lexie 2
03-01-2009, 11:48 PM
i have electrical shock like feeling going down my spine and leg. when it's really bad it causes my leg to jump and makes it hard to walk. the electrical feeling goes throughout my entire body with any type of movement and or loud sounds, but the strongest feeling is down my spine and leg. while all this is happening i lose consentration, my words, my ability to stay focused this lasts from 3 days to a week and a half then goes away for a month or two lately when it comes back it has been worse. i just want to go to bed and not move a speck, i feel like i will go mad. i can't make myself move as fast as i used to and i'm so tired that i ach. does anyone else experance this and has it turned out to be m? that's what my doctor thinks it is but ofcourse i have to have a mri for which i'm now waiting for this is my first posting and would love to hear from anyone thanks
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MSJayhawk
03-02-2009, 12:51 AM
Yes, I have been there and I experience many symptoms daily. You are not crazy, though you may feel that at times. MS is not fatal. It does, however, slow you down.
You may need to make lifestyle changes. I have endured my MS (med-free) for at least 30 years from when my first symptoms appeared. I have learned to listen to my body and learn my triggers. Triggers are those things which can cause flare-up's. For me, some of my triggers are temperature, lack of rest, etc. You need to discover your own triggers.
For me, when I have cognitive problems, I rest my mind. I read and study to keep my mind exercised. I also stretch my muscles as well as use a passive exercise machine. Though I am not well as I once was, I live one day at a time.
Set goals for yourself which are obtainable. As you progress, make the goal a little harder, but do not blame yourself if you can not accomplish what you want. Be proud of being able to accomplish what you can.
I know that without my personal journey with my Creator, I would be lost. Each day I know that I am blessed.
I truly hope you have something which is treatable, but should you have MS, keep coming here to be among your fellow MS gals and guys. In the meanwhile, I will keep you in my prayers. :angel:
You may need to make lifestyle changes. I have endured my MS (med-free) for at least 30 years from when my first symptoms appeared. I have learned to listen to my body and learn my triggers. Triggers are those things which can cause flare-up's. For me, some of my triggers are temperature, lack of rest, etc. You need to discover your own triggers.
For me, when I have cognitive problems, I rest my mind. I read and study to keep my mind exercised. I also stretch my muscles as well as use a passive exercise machine. Though I am not well as I once was, I live one day at a time.
Set goals for yourself which are obtainable. As you progress, make the goal a little harder, but do not blame yourself if you can not accomplish what you want. Be proud of being able to accomplish what you can.
I know that without my personal journey with my Creator, I would be lost. Each day I know that I am blessed.
I truly hope you have something which is treatable, but should you have MS, keep coming here to be among your fellow MS gals and guys. In the meanwhile, I will keep you in my prayers. :angel:
lexie 2
03-02-2009, 11:16 PM
Yes, I have been there and I experience many symptoms daily. You are not crazy, though you may feel that at times. MS is not fatal. It does, however, slow you down.
You may need to make lifestyle changes. I have endured my MS (med-free) for at least 30 years from when my first symptoms appeared. I have learned to listen to my body and learn my triggers. Triggers are those things which can cause flare-up's. For me, some of my triggers are temperature, lack of rest, etc. You need to discover your own triggers.
For me, when I have cognitive problems, I rest my mind. I read and study to keep my mind exercised. I also stretch my muscles as well as use a passive exercise machine. Though I am not well as I once was, I live one day at a time.
Set goals for yourself which are obtainable. As you progress, make the goal a little harder, but do not blame yourself if you can not accomplish what you want. Be proud of being able to accomplish what you can.
I know that without my personal journey with my Creator, I would be lost. Each day I know that I am blessed.
I truly hope you have something which is treatable, but should you have MS, keep coming here to be among your fellow MS gals and guys. In the meanwhile, I will keep you in my prayers. :angel:
hi there thankyou so much for the words of encouragement. i can't tell you how much they ment to me. i will take your advice but one thing i'm not sure how to is to relax my mind. my thoughts never stop, except when i'm doing something like this, which by the ways really helps. i do have a personal relationship with my creator, my God, i can't imagin my life without that, regardless of my health issues. thanks again and i will be back and to all who read this i will let you know if it is ms or not. my doctor has also said it could be a tumer or brain cancer but really believes it's ms. i think waiting to find out what it is, just may do me in well not really thanks msjayhawk for your reply lexie 2
You may need to make lifestyle changes. I have endured my MS (med-free) for at least 30 years from when my first symptoms appeared. I have learned to listen to my body and learn my triggers. Triggers are those things which can cause flare-up's. For me, some of my triggers are temperature, lack of rest, etc. You need to discover your own triggers.
