baylee6
07-06-2009, 09:18 PM
Hello,
Last year I had a metobolic panel. GLR was 50 creatinine 1.1 BUN 28. Doctor thought I was dyhdrated. Ok..go to my Gyn a few weeks ago. She is doing other bloodwork for me for something else and I ask her to throw in a metobolic panel. Now I see that my GLR is 53. I call back my regular Doctor and she gives me the 24 hour creatinine clearance. Now GLR is 59 but creatinine is 1.2. I can't get into the Kidney Doc until August 21st. Yikes! I start researching the internet. I may have read every medical abstract on there. My anxiety is full force. I googled every question I can think of. It seems surreal. I'm in my late 50's. All I keep seeing is that it is progressive and irreversible. I'm now headed down a path I never wanted to go. I don't have diabetes or anything else that would cause this. I did have uterine cancer 6 years ago and I had a lot of CTscans with media contrast. I'm wondering if that did the damage?
I feel so heathy. Just ready to retire and start doing things. Does anyone have any words of wisdom? How long does it take to progress. Can the progression be halted for 15 twenty years or more? I just feel scared and would be grateful for any advice I could get. I just can't believe this is happening. I hate to say this out loud but I am wondering how much time I have left. Thank you, Diane
By the way, I almost didn't write because I saw so many posts that did not get answered. In my GYN message boards there were always moderators who stepped in even if only to offer a little sympathy. Sorry, I'm complaining already but I would feel bad if no one answered my post. Even if you don't really have much help it would be good to be acknowleged. Ok...feelin' the tears now. Seems like a bad dream
Last year I had a metobolic panel. GLR was 50 creatinine 1.1 BUN 28. Doctor thought I was dyhdrated. Ok..go to my Gyn a few weeks ago. She is doing other bloodwork for me for something else and I ask her to throw in a metobolic panel. Now I see that my GLR is 53. I call back my regular Doctor and she gives me the 24 hour creatinine clearance. Now GLR is 59 but creatinine is 1.2. I can't get into the Kidney Doc until August 21st. Yikes! I start researching the internet. I may have read every medical abstract on there. My anxiety is full force. I googled every question I can think of. It seems surreal. I'm in my late 50's. All I keep seeing is that it is progressive and irreversible. I'm now headed down a path I never wanted to go. I don't have diabetes or anything else that would cause this. I did have uterine cancer 6 years ago and I had a lot of CTscans with media contrast. I'm wondering if that did the damage?
I feel so heathy. Just ready to retire and start doing things. Does anyone have any words of wisdom? How long does it take to progress. Can the progression be halted for 15 twenty years or more? I just feel scared and would be grateful for any advice I could get. I just can't believe this is happening. I hate to say this out loud but I am wondering how much time I have left. Thank you, Diane
By the way, I almost didn't write because I saw so many posts that did not get answered. In my GYN message boards there were always moderators who stepped in even if only to offer a little sympathy. Sorry, I'm complaining already but I would feel bad if no one answered my post. Even if you don't really have much help it would be good to be acknowleged. Ok...feelin' the tears now. Seems like a bad dream
Sponsor
Coravh
07-06-2009, 10:41 PM
First of all, try to relax a bit. Your numbers are not that bad right now. Also, numbers can fluctuate up and down based on dehydration and other factors. Yes, most kidney diseases are progressive, but some are very slow. I had diabetes and it took over 20 years from when I was first diagnosed with protein in my urine to the point where I went on dialysis. You just can't tell how quickly something like this will progress. In the meantime, talk to a nephrologist and team. A renal dietitian can give you good advice on what to eat (like cutting out salt) to help take pressure off your kidneys.
How has your blood pressure been? This can become an issue and it's important to keep it in control.
Best of luck to you and feel free to ask all the questions you like.
How has your blood pressure been? This can become an issue and it's important to keep it in control.
