Jugi01
02-08-2001, 12:54 AM
I have Berger's Disease or IGA Nepropathy according to doctors when I was about 24 years old. They basically said that I wouldn't need a biopsy to be certain in diagnosing this disease. I am now 28...and I still have a huge amount of RBC's and protein in my urine. Does anyone with this disease know if it alright not to have a biopsy???? MY only concern is that I may have something else...and the doctors and checking it.....
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Lil'Bit
03-15-2001, 04:48 PM
I was diagnosed with IgAN back in September. My doctor was very nonchallant about the diagnosis and basically said that there was really nothing I could do about it until the disease progressed. I researched like mad and found out that there is a ton that I can do. For instance, get a biopsy!!!
You need to get one done for several reasons. One, to verify the diagnosis. Two, the progression. Three, state of mind.
Besides all that, you are seeing a nephrologist right? And also, you need to know your Creatitine level. That determines your kidney function. B/c if it is high you need to look into meds to help. And your BP? Is it low or high? I could go all day but the best piece of advice I can give is to go to this site and join the group. Very informative, friendly people who all have teh same disease in different stages. Best of luck. www.egroups.com (http://www.egroups.com)
You need to get one done for several reasons. One, to verify the diagnosis. Two, the progression. Three, state of mind.
Besides all that, you are seeing a nephrologist right? And also, you need to know your Creatitine level. That determines your kidney function. B/c if it is high you need to look into meds to help. And your BP? Is it low or high? I could go all day but the best piece of advice I can give is to go to this site and join the group. Very informative, friendly people who all have teh same disease in different stages. Best of luck. www.egroups.com (http://www.egroups.com)