emilysmom
02-03-2001, 04:36 PM
My daughter tested positive for lyme, again, 5 months after being treated. The Western Blot showed positive for 2 IgM bands (and other non specific IgM bands) and 6 IgG bands. She had only one less IgG band then before. The notation on the test said the results are consistant with the CDC's criteria for a positive serology. Her pediatrician said she is no longer positive and that the blood test just shows she has "known" lyme. Also, the notation by the lab on her first blood test said the results were "most often seen in late stage disease". I'm confused. What do the results show? She's only 3-1/2. The reason I'm pursuing this is because after she became ill with lyme (on her third birthday, exactly), she had a complete personality change. Two months later she was diagnosed as autistic. Prior to that she was a normal child. I think the lyme did this to her. Is there somewhere where I can get a better explanation as to why the doctor said she doesn't have active lyme? I believe she still has lyme!! She was also bitten again (no bull's eye) several months later. Luckily the doctor is willing to do whatever I want so we have an MRI scheduled next week to check for demyelination. Any info would be greatly appreciated!
[This message has been edited by emilysmom (edited 02-03-2001).]
[This message has been edited by emilysmom (edited 02-03-2001).]
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Heather Williams
02-07-2001, 07:13 AM
Where are you located?
emilysmom
02-07-2001, 10:28 AM
I'm in New Jersey.
LynRN
02-13-2001, 12:39 AM
You didn't say which bands showed up on the followup Western blot, nor did you specify the details of the treatment she was given. Also, what did the MRI that you planned to get say?
emilysmom
02-13-2001, 04:01 PM
Hi LynRN,
The followup Western Blot showed the following:
IgM: 23,41 and other CDC non-specifice bands
IgG: 18,23,39,41,45,66
It was done by a different lab. The first time was done by Quest and the second test was done by SUNY at Stony Brook.
If you're interested, the first test showed:
IgM: 23,39,41
IgG: 18,23,28,39,41,45,58,
** "most often seen in late disease" was noted on the test results also.
What do you think? I appreciate your reply and look forward to any feedback you might have.
Her MRI was rescheduled for 2 weeks from now because she has a cold. They feel she shouldn't undergo pediatric anethesia when she's congested.
Thanks
The followup Western Blot showed the following:
IgM: 23,41 and other CDC non-specifice bands
IgG: 18,23,39,41,45,66
It was done by a different lab. The first time was done by Quest and the second test was done by SUNY at Stony Brook.
If you're interested, the first test showed:
IgM: 23,39,41
IgG: 18,23,28,39,41,45,58,
** "most often seen in late disease" was noted on the test results also.
What do you think? I appreciate your reply and look forward to any feedback you might have.
Her MRI was rescheduled for 2 weeks from now because she has a cold. They feel she shouldn't undergo pediatric anethesia when she's congested.
Thanks
heckyeah
02-21-2001, 03:20 PM
Just wanted to post that many people are not cured by 5 months of antibiotics!! Far from it!! Many continue to have Lyme and even test negative. Your daughter has actually filled the strict CDC criteria and her doctor still doubts it??? You need to get her to a doctor who is willing to actually look at her condition and test results and TREAT her. So frustrating!
Jen
- late stage Lyme sufferer, just diagnosed 2 months ago after seven years misdiagnosed.
[This message has been edited by moderator2 (edited 08-19-2002).]
Jen
- late stage Lyme sufferer, just diagnosed 2 months ago after seven years misdiagnosed.
[This message has been edited by moderator2 (edited 08-19-2002).]