paul77
05-15-2009, 12:54 PM
ive had tmj for a number off years, i got it better thanks to a splint called splintek but had braces, which brought it back and made it worse, and the splint does nt help it anymore more. I went in crying to the dentist telling him to take the braces off alll he said was with a big grin on his face was illl be the judge of that, i had to beg him to take them off. The dizeeness was unberable.Thanks to tmj im an alcoholic and smoke cannibis which ive tried to stop numerouse times i get brain fog really bad im so confused i cant think stright i hate it it makes me feel like im going crazy my mum says sometimes she can see rage in me eyes ive lost all my family thanks to tmj and alcohol my family says if i keep on drinking they will kick me out i phoned up my sister crying my eyes out due to the pain depression and cause my vision goes really bad cause off the pain and pressure behind my eyes it feels like my eyes went to bulge and see load of coulers in my eyes like big black spots she just told me i need a good kick up the ass she doesnt understand i would like to know what she would say after she walked a mile in are shoes she will never understand her nasty boyfriend has really changed her hes a heroine adict and an alcoholic before i had an xray which proved i had tmj my sister just called me an atention seeker and took all my cocodemol for her boyfriend so he can sell it and get high her boyfriend i know he puts things in her head i dont know what she sees in him hes not very good looking and personality is even uglier my mum whos death and has crohns disease which is deadly he called her an atention seeker as well and me a manic moron cause i went to a mentel hospital and got dignoesed schzoprencic cause of my canibis adiction all thanks to tmj i hate it i went to the docters and he shouted at me saying it was a dentel problem if its a dentel problem then way does tmj afect mainly women and why is there no studies done on it what so ever its crazy why r they still doing sugeries when it can cause server pain and blindness and why do docters and people think were hypercondiacs we roport the same syptoms far crying out loud sorry for the deprssive grim post but it needs to be said i just im really depressed and i dont know what to do anymore
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luvtocamp
05-15-2009, 04:21 PM
Paul
I feel for you, people just don't understand how it feels. smoking pot isn't so bad (in my opinion) but the alcohol is not good as it robs your body of nutrients, b vits and magnesium and dehydrates you, just making things worst. Have you tried cranial therapy, I'm going in a few weeks to have NCR done, where they put balloons up the nose to expand your headbones. I have cranial problems esp. on one side from all the splints and that messsing up my head bones. Every day is a nightmare. I've been seeing cranial osteopaths for a long time but of little help. NCR is my last resort. You sound young, and I imagine its so much harder for you, I'm almost 55.
You say your teeth are crooked and that could be a sign of cranial compression, either from birth or from trauma, and sometimes from braces.
Try to get on some valium or antianxiety meds at this time instead of the alcohol, and get some muscle relaxers.
Many doctors and dentist say its a stress thing and it can be if a person grinds their teeth at night, but if not then its either a direct injury, very bad bite with bad dental work, or some sort of head trauma. I believe a lot of dentist are ignorant of tmj and cause alot of it.
Don't feel bad about letting your feelings out as that is what this board is for, and it helps just letting it out to people that understand what your going through.
You are not alone in this.
I feel for you, people just don't understand how it feels. smoking pot isn't so bad (in my opinion) but the alcohol is not good as it robs your body of nutrients, b vits and magnesium and dehydrates you, just making things worst. Have you tried cranial therapy, I'm going in a few weeks to have NCR done, where they put balloons up the nose to expand your headbones. I have cranial problems esp. on one side from all the splints and that messsing up my head bones. Every day is a nightmare. I've been seeing cranial osteopaths for a long time but of little help. NCR is my last resort. You sound young, and I imagine its so much harder for you, I'm almost 55.
You say your teeth are crooked and that could be a sign of cranial compression, either from birth or from trauma, and sometimes from braces.
Try to get on some valium or antianxiety meds at this time instead of the alcohol, and get some muscle relaxers.
Many doctors and dentist say its a stress thing and it can be if a person grinds their teeth at night, but if not then its either a direct injury, very bad bite with bad dental work, or some sort of head trauma. I believe a lot of dentist are ignorant of tmj and cause alot of it.
Don't feel bad about letting your feelings out as that is what this board is for, and it helps just letting it out to people that understand what your going through.
You are not alone in this.
Thelma-Louise
05-16-2009, 12:46 AM
Yeah I am Luvtocamp - nothing wrong with the cannibis but try not to drink as much - but that is just my opinion - I am not encouraging you to continue using it or anything like that but I wouldn't let other people's judgement of your using it - even family members - get to you.
I wish I could offer more than support and encouragement b/c it sounds like your really need more than an ally at this point - you need to find the right drs to help you. Take that anger you have, and rightfully so btw, and try and channel it to getting the help you need - try not to let this tmj problem make you act like a victim - you already are one - so use the anger as a defense to block out all the negativity surrounding your current family relationships. Its very easy for others to kick someone when they are already down and out and defenseless - please don't let them have that affect on you anymore - recognize they only like that b/c they are dealing with their own demons and taking it out on you and refuse to listen to what they say. I know at some point I too had to stop discussing my tmj symtpoms and inability to work or function normally with membes of my family b/c it just became too difficult to do so - people who do not have this type of pain simply can not understand it or relate to it.
Have you tried going to other drs to get other opinions? have you tried other types of therapy or even prescription meds to help with the pain?
I wish I could offer more than support and encouragement b/c it sounds like your really need more than an ally at this point - you need to find the right drs to help you. Take that anger you have, and rightfully so btw, and try and channel it to getting the help you need - try not to let this tmj problem make you act like a victim - you already are one - so use the anger as a defense to block out all the negativity surrounding your current family relationships. Its very easy for others to kick someone when they are already down and out and defenseless - please don't let them have that affect on you anymore - recognize they only like that b/c they are dealing with their own demons and taking it out on you and refuse to listen to what they say. I know at some point I too had to stop discussing my tmj symtpoms and inability to work or function normally with membes of my family b/c it just became too difficult to do so - people who do not have this type of pain simply can not understand it or relate to it.
Have you tried going to other drs to get other opinions? have you tried other types of therapy or even prescription meds to help with the pain?
Thormatrix
05-24-2009, 12:40 AM
I believe a lot of dentist are ignorant of tmj and cause alot of it.
I second that opinion.
I first pointed out to one of my dentists prior to TMJconfirmation, that I was having difficulty in chewing, and I started feeling pain on certain foods I ate. Also, with my GP at the time, because the pain issues were so bad at the time, my GP at the time (this was a different GP to the one I have now) was blaming it on depression and pushing for me to see a psychiatrist. Can you believe that?
It was approx 6mths later I found out I had TMJ dysfunction. SO this dentist I went to knew I had it, yet did not even advise me to go on a soft food diet.
I had to change my entire range of treating doctors and specialists because of this disorder.
paul77
I can totally relate to you being angry at times. Before my health issues even started, I was working a good job, I was planning to put a deposit onto a house, and was ready to look for a serious relationship. I went to a gym on a regular basis for about 3 years prior to my issues starting, paid for a personal trainer, and all that went down the drain.
Earlier this year, I had some degree of improvement, but now have noticed in the past few weeks, I have been very bad. Alot of pain at the back of my head, cannot sleep cos of it, hard to concentrate, cannot remember things to well cos of the pain, cannot absorb what I do cos of the pain. I cannot make decisions properly because I am so stressed out from the constant pain (and yet I always get told the stress excuse). How can someone be free of stress, if they are in constant pain 24/7. I have had chronic pain for the last 3years, 24hours a day 7 days a week.
I won't take any meds because the last time I did, it had so much side effects. I tried a low dose of Endep, (Amitriptyline) and within less than six months, I noticed blurred vision in one of my eyes.
I had to stop it, and tried others, they change my character or made me so dead tired zombie like. So I stopped them, and this was before I knew I had TMJ because no one at the time didn't want to investigate the problem.
So I am forced to deal with chronic pain using will power alone, and with rest, but I am human, and I do have my limits. Sometimes I do break down, even to the point of tears because of how bad in pain I can get.
Just because this disorder is more associated with women than men, that doesn't mean anything. Men can still get this disorder and their lifestyle can still be ruined because of it.
Now I stopped wearing my splint as after a few months it started to make my teeth hurt. Now a few weeks ago, in both my ears I had sharp pain, it felt like a knife was used, that is how it felt, and my TMJ is worse on the left side.
I second that opinion.
I first pointed out to one of my dentists prior to TMJconfirmation, that I was having difficulty in chewing, and I started feeling pain on certain foods I ate. Also, with my GP at the time, because the pain issues were so bad at the time, my GP at the time (this was a different GP to the one I have now) was blaming it on depression and pushing for me to see a psychiatrist. Can you believe that?
It was approx 6mths later I found out I had TMJ dysfunction. SO this dentist I went to knew I had it, yet did not even advise me to go on a soft food diet.
I had to change my entire range of treating doctors and specialists because of this disorder.
paul77
I can totally relate to you being angry at times. Before my health issues even started, I was working a good job, I was planning to put a deposit onto a house, and was ready to look for a serious relationship. I went to a gym on a regular basis for about 3 years prior to my issues starting, paid for a personal trainer, and all that went down the drain.
Earlier this year, I had some degree of improvement, but now have noticed in the past few weeks, I have been very bad. Alot of pain at the back of my head, cannot sleep cos of it, hard to concentrate, cannot remember things to well cos of the pain, cannot absorb what I do cos of the pain. I cannot make decisions properly because I am so stressed out from the constant pain (and yet I always get told the stress excuse). How can someone be free of stress, if they are in constant pain 24/7. I have had chronic pain for the last 3years, 24hours a day 7 days a week.
I won't take any meds because the last time I did, it had so much side effects. I tried a low dose of Endep, (Amitriptyline) and within less than six months, I noticed blurred vision in one of my eyes.
I had to stop it, and tried others, they change my character or made me so dead tired zombie like. So I stopped them, and this was before I knew I had TMJ because no one at the time didn't want to investigate the problem.
So I am forced to deal with chronic pain using will power alone, and with rest, but I am human, and I do have my limits. Sometimes I do break down, even to the point of tears because of how bad in pain I can get.
Just because this disorder is more associated with women than men, that doesn't mean anything. Men can still get this disorder and their lifestyle can still be ruined because of it.
Now I stopped wearing my splint as after a few months it started to make my teeth hurt. Now a few weeks ago, in both my ears I had sharp pain, it felt like a knife was used, that is how it felt, and my TMJ is worse on the left side.