leave her.....and I can see it in her eyes. That breaks my heart.......

I am lucky to have the partner I have in my life who does not begrudge the amount of time I spend away from home. He is so supportive and helpful. It is him as well that helps me make it through everyday.

I do have a question for you both. Did eithr of you have any councelling/or otherwise to deal with all the emotional/confusing stuff when you had your stroke?


Thanks again for your kindness

Thanks for sharing your mother's story.....no, the stress wasn't good I'm sure and that is one my lessons is to reduce stress in my life...thanks again for sharing and I like making good connections too! ;)

writeleft
01-28-2009, 04:55 PM
Hello again friends...

Sumptersam, I am interested to hear your story, if you don't mind. Everyone's situation is so differant. People have always told me I was way too young to have strokes, but apparantly not. By the way, sumptersam is a cool name!

janalee
01-29-2009, 12:00 PM
Hi there,

Your words so offer support to me. I am very close to my Mom so I guess that is why it is so hard. I do have to say that it is getting easier as each day passess. I went everyday for the for the first 5 months but now I can take days off and feel "okay" about it. My Mom has an anxiety disorder and has managed it her whole life. Since the stroke it has increased dramatically. I am looking into having someone work with her and just wondered if anyone had that experience. I do believe it would help her alot.






I don't know if the stress of your mother's relationship had anything to do with her stroke, but it couldn't have helped! I can certainly feel the pain in your words, and it is just heatbreaking.

As far as emotional counseling...I had quite a bit of therapy and rehabilitation following my strokes, speech, physical, etc., but I don't remember much counseling. I did end up with depression and anxiety issues, that I needed medication for, but I did not go to a therapist...my doctor prescribed the meds for me, and assured me that it was a normal situation following stroke. I had so many doctor appointments for so long, that I couldn't throw in a therapist too. It probably would have served me well, but I already felt like a huge burden to my family, who would have had to drive me, and sit and wait, etc.

Now that some time has passed, I have found my own things that help me. Number one, is definately the support of family and friends. It just kills me to think of you having to leave your mother after your visits, that hurts! One thing I remember when I was hospitalized, were the visits. Seeing my family come in the door was such a relief, but I understood they had to leave, and I imagine I slept most of the time they were not there.

In my case, most of that first year has been forgotten, probably for the best.
The fact that your mother was so vibrant, and young at heart will certainly serve her well in her recovery.

I have no idea if my words offer you any kind of support, but I hope they do. I'll be watching for your next post...[/QUOTE]

sumptersam
01-29-2009, 04:19 PM
Hi there,

Your words so offer support to me. I am very close to my Mom so I guess that is why it is so hard. I do have to say that it is getting easier as each day passess. I went everyday for the for the first 5 months but now I can take days off and feel "okay" about it. My Mom has an anxiety disorder and has managed it her whole life. Since the stroke it has increased dramatically. I am looking into having someone work with her and just wondered if anyone had that experience. I do believe it would help her alot.






I don't know if the stress of your mother's relationship had anything to do with her stroke, but it couldn't have helped! I can certainly feel the pain in your words, and it is just heatbreaking.

As far as emotional counseling...I had quite a bit of therapy and rehabilitation following my strokes, speech, physical, etc., but I don't remember much counseling. I did end up with depression and anxiety issues, that I needed medication for, but I did not go to a therapist...my doctor prescribed the meds for me, and assured me that it was a normal situation following stroke. I had so many doctor appointments for so long, that I couldn't throw in a therapist too. It probably would have served me well, but I already felt like a huge burden to my family, who would have had to drive me, and sit and wait, etc.

Now that some time has passed, I have found my own things that help me. Number one, is definately the support of family and friends. It just kills me to think of you having to leave your mother after your visits, that hurts! One thing I remember when I was hospitalized, were the visits. Seeing my family come in the door was such a relief, but I understood they had to leave, and I imagine I slept most of the time they were not there.

In my case, most of that first year has been forgotten, probably for the best.
The fact that your mother was so vibrant, and young at heart will certainly serve her well in her recovery.

I have no idea if my words offer you any kind of support, but I hope they do. I'll be watching for your next post...[/QUOTE]

Thank you...in fact, we have decided that I will seek out some counseling at the VA. My doctor was quick to throw pills at me that I don't want....(adding meds to my seizure meds is not inviting) but, we have realized that I have issures to deal that have been making it difficult for my wife. I am not the same person I was and I have been having a hard time with that and being "babysat" so much....not used to that. I need my independance no matter what. I know what you mean about the family thing....while I was in the hospital, I looked forward to when my wife would be there every morning, and while it was hard to see her go, I was usually tired enough from thereapy and the day that I was already falling asleep anyway. I was always looking forward to seeing my mother and brother and his family.....it was good for me. And my wife sat in on a lot of my thereapy sessions...I think that helped to because she learned what they were showing me and now she uses it here at home.....

I don't think we should forget our experiences, even while we don't want to dwell on them either.....just keep in mind that we can be better now than we were before.....:wave:

writeleft
01-30-2009, 12:10 AM
Wow, Seeing the word "anxiety" rings a bell for me now. Honestly, I do have continuing anxiety, that hasn't left me yet. I have been trying to forget, so it will not be true...I steer clear of the anxiety boards because "they don't apply to me", and I just wont go there in my head. I was prescribed three medications for anxiety for a long time, but have chosen to cut them back. Yikes!

Better think about this one for awhile...:confused:

It turns out we have more in common than I thought. Thanks for the insight.

janalee
01-30-2009, 12:23 PM
Thank you...in fact, we have decided that I will seek out some counseling at the VA. My doctor was quick to throw pills at me that I don't want....(adding meds to my seizure meds is not inviting) but, we have realized that I have issures to deal that have been making it difficult for my wife. I am not the same person I was and I have been having a hard time with that and being "babysat" so much....not used to that. I need my independance no matter what. I know what you mean about the family thing....while I was in the hospital, I looked forward to when my wife would be there every morning, and while it was hard to see her go, I was usually tired enough from thereapy and the day that I was already falling asleep anyway. I was always looking forward to seeing my mother and brother and his family.....it was good for me. And my wife sat in on a lot of my thereapy sessions...I think that helped to because she learned what they were showing me and now she uses it here at home.....

I don't think we should forget our experiences, even while we don't want to dwell on them either.....just keep in mind that we can be better now than we were before.....:wave:[/QUOTE]

janalee
01-30-2009, 12:26 PM
I do hope you are able to work through the issues. You do need your independence.....as much as possible. I will thing positive thoughts for you.....

janalee
01-30-2009, 12:31 PM
I never realized how much anxiety I had until my Mom's stroke. Aside from being very close to my Mom....I am very much like my Mother. Which to some degree scares me a bit. She is an amazing women, very caring, sweet, loving and for 4'11 and 100lbs, very strong. I hope I am all those wonderful qualities but the anxiety part I recognize as something I need to get under control. I do not want it to rule my life.
I am still, gently, trying to convince my Mom that perhaps she should talk with someone in regards to her anxiety. I think the docs are way to quick to prescribe drugs these days and there are plenty of alternatives out there to help to deal with the issues.

writeleft
01-30-2009, 01:35 PM
Yes, this a time of high anxiety for both of you. I makes a lot of sense that you both address this together, and that may be what helps your mother accept some guidance.

I must say, my strokes were major learning tools for the rest of my life. I forgot a LOT, but I learned more. I'm learning more right now!

Have a peaceful day...

sumptersam
01-30-2009, 02:41 PM
I never realized how much anxiety I had until my Mom's stroke. Aside from being very close to my Mom....I am very much like my Mother. Which to some degree scares me a bit. She is an amazing women, very caring, sweet, loving and for 4'11 and 100lbs, very strong. I hope I am all those wonderful qualities but the anxiety part I recognize as something I need to get under control. I do not want it to rule my life.
I am still, gently, trying to convince my Mom that perhaps she should talk with someone in regards to her anxiety. I think the docs are way to quick to prescribe drugs these days and there are plenty of alternatives out there to help to deal with the issues.

I was reminded while in the hospital of how we often are afraid of what we don't know, or don't understand.....then I realized that if I just take one day at a time and learn just to give up the rest, it would reduce the anxiety.....I decided that I will not let fear get in the way of living the rest of my life-however longer that may be.....

Have a great day! :wave:

writeleft
01-30-2009, 03:14 PM
Yes, when we have trying times, the big picture is just overwhelming. Breaking it down into small manageable bits does really help.

sumptersam
01-31-2009, 04:17 PM
Yes, when we have trying times, the big picture is just overwhelming. Breaking it down into small manageable bits does really help.

It seems to work too! :wave:

wilnan287
01-31-2009, 06:10 PM
Hi Janalee

I had a stroke 10-13-06 and I still poop out too easily. Always needing to lay down. I'm hoping stamina returns soon.

writeleft
01-31-2009, 06:56 PM
El Sobrante! I spent the most wonderful times of my childhood in El Sobrante.

I think the fatigue following stroke is something we are just starting to recognize here. I myself, haven't had the brain function (until now) to address anything, except a weird low powered effort to get through the day.

I can build up enough energy for a pre-planned event, but will look for ways to rest in between at all costs. My family and long time friends have always been off-roaders, in the desert east of San Diego. I (and my family, by proxy) missed 4 years of trips, but a year ago I started riding again. Not very fast, very far, but a little. It's certainly not how I used to do it, but I am there with my true family, and true friends.

Oh yeah, it takes a few days to get over it too, but that's ok. I got to go.

writeleft
02-01-2009, 06:31 PM
Janalee,

How are you and your mother today?

janalee
02-02-2009, 11:46 AM
Good Morning,

Well I have started to take a day off here and there from seeing my Mom. for the first 5 months I was there everyday. I still have a hard time with not seeing her. I guess I don't really trust anyone completely.
We had her placed in a nursing home about a month ago. I noticed fairly quickly that it really wasn't the type of place we believed it was going to be. I know my Mom is not happy there. My Mom is a young 77 and she is considerably younger than most who are there. She does not have alot in common with anyone of the folks there, her life was very different.
My Mom was widowed when she was 37 (1968). Because she was so young a year or so later she started to go out with some ladies she knew who were also single. Growing up in the late 60's and into the 70's our household was very different because we were not a "traditional" family. I have amazing memories of that time.....so much fun. My poor Mom had her hands full with 3 teenagers all at once.....good lord.
Anyhow I guess I am rambling but in terms of the whole exhaustion thing. Even if she is having a good day and is not to tired there is nothing for her to do at this home and no one to really talk with. In the evenings there are only 2 aids and 1 nurse working so they don't have any time to spend with the folks residing there. At this point we are considering looking into other facilities for her.
I am wondering if any of you carried on with therapies after you returned home. My Mom's challenges are on the left side of her body. She can walk with a walker and has use of her left arm and hand but they are very weak. There are not therapies in this home (physio or occupational therapy). I feel she still needs some activity to build up her left side.

sumptersam
02-02-2009, 12:30 PM
Good Morning,

Well I have started to take a day off here and there from seeing my Mom. for the first 5 months I was there everyday. I still have a hard time with not seeing her. I guess I don't really trust anyone completely.
We had her placed in a nursing home about a month ago. I noticed fairly quickly that it really wasn't the type of place we believed it was going to be. I know my Mom is not happy there. My Mom is a young 77 and she is considerably younger than most who are there. She does not have alot in common with anyone of the folks there, her life was very different.
My Mom was widowed when she was 37 (1968). Because she was so young a year or so later she started to go out with some ladies she knew who were also single. Growing up in the late 60's and into the 70's our household was very different because we were not a "traditional" family. I have amazing memories of that time.....so much fun. My poor Mom had her hands full with 3 teenagers all at once.....good lord.
Anyhow I guess I am rambling but in terms of the whole exhaustion thing. Even if she is having a good day and is not to tired there is nothing for her to do at this home and no one to really talk with. In the evenings there are only 2 aids and 1 nurse working so they don't have any time to spend with the folks residing there. At this point we are considering looking into other facilities for her.
I am wondering if any of you carried on with therapies after you returned home. My Mom's challenges are on the left side of her body. She can walk with a walker and has use of her left arm and hand but they are very weak. There are not therapies in this home (physio or occupational therapy). I feel she still needs some activity to build up her left side.

I feel for you.....my wife sat in on my thereapies at the VA and we continued on with them when I got home....but I a lucky one, i'm getting most everything back.....call your insurance and see what they will pay for, then shop around....lots of folks that specialize in coming to the home to do therapy!

Don't worry, none of this was your fault! Don't stress out about it....just do the best you can and move on.....thats a good excuse to get your mom involved-just ask her what she wants....nonone in their right mind would like a nursing home....but thats not your fault! :wave:

janalee
02-03-2009, 11:27 AM
I feel for you.....my wife sat in on my thereapies at the VA and we continued on with them when I got home....but I a lucky one, i'm getting most everything back.....call your insurance and see what they will pay for, then shop around....lots of folks that specialize in coming to the home to do therapy!

Don't worry, none of this was your fault! Don't stress out about it....just do the best you can and move on.....thats a good excuse to get your mom involved-just ask her what she wants....nonone in their right mind would like a nursing home....but thats not your fault! :wave:

Thanks for that.....I guess I know it isn't my fault. I can't help but feel frantic about making sure everything is "okay" for her. What I find to be so heartbreaking is the confusion she is living in. I just would like to make it all go away.
I have some contacts from the hospital she was in and I am looking into getting some help for her.
Thanks again for you kindness and support it does help a great deal....

writeleft
02-03-2009, 08:38 PM
Janalee,

Of course you feel frantic, and in a whirlwind! Stroke comes down hard and fast. To be faced with all the new terminology, the questions, the decisions, the 24 hour care of your mother...It's got to be horrifying for you, and because of you, I realize how much my family went through too. Bless your heart! Your mother can feel this from you, even if the words, or actions don't come through yet.

janalee
02-04-2009, 11:19 AM
Janalee,

Of course you feel frantic, and in a whirlwind! Stroke comes down hard and fast. To be faced with all the new terminology, the questions, the decisions, the 24 hour care of your mother...It's got to be horrifying for you, and because of you, I realize how much my family went through too. Bless your heart! Your mother can feel this from you, even if the words, or actions don't come through yet.

I know she is appreciates everthing...she does tell me. It sounds like you have a pretty amazing family as well. As hard as it is I think it also brings the family together as well.....even through all the turmoil.

writeleft
02-04-2009, 05:36 PM
Janalee,

I think the old saying "what doesn't kill us, makes us stronger" is true. When faced with really hard times, we learn what we are really made of. I hope everyday is a little better than the one before...for both you, and your dear mother.

janalee
02-05-2009, 11:39 AM
Once again...thanks so much for all of the support. It really does make a difference to be able to connect with people and to hear stories from others. You are inspirational....

writeleft
02-05-2009, 07:42 PM
Janalee,

You too, being on the caregiving end of a stroke survivor. I emphasize the word survivor, because to survive is huge. It's the support of others, that gives the survivor the most opportunity to overcome a strokes injury to the brain.

I truly believe that my husband was the singlemost important element of my recovery. He was there in true spirit, and having such a partner has made for a much richer realtionship...which you obviously are experiencing with your mother, and she, you.

I am so glad to have this chance to articulate these feelings with you - it helps me very much!

sumptersam
02-06-2009, 12:37 PM
Janalee,

You too, being on the caregiving end of a stroke survivor. I emphasize the word survivor, because to survive is huge. It's the support of others, that gives the survivor the most opportunity to overcome a strokes injury to the brain.

I truly believe that my husband was the singlemost important element of my recovery. He was there in true spirit, and having such a partner has made for a much richer realtionship...which you obviously are experiencing with your mother, and she, you.

I am so glad to have this chance to articulate these feelings with you - it helps me very much!

My wife made things so much easier for me and has been there fore me like noone else would have....caregivers don't get enough credit most of the time...:wave:

writeleft
02-06-2009, 04:20 PM
Sumptersam is right! With so much focus on the patient, it's the caregivers that are the unsung heroes. Having a spouse/child take on that huge job, creates an unbreakable bond of love and trust for both.

Now that I am much stronger, my big strong hubby is facing degenerative bone disease, and has gone to a cane to walk. Guess who is at his side ? You bet, me.

Janalee, you are teaching me a lot about myself right here. Thank you. I hope you all have a wonderful day...

:cool:

janalee
02-08-2009, 01:09 AM
Sumptersam is right! With so much focus on the patient, it's the caregivers that are the unsung heroes. Having a spouse/child take on that huge job, creates an unbreakable bond of love and trust for both.

Now that I am much stronger, my big strong hubby is facing degenerative bone disease, and has gone to a cane to walk. Guess who is at his side ? You bet, me.

Janalee, you are teaching me a lot about myself right here. Thank you. I hope you all have a wonderful day...

:cool:
Wow.....You are an amazing, and sumpersam your pretty special as well. I feel very blessed to have found this site and to have had the good fortune to have made contact with the both of you. Honestly you give me hope because there have been days that I just didn't have much.

I have a pretty special relationship with my Mom and would never trade these days for anything.....guess that sounds kinda strange. It has been so tough but at the same time I can't tell you how much I am grateful to still have my Mom here. It could have been a very different story. Please keep me posted on how the both of you are doing.....I look forward to seeing my posts......Hope your weekend has been wonderful....

:angel:

janalee
02-08-2009, 01:10 AM
Sumptersam is right! With so much focus on the patient, it's the caregivers that are the unsung heroes. Having a spouse/child take on that huge job, creates an unbreakable bond of love and trust for both.

Now that I am much stronger, my big strong hubby is facing degenerative bone disease, and has gone to a cane to walk. Guess who is at his side ? You bet, me.

Janalee, you are teaching me a lot about myself right here. Thank you. I hope you all have a wonderful day...

:cool:
Wow.....You are amazing, and sumpersam your pretty special as well. I feel very blessed to have found this site and to have had the good fortune to have made contact with the both of you. Honestly you give me hope because there have been days that I just didn't have much.

I have a pretty special relationship with my Mom and would never trade these days for anything.....guess that sounds kinda strange. It has been so tough but at the same time I can't tell you how much I am grateful to still have my Mom here. It could have been a very different story. Please keep me posted on how the both of you are doing.....I look forward to seeing my posts......Hope your weekend has been wonderful....

:angel:

sumptersam
02-08-2009, 01:56 PM
Wow.....You are an amazing, and sumpersam your pretty special as well. I feel very blessed to have found this site and to have had the good fortune to have made contact with the both of you. Honestly you give me hope because there have been days that I just didn't have much.

I have a pretty special relationship with my Mom and would never trade these days for anything.....guess that sounds kinda strange. It has been so tough but at the same time I can't tell you how much I am grateful to still have my Mom here. It could have been a very different story. Please keep me posted on how the both of you are doing.....I look forward to seeing my posts......Hope your weekend has been wonderful....

:angel:
I'm glad you have a special relationship with your Mother-thats important! This service to your mother is great and I'm sure she appreciates it too! They take such good care of us, then....it's our turn you know? May be old fashioned, but there it is.....thats why I am thankful for what happened to me as it is allowing people to see me differently and is allowing me to be better than I was before....especially to my mother! :wave:

writeleft
02-08-2009, 04:06 PM
This has turned into a truely inspirational thread, and I am learning so much with every post...about each of you, and myself and my family. I appreciate it very much, and look forward to it everyday.

Thank you both...

writeleft
02-08-2009, 06:19 PM
I simply could not write (and certainly not type) at all, for four years.

If you were to hear me speak in person today, you would think I was speaking jibberish. My friends and family all undertand everything I say, and it can be hilarious! I switch parts of consecutive words, like "Hello puppy", becomes "Heppo luppy"...stuff like that, but throughout most sentences I speak.

I bet you didn't know that...because I am just realizing it myself!!

I can write again, even though my speech is wacked. That just dawned on me. I am learning so much about myself from digging these things up, and tryng to express them to you, as positive re-enforcement for you to share with your mother... in your own sweet way.

Isn't that neat, this is all new to me, too. I need this outlet to practice my words, my typing, organizing my thoughts, and it takes me over an hour to type my posts.

I use to be a talented artist, and public speaker. I found this forum about 6 months ago, and look how far I have come! I can't speak (yet), I can't really drive (yet), I can't see well enough to work...but I can TYPE!!! This is certainly well beyond any personal revelations I have shared here before.

Janalee, you really started something here...no, your dear mother started this. Imagine that! It is your mother herself, that is behind this great lesson for all of us. She is the teacher. We are the students. You are the catalyst.

This has been such a nice Sunday afternoon...I hope the same for you.

janalee
02-09-2009, 11:49 AM
I simply could not write (and certainly not type) at all, for four years.

If you were to hear me speak in person today, you would think I was speaking jibberish. My friends and family all undertand everything I say, and it can be hilarious! I switch parts of consecutive words, like "Hello puppy", becomes "Heppo luppy"...stuff like that, but throughout most sentences I speak.

I bet you didn't know that...because I am just realizing it myself!!

I can write again, even though my speech is wacked. That just dawned on me. I am learning so much about myself from digging these things up, and tryng to express them to you, as positive re-enforcement for you to share with your mother... in your own sweet way.

Isn't that neat, this is all new to me, too. I need this outlet to practice my words, my typing, organizing my thoughts, and it takes me over an hour to type my posts.

I use to be a talented artist, and public speaker. I found this forum about 6 months ago, and look how far I have come! I can't speak (yet), I can't really drive (yet), I can't see well enough to work...but I can TYPE!!! This is certainly well beyond any personal revelations I have shared here before.

Janalee, you really started something here...no, your dear mother started this. Imagine that! It is your mother herself, that is behind this great lesson for all of us. She is the teacher. We are the students. You are the catalyst.

This has been such a nice Sunday afternoon...I hope the same for you.


I am truly honored by your words.....this has really become an important part of my day. You and sumpertersam sharing your stories and thoughts with me is very special.
I guess my Mom really did start something here.......this is how I feel about my Mom so if you can bear with my writing, which is not the best. My Mom was widowed when she was 37yrs old. It was 1968 and we were by no means a family that was well off. My Dad was an apprentice and also a volunteer fireman. He lost his life building a ballpark with the other volunteer fireman. He had no life insurance and we did not recieve much in terms of a settlement at the time. So my Mom was left with 3 children 10, 8 and 6 years old.
Sorry for being so long winded.....;)anyhow my Mom had a heck of a time with all of us and she did not work. She managed to keep a roof over our heads, the tradition of a Sunday dinner going for many years after and she raised 3 kids, who I might add, aren't so bad.
I love my Mom with all my heart and would do anything for her. She has been through so much and always been so supportive.
I wish I could wave a magic wand and make it all go away but I can't. I can only keep pushing and fighting for my Mom. She taught us to be strong and to stand tall and not let the pressures of life knock us down. This is truly the hardest thing I have ever been through in my life. But as the old saying goes..."what doesn't kill us, makes us stronger". I do believe that.....
You have an amazing attitude and strength....very much like my Mom. I look forward to reading your next post. I hope you are having a great day.

writeleft
02-09-2009, 03:22 PM
Janalee,

Wow, what a story about your parents, and the strength you have witnessed. I must admit, I have yet to be in your shoes.

Both of my parents are still living, and very much in my daily life. My father is almost 84, mom 80. They are just beginning to show signs of wear. My turn is coming, and I just hope I have what it takes to care for them when they need it. They are very military, and very hard to be very cuddly with. I wonder if that will ever break, so I can get close enough to them. They have not released one bit of control, or allowed me to do a thing for them..even though I certainly want to (they live right down the street). I write to them too, because I can't always get the words out, and they don't understand me.

I have always yearned for a close relationship with my mother, so I admire you and your mother's bond. I certainly respect you for your care and concern, and I promise you...

I get so much out of our "chats" everyday, and they make me very happy. Thanks again for the time you spend here, Love to all...

janalee
02-10-2009, 11:29 AM
Janalee,

Wow, what a story about your parents, and the strength you have witnessed. I must admit, I have yet to be in your shoes.

Both of my parents are still living, and very much in my daily life. My father is almost 84, mom 80. They are just beginning to show signs of wear. My turn is coming, and I just hope I have what it takes to care for them when they need it. They are very military, and very hard to be very cuddly with. I wonder if that will ever break, so I can get close enough to them. They have not released one bit of control, or allowed me to do a thing for them..even though I certainly want to (they live right down the street). I write to them too, because I can't always get the words out, and they don't understand me.

I have always yearned for a close relationship with my mother, so I admire you and your mother's bond. I certainly respect you for your care and concern, and I promise you...

I get so much out of our "chats" everyday, and they make me very happy. Thanks again for the time you spend here, Love to all...

I have to say I get alot of our chats as well. Sometimes, believe it or not, it is hard to talk about all of this stuff. Most times I just want to vent and the people around me think they need to either give me a lecture or add their own spin on things. There are times I really just want to be able to talk to someone with an open ear.....that's it.
I have found that this experience has brought out alot of uglyness with my brother and sister. My sister sounds like she is like your Mom and Dad. Very stern and she is all business. My brother is a bit of both......he can be like a huricane and really knock you down.....when you are already down.
I try my best to stay out of their way and not to call them.....unless absolutely necessary and even then it is a problem.
Of course that is my side of the story and I am sure they have their own. I hope that one day you can have the closeness that you wish for with your parents.
I wish you a beautiful day.......

sumptersam
02-10-2009, 11:44 AM
I have to say I get alot of our chats as well. Sometimes, believe it or not, it is hard to talk about all of this stuff. Most times I just want to vent and the people around me think they need to either give me a lecture or add their own spin on things. There are times I really just want to be able to talk to someone with an open ear.....that's it.
I have found that this experience has brought out alot of uglyness with my brother and sister. My sister sounds like she is like your Mom and Dad. Very stern and she is all business. My brother is a bit of both......he can be like a huricane and really knock you down.....when you are already down.
I try my best to stay out of their way and not to call them.....unless absolutely necessary and even then it is a problem.
Of course that is my side of the story and I am sure they have their own. I hope that one day you can have the closeness that you wish for with your parents.
I wish you a beautiful day.......

I hope you don't mind my comment here but....forgive your brother and sister, which I bet you have already done, because, my guess is that they are afraid! From my own experience I have learned that fear of change and uncertainty is mighty powerful.....my father has passed and my mother, well....we went several years without even talking so we are learning just to accept her and move on with our lives...I wish to give her respect and that is what I strive to do.....you see, my family is Mormon...and while in the military, I left the Mormom Church....did not go over big with the family but I had to follow my heart...they haven't forgiven me for that....I thought the stroke would change things but it really hasn't.....and thats okay.....at least I can accept them and not try to force their acceptance of me.....I leaned with my stroke that acceptance is important.....I try to treat my own daughter the way I would want my mother and family could treat me...

have a great day! :wave:

janalee
02-10-2009, 05:29 PM
I hope you don't mind my comment here but....forgive your brother and sister, which I bet you have already done, because, my guess is that they are afraid! From my own experience I have learned that fear of change and uncertainty is mighty powerful.....my father has passed and my mother, well....we went several years without even talking so we are learning just to accept her and move on with our lives...I wish to give her respect and that is what I strive to do.....you see, my family is Mormon...and while in the military, I left the Mormom Church....did not go over big with the family but I had to follow my heart...they haven't forgiven me for that....I thought the stroke would change things but it really hasn't.....and thats okay.....at least I can accept them and not try to force their acceptance of me.....I leaned with my stroke that acceptance is important.....I try to treat my own daughter the way I would want my mother and family could treat me...

have a great day! :wave:

Yes I believe you are right. There are days I am able to not take what my brother and sister say as "personal". I would agree that they are scared for sure. I am scared as well.....I am sorry that your family was not able to get past your choice in life. You have an amazing attitude though despite it all. I guess that is the lesson "You can't change other people you can only change yourself" For what ever reason it seems to be a hard thing to do.

writeleft
02-10-2009, 11:29 PM
Dearest Sumptersam,

You are a dear member of this conversation, from day one. Remember, I was writer before...I am simply practicing my thinking/typing (ha ha). Your words are so pure, they do not have to be many. Your words are rich. It is hard to reckon with the idea that service to our country was trumped by (in your case), religion. Im sorry. Jump in here, whenever you want.

Janalee,

Like we all agreed on before, what doesn't kill (anger, destroy, reject, bankrupt, etc.) you, (and that incudes the relatives) makes you stronger. :dizzy:

This seems like one of those paths we are meant to travel alone. That's when we meet up with others on the same stretch of the path we are on.

goodnight.

wilnan287
02-11-2009, 04:03 AM
yeah, El Sobrante is not too bad. We;ve lived here 23 yrs - from Ohio originally.

Thanks for sharing you fatigue with me. Maybe there is still hope!

Nannette

sumptersam
02-11-2009, 11:29 AM
Dearest Sumptersam,

You are a dear member of this conversation, from day one. Remember, I was writer before...I am simply practicing my thinking/typing (ha ha). Your words are so pure, they do not have to be many. Your words are rich. It is hard to reckon with the idea that service to our country was trumped by (in your case), religion. Im sorry. Jump in here, whenever you want.

Janalee,

Like we all agreed on before, what doesn't kill (anger, destroy, reject, bankrupt, etc.) you, (and that incudes the relatives) makes you stronger. :dizzy:

This seems like one of those paths we are meant to travel alone. That's when we meet up with others on the same stretch of the path we are on.

goodnight.

Thanks....I am going for my 6 month evaluation today.....will be 6 months next month

you're right, what doesn't kill us does make us stronger....i had root canal on monday, my 6 month eval today....i'm thinking "bring it on."

writeleft
02-11-2009, 05:32 PM
I hope your evaluation goes well, let us know what happened. Have a great "hump" day!

janalee
02-12-2009, 01:14 AM
Dearest Sumptersam,

Once again am grateful to have found this outlet. It is good to share.....I am sick these past couple of days and have not gone to see my Mom. But I have talked to her on the phone and she seems pretty good. I wish you both a goodnight.:angel:



You are a dear member of this conversation, from day one. Remember, I was writer before...I am simply practicing my thinking/typing (ha ha). Your words are so pure, they do not have to be many. Your words are rich. It is hard to reckon with the idea that service to our country was trumped by (in your case), religion. Im sorry. Jump in here, whenever you want.

Janalee,

Like we all agreed on before, what doesn't kill (anger, destroy, reject, bankrupt, etc.) you, (and that incudes the relatives) makes you stronger. :dizzy:

This seems like one of those paths we are meant to travel alone. That's when we meet up with others on the same stretch of the path we are on.

goodnight.

writeleft
02-12-2009, 01:33 AM
I am sorry to hear you are sick janlee. I hope you were able to rest, eat well, and feel better soon.

I spent the day caring for my son, who started a fever, vomiting, headache etc., yesterday afternoon. I hate to admit it, but I love him the most when he's sick! He lets me baby him, and take care of him...so sweet. Being almost 15, that is a treat for me.

I am expecting my eldest son (24) to come into town sometime late tonight. That is a whole other story.

One thing about life, it keeps marching right along...ready or not!

For Valentines day, I'm going to pack up the family, the dogs and our quads...head out to the desert and make a giant heart on the side of a sand hill, with my tire tracks. I'm going to take a picture, and turn it into a poster for my hubby.

I agree with Sumptersam, when he said "bring it on"!

janalee
02-13-2009, 11:37 AM
Wow that sounds like it will be an amazing Valentines Day for you and your family. My hubby bought me a gift certificate for a pair of earings. When we got engaged he took me to a Celtic shop to pick out my ring. We are both of Scottish heritage and it is important to both of us. So for my birthday in November he purchased a gift certificate. I am excited.....he is a pretty thoughtful guy. I am also hoping that I am able to spend some time with my Mom as well. I haven't seen in 4 days......seems like forever. I ususally see her everday.
Happy Valentine to you and you as well Sumpersam:wave::wave:
I hope your son is feeling better

I am sorry to hear you are sick janlee. I hope you were able to rest, eat well, and feel better soon.

I spent the day caring for my son, who started a fever, vomiting, headache etc., yesterday afternoon. I hate to admit it, but I love him the most when he's sick! He lets me baby him, and take care of him...so sweet. Being almost 15, that is a treat for me.

I am expecting my eldest son (24) to come into town sometime late tonight. That is a whole other story.

One thing about life, it keeps marching right along...ready or not!

For Valentines day, I'm going to pack up the family, the dogs and our quads...head out to the desert and make a giant heart on the side of a sand hill, with my tire tracks. I'm going to take a picture, and turn it into a poster for my hubby.

I agree with Sumptersam, when he said "bring it on"!

writeleft
02-13-2009, 12:37 PM
All plans are off...The flu hit the men in my family. Everybody is sick, except me, and the dogs. I'll be serving chicken noodle soup in heart shaped bowls, I imagine :yawn:

Enjoy yourself Janalee, and Sumptersam...love to you, and your families

writeleft
02-15-2009, 06:27 PM
Last night, at about 4:00 a.m. I woke up to a thrashing fit in the living room. It sounded like our dogs were flipping out about something. We have hardwood floors, so the thumping and scratching was very clear.

I jumped up and found our beautiful sweet pup, named Jack...obviously having a seizure! We all got up, and comforted Jack until he was over it, and eventually got back to bed.

In the morning my husband mentioned that my son told him that Jack had a seizure in Decemeber. When my son got up this morning, I asked him about the seizure he had witnessed Jack having in December...and his answer has been haunting me all day- He told me I was there when it happened before!

I am sick with the thought of completely forgetting such a medical issue with my dog, that happened less than 60 days ago!

I am second guessing my memory. I am wondering what other major things I have completely forgotten?

janalee
02-15-2009, 08:20 PM
All plans are off...The flu hit the men in my family. Everybody is sick, except me, and the dogs. I'll be serving chicken noodle soup in heart shaped bowls, I imagine :yawn:

Enjoy yourself Janalee, and Sumptersam...love to you, and your families

Hope the men in your family are feeling better ......it is a beautiful day here in Vancouver. ;)

janalee
02-15-2009, 08:23 PM
Last night, at about 4:00 a.m. I woke up to a thrashing fit in the living room. It sounded like our dogs were flipping out about something. We have hardwood floors, so the thumping and scratching was very clear.

I jumped up and found our beautiful sweet pup, named Jack...obviously having a seizure! We all got up, and comforted Jack until he was over it, and eventually got back to bed.

In the morning my husband mentioned that my son told him that Jack had a seizure in Decemeber. When my son got up this morning, I asked him about the seizure he had witnessed Jack having in December...and his answer has been haunting me all day- He told me I was there when it happened before!

I am sick with the thought of completely forgetting such a medical issue with my dog, that happened less than 60 days ago!

I am second guessing my memory. I am wondering what other major things I have completely forgotten?



Oh my goodness....I am so sorry about your dog.
I too have some issues with my memory these days as well. I have forgotten some pretty major stuff. Are you planning to visit your doc?

writeleft
02-15-2009, 09:53 PM
Thank you Janalee,

I will mention it on my next visit. if I remember! No, I keep a little note book in my medication bag, just for this type of thing.

Did you get to visit your mother this weekend? I am so happy for you and your engagement (the rings sound beautiful). Do you have a date set?

sumptersam
02-16-2009, 10:54 AM
All plans are off...The flu hit the men in my family. Everybody is sick, except me, and the dogs. I'll be serving chicken noodle soup in heart shaped bowls, I imagine :yawn:

Enjoy yourself Janalee, and Sumptersam...love to you, and your families
good news.....my 6 month eval went well....I'm off all restrictions and the brain surgeon even told me I could fly...I told him that was odd because I couldn't fly before..of course he was speaking about airplanes....he said he doesn't need to see me for a year now...just have to see my regular doctor at the VA! Now if I could just get over this cold!

I'm sorry to hear about the dog having a seizure! I've seen that before..they usually prescribe Dilantin and then they'll be fine..don't worry!

As for memory, I know the feeling....my short term memory is horrible! And when I got home from the hosptial, we went to a game night at the church and I was dumbfounded to discover I could not remember how to play cribbage...a game I have played since I was a kid! Then I was talking with my daughter at Christmas and was horrified when I couldn't remember her name....I covered it up so I don't think she knew.....but not remembering her name does not mean I love her any less! I am learning to cope with less short term memory and learning how to write everything down! It's just a new way of living is all....losing memory does not define who we are! :wave:

janalee
02-16-2009, 11:23 AM
good news.....my 6 month eval went well....I'm off all restrictions and the brain surgeon even told me I could fly...I told him that was odd because I couldn't fly before..of course he was speaking about airplanes....he said he doesn't need to see me for a year now...just have to see my regular doctor at the VA! Now if I could just get over this cold!

I'm sorry to hear about the dog having a seizure! I've seen that before..they usually prescribe Dilantin and then they'll be fine..don't worry!

As for memory, I know the feeling....my short term memory is horrible! And when I got home from the hosptial, we went to a game night at the church and I was dumbfounded to discover I could not remember how to play cribbage...a game I have played since I was a kid! Then I was talking with my daughter at Christmas and was horrified when I couldn't remember her name....I covered it up so I don't think she knew.....but not remembering her name does not mean I love her any less! I am learning to cope with less short term memory and learning how to write everything down! It's just a new way of living is all....losing memory does not define who we are! :wave:

Congrats on your eval.....good news. That for sure is something to celebrate.

janalee
02-16-2009, 11:28 AM
Thank you Janalee,

I will mention it on my next visit. if I remember! No, I keep a little note book in my medication bag, just for this type of thing.

Did you get to visit your mother this weekend? I am so happy for you and your engagement (the rings sound beautiful). Do you have a date set?

Good morning,
Well we don't have a date set....who knows when we will get it together;). I did see my Mom on the weekend....I took her a big boquet of flowers....It was good to see her. I really miss her when I don't see her and it was four days since my last visit. Since her stroke that is the longest period of time I have had away from her.
I do understand the memory thing. I have not seen my doctor but I guess in my case it could be menopause. I do get a little concerned from time to time with it. It seems that I have forgotten some pretty important stuff, especially in regards to work.
I am hoping the sun is going to sun it's pretty face today....I hope you have a great day!

writeleft
02-16-2009, 04:15 PM
Janalee,

I'm sure things will come together for the wedding when the time is just right. I know having your mother's care in your hands consumes your mind and your heart. It is wonderful that you have such a caring man behind you, and your time will come!

I bet your mother was thrilled to see you this last weekend, with the flowers and everything...I can just picture it! Bless both your hearts.

I haven't explored the whole menopause thing yet. If menopause makes me more forgetful than I already am, I'll have to leave a trail of crumbs everytime I leave the house!

Today is a rainy day in San Diego...quite unusual. Our systems aren't made for heavy rain, so we get flooded easily (the streets, not in the house). Do I remember correctly...you are in Vancouver, Canada? Shoot, I don't remember! Forgive me, janalee :dizzy:

janalee
02-17-2009, 11:24 AM
Hi there,
You did remember I am in Vancouver Canada.

I guess in terms of getting married, neither one of us is too concerned as to when that will happen. Maybe it's because we are older. It will happen for sure but as you said my Mom is first and foremost on the list of importance.
She was happy to see me this weekend and I to see her. I hope everyone in your house in on the mend. Have yourself a great day!!

sumptersam
02-17-2009, 02:02 PM
Janalee,

I'm sure things will come together for the wedding when the time is just right. I know having your mother's care in your hands consumes your mind and your heart. It is wonderful that you have such a caring man behind you, and your time will come!

I bet your mother was thrilled to see you this last weekend, with the flowers and everything...I can just picture it! Bless both your hearts.

I haven't explored the whole menopause thing yet. If menopause makes me more forgetful than I already am, I'll have to leave a trail of crumbs everytime I leave the house!

