swimmom7
06-30-2009, 09:54 AM
hi. hoping someone here can help. i have been diabetic 10 years. good control after first 2. on pump. also hypothyroid. at last doc visit they found protein in my urine. want me to do 24 hour test.found it in nov too. i was on my period then. not sure if that matters. here are the numbers they gave me:
albumium - 30 mg
creatin 50 mg
ratio of 30:300
does anyone know what these numbers mean? are they really high? thank you
albumium - 30 mg
creatin 50 mg
ratio of 30:300
does anyone know what these numbers mean? are they really high? thank you
Sponsor
Coravh
06-30-2009, 10:47 AM
Did you have blood work together with the 24 hour urine? The blood levels of creatinine are more important than the urine levels. The best thing you can do for yourself is to minimize your salt intake, try to keep hydrated and continue to have your doctor monitor your situation. Make sure your blood pressures are well under control too.
swimmom7
06-30-2009, 10:51 AM
thanks coravh,
i drink water all day long. very seldom drink pop or juice, no coffee. my blood pressure is fine and i do not add salt to foods. but i do not think they checked my blood. they took blood, but was for thyroid and diabetes i think.
i drink water all day long. very seldom drink pop or juice, no coffee. my blood pressure is fine and i do not add salt to foods. but i do not think they checked my blood. they took blood, but was for thyroid and diabetes i think.
feelbad
06-30-2009, 11:20 AM
i am just wondering about the way your labs are typed out here? this cannot be the actual way they were on your lab sheet can they? do you actually have your own copy of your lab sheet in your possession? if you can, type out just what these numbers were PER that sheet. these types of labs, to my knowledge just are not ever written in only mgs. the standard way for like the creatinine to be written would be mg/dl, with the normal range being between 0.5-1.3mg/dl. so that 50 really does not make too much sense, unless it was actually 5.0 perhaps? and that would be out of range or higher than the norm. the albumin would be between 3.5-5.0 g/dl. what exact ratio is the last one, the calculated A/G ratio? that norm is 1.0-2.2 .
the fact that you have had repeated protein show up in your urine is usually indicative of some form of affectation or disease process going on within your kidneys. have they referred you to a good nephrologist to just have you evaluated by one? only because of the way the labs are typed out here i really cannot say just what is going on with them at this point, you know what i mean? if you do have that copy(if you don't you really do need to start keeping them for your own medical files), if you could just type out these labs and also what your actual GFR is too? this also would have been tested along with the other ones too. this is the glomular filtration rate that just shows how well your kidneys are still filtering. at the very least with that one, it should be above 60. it would show like >60 ml/min/1.73m2, at least that is the way it shows on my lab sheets. but even tho i also have a kidney disease,my GFR is actually >80. very strange type of kidney and liver disease i have.
but seeing a good nephrologist is just something you will need now as part of your ongoing healthcare team so you can keep those kidneys monitored in the very best way. i have a neph but because my labs have not gone out of range yet(they will tho), i see him rarely to consult on certain things since my primary can do the needed bloodwork and refer me for yearly ultrasounds. also obtaining an ultrasound wouldn't hurt either. it just would just show what your kidneys are looking like in there too.
but if you can type out the actual labs as written on that sheet, it would really help me to try and help you in the best way. they are just a bit confusing up there, lol. there are also other people on this particular board who know alot more than me about them. Marcia
the fact that you have had repeated protein show up in your urine is usually indicative of some form of affectation or disease process going on within your kidneys. have they referred you to a good nephrologist to just have you evaluated by one? only because of the way the labs are typed out here i really cannot say just what is going on with them at this point, you know what i mean? if you do have that copy(if you don't you really do need to start keeping them for your own medical files), if you could just type out these labs and also what your actual GFR is too? this also would have been tested along with the other ones too. this is the glomular filtration rate that just shows how well your kidneys are still filtering. at the very least with that one, it should be above 60. it would show like >60 ml/min/1.73m2, at least that is the way it shows on my lab sheets. but even tho i also have a kidney disease,my GFR is actually >80. very strange type of kidney and liver disease i have.