Best of luck to you and feel free to ask all the questions you like.
baylee6
07-06-2009, 11:08 PM
HI Corvah, Thank you so much for replying. My Bp is pretty good. 130/80sometimes higher at a Doctors appt. I take it at home and it's lower. I guess I will have to be evaluated to see what is causing my CKD. Reading everything has been confusing. Almost all say it is progressive but some say it can be halted from going further. Might that be true? It feels like a nightmare and seems like I will always carry a cloud over my head from now on. I hope I will adjust over time. Anything new on the horizen to treat it? You think I could eek out 20 more years ;-) Thanks again for responding as I am feeling distraught. Hugs, Diane
Coravh
07-06-2009, 11:12 PM
Hi Diane. While you can't necessarily count on 20 years, you are in the early stages. How are your blood pressures at home. The 130/80 could be lower to help you along if it is at that level at home.
Do they know what is causing your kidney problems? Some issues move slower than others.
Cora
Do they know what is causing your kidney problems? Some issues move slower than others.
Cora
baylee6
07-06-2009, 11:42 PM
Hi Cora,
I have one of those wrist bands that measure pressure and pulse. Often it is in the 120's over 70's. No, I have no idea unless it is the media contrast from about 6 Ctscans a couple of years ago. Jeeeez, I just made it out of the cancer mess I was in... only to be diving into another mess. I am basically a very healthy person. I think of myself that way and have always been thankful for it. I always said if you had your health you had everything. This has really sent me for a loop. Sorry to be so dramatic but I feel there is a death sentence over me now. (I'm a Counselor in real life so I'm use to being honest with my feelings)
I had to have creatinine levels done before my Ctscans and I assume they were always ok until recently. You know, my regular GP did not alert me to the GLR levels. It was me who called and then I was given the 24 hour Creatinine clearence. I never even talked with my regular GP, she just had her assistent call with the referral to the Kidney Doc. So, I haven't been able to talk with anyone yet.
Do you know if there is an average rate of progression of CKD in the earlier stages? Can it ever be halted or is it always progressive? I know I asked you this already and I have a feeling the answer is no. I feel so sad about this. Also from my recent research I am aware that CKD has a great influence on heart disease. As a matter of fact it says that most will die of heart disease rather than make it to end stage kidney disease. So I understand why you were asking about my blood pressure. It is something that will need to be controlled as it goes up or maybe even now. Other aspects of my metoblic panel look fine.
Oh... do they give Kidney transplants to older people...say you make it to 75? I know you can't answer all my questions. I've got a million.
Your sweet to answer me and my angst.
Diane
I have one of those wrist bands that measure pressure and pulse. Often it is in the 120's over 70's. No, I have no idea unless it is the media contrast from about 6 Ctscans a couple of years ago. Jeeeez, I just made it out of the cancer mess I was in... only to be diving into another mess. I am basically a very healthy person. I think of myself that way and have always been thankful for it. I always said if you had your health you had everything. This has really sent me for a loop. Sorry to be so dramatic but I feel there is a death sentence over me now. (I'm a Counselor in real life so I'm use to being honest with my feelings)
I had to have creatinine levels done before my Ctscans and I assume they were always ok until recently. You know, my regular GP did not alert me to the GLR levels. It was me who called and then I was given the 24 hour Creatinine clearence. I never even talked with my regular GP, she just had her assistent call with the referral to the Kidney Doc. So, I haven't been able to talk with anyone yet.
Do you know if there is an average rate of progression of CKD in the earlier stages? Can it ever be halted or is it always progressive? I know I asked you this already and I have a feeling the answer is no. I feel so sad about this. Also from my recent research I am aware that CKD has a great influence on heart disease. As a matter of fact it says that most will die of heart disease rather than make it to end stage kidney disease. So I understand why you were asking about my blood pressure. It is something that will need to be controlled as it goes up or maybe even now. Other aspects of my metoblic panel look fine.
Oh... do they give Kidney transplants to older people...say you make it to 75? I know you can't answer all my questions. I've got a million.
Your sweet to answer me and my angst.
Diane
writeleft
07-07-2009, 12:38 AM
Worry not girlfriend, I've got this one! I am the one for this job. Your question is not in vain, and not only will you get this response, you can rely on me for any further questions you have about the stages of kidney function.
I am a 48 year old woman, and I am a survivor of end stage renal failure, recovered enough of my kidney function to amaze my doctors, and feel the need to share my positive experience with you.
