Lisa_P
03-02-2009, 03:13 PM
On Feb. 8, I had about 20-30 minutes of "blocked" vision -- the center got occluded and sparkly to where I just couldn't see what I was looking at. Then the center got clear and the peripheral disappeared for about 10 minutes. Then it was all over and everything was back to normal. I had little niggly headaches that moved around from placed to place (nothing specific, or intense). And the vision disturbances happened about 5 more times in the following week. I got in to the doctor on the 16th. He put me on this "Burst & Taper" routine with Prednisone and today's my last pill, so that's that. However, I DID have a recurrence of the occlusion stuff on the 22nd. I just hope it's over now.
Last time I went through this routine with the oral prednisone, I really really got messed up so I'm praying this truly is the end today. About a month after I finished the drugs before, I ended up getting a non-stop heavy period that last 16 months. Maybe one or two breaks in that time for a day or two. So.
DO NOT REPEAT THIS HISTORY! YOU BETTER HEAR ME, BODY!!
Last time I went through this routine with the oral prednisone, I really really got messed up so I'm praying this truly is the end today. About a month after I finished the drugs before, I ended up getting a non-stop heavy period that last 16 months. Maybe one or two breaks in that time for a day or two. So.
DO NOT REPEAT THIS HISTORY! YOU BETTER HEAR ME, BODY!!
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MSJayhawk
03-02-2009, 03:18 PM
Sorry to hear about your visual problems. I hope you get through the steroid effects soon too. :angel: Spring is just around the corner. For me, spring is usually a nice season for my MS.
Bearygood
03-02-2009, 03:57 PM
Lisa, I'm unclear -- were you officially dxed with ON? I sincerely don't mean to alarm you but I'm asking because according to the studies, being treated by oral steroids alone is actually not recommended. If you're interested in learning more you can research the Optic Neuritis Treatment Trials (ONTT).
I hope you get better soon!
I hope you get better soon!
Lisa_P
03-03-2009, 12:56 PM
Well, he gave me an injection at the office, THEN started the orl steroids...
ArtyTart17
03-10-2009, 07:30 AM
Lisa, I'm unclear -- were you officially dxed with ON? I sincerely don't mean to alarm you but I'm asking because according to the studies, being treated by oral steroids alone is actually not recommended. If you're interested in learning more you can research the Optic Neuritis Treatment Trials (ONTT).
I hope you get better soon!
hi, Good point Bearygood, I have only had ON once and I was treated with ACTH [adreno-cortico-trophic-hormone] big brother to Predisone, 2 injections per day over a 40 day period. I am also concerned that the Prednisone is effecting your hormones to the extent of having an extended menstrual period. This reaction to any MS medication is not to my knowledge normal.:confused:
I had ON 25 years ago and the Dr's can still see what they call an opaque disc, this is the retinal disc - a bunch of exposed nerves, that gathers and sends information to the brain regarding vision. This is the only part of the body where the nerves can be viewed. In an optic neuritis event the disc dies and effectively goes white if the loss of sight is total. It took me over a year to even recover a glimmer of light, as the nerves regained some blood supply and the healing started. I have 6/20 vision in the left eye now.
Whatever your diagnostic outcome I sincerely hope that you have courage, strength, patience and wisdom to deal with the outcome.
Tanya dx. 1984
:angel:
I hope you get better soon!
hi, Good point Bearygood, I have only had ON once and I was treated with ACTH [adreno-cortico-trophic-hormone] big brother to Predisone, 2 injections per day over a 40 day period. I am also concerned that the Prednisone is effecting your hormones to the extent of having an extended menstrual period. This reaction to any MS medication is not to my knowledge normal.:confused:
I had ON 25 years ago and the Dr's can still see what they call an opaque disc, this is the retinal disc - a bunch of exposed nerves, that gathers and sends information to the brain regarding vision. This is the only part of the body where the nerves can be viewed. In an optic neuritis event the disc dies and effectively goes white if the loss of sight is total. It took me over a year to even recover a glimmer of light, as the nerves regained some blood supply and the healing started. I have 6/20 vision in the left eye now.
Whatever your diagnostic outcome I sincerely hope that you have courage, strength, patience and wisdom to deal with the outcome.
Tanya dx. 1984
:angel: