lilsunshine46
03-19-2009, 02:26 PM
My 15 year old has been having episodes of her face flushing and her eyes swelling , kind of like eyes bagging. She also has diareah{Spelling} and abdominal pain and nausea along with this. Unfortunately she is not a stranger to the nausea , she has had it for so long she can't remeber a day she hasn't had it. She had a large ovarian "mass" 3 yrs ago which turned out to be a series of compex cysts{benign} when the drs got in there for surgery. This is aftyer the poor child had lost 20 lbs!
Abdominal pain , she has already passed at least 3-5 kidney stones. So she knows what it feels like,she was also born with a congenital kidney problem requiring surgery.
Now her Derm Dr says she should be worked up for Lupus or fLushing syndromes to check for adrenal tumors or carcinoid tumors hiding in her body. She has been ill for so long, tired all the time , this is taking it's toll on her. I wonder if anyone else know what could cause the flushing. I am taking her to the Ped dr today.
Abdominal pain , she has already passed at least 3-5 kidney stones. So she knows what it feels like,she was also born with a congenital kidney problem requiring surgery.
Now her Derm Dr says she should be worked up for Lupus or fLushing syndromes to check for adrenal tumors or carcinoid tumors hiding in her body. She has been ill for so long, tired all the time , this is taking it's toll on her. I wonder if anyone else know what could cause the flushing. I am taking her to the Ped dr today.
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lilsunshine46
03-21-2009, 12:41 PM
She came home from school yesterday and the same thing, flushed face and loose stools{can't spell diareah?} . She even remarked to me, "Mom why is it that everytime I get the same thing?" I hadn't told her too much about this although 2 weeks ago on House the main character had carcinoid syndrome with it being on her appendix. I can't help but wonder if this is not the case with my daugher? She even got a weird bubbly rash on her chest about a month ago, then the next morning she wakes up with the flushed face. She also got Strep throat for the 1st time in her life.
Memmy99
03-25-2009, 04:52 PM
I have Carcinoid Cancer and a lot of these symptoms that you are describing could be attributed to a carcinoid tumor. Not before you get worked up please know the this is a VERY rare cancer. Unfortunately that is one of the major downsides. Because of it's rarity it is misdiagnosed 90% of the time. It is often confused with chrons disease or IBS.
The good news is that it is a very slow cancer. In fact I am coming up on my 2 yr dx anniversary of stage 4 carcinoid cancer and I am in great health. In fact, you wouldn't guess it by looking at me.
The first thing you should do is discuss this with your pcp and have her tested. There are simple blood tests and the 5hiaa urine test that are quick and useful in the diagnosis of this cancer. You can also go the caring for carcinoid foundation's website. They have a ton of information and a doctor database. If it does turn out to be carcinoid cancer make sure you get a specialist.
If you have any questions feel free to ask. Not sure if this board will let you send PM's or not.
The good news is that it is a very slow cancer. In fact I am coming up on my 2 yr dx anniversary of stage 4 carcinoid cancer and I am in great health. In fact, you wouldn't guess it by looking at me.
The first thing you should do is discuss this with your pcp and have her tested. There are simple blood tests and the 5hiaa urine test that are quick and useful in the diagnosis of this cancer. You can also go the caring for carcinoid foundation's website. They have a ton of information and a doctor database. If it does turn out to be carcinoid cancer make sure you get a specialist.
If you have any questions feel free to ask. Not sure if this board will let you send PM's or not.
lilsunshine46
03-26-2009, 09:04 AM
Thanks, she is doing the 24 hour urine test this weekend. Cross your fingers. Her MRI came back basically a washout due to her braces and "appliance" in her upper mouth. It does clearly show the absence of septum pellucidium {which we knew about} it is a birth defect that we found out about when she was 10. She is an Honor student though which is why feeling crummy all day in school and coming home and crashing is not good. It doesn't get that AP History homework done. After the 24 urine test they will do the blood tests and CT. She just had a renal lasik , her kidney is functuioning about like it usually is so no new problems.
I have scoured the internet which I know is not always a good thing. Her drs are great sources of info too.
Thank you for helping, personal input is always a great help too,
I have scoured the internet which I know is not always a good thing. Her drs are great sources of info too.
Thank you for helping, personal input is always a great help too,