Today is a rainy day in San Diego...quite unusual. Our systems aren't made for heavy rain, so we get flooded easily (the streets, not in the house). Do I remember correctly...you are in Vancouver, Canada? Shoot, I don't remember! Forgive me, janalee :dizzy:

congrats on getting hitched! no rush, whats meant to be will last!

San Diego? I guess I just noticed that....we were living in Oceanside and I was at the La Jolla VA for a long time.....I used to roam all over San Diego! My wife loved TJ since she is from Germany.....we used to hang out at Seaport Village! I loved Cabrillo Point myself......:wave:

writeleft
02-17-2009, 05:20 PM
Sumptersam, It's a small world isn't it? I was born and raised in San Diego, and always loved this place. I couldn't pick my favorite places...it's the weather that ceases to amaze me after almost 50 years of it.

Didn't you just have an eval. last week? Any news?

Take care

sumptersam
02-18-2009, 12:41 PM
Sumptersam, It's a small world isn't it? I was born and raised in San Diego, and always loved this place. I couldn't pick my favorite places...it's the weather that ceases to amaze me after almost 50 years of it.

Didn't you just have an eval. last week? Any news?

Take care

yes it is a small world.....my favorite place was the La Jolla cliffs where I would have a coffee and listen the sea lions only a few feet from me....I always wanted to rent a kayak and go into the caves....we walked down into a cave and it was awesome! The weather was good too!

yes, had my 6 month eval last week....:wave:

janalee
02-20-2009, 11:31 AM
Sumptersam, It's a small world isn't it? I was born and raised in San Diego, and always loved this place. I couldn't pick my favorite places...it's the weather that ceases to amaze me after almost 50 years of it.

Didn't you just have an eval. last week? Any news?

Take care

Just wanted to pop by and wish you a great weekend. Yesterday my sister and I visited another facility. We are considering having our Mom moved from where she is. There are some issues there that have left us feeling like we perhaps made a mistake with her placement. Anyhow, have a great weekend with your family.


cheers
Janalee

writeleft
02-20-2009, 07:50 PM
Janalee,

Great to hear that you and your sister have possibly found another facility for your mother. I know your original choice of placement was made under great duress, as your mother's stoke came as such a shock. I think that it would be quite normal to have a much better idea about the proper placement, after the original one has a little time to show it's true colors. How could anyone know all the proper questions to ask, when never being confronted with such a decision before. How would anyone know, before it happens to them?

When a friend's father suffered a stroke, it took 3 differant placements until they found the best one for him. As time passes, his needs changed, and the family gained much more insight as to what facility offered the best combination of services to best help him recover. You are doing the right thing by continuing to search for the best fit for your mother.

Bless your heart!

janalee
02-23-2009, 11:30 AM
Janalee,

Great to hear that you and your sister have possibly found another facility for your mother. I know your original choice of placement was made under great duress, as your mother's stoke came as such a shock. I think that it would be quite normal to have a much better idea about the proper placement, after the original one has a little time to show it's true colors. How could anyone know all the proper questions to ask, when never being confronted with such a decision before. How would anyone know, before it happens to them?

When a friend's father suffered a stroke, it took 3 differant placements until they found the best one for him. As time passes, his needs changed, and the family gained much more insight as to what facility offered the best combination of services to best help him recover. You are doing the right thing by continuing to search for the best fit for your mother.

Bless your heart!


Good morning,

It is Monday morning here.....well I did go and look at a place on the weekend for my Mom. It is not so easy to find a place for a variety of reasons. But we will continue to do our best to make sure she is getting the best of care. I am wondering....when you had your stroke did you have an Occupational therapist working with you? And if you did, was it beneficial?.
I hope you don't mind me asking.

Hope you have a great day!

writeleft
02-24-2009, 01:39 AM
Hi Janalee,

I personally did not have an occupational therapist, so I have no experience to share with you on that..sorry.

You might want to start a thread on the "caregivers" board looking for people who have been in your shoes. I'll bet you could get a lot of experienced folks ideas.

I only had a minute to check in, so I'll catch up later. Take care

writeleft
02-24-2009, 10:37 PM
I just found out I have pnuemonia, after having that horrible flu for the last 10 days, so I am going to be laying low for a few days...I just don't have enough energy to think :confused:

I wish you well.

sumptersam
02-25-2009, 11:19 AM
I just found out I have pnuemonia, after having that horrible flu for the last 10 days, so I am going to be laying low for a few days...I just don't have enough energy to think :confused:

I wish you well.

I am sorry to hear you are sick....we will keep you in our prayers for a speedy recovery!:angel:

writeleft
02-25-2009, 06:14 PM
Thank you so much Sam...That really means a lot to me. I'll be checking in, my friends here mean so much to me, and I don't have to worry about spreading this sickness like I do in real life. I have put myself under quarantine, which is very lonely. I am typically a very social person, with lots of friends to "play" with everyday...Even my dogs are looking at me, and wondering what the heck is going on. What about the beach? What about the park?

Thanks again for your kind words...

janalee
02-25-2009, 11:51 PM
I am sorry to hear you are sick....we will keep you in our prayers for a speedy recovery!:angel:


OOOOhhhh sorry to hear you are not feeling well. If I could send you some chicken soup over the computer I would do so. Please take good care of yourself and I will think positive thoughts towards a speedy recovery for you.

Take the best care:)

writeleft
02-26-2009, 01:09 AM
Thank you sweetheart...Ummm, that soup is good for the soul!

sumptersam
02-26-2009, 11:04 AM
OOOOhhhh sorry to hear you are not feeling well. If I could send you some chicken soup over the computer I would do so. Please take good care of yourself and I will think positive thoughts towards a speedy recovery for you.

Take the best care:)

oh! I want some chicken soup! :wave:

janalee
02-27-2009, 12:18 PM
oh! I want some chicken soup! :wave:

okay.......I will use my telepathic skills and send you a lovely bowl of chicken soup too........careful it's hot!!:angel:

sumptersam
02-28-2009, 01:09 PM
okay.......I will use my telepathic skills and send you a lovely bowl of chicken soup too........careful it's hot!!:angel:

Okay, wow, it tastes real good! Thanks!:wave:

writeleft
02-28-2009, 05:19 PM
I'm sorry to report that I am still terribly sick. I've been in the hospital because there was a fear of blood clots in my legs, and the pneumonia is still very strong. I will be back, just sitting up wears me out. Thank you my friends... I miss all my sweet friends on the boards:angel:

sumptersam
03-01-2009, 11:39 AM
I'm sorry to report that I am still terribly sick. I've been in the hospital because there was a fear of blood clots in my legs, and the pneumonia is still very strong. I will be back, just sitting up wears me out. Thank you my friends... I miss all my sweet friends on the boards:angel:

sorry to hear about that....will keep you in our prayers!

writeleft
03-02-2009, 05:29 PM
Thank you...Sumptersam,

Thank goodness I have some very fine doctors who are treating me. I've survived much worse than this, so I'm going to fight my way through this thing too!:wave:

sumptersam
03-03-2009, 10:33 AM
Thank you...Sumptersam,

Thank goodness I have some very fine doctors who are treating me. I've survived much worse than this, so I'm going to fight my way through this thing too!:wave:

I have dr appt at VA tomorrow and I know it will be good, just as I know you will survive this as you have survived worse remember what Jesus told his disciples: "this too shall pass"

Don't worry! But when worry creeps in read Matthew 6:19-34 serious! I'm not a bible thumper, but this has helped me since the stroke! :angel:

janalee
03-03-2009, 03:59 PM
I'm sorry to report that I am still terribly sick. I've been in the hospital because there was a fear of blood clots in my legs, and the pneumonia is still very strong. I will be back, just sitting up wears me out. Thank you my friends... I miss all my sweet friends on the boards:angel:

I hope you get some relief very soon....please take the best care:wave:

writeleft
03-04-2009, 08:03 PM
Thank you friends... I was back in the ER yesterday, after experiencing horrible drug interactions from the antibiotics and the albuterol inhaler. My pulse rate went up to 130 bpm, and my BP was erratic. I had violent tremors that required 30 mg of Valium to calm them. I was scared to death!

But, today is a new day...I am feeling much better, just quite sore from all that shaking, and woozy from the Valium, which I have to continue for 4 days @ 10mg every 4 hours. In fact last night I got up to go to the bathroom and keeled right over. Thank goodness I fell into the laundry basket (which was full, as I am so behind in my housekeeping), and I wasn't injured. At least my sense of humor is still intact!

Thanks again for your support, it means so much to me...

janalee
03-05-2009, 04:38 PM
Thank you friends... I was back in the ER yesterday, after experiencing horrible drug interactions from the antibiotics and the albuterol inhaler. My pulse rate went up to 130 bpm, and my BP was erratic. I had violent tremors that required 30 mg of Valium to calm them. I was scared to death!

But, today is a new day...I am feeling much better, just quite sore from all that shaking, and woozy from the Valium, which I have to continue for 4 days @ 10mg every 4 hours. In fact last night I got up to go to the bathroom and keeled right over. Thank goodness I fell into the laundry basket (which was full, as I am so behind in my housekeeping), and I wasn't injured. At least my sense of humor is still intact!

Thanks again for your support, it means so much to me...


My thoughts continue to be with you.

writeleft
03-07-2009, 03:46 AM
OK, enough about me...I am feeling much better today. Sorry for the distraction :confused:

Janalee, tell us about your mother... any news? I imagine you will be visiting her this weekend. Have you had any luck with getting her some occupational therapy? I spent the day with my mother today, and I thought of you...it must be just devastating to go through all this with your mom. I must say, it reminded me of how fragile each moment is, and how important it is to cherish every minute. I make sure to hug and kiss both my parents every time I see them, and always end every phone call with "I love you".

They are going to be celebrating their 62nd anniversary on the 16th. I am in a quandary over what to do for them, and the gift! They have everything, literally. Maybe I'll start a thread about it, and get some ideas...

Have a wonderful weekend!

janalee
03-08-2009, 11:45 AM
OK, enough about me...I am feeling much better today. Sorry for the distraction :confused:

Janalee, tell us about your mother... any news? I imagine you will be visiting her this weekend. Have you had any luck with getting her some occupational therapy? I spent the day with my mother today, and I thought of you...it must be just devastating to go through all this with your mom. I must say, it reminded me of how fragile each moment is, and how important it is to cherish every minute. I make sure to hug and kiss both my parents every time I see them, and always end every phone call with "I love you".

They are going to be celebrating their 62nd anniversary on the 16th. I am in a quandary over what to do for them, and the gift! They have everything, literally. Maybe I'll start a thread about it, and get some ideas...

Have a wonderful weekend!


I am so relieved that you are feeling better.
Well things continue to be a struggle for my Mom. My Mom has a anxiety disorder that she has managed her whole life. Since her stroke she is unable to manage it and her anxiety is through the roof. The part of the brain that was damaged was the part the processing information. My poor little Mom is now parinod all the time. It is so hard to describe, I feel sorry for her and hope that, in time, her mind clears.
My sister and I have had our difficuties through this time as well. We do not deal with things in the same way and unfortunately we have had some uncomfortable exchanges.
I am taking my Mom to my sisters for dinner tonight so we shall see how that goes.
That is amazing that two people could be married for that many years. You could send them out for a amazing dinner somewhere. If that is something they would enjoy. If you are feeling up to it you could have a dinner party for them as well.
I hope you continue to feel good and look forward to hearing from you.

writeleft
03-08-2009, 05:29 PM
Oh Janalee, I am so sorry that your dear mother is having to deal with such anxiety.

I know that my strokes brought on anxiety that I had never experienced previous to the strokes. I remember feeling so out of control, and so vulnerable. When your whole life changes in one instant, it left me questioning what could happen next? When all of your previous skills are suddenly impaired, you wonder who you really are anymore.

I understand the way family dynamics can really make an impossible situation even worse. I dread the day when my parents need help, as my sister and I can't get along under the best of circumstances. We can't even get together for holidays, birthdays, or any family events. It's ridiculous! I hope your family dinner is a treat for your mother, and is full of love.

I did post a thread about the anniversary gift...and got some great suggestions...I love these boards! Thank you for your thoughts...Enjoy tonight!

sumptersam
03-09-2009, 12:52 PM
Oh Janalee, I am so sorry that your dear mother is having to deal with such anxiety.

I know that my strokes brought on anxiety that I had never experienced previous to the strokes. I remember feeling so out of control, and so vulnerable. When your whole life changes in one instant, it left me questioning what could happen next? When all of your previous skills are suddenly impaired, you wonder who you really are anymore.

I understand the way family dynamics can really make an impossible situation even worse. I dread the day when my parents need help, as my sister and I can't get along under the best of circumstances. We can't even get together for holidays, birthdays, or any family events. It's ridiculous! I hope your family dinner is a treat for your mother, and is full of love.

I did post a thread about the anniversary gift...and got some great suggestions...I love these boards! Thank you for your thoughts...Enjoy tonight!

I am sorry about the anxiety your mother has been experiencing....I know what that is like....one of my biggest lessons I am having to learn is to give up control and that has been helping me with anxiety...I remember an exercise I learned in high shool drama where one person stands behind you and you have to trust that when you fall backwards, that person will catch you....and now I really know what that what was about.

Congrats for the anniversary too! :wave:

janalee
03-09-2009, 02:54 PM
Oh Janalee, I am so sorry that your dear mother is having to deal with such anxiety.

I know that my strokes brought on anxiety that I had never experienced previous to the strokes. I remember feeling so out of control, and so vulnerable. When your whole life changes in one instant, it left me questioning what could happen next? When all of your previous skills are suddenly impaired, you wonder who you really are anymore.

I understand the way family dynamics can really make an impossible situation even worse. I dread the day when my parents need help, as my sister and I can't get along under the best of circumstances. We can't even get together for holidays, birthdays, or any family events. It's ridiculous! I hope your family dinner is a treat for your mother, and is full of love.

I did post a thread about the anniversary gift...and got some great suggestions...I love these boards! Thank you for your thoughts...Enjoy tonight!


Wonderful.....I am pleased that you got such great ideas.....have a great day

janalee
03-09-2009, 02:57 PM
I am sorry about the anxiety your mother has been experiencing....I know what that is like....one of my biggest lessons I am having to learn is to give up control and that has been helping me with anxiety...I remember an exercise I learned in high shool drama where one person stands behind you and you have to trust that when you fall backwards, that person will catch you....and now I really know what that what was about.

Congrats for the anniversary too! :wave:

Well unfortunately since this whole thing has started with my Mom.....I have discovered I am definatley my Mother's daughter....I myself am experiencing too much anxiety. It is not good....especially when you have to work every day. I am off to the doctor tomorrow morning and see what she has to say. I am so thankful to have found this site...and even more grateful for you and writerleft for taking the time to respond to my posts....

Thanks to both of you......:angel:

Just for the record..

writeleft
03-10-2009, 03:09 AM
It is as important and comforting being on the support side of things. I never knew about the boards as I was needing support, not to mention I could not think, speak, type or walk back then. If there is one tiny thing that is helpful to you, then it makes my experience worthy. As we have discussed before, there is a certain fragile deep beauty in what we previously thought as a major loss.

As for you, young lady...You have every reason in the world to be anxious, depressed and quite fragile yourself. Trying to maintain your "normal" life, when things are so abnormal, is a clear sign that you need to put the focus on yourself immediately. After all, what can you do to keep these balls in the air, unless you are steady and balanced? Imagine a close friend, or family member suddenly inundated with all the major emotional and practical decisions you have been forced to make...Wouldn't you jump in and give them a hand, a tireless ear, some practical help? That says nothing about the emotional toll, that grinds on you 24/7?

Janalee, Please seek some help for yourself. There are fine people out there just for people like you. I hear pain in your voice, and fear. Let's figure something out for you...because how you process this major event will factor into the rest of your life.

Your mother is such a lucky woman to have such a loving and sensitive child.
I'm there for you, whatever that is worth.

janalee
03-10-2009, 11:31 AM
And once again I am grateful for the kind words and support. I will definately seek out hlep for myself. I have a wonderful relationship with my partner. He is supportive beyond what I would expect. I will let you know what happens....in the meantime I hope you are still on the mend and feeling much better.

Cheers

janalee
03-15-2009, 11:25 PM
Hi there,

Just wanted to let you know I am still around.....I have had some coputer issues and I am unable to check my messages at work. I hope you are doing well.

writeleft
03-16-2009, 03:14 AM
Thanks,

No pressure here. We all understand that life goes on, and computer problems-oh my ! :)

I've found the boards a neat part of my day, and I hit them about 5-6 days a week. Being home during the day gives me times where I can check in for while, and usually feel enlightened somehow,every time. There are times where my blood pressure or other health issues control my activities, and I am forced to be quiet, and focusing on others works well for me.

But for you, Janalee...you will always be on my list, and I will never remove from my subscribed threads, whether I hear from you twice a day, or twice a month. Of course, if too long goes by, I will attempt to check up on you, but otherwise...I'll be here!

Things here are pretty good...forcing myself back to life! Spent the day yesterday riding the quad with hubby and friends (yes, I'm sore, and tired),
but finished the weekend strong with a badminton game in the front yard, and getting my sunflowers in the ground.

I have a yearly tradition to plant 50 giant (12-14ft) sunflowers in my front yard. The kids around here used to call me "big mama sunshine" and the older folks call me the "sunflower lady".

Actually, since we have no seasons here in San Diego, I make a point to decorate elaborately for the holidays, San Diego style. I make tumble weed snowmen, surfer Santa's, skeletons on the beach, weird stuff. This will be the first year in five years I will have my beautiful sunflowers again. All the neighbors have chipped in to make the other holiday scenes happen, but not plant the sunflowers. Oh, the simple joys of life... I pushed each seed into the warm ground, with a little wish that I will be called big mama sunshine again.

Janalee, the little (or big) milestones really count. My hubby is constantly reminding me of little things, and I will get slightly annoyed...and ask "why would you remind me of something so obvious"? He sweetly reminds me that last week/month/year/5 years ago...I would not have remembered.

The transition is slow, but the human spirit is resilient, and after stoke...kinda pissed, kinda frustrated, and pretty scared. But you already know that, and because of you.

Good night, and good week ahead!

janalee
03-17-2009, 11:36 AM
Thanks,

No pressure here. We all understand that life goes on, and computer problems-oh my ! :)

I've found the boards a neat part of my day, and I hit them about 5-6 days a week. Being home during the day gives me times where I can check in for while, and usually feel enlightened somehow,every time. There are times where my blood pressure or other health issues control my activities, and I am forced to be quiet, and focusing on others works well for me.

But for you, Janalee...you will always be on my list, and I will never remove from my subscribed threads, whether I hear from you twice a day, or twice a month. Of course, if too long goes by, I will attempt to check up on you, but otherwise...I'll be here!

Things here are pretty good...forcing myself back to life! Spent the day yesterday riding the quad with hubby and friends (yes, I'm sore, and tired),
but finished the weekend strong with a badminton game in the front yard, and getting my sunflowers in the ground.

I have a yearly tradition to plant 50 giant (12-14ft) sunflowers in my front yard. The kids around here used to call me "big mama sunshine" and the older folks call me the "sunflower lady".

Actually, since we have no seasons here in San Diego, I make a point to decorate elaborately for the holidays, San Diego style. I make tumble weed snowmen, surfer Santa's, skeletons on the beach, weird stuff. This will be the first year in five years I will have my beautiful sunflowers again. All the neighbors have chipped in to make the other holiday scenes happen, but not plant the sunflowers. Oh, the simple joys of life... I pushed each seed into the warm ground, with a little wish that I will be called big mama sunshine again.

Janalee, the little (or big) milestones really count. My hubby is constantly reminding me of little things, and I will get slightly annoyed...and ask "why would you remind me of something so obvious"? He sweetly reminds me that last week/month/year/5 years ago...I would not have remembered.

The transition is slow, but the human spirit is resilient, and after stoke...kinda pissed, kinda frustrated, and pretty scared. But you already know that, and because of you.

Good night, and good week ahead!