For me, when I have cognitive problems, I rest my mind. I read and study to keep my mind exercised. I also stretch my muscles as well as use a passive exercise machine. Though I am not well as I once was, I live one day at a time.
Set goals for yourself which are obtainable. As you progress, make the goal a little harder, but do not blame yourself if you can not accomplish what you want. Be proud of being able to accomplish what you can.
I know that without my personal journey with my Creator, I would be lost. Each day I know that I am blessed.
I truly hope you have something which is treatable, but should you have MS, keep coming here to be among your fellow MS gals and guys. In the meanwhile, I will keep you in my prayers. :angel:
hi there thankyou so much for the words of encouragement. i can't tell you how much they ment to me. i will take your advice but one thing i'm not sure how to is to relax my mind. my thoughts never stop, except when i'm doing something like this, which by the ways really helps. i do have a personal relationship with my creator, my God, i can't imagin my life without that, regardless of my health issues. thanks again and i will be back and to all who read this i will let you know if it is ms or not. my doctor has also said it could be a tumer or brain cancer but really believes it's ms. i think waiting to find out what it is, just may do me in well not really thanks msjayhawk for your reply lexie 2
MSJayhawk
03-03-2009, 12:50 AM
I read to relax my mind. If you really need to zero-out your brainwaves, veg out in front of a TV. Studies indicate that watching TV lowers your brain activity. Pop you favorite DVD/Tape in and watch it. When I was at my worst, I watched several DVD's. It did help as I never finished any movie without falling asleep.
lexie 2
05-12-2009, 10:48 PM
hi all I wish i could just stop dx'ing myself. i first came to this health board a couple of months ago when my Dr. told me that i may have ms. since then i have being reading this board almost everyday. i read one post and i say oh that's me i must have ms, and then another and i don't have it. i know this can't be helping to keep me sane, but it does help to read and know that i'm not alone, in dealing with difficult and painful health issues. I haven't even had my first mri, but i'm 53 so if I do have ms wouldn't i have already been dx'ed by now? I have over the years had things go numb, problems with my left foot dropping, my bowel's moving with out my knowing or feeling it except for the obvious, and other things but they come and go, and when gone out of mind. but lately and what caused my Dr. to even sujest that i may i ms is that i have a very strong electrical like feeling going though me, that get's so bad that it causes my leg to jump so bad it become unsafe to walk. and when this is happening my concentration becomes so bad that i can't focus or even process the slightest little thing. I start biting my tongue, because my jaw becomes so stiff, infact everything feels stiff almost a frozen like feeling. the thing is, that it come and can last up to a week and then it's gone as if it had never happened. I can go a week or two and feel perfectly fine then it's back again. Has this happened to anyone else? And if so, do you know what it is? I'm thinking because of my age that i don't have ms but i would like to know what it is that i do have. or maybe i'll just stop dx'ing myself. my mri is july 6th and i have a ap with my jp soon so i think i'll get him to book me a ap. with a neurologist right away so i don't have to wait so long after the mri. if i don't need the ap. it can be cancel. now i'm just rambling. any help out there? i would love it thanks i know this is very much like my first post because i just read it. sorry for that maybe i just need to vent i don't even know if this is how i post something new except to go back to my previous post hope i'm doing this right it comes with being old:confused:
MSNik
05-13-2009, 08:07 PM
Hi Lexie. No one minds if you vent- thats why we are here....Im glad to hear you are reading our posts daily- thats a good way for you to get informed and learn more about MS ; however, that being said. What else are you reading? Its incredibly bad to "think" you have any disease based on what you are reading...
Few things you should know. MS can strike at any age at all...and most of us, when we were dx with MS found out we probably had it for many, many years then we knew about...its just that it takes so long for some symtoms to present themselves, that until they do, we have no idea that the damage is being done. I was 39 when I was dx. I know of others who were dx in their late teens and a few who were dx in their 50s and 60s...so - no, you are not too old.
Next, you should know that your symtoms can be any number of things. The criteria for an MS dx is very specific...are you familiar with the mcDonald Criteria? You might want to read up on it..thats what your doctor will use to dx you..and there is absolutely no way until you have that MRI for them to know what they are looking at, or if MS is even a consideration. MS is dx when everything else is ruled out and there are so many things that present like MS- your taking a gamble playing this "I think I have " game.
Finally, MS symtoms do come and go. Thats one of the stages anyway. Relapasing/Remitting MS is the most popular form of MS and 85% of us are dx with it...basically its just like the name implies, it comes and goes...we feel great, we feel terrible. Symtoms come, go- return- somtimes forever, sometimes randomly...its a mystery disease. AND important to know- no two cases of MS are alike. They call it the snowflake disease for that reason.