First of all, let us take away all the fear based thinking, as it is not based on fact. The facts are, that our kidneys are capable of sustaining you for an entire lifetime. They are designed to withstand years of hard living without fail.
If a person were to have issues with their kidneys, there has never been a better time than today. There are very simple and effective tests, medications, and lifestyle changes that can greatly improve your kidney function. I brought my GFR from 24 to 40 using medication.
Nowadays, I operated with about 24% (stage 4) of my kidney function...but that doesn't stop me from being an active mom, a volunteer, and a member of my community. Kidney disease has few symptoms until the latest stage...so do not stop living your life due to your kidneys...honestly, focus on how wonderful life can be!
I am a 48 year old woman, and I am a survivor of end stage renal failure, recovered enough of my kidney function to amaze my doctors, and feel the need to share my positive experience with you.
First of all, let us take away all the fear based thinking, as it is not based on fact. The facts are, that our kidneys are capable of sustaining you for an entire lifetime. They are designed to withstand years of hard living without fail.
If a person were to have issues with their kidneys, there has never been a better time than today. There are very simple and effective tests, medications, and lifestyle changes that can greatly improve your kidney function. I brought my GFR from 24 to 40 using medication.
Nowadays, I operated with about 24% (stage 4) of my kidney function...but that doesn't stop me from being an active mom, a volunteer, and a member of my community. Kidney disease has few symptoms until the latest stage...so do not stop living your life due to your kidneys...honestly, focus on how wonderful life can be!
baylee6
07-07-2009, 01:53 AM
Hey girlfren',
You made me laugh out loud ( and that was really a tough job today) and then I cried ( from a little relief I think ) Hey, your a California girl!!! I know it is getting late so I may not hear back from you until tomorrow about my questions.
How long did it take you to progress to GLR 24? You went up to 40 but then back to 24. Did the meds stop working to some degree? But now keep you at a stable level now? In other words, are you maintaining that level over a period of time? You sound like an amazing and positive woman. Both you and Cora are inspiring.
Well, I'm already on that diet to get in shape. Nothing like seeing death in your future to put that big chocolate donut down mighty fast. lol Honestly, after reading everything on the web my stomach has been churning with anxiety and dread. It really is a different way of seeing yourself. Having a chronic and life threatening illness is something that needs adjusting too.
Yes, I will think of more questions. I hope you won't mind me asking more. It is so nice to talk with people who have been through it. I remember that from the Gyn cancer message boards. ( I'm fine-dodged a bullet on that one) Nothing compares to learning from someone who has been through the trenches.
You have a great attitude. Thanks again for the laugh and coming to my rescue.
Diane
You made me laugh out loud ( and that was really a tough job today) and then I cried ( from a little relief I think ) Hey, your a California girl!!! I know it is getting late so I may not hear back from you until tomorrow about my questions.
How long did it take you to progress to GLR 24? You went up to 40 but then back to 24. Did the meds stop working to some degree? But now keep you at a stable level now? In other words, are you maintaining that level over a period of time? You sound like an amazing and positive woman. Both you and Cora are inspiring.
Well, I'm already on that diet to get in shape. Nothing like seeing death in your future to put that big chocolate donut down mighty fast. lol Honestly, after reading everything on the web my stomach has been churning with anxiety and dread. It really is a different way of seeing yourself. Having a chronic and life threatening illness is something that needs adjusting too.
Yes, I will think of more questions. I hope you won't mind me asking more. It is so nice to talk with people who have been through it. I remember that from the Gyn cancer message boards. ( I'm fine-dodged a bullet on that one) Nothing compares to learning from someone who has been through the trenches.
You have a great attitude. Thanks again for the laugh and coming to my rescue.
Diane
Coravh
07-07-2009, 09:27 AM
Hi Diane.
Yes, this can be scary, but the good news is that nothing is ever as bad as you think it may be. I have gone the full gamut of treatment. I started with protein in my urine when I was 16, ended up on dialysis when I was 38, had a transplant at 39, and am now 45 and doing great. I've done both hemo and peritoneal dialysis too.