Hi there,

I am happy to hear that you are doing better. That is truly good news.....It sounds like you have a pretty amazing hubby to support you. I do as well and would be lost without him at this point.
Things have really been challenging these days. There is so much going on in terms of dealing with my Mom's stuff. We have to sell her place and take care of her belongings....and she is grieving that process. I wish I could pick her up and make it all go away...but that is not possible.
I really do hope that she continues to heal. She has so much confusion and it is terrible to watch her. My Mom has an anxiety disorder that she has managed her whole life. Since her stroke it has gone through the roof and at times I am so worried that she will stroke again.
We are not happy with where we have had her placed. There are some issues that do not seem to ever get resolved. The task of having her moved seems even more difficult than we had first thought.
I must sound like such doom and gloom....my apoligies....I am frustrated and really tired these days.
Once again thanks for keeping in touch and I hope you get out and enjoy the day and those sunflowers.......;)

writeleft
03-17-2009, 05:08 PM
Oh Janalee, it really hurts to feel your pain through your words. Are you getting any help with your family members...I remember you said your sister and you had disagreements about earlier issues- have you come together on things yet, or do you think you will?

I wish I could just be there with you to hold your hand and whatever else I could do! I am overwhelmed at the thought of all that is on your shoulders. Is your mother on medication to help with the anxiety, I understand how devastating that can be...

I am so happy you have your loving and understanding man at your side, oh what a blessing!

I am learning things from you that I will be facing myself one day soon. My own father is 85 on the 22nd, and he appears to have luekemia...but insists on driving himself and my mother to Arkansas, to go fishing! I know there is nothing I can do to prepare, but I will remind myself of your strength and love towards your mother.

Janalee, take one day at a time...I know this is so overwhelming, and I am truly on your side. I will grow the biggest, strongest, most beautiful sunflower, and name her Janalee. I will give her lots of cool water, warm sunshine and watch her grow toward the sun. I promise.

sumptersam
03-18-2009, 10:34 AM
Hi there,

Just wanted to let you know I am still around.....I have had some coputer issues and I am unable to check my messages at work. I hope you are doing well.

I'm still around too...:wave: I love the sunflowers idea! And you know what I used to love doing? I used to go up to Balboa Park and sit at the rose garden and think, I also used to go to La Jolla Cliffs and talk with the sea lions-sounds corny, but it works! I used to grab a cup of java and head to the cliffs when I got done at the VA and it did wonders for me!

I'll keep you in my prayers! :angel:

janalee
03-18-2009, 11:21 AM
I'm still around too...:wave: I love the sunflowers idea! And you know what I used to love doing? I used to go up to Balboa Park and sit at the rose garden and think, I also used to go to La Jolla Cliffs and talk with the sea lions-sounds corny, but it works! I used to grab a cup of java and head to the cliffs when I got done at the VA and it did wonders for me!

I'll keep you in my prayers! :angel:

Thank you so much sumptersam,

I know things will get better. It seems that there just isn't enough time in the day to have my own thoughts.....it is true, a person needs time to just sit and be with themselves. You have been a great inspiration to me.

janalee
03-18-2009, 11:28 AM
Oh Janalee, it really hurts to feel your pain through your words. Are you getting any help with your family members...I remember you said your sister and you had disagreements about earlier issues- have you come together on things yet, or do you think you will?

I wish I could just be there with you to hold your hand and whatever else I could do! I am overwhelmed at the thought of all that is on your shoulders. Is your mother on medication to help with the anxiety, I understand how devastating that can be...

I am so happy you have your loving and understanding man at your side, oh what a blessing!

I am learning things from you that I will be facing myself one day soon. My own father is 85 on the 22nd, and he appears to have luekemia...but insists on driving himself and my mother to Arkansas, to go fishing! I know there is nothing I can do to prepare, but I will remind myself of your strength and love towards your mother.

Janalee, take one day at a time...I know this is so overwhelming, and I am truly on your side. I will grow the biggest, strongest, most beautiful sunflower, and name her Janalee. I will give her lots of cool water, warm sunshine and watch her grow toward the sun. I promise.

You are so sweet...really you are. Some days just seem to be impossible to get past, but low and behold it passes.
As far as my sis and I we did go for dinner one night and talk. We both understand where the other is coming from....doesn't mean we still don't get annoyed with one another.....:). That is okay....it is stressful to deal with.
I am sorry to hear about your Dad's illness but at the same time....what a strong and amazing man. To still want to carry on with life.....fishing with your Mom is really something. I know it does not take away the worry for you but I hear that story and think WOW!!
This has really been a stroke of luck for me....to find two amazing people such as yourself and sumptersam. For me.....I needed the both of you.
I am honored that you would name a sunflower after me.....that put a huge smile on my face this morning.....I wish you a wonderful day.

Cheers

:angel:

writeleft
03-19-2009, 10:39 AM
Excellant...just my intention!

janalee
03-19-2009, 11:14 AM
Excellant...just my intention!

:D....Well let me give you an update on my Mom. Yesterday my sister took my Mom to the dentist. This a person my Mom has been going to for some time and really likes. The office in which he practices out of has no elevator. Since my Mom's stroke she does not walk on her own she has a walker. My Mom also has scoleosis, a problem with her hip and anxiety beyond. Well my Mom walked up 22 stairs to see her dentist and when she got to the top she cried. Her dentist then came out to her and picked her up and carried her to the dental chair. I am so proud of my Mom and amazed by this man who is her dentist....I do believe there are angles walking among us......

Have a beautiful day!!

writeleft
03-19-2009, 11:46 PM
Wow...another of those little moments we have spoken about before. The dentist is a prince, and your mother is a brave, strong woman in spirit. You are the angel.

sumptersam
03-20-2009, 11:11 AM
:D....Well let me give you an update on my Mom. Yesterday my sister took my Mom to the dentist. This a person my Mom has been going to for some time and really likes. The office in which he practices out of has no elevator. Since my Mom's stroke she does not walk on her own she has a walker. My Mom also has scoleosis, a problem with her hip and anxiety beyond. Well my Mom walked up 22 stairs to see her dentist and when she got to the top she cried. Her dentist then came out to her and picked her up and carried her to the dental chair. I am so proud of my Mom and amazed by this man who is her dentist....I do believe there are angles walking among us......

Have a beautiful day!!

kudos to your mom and your dentist...what a guy! Sometimes, we can do a whole lot more than we think we can...I have been learning that. You should be very proud of your mom....! :wave:

writeleft
03-24-2009, 07:16 PM
Hello Friends,

My own dear mother has had a few bouts with "head pain", the latest one started Friday, and she just came from her neurologist. He feels that these pains in her head (originally diagnosed as "small vessel disease"), could actually be warnings of a stroke!.

I am just sick with anxiety, and fear for my mother. When my mother told me, she tried to candy coat it for me, and make it sound like no big deal. My father called me later to make sure I knew the real story, as my mother always feels she must protect us from any bad news, particularly about her.

Oh, I am glad to have you two here right now. I am terrified of the possibilities. My mother is almost 80, my father just turned 84. I love them both so much.

sumptersam
03-25-2009, 10:57 AM
Hello Friends,

My own dear mother has had a few bouts with "head pain", the latest one started Friday, and she just came from her neurologist. He feels that these pains in her head (originally diagnosed as "small vessel disease"), could actually be warnings of a stroke!.

I am just sick with anxiety, and fear for my mother. When my mother told me, she tried to candy coat it for me, and make it sound like no big deal. My father called me later to make sure I knew the real story, as my mother always feels she must protect us from any bad news, particularly about her.

Oh, I am glad to have you two here right now. I am terrified of the possibilities. My mother is almost 80, my father just turned 84. I love them both so much.

I feel for you but you have to give up to God...what will happen will....I'm not saying that you should ignore your mother's pain....but don't give into fear or worry or anxiety....just do what you can do....and thats all you can do! I will pray for your mother.....:wave:

janalee
03-25-2009, 03:19 PM
I feel for you but you have to give up to God...what will happen will....I'm not saying that you should ignore your mother's pain....but don't give into fear or worry or anxiety....just do what you can do....and thats all you can do! I will pray for your mother.....:wave:

I agree with sumptersam.......You are amazing and strong and you will make it through....you have given me so much strength through these boards.....I will also keep you and your mother in my thoughts.......:angel:

sumptersam
03-26-2009, 11:49 AM
Hello Friends,

My own dear mother has had a few bouts with "head pain", the latest one started Friday, and she just came from her neurologist. He feels that these pains in her head (originally diagnosed as "small vessel disease"), could actually be warnings of a stroke!.

I am just sick with anxiety, and fear for my mother. When my mother told me, she tried to candy coat it for me, and make it sound like no big deal. My father called me later to make sure I knew the real story, as my mother always feels she must protect us from any bad news, particularly about her.

Oh, I am glad to have you two here right now. I am terrified of the possibilities. My mother is almost 80, my father just turned 84. I love them both so much.

God has blessed your mother with a good daughter in you! Remember that when you things are difficult for you.....:wave:

writeleft
03-27-2009, 01:47 AM
Thank you so much....I have to admit, it seems much easier to dole out suggestions and advice, than to imagine seeking them, in a moment of fear and panic.

We will simply give her all the more care, and attention. Her doctor's are top notched, and she has my dad there. I am a minute away...so you are right!

janalee
03-30-2009, 11:24 AM
Thank you so much....I have to admit, it seems much easier to dole out suggestions and advice, than to imagine seeking them, in a moment of fear and panic.

We will simply give her all the more care, and attention. Her doctor's are top notched, and she has my dad there. I am a minute away...so you are right!

Hi there, I feel like I have not conected with you for so long. In your last post you sounded like things were a bit better in the sense of your Mom's care. I am hoping that is still the case.

I had forgottend my password and have been somewhat consumed with my Mom as well right now. We are hoping to have her moved...hopefully that can happen. She still has so much confusion and I am not to sure if she will ever have a clear mind again. I am trying to start to focus on myself....I have been running like a mad women and I need to take a bit of time for myself.

Anyhow I hope all is well and look forward to hearing from you soon.

writeleft
03-30-2009, 05:43 PM
Janalee,

Hi. I got to get out for a few days myself, went camping in the desert. Today we are starting a remodel of my son's bathroom-the demo phase.
My mom is hanging in there, and my dad is watching her like a hawk.

I am so sorry to hear that your mother is so confused, and I hope you can find the right place for her...I can't imagine what must be going through your mind, as you have been struggling so hard with this...24/7 for months and months now. I have seen many posts to and from caregivers, that all stress the need to be able to step back, and breathe...and focus time on yourself. That must be much easier said, than done.

If you are ever too busy to post...by all means, take a break! I will be here, (with the exception of lucky weekends, when we love to get out and ride our quads).

You and your mother are always in my prayers, oh...the sunflowers have popped through!

janalee
04-02-2009, 04:13 PM
Janalee,

Hi there,

Just checking in with you.......I hope you are doing well and getting ready to ride your quad for the weekend......

Hi. I got to get out for a few days myself, went camping in the desert. Today we are starting a remodel of my son's bathroom-the demo phase.
My mom is hanging in there, and my dad is watching her like a hawk.

I am so sorry to hear that your mother is so confused, and I hope you can find the right place for her...I can't imagine what must be going through your mind, as you have been struggling so hard with this...24/7 for months and months now. I have seen many posts to and from caregivers, that all stress the need to be able to step back, and breathe...and focus time on yourself. That must be much easier said, than done.

If you are ever too busy to post...by all means, take a break! I will be here, (with the exception of lucky weekends, when we love to get out and ride our quads).

You and your mother are always in my prayers, oh...the sunflowers have popped through!

writeleft
04-08-2009, 08:42 PM
Report on sunflowers...sprouted successfully...33 giant sunflowers surrounding two palm trees-coming soon!

I hope you are well, and love to your mother
Janet

janalee
04-09-2009, 11:17 AM
Report on sunflowers...sprouted successfully...33 giant sunflowers surrounding two palm trees-coming soon!

I hope you are well, and love to your mother
Janet

Ohhh I bet they are absolutely stunning. I am doing okay, it has been a bumpy couple of weeks. I still go to see my Mom ever day and we now have her name on list for another facility. The Health Care for seniors here is disgusting to be honest with you. The government is cutting back on staffing and so forth. I just don't get it......the facilities do not have enough staff.
Anyhow I was most happy to see a message from you today. I wish you a wonderful day:wave:

writeleft
04-11-2009, 11:04 PM
Janalee,

I have been having some medical issues that have kept me off the computer. I amstill thinking about you though...See ya later!

sumptersam
04-12-2009, 11:10 AM
Happy Easter! Have a great day! Jesus is alive!

writeleft
04-12-2009, 05:36 PM
Happy Easter right back, Sumptersam! I wish all the best for everyone, as we jump into Spring...a period of growth, and new life.

janalee
04-13-2009, 01:24 PM
Janalee,

I have been having some medical issues that have kept me off the computer. I amstill thinking about you though...See ya later!

I hope you are feeling better. I have a question for you.....
My Mom is laying down all the time. She is always saying she is very tired and needing to lay down. I am wondering if you experienced the same thing after your stroke. There is a part of me that believes that is part of recovery from a stroke....and then the other part is "concern". I am not sure if I should be pushing her to move more or not.
Did you read the book "My stroke of insight"? My understanding it is a very good book. I guess I could get some answers there.

sumptersam
04-13-2009, 02:46 PM
Happy Easter right back, Sumptersam! I wish all the best for everyone, as we jump into Spring...a period of growth, and new life.
I am so excited I can hardly wait until I can take walks through the State Park, work out in the yard, etc. I am determined to be smart while not letting this stroke get the best of me. I think I want to go out almost as bad as our cats do! :wave:

sumptersam
04-13-2009, 02:51 PM
I hope you are feeling better. I have a question for you.....
My Mom is laying down all the time. She is always saying she is very tired and needing to lay down. I am wondering if you experienced the same thing after your stroke. There is a part of me that believes that is part of recovery from a stroke....and then the other part is "concern". I am not sure if I should be pushing her to move more or not.
Did you read the book "My stroke of insight"? My understanding it is a very good book. I guess I could get some answers there.

I still have to fight the urge to sleep a lot....I sleep 8 hrs a night which I never did before the stroke and I have to keep myself busy because as soon as I sit down to read or watch a movie, I fall asleep-if I didn't snore, I could get away with it more! Dr told me it's natural for my body to want to sleep while I am healing-something she says will take up to a year....so I just take a nap when I can't help the sleepy urge...Dr says it's not good to fight the urge...and I try not to wake up by the alarm either....:wave:

writeleft
04-14-2009, 01:55 AM
My sleeping habits have changed dramatically since my stroke. I attribute a part of it to the medications, but more to the need to heal your brain, which never turns off, but is much less drained when not having to think consciously, perform physical activities, talk, interact with stimuli of all sorts, etc.

I honestly sleep from about 10pm till 10am every night, and don't really get out into the world till early afternoon many times. On the weekdays, I rise at 6:30 am to get my son to school, but then go right home and go back to sleep a few hours more. I can only take about 6 hours of straight activity on any given day.

Nightlife is out for me. When the sun starts going down, I want to be home, in my jammies. It has been a weird transition, and I wish I could have more vitality, but I have what I have, and fighting it is futile.

I am so sorry you are so concerned Janalee, I really feel for you...but from my experience, when your body needs to sleep, it should sleep. For the first few years I slept, and I as I awakened, healing had been accomplished.

You are in my prayers, and in my heart.

janalee
04-14-2009, 11:26 AM
I still have to fight the urge to sleep a lot....I sleep 8 hrs a night which I never did before the stroke and I have to keep myself busy because as soon as I sit down to read or watch a movie, I fall asleep-if I didn't snore, I could get away with it more! Dr told me it's natural for my body to want to sleep while I am healing-something she says will take up to a year....so I just take a nap when I can't help the sleepy urge...Dr says it's not good to fight the urge...and I try not to wake up by the alarm either....:wave:

Thanks Sumptersam,

I knew that sleeping was very healing but couldn't help but worry. I am getting alot of phone calls from people who have been concerned over my Mom. The thought is she is spending too much time resting. No matter how much I talk to these people there is no way to convince them that the sleep is important. Thanks for taking the time to answer my post.
Have a wonderful day

janalee
04-14-2009, 11:30 AM
My sleeping habits have changed dramatically since my stroke. I attribute a part of it to the medications, but more to the need to heal your brain, which never turns off, but is much less drained when not having to think consciously, perform physical activities, talk, interact with stimuli of all sorts, etc.

I honestly sleep from about 10pm till 10am every night, and don't really get out into the world till early afternoon many times. On the weekdays, I rise at 6:30 am to get my son to school, but then go right home and go back to sleep a few hours more. I can only take about 6 hours of straight activity on any given day.

Nightlife is out for me. When the sun starts going down, I want to be home, in my jammies. It has been a weird transition, and I wish I could have more vitality, but I have what I have, and fighting it is futile.

As I mentioned to sumstersam, I get alot of phone calls from people about her sleeping and also about how much I go to see her. I do go and see my Mom ever day. I believe it does make a difference for her and also keeps her connected with her family and life outside of the home she is in. I am very frustrated with some people. I understand it comes from a good place but at the same time they are not there that much.....I am.
It has only been 8 months since my Mom's stroke and I believe that things will get better for her and her mind will clear......Have yourself a wonderful day!!

I am so sorry you are so concerned Janalee, I really feel for you...but from my experience, when your body needs to sleep, it should sleep. For the first few years I slept, and I as I awakened, healing had been accomplished.

You are in my prayers, and in my heart.

writeleft
04-14-2009, 05:55 PM
You know, however well meaning...there are always people who are quite willing to give you their opinions on things that they have no experience or expertise in. You are the one that counts, and having to explain yourself to these well intentioned, but short sighted individuals does not help you. You are the on going everyday, you are the one who's heart is beating with your mother's, you are the one who knows.

Our brains are willing and able to repair themselves, with enough time. Sleeping and resting allows for those complicated processes to happen. It's much like a baby...with so much to process and learn, the baby sleeps alot.

Janalee, stick by your guns, and try not to let these naysayers get to you. I pray for your mother's recovery every night.

p.s. sunflower babies are as cute as can be, going from two little green leaves to six now. Amazing that they will be 12 feet tall by summers end.

janalee
04-15-2009, 11:16 AM
You know, however well meaning...there are always people who are quite willing to give you their opinions on things that they have no experience or expertise in. You are the one that counts, and having to explain yourself to these well intentioned, but short sighted individuals does not help you. You are the on going everyday, you are the one who's heart is beating with your mother's, you are the one who knows.

Our brains are willing and able to repair themselves, with enough time. Sleeping and resting allows for those complicated processes to happen. It's much like a baby...with so much to process and learn, the baby sleeps alot.

Janalee, stick by your guns, and try not to let these naysayers get to you. I pray for your mother's recovery every night.

p.s. sunflower babies are as cute as can be, going from two little green leaves to six now. Amazing that they will be 12 feet tall by summers end.

Thank you so much for the reassurance. I am there just for my Mother and not for anyone else. I had a conversation with someone the other day and we were talking about our Moms. During the discussion it came up for both of us that ever minute we are fortunate to spend with our parent is a piece of gold. I will forever treasure the time I have spent with my Mom and being an important part of her day....I am honored.

Sounds like the sunflowers are going to be a showstopper this year!!:cool:

writeleft
04-15-2009, 04:11 PM
You are right, time with our mother's is pure gold. She knows that you are there everyday innately, whether she can express it or not.

I relate this to being a mother too. Every quality moment I spent with my children counts, whether they know, or even care, now. I can only dream that my children will do that for me someday.

So you are doing what your own mother did for you, caring and protecting without resentment.

About the sunflowers...It's been five years since my last "sunflower forest" in my front yard. My nickname in my close knit neighborhood is "Big Mama Sunshine". This is the first year since my strokes that I have planted sunflowers, so growing the again is a big milestone for me.

Patience is a true virtue.

With Love...

janalee
04-16-2009, 11:03 AM
You are right, time with our mother's is pure gold. She knows that you are there everyday innately, whether she can express it or not.

I relate this to being a mother too. Every quality moment I spent with my children counts, whether they know, or even care, now. I can only dream that my children will do that for me someday.

So you are doing what your own mother did for you, caring and protecting without resentment.

About the sunflowers...It's been five years since my last "sunflower forest" in my front yard. My nickname in my close knit neighborhood is "Big Mama Sunshine". This is the first year since my strokes that I have planted sunflowers, so growing the again is a big milestone for me.

Patience is a true virtue.

With Love...

Good Morning Big Mama Sunshine.....

I feel like I have been given a gift.....I am not even sure how I came across this board but I am so honored to have the opportunity to share my experiences with you.
I hope it is okay for me to ask but do you write for a living? If your not you certainly should be.
I hope this year your forest of sunflowers is the best it has ever been......

Have a wonderful day

writeleft
04-16-2009, 05:43 PM
Dearest Janalee,

I am the one who is honored by you sharing with me. I have learned so much from you. You bring out things in me that I never even knew about myself. Most of the time I just sit here, and the words flow easily to you, and your mother. You are a special kind of friend to me, and I can't quite describe it...but I certainly appreciate it.

I have no formal training as a writer, but it has come out of me lately. When I speak, my words come out like gibberish, but when I type, they come out smoothly. Isn't that weird? The first few years after my strokes, I couldn't get three words out sensibly.

Today is my youngest son's 15th birthday. He is off with his high school's Robotics team who are competing in a worldwide competition held in the Georgia Dome in Atlanta. Tonight is the big dinner at the CNN building where competitor's from around the world will meet to kick off the 4 day event. I am so proud of him, and although I miss him on his birthday, I am so happy that he is having such a memorable trip.

Hey enough about me! Thank you very much for the lovely post. As I do everyday, love to you and your mother. Have a happy day.

writeleft
04-16-2009, 05:46 PM
I just noticed that this thread has been read 5,221 times. Wow

janalee
04-17-2009, 11:18 AM
Dearest Janalee,

I am the one who is honored by you sharing with me. I have learned so much from you. You bring out things in me that I never even knew about myself. Most of the time I just sit here, and the words flow easily to you, and your mother. You are a special kind of friend to me, and I can't quite describe it...but I certainly appreciate it.

I have no formal training as a writer, but it has come out of me lately. When I speak, my words come out like gibberish, but when I type, they come out smoothly. Isn't that weird? The first few years after my strokes, I couldn't get three words out sensibly.

Today is my youngest son's 15th birthday. He is off with his high school's Robotics team who are competing in a worldwide competition held in the Georgia Dome in Atlanta. Tonight is the big dinner at the CNN building where competitor's from around the world will meet to kick off the 4 day event. I am so proud of him, and although I miss him on his birthday, I am so happy that he is having such a memorable trip.

Hey enough about me! Thank you very much for the lovely post. As I do everyday, love to you and your mother. Have a happy day.


How proud you must be......it will be a memorable trip for him.
Well I guess you could say that we are both in a win win situation with being able to share life with one and anther. I find it really difficult to talk with my coworkers/friends about alot of this stuff. Until you find yourself in this type of situation you have no idea what it is like.
For me it has been an eye opener.......I am my Mothers daughter for sure. I have gone from adoring my brother and sister to being completely fed up with them....there are so many emotions you experience.
The days I am really tired or frustrated I remember all the times my Mom took care of me, listened to me, told me I was beautiful (when I needed to hear that) and was always there for me. It all then becomes easy and effortless.
I will admit to you that there are days I feel sad for myself....I don't have any kids and it has crossed my mind "who will fight the fight for me". But what I do have is an amazing partner who is so understanding. I feel very luck to have him in my life. One day remind me to tell you about how we met...it is kinda sweet.
Well have yourself a wonderful day and weekend......
Cheers
:wave:

writeleft
04-17-2009, 10:29 PM
Janalee,

I understand completely, about how and who, and most importantly why, you really tell your story. In my day to day life I certainly do not share everything with anybody. that means that there is still another side of me that you might not recognize from what I've written to you. I imagine the same is very true for you.

You have been faced with the harsh reality of your beloved brother and sister letting you down, you have been alone when you should have had more shoulders to balance this burden upon. They daily ups and downs are the real story, and having someone to express whatever feelings you have that day is a treat for both of us! Sometimes it's hopeful, sometimes it's frustrating, another day it's something else.

I like to express myself on these boards, but you allow me to express myself the best. Thank You.

janalee
04-19-2009, 12:25 PM
Janalee,

I understand completely, about how and who, and most importantly why, you really tell your story. In my day to day life I certainly do not share everything with anybody. that means that there is still another side of me that you might not recognize from what I've written to you. I imagine the same is very true for you.

You have been faced with the harsh reality of your beloved brother and sister letting you down, you have been alone when you should have had more shoulders to balance this burden upon. They daily ups and downs are the real story, and having someone to express whatever feelings you have that day is a treat for both of us! Sometimes it's hopeful, sometimes it's frustrating, another day it's something else.

I like to express myself on these boards, but you allow me to express myself the best. Thank You.


Well here as well I feel comfortable to be able to express myself. There is no judgement and I can get it all out.
I would say that I also do not share all things. My purpose for these boards was to find a place to deal with/find support/understanding about strokes. You have been very supportive and I would have to say I have gotten more from you than anybody. I hope that rambly sentence made sense:)
I hope you have had a wonderful weekend....perhaps you made it out to do some quading....I look forward to hearing whats new with you.........:wave:

writeleft
04-19-2009, 11:35 PM
Hi Janalee,

It's all good. I had to take the quading off the schedule, as much as my hubby wants to. I had to get out of riding this weekend because we had yard work to do. I didn't do any, but I arranged a work party to cover up my lack of energy.

I have slipped down a rung in my kidney function, into stage 4 (out of 5). My doctor continues sending me more lab orders, (I'm on my 5th this month)and I am doing everything, but admit that I am feeling unwell. A big part of this "recovery" process involves putting on a happy face, fake it till ya make it, "sneaking" naps, etc. When it's all about attitude, which I endorse, I have to live it myself.

I asked my 15 year old son recently if he realized I was pretty sick, and he told me directly, that he chose not to believe it.

This place is where I choose to admit it...and I appreciate you listening.

janalee
04-20-2009, 11:27 AM
Hi Janalee,

It's all good. I had to take the quading off the schedule, as much as my hubby wants to. I had to get out of riding this weekend because we had yard work to do. I didn't do any, but I arranged a work party to cover up my lack of energy.

I have slipped down a rung in my kidney function, into stage 4 (out of 5). My doctor continues sending me more lab orders, (I'm on my 5th this month)and I am doing everything, but admit that I am feeling unwell. A big part of this "recovery" process involves putting on a happy face, fake it till ya make it, "sneaking" naps, etc. When it's all about attitude, which I endorse, I have to live it myself.

I asked my 15 year old son recently if he realized I was pretty sick, and he told me directly, that he chose not to believe it.

This place is where I choose to admit it...and I appreciate you listening.


I remember you saying a bit ago that you had been having some health concerns. It must be difficult when you are not feeling good to keep up with life.
I do agree that attitude can carry you a long way....I hope you start to feel better soon.
You 15 yr old son sounds like he is a pretty smart guy. It is good to be surrounded by those who love you and believe in your recovery.

I am more than happy to listen.....and support you anyway I can. Keep me in the loop.

Have a good day

writeleft
04-20-2009, 06:23 PM
Hi Janalee,

Happy Monday...I am happy because My 15 year old, and his school robotics team arrived safely back in San Diego, and he's out like a baby. We are having a heat wave here, and they left Atlanta after huge storm hit last night. He told me that when the city emergency horns started blasting, all the San Diego kids rushed up to the hotel windows, rather than retreat to a safe place...Pretty funny in a way, I thought. We never have any crazy weather here, just wildfires.

Did you see your mother this weekend? I bet you did. Is she doing any better with the anxiety? I can only imagine how hard it is for you. I have used the things you have shared with me to keep my own mother as close as I can, but I doubt my mother will ever let me get as close as your mother does you. I regret that already.

When ever the mood hits you, I would love to hear the story about how you met your fiancé. I love a good story! Until next time, love to you, and all your family.

:wave:

janalee
04-22-2009, 11:26 AM
Hi Janalee,

Happy Monday...I am happy because My 15 year old, and his school robotics team arrived safely back in San Diego, and he's out like a baby. We are having a heat wave here, and they left Atlanta after huge storm hit last night. He told me that when the city emergency horns started blasting, all the San Diego kids rushed up to the hotel windows, rather than retreat to a safe place...Pretty funny in a way, I thought. We never have any crazy weather here, just wildfires.

Did you see your mother this weekend? I bet you did. Is she doing any better with the anxiety? I can only imagine how hard it is for you. I have used the things you have shared with me to keep my own mother as close as I can, but I doubt my mother will ever let me get as close as your mother does you. I regret that already.

When ever the mood hits you, I would love to hear the story about how you met your fiancé. I love a good story! Until next time, love to you, and all your family.

:wave:


Hi there,

so glad your son is home. I did see my Mom this weekend and she has been having a tough time. The doctor has put her on something and I am hoping this will help the anxiety. I am not to sure if I have told you but my Mom has her own phone in the facility. She will call my sister and myself between 20 to 30 times in a day. It is all anxiety based.......anyhow I hope it will get better for her.
I hope you are feeling better these last couple of days.
Well prior to being in the relationship I am in now I was in another one for four years. I had owned my own condo and life was pretty good. I met this person and eventually we moved into together, into his house. He was a difficult person to live with and talked me into selling my place.
Anyhow I did sell it and about a year later things were not going so well. We ended up splitting up and I ended up on the losing side of things. I lost everthing....it was devastating. So I had to start over again and was not interested in ever having a relationship again.
So about a year or so later the girls at work were bugging me to start dating. There is a local web site you can go to dating and such. Well I didn't want to but one of the girls threatened me that if I didn't put myself on she would do it for me.......:confused:......So needless to say I did join up. I didn't do anything with it for months. I had another family member who was dying so I wanted to spend as much time as possible with him. As it got closer to Halloween I decided to go on to the site and look at profiles. I came across this one person and sent him a message....a few days later we spoke on the phone and then on Halloween night we met.
We have been together ever since that time and as it turns out we went to high school together. I was a year ahead of him. He is a wonderful man and I grateful for him in my life......:angel:

writeleft
04-22-2009, 03:30 PM
Janalee,

You were right, that was a good story...I can relate with the part about giving up, after having a longterm relationship skid into a harsh ending. Then, when you least expect it, POOF! There he is! That is great. I am so happy for you.

I did not realize that your dear mother is calling out to you and your sister 20-30 times a day, due to anxiety. That is heart wrenching. I am so sorry to hear that. I hope the new medication gives her some relief. I can imagine this must rip your heart out. How are you holding up? You are obviously a very strong woman.

My father (84) took a fall a few days ago off a step, and hurt himself all over. He is on blood thinners, so when he bleeds, it's very hard to stop it. It took my mom 3 hours to get the bleeding to stop, and get him bandaged up. He hurt his elbows, his foot, his knee, his hands, and is very sore. He saw the doctor because he can't risk infection, especially on his feet, since he has diabetes.

Good news is...sunflowers growing visibly each day, swaying towards the sun. Lost a few to a snail, but still have 30. I need to thin them out a little, but I hate to pull them out. I'll wait a little longer.

Hey, anytime you need to just vent out your feelings...I am here.

Your friend...Janet

janalee
04-23-2009, 04:05 PM
Janalee,

You were right, that was a good story...I can relate with the part about giving up, after having a longterm relationship skid into a harsh ending. Then, when you least expect it, POOF! There he is! That is great. I am so happy for you.

I did not realize that your dear mother is calling out to you and your sister 20-30 times a day, due to anxiety. That is heart wrenching. I am so sorry to hear that. I hope the new medication gives her some relief. I can imagine this must rip your heart out. How are you holding up? You are obviously a very strong woman.

My father (84) took a fall a few days ago off a step, and hurt himself all over. He is on blood thinners, so when he bleeds, it's very hard to stop it. It took my mom 3 hours to get the bleeding to stop, and get him bandaged up. He hurt his elbows, his foot, his knee, his hands, and is very sore. He saw the doctor because he can't risk infection, especially on his feet, since he has diabetes.

Good news is...sunflowers growing visibly each day, swaying towards the sun. Lost a few to a snail, but still have 30. I need to thin them out a little, but I hate to pull them out. I'll wait a little longer.

Hey, anytime you need to just vent out your feelings...I am here.

Your friend...Janet

Once again thanks so much. My Mom has started a new med for the anxiety and I think it may be starting to take effect...at least that is what I hope mostly for her sake.
Sorry to hear bout your Dad. It is so scarey with aging parents.....

What a sight it must be to look out and see your beautiful sunflower garden. I love sunflowers.....I am not to sure if it is because they are so big or what...but one of my favorites for sure.

Have a great Day Janet
Your Pal
Janice

writeleft
04-23-2009, 05:11 PM
Oops, almost posted twice! Sorry

writeleft
04-23-2009, 05:14 PM
Oh my god, your name is Janice? That freaks me out! Seeing that, made all the hairs on my arms and neck shoot up! My best friend in the world is named Janice, and somewhat like you, we never see each other. We became friends while we lived next door to each other over 25 years ago. She moved to another state soon after, and I have seen her once since then, 15 years ago. We have never lost contact, and now with e-mail, we "speak" almost everyday. It's like we have never missed a moment, in a way. That makes me very happy, to know you are Janice. I guess I thought your name was Janalee, which I thought was very pretty, too.

Theres a weird story about me and the sunflowers, that goes way back. I have lived in a house that my parents bought a long time ago, with the idea that I would live here, once I grew up and could buy the house 25% at a time. Well, I have been here 25 years, and the house is paid off, BUT my father (the commander), still insists on certain maintenance, particularly in the yards, which he thinks should be square grass with not a bit of "clutter".

Over the years, as my kids were growing up (I have been a single parent all these years), I began to plant teepee's out of bean vines (read it a kid's book), grow gourds and pumpkins, and sunflowers. Mostly because they grew fast, and real big, and were fun for the kids watch grow. That was all well and good, until my dad spotted a sunflower over the fence from the road. the next season, I planted sunflowers in my front yard, so the kids could walk through the "forest", and when I realized the kids were looking up and saying "Sun-flower SEEDS! Oh that's where sunflower seeds come from", I brought the whole kindergarten class over to learn about the sunflowers. Of course, it was just a hit, which made me tickled to death.

Years passed, and every spring I would plant the sunflowers. When I had my strokes, of course, my dad hired a gardener to do the yards, and he had everything removed from everywhere. I was devastated when I came home, 4 months later to find years of joyous work-gone.

I didn't have the heart to even go out into the yard again, for several years. At that time I just planted a few of my saved seeds in a box in front of the house. My dad had the gardener poison them when they came up. I couldn't believe it, and I confronted my dad (which I never do).

He explained to me that he was raised in the south, where cotton is king. "Other folk" grew sunflowers, insinuating that sunflowers were the bottom of the barrel, as he saw it. I was shocked... my own father, a sunflower HATER! Have you ever heard of such a thing?

So, the return of the sunflower forest, means my father has given in a little, and I feel triumphant! In addition, I have already dedicated them to you, and your mother, to whom I wish to share the triumph...as they are all about growing, yearning, beauty and nature working together. That is my wish for you today.

Janet

janalee
04-24-2009, 11:17 AM
Oh my god, your name is Janice? That freaks me out! Seeing that, made all the hairs on my arms and neck shoot up! My best friend in the world is named Janice, and somewhat like you, we never see each other. We became friends while we lived next door to each other over 25 years ago. She moved to another state soon after, and I have seen her once since then, 15 years ago. We have never lost contact, and now with e-mail, we "speak" almost everyday. It's like we have never missed a moment, in a way. That makes me very happy, to know you are Janice. I guess I thought your name was Janalee, which I thought was very pretty, too.

Theres a weird story about me and the sunflowers, that goes way back. I have lived in a house that my parents bought a long time ago, with the idea that I would live here, once I grew up and could buy the house 25% at a time. Well, I have been here 25 years, and the house is paid off, BUT my father (the commander), still insists on certain maintenance, particularly in the yards, which he thinks should be square grass with not a bit of "clutter".

Over the years, as my kids were growing up (I have been a single parent all these years), I began to plant teepee's out of bean vines (read it a kid's book), grow gourds and pumpkins, and sunflowers. Mostly because they grew fast, and real big, and were fun for the kids watch grow. That was all well and good, until my dad spotted a sunflower over the fence from the road. the next season, I planted sunflowers in my front yard, so the kids could walk through the "forest", and when I realized the kids were looking up and saying "Sun-flower SEEDS! Oh that's where sunflower seeds come from", I brought the whole kindergarten class over to learn about the sunflowers. Of course, it was just a hit, which made me tickled to death.

Years passed, and every spring I would plant the sunflowers. When I had my strokes, of course, my dad hired a gardener to do the yards, and he had everything removed from everywhere. I was devastated when I came home, 4 months later to find years of joyous work-gone.

I didn't have the heart to even go out into the yard again, for several years. At that time I just planted a few of my saved seeds in a box in front of the house. My dad had the gardener poison them when they came up. I couldn't believe it, and I confronted my dad (which I never do).

He explained to me that he was raised in the south, where cotton is king. "Other folk" grew sunflowers, insinuating that sunflowers were the bottom of the barrel, as he saw it. I was shocked... my own father, a sunflower HATER! Have you ever heard of such a thing?

So, the return of the sunflower forest, means my father has given in a little, and I feel triumphant! In addition, I have already dedicated them to you, and your mother, to whom I wish to share the triumph...as they are all about growing, yearning, beauty and nature working together. That is my wish for you today.

Janet


You are such a beautiful person.......it's funny how things seem to go sometimes. By that I mean finding this site and connecting with you. Thank you for all of your kind words and support.

:angel:

Janice

janalee
04-28-2009, 12:54 AM
hey there,

Hope all is well with you. I haven't heard from you for a few days.......maybe your out quading.....

writeleft
04-30-2009, 01:43 AM
Hi Janice,

I know some days have passed since I've been on. I have begun having abdominal pains all night for quite a few days. Coincidentally, during that same period for time, I have been under-fire, stress-wise. Hmmm, I see a parallel. My daily life has been interrupted.

I wish you the best..I have to sort this out. Thank you for understanding.

janalee
04-30-2009, 10:56 AM
oh I am sorry to hear you are not feeling well. Stress can be a nasty thing and the havoc it can put our bodies through. I wish well with getting everthing sorted out...

Sincerely
Janice

sumptersam
04-30-2009, 12:26 PM
Hi Janice,

I know some days have passed since I've been on. I have begun having abdominal pains all night for quite a few days. Coincidentally, during that same period for time, I have been under-fire, stress-wise. Hmmm, I see a parallel. My daily life has been interrupted.

I wish you the best..I have to sort this out. Thank you for understanding.

:( I am sorry you aren't feeling well...I have learned, since my stroke, to keep my life simple..then there aren't as many reasons to stress out...I will keep you in my prayers! :wave:

writeleft
04-30-2009, 09:45 PM
Thank you both...I was able to get into my doctor today, who has ordered a cat scan of my abdomen. For the last two weeks, I have been waking up at 1:00-2:00 a.m. with excruciating pains in my abdomen. I end up being up all night in pain, and it has taken a toll on me. There is some discussion about possible gall bladder issues, since it always happens at night.

I will keep you posted, and I appreciate your warm wishes.
Your friend, Janet

sumptersam
05-01-2009, 11:16 AM
hey there,

Hope all is well with you. I haven't heard from you for a few days.......maybe your out quading.....
no quading..can't do that stuff anymore...just volunteering at the library and generally busy getting back into things...still lots of little fires I'm putting out that my stroke caused....I hope you are feeling better...hang in there! Have a great weekend! :wave:

sumptersam
05-01-2009, 11:18 AM
here is where I hang out and volunteer...I'm so thankful they trust me and let me volunteer and be useful here....http://www.sumpter.org/menu/library.html

writeleft
05-01-2009, 03:04 PM
Sumptersam,

You make a good point. This is a great place to volunteer.

