My husbands PFT numbers continue to go down so they are now trying to get him into a new study with the drug interferon. He has end stage UIP. From the studies I can find it sounds like a pretty good option at this point but I wanted to talk to somebody with experience with this drug. Anyone? Can you tell me the side effects and how effective it was. We know nothing can change the final result but if it can slow it down, it might be worth it.

Please let me know
Thanks

There are a number of people taking actimmune who post at the chronic lung disease forum. The address is www.chesire-med.com/programs/pulrehab/forum/cldforum.html (http://www.chesire-med.com/programs/pulrehab/forum/cldforum.html)

I'm sure you can learn more there. Good luck!

Anne

I tried to go to that website but error message came up.

I'm pretty sure I wrote it correctly, but this time I did the cut and paste trick. I hope this works. If not, do a search for The Chronic Lung Disease Forum. That's how I found it in the first place. www.cheshire-med.com/programs/pulrehab/forum/cldforum.html (http://www.cheshire-med.com/programs/pulrehab/forum/cldforum.html)

Anne