but seeing a good nephrologist is just something you will need now as part of your ongoing healthcare team so you can keep those kidneys monitored in the very best way. i have a neph but because my labs have not gone out of range yet(they will tho), i see him rarely to consult on certain things since my primary can do the needed bloodwork and refer me for yearly ultrasounds. also obtaining an ultrasound wouldn't hurt either. it just would just show what your kidneys are looking like in there too.
but if you can type out the actual labs as written on that sheet, it would really help me to try and help you in the best way. they are just a bit confusing up there, lol. there are also other people on this particular board who know alot more than me about them. Marcia
swimmom7
06-30-2009, 04:59 PM
those were the numbers the docs office gave me when i called and asked. will try to get more specifics but will be couple days. thanks for info.
feelbad
07-01-2009, 02:16 PM
aren't docs offices great in relaying stupid info? if i were you, only because your condtions have been an ongoing type of thing and you WILL also be getting monitoring labs and other possible tests here too, always always obtain your very OWN copies of any and all test results in the future and also call the docs office(and any other docs you have had to see as well) to send you out what is called a release of information for you to sign and send back just to actually obtain ALL and any of your past medical records too.
honestly,this really IS the very best way to try and stay on top of any true ongoing or chronic conditions. i have to see five seperate specialists just to manage all my conditions and to just keep 'me" going. just obtaing all the past records from all these docs along with just asking for any recent test results to be copied for you when you see your doc about them is really what helps me the most in just really knowing and understanding where i am at with all this crap, ya know what i mean? its all stuck into an expanding type of folder that i simply bring with me to every appt i have now. espescially any real testing results, that is what just needs to be kept and brought with you to appts. they may or may not actually need them but at least you KNOW you have your own copies if they start asking you questions and you just cannot remeber the answers, you just pop into YOUR own files and tell them they can make their own 'copy' with them making certain to give YOUR copy back again. never ever give up ANY of your own records(these simply ARE yours), just allow them to only copy them. that way you will always have everything YOU need.
but this really has helped me the most in just being able to compare my own labs against the last set along the way in dealing with all my ongoing stuff. this would be something to get started on as soon as possible. just make some phone calls asking for your own medical records, they will know what to do from there. it should not take more than like a week or two at the most for this copying process to get done. you just NEED this and every right to it. please let me know when you obtain tha lab sheet hon. good luck to you with this. marcia
honestly,this really IS the very best way to try and stay on top of any true ongoing or chronic conditions. i have to see five seperate specialists just to manage all my conditions and to just keep 'me" going. just obtaing all the past records from all these docs along with just asking for any recent test results to be copied for you when you see your doc about them is really what helps me the most in just really knowing and understanding where i am at with all this crap, ya know what i mean? its all stuck into an expanding type of folder that i simply bring with me to every appt i have now. espescially any real testing results, that is what just needs to be kept and brought with you to appts. they may or may not actually need them but at least you KNOW you have your own copies if they start asking you questions and you just cannot remeber the answers, you just pop into YOUR own files and tell them they can make their own 'copy' with them making certain to give YOUR copy back again. never ever give up ANY of your own records(these simply ARE yours), just allow them to only copy them. that way you will always have everything YOU need.
but this really has helped me the most in just being able to compare my own labs against the last set along the way in dealing with all my ongoing stuff. this would be something to get started on as soon as possible. just make some phone calls asking for your own medical records, they will know what to do from there. it should not take more than like a week or two at the most for this copying process to get done. you just NEED this and every right to it. please let me know when you obtain tha lab sheet hon. good luck to you with this. marcia
idunno
07-02-2009, 11:21 PM
Hi swim,
I'm with feelbad,I dont understand the method in which your results have been relayed to you. I suffer from proteinurea. It is a function of the kidney filters to allow waste products through into the urine but not protein. Protein is important it is one of the things that keeps your blood in your veins. If you lose too much protein your blood starts to leak and you often suffer from a condition called oedema which is a swelling ,usually in the feet and hands.