You seem to have a good family doctor. The earlier you get to a nephrologist the better. Many studies have shown this, so don't be scared that you have been sent to a specialist. If your damage was caused by the dye, there is a possibility that it is not progressive. You may just stay at this level for a very long time, if not for the rest of your life. In addition to that, keep in mind that no matter what happens, you can still lead a full and enjoyable life. I even travelled to Disneyworld and had a great time while on hemo dialysis. People are adaptable and will always find a way to live a good life if they set their mind to it.
As for the heart disease, while there can be a connection (due to fluid balances and dietary changes) it is not necessarily true. And at this early stage, it's not an issue for you. Also, blood pressure is important too, and yours seems normal. So again, don't worry at this point.
Overall, you say you are a healthy person and there is no reason you can't stay that way. Just try to keep your chin up. You will be fine.
Yes, this can be scary, but the good news is that nothing is ever as bad as you think it may be. I have gone the full gamut of treatment. I started with protein in my urine when I was 16, ended up on dialysis when I was 38, had a transplant at 39, and am now 45 and doing great. I've done both hemo and peritoneal dialysis too.
You seem to have a good family doctor. The earlier you get to a nephrologist the better. Many studies have shown this, so don't be scared that you have been sent to a specialist. If your damage was caused by the dye, there is a possibility that it is not progressive. You may just stay at this level for a very long time, if not for the rest of your life. In addition to that, keep in mind that no matter what happens, you can still lead a full and enjoyable life. I even travelled to Disneyworld and had a great time while on hemo dialysis. People are adaptable and will always find a way to live a good life if they set their mind to it.
As for the heart disease, while there can be a connection (due to fluid balances and dietary changes) it is not necessarily true. And at this early stage, it's not an issue for you. Also, blood pressure is important too, and yours seems normal. So again, don't worry at this point.
Overall, you say you are a healthy person and there is no reason you can't stay that way. Just try to keep your chin up. You will be fine.
swimmom7
07-07-2009, 01:19 PM
baylee6,
i am feeling the same things you are. i am diabetic but didn't expect any kidney problems because my numbers are always good. last dr visit they said i have protein in my urine and i just finished a 24 hour urine test. don't have the results from that yet. i am very scared. i have 5 kids i want to be here for. the youngest is 6. i know i keep thinking the worst, but am trying to be positive. i know God has plans for us and they don't always agree with what we want. i have always felt like i was a healthy person, even with the diabetes. now i look at the lists of symptoms and feel everything listed there! i do pretty good for awhile and then just have a good cry and i don't even know what is wrong yet! god bless you.
i am feeling the same things you are. i am diabetic but didn't expect any kidney problems because my numbers are always good. last dr visit they said i have protein in my urine and i just finished a 24 hour urine test. don't have the results from that yet. i am very scared. i have 5 kids i want to be here for. the youngest is 6. i know i keep thinking the worst, but am trying to be positive. i know God has plans for us and they don't always agree with what we want. i have always felt like i was a healthy person, even with the diabetes. now i look at the lists of symptoms and feel everything listed there! i do pretty good for awhile and then just have a good cry and i don't even know what is wrong yet! god bless you.
baylee6
07-07-2009, 02:39 PM
Cora,
You know, it is really the newness of news....so to speak. It seems so overwhelming and frightening. I realize I am not going to buy the farm tomorrow. But, there is grief and a sense of loss as to what lies in the future. I'm fairly pragmatic and well versed in understanding the research. I guess I am saying that I am aware that this is pretty dang' serious. I know we can't predict the future but there is a sense that my future will be cut shorter with this disease. I usually laugh often and hard and I don't want to lose that. I was counting on not checking out of this life until the bitter end ;-(
That said... I know that attitude is everything. I will have to make the best of it. I don't want to live in a place of fear and worry all the time. However, I think there is a time to adjust and feel a sense of grief and sadness.
Your story is inspiring. You've had to deal with this for a long time...yet stay positive and proactive. I'm so glad you are doing well. Your post is reassuring. Your right that nothing is usually as bad as what your mind has conjured up. And my mind has been in overdrive.
