bhmomof2
06-01-2009, 05:32 PM
I am really have an awful day. Yesterday I noticed an increase in the tingling sensation. Today rather than being annoying it is very uncomfortable, to the point of painful. My doctor told me I could take the Lyrica for nerve pain. Is this what she means. I have had sciatic type pain before but never this feeling to this extent. It is not just in one place either. I do have a call into the neuro, but they will probably just have me come in. Any advice would help. Thanks.
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MSJayhawk
06-01-2009, 08:42 PM
Nerve pain which is MS related is not notable for responding to pain meds. My learning experience was in the area of my sciatica. For me the pain went through my left "cheek" and down through my left thigh. The only treatment that has worked 100% of the time for me has been the heating pad.
I hope you get through your pain soon!!:angel:
I hope you get through your pain soon!!:angel:
sahicken
06-01-2009, 09:18 PM
I have read recently on Disaboom that Lyrica is starting to be used for MS pain and my doctor has recently upped my Lyrica dosage and it does seem to work for the nighttime leg pain that I get but not for daytime and the pain I get just walking around. I can't do the heat myself it makes it worse. Give me cold anytime lol. Although I have not been DX yet I am still waiting for another MRI. I have recenly started getting floaters and my facial numbing is driving me batty.
MSNik
06-01-2009, 10:15 PM
I have tried Lyrica, neurontin , Cymbalta and a host of other so called Nerve Pain drugs...nothing has helped at any dosage. I fall asleep and forget the pain when on these drugs, but wake up in more pain then ever.. I gave up. I live with it, believe it or not, you get used to it and REALLY apprecaite the good days!
Nikki
Nikki
popstarrdiva
06-04-2009, 12:37 AM
I am a limbolander, but have Rsd/Crps which is rated the highest pain that can be felt on the McGill Pain Scale. Lyrica has been one of my lifesavers. You need A Lot of medication and nerve blocks etc etc to stop and/or slow down this pain disease. I have written this a few times that there is a higher incidence of Rsd found in people with MS. Study done by Dr Schwartzman.
Anyway, Lyrica helped to stop the zapping, zinging, burning, zapping crap that is just terrible to live with. Nerve pain is BRUTAL. Trust me. Give it a try.
Anyway, Lyrica helped to stop the zapping, zinging, burning, zapping crap that is just terrible to live with. Nerve pain is BRUTAL. Trust me. Give it a try.
MSNik
06-04-2009, 09:33 AM
Popstar - how much lyrica do you take a day if I may ask?? I was on it for months and have complete nerve pain in my left hand/ fingers- I got nothing out of it at all.
My doc talks to me about nerve blocks, but Im afraid to do it- Ive had cortisone injections, which help for about a month- but dont last....the nerve block seems too rash for me. Ive learned to live with it. But, honestly, I dont know of anyone who had help with Lyrica, you seem to be a big fan. May I ask what dosage you take and if you have any side effects? I slept the first week I was on Lyrica, but thats not good. I work fulltime and drive a car from appointment to appointment. I need to be alert!
THanks
Nikki
My doc talks to me about nerve blocks, but Im afraid to do it- Ive had cortisone injections, which help for about a month- but dont last....the nerve block seems too rash for me. Ive learned to live with it. But, honestly, I dont know of anyone who had help with Lyrica, you seem to be a big fan. May I ask what dosage you take and if you have any side effects? I slept the first week I was on Lyrica, but thats not good. I work fulltime and drive a car from appointment to appointment. I need to be alert!
THanks
Nikki
popstarrdiva
06-05-2009, 01:12 AM
Hey Nikki,
I had constant buzzing, burning, zapping and basically couldn't do normal life or feel normal. I started taking it last June 75mg for 1 week, 150mg 2nd week. Etc. The first night I took it I couldn't walk straight the next day. It would probably be easier for you or anyone else to up it more slowly as it makes you feel super drowsy and out of it when you first start taking it. I had gone up to 300mg a day and that is when I actually started to feel "normal" sorry my legs feel like regular legs again. I could walk up stairs without being so gentle with them etc.
It changed my life so although it is very strong and hard to get adjusted to it was totally worth it. I am now on 450mg.
I am completely able to function, drive etc. I don't feel out of it or anything. Obviously when you take a lot of medication and combined you will sometimes lose a train of thought, but I work and am ok.
I have heard Lyrica doesn't work for everyone, but am glad it does for me.
Nerve blocks seem scary, but they really work well. Sympathetics were ok, but the ones that worked best for me were epidurals. The first one didn't last long because it was a regular strength, the 2nd doubled was better and the 3rd tripled worked much better. Apparently they can last somewhere up to 6 mths or so....
I had constant buzzing, burning, zapping and basically couldn't do normal life or feel normal. I started taking it last June 75mg for 1 week, 150mg 2nd week. Etc. The first night I took it I couldn't walk straight the next day. It would probably be easier for you or anyone else to up it more slowly as it makes you feel super drowsy and out of it when you first start taking it. I had gone up to 300mg a day and that is when I actually started to feel "normal" sorry my legs feel like regular legs again. I could walk up stairs without being so gentle with them etc.
It changed my life so although it is very strong and hard to get adjusted to it was totally worth it. I am now on 450mg.
I am completely able to function, drive etc. I don't feel out of it or anything. Obviously when you take a lot of medication and combined you will sometimes lose a train of thought, but I work and am ok.
I have heard Lyrica doesn't work for everyone, but am glad it does for me.
Nerve blocks seem scary, but they really work well. Sympathetics were ok, but the ones that worked best for me were epidurals. The first one didn't last long because it was a regular strength, the 2nd doubled was better and the 3rd tripled worked much better. Apparently they can last somewhere up to 6 mths or so....
MSNik
06-05-2009, 09:31 AM
Thanks for that information. I have to honestly say I am impressed that you can function under that much. Half of that dose, and I couldnt drive, let alone go to work! I did try to build it up slowly, but for me, the side effects outweighted the gains..
im glad you found a way to handle your pain! I think Im going to be living with mine, forever.
Take care..
Nikki
im glad you found a way to handle your pain! I think Im going to be living with mine, forever.
Take care..
Nikki