In normal conditions you are allowed to lose up to 150 mg of protein a day through your urine ,at a loss or around 1500 mg a day your nephrologist should hear warning bells and do further tests. Losses of over 3000 mg aday and you have enterred neprotic syndrome and you are in serious need of treatment. Filter problems are usually diagnosed by a kidney biopsy. Two of the more common problems are MCD )minimal change disease which is thinning of the filters.It is usually treated with high dose cortico-steroids. That is Not going to happen with someone with diabetes. The other common problem is FSGS which is scarring of the filters. The only thing that really seems to work for this is to remove the cause(nsaids,other drugs ,infections and even cholesterol drugs especially if they are causing some muscle deterioration,the broken down muscle tissue can block the filters). Plus keeping blood pressure as low as possible ,usually in the 120/70 range.
My protein loss was just over 3000 mg daily and my kidney biopsy showed fsgs. I am now on 4 bp meds that have kept my bp in the desired range. as a result my protein loss has dropped to 750mg a day and is under control. In conjunction with your 24hr protein tests they should be doing blood tests to make sure that the wastes are being eliminated from your blood. I am fortunate that all of my blood counts are in the normal range which indicates that my kidney function apart from the protein is normal.
i asked my neph what the danger of excess protein loss was. He said that in severe cases the leakage of the blood can cause the remaining portion left in the veins to thicken and form clots. These clots can break away and lodge in lungs or brain. Hope the information helps,Ron.
I'm with feelbad,I dont understand the method in which your results have been relayed to you. I suffer from proteinurea. It is a function of the kidney filters to allow waste products through into the urine but not protein. Protein is important it is one of the things that keeps your blood in your veins. If you lose too much protein your blood starts to leak and you often suffer from a condition called oedema which is a swelling ,usually in the feet and hands.
In normal conditions you are allowed to lose up to 150 mg of protein a day through your urine ,at a loss or around 1500 mg a day your nephrologist should hear warning bells and do further tests. Losses of over 3000 mg aday and you have enterred neprotic syndrome and you are in serious need of treatment. Filter problems are usually diagnosed by a kidney biopsy. Two of the more common problems are MCD )minimal change disease which is thinning of the filters.It is usually treated with high dose cortico-steroids. That is Not going to happen with someone with diabetes. The other common problem is FSGS which is scarring of the filters. The only thing that really seems to work for this is to remove the cause(nsaids,other drugs ,infections and even cholesterol drugs especially if they are causing some muscle deterioration,the broken down muscle tissue can block the filters). Plus keeping blood pressure as low as possible ,usually in the 120/70 range.
My protein loss was just over 3000 mg daily and my kidney biopsy showed fsgs. I am now on 4 bp meds that have kept my bp in the desired range. as a result my protein loss has dropped to 750mg a day and is under control. In conjunction with your 24hr protein tests they should be doing blood tests to make sure that the wastes are being eliminated from your blood. I am fortunate that all of my blood counts are in the normal range which indicates that my kidney function apart from the protein is normal.
i asked my neph what the danger of excess protein loss was. He said that in severe cases the leakage of the blood can cause the remaining portion left in the veins to thicken and form clots. These clots can break away and lodge in lungs or brain. Hope the information helps,Ron.
swimmom7
07-06-2009, 08:30 AM
thank you everyone, i am doing 24 hour urine today. have been very tired and draggy. but have had alot going on too. will let you know what they say after this. thanks again.
baylee6
07-08-2009, 08:46 PM
Hi Swimmom,
I just wanted to let you know I was thinking about you....and have my fingers crossed for good news in regards to your CC test.
Diane ( Baylee6)
I just wanted to let you know I was thinking about you....and have my fingers crossed for good news in regards to your CC test.
