Oleander53
03-25-2009, 10:58 PM
Geezzzzzzzz
My Squamous Cell Carcinoma came back Grade 3 From 0 to 3 , 3 is the most abnormal and most likely to spread...Not sure what to think yet...My slides were re read at MD Anderson and my appt is on 4/3....really makes a difference who reads your slides I guess..... I am having a colposcopy and evaluation at the Gyne Onc clinic.....Send me good thoughts.. Oleander
My Squamous Cell Carcinoma came back Grade 3 From 0 to 3 , 3 is the most abnormal and most likely to spread...Not sure what to think yet...My slides were re read at MD Anderson and my appt is on 4/3....really makes a difference who reads your slides I guess..... I am having a colposcopy and evaluation at the Gyne Onc clinic.....Send me good thoughts.. Oleander
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Chele60
03-26-2009, 05:23 PM
When you say "grade," what are you referring to? Going from 0 to 3 sounds quite substantial, yet I know with Clark's there are enough factors that go into the calculation as to make it not very straightforward. I was a Clark's Level IV.
I will be sending as many good thoughts as I can!
I will be sending as many good thoughts as I can!
Oleander53
03-26-2009, 05:37 PM
For vulvar Squamous Cell Carcinoma there is staging and grading..... I am finding out what type and where makes a difference in all of this staging and grading...Lot's to know. Here is what I was given.
Grading
There are three grades; grade 1 (low-grade), grade 2 (moderate-grade) and grade 3 (high-grade).
Low-grade means that the cancer cells look very much like the normal cells of the vulva. They usually grow slowly and are less likely to spread.
Moderate-grade means the cells look more abnormal than low-grade cells but not as abnormal as high-grade cells.
High-grade means the cells look very abnormal. They are likely to grow more quickly and are more likely to spread.
Oleander
Grading
There are three grades; grade 1 (low-grade), grade 2 (moderate-grade) and grade 3 (high-grade).
Low-grade means that the cancer cells look very much like the normal cells of the vulva. They usually grow slowly and are less likely to spread.
Moderate-grade means the cells look more abnormal than low-grade cells but not as abnormal as high-grade cells.
High-grade means the cells look very abnormal. They are likely to grow more quickly and are more likely to spread.
Oleander
teapotlady
03-26-2009, 07:24 PM
Hope your appointment with the specialist goes well, what a long wait for you. I will be keeping you in my thoughts.
Chele60
03-30-2009, 02:51 PM
Thanks for the clarification. This is staged differently than melanoma.
Best of luck with the specialist on the 3rd!!
Best of luck with the specialist on the 3rd!!
Oleander53
03-30-2009, 08:19 PM
Chele, Thanks I wrote you a reply and it disapeared before I sent it......weird.
The staging and grading is different in Vulvar Squamous Cell Carcinoma than melanoma.. Here is the staging. They have not given me a stage yet :eek:
Only the grade and the grade sucked. LOL Hopefully it will be a zero or a one.
My first 2 readings said in situ but my 3rd one did not soooooo we will see.
I am pretty stressed right now. I am flying out to Houston tomorrow and will work from there until my Appt on Friday. I will let you all know something the minute I get out of there and near a computer. I am hoping for good news.
Stage 0 or carcinoma in situ This is very early cancer (some doctors describe it as pre-cancer). The cancer is found in the vulva only and is only in the surface of the skin.
Stage 1 Cancer is found only in the vulva and/or the space between the opening of the rectum and the vagina (perineum).The affected area is 2 cm (about 1 inch), or less, wide.
Stage 2 Cancer is found in the vulva and/or the perineum. The affected area is larger than 2 cm (1 inch).
Stage 3 Cancer is found in the vulva and/or perineum and has spread to nearby tissues such as the lower part of the urethra (the tube through which urine passes), the vagina, the anus (the opening of the rectum) and/or nearby lymph nodes.
Stage 4 The cancer has spread beyond the urethra, vagina and anus into the lining of the bladder or the bowel; or, it may have spread to the lymph nodes in the pelvis or to other parts of the body.
