CherCher
04-10-2009, 06:37 PM
I was just diagnosed with this condition and does anyone have people who dont beleive them or treat you differently now? How frustrating is that? Lots of my friends dont think its a real disease how do you deal with it???? Im lost
Sponsor
AnnD
04-10-2009, 07:16 PM
How do I deal with it...I don't tell people anything. I don't want to hear about all the ills of everyone so I just don't talk about my health issues...I understand that no one cares...why would they. There are appropriate places to discuss health but friends are not it.
bluelakelady
04-11-2009, 10:40 AM
hi,
i have one close girlfriend who is also in the healing arts. she is the only one i discuss my health with outside of family. my health is but one aspect of me. we talk for hours and my health may take up 2 minutes of that time. giggle. there are so many wonderful things to share. after all these years my health is boring to me, talking about it that is, living it is cool. back when i was a baby fibro brat learning to be this new me, i shared with others. in the end i walked away from all but one of those "friendships" and never looked back.
you have alot of learning to do. alone time is rather important for that to happen. i took 5 years away from the world of socialization. you are not lost, just somewhat misplaced for the moment. you will find yourself and adapt. we all do.
welcome to the boards. this is a good place to talk about your health. we get it.
peace,
bluelakelady
i have one close girlfriend who is also in the healing arts. she is the only one i discuss my health with outside of family. my health is but one aspect of me. we talk for hours and my health may take up 2 minutes of that time. giggle. there are so many wonderful things to share. after all these years my health is boring to me, talking about it that is, living it is cool. back when i was a baby fibro brat learning to be this new me, i shared with others. in the end i walked away from all but one of those "friendships" and never looked back.
you have alot of learning to do. alone time is rather important for that to happen. i took 5 years away from the world of socialization. you are not lost, just somewhat misplaced for the moment. you will find yourself and adapt. we all do.
welcome to the boards. this is a good place to talk about your health. we get it.
peace,
bluelakelady
Glojer
04-11-2009, 08:04 PM
Friends that don't understand or believe in your disease are not friends. I don't talk to other people about my health because I feel it is none of there business. No one wants to hear about someones aches and pains and how hard there life is.....including me. Like blue says, my conversations with friends and family are more about everything else other than our aches and pains. No one really gets it if they don't have it anyway and I really don't want anyone else to have fibro.
Glojer
ps. ditto what blue says, come here we understand.
Glojer
ps. ditto what blue says, come here we understand.
seaturtle
04-12-2009, 12:17 AM
I don't usually mention it, either. They don't understand (do we)?
It does irritate and sadden me a bit, though, when I try to share a little with a good friend. They're answer is inevitably something like "Oh, I have that, too." I feel unheard.
But then, why talk about it?
I guess the only time I do is to mention it briefly is I've had to back out of something where the other person thinks I am not wanting to be with them.
Seaturtle
It does irritate and sadden me a bit, though, when I try to share a little with a good friend. They're answer is inevitably something like "Oh, I have that, too." I feel unheard.
But then, why talk about it?
I guess the only time I do is to mention it briefly is I've had to back out of something where the other person thinks I am not wanting to be with them.
Seaturtle
applecollector
04-12-2009, 01:25 AM
It took a long time for my family to believe me, and then having a sister with it also helped.
However between the grief of loosing my husband in 02, the start of this DD, and loosing my dad, I isolated, missed out on time with my children and grand children and spending time with my mom her last few years, lost her last Easter.
I sure hope death of loved ones is over for a good while, can't take much more of that.
but in the last two years I have met someone, just remarried and spending a little more time with family.
I have but just a few close friends.
I get tired of even thinking about it.
the boards help
However between the grief of loosing my husband in 02, the start of this DD, and loosing my dad, I isolated, missed out on time with my children and grand children and spending time with my mom her last few years, lost her last Easter.
I sure hope death of loved ones is over for a good while, can't take much more of that.
but in the last two years I have met someone, just remarried and spending a little more time with family.
I have but just a few close friends.
I get tired of even thinking about it.
the boards help
fibrolizard
04-12-2009, 04:05 AM
I do tell family, but not to friends not at first anyway. Some don't believe me. Compassion is a virtue. It is frustrating ..friends come and go. My primary care dr. doesn't really beleive that it's a disease, she will pres me soma.
My Mum even though she couldn't pronounce it..was always there for me about it. My daughter even though her husband has it, doesn't cut me any slack . You have to take the good with the bad.
love Lizzy
My Mum even though she couldn't pronounce it..was always there for me about it. My daughter even though her husband has it, doesn't cut me any slack . You have to take the good with the bad.
love Lizzy