PastorRobbie
03-24-2009, 12:41 AM
Hi,
I'm a 40 year old male from South Mississippi. I pastor a church full-time. I was diagnosed through MRI last year with disc herniation at the C5 - C6 and C6 - C7 levels with Spinal Cord Compression. My pain has progressed, as well as problems with my left hand. Lately I've begun having problems with my grip. I've dropped small things such as a microphone, drinking glass, etc with that hand. My pain is the worst problem. As of late it's increased greatly. I do not like taking pain meds, but I've had no choice over the past couple of weeks. I've about made up my mind to proceed with the Fusion Surgery, however I've heard some pretty bad stories and I'm really wanting to make the right decision in this matter. I have a Fused Right Hip from an accident as a teenager, so I completely understand the concept of joint fusion, but I don't want to do something that's going to cause me to be worse off then than I am now.
Can anyone give any insight into this situation. As of now, due to the pain, I'm leaning hard toward the fusion perhaps as early as April.
I look forward to your input.
Thanks & God Bless,
Pastor Robbie
I'm a 40 year old male from South Mississippi. I pastor a church full-time. I was diagnosed through MRI last year with disc herniation at the C5 - C6 and C6 - C7 levels with Spinal Cord Compression. My pain has progressed, as well as problems with my left hand. Lately I've begun having problems with my grip. I've dropped small things such as a microphone, drinking glass, etc with that hand. My pain is the worst problem. As of late it's increased greatly. I do not like taking pain meds, but I've had no choice over the past couple of weeks. I've about made up my mind to proceed with the Fusion Surgery, however I've heard some pretty bad stories and I'm really wanting to make the right decision in this matter. I have a Fused Right Hip from an accident as a teenager, so I completely understand the concept of joint fusion, but I don't want to do something that's going to cause me to be worse off then than I am now.
Can anyone give any insight into this situation. As of now, due to the pain, I'm leaning hard toward the fusion perhaps as early as April.
I look forward to your input.
Thanks & God Bless,
Pastor Robbie
Sponsor
neckpatient
03-24-2009, 12:47 AM
Pastor Robbie - pain shouldn't be your driving force for your case, the mere fact that you have spinal cord compression and are already losing function is what you should focus on! I am not a doctor and don't see your MRI here, but if you have spinal cord compresion and the surgeon is saying fix it, then get going!
PastorRobbie
03-24-2009, 12:52 AM
Thank you for your reply.
Perhaps I have ignored the seriousness of it until now. I've been battling it for sometime, but now the symptoms are progressing. The doctor has informed me that I am running the risk of permanent nerve damage, but I've been so busy that I just haven't taken the time to do it. I'm ready to make the time now, as I can't function like this.
Can anyone give me realistic insight into what recovery will be like and what to expect? How long is an average recovery in a case like this? How long before I can preach again?
Perhaps I have ignored the seriousness of it until now. I've been battling it for sometime, but now the symptoms are progressing. The doctor has informed me that I am running the risk of permanent nerve damage, but I've been so busy that I just haven't taken the time to do it. I'm ready to make the time now, as I can't function like this.
Can anyone give me realistic insight into what recovery will be like and what to expect? How long is an average recovery in a case like this? How long before I can preach again?
PastorRobbie
03-24-2009, 01:18 AM
Well, after spending a few minutes on this board and reading some of the threads, I realize now more than ever that I need to proceed with the surgery. I don't want any further damage. I'm thinking about all of the risks during surgery and the recovery, but I know I'll be fine. My faith is strong!
neckpatient
03-24-2009, 06:15 AM
Do you have the name of the surgery? Perhaps ACDF? At what levels? If this procedure- it is a very common surgery.
Your health comes first, you cannot be of help to your church if you do not take care of you. If you are generally healthy you could possibly be up and doing Sunday services within a few weeks a little longer to resume all duties.
Your health comes first, you cannot be of help to your church if you do not take care of you. If you are generally healthy you could possibly be up and doing Sunday services within a few weeks a little longer to resume all duties.
Bobbyboo
03-24-2009, 11:12 AM
I can empathise and am sorry you are in so much pain.
Medically, as far as I understand it although I am not a doctor, the longer you leave herniations with cord compression, the more chance there will be that the damage will be permanent or take longer to heal when surgery is evenutally performed. My consultant told me that after 2 years of pain, 6 months of those in a lot of pain and 1 month excrutiating agony, that the chances of the herniation healing of its own accord were remote.
I had ACDF surgery 6 weeks ago and feel I am progressing really well although only time will really tell. To date, I am pleased I have had the op and my recovery has been good. It is great to be relatively pain free and to sleep in any position I choose without going into spasms of agony. I only had one level fused and he used an artificial cage rather than my own bone. This is only my own experience and I know that other people haven't had as seamless recoveries. You can read about different recoveries on this board and everyone is really helpful.
Only you can ultimately decide but I would take your consultant's advice seriously.
Good luck, Bobbyboo
Medically, as far as I understand it although I am not a doctor, the longer you leave herniations with cord compression, the more chance there will be that the damage will be permanent or take longer to heal when surgery is evenutally performed. My consultant told me that after 2 years of pain, 6 months of those in a lot of pain and 1 month excrutiating agony, that the chances of the herniation healing of its own accord were remote.
I had ACDF surgery 6 weeks ago and feel I am progressing really well although only time will really tell. To date, I am pleased I have had the op and my recovery has been good. It is great to be relatively pain free and to sleep in any position I choose without going into spasms of agony. I only had one level fused and he used an artificial cage rather than my own bone. This is only my own experience and I know that other people haven't had as seamless recoveries. You can read about different recoveries on this board and everyone is really helpful.