The staging and grading is different in Vulvar Squamous Cell Carcinoma than melanoma.. Here is the staging. They have not given me a stage yet :eek:
Only the grade and the grade sucked. LOL Hopefully it will be a zero or a one.
My first 2 readings said in situ but my 3rd one did not soooooo we will see.
I am pretty stressed right now. I am flying out to Houston tomorrow and will work from there until my Appt on Friday. I will let you all know something the minute I get out of there and near a computer. I am hoping for good news.
Stage 0 or carcinoma in situ This is very early cancer (some doctors describe it as pre-cancer). The cancer is found in the vulva only and is only in the surface of the skin.
Stage 1 Cancer is found only in the vulva and/or the space between the opening of the rectum and the vagina (perineum).The affected area is 2 cm (about 1 inch), or less, wide.
Stage 2 Cancer is found in the vulva and/or the perineum. The affected area is larger than 2 cm (1 inch).
Stage 3 Cancer is found in the vulva and/or perineum and has spread to nearby tissues such as the lower part of the urethra (the tube through which urine passes), the vagina, the anus (the opening of the rectum) and/or nearby lymph nodes.
Stage 4 The cancer has spread beyond the urethra, vagina and anus into the lining of the bladder or the bowel; or, it may have spread to the lymph nodes in the pelvis or to other parts of the body.
msrabbit
05-30-2009, 02:01 AM
Geezzzzzzzz
My Squamous Cell Carcinoma came back Grade 3 From 0 to 3 , 3 is the most abnormal and most likely to spread...Not sure what to think yet...My slides were re read at MD Anderson and my appt is on 4/3....really makes a difference who reads your slides I guess..... I am having a colposcopy and evaluation at the Gyne Onc clinic.....Send me good thoughts.. Oleander
Where is the squamous cell carcinoma located if you do not mind me asking? How did the colonoscopy come out? How are you doing now? I pray you are doing better.
Msrabbit
My Squamous Cell Carcinoma came back Grade 3 From 0 to 3 , 3 is the most abnormal and most likely to spread...Not sure what to think yet...My slides were re read at MD Anderson and my appt is on 4/3....really makes a difference who reads your slides I guess..... I am having a colposcopy and evaluation at the Gyne Onc clinic.....Send me good thoughts.. Oleander
Where is the squamous cell carcinoma located if you do not mind me asking? How did the colonoscopy come out? How are you doing now? I pray you are doing better.
Msrabbit
msrabbit
05-30-2009, 02:05 AM
I have a colonoscopy scheduled 6/15 was wondering how yours came out
msrabbit
05-30-2009, 02:06 AM
Thank you for the explanation on grading and staging. I researched it some on the internet but still do not understand it very well. It is much clearer now.
The best to you!!
MsRabbit
The best to you!!
MsRabbit
msrabbit
05-30-2009, 02:11 AM
Does anyone know about a specific diet and or vitamins that are recommended for this form of cancer? My cousin has also had this and she said she heard about vitamins that need to be taken to keep it from recurring.
Doe sanyone have input on this? I use to smoke many, many years ago 25 at least and I know when it recurred this time my dr says do you or your husband smoke? It really has an impact.
Doe sanyone have input on this? I use to smoke many, many years ago 25 at least and I know when it recurred this time my dr says do you or your husband smoke? It really has an impact.
Chele60
06-01-2009, 12:27 PM
Does anyone know about a specific diet and or vitamins that are recommended for this form of cancer? My cousin has also had this and she said she heard about vitamins that need to be taken to keep it from recurring.
Doe sanyone have input on this? I use to smoke many, many years ago 25 at least and I know when it recurred this time my dr says do you or your husband smoke? It really has an impact.
There are studies coming out that are stating increasing one's level of Vitamin D might have beneficial inroads to warding off cancer. The amount I'm hearing that needs to be taken is around 2,000 iu per day. That's what I'm taking.
