bluelakelady
02-08-2009, 11:11 AM
hi everyone,
guess it is my turn to have it all hit at once, again. giggle. tho i think if i must have these experiences i am glad they all come at the same time instead of one after the other.
we, my body and i, have fibro dancing in the bladder and urethra, and of course the rest of me. we have r.a. banging upon my knees and hip with drum sticks. we have a couple of beautiful lesions (hello lupus) in the tender tissue of my bum and one beauty in my mouth. the infection of the lesions is almost gone, the ravine of torn tissue remains yet. the having of a u.t.i., giggle, again brings in antibiotics, which help the infected lesions, yet they exhaust my body. we don't do antibiotics well. body dislikes them.
there is a dance going on inside me. some places waltz, others are a mosh pit full of dancers with boots on. dear myofacial and costo are loving my upper body. so good to be loved. giggle.
the frosting on the cake is another of those "spells" which have left me with language issues, typing crossovers, and right side weakness. inordinate fear of driving. i know i have had one of those "spells" for sure when that happens. i love to drive, especially alone.
within my mind all is beautiful and peaceful. i am in my magic place of healing and quiet. breathing the deep breaths of life. laughing within. no illness can touch my joy.
peace,
bluelakelady
guess it is my turn to have it all hit at once, again. giggle. tho i think if i must have these experiences i am glad they all come at the same time instead of one after the other.
we, my body and i, have fibro dancing in the bladder and urethra, and of course the rest of me. we have r.a. banging upon my knees and hip with drum sticks. we have a couple of beautiful lesions (hello lupus) in the tender tissue of my bum and one beauty in my mouth. the infection of the lesions is almost gone, the ravine of torn tissue remains yet. the having of a u.t.i., giggle, again brings in antibiotics, which help the infected lesions, yet they exhaust my body. we don't do antibiotics well. body dislikes them.
there is a dance going on inside me. some places waltz, others are a mosh pit full of dancers with boots on. dear myofacial and costo are loving my upper body. so good to be loved. giggle.
the frosting on the cake is another of those "spells" which have left me with language issues, typing crossovers, and right side weakness. inordinate fear of driving. i know i have had one of those "spells" for sure when that happens. i love to drive, especially alone.
within my mind all is beautiful and peaceful. i am in my magic place of healing and quiet. breathing the deep breaths of life. laughing within. no illness can touch my joy.
peace,
bluelakelady
Sponsor
1sunny1
02-08-2009, 01:08 PM
Hey Blue, I am wishing you a speedy, speedy recovery from all that you are going thru. Sometimes when I think it can't get any worse, I read a post like yours and know it can. I had my first ever migraine Monday, never had one before, not sure what brought it on, but it was a dilly, had to go to urgent care. I hope I never have another. Do you think it is fibro associated? Wishing you well Blue...
Sunny
Sunny
kirstee
02-08-2009, 04:27 PM
My wishes for you are an expedient recovery. Dance, dance, dance your way to that special place!
Kirstee
Kirstee
djl
02-08-2009, 05:12 PM
Hi Blue,
Sorry your "friends" decided to visit you today and put on a broadway musical for you.
I hope you feel better REAL soon, and enjoy your peaceful happy place !!!!!
Soft Comfort Hugs to you !!
Sorry your "friends" decided to visit you today and put on a broadway musical for you.
I hope you feel better REAL soon, and enjoy your peaceful happy place !!!!!
Soft Comfort Hugs to you !!
BelleoftheSouth
02-08-2009, 06:58 PM
:( I'm sorry that you are being held hostage in your own body Blue.
(((EXTREMELY Gentle Hugs for You))):(
Feel Better Soon.
Belle~
(((EXTREMELY Gentle Hugs for You))):(
Feel Better Soon.
Belle~
seaturtle
02-08-2009, 08:26 PM
Hello Blue.
I think you should be writing a book on how you handle your illness. You have reached that state of inner peace that so few do, illness or not.
Your post has given me much pause, and thank you. I am not in such good (okay, giggle!) shape recently, and have been getting depressed over it and the limitations it's putting on things I really, really want to do. I will concentrate on finding that inner peace you have found.
In my inner peace space, there is not dancing, there is the wind in the trees, the oceans, all the small animals and magnificently and mysteriously made plants of all kinds. I shall get on a cloud and ride around on it.
Again, thank you so much for all your inspiration. You are a lady of such courage and strength who gives us all so much. Before I read your post, I was feeling I could not go on. Not now.
I hope that since they all decided to land at once, they will soon decide to depart en masse, too.
Thinking of you, BlueLakeLady, giving me fortitude,
Seaturtle
I think you should be writing a book on how you handle your illness. You have reached that state of inner peace that so few do, illness or not.