Only you can ultimately decide but I would take your consultant's advice seriously.
Good luck, Bobbyboo
want a good out
03-24-2009, 12:05 PM
I would/did have surgery. Pain and pain meds are no fun... well, maybe for a little while. LOL. No, really, I did have the surgery and am glad I did. Fused c4-5, c5-6 and c6-7 with donor bone, a plate and 8 screws. I had mild cord compression and was symptomatic from it. I think the key to a GOOD OUTCOME is an "awesome surgeon" AND following the restrictions set forth. Good Luck, we know God is with you... You were directed here...
want a good out
03-24-2009, 12:13 PM
Thank you for your reply.
Can anyone give me realistic insight into what recovery will be like and what to expect? How long is an average recovery in a case like this? How long before I can preach again?
Your recovery will depend on the extent of what is done. I work as a Nurse and was told I'll be off 3 mo. The pain in not bad at all and when you feel like you want a break from it, you will have your pain meds to fall back on. Swallowing may be difficult for a little while, but that too passes. 3 mo. of recovery was worth the rest of my life functionong.......
Can anyone give me realistic insight into what recovery will be like and what to expect? How long is an average recovery in a case like this? How long before I can preach again?
Your recovery will depend on the extent of what is done. I work as a Nurse and was told I'll be off 3 mo. The pain in not bad at all and when you feel like you want a break from it, you will have your pain meds to fall back on. Swallowing may be difficult for a little while, but that too passes. 3 mo. of recovery was worth the rest of my life functionong.......
cjlivinlife
03-24-2009, 03:37 PM
PastorRobbie......good luck with whatever you decide to do. I can tell you that I chose having the surgery early on. I had spinal cord compression and was told not to do anything where I might fall or jerk my head because I could end up with bigger problems. Because I am so active I decided right away it was better to have the surgery than to sit on the couch the rest of my life. I had a 2 level fusion of C5-6 C6-7 with hardward and I am now 5 weeks post op and I am going back to work tomorrow. I know that if I talk a lot my voice gets tired and hoarse but I am sure that will continue to get better. I can see that I am getting better every day and I have high hopes that I will fully recover. Don't get me wrong there was pain mostly with the neck and shoulder muscles and the tightness and then building the muscles back up that got lazy from wearing the collar. You do have to be careful and do what the dr says to do and most importantly get a doctor that you trust and feel comfortable with.
Good luck to you and I will keep you in my prayers.
:angel:
Well, after spending a few minutes on this board and reading some of the threads, I realize now more than ever that I need to proceed with the surgery. I don't want any further damage. I'm thinking about all of the risks during surgery and the recovery, but I know I'll be fine. My faith is strong!
Good luck to you and I will keep you in my prayers.
:angel:
Well, after spending a few minutes on this board and reading some of the threads, I realize now more than ever that I need to proceed with the surgery. I don't want any further damage. I'm thinking about all of the risks during surgery and the recovery, but I know I'll be fine. My faith is strong!
jennybyc
03-24-2009, 06:41 PM
Pastor, I'll make this real easy for you. Live nerves scream and kick and make lots of pain. Dying nerves cause numbness and muscles that slowly stop working. If you don't remove the pressure that's killing the nerves they will die and your left hand will become permanently paralyzed. Don't operate because of the pain, operate to stop the progression of the paralysis. You may get a lot of function back if no permanent damage has been done but at least they will stop the damage from going further.
I am fused from C3 to T1 and had cord compression at 4 levels. I had almost no pain but was losing the ability to walk and losing the use of both hands(it's an actual syndrome known as Clumsy Hand Syndrome). I was one jerk of my neck from being paralyzed from the waist down and both hands and wrists. I recovered a lot of function but not all but it beats a wheelchair and catheters for the rest of my life.
blessings.............Jenny
I am fused from C3 to T1 and had cord compression at 4 levels. I had almost no pain but was losing the ability to walk and losing the use of both hands(it's an actual syndrome known as Clumsy Hand Syndrome). I was one jerk of my neck from being paralyzed from the waist down and both hands and wrists. I recovered a lot of function but not all but it beats a wheelchair and catheters for the rest of my life.
blessings.............Jenny
sammyo1
03-25-2009, 09:07 AM
It sounds like your going to proceed with the surgery. I dont think you will be left a choice in the long run even if you chose to put it off you would end up having it sooner or later. Sooner will help you to avoid perm. damage.
As far as work goes your surgoen will guide you. My surgeon said it really depends on what kind of work you do as to when you can return. If its not real physical then you may return sooner then someone with a different type of job. You already have a head start, a great relationship with god.
You need to make sure your with a surgeon you trust & have faith in.
Afterwards your recovery will depend on you, how well you take care. Its along recovery. Everyone is different of course & everyones problems to start with are different. Even though I may have herniations & the next person has the same, there are other factors such as how long someone has had this problem, what all is involved such as other discs, nerves the spinal cord & so on...sometimes once the surgeon get in there other things are found.
The most important thing here is you & I am sure you want to be able to give others the best you have to give & that requires you to be the best you can be. With that being said you may have to just focus on you & not worry so much about your job. I still over see my work & I can tell you first hand that it does interfer with how I feel. No matter what kind of work we do there is always the need to do it well & that can lead to stress. Stress can hinder any recovery. I can see why your concerned with how soon you can get back to work, as you have a wonderful job. Good luck pastor & god bless, Sammy
As far as work goes your surgoen will guide you. My surgeon said it really depends on what kind of work you do as to when you can return. If its not real physical then you may return sooner then someone with a different type of job. You already have a head start, a great relationship with god.
You need to make sure your with a surgeon you trust & have faith in.
Afterwards your recovery will depend on you, how well you take care. Its along recovery. Everyone is different of course & everyones problems to start with are different. Even though I may have herniations & the next person has the same, there are other factors such as how long someone has had this problem, what all is involved such as other discs, nerves the spinal cord & so on...sometimes once the surgeon get in there other things are found.
The most important thing here is you & I am sure you want to be able to give others the best you have to give & that requires you to be the best you can be. With that being said you may have to just focus on you & not worry so much about your job. I still over see my work & I can tell you first hand that it does interfer with how I feel. No matter what kind of work we do there is always the need to do it well & that can lead to stress. Stress can hinder any recovery. I can see why your concerned with how soon you can get back to work, as you have a wonderful job. Good luck pastor & god bless, Sammy
Surgery042909
03-25-2009, 12:06 PM
Hi!
I face this surgery on April 29th. I am a 45 year of female and I have reached the conclusion, like PastroRobbie that I have to do this the alternative and progression of symptoms is definetly not appealing.
I have myelopathy caused by herniated discs at C4-5,C5-6 and C6-7. The cord compression at C4-5 is slightly crescent shape so a little beyond flat. In sept my MRI showed just the herniations with no cord involvement and then in Feb the severe compression. MY GP was doing yearly pictures to watch the discs but when my symptoms changed/increased in Feb he sent me off to the MRI and immediately to a neurosurgeon. He told me before I even left his office to expect to hear surgery because we exhausted all the options over the years while watching the discs.
I am interested to know what the range of movement is with a fusion of C4-7. Also what to expect following surgery. I am lucky and thankful that my symptoms are not extensive (pain in left chest, down arm, across back shoulders with some minor lose of function in the left arm which I have dealt with for years but now my left leg spasms, some upper leg pain and annoying urgent visits to the bathroom)
Thanks for any insight and words to releive some of my surgery anxiety.
Judi
I face this surgery on April 29th. I am a 45 year of female and I have reached the conclusion, like PastroRobbie that I have to do this the alternative and progression of symptoms is definetly not appealing.
I have myelopathy caused by herniated discs at C4-5,C5-6 and C6-7. The cord compression at C4-5 is slightly crescent shape so a little beyond flat. In sept my MRI showed just the herniations with no cord involvement and then in Feb the severe compression. MY GP was doing yearly pictures to watch the discs but when my symptoms changed/increased in Feb he sent me off to the MRI and immediately to a neurosurgeon. He told me before I even left his office to expect to hear surgery because we exhausted all the options over the years while watching the discs.
I am interested to know what the range of movement is with a fusion of C4-7. Also what to expect following surgery. I am lucky and thankful that my symptoms are not extensive (pain in left chest, down arm, across back shoulders with some minor lose of function in the left arm which I have dealt with for years but now my left leg spasms, some upper leg pain and annoying urgent visits to the bathroom)
Thanks for any insight and words to releive some of my surgery anxiety.
Judi
sammyo1
03-25-2009, 01:44 PM
Hello Judy, you would probably be better off putting your own thread up as I am interested in your symptoms. I have alot of the chest pain & you dont always hear that to often. You have alot of the symtoms I possess. I keep an eye up for a thread started by you. Sammy
jennybyc
03-25-2009, 02:09 PM
Hi Judi.
You'll probably end up with a fusion much like mine going from above the problem to below it. I'm C3 to T1 and my problems went from C4 to C7.
My biggest problems after surgery were pain...pretty obvious and getting used to wearing this big fixed ,hard collar. I knew to expect those but it's what I didn't expect that was hard. Fixing that much of your neck in place tends to throw you off balance. You don't realize just how much you head moves as you walk to compensate for balance and it can no longer move as much. My fusion was done in the dead of winter so once I could get outside and walk on the grass I practiced all the time walking on uneven ground and small ups and downs to get some of my balance back. It really helped me feel more secure.
The other thing that took a long time to deal with was muscle pain from not being used. They can just ache so badly because you're not using them. Your neck is not turning! In PT they used electric stimulation to use the muscles and tire them out and that helped. I later went to isometric types of exercises to use the muscles and get then tired and less painful. Now, after 2+ years, they have significantly atrophied and no longer scream at me. they have gotten use to little or no action. I remember having a cast on my leg for 3 months after a knee surgery and my leg muscles screamed the whole time. They wanted to work and I couldn't let them.
My situation was a little different from most so I'm not going into details but sharing what I think you might go through that we'd share. Oh and I hope you have someone around to scratch your neck from the top of the scar to the bottom if it's on the back. It itches!
As far as range of motion, yes, it is reduced but not by as much as you'd think. I could still drive and do just about anything I wanted to. Can't touch my chin to my chest or go way back and I have reduced movement to the left but my right side is pretty normal. Luckily, most of the movement of your head is located in the top 2 vertebrae. And do be careful. I have recently herniated that final disk between C2 and C3(no disk between 1 and 2) and I may have to have my fusion extended upwards and I will lose a lot of my head movement. I'll find out in June. I took a bad fall last year and landed on my face and that started it. So do be careful.
And you'll be glad to know that your numbness, pain, loss of arm function and bathroom trips might all go away. You won't know for about a year what is permanent.
You and I are prime examples of what happens when the cord is affected over the nerves. The nerves scream in pain and everyone runs to the doc. We had cord compression which slow and painlessly shuts down function. You were well on your way to paralysis. My cord was compressed to 6mm...half normal width...and I didn't have a clue. And it was only from picking up one shovel too many of snow that I got a warning sign. My whole body went numb. Then my doc did an MRI and everyone gasped. Had I not had surgery later that year I probably wouldn't be sitting here able to type.
Everyone screams about the pain of pinched nerves. A screaming nerve is an alive nerve. No pain or very little is a sign of a dying nerve and that is bad. I wished I had had some pain so I knew what was coming. The good news is that the surgery to relieve what you and I have is far more successful than surgery to relieve pain.
good luck and godspeed.....................Jenny
You'll probably end up with a fusion much like mine going from above the problem to below it. I'm C3 to T1 and my problems went from C4 to C7.
My biggest problems after surgery were pain...pretty obvious and getting used to wearing this big fixed ,hard collar. I knew to expect those but it's what I didn't expect that was hard. Fixing that much of your neck in place tends to throw you off balance. You don't realize just how much you head moves as you walk to compensate for balance and it can no longer move as much. My fusion was done in the dead of winter so once I could get outside and walk on the grass I practiced all the time walking on uneven ground and small ups and downs to get some of my balance back. It really helped me feel more secure.
The other thing that took a long time to deal with was muscle pain from not being used. They can just ache so badly because you're not using them. Your neck is not turning! In PT they used electric stimulation to use the muscles and tire them out and that helped. I later went to isometric types of exercises to use the muscles and get then tired and less painful. Now, after 2+ years, they have significantly atrophied and no longer scream at me. they have gotten use to little or no action. I remember having a cast on my leg for 3 months after a knee surgery and my leg muscles screamed the whole time. They wanted to work and I couldn't let them.
My situation was a little different from most so I'm not going into details but sharing what I think you might go through that we'd share. Oh and I hope you have someone around to scratch your neck from the top of the scar to the bottom if it's on the back. It itches!
As far as range of motion, yes, it is reduced but not by as much as you'd think. I could still drive and do just about anything I wanted to. Can't touch my chin to my chest or go way back and I have reduced movement to the left but my right side is pretty normal. Luckily, most of the movement of your head is located in the top 2 vertebrae. And do be careful. I have recently herniated that final disk between C2 and C3(no disk between 1 and 2) and I may have to have my fusion extended upwards and I will lose a lot of my head movement. I'll find out in June. I took a bad fall last year and landed on my face and that started it. So do be careful.
And you'll be glad to know that your numbness, pain, loss of arm function and bathroom trips might all go away. You won't know for about a year what is permanent.
You and I are prime examples of what happens when the cord is affected over the nerves. The nerves scream in pain and everyone runs to the doc. We had cord compression which slow and painlessly shuts down function. You were well on your way to paralysis. My cord was compressed to 6mm...half normal width...and I didn't have a clue. And it was only from picking up one shovel too many of snow that I got a warning sign. My whole body went numb. Then my doc did an MRI and everyone gasped. Had I not had surgery later that year I probably wouldn't be sitting here able to type.
Everyone screams about the pain of pinched nerves. A screaming nerve is an alive nerve. No pain or very little is a sign of a dying nerve and that is bad. I wished I had had some pain so I knew what was coming. The good news is that the surgery to relieve what you and I have is far more successful than surgery to relieve pain.
good luck and godspeed.....................Jenny
Surgery042909
03-25-2009, 04:10 PM
Thank you Jenny.
You have helped alot!!!
I still don't like the idea of surgery but the choices are what they are.
Judi
You have helped alot!!!
I still don't like the idea of surgery but the choices are what they are.
Judi
PastorRobbie
03-26-2009, 09:52 PM
I want to thank all of you for your numerous responses to my inquiry. You've helped so very much and I am so grateful.
I do have one other question though, there'll probably be more later. But, I read someone mention chest pain, on the left side. Most all of my pain and symptoms seem to be on the left side, from my headaches, arm pain and numbness. I'm also having chest pain on the left side and I've had it checked with heart tests and stomach tests, but no diagnoses. It really hurts though and nobody has ever mentioned a relation between my neck and chest pain. Can anyone tell me more about this. I'd love to know that it truly is related, because I have been concerned that it may be a heart issue, but nothing shows up.
Also, I told you I'd probably have more questions later, but I though it would be later than this. I'm having some lower extremity (Legs) going to sleep and Pins & Needles. Can this be neck related as well? Just curious, as I don't know.
Thanks again for all of your help.
I do have one other question though, there'll probably be more later. But, I read someone mention chest pain, on the left side. Most all of my pain and symptoms seem to be on the left side, from my headaches, arm pain and numbness. I'm also having chest pain on the left side and I've had it checked with heart tests and stomach tests, but no diagnoses. It really hurts though and nobody has ever mentioned a relation between my neck and chest pain. Can anyone tell me more about this. I'd love to know that it truly is related, because I have been concerned that it may be a heart issue, but nothing shows up.
Also, I told you I'd probably have more questions later, but I though it would be later than this. I'm having some lower extremity (Legs) going to sleep and Pins & Needles. Can this be neck related as well? Just curious, as I don't know.
Thanks again for all of your help.
Surgery042909
03-26-2009, 11:15 PM
Pastor Robbie, I have had the chest pain for years off and on. I had every test under the sun to test my heart, at my last visit to the neurosurgeon he told me it was from a pinched nerve in my neck. Apparently the nerve that covers the upper chest comes from the c6-7 area while the lower chest nerves come from the T region. He told me I was not crazy and there was finally an explanation for the pain.