My friends and family have to kick me (gently) when I start volunteering now, because in the end I always seem to be unable to follow through...which is not my intention. I don't know what each day will bring, and it just doesn't feel right to expect the bad days....but they come often enough to foul up any plans I try to make.

Like right now, I have been helping out my old elementary school, (where both of my son's went, as well) in planning the schools 50th anniversary celebration. It's right up my alley. Of course last night, instead of attending an important meeting about it, I was in the hospital. My youngest son has been asked to be a speaker at the event, and I will be writing a newspaper article about it. The whole thing happens exactly 2 weeks from today.

There is no room in there, for me to potentially have surgery.

Will I ever learn?

writeleft
05-06-2009, 05:51 PM
Hello,
I have been out of sync for a few days, and wanted to check in with everyone. I am doing the rounds at several doctors this week. When each doctor is a specialist in one or two little organs, it takes quite a few appointments to figure anything out!

janalee
05-06-2009, 06:38 PM
Hi there,

good to hear from you. I guess the doctors appointments will be keeping you busy for sure. How are your sunflowers.....you know that is quite a story about your sunflowers. I am happy you were able to enjoy them again. I have to say I love them myself. I grew some a number of years ago and just thought what a beautiful spectical they were.
Take the best care of yourself.

Janice

writeleft
05-06-2009, 06:56 PM
Janice,

The sunflowers are just magical. Everyday they grow noticeably, they are above my knees today. Even before flowering, they sway with the sun crossing the sky all day. I have been documenting their growth in drawings and photo's. I have dear pictures of both my sons posing under huge sunflowers over the years past.

Hey, I learned something interesting yesterday. I was visiting a friend in the hospital, and in the lobby they had an interactive stroke awareness booth set up. Apparently this is stroke awareness month. What I learned was that strokes are now being called brain attacks...in order to call more attention to what really goes on. I thought that was interesting, and a good idea...most people don't know what a stroke is, until they are face to face with it. What do you think?

Janet

janalee
05-07-2009, 11:35 AM
Absolutley, I would agree 100% with that. Until you have had the experience a person really doesn't know what a stroke is.

Janice

writeleft
05-07-2009, 02:30 PM
Janice,

How is your mother? Have you seen a difference following the new medication? I certainly hope so.

Well, I'm off to the doctor. I am in the middle of 4 separate appointments...One each day from yesterday until Monday. I could never fit working into my full time doctor schedule!

Thinking of you always,
Janet

sumptersam
05-07-2009, 02:30 PM
Sumptersam,

You make a good point. This is a great place to volunteer.

My friends and family have to kick me (gently) when I start volunteering now, because in the end I always seem to be unable to follow through...which is not my intention. I don't know what each day will bring, and it just doesn't feel right to expect the bad days....but they come often enough to foul up any plans I try to make.

Like right now, I have been helping out my old elementary school, (where both of my son's went, as well) in planning the schools 50th anniversary celebration. It's right up my alley. Of course last night, instead of attending an important meeting about it, I was in the hospital. My youngest son has been asked to be a speaker at the event, and I will be writing a newspaper article about it. The whole thing happens exactly 2 weeks from today.

There is no room in there, for me to potentially have surgery.

Will I ever learn?
good! serving others will not only keep you active, but will take your mind off your own problems and you will be blessed even more than you can imagine! sounds like they need you and you need them...sounds like a good match! i would enjoy reading your article if you want to share it...my email is: * removed * wish your son the best of luck for me! :wave:

sumptersam
05-07-2009, 02:33 PM
Janice,

How is your mother? Have you seen a difference following the new medication? I certainly hope so.

Well, I'm off to the doctor. I am in the middle of 4 separate appointments...One each day from yesterday until Monday. I could never fit working into my full time doctor schedule!

Thinking of you always,
Janet
i pray your appts go well...:wave:

janalee
05-08-2009, 11:05 AM
Hi Janet,

Well yes I do see some improvement in her for sure. There are some really great days in terms of how she sounds and reacts to things. It is not 100% perfect, but who is. I think she will continue to recover and that we could look at some different living situations for her. She is in a nursing home since January and we have not been really happy with things there. She is not happy either......she was a very independent lady for her age and also very active.
I will continue to keep "Hope" alive for her and look forward to her continued progress.
I hope all goes well with your appointments.

Janice

sumptersam
05-08-2009, 12:03 PM
Absolutley, I would agree 100% with that. Until you have had the experience a person really doesn't know what a stroke is.

Janice
thats true Janice, and not that i know that much about strokes, but i am comitted to learn more every day and maybe i can help someone else to understand their situations-i think that is why we experience such things-so we can help others.....thanks! :wave:

janalee
05-09-2009, 01:46 AM
you are absolutely right sumpstersam......I believe that to be very true. One's life experiences are a gift to be shared even the tough times.

writeleft
05-12-2009, 10:51 PM
Hi, I've missed a few days, hope everyone is doing well. Our computer is asking for a little TLC, by shutting down on it's own, and such.

I have been on a daily regime of doctor appointments, tests and referrals. They can really wreck a nice quiet day! Hopefully by tomorrow, I will have some results, and will know what I'm dealing with here. One thing about surviving a tough medical issue, like stroke...the other health issues seem much less frightening.

With love, Janet

janalee
05-13-2009, 12:18 AM
Hey there,

Good to hear from you. I hope you get some answers as well for yourself.
We have issues from time to time with our computer as well. Pain in the neck for sure. You will be in my thoughts over the next week. I wish you well.......keep me posted.

With love
Janice

writeleft
05-14-2009, 03:02 PM
Thank you Janice. Much of the last 5 years have been a blur, so other health issues have been put to the side. But, as we well know...ignoring things never makes them better. Darn!

Back to you though. Tell me how everything is...How are you coping, how is your dear mother? Is she still telephoning you as much? I think of you both so often, and try to imagine your lives. You are truly inspirational to me. I can only hope that I will be as strong as you are, if and when my turn comes. Bless you.

I certainly have made a point to spend time with my parents, and now that my sister has left us for good, we have been together everyday cleaning up the house she lived in. She left a mess, knowing that it would be my mother and father who would be cleaning up after her. My mother is just crushed by my sister's actions, and I can't stand to see her like this. At 80 and 84 years of age, they certainly didn't deserve any of this.

I wish you well, enjoy your day, and have a nice weekend, OK?
Love Janet

janalee
05-14-2009, 05:30 PM
Ohh my goodness. You are truly a kind soul......well there are some good days and there are some not so good days. She isn't calling as much in the day time which is good. Last weekend was a bit rough though. She was in a panic and calls started very early in the day.....which just happened to be Mothers day. I spent the whole day with her then my hubby and I brought her to our house and had chinese food.
She was so happy......so that made me happy. I guess I am feeling very overwhelmed by alot of it still. We have to clean her place out this weekend so it looks like it is myself and my hubby. He called me today at work and informed me he has to have surgery next week.....when it rains it pours. Anyhow.......as it turns out I am taking all of next week off.

I am sorry to hear of the big job your parents have had to take on(cleaning out your sisters place). You are a good daughter to be there and help them with it.
Family dynamics......sometimes you just want to scream.

Please take good care of yourself and I hope you have some time for "You" this weekend.

I look forward to hearing from you soon.

Janice

writeleft
05-18-2009, 02:36 PM
Everything changes everyday, it seems. It looks the same from the outside, but it's not. We just don't know what the next phone call will bring, or who the next family member, or friend, needs immediate attention today.

I am sorry you are having to take off work to handle these stressful issues next week, but try to take a tiny time everyday for yourself. I can imagine the cleaning out of your mother's house will be very emotional for you. I wish I could be there to help you. Where is your sister, and other family? I can just guess...other plans, too busy...ugg.
I know cleaning out my sister's house was very upsetting, and I didn't even like her!

I will keep you close in my heart, as you must endure this difficult upcoming week. And now your hubby, having surgery too! Hopefully, nothing terribly serious, as if any surgery wasn't serious. My doctor told me once, the difference between minor surgery, and major surgery is...that minor surgery is any surgery that's not happening to you! I buy that, 100%.

Thoughts with you, Love, Janet

janalee
05-20-2009, 03:28 PM
Hey there,
Sorry I am so slowwwww with replying. My hubby had his surgery yesterday and everything went well. He is going to be off work for about one month. I still managed to squeak in a visit with my Mom as well. I will go and spend some time with her today and do her nightly care.
You are so right you never know what is around the corner. I guess I am feeling like "When it rains, it pours". Today I am feeling kinda emotional and knowing very well that I do need time in a big way for myself. You know some people can do that with such ease. I tend to always feel guilty.
Anyhow I hope you are well and getting some much needed rest yourself. I have thought about you lots and wondered how things are going. It has been raining here today I hope we will see the sun at some point today. We desperately need it.


Have yourself a great day and you will be in my thoughts.

Janice

writeleft
05-21-2009, 01:29 AM
I have to come back tomorrow...I have a horrible medical test in the morning. I am dreading it. I am very anxious tonight.

Janet

janalee
05-21-2009, 12:28 PM
I hope all goes well for you today. I understand being anxious.....it is something I have to battle on a daily basis. You are in my thoughts today.

Love
Janice

writeleft
05-23-2009, 07:06 PM
You know when you just have to accept things that you would rather not, and then create a new attitude to live with it? That's where I would say I'm at. I am the one who has to continue to fight everyday to keep myself a positive influence on the ones who look to me for that...my son's, my parent's, and of course, my hubby. I cannot be content when they are worrying about me, or I fail to care for their needs, due to my own health issues.

I feel like I am weakening. I am nauseous, shaky, teary. I have abdominal pain, and the tests are coming up blank, so far. I am sorry for being so low, but I want to share with you. I am scared of what I do not know.

Love Janet

janalee
05-24-2009, 12:26 AM
You know when you just have to accept things that you would rather not, and then create a new attitude to live with it? That's where I would say I'm at. I am the one who has to continue to fight everyday to keep myself a positive influence on the ones who look to me for that...my son's, my parent's, and of course, my hubby. I cannot be content when they are worrying about me, or I fail to care for their needs, due to my own health issues.

I feel like I am weakening. I am nauseous, shaky, teary. I have abdominal pain, and the tests are coming up blank, so far. I am sorry for being so low, but I want to share with you. I am scared of what I do not know.

Love Janet


I completely understand what you are saying about not wanting your loved ones to worry about you.......but they are the people that love you. Let your family "pick you up" and care for you and your needs right now. I am alot like you in that sense that I take care of everyone else first. I wish I could hold your hand right now.......I am happy that you shared with me.....I will keep you in my thoughts....please keep me posted.

Love
Janice........:angel:

writeleft
05-26-2009, 11:14 AM
Thank you so much Janice, for your supportive words. We are quite alike. In a few hours, I should know the results of my cancer testing. I plan to go in to my good old family doctor as soon as I can, probably later today or tomorrow. After seeing all these specialists, I wonder what his opinion will be. All this wondering is driving me crazy!

I'll be sure to fill you in, as soon as I know anything. Until then, it's back to bed for me. You are a wonderful friend. Thank you again.

Janet

janalee
05-27-2009, 12:11 PM
Thank you so much Janice, for your supportive words. We are quite alike. In a few hours, I should know the results of my cancer testing. I plan to go in to my good old family doctor as soon as I can, probably later today or tomorrow. After seeing all these specialists, I wonder what his opinion will be. All this wondering is driving me crazy!

I'll be sure to fill you in, as soon as I know anything. Until then, it's back to bed for me. You are a wonderful friend. Thank you again.

Janet

Hey Janet,

You have been in my thoughts....I will continue to keep you there. You have been a great source of support for me so back at ya. It is always the "unknown" that can make us crazy and send our minds into all kinds of directions....please let me know what is happening but only when you feel up to it

take good care

Janice

writeleft
05-27-2009, 07:04 PM
Hey girl...Thanks for being my friend. In person, I do my best to keep a smile on my face, and an upbeat attitude. My own mother is the exact same way. That's all fine and good, until you need to unload a little. My hubby is very good to listen, and is very understanding, but I know my things scare the heck out of him, and he ends up carrying my fears with him all day at work.

My blood test (CA125, which tests cancer antigen levels in the blood) came back elevated. That in itself is not definitive, but does open the door for more in-depth testing for the source of the cancer antigens being produced. More tests, more appointments.

Meanwhile life goes on, and I must too. Remember the sunflowers? I love them. I spend a little while each day weeding around them, and washing bird doodie off their giant green leaves, watering them and feeding them. They have grown up to chest high now, with no sign of slowing down. When the flowers come, they are going to be spectacular! Something very nice to look forward to...

Love Janet

janalee
05-27-2009, 07:26 PM
Hey girl...Thanks for being my friend. In person, I do my best to keep a smile on my face, and an upbeat attitude. My own mother is the exact same way. That's all fine and good, until you need to unload a little. My hubby is very good to listen, and is very understanding, but I know my things scare the heck out of him, and he ends up carrying my fears with him all day at work.

My blood test (CA125, which tests cancer antigen levels in the blood) came back elevated. That in itself is not definitive, but does open the door for more in-depth testing for the source of the cancer antigens being produced. More tests, more appointments.

Meanwhile life goes on, and I must too. Remember the sunflowers? I love them. I spend a little while each day weeding around them, and washing bird doodie off their giant green leaves, watering them and feeding them. They have grown up to chest high now, with no sign of slowing down. When the flowers come, they are going to be spectacular! Something very nice to look forward to...

Love Janet

Hey....thanks for keeping me in the loop.....in real life (unfortunatley) I wear my heart on my sleeve. I have never been good at hiding my feelings....having said that I have been trying to make an effort over these past months.
I find it hard for people to really understand the "stuff" I am going through these days. It really has been helpful to come here and find you. You really have been inspirational for me and kept my spirit up.
Your sunflowers sound amazing........they are truly amazing to see how large they can grow.
I am off to the chiropractor today.....I have a bit of a sore neck......I am sure he will help me out. You have a good day tomorrow.........
And yes the wheels have to keep turning....

Janice

eteng
05-28-2009, 09:11 AM
I am sorry to hear about your mom's experience. I myself am worried about having a stroke when I grow older because many of my relatives have had stroke. In fact, my uncle had a stroke just 2 weeks ago and he just had a relapse of cancer again.
Some of mom's friends have started using Lily dream (a mattress) which helps to boost overall blood circulation, increases your negative ions, as well as aid in the healing process. Some users who once had stroke and were paralyzed had testified that they had regained control over their lives as they were able to move parts of their lower body again.
Though I do not know how severe your mom's condition might be, I believe that Lily dream will be of great help as my family and I have experienced its healing abilities. In fact, it is certified as a healing tool by Taiwan.
God bless you. All the best, we will always be here for you.

writeleft
05-29-2009, 07:51 PM
Eteng,

What a caring message for Janalee, and her mother. I am sorry for your families unfortunate experiences with stroke, and cancer. Fortunately, there are many steps you can take, knowing your family history, to avoid stroke yourself.

The "lily dream mattress" sounds like a wonderful product. I can't say that I have heard of such a mattress marketed in my area, but it sounds like something worth looking in to. Since many stroke survivors spend much more time in bed, having a mattress that has healing properties would be quite positive.

Rather than fearing stroke, you can empower yourself to lower your own risk factor's. Keep track of your blood pressure, keep your diet clean, and get regular screenings with your doctor. I wish you the best..

janalee
05-31-2009, 05:04 PM
I am sorry to hear about your mom's experience. I myself am worried about having a stroke when I grow older because many of my relatives have had stroke. In fact, my uncle had a stroke just 2 weeks ago and he just had a relapse of cancer again.
Some of mom's friends have started using Lily dream (a mattress) which helps to boost overall blood circulation, increases your negative ions, as well as aid in the healing process. Some users who once had stroke and were paralyzed had testified that they had regained control over their lives as they were able to move parts of their lower body again.
Though I do not know how severe your mom's condition might be, I believe that Lily dream will be of great help as my family and I have experienced its healing abilities. In fact, it is certified as a healing tool by Taiwan.
God bless you. All the best, we will always be here for you.

Thank you for your kind words. I greatly appreciate it. We have not hit the one year mark......my Mom has come along way since this whole journey has began.
There are so many stages of recovery.....I have always been close to my Mom. Now there is a new closeness that has developed between the two of us. I see my Mom everyday....there are some people that have very strong opions in respects to the amount I see her. I do not share their opions and I do believe it makes a difference for her in her life. I have seen alot of progress being made and I am so happy to be able to share so much with her.
I, as well, am concerned with my health and not wanting to have a stroke. I agree with writerleft. You and I both need to take the necessary steps to take good care of ourselves.
I have never heard of the mattress you have mentioned....it sounds wonderful.
In the meantime take good care of yourself.

Janalee

janalee
05-31-2009, 05:06 PM
Hey there,

I am wondering how things are going with you. When you feel up to it....let me know.

Janice

writeleft
06-01-2009, 12:19 AM
I am feeling resolved that what ever comes next I will be able to handle. I am feeling best, back to posting on the boards, and living and learning.

My eldest son turned 25 today..

I'll know more later...and I'll let you know right away.

writeleft
06-01-2009, 12:22 AM
After all, Janalee..this is really about you, and your journey with your mother through life, with stroke. I don't want that to be put aside, even for a minute, OK?

janalee
06-01-2009, 11:21 AM
:wave::wave::wave::wave:After all, Janalee..this is really about you, and your journey with your mother through life, with stroke. I don't want that to be put aside, even for a minute, OK?

Wow your son has turned 25, how exciting of a day that must have been. Time passes by so very quickly.....when I stop and think about it sometimes it is shocking.
Finding these boards have given me alot of strength. Your support and kind words have meant alot to me. I am seeing changes in my Mom that are positive....the last week have been filled with lots of tears for her. She has been grieving alot about the life she feels she has lost.
My Mom is always in my thougths. I wonder how she is making out and if the staff are treating her with dignity and respect.
I should let you know that I myself work in Health Care. I have for just about 30 years.....wow...once again how time has passed. It is a very natural tendency I have to make sure that everyone is okay.
I have found it very hard for the people around me to understand exactly what this whole journey has been like. It is a funny thing, until you are walking this path you have no idea what it is like.
I have appreciated the exchange of messages we have had and look forward to more. On that note I wish you a wonderful day.....:angel:

writeleft
06-02-2009, 12:56 AM
Oh. sweet Janice,

I had no idea! I have always know that you work everyday, while still making time for your mother and your man everyday. I certainly did not know it was in health care, nor that you had been in the field for 30 years! I somehow thought you might be younger than me...I don't know why.

I appreciate you, and our daily (mostly) messages. It seems as if there are others who follow this thread, so I feel a certain obligation to keep on point, and providing support for you here, as well as anyone reading along. That's what I have found helps me the most, is having been there, and coming back. Communication following stroke is often impaired. Mine still is, except somehow here. I need it too.

These last months has been full of confusion for me. After 5 straight years of focusing on overcoming strokes, I get hit with this cancer thing. I still don't know the answer...but focusing on possible cancer distracted me from my real mission. I just want to live a positive life.

I will see my old family doctor ( of 27 years) tomorrow at 9:30 am. He delivered both of my children. I am going to lay the whole thing out to him, and get his advice. I have had so many tests, with no real answers. I am frustrated.

I did enjoy my eldest son's birthday, although we couldn't be together. He is in Wisconsin, and I in San Diego. I did let him know he was on my mind, by sending him snail mail, e-mail, texts, phone calls and surprises from people near him all day. It was fun, and he appreciated it.

