If anyone has been dealing with PKD, can you tell me if six months is an appropriate waiting period to check progression and, if so, is a blood test adequate to make this check?

Hi,

Six months sound a reasonable period to wait, unless of course you are having problems?

If you have fever, blood in your urine or are having pain in your back, loins and possibly belly, then you should see your doc before then.

Is your disease mostly under control? Your doc should be able to tell if everything is ok by blood work and possibly a urine dip. The blood work will tell him your Creatinine, Urea, Na+, Ca++ and K+ levels, so that he can alter any meds that he needs to and to further tests if needed as well.

Hope this helps?


Sarah

My husband has PKD, and his doc said after you have all of your tests...(cat scans, blood work, etc.), then annually they will check your creatitine, and BUN....
(This IF your kidney function is at 100 %...my husband just got diagnosed, but I have found many answers....hope this helps...

hi, yes sounds bout right, thats the way docs did me for awhile.....that was few yrs back. now im on dialysis....pd.....much better then the machine.me and my sister are on dialysis she 14 yrs me 4....well not much else to say but pleaseeeee do what docs tell you do your meds right. eat right. because once you on dialysis its hard to go back and you take 4 times as much meds as before.....take care.....pooh