I have had the pins and needles in my left leg but forgot to ask the doctor about it. The occassional clumsiness or feeling of off balance that just started ,I have been told is connected as well as hyperreflex response in my left left so the pins and needles seem to make sense that they would somehow be connected.
I have to do this surgery but am quite concerned about the time off I will need. I am calling tomorrow to ask again because my NS told me 2 with 3 weeks top and I know he told me after a week I could do local driving again. I am so confused because most people are saying 4 wks before they could drive.
I will remember you in my prayers Pastor Robbie, it seems like we have similiar challenges and concerns facing us at roughly the same time.
Judi
I want to thank all of you for your numerous responses to my inquiry. You've helped so very much and I am so grateful.
I do have one other question though, there'll probably be more later. But, I read someone mention chest pain, on the left side. Most all of my pain and symptoms seem to be on the left side, from my headaches, arm pain and numbness. I'm also having chest pain on the left side and I've had it checked with heart tests and stomach tests, but no diagnoses. It really hurts though and nobody has ever mentioned a relation between my neck and chest pain. Can anyone tell me more about this. I'd love to know that it truly is related, because I have been concerned that it may be a heart issue, but nothing shows up.
Also, I told you I'd probably have more questions later, but I though it would be later than this. I'm having some lower extremity (Legs) going to sleep and Pins & Needles. Can this be neck related as well? Just curious, as I don't know.
Thanks again for all of your help.
I have had the pins and needles in my left leg but forgot to ask the doctor about it. The occassional clumsiness or feeling of off balance that just started ,I have been told is connected as well as hyperreflex response in my left left so the pins and needles seem to make sense that they would somehow be connected.
I have to do this surgery but am quite concerned about the time off I will need. I am calling tomorrow to ask again because my NS told me 2 with 3 weeks top and I know he told me after a week I could do local driving again. I am so confused because most people are saying 4 wks before they could drive.
I will remember you in my prayers Pastor Robbie, it seems like we have similiar challenges and concerns facing us at roughly the same time.
Judi
I want to thank all of you for your numerous responses to my inquiry. You've helped so very much and I am so grateful.
I do have one other question though, there'll probably be more later. But, I read someone mention chest pain, on the left side. Most all of my pain and symptoms seem to be on the left side, from my headaches, arm pain and numbness. I'm also having chest pain on the left side and I've had it checked with heart tests and stomach tests, but no diagnoses. It really hurts though and nobody has ever mentioned a relation between my neck and chest pain. Can anyone tell me more about this. I'd love to know that it truly is related, because I have been concerned that it may be a heart issue, but nothing shows up.
Also, I told you I'd probably have more questions later, but I though it would be later than this. I'm having some lower extremity (Legs) going to sleep and Pins & Needles. Can this be neck related as well? Just curious, as I don't know.
Thanks again for all of your help.
PastorRobbie
03-27-2009, 03:04 AM
Pastor Robbie, I have had the chest pain for years off and on. I had every test under the sun to test my heart, at my last visit to the neurosurgeon he told me it was from a pinched nerve in my neck. Apparently the nerve that covers the upper chest comes from the c6-7 area while the lower chest nerves come from the T region. He told me I was not crazy and there was finally an explanation for the pain.
I have had the pins and needles in my left leg but forgot to ask the doctor about it. The occassional clumsiness or feeling of off balance that just started ,I have been told is connected as well as hyperreflex response in my left left so the pins and needles seem to make sense that they would somehow be connected.
I have to do this surgery but am quite concerned about the time off I will need. I am calling tomorrow to ask again because my NS told me 2 with 3 weeks top and I know he told me after a week I could do local driving again. I am so confused because most people are saying 4 wks before they could drive.
I will remember you in my prayers Pastor Robbie, it seems like we have similiar challenges and concerns facing us at roughly the same time.
Judi
Hi Judi,
Thanks so much for the information. I have been having chest pains for about a year and a half and was really concerned that it may be heart related, but thus far all tests have come up negative and my heart supposedly looks great. I did ask my GP sometime ago whether or not the chest pain and neck could be related and he blew it off like I was crazy. So, I've never asked another doctor since, but I've sure wondered. I am so thankful to know that perhaps I may not by so crazy after all.
Please know that I will be praying for you as well. I will not have an exact surgery date until the 8th, but I am reluctantly anticipating getting it behind me soon. I'm tired of the pain and of course, the symptoms. Please keep us posted as to your progress and how you're doing. I think it's wonderful that this board exists for people with like conditions to have the opportunity to work through this together and not feel completely isolated through the recovery.
Also, I understand completely your concern about the amount of time off work you'll need. That has been a huge concern on my part as well. My Neurosurgeon, as well as my pain management doctor, did tell me that I would be out of preaching for at least 1 month and possibly a little bit longer. From what I've gleaned from others on this site that looks to be a pretty fair estimate. I know that my fusion will be no where near healed by that time, but if I can at least preach and teach once or twice a week not too far along after the surgery, I'll be pleased with that. I love the church and the people God has sent our way and although I know God will take care of things, I will be anxious to get back to serving full force and hopefully better than I've been able to lately.
Judi, again thanks so much for sharing about the chest pain. That's a confirmation that I've been looking for, for sometime.
God bless you is my prayer and please keep in touch.
Pastor Robbie
I have had the pins and needles in my left leg but forgot to ask the doctor about it. The occassional clumsiness or feeling of off balance that just started ,I have been told is connected as well as hyperreflex response in my left left so the pins and needles seem to make sense that they would somehow be connected.
I have to do this surgery but am quite concerned about the time off I will need. I am calling tomorrow to ask again because my NS told me 2 with 3 weeks top and I know he told me after a week I could do local driving again. I am so confused because most people are saying 4 wks before they could drive.
