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brclrk80
02-19-2009, 10:37 AM
Does anyone have experience with Symmetrel for fatigue? I asked my neurologist if I could take anything for fatigue and he mentioned this drug. I had to take a blood test before I could be approved to take it. What is that about? Thanks.

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Snoopy61
02-19-2009, 03:59 PM
Amantadine (Symmetrel) is an anti-viral medication used off label to treat MS fatigue. Like anything about MS - it works for some but not others. I don't have any personal experience with Symmetrel so I am not sure the reason for blood work.

Here is some information on Symmetrel:

http://www.nlm.nih.gov/medlineplus/druginfo/meds/a682064.html

PghGuy00
02-19-2009, 05:52 PM
I use Provigil 2x day, Sometimes I think it's working and then sometimes not. ( Go figure ) Also, what I do find that seems to work for me is Aspirin and Caffeine. Somehow the combination seems to do the trick.

Best wishes,

Barbbelle
02-20-2009, 09:46 AM
I take Amantadine once a day and it does help... a little. I love Provigil because it really helps me alot with fatigue, but my insurance won't pay for it. I was told that it costs $1,000/3 months to pay out of pocket. That is impossible for me. The FDA has only approved Provigil for patients who have Narcolepsy or work shift work. I know that some insurances pay for it for MS, but not sure which ones. PghGuy, does your insurance cover it? Also, how 'bout dem Steelas!!! I am still so excited!
Have a great day everyone~!

PghGuy00
02-21-2009, 05:57 AM
Hey Barb;
Fortunately my insurance does cover my Provigil, otherwise it would be ~$1600 every 3 months. My co-pay is negligible. I don't understand how some insurances will pay for it and some don't. My insurance has never questioned what it is being prescribed for.

Yes, the game was awesome!!!! Unbelievable!!!! Somehow I made it to work the following morning but I was pretty much alone on the expressways. I guess a few million slackers cant handle celebrating!! LOL

Take care.

TylerMS88
02-24-2009, 08:39 AM
As with other MS medications, some work while others don't depending on the individual. For me provigil (modafinal) has consistently helped me when I need it most. I have been taking it for the last 3 years. I DO NOT take it daily, i only use it when I need it most. I try to use diet and excercise more, pool therapy has worked extremely well! It helps with keeping the muscle groups active. The pool jets also feel great on the muscles, as a message would. I have tried Amantydine and Amatripalene, neither of which I could withstand their side effects. Good luck to you in finding something that works for you!

tmossbrook
02-24-2009, 09:55 PM
my husband has just started this drug, we hope it helps him as it has you. He does not have a definitive diagnoses but definitely neurological in nature. Fatigue, pain and dizziness, cold sweats are most of his symptoms. Getting his 4th MRI Tuesday with a 3T machine. We are hoping just to get a diagnoses so we know how to proceed. He has had an LP, major blood work multiple MRI's and a sural nerve biopsy all within the last year and a half. Thankyou for your post it helps to know there are others who have similar conditions.





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