I do have a question. Why do you think damage from the dye might not be progressive. Is it just a hunch? Or have you read something to this effect. My GLR seemed to stay in the same range ( on the blood test, not the CClearence) from last year to this. Maybe that is a good thing. And, is the GLR slower to lower in the earlier stages and then tends to move more rapidly lower as more damage occurs?
I'm curious about the above questions so please let me know when you have time to write back.
You just don't know how much I appreciate your responses/knowledge and kindness.
Diane
You know, it is really the newness of news....so to speak. It seems so overwhelming and frightening. I realize I am not going to buy the farm tomorrow. But, there is grief and a sense of loss as to what lies in the future. I'm fairly pragmatic and well versed in understanding the research. I guess I am saying that I am aware that this is pretty dang' serious. I know we can't predict the future but there is a sense that my future will be cut shorter with this disease. I usually laugh often and hard and I don't want to lose that. I was counting on not checking out of this life until the bitter end ;-(
That said... I know that attitude is everything. I will have to make the best of it. I don't want to live in a place of fear and worry all the time. However, I think there is a time to adjust and feel a sense of grief and sadness.
Your story is inspiring. You've had to deal with this for a long time...yet stay positive and proactive. I'm so glad you are doing well. Your post is reassuring. Your right that nothing is usually as bad as what your mind has conjured up. And my mind has been in overdrive.
I do have a question. Why do you think damage from the dye might not be progressive. Is it just a hunch? Or have you read something to this effect. My GLR seemed to stay in the same range ( on the blood test, not the CClearence) from last year to this. Maybe that is a good thing. And, is the GLR slower to lower in the earlier stages and then tends to move more rapidly lower as more damage occurs?
I'm curious about the above questions so please let me know when you have time to write back.
You just don't know how much I appreciate your responses/knowledge and kindness.
Diane
baylee6
07-07-2009, 02:55 PM
oh swimmom,
I understand your feelings. I've been feeling so awful and afraid myself. I have two of my boys still living at home ( they came to me later in life so I am an older parent). I've been so involved with them over the years. I was a 'sports' team parent forever it seems. I noticed the name 'swimmom' so I bet you are also very involved.
By the way, I get all my medical reports/lab tests sent to me asap. Please make sure you get all of yours. I do think it is important to be very informed and involved in your own health care.
I'm so sorry you are feeling so stressed. But, who wouldn't. My stomach has been in knots too. I hope your 24 hour clearence turns out to be fine. Will you please come back and let us know. I will be looking for your post or response with the results. I wish I could help you more but this is new for me too. I can only relate to how scary it is and to your fears and concern about your health in regards to yourself and being a healthy parent for your children.
I'm sending positive and comforting thoughts your way.
Diane ( and you let us know about your 24 CC test...ya' hear!)
I understand your feelings. I've been feeling so awful and afraid myself. I have two of my boys still living at home ( they came to me later in life so I am an older parent). I've been so involved with them over the years. I was a 'sports' team parent forever it seems. I noticed the name 'swimmom' so I bet you are also very involved.
By the way, I get all my medical reports/lab tests sent to me asap. Please make sure you get all of yours. I do think it is important to be very informed and involved in your own health care.
I'm so sorry you are feeling so stressed. But, who wouldn't. My stomach has been in knots too. I hope your 24 hour clearence turns out to be fine. Will you please come back and let us know. I will be looking for your post or response with the results. I wish I could help you more but this is new for me too. I can only relate to how scary it is and to your fears and concern about your health in regards to yourself and being a healthy parent for your children.
I'm sending positive and comforting thoughts your way.
Diane ( and you let us know about your 24 CC test...ya' hear!)
writeleft
07-08-2009, 12:08 AM
Hey girlfren',
You made me laugh out loud ( and that was really a tough job today) and then I cried ( from a little relief I think ) Hey, your a California girl!!! I know it is getting late so I may not hear back from you until tomorrow about my questions.
How long did it take you to progress to GLR 24? You went up to 40 but then back to 24. Did the meds stop working to some degree? But now keep you at a stable level now? In other words, are you maintaining that level over a period of time? You sound like an amazing and positive woman. Both you and Cora are inspiring.
Well, I'm already on that diet to get in shape. Nothing like seeing death in your future to put that big chocolate donut down mighty fast. lol Honestly, after reading everything on the web my stomach has been churning with anxiety and dread. It really is a different way of seeing yourself. Having a chronic and life threatening illness is something that needs adjusting too.
Yes, I will think of more questions. I hope you won't mind me asking more. It is so nice to talk with people who have been through it. I remember that from the Gyn cancer message boards. ( I'm fine-dodged a bullet on that one) Nothing compares to learning from someone who has been through the trenches.
You have a great attitude. Thanks again for the laugh and coming to my rescue.
Diane
Hey Diane,
I am not sure what the funny part was, but glad to you know you had a liitle laugh.. I am happy to answer any questions you have, so I'll go through them one by one...
How long did it take you to progress to GLR 24?
Actually, in my case I started at the bottom. Five years ago (when I was 43) I suffered a heart attack, 4 strokes, and kidney falilure, simultanoeusly. This was the result of the real culprit...malignant hypertension (don't worry, very very rare).
So, I actually progressed from practically zero to the mid 40% kidney function.
You went up to 40 but then back to 24. Did the meds stop working to some degree?
No it was not the the meds, they save my life everyday. They do take constant monitoring, and careful adjustment. I have other health issues that impact my kidney function, so maintaing 24% is positive for me.
But now keep you at a stable level now? In other words, are you maintaining that level over a period of time?
Well, I so see quite a few specialist who work together to keep my blood pressure, my kidney function, my blood work and everything working as well as possible. I am absolutely thrilled to be alive everyday, to hug my children, watch my flowers bloom and that type thing.
I have already been counseled for dialysis, which is most likely down the road for me...maybe Cora can share a little about that with me.
Smilin'
You made me laugh out loud ( and that was really a tough job today) and then I cried ( from a little relief I think ) Hey, your a California girl!!! I know it is getting late so I may not hear back from you until tomorrow about my questions.
How long did it take you to progress to GLR 24? You went up to 40 but then back to 24. Did the meds stop working to some degree? But now keep you at a stable level now? In other words, are you maintaining that level over a period of time? You sound like an amazing and positive woman. Both you and Cora are inspiring.
Well, I'm already on that diet to get in shape. Nothing like seeing death in your future to put that big chocolate donut down mighty fast. lol Honestly, after reading everything on the web my stomach has been churning with anxiety and dread. It really is a different way of seeing yourself. Having a chronic and life threatening illness is something that needs adjusting too.
Yes, I will think of more questions. I hope you won't mind me asking more. It is so nice to talk with people who have been through it. I remember that from the Gyn cancer message boards. ( I'm fine-dodged a bullet on that one) Nothing compares to learning from someone who has been through the trenches.
You have a great attitude. Thanks again for the laugh and coming to my rescue.
Diane
Hey Diane,
I am not sure what the funny part was, but glad to you know you had a liitle laugh.. I am happy to answer any questions you have, so I'll go through them one by one...
How long did it take you to progress to GLR 24?
Actually, in my case I started at the bottom. Five years ago (when I was 43) I suffered a heart attack, 4 strokes, and kidney falilure, simultanoeusly. This was the result of the real culprit...malignant hypertension (don't worry, very very rare).
So, I actually progressed from practically zero to the mid 40% kidney function.
You went up to 40 but then back to 24. Did the meds stop working to some degree?
No it was not the the meds, they save my life everyday. They do take constant monitoring, and careful adjustment. I have other health issues that impact my kidney function, so maintaing 24% is positive for me.
But now keep you at a stable level now? In other words, are you maintaining that level over a period of time?
Well, I so see quite a few specialist who work together to keep my blood pressure, my kidney function, my blood work and everything working as well as possible. I am absolutely thrilled to be alive everyday, to hug my children, watch my flowers bloom and that type thing.
I have already been counseled for dialysis, which is most likely down the road for me...maybe Cora can share a little about that with me.
Smilin'
Coravh
07-08-2009, 10:08 AM
Hi folks.