I will remember you in my prayers Pastor Robbie, it seems like we have similiar challenges and concerns facing us at roughly the same time.
Judi
Hi Judi,
Thanks so much for the information. I have been having chest pains for about a year and a half and was really concerned that it may be heart related, but thus far all tests have come up negative and my heart supposedly looks great. I did ask my GP sometime ago whether or not the chest pain and neck could be related and he blew it off like I was crazy. So, I've never asked another doctor since, but I've sure wondered. I am so thankful to know that perhaps I may not by so crazy after all.
Please know that I will be praying for you as well. I will not have an exact surgery date until the 8th, but I am reluctantly anticipating getting it behind me soon. I'm tired of the pain and of course, the symptoms. Please keep us posted as to your progress and how you're doing. I think it's wonderful that this board exists for people with like conditions to have the opportunity to work through this together and not feel completely isolated through the recovery.
Also, I understand completely your concern about the amount of time off work you'll need. That has been a huge concern on my part as well. My Neurosurgeon, as well as my pain management doctor, did tell me that I would be out of preaching for at least 1 month and possibly a little bit longer. From what I've gleaned from others on this site that looks to be a pretty fair estimate. I know that my fusion will be no where near healed by that time, but if I can at least preach and teach once or twice a week not too far along after the surgery, I'll be pleased with that. I love the church and the people God has sent our way and although I know God will take care of things, I will be anxious to get back to serving full force and hopefully better than I've been able to lately.
Judi, again thanks so much for sharing about the chest pain. That's a confirmation that I've been looking for, for sometime.
God bless you is my prayer and please keep in touch.
Pastor Robbie
neckpatient
03-28-2009, 01:45 AM
Pastor Robbie - There are 31 spinal cord nerve segments in a human spinal cord, they start in the brain and run down the entire tract - exiting at the vairous levels in the spine, i.e. C5-6. It is important to know that actually the nerve roots are just the exiting roots of the spinal cord. Cord and nerve roots are really the same thing, only when dealing with the nerve roots, you are dealing with a smaller quantity. In terms of C5-6 and C6-7 those levels exit the cord and go on to branch and help form a big conglomeration of other branches within your body so they can send a wide variety of upper body (neck, arm, shoulder, chest) symptoms.
I wanted to add something else about nerves. It was mentioned before about nerves screaming pain are alive - actually it can also be permanently and totatlly damaged and still processing pain signals. Which is way too complicated for me to try to explain because I am not a scientist. When the nerves get compressed as well as the total bundle you get permament damage and actually it is also very quiet and can get quite bad before the pain gets bad enough to alert you to get help. Most people find the damage by seeking help for the pain and burning, but sometimes they find it for example in the arms like when they get incessant cramping, weaker grip strengths, twitching, etc. Or in the legs when they get not only pain, but weakness too. Then they are usually sent for EMG's and the total damage to nerve root is uncovered. Not everyone that has compressed nerves will have permament damage to the nerves, but depending on how/where it is pinched it is just as bad to let go.
A compression of either the cord bundle or the nerve root is not good and needs attention and a decision of what to do by a surgeon. The cord needs attention because it has more of the total rootlets together and will affect the greater body,
I will pray for good blessings for you.
I wanted to add something else about nerves. It was mentioned before about nerves screaming pain are alive - actually it can also be permanently and totatlly damaged and still processing pain signals. Which is way too complicated for me to try to explain because I am not a scientist. When the nerves get compressed as well as the total bundle you get permament damage and actually it is also very quiet and can get quite bad before the pain gets bad enough to alert you to get help. Most people find the damage by seeking help for the pain and burning, but sometimes they find it for example in the arms like when they get incessant cramping, weaker grip strengths, twitching, etc. Or in the legs when they get not only pain, but weakness too. Then they are usually sent for EMG's and the total damage to nerve root is uncovered. Not everyone that has compressed nerves will have permament damage to the nerves, but depending on how/where it is pinched it is just as bad to let go.
A compression of either the cord bundle or the nerve root is not good and needs attention and a decision of what to do by a surgeon. The cord needs attention because it has more of the total rootlets together and will affect the greater body,
I will pray for good blessings for you.
PastorRobbie
03-28-2009, 03:06 AM
Based upon all of the wonderful information I've received from you fine people here on this forum, I have decided for certain to proceed with the surgery. I first saw a Neurosurgeon about this nearly 2 years ago now and I really, really liked him. He specialized in Cervical Spine and his bedside manner was awesome. However, I've waited too long and he's moved on. So, I've made another appointment with the Neurosurgery department and I hear that the doctors there are really good, but we shall see.
I do want to thank all of you for your input. You've given me so much valuable information and helped shed light on my situation. Some of this I can now recall the Surgeon telling me way back there, but I had forgotten until now.
I'll keep everyone posted as to what I find out. My appointment is on the 8th. With the way that I feel and the symptoms in my hand, lower legs and chest that I'm having rather suddenly progress, I'm more than ready.
God bless you all as He has me.
Pastor Robbie
I do want to thank all of you for your input. You've given me so much valuable information and helped shed light on my situation. Some of this I can now recall the Surgeon telling me way back there, but I had forgotten until now.
I'll keep everyone posted as to what I find out. My appointment is on the 8th. With the way that I feel and the symptoms in my hand, lower legs and chest that I'm having rather suddenly progress, I'm more than ready.
God bless you all as He has me.