Thanks for listening..again

Love Janet

janalee
06-03-2009, 02:38 PM
Oh. sweet Janice,

I had no idea! I have always know that you work everyday, while still making time for your mother and your man everyday. I certainly did not know it was in health care, nor that you had been in the field for 30 years! I somehow thought you might be younger than me...I don't know why.

I appreciate you, and our daily (mostly) messages. It seems as if there are others who follow this thread, so I feel a certain obligation to keep on point, and providing support for you here, as well as anyone reading along. That's what I have found helps me the most, is having been there, and coming back. Communication following stroke is often impaired. Mine still is, except somehow here. I need it too.

These last months has been full of confusion for me. After 5 straight years of focusing on overcoming strokes, I get hit with this cancer thing. I still don't know the answer...but focusing on possible cancer distracted me from my real mission. I just want to live a positive life.

I will see my old family doctor ( of 27 years) tomorrow at 9:30 am. He delivered both of my children. I am going to lay the whole thing out to him, and get his advice. I have had so many tests, with no real answers. I am frustrated.

I did enjoy my eldest son's birthday, although we couldn't be together. He is in Wisconsin, and I in San Diego. I did let him know he was on my mind, by sending him snail mail, e-mail, texts, phone calls and surprises from people near him all day. It was fun, and he appreciated it.

Thanks for listening..again

Love Janet


I am always happy to listen. I understand wanting to live a positive life....I am struggling with keeping my chin up these days. I have found this experience to have really caused a great deal of stress and impairment with my relationships with my siblings. Guess that is par for the course.
I will be 49 at the end of November....yikes. Time slips by so very quickly and it isn't till you stop and think about it.
I understand when you say that coming here and posting helps you to keep focused. It is good for people to have a connection with someone who has come back from a stroke. It has been very helpful for me..
I hope you got some relief from your old doctor to went to visit. It is a beautiful sunny day here and I am trying to focus on that.

Love
Janice

writeleft
06-04-2009, 11:18 PM
Janice,

I will also be 49 in late November (the 26th). Another councidence?

Sunflowers, chest high now.
I'll check back in later, Ok?

Janet

janalee
06-05-2009, 02:12 AM
Janice,

that's crazy....I'm on the 27th....

I will also be 49 in late November (the 26th). Another councidence?

Sunflowers, chest high now.
I'll check back in later, Ok?

Janet

writeleft
06-07-2009, 11:44 AM
Janice,

So we came into this world one day apart. That is awesome!

I hate to say, but I have had a hard time concentrating on much...other than these upcoming tests I still have. These are all repeats of the tests I had last month, just to verify the previous results. If things still look bad, I will have some exploratory surgery. The waiting time is not good for me. As hard as I try not to worry, the worrying is always there. My own advice doesn't work.

This is where things get weird. When I need my mother the most, she won't speak with me about my feelings, my questions, or just give me a hug. I spent over two hours with her and my dad yesterday, and while she talked the whole time about basically nothing...and I was waiting patiently for my turn, it never came. I have taken that hard. I am in tears, just thinking about it. I call her every morning, and not once has she asked me how I am doing. Denial, perhaps? I know my parents care, but our communication sucks.

Janice, I am so sorry to lay this on you. I want to be here to support you, not the other way around. I just don't have anywhere to put these feelings. I have to spare my children from my fear, and I still don't have any conclusive diagnosis anyway. Oh boy, I am a mess...ugh

Love Janet

janalee
06-08-2009, 11:24 AM
Janice,

So we came into this world one day apart. That is awesome!

I hate to say, but I have had a hard time concentrating on much...other than these upcoming tests I still have. These are all repeats of the tests I had last month, just to verify the previous results. If things still look bad, I will have some exploratory surgery. The waiting time is not good for me. As hard as I try not to worry, the worrying is always there. My own advice doesn't work.

This is where things get weird. When I need my mother the most, she won't speak with me about my feelings, my questions, or just give me a hug. I spent over two hours with her and my dad yesterday, and while she talked the whole time about basically nothing...and I was waiting patiently for my turn, it never came. I have taken that hard. I am in tears, just thinking about it. I call her every morning, and not once has she asked me how I am doing. Denial, perhaps? I know my parents care, but our communication sucks.

Janice, I am so sorry to lay this on you. I want to be here to support you, not the other way around. I just don't have anywhere to put these feelings. I have to spare my children from my fear, and I still don't have any conclusive diagnosis anyway. Oh boy, I am a mess...ugh

Love Janet

Hi Janet,

I completely understand when you say " I just don't have anywhere to put these feelings". I have felt that way on many occasions when I have posted here. You are in need of support right now and I am happy to help you anyway I can. I may not be as good at the written word as you but trust in the fact that I am here if you need.
I am keeping my fingers crossed for you and your tests. I would be no different in terms of the "waiting". Have you considered going and talking to someone on a professional level. Someone who can help you with all of your emotion, a safe place to let all your feelings out.
As much as we love our families sometimes they are so blinded by their own lives they aren't able to recognize when we need them the most. Please consider looking into someone to speak with. If you feel up to it let me know how things go this week....I will check back later.

Love
Janice

jennybyc
06-08-2009, 11:12 PM
For Janalee....there was a person on a national talk show(begins with O)who was a brain researcher at Harvard who had a massive hemorragic stroke at work. No one thought she would survive but she did and work a book about it(might find it on the O site). The one thing I took away from her interview was when she talked about the "healing power of sleep" as she often slept 22 hours a day. She said it took that much for her brain to heal. And she did heal.

So don't be alarmed. She is healing and it takes the brain a long time to heal. I suffered paralysis 2 1/2 years ago from a neck injury and it took 2 years to overcome it. Now I've had lacunar stokes and I'm back to trying to get my left side working again. But I do sleep a lot. I always feel so much more "with it" when I wake up.

good luck and prayers for your mom............Jenny

writeleft
06-09-2009, 02:22 AM
Janice,
Thank you again.

To Jennybyc,
You are so right. The need for lots of sleep is something few of us are expecting following any brain injury. The brain just has to go on hold for periods of time to successfully recover from trauma. I had the same remarkable experience. It is terribly hard to be patient throughout this slow process, but when the time is right...the brain can awaken. The amount of recovery can be amazing to everyone.

janalee
06-10-2009, 12:11 AM
Hi there Jenny,

I did see the show you are referring to and do have the book. I have been told that sleep is a very important piece with stroke recovery. I greatly appreciate you taking the time to respond to my post. I will you all the best.

Janalee

writeleft
06-10-2009, 01:08 AM
Janalee,

Please update us about your mother and yourself. How are you both holding up? What coping skills have you used, to help you through?

I have a sweet picture of you and your mother in my imagination, and you would probably be surprised at how often that picture comes to my mind. I am not going anywhere. I will be here to cheer you on, and to feel your pain, as well as your joy.

Your friend janet

janalee
06-10-2009, 01:32 AM
Janalee,

Please update us about your mother and yourself. How are you both holding up? What coping skills have you used, to help you through?

I have a sweet picture of you and your mother in my imagination, and you would probably be surprised at how often that picture comes to my mind. I am not going anywhere. I will be here to cheer you on, and to feel your pain, as well as your joy.

Your friend janet

Well this past week has been somewhat difficult for myself and my Mom. I believe she is going through a grieving process right now. On Sunday she was very teary......it was so hard to watch. I did not want to leave her that day. Unfortunatley in the nursing home she is in, I believe that she is understimulated. She is not getting the support and activities that she needs. ( this is my opion).
I am at odds with my sibilings right now so that has been a great source of frustration for me.
I would be interested to hear from you and anyone else out there if they had any kind of councelling after their strokes to deal with the emotinal end of things??
I do need to work on some coping skills to be sure......

Again, I am grateful for the continued support of this thread.....so happpy I found my way here.

sumptersam
06-10-2009, 12:06 PM
hope you don't mind my butting in here, but my brain doctor told me the same thing about the importance of sleep...i hate naps during the day...i was the kid in kindergarten that wouldn't take a nap but when i came home from the hospital (and even now) when i get tired, i quit doing whatever it is i'm doing, and if im really tired, i just sleep....the brain is an awesome thing, but it does need sleep...

janalee
06-10-2009, 12:22 PM
hope you don't mind my butting in here, but my brain doctor told me the same thing about the importance of sleep...i hate naps during the day...i was the kid in kindergarten that wouldn't take a nap but when i came home from the hospital (and even now) when i get tired, i quit doing whatever it is i'm doing, and if im really tired, i just sleep....the brain is an awesome thing, but it does need sleep...

thanks sumtersam.....I just had the conversation with my Mom this morning about the power of "sleep". She sometimes gets concerned over how much she is sleeping.....

Janalee

sumptersam
06-11-2009, 11:38 AM
thanks sumtersam.....I just had the conversation with my Mom this morning about the power of "sleep". She sometimes gets concerned over how much she is sleeping.....

Janalee

i was concerned too....thought i was too lazy, etc., but now i realize how i am much better at things with the sleep than just "being strong" did for me before....so i am learning that it's not just about liking more sleep...but more about what is needed. it's amazing how much i am having to "unlearn" about being "strong" and "tough" which i was taught practically all my life...:angel:

writeleft
06-12-2009, 12:38 AM
Hello all...Good to hear from you SumpterSam. I want to apologize for going off track on the thread, for the last week or two....I think this a wonderful thread, and I am a here to support all of here about stroke. Thanks for listening though..smile

janalee
06-12-2009, 04:30 PM
i was concerned too....thought i was too lazy, etc., but now i realize how i am much better at things with the sleep than just "being strong" did for me before....so i am learning that it's not just about liking more sleep...but more about what is needed. it's amazing how much i am having to "unlearn" about being "strong" and "tough" which i was taught practically all my life...:angel:

I guess it would be hard to relearn all that stuff. As a family member of someone who has had a stroke I am finding it hard to be strong......Sometimes you have to dig really deep to find the strengh.
I definately get the importance of sleep. I notice such a difference in my Mom when she is rested. When she does not sleep well at night her anxiety is threw the roof as well as the confusion. The staff at the nursing home some times tell her she is laying down too much. I find the lack of care and concern and not to mention lack of training makes me crazy.
Anyhow I will continue to reassure my Mom that the sleep is good.

Sincerely
Janalee

writeleft
06-13-2009, 10:57 PM
Hello friends,

I don't know about anyone else, but this year is passing by very quickly for me. Summer is upon us, which has always been my favorite time of year. I wish everyone a safe and healthy summer.

writeleft
06-28-2009, 12:53 AM
This is the sixth summer I have had, post stroke. This summer denotes the first full year I have been back behind the wheel...allthough I have transitioned during that year from a simple to drive, easy to park, power steering/brake SUV... to my real truck, a 1962 Chevy pickup, with a two speed transmission, no power steering, 6 cylinder, vintage vehicle. I have slowly expanded my driving range to around the neighborhood, and off the freeways.

I am still dealing with the everyday issues that come with complicated medication regimes, constant Blood Pressure maintenance, frequent doctor appointments, lab work, and follow up's. It is a lifelong lifestyle adjustment, as we all have learned. That is all fine and good, until other challenges pop up in life. The aging of parents, the changing family dynamics, new and unexpected health concerns, the daily challenges of parenting,

Here's to all of us, as we navigate through life as partners, children, friends, sister's, brother's, and all the other relationships we hold dear. I am thinking about you...

Janet

janalee
06-28-2009, 12:27 PM
This is the sixth summer I have had, post stroke. This summer denotes the first full year I have been back behind the wheel...allthough I have transitioned during that year from a simple to drive, easy to park, power steering/brake SUV... to my real truck, a 1962 Chevy pickup, with a two speed transmission, no power steering, 6 cylinder, vintage vehicle. I have slowly expanded my driving range to around the neighborhood, and off the freeways.

I am still dealing with the everyday issues that come with complicated medication regimes, constant Blood Pressure maintenance, frequent doctor appointments, lab work, and follow up's. It is a lifelong lifestyle adjustment, as we all have learned. That is all fine and good, until other challenges pop up in life. The aging of parents, the changing family dynamics, new and unexpected health concerns, the daily challenges of parenting,

Here's to all of us, as we navigate through life as partners, children, friends, sister's, brother's, and all the other relationships we hold dear. I am thinking about you...

Janet


Good to hear from you writeleft. Recently my Mom was told that she would not be able to drive again. She was so sad to hear that. Another part of her independence taken away.
For myself there are some good days and then some not so good days. As the caretaker of my Mom there seems to be so many battles to fight and hills to climb. My siblings and myself seemed to have grown appart and that seems so strange to me. At a time such as this you would think that the bond would be tighter than ever. That just isn't the case.
I am just trying to keep my head down and push forward with it all.
I wish you all a wonderful day.....
My hubby would be sooooo jealous of your 62 chevy. He has a 65 Chevelle....he is a car lover.

writeleft
06-29-2009, 01:32 AM
Janalee,

I'm so happy to see your post! I know that everyday that passes, still hold all the challenges that the day before did for you and your sweet mother. We cannot, and will not give up.

I am experiencing a calm in the storm right now, and I have found that I cannot fully enjoy myself in the time that I have. My son is away on his yearly pilgrimage to Surf Camp for two weeks. The first week has passed, and as hard as I have tried, I have not done one single thing to enjoy myself. I had wanted to spend some time visiting my long lost cousin, to whom I have just reunited...but I talked myself out of it. I was afraid! I am afraid of the hot weather, afraid of not having my hubby to watch out for me, afraid of the pain returning, afraid of medical issues.

Once it was decided I wouldn't be going anywhere, I am depressed...and mad at myself. How far along have I really come, if I still cannot enjoy my once a year "vacation"?

How about you Janalee, have you found anything to free you from the daily weight of your mother's daily care? Have you gotten away, had any time for yourself? I can certainly understand the family dis-connect being so frustrating. Why and where are your siblings when you need them? My own family has dealt with everything by disintegrating too. I have found that support has come from everywhere except my family...yes, you!

Hey, I'm here for you. I have spent my entire day in the bed, but I have to get up, and kick my own butt. While I was up, my hubby told me that my first sunflower bloomed today, and I missed it. What a trip. The day I have waited for, over the last month's of watching, watering, waiting and wondering came today...and I missed it. What a metaphor for life!

Take good care my friend, and my best to your mother

janet

janalee
06-29-2009, 11:14 AM
Janalee,

I'm so happy to see your post! I know that everyday that passes, still hold all the challenges that the day before did for you and your sweet mother. We cannot, and will not give up.

I am experiencing a calm in the storm right now, and I have found that I cannot fully enjoy myself in the time that I have. My son is away on his yearly pilgrimage to Surf Camp for two weeks. The first week has passed, and as hard as I have tried, I have not done one single thing to enjoy myself. I had wanted to spend some time visiting my long lost cousin, to whom I have just reunited...but I talked myself out of it. I was afraid! I am afraid of the hot weather, afraid of not having my hubby to watch out for me, afraid of the pain returning, afraid of medical issues.

Once it was decided I wouldn't be going anywhere, I am depressed...and mad at myself. How far along have I really come, if I still cannot enjoy my once a year "vacation"?

How about you Janalee, have you found anything to free you from the daily weight of your mother's daily care? Have you gotten away, had any time for yourself? I can certainly understand the family dis-connect being so frustrating. Why and where are your siblings when you need them? My own family has dealt with everything by disintegrating too. I have found that support has come from everywhere except my family...yes, you!

Hey, I'm here for you. I have spent my entire day in the bed, but I have to get up, and kick my own butt. While I was up, my hubby told me that my first sunflower bloomed today, and I missed it. What a trip. The day I have waited for, over the last month's of watching, watering, waiting and wondering came today...and I missed it. What a metaphor for life!

Take good care my friend, and my best to your mother

janet

I wish I could tell you that I am finding sometime for "me". But no I haven't....I cannot even think about myself at this time. I am feeling sadder than sad. The facility that we have our Mom in is not good for a variety of reasons. It is not so easy here in Canada to just pack someone up and move them. There are waitlist for these places and you really have to do research and homework on each and ever facility or it is just more of the same.
I am tired but I am the one constant person in my Mom's life. I go ever day after I finish work, sit with her through dinner and get her ready for bed. It really isn't a difficult thing. Having said that it becomes difficult whe the routine changes. For instance yesterday I went for a short visit but did not stay with her through her dinner. She was so upset....and cryed and cryed. She understands that there will be times that that will happen. But none the less it is still hard for her. We have a routine that we follow and since my Mom's stroke I have discovered how important that there is a routine. For her it seems to be very important.
I am back at work today after having a week off.....not long enough for sure.
I am hoping that one of these days this week you will feel ready to go outside and see your magnifcent sunflowers in all their glory. I will keep that thought in my head for you. Please take the best care.......

writeleft
06-30-2009, 06:43 PM
Janalee,

Oh it hurts so much to read your words, and feel your overwhelming sadness. I feel so stupid for having one single complaint, when I think of what you are dealing with. I know I am at my best when I am sharing, and helping others. For me to shift my focus inwardly does nothing for me other than feel terrible. With you, that means being there, listening closely and understanding. I am sorry for the time I have taken away from my dear friend Janice. Thank you for being so patient, but I am back to you now.
I promise.

Your friend, Janet

janalee
06-30-2009, 11:45 PM
Oh my goodness,

Please do not feel that way at all. You have your own stuff to deal with.
As I am sure you know along with the tough days there are days that are filled with hope for something better. I am trying to cling on to those days....I have made a promise to myself.

I am also here to support you as well...don't forget that

Janice

writeleft
07-01-2009, 12:31 AM
Yes, I do know it is all OK, too. We must remember we are sharing our triumphs, and our challenges.

It is a wacky tricky scary loopy hard ride, and your not allowed to close your eyes or scream!

I finally got out of my pajamas, since Saturday I've not gotten out of them. Flannel pajamas in the summer in San Diego! What's wrong with this picture? And I am supposed to be artist!

I am happy to be posting again, doing it makes me feel better. Today I was scanning through some new Posts, and ran across a person who was asking about fainting. After posting a reply to her, I realized I am also a very experienced fainter! What a funny realization. I actually fainted several times a day for over a year after the strokes. Even fainting a lot may help someone...I hope.

My hubby and I just went out front to see the sunset. Some nice young neighbors walked their little child by and commented on the sunflowers. That becomes more than enough enjoyment for my entire evening. The tiny moments are the glue that can hold us together long enough to get through.

As difficult it is for your mother (and you) to break your evening routine together, you will be there tomorrow, and the next day, and the next day...

You are a beautiful tribute to the true love between a mother and child.

Where else could your strength come from? Who can do what you do? Very few of us can do what you are doing. I will never get the chance, like many of us adult daughters. Not every mother and daughter have what you have. In fact, your own siblings obviously do not feel the calling you do.

For that simple fact, I greatly respect you.

Writing to you is quite soothing. Thank you, as always
Janet

janalee
07-02-2009, 10:58 AM
I am honored by your words. It leaves me speechless...and believe me that is a hard thing to do :)). You have an amazing gift for writing I must say....I am very envious of that. I have to do alot of writing for my work and it is always such a struggle.
I should have guessed your were an artist. I hope you have had a good past few days. I know you will be getting ready for the 4th of July....yesterday was our holiday here and it was nice to have a day off in the middle of the week.
I wish you a wonderful day......:angel:

writeleft
07-02-2009, 09:11 PM
Janalee,

How interesting, neither of us has any idea of our occupations. After 207 posts - wow - (I just checked), to realize that I never told you that I was an artist, was slightly shocking! Since my strokes, I have been fighting myself silently to let the art out of me. The huge regime of medications I have ended up on, numbs my clarity. I don't see, or feal things like I used to. I describe it best as the edge being gone.

The little losses hit your confidence very hard, which I think creates the more childlike needs of stroke survivors...as it seems to have struck your mother. My man takes care of me, basically. I'm just sitting here trying to figure this out myself, five years later. It looks differant on a younger woman (like myself), who still has responsibilites of child raising, and is not a typical stroke survivor.

That is exactly what the wedge is between myself and my own mother.