Diane ( Baylee6)
swimmom7
07-09-2009, 12:57 PM
thank you everyone that has posted. i have yet to hear from the 24 hour test. am calling tomorrow if i dont hear anything by then. i cry on the mower, in the car and anytime i'm alone (which thankfully, isn't often.) then try to act normal for my kids. problem is, is when i see them, it all starts again. baylee, we have something else in common.... my 3 youngest are adopted! great kids (if i may say so-ha). i am getting an idea of what questions i need to ask the doctors office, but if anyone has any thoughts on this, please share. do they get the gfr from the 24 hour? i guess i need to know how much protein is in the urine? anything else? lets keep positive thoughts for each other and for ourselves. i've had more conversation with God than i have in a long time. guess that is one good thing coming out of this. i will be sure to let you all know my results as soon as i can. thanks again. you all are awesome.
baylee6
07-09-2009, 09:32 PM
Hi Swim,
Am rather new at all this.....so I'm not going to be the biggest help. But...yes, my 24 hour CC test did show my GFR as well as my creatinine. My GFR was higher in the 24 CC test 59. As a few weeks before it was 53. However, my creatinine was 1.2 higher than the 1.1 with the other test? From these numbers I was referred to a Nephrolgist. I have my appointment Aug 21. I have been busy trying to get all my records sent to him as they are a bit scattered. It was my idea to have all my old Ctscans sent as well because they will show my kidneys from only a few years ago. I also picked up some blood work from 2003 and it showed my creatinine at 1.0 at that point and time. Hmmmmmm Don't know quite what to make of it all. I think I have gone in to a bit of a denial mode. I was just too freakin' upset, afraid and stressed out to function. I understand your tears though. It must be so hard to keep it together in front of your children.
I also heard back fairly quickly....at least within two days. They were going to send me the results but of course I said I would run down and pick them up.
I am the one who called this to my GP's attention. I think they do not take this as seriously and tend to wait longer to refer. So, if your turns out to be at all low you need to insist on a referrel to a Nephrologist. Also, he may have other tests for you and perhaps an ultra sound or scan of your kidneys would be ordered. I think it is pretty important to get the right diagnosis.
You have 3 adopted children....how cool. Mine came later in life for me and I want to be around for future grandchildren and to see them flourish as adults. You sound like a very proud mom.
Please let us know the results of your test. Still have my fingers crossed.
Diane
Am rather new at all this.....so I'm not going to be the biggest help. But...yes, my 24 hour CC test did show my GFR as well as my creatinine. My GFR was higher in the 24 CC test 59. As a few weeks before it was 53. However, my creatinine was 1.2 higher than the 1.1 with the other test? From these numbers I was referred to a Nephrolgist. I have my appointment Aug 21. I have been busy trying to get all my records sent to him as they are a bit scattered. It was my idea to have all my old Ctscans sent as well because they will show my kidneys from only a few years ago. I also picked up some blood work from 2003 and it showed my creatinine at 1.0 at that point and time. Hmmmmmm Don't know quite what to make of it all. I think I have gone in to a bit of a denial mode. I was just too freakin' upset, afraid and stressed out to function. I understand your tears though. It must be so hard to keep it together in front of your children.
I also heard back fairly quickly....at least within two days. They were going to send me the results but of course I said I would run down and pick them up.
I am the one who called this to my GP's attention. I think they do not take this as seriously and tend to wait longer to refer. So, if your turns out to be at all low you need to insist on a referrel to a Nephrologist. Also, he may have other tests for you and perhaps an ultra sound or scan of your kidneys would be ordered. I think it is pretty important to get the right diagnosis.
You have 3 adopted children....how cool. Mine came later in life for me and I want to be around for future grandchildren and to see them flourish as adults. You sound like a very proud mom.
Please let us know the results of your test. Still have my fingers crossed.
Diane
swimmom7
07-13-2009, 07:17 PM
finally got my results today. and all is well. my protein was 111, right in the middle of the ranges they gave me. i really thought something was wrong. shouldn't have read all the symptoms........ha. thank you everyone for everything. i hope all goes well for you all too.
baylee6
07-14-2009, 12:24 AM
Swimmom....
What great news!!! Yay! What a relief for you. Thanks for coming back and letting us know.
Keep taking good care of yourself.
Diane
What great news!!! Yay! What a relief for you. Thanks for coming back and letting us know.
Keep taking good care of yourself.
Diane