Pastor Robbie
Nicole74
03-31-2009, 08:34 AM
Pastor Robbie,
I had herniated 3 discs while playing with my children and my C5-C6 was pressing on my spinal cord and causing a lot of pain. The doctor had told me that my herniation would not heal without surgery. After 6 months of conservative methods they decided it was best for the fusion. I wish I would of had the surgery sooner.
I'm 4 weeks post op ACDF of my C5-C6. I have recovered from the surgery, but I still have a great deal of pain at the back of my neck. I'm praying that it is not permanent damage from waiting 6 months before having the surgery.
I had herniated 3 discs while playing with my children and my C5-C6 was pressing on my spinal cord and causing a lot of pain. The doctor had told me that my herniation would not heal without surgery. After 6 months of conservative methods they decided it was best for the fusion. I wish I would of had the surgery sooner.
I'm 4 weeks post op ACDF of my C5-C6. I have recovered from the surgery, but I still have a great deal of pain at the back of my neck. I'm praying that it is not permanent damage from waiting 6 months before having the surgery.
Surgery042909
04-01-2009, 04:30 AM
Hi Nicole,
I was wondering if the pain you are still feeling is from the surgery or another source. Is it the same pain you had before surgery or something different. I know you said you wish you had the surgery sooner so I am assuming you feel somewhat better then you had. I am just real curios because I am now a month out until my surgery date and getting more nervous daily. I have some pain but not alot, my thing is more the weakness and other neurological symptoms with some nerve impringement causing pain on my left chest and arm. I don't know what to expect when I wake up from surgery.
Judi
Pastor Robbie,
I'm 4 weeks post op ACDF of my C5-C6. I have recovered from the surgery, but I still have a great deal of pain at the back of my neck. I'm praying that it is not permanent damage from waiting 6 months before having the surgery.
I was wondering if the pain you are still feeling is from the surgery or another source. Is it the same pain you had before surgery or something different. I know you said you wish you had the surgery sooner so I am assuming you feel somewhat better then you had. I am just real curios because I am now a month out until my surgery date and getting more nervous daily. I have some pain but not alot, my thing is more the weakness and other neurological symptoms with some nerve impringement causing pain on my left chest and arm. I don't know what to expect when I wake up from surgery.
Judi
Pastor Robbie,
I'm 4 weeks post op ACDF of my C5-C6. I have recovered from the surgery, but I still have a great deal of pain at the back of my neck. I'm praying that it is not permanent damage from waiting 6 months before having the surgery.
studbuzzar
04-02-2009, 02:26 AM
Hi Pastor Robbie,
I grew up in Biloxi and have spent many days up in the Hattisburg/Wiggins area. At one time I used to shovel elephant poop and feed an eagle that was the mascot for the USM at the Hattisburg zoo! I moved to south florida back in the late eighties and here I still be. Sometimes I really miss that deep south southern Mississippi hospitality. Especially this time of year.
I just want to say thank you opening up the thread. The post from everyone have been very helpful and have inspired me to post for the first time. I am currently going through a difficult time as well trying to decide what to do about my cervical spine issues. I am not sure which is worse the phyiscal pain or the emotional and spirtual turmoil I have been going through over the last four months.
In 2002 I had C6-C7 fused. Surgery was perfect and I have had no problems for the last seven years. Recovery went well. I was back at my work in the office with in a month or so. It seemed to me that it took about two years for me to really get rid of the little nagging achs and pains that I would get from time to time. Nothing compared to what I was experiencing before the operation. Also my range of motion has improved I believe as time has gone on. I lost very little over all maybe 3-5%. I am a bit careful when looking straight up thats about it. I was told at that time that C3,C4,C5 were bulging and would/could cause me problems down the road.
Well we are down the road! Numbness in right arm and hand. Muscle spasms in the middle of the back. Can't get comfortable in bed at night because arms go numb if I lay on either side. Many little things going on here, this time it is mainly the right side of my body though, last time it was the left.
I had MRI done in Febuary. I finally get to have my old nuro surgeon look at them tommorow vs the guy at the imaging center. My wife is a CRNA and sugessted that I take them to him first. There are some other options besides disk fusion that I want to explore this time if possible. I have heard of steroid injections, burning of nerves ect. Just getting started on the research. I have been on pain meds for the last four months almost daily. Vic's, Perc's Roxi's and Dil's 1-3 per day depending on the severity of the pain and the availibilty of some of the meds the doc perscribed. I hate them for many reasons yet have a weakness for that bit of bliss. Having been sober for many years and coming to know Jesus Christ as my Lord and Savior, it pains me greatly to be were I am at today. It has taken many years to get free of some of my worst demons. Life is so beautiful and it is truly a blessing to be alive and living it in harmony with God. I just feel real venerable at this point in time. I need some pain relief while I figure out what is the best course of action. So far I can honestly say that I am suprised at my lack of desire to abuse my pain meds, yet do take one before bed like clock work and sometimes one during the daytime if needed. I just want to be back where I was a few months ago, healthy sober, and at peace with self,others and God.
God bless you Pastor Robbie, thank you for your post and all the rest of you too:) At least reading these post have helped me come to a better understanding of my own situation and maybe the correct course of action for me.
Thanks again,
Steve
I grew up in Biloxi and have spent many days up in the Hattisburg/Wiggins area. At one time I used to shovel elephant poop and feed an eagle that was the mascot for the USM at the Hattisburg zoo! I moved to south florida back in the late eighties and here I still be. Sometimes I really miss that deep south southern Mississippi hospitality. Especially this time of year.