SO whatever you read MIGHT sound like you - but it would be really crazy if someone was exactly like you. Its not likely to happen....similar in many ways, yes- but exactly isnt common. You should probably stop self diagnosing and start thinking about keeping a journal of all your symtoms. When they happen, how long they last- if anything (tylenol, ice) helps to relieve them...that sort of thing. It will help your doctor with your history and physical, which should be a big part of your first visit.
I wish you well...and do not feel like youre doing anything wrong. Your not, and its natural to be looking for answers. But instead of beating yourself up, congratulate yourself for taking the first step and making the appointments to find out what is really going on.
Keep us posted.
Nikki
Few things you should know. MS can strike at any age at all...and most of us, when we were dx with MS found out we probably had it for many, many years then we knew about...its just that it takes so long for some symtoms to present themselves, that until they do, we have no idea that the damage is being done. I was 39 when I was dx. I know of others who were dx in their late teens and a few who were dx in their 50s and 60s...so - no, you are not too old.
Next, you should know that your symtoms can be any number of things. The criteria for an MS dx is very specific...are you familiar with the mcDonald Criteria? You might want to read up on it..thats what your doctor will use to dx you..and there is absolutely no way until you have that MRI for them to know what they are looking at, or if MS is even a consideration. MS is dx when everything else is ruled out and there are so many things that present like MS- your taking a gamble playing this "I think I have " game.
Finally, MS symtoms do come and go. Thats one of the stages anyway. Relapasing/Remitting MS is the most popular form of MS and 85% of us are dx with it...basically its just like the name implies, it comes and goes...we feel great, we feel terrible. Symtoms come, go- return- somtimes forever, sometimes randomly...its a mystery disease. AND important to know- no two cases of MS are alike. They call it the snowflake disease for that reason.
SO whatever you read MIGHT sound like you - but it would be really crazy if someone was exactly like you. Its not likely to happen....similar in many ways, yes- but exactly isnt common. You should probably stop self diagnosing and start thinking about keeping a journal of all your symtoms. When they happen, how long they last- if anything (tylenol, ice) helps to relieve them...that sort of thing. It will help your doctor with your history and physical, which should be a big part of your first visit.
I wish you well...and do not feel like youre doing anything wrong. Your not, and its natural to be looking for answers. But instead of beating yourself up, congratulate yourself for taking the first step and making the appointments to find out what is really going on.
Keep us posted.
Nikki
lexie 2
05-14-2009, 12:22 AM
hi nikki you probably figured out that i messed up when trying to write a new post. i seem to write when i'm really messed up, and couldn't for the life of me remember how to write a new post. thank you so much for your reply. your kind words seamed to help melt away some of the anxiety worry and fear, and i cried for the first time since i was told that i have may have ms. i can't tell you how much i needed that. thank you. I've read 2 articles and all they really had to offer was a list of symptoms and one said that ms on an average strikes between the years of 20-40. what you wrote has been more helpful than either of them, other than that i have been reading on this health board. I will read up on the mcDonald criteria. and yes i will start keeping a journal of all my symptoms. now is as good a time as any, since i'm once again in a bad way. in the past 10 years lupus, heart and lung disease have been ruled out, so i guess i'm not really just beginning. it's just that when i feel like i do now, it's devastating to think that i still have to wait almost to 2 months for the MRI. i'm sure all that read this will have had their share of waiting, while at their lowest. well once again thank you so much. tonight i feel like i have just received a letter from my best friend. please take care
MSNik
05-14-2009, 10:12 PM
Hey Lexie, youre welcome. And, if you need a cyber best friend- Im here! Your going to do fine...this is not something that you are the first to go through, believe it or not, we have all survived it! You will, too.
Im sorry you are having such a rotton time of it, but honestly, no matter what- you will survive this. MS is NOT nearly the worse thing in the world to have!!
If you need me (us) shout out....we get it. Trust me, We get it!!
Dont over-think this, or over read yourself silly, okay? Ask questions, but truly, do not believe everything you read on the internet. Remember, most of it is outdated and if you cant verify who wrote it , then it was probably not written by a trustworthy source...Hang in there Lexie....youre going to be fine!
Hugs,
nikki
Im sorry you are having such a rotton time of it, but honestly, no matter what- you will survive this. MS is NOT nearly the worse thing in the world to have!!
If you need me (us) shout out....we get it. Trust me, We get it!!
Dont over-think this, or over read yourself silly, okay? Ask questions, but truly, do not believe everything you read on the internet. Remember, most of it is outdated and if you cant verify who wrote it , then it was probably not written by a trustworthy source...Hang in there Lexie....youre going to be fine!
Hugs,
nikki