There are literally hundreds of diets and cookbooks out there for cancer prevention. Most are written for people who are battling cancer and the effects of chemo, which can do strange and funny things to one's appetite. However, most people that I've talked to, and from what I've read about this, have basically the same common thread: eat foods that are not processed, more whole foods, lots of vegetables, low fat proteins. Get regular exercise - both aerobic and strength-based. And try to avoid as many chemicals in your life as possible. It's this last one that can be tough: this includes the chemicals your dry cleaner might use, or what's included in the cosmetic products you use (including sunscreen!), or the products you use to clean your home. It's best to attempt to surround yourself with as much natural stuff - both in and out of your body - as possible. Of course, smoking and excessive alcohol are not good things to engage in.
Now, I'm not saying this is easy! I had my melanoma removed 2 years ago, and I'm still trying to move towards a more natural lifestyle, while exercising more. It really is a lifestyle change! And it is something you learn as you go along. You might want to look into some cookbooks designed for those with cancer, and see what they say (check your local library, instead of making a committment to buy), and get the foundation of what they are saying. Perhaps try out a few recipes. I'm not sure how active you are, but if you need to get active, start now!
There is so much information out there, it's difficult to know where to begin. But if you start with diet and exercise, that can be half the battle. With dietary supplements, you are probably good if you start with a very good multi-vitamin/mineral, and you might want to check out the increased Vitamin D. (Check with your doctor if that sounds uneasy to you) Also, if you are a female, you should be taking calcium for bone strength.
Doe sanyone have input on this? I use to smoke many, many years ago 25 at least and I know when it recurred this time my dr says do you or your husband smoke? It really has an impact.
There are studies coming out that are stating increasing one's level of Vitamin D might have beneficial inroads to warding off cancer. The amount I'm hearing that needs to be taken is around 2,000 iu per day. That's what I'm taking.
There are literally hundreds of diets and cookbooks out there for cancer prevention. Most are written for people who are battling cancer and the effects of chemo, which can do strange and funny things to one's appetite. However, most people that I've talked to, and from what I've read about this, have basically the same common thread: eat foods that are not processed, more whole foods, lots of vegetables, low fat proteins. Get regular exercise - both aerobic and strength-based. And try to avoid as many chemicals in your life as possible. It's this last one that can be tough: this includes the chemicals your dry cleaner might use, or what's included in the cosmetic products you use (including sunscreen!), or the products you use to clean your home. It's best to attempt to surround yourself with as much natural stuff - both in and out of your body - as possible. Of course, smoking and excessive alcohol are not good things to engage in.
Now, I'm not saying this is easy! I had my melanoma removed 2 years ago, and I'm still trying to move towards a more natural lifestyle, while exercising more. It really is a lifestyle change! And it is something you learn as you go along. You might want to look into some cookbooks designed for those with cancer, and see what they say (check your local library, instead of making a committment to buy), and get the foundation of what they are saying. Perhaps try out a few recipes. I'm not sure how active you are, but if you need to get active, start now!
There is so much information out there, it's difficult to know where to begin. But if you start with diet and exercise, that can be half the battle. With dietary supplements, you are probably good if you start with a very good multi-vitamin/mineral, and you might want to check out the increased Vitamin D. (Check with your doctor if that sounds uneasy to you) Also, if you are a female, you should be taking calcium for bone strength.
putput1980
07-19-2009, 06:07 PM
Thanks for the explanation of the grading it was very helpful!!
putput1980
putput1980
putput1980
07-22-2009, 10:52 PM
I go to doctor Friday 7/24/9 to see where we are at with mine.
I pray for everyone out there that is going through this. My first go around I had a complete skinning vulvectomy. I had just gave birth to my daughter I was young 18 or so and it was pretty overwhelming. I am 52 now. Anytime you need someone to talk to please keep me in mind.
Thanks
I pray for everyone out there that is going through this. My first go around I had a complete skinning vulvectomy. I had just gave birth to my daughter I was young 18 or so and it was pretty overwhelming. I am 52 now. Anytime you need someone to talk to please keep me in mind.
Thanks