My mother is a very strong (yet fragile) woman. She cannot wrap her mind around the fact that I am not perfoming at the level of 48 year old mother of two, like she was. She doesn't understand the effect strokes have had on me, because she has never asked me.

My father is a retired Naval Officer, a decorated Veteran of Korea, WWll, and Vietnam Wars (love you peaceful Canadians). My mother is the Officers wife...a perfect hostess, a perfect homemaker, and the mother of two perfect daughters. My older sister turned out far from perfect, and so did I...Oops!

I am honestly green with envy over the close, loving, lifelong bond between you and your mother. And without that deep bond with my mother, I both could not, and will not ever get a chance to be someone like you. That sums iit up for now sweetheart!

It looks like theres much more to discuss...hooray!

janet

janalee
07-03-2009, 10:55 AM
Hello again,

Well it does appear that is much to discuss. I am sorry that you do not have a close bond with your Mom. I bet you though you are an amazing Mother to your two children. I do not have any children of my own. The older I get the more sad at times I feel about that. My own relationship with my Mom has had its ups and downs over the years. At times it has been very firey!
I work with mentally ill offenders in a hospital. It is a very difficult enviroment to work in. You would automatically think it was the patients that were difficult but it is the politics.
I am the same age as you and will be 49 before the end of the year. My little Mom was widowed when she was 37 years old and left with 3 kids all under the age of 10. Life was certainly interesting to say the least. There is so much more to that story but for now I will leave it.
I wish to you a beautiful day

Janice

writeleft
07-04-2009, 12:00 AM
You work with mentally ill offenders in a hospital? Oh, how my picture of you changed with that one sentence! When I thought of you at work, I saw a woman my age (as I know we established that we are less than 24 hours apart by birth), that was in a nice business suit, in a professional office of some kind. Boy, I missed that by a million miles!

This is quite a story. A few posts ago, you said that you had to do a lot of writing with your job. I had no idea of the nature of your work, therefore no idea of the type of writing you had such trouble with. Now I understand why.

I certainly would not have the emotional resources to ever do what you do, much less document any of it. Documenting anything requires memorizing each experience, and reliving them enough to put words to them, while filtering all this through your mind, through your hands, into words. With such a traumatic job, how could anyone digest your day into words?

Darn, company came over...I gotta go.

With love, Janet

writeleft
07-08-2009, 01:25 AM
Janalee,

All the sunflowers are now poised to bloom, or are in the act of blooming. Once the stalks reached about 6 feet, each one produced a huge green flower bud, about the size of a small fist. By now, the buds have tilted towards the sun, and the first bright yellow petals appeared inside. They are the picture of nature's force at work. You remember, I dedicated them to you, and the more time that goes on, I realize what a perfect symbol they are of you. Strong, resilient, powerful and pretty!

I am thinking of you and your mother everyday. I wish you the strength and inspiration to get you through your next day.

janalee
07-08-2009, 10:39 AM
I am honored by your kind words....you have been an incredible support to me. Your sunflowers sounds amazing....I am wondering how you are doing? Please let me know when you have some time.

Janice

writeleft
07-11-2009, 09:54 PM
Hi!

We are enjoying a relaxing beautiful summer day.

Monday I will be going in for surgery, so I am trying to practice what I preach...that is, staying calm and positive, having a few nice meals, and staying hydrated. I have researched my surgery, but not focused on it...and best of all, I sought out some women on the boards who have gone through similar surgery's...who have reassured me greatly. All that is left is to show up, and get 'er done! Once this is over, I can go back to my life without this distraction.

If it could only be so easy for you, sweetheart. I know you have no procedure upcoming that will ease your pain, and Herculean efforts for your mother. While I am expected to rest and recover, you do not have such a luxury. I understand that about you, and once again...I find your strength, courage, and dedication so impressive.

Anyone can be sick, but not anyone can care, and support the sick. It is wonderful and loving souls, that make a story like mine have positive outcomes. I certainly give my family, and people like you all the credit..because a world without you (and those like you), would be a lonely scary world for us that suffer stroke, and many other life threatening medical issues.

As always, love to you and your mother.

Janet

janalee
07-11-2009, 11:01 PM
I can't tell you how much your words mean to me today. I am having a hard day....I tend to carry alot of guilt around with me. Not that I have done anything wrong but that I cannot "fix it". I am also having some issues right now and I am frustrated because I can't get into my doctor till the 20th.
I will hold you close in my thoughts on Monday and I am glad you are going to have some relief. Again take the best care and I will look forward to hearing how you are doing.

Janice

writeleft
07-11-2009, 11:05 PM
Hey girlfriend, I am here with you right now! Please let me help you.. I feel the pain in your words

janalee
07-12-2009, 12:25 AM
Just being able to express myself is an outlet for me. I appreciate all of your support. I am also getting very burnt out as well. We are looking at some different options for my Mom and one is moving her to where my sister lives. That will be so hard for me because I will not be able to see her everday. The other side of that is she will see my sister more often and also her kids. This is the most difficult thing I have ever had to deal with. I am lucky to have the partner I have.

Janice

writeleft
07-12-2009, 01:00 AM
Oh, I see...I would consider the possible relief from your daily devotion to your mother an inevitable event. If you can trust that your sister and her family will supply the needed love and inderstanding to care for your mother...then perhaps you could consider it. Being in a home setting sounds like a positve change.

Remember, very recently I asked you if you had found any relief, at all...You said no. Nothing exists in a vacuum, perhaps this is the fork in the road that just popped into view. Maybe this is your sisters turn to do her part, which will ease the strain on you, which you deserve so perfectly. What if this is your sister's gesture of thanks to you for all you have sacrificed in the last 9 month's. What if she had to prepare to take this next step, while you were there from the start, every single day.

I could be so wrong, I don't know..just a thouughtful response to my dear friend.

janalee
07-13-2009, 11:08 AM
Well my sister checked into some places her way and apparently they are not better. I am at a loss as to what to do for my little Mom. Life just seems to be so cruel sometimes. Anyhow "onwards and upwards" as they say. We will keep trying to find some king of solution.

writeleft
07-13-2009, 07:58 PM
How far does your sister and her family live from you?

janalee
07-14-2009, 01:14 AM
she is only about 45 minutes away....but the area she lives in we thought there would be some better facilities. Just doesn't seem to be the case

writeleft
07-14-2009, 01:34 AM
Oh, I'm sorry...it hurts me to think that the lack of adequate facilities makes your mother's care so painful to endure.

As American's, we complain so much about the sky-high cost of medical insurance...but we are so fortunate to have immediate access to high quality medical care. (I should speak for myself only, as there are so many, many folks that do not share my experience in the health care system).

We look to socialized medicine as the practice of the future, but there do seem to be dis-advantages. It seems to take forever to get appointments, change facilities, or get things going... in any direction. I do not mean to speak poorly of what I do not understand, I promise.

I am frustrated with you...I feel your words. I don't know what to say, my friend...this will take time to discover, and I will be there for you. As with any longterm decision, the best course to take is a slow, steady one...

Always, Janet

janalee
07-14-2009, 10:59 AM
I have worked in institutions my whole life. Since a very young age and it is always the same. There are some wonderful people and then some pretty nasty sorts. Where my Mom is you can tell who is good and who isn't. You are very correct in the fact that now that we have her placed there, it isn't so easy to change things. Had we been more educated when this whole process started we would have made different choices. I am at a loss to be honest with you and the guilt that we carry very very heavy.
My Mom hates where she is and I have to say I do as well. I have not handled things very well there at times. If you confront anyone on any issue they take it out on your loved one. There are days my heart is so broken. I am hoping that we can find some relief soon as oppose to later.

writeleft
07-14-2009, 04:57 PM
Please don't beat yourself up with guilt. You have been on a very difficult road, and your decisions have certainly been made with the best of intentions for your sweet mother. That is very clear, from all that I know about you.

The idea of certain staff taking things out on your mother is heartbreaking. You could only hope that part of the staff's job is to deal effectively with family members concerns...without taking them out on the patient. Of course, this is not a perfect world, but please!

However things work themselves out, I am here to listen. I wish I could offer you something more. You are a wonderful, loving, resilient woman, and a fine daughter. You obviously have a faithfull and supportive man who loves you. Your mother knows where your heart is, and you are doing the very best that you can for her. Honestly, no one can fault you for anything...please don't think of yourself so harshly.

With love, Janet

janalee
07-15-2009, 11:04 AM
Thanks again for allowing me to vent. I know I should not beat myself up but I guess all we want to do is to protect her. When you have placed your loved one in care and you can't trust the staff there it is frightening.
I am wondering how you are doing. What is happening with you right now?

writeleft
07-15-2009, 09:29 PM
Hello today my friend...

It goes unsaid, that your mothers care is so scary for you to deal with. First of all, just accepting that the mother that was so strong for you...has had a stroke. It is simply a hellacious reality. There was no warning. The first year is passing soon, and think of all we have learned.

Just for comparison, one year after having my strokes, I was still not even thinking straight, was highly medicated, slept 18 hours a day, and fainted all the time. I could not be alone, couldn't comb my hair, couldn't walk outside without help. I saw several doctors every week. I know there is no comparison between my experience and your sweet mother's...just similarities. I'm sure our age difference creates quite different recovery outcomes.

It is a long process, girl.

I'll save my story till next time...give yourself a tiny moment of happiness today, OK?

janalee
07-16-2009, 11:02 AM
Thanks again for the support. I still want to know how you are doing....:)

writeleft
07-16-2009, 06:36 PM
OK, Janalee...

After a couple month's fooling with blood work, exams, sonograms, MRI's, mammograms and the like... I was finally scheduled for surgery last Monday. I was admitted to the hospital, was in my gown, had my IV in, and was ready for the anesthesia-my surgery was canceled!

It turns out that my EKG was abnormal (I knew that, as I have had a heart attack at 42). My kidney function has dropped down to 24%, and my blood pressure spiked up to 175/110. Basically, I was too sick to be operated on. My OB/GYN admitted that he never dealt with anyone with my medical history, and wouldn't do it.

So, back to the drawing board. My choices now are left to one...and that is waiting for my pain and bleeding to become more of an emergency than the risks of surgery. My doctor suggested I find a way to live with it.

I must admit, I am frustrated and confused. I am still struggling to regain control of my BP, and will have to go in on Saturday to my pulmonary doctor for help with my sleep issues, that have also gone wacko.

It is a constant and lifelong effort for me to stay well enough to function. This last two weeks have included 11 trips to 4 doctor's, and 2 hospitals. During the same time, I lashed out at several people, including my parents. While I would never typically get so angry, I just lost it! My mother's "crime" was just saying the wrong thing at the wrong time (which she has a tendency to do).

So, this week I have been laying low, keeping to myself, and getting through each day. Thank goodness for my little family, my kids, and my hubby. It's been hard to face up to the idea of being "sicker" than I considered myself to be last week.

This is where we have so much in common...The only thing certain is the uncertainty.

janalee
07-18-2009, 01:22 PM
I am sorry you are going through such a difficult time. I can imagine how hard it must be to stay positive and keep the wheels turning. I wish I could take it all away for you.
I am really not so good at writing and I find it hard to express myself. I am always here for you. I am truly sorry it took me so long to respond to you. As always you are in my thoughts.

Janice

writeleft
07-18-2009, 07:13 PM
hey J...

Thanks, and you certainly don't ever have to apologize to me for anything! ;)

You and I both have our hands full, so just the fact that we are still in touch, and have kept so close, is already a miracle! I don't know about you, but I don't have anybody who I keep in touch with, like you. We have been at this almost a year now, right?

We have both learned so much during this time. The simple act of writing to you, has brought my ability and confidence back...and has opened up a whole new world to me.

I have gone from one extreme to another with typing, and the thought processes involved in putting my thoughts into words. While before, my typing looked like an eye chart, all the letters mixed up, and the sentences confusing...lately I can type as furiously as I can think, with no spelling errors at all!

You have taught me so much about mother/daughter relationship's, which I long for myself. You have taught me about true physical and mental hardship, with your vigilance toward your mother, your daily visits, your hardcore job, and everything else on top.

You are always there to listen to me, however long winded I am...You bring out the best in me. I have learned from you, that I can offer support, and still have something to offer...because a year ago, I did not feel that way at all.

While I still can't speak without my words scrambling, I can still help others. That means the world to me, because I had lost that. I still need to be taken care of myself, in many ways.

Thank you my dear, sweet friend... Love always, Janet

janalee
07-18-2009, 11:45 PM
I also do not stay in contact with people like I do with you. I don't always have the energy to talk with people. You have a amazing gift for the written word and can definately help and support others. What a gift you have Janet.
I do look forward to hearing from you.
Fate....it's a funny thing. Enjoy the rest of your day my friend.

Peace to you always
Janice
:angel:

writeleft
07-19-2009, 02:11 AM
Oh Janalee, what a night I have had!

I danced with my son tonight. It happened spontaneously. We have never danced together before, but when the live version of "Twist and Shout" began..we just started dancing...it was magical for me. My son is just coming into his mid-teens, when most kids are horrified of both dancing, and interacting with their mother's.

Not my beautiful son...he jumped right up, grabbed my hand, and pushed the furniture back. He looked me right in the eye, smiled like the sun, and commenced to dance with me. It was the most fun I have had. The most meaningful too.

He knows I am getting sicker, which kills me. My youngest son is highly gifted, and has a big life ahead of him. He is only 15, but is already competing on the world level in Robotics. He has traveled aroung the country, inspiring young school children to become the engineers of the future. The jobs they will hold, have not even been invented yet. The most important thing about him, is his positive nature. He is a leader, and a mentor...already.

I cannot leave, without seeing him through college, and into adulthood.

My eldest son is 25, and is a successful man, who I adore. He is already OK, about me.

I e-mailed my folks about helping me get my will together. I have had to resort to e-mailing them lately, as our verbal and telephone communication is impossible. I seem to have much better skill at writing my feelings than speaking them, right? But they hate it. They don't understand how deeply my feelings go, and how hard it is for me to speak. My little family (hubby, sons, dogs, friends, neighbors, acquaintances) understand everything I say, no matter what words I use, but my parents think I am hiding something!

Thanks again for listening to my crazy story. I can spin from one subject to another like a radio dial...Love to you, love to your mother, love to your man (what a guy).

Janet

janalee
07-20-2009, 01:04 AM
I am sorry for that your relationship with your parents is so strained. I have somewhat of a strained relationship with my brother and sister. There are days I feel like I do not have any family.
You made me smile today when I read your story about dancing with your son. That will be a memory he carries with him forever. I can see the two of you now. It sounds like you have raised some pretty amazing children......congrats to you. But what do you expect from a pretty amazing mother like yourself.

Janice

writeleft
07-20-2009, 01:41 AM
I have always sought that family relationships with folks that seemed to have plenty to spare. I can't imagine having siblings close, and then to lose that closeness, at a time of crisis. That would be harder than never having it at all.

I think the more critical your health becomes, the sweeter each moment becomes. Although I have always adored my son's, I have never felt closer to them than I do today. It is bittersweet.

I hope your new week offers you some goodness. Goodnight, my friend...

janalee
07-20-2009, 11:03 AM
You know that old saying "When it rains it pours". My brother and sister are having their own family issues as well as Mom stuff. It always seems to be the case. I miss my family today.

writeleft
07-20-2009, 04:42 PM
I am so sorry...I understand how alone you must feel. I wish there was something I could do. I don't even know what to say to make you feel better. Ouch!

janalee
07-20-2009, 07:18 PM
not to worry. Oddly enough my sister and I had a good talk today. It seems to change regularly. Crazy......

writeleft
07-20-2009, 08:43 PM
I'm glad...life really can be a roller coaster :round:

janalee
07-20-2009, 11:47 PM
Right now it certainly is a roller coaster. We are dealing with some issues for my Mom and wow........I am exhausted. We want to move her from where she is but it just isn't that easy. There are wait lists and some of them are 3 or 4 years and for the really good ones even up to 10 years. It is crazy......
How are you doing today?

writeleft
07-21-2009, 04:08 PM
A three to ten year wait...that sounds much like a prison sentence! Oh, that is awful...I'm so sorry.

My day is off to a slow start. I have been needing to sleep with a breathing machine, and I find it much easier if I am in the living room recliner, rather than in bed. For one thing, I am up and down alot, which disturbs my hubby. Plus, in the relciner I can't move around much, so less fussing with the darn air mask. I finally made it back into bed at 5am, and got up at 10 am.

Even using the machine, my blood pressure is very high when I wake up, requiring more time to get it back down, so I can go about the day. My son stayed up with me last night, so he is still asleep at noon!

Lazy days of summer... :round:

Love Janet

janalee
07-22-2009, 12:04 AM
you are an amazing and strong women. Once again you have raised some wonderful children. How many young men would stay up with their Mom's all night long. You have much to be proud of in your sons....and they must be so honored to have you as their mother.

writeleft
07-22-2009, 03:49 PM
I would love to take the credit, but lets not forget that he is at that age when staying up real late is fun! :yawn: hee hee

In fact, as we speak, I have two gangly teenagers, and two pups asleep at me feet. It is 11:30 am. It is totally quiet, except for a flock of wild parrots nearby.

San Diego has several flocks of parrots that escaped their "owners", banded together, and cruise around the beach areas. You really know it when they are around, they are unmistakable with their whistles, chortles, and squawks!

Today started off with your post, and this reply...Nice! :angel:

janalee
07-23-2009, 12:29 AM
Thank goodness for you. I look forward to our messages on a daily basis. I am ever so grateful for finding this site.

cheers
Janice

writeleft
07-23-2009, 08:15 PM
Oh, me too! Finding this place, and specifically you Janice...is a true gift for me too.

Strokes cut through my ability to speak my true mind, but relating to you in type, lets my ideas and thoughts flow freely.

It's like walking vrs. swimming = gravity vrs. bouyancy...

You make me float like a boat...I luv ya, girl!

janalee
07-23-2009, 10:35 PM
Back at ya sista.....:wave:

writeleft
07-24-2009, 07:56 PM
It's Friday, anything exciting going on for you this weekend?

Me neither. ha ha! My big plan for tonight is to water my yard, after 6pm. We are on water rationing, so watering is only allowed for 10 minutes, 3 days a week, between very strict hours. Our side of the street can water M-W-F, before 9 am, or after 6 pm. Our neighbors across the street water on T-Th-Sat. No one is allowed to water on Sunday. No car washing, no sidewalk cleaning. We live in a coastal desert, that our founders tried to make into a lush palm lined, tropical landscape. Live and learn. I do spray my sunflowers every day, by hiding inside them. I am a rebel at heart!

Love to you, and your mother. She is so lucky to have a daughter like you, and you will get your reward, if you haven't already.

writeleft
07-25-2009, 10:06 PM
Saturday evening...I never got out of my pj's today, and missed a beautiful day outside. That is so against my nature. The pain came back two nights ago, and still has me down...not in spirit, but in body.

Janice, I am looking forward 5 years, and I don't see it. My family depends on me for guidance and love. That is something we have in common, isn't it?

I hope your day includes some smiles, they say it takes less muscles than frowning, and it sure feels better. Love to you:)

janalee
07-26-2009, 12:18 AM
Oh my goodness. I am sorry today is not a good day for you. Funny you were on my mind today. I will keep you close in my thoughts and hope that tomorrow brings a better day for you.

With Love
Janice

writeleft
07-26-2009, 07:39 PM
Your well wishes have worked! Feeling much better today. How bout you?

Love, Janet

janalee
07-27-2009, 10:41 AM
I am so glad you are feeling better. Well I am feeling alittle on the stressed side. My Mom is having a hard time and I just don't know how to make it better. It is so hard some days!

Janice

writeleft
07-27-2009, 03:53 PM
Janice,

Back on the rollercoaster...I wish I could be there, and I would sit next to your mother all day, while you are working, and make sure she was ok. I simply can't imagine what you are going through, and words seem so useless at times like this. I am with you girl, in spirit at least. Someday I would love to meet you in person. Wouldn't that be a kick? Take good care sweetie, you can do it...





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