I just want to say thank you opening up the thread. The post from everyone have been very helpful and have inspired me to post for the first time. I am currently going through a difficult time as well trying to decide what to do about my cervical spine issues. I am not sure which is worse the phyiscal pain or the emotional and spirtual turmoil I have been going through over the last four months.
In 2002 I had C6-C7 fused. Surgery was perfect and I have had no problems for the last seven years. Recovery went well. I was back at my work in the office with in a month or so. It seemed to me that it took about two years for me to really get rid of the little nagging achs and pains that I would get from time to time. Nothing compared to what I was experiencing before the operation. Also my range of motion has improved I believe as time has gone on. I lost very little over all maybe 3-5%. I am a bit careful when looking straight up thats about it. I was told at that time that C3,C4,C5 were bulging and would/could cause me problems down the road.
Well we are down the road! Numbness in right arm and hand. Muscle spasms in the middle of the back. Can't get comfortable in bed at night because arms go numb if I lay on either side. Many little things going on here, this time it is mainly the right side of my body though, last time it was the left.
I had MRI done in Febuary. I finally get to have my old nuro surgeon look at them tommorow vs the guy at the imaging center. My wife is a CRNA and sugessted that I take them to him first. There are some other options besides disk fusion that I want to explore this time if possible. I have heard of steroid injections, burning of nerves ect. Just getting started on the research. I have been on pain meds for the last four months almost daily. Vic's, Perc's Roxi's and Dil's 1-3 per day depending on the severity of the pain and the availibilty of some of the meds the doc perscribed. I hate them for many reasons yet have a weakness for that bit of bliss. Having been sober for many years and coming to know Jesus Christ as my Lord and Savior, it pains me greatly to be were I am at today. It has taken many years to get free of some of my worst demons. Life is so beautiful and it is truly a blessing to be alive and living it in harmony with God. I just feel real venerable at this point in time. I need some pain relief while I figure out what is the best course of action. So far I can honestly say that I am suprised at my lack of desire to abuse my pain meds, yet do take one before bed like clock work and sometimes one during the daytime if needed. I just want to be back where I was a few months ago, healthy sober, and at peace with self,others and God.
God bless you Pastor Robbie, thank you for your post and all the rest of you too:) At least reading these post have helped me come to a better understanding of my own situation and maybe the correct course of action for me.
Thanks again,
Steve
PastorRobbie
04-02-2009, 03:25 AM
Hi Steven,
Thanks so much for your openness and honesty. I can relate to some of what you said. I've been in ministry now for nearly 15 years, but prior to that, I was a drug addict and in the end, Meth was my drug of choice. I've been dealing with these disc problems for the past nearly 2 years, but over just the past few months my pain has become so severe that I've had to take pain meds in order to function. I too, have absolutely no desire to abuse them, but I don't want to have to take them at all. Prior to coming to this board, the driving force that was causing me to lean toward having my surgery was the pain and the need now for medication. Since being here, I'm now even more concerned about my symptoms from Spinal Cord Compression and I'm going to see the surgeon next Wednesday to hopefully schedule surgery and get it behind me. I'm ready to get on the road to recovery. Other than God, Himself, my family and my ministry are my top priorities and I can't properly serve any of them in the condition I'm in.
I'm sorry that you're in such turmoil. Please know that you have a brother in Christ in Mississippi who will have you in my prayers. You're certainly not alone, yet by the same token this is certainly a decision that you ultimately have to make yourself. My decision is made and I'm proceeding as quickly as possible. I'm dreading it with every fiber of my being, but I know it's for the long-term best.
If I can help you in anyway, please don't hesitate to let me know and please keep in touch.
God Bless You My Friend,
Pastor Robbie
Thanks so much for your openness and honesty. I can relate to some of what you said. I've been in ministry now for nearly 15 years, but prior to that, I was a drug addict and in the end, Meth was my drug of choice. I've been dealing with these disc problems for the past nearly 2 years, but over just the past few months my pain has become so severe that I've had to take pain meds in order to function. I too, have absolutely no desire to abuse them, but I don't want to have to take them at all. Prior to coming to this board, the driving force that was causing me to lean toward having my surgery was the pain and the need now for medication. Since being here, I'm now even more concerned about my symptoms from Spinal Cord Compression and I'm going to see the surgeon next Wednesday to hopefully schedule surgery and get it behind me. I'm ready to get on the road to recovery. Other than God, Himself, my family and my ministry are my top priorities and I can't properly serve any of them in the condition I'm in.
I'm sorry that you're in such turmoil. Please know that you have a brother in Christ in Mississippi who will have you in my prayers. You're certainly not alone, yet by the same token this is certainly a decision that you ultimately have to make yourself. My decision is made and I'm proceeding as quickly as possible. I'm dreading it with every fiber of my being, but I know it's for the long-term best.
If I can help you in anyway, please don't hesitate to let me know and please keep in touch.
God Bless You My Friend,
Pastor Robbie
studbuzzar
04-02-2009, 09:57 PM
Well it looks like I am in better shape than I feared! According to my old nuro surgeon I do not have the same type problem as last time and do not require any surgery (fusion) at this time. He is sending me for a steroid injection to get some relief which is pretty much what I was hoping for as a best case. I am puzzled with all the symtoms I am having. Something has to have happened or changed for all this to be going on for so long? If the shot works I am thrilled if not then it is back to pills untill I can figure out next step. Anyone every had steroid injections in the cervical spine? What are possible side effects or risk if any?
SpineAZ
04-03-2009, 05:42 PM
It looks like you have received a lot of good advice. I agree that the surgery can be so helpful. I woke up feeling better than I had in years. That made me so sure that what I had done was the right decision. Let us know if you have any further questions.