Your post has given me much pause, and thank you. I am not in such good (okay, giggle!) shape recently, and have been getting depressed over it and the limitations it's putting on things I really, really want to do. I will concentrate on finding that inner peace you have found.
In my inner peace space, there is not dancing, there is the wind in the trees, the oceans, all the small animals and magnificently and mysteriously made plants of all kinds. I shall get on a cloud and ride around on it.
Again, thank you so much for all your inspiration. You are a lady of such courage and strength who gives us all so much. Before I read your post, I was feeling I could not go on. Not now.
I hope that since they all decided to land at once, they will soon decide to depart en masse, too.
Thinking of you, BlueLakeLady, giving me fortitude,
Seaturtle
Glojer
02-08-2009, 09:40 PM
Well blue, I finally made it here today. Boy you really have the monsters on your case today. Like seaturtle I have been nursing my fibrobrats for so long I am getting pretty fed up. Have no fear though, I rally in the 11th hour. So now I will be sending you some healing energy. Hang in there, fight the good fight and I know you will come out on top. Those darn 'spells' they worry me, of course I am sure they worry you too.
Glojer
Glojer
BeHappy2
02-09-2009, 12:04 AM
Ouch Blue, you are hurting.
Your magic place will pull you through this.
Hopefully your fibro will soon leave, it's no fun being attacked all at once.
Fool that pain with your great sense of humor!!
BeHappy2
Your magic place will pull you through this.
Hopefully your fibro will soon leave, it's no fun being attacked all at once.
Fool that pain with your great sense of humor!!
BeHappy2
bluelakelady
02-09-2009, 10:36 AM
hello gentle loving friends,
i am touched by your responses. humbled by the words i read.
i forget who asked, sorry, but migraines are migraines. i never associated mine with anything exept the stress currently in my life at the time. got rid of the husband and haven't had a migraine since then. that was 21 years ago.
i agree my little "spells" are a wonderment. what are they? don't know. pointless to worry. i just do my therapy here at home. been thru it so many times i know what to do. giggle. and yes, glojer i am going to see my doctor next week. thought i couldn't read between the lines, didja?? going next monday, blue, not today. giggle. brain? oh brain? where are you???? hmmm, awol again. giggle!
my body and i are in harmony even if the concert was unexpected. in the beginning i felt held hostage by all the changes within my body. not now. i love my body. she is beautiful and has legs to carry me wherever i want to go, hands to paint with, eyes to see the glory that surrounds me. being hit doesn't get me down. it just slows me down.
i was sleeping again yesterday by 9 am. woke at noon and had a very nice rest of the day. it's the antibiotics. they wipe me out. and maybe the magic chill pill for my bladder.
i woke this morning in time to watch the moon set behind the mountain. beautiful. the soft silence of early morning, me all wrapped up in gobs of clothing, outside doing my meditations and breathing. stars fading and soft light coming to the night sky.
funny, no matter how "sick" i get, no matter how much pain manifests i still find such joy in each moment, and so grateful i am here to feel it all, even the pain. hey, as long as i can feel the pain i am still here, ya know? giggle.
thank you all for your kind words, for your support, and the gift of friendship and love so many have chosen to bestow upon me, this one little human, in a world of so many.
peace,
blue
i am touched by your responses. humbled by the words i read.
i forget who asked, sorry, but migraines are migraines. i never associated mine with anything exept the stress currently in my life at the time. got rid of the husband and haven't had a migraine since then. that was 21 years ago.
i agree my little "spells" are a wonderment. what are they? don't know. pointless to worry. i just do my therapy here at home. been thru it so many times i know what to do. giggle. and yes, glojer i am going to see my doctor next week. thought i couldn't read between the lines, didja?? going next monday, blue, not today. giggle. brain? oh brain? where are you???? hmmm, awol again. giggle!
my body and i are in harmony even if the concert was unexpected. in the beginning i felt held hostage by all the changes within my body. not now. i love my body. she is beautiful and has legs to carry me wherever i want to go, hands to paint with, eyes to see the glory that surrounds me. being hit doesn't get me down. it just slows me down.
i was sleeping again yesterday by 9 am. woke at noon and had a very nice rest of the day. it's the antibiotics. they wipe me out. and maybe the magic chill pill for my bladder.
i woke this morning in time to watch the moon set behind the mountain. beautiful. the soft silence of early morning, me all wrapped up in gobs of clothing, outside doing my meditations and breathing. stars fading and soft light coming to the night sky.
funny, no matter how "sick" i get, no matter how much pain manifests i still find such joy in each moment, and so grateful i am here to feel it all, even the pain. hey, as long as i can feel the pain i am still here, ya know? giggle.
thank you all for your kind words, for your support, and the gift of friendship and love so many have chosen to bestow upon me, this one little human, in a world of so many.
peace,
blue