As I said Diane, I'm not sure, but it is possible that the damage may not progress because it may have been cause by an external trauma. If you don't get more dye, you may be ok. It is possible that once the dye has cleared, there is nothing to continue eating away at your kidney. I may be wrong, but you should check with your nephrologist.
Writeleft, as I said to Diane, dialysis ends up not being anywhere near as scary as you think it's going to be. My preferred choice would have been peritoneal dialysis, but wasn't able to manage it due to endometriosis which caused constant pain. The nice thing with PD is that there are fewer dietary restrictions with it (you are allowed usually a lot more potassium) and you can travel much more easily. There is a risk of infection, but I have yet to meet a person on PD who was not able to pinpoint how they managed to cause the infection by screwing up the sterile protocol. All forms of dialysis have their advantages and disadvantages. If you have any questions, just let me know. What I haven't experienced personally I have heard about in the local support group I've been going to for the last 10 years.
As I said Diane, I'm not sure, but it is possible that the damage may not progress because it may have been cause by an external trauma. If you don't get more dye, you may be ok. It is possible that once the dye has cleared, there is nothing to continue eating away at your kidney. I may be wrong, but you should check with your nephrologist.
Writeleft, as I said to Diane, dialysis ends up not being anywhere near as scary as you think it's going to be. My preferred choice would have been peritoneal dialysis, but wasn't able to manage it due to endometriosis which caused constant pain. The nice thing with PD is that there are fewer dietary restrictions with it (you are allowed usually a lot more potassium) and you can travel much more easily. There is a risk of infection, but I have yet to meet a person on PD who was not able to pinpoint how they managed to cause the infection by screwing up the sterile protocol. All forms of dialysis have their advantages and disadvantages. If you have any questions, just let me know. What I haven't experienced personally I have heard about in the local support group I've been going to for the last 10 years.
baylee6
07-08-2009, 02:44 PM
Hi members,
Cora- I had endometriosis too. Surgery at 24 to resuspend uterus that got twisted/stuck in the endometrial type cysts and then to cauterize (sp?) the other ones. Lost part of an ovary. I had painful and long periods and later on down the road took lots of ibuprophen for pain. I have that on the list to tell the Kidney specialist. My three boys are adopted because of some of these early issues. In 2004 I also took many pain meds due to cancer surgery. The many Ctscans were to check for a recurrence and they were all in 05,06. I am sure that the contrast media has long been cleared from my system. So there goes that theory. Dang'. You think that I stayed in the same range from last year to this means my GLR might be stable? However, I guess once you have kidney damage the damage continues as your kidneys continue to hurt themselves by working so hard to filter your toxins out.
Writeleft- I laughed at your initial comments. You were basically saying...never fear for I am here with some positive info. I just thought it was funny how you said it. ie writeleft coming to the rescue. Again, your stories are inspiring and your attitude is amazing. I'm like a dog with a bone in finding out as much information as I can. Even though it can scare you to death....it is also impowering to have all the knowledge possible. After being on the GYN cancer message boards for close to 6 years you learn that medical practice is not infallible. Not all Doctors are created equal. So many women had been misdiagnosed for so long and treatments were varied. Getting educated is the only thing that helps me cope at this point and allows me to be proactive in my own health care. Hey, call me OCD if you will...ha ha ha. Thanks for sharing your journey. I've learned so much by these exchanges of information. ie an example would be that somewhere down the road I will remember Cora's comment about her endometrosis and her experience with periodontal dialysis. I'm filing all this stuff away.
Also, my father passed away at 56 ( this was in the late 70's) from malignant blood pressure and it's effects. I'm sure they have come a long way from then in terms of treatment/meds. So did his father and brother. I did have nuclear stress test with media contrast to check my heart ( can't seem to get away from that poison) and it turned out all clear. This is the first time I have heard that term again in all these years. I was much younger then so was not really medically savvy enough to understand the magnitude of his illness.
Thanks again to both you and Cora.
Diane
Cora- I had endometriosis too. Surgery at 24 to resuspend uterus that got twisted/stuck in the endometrial type cysts and then to cauterize (sp?) the other ones. Lost part of an ovary. I had painful and long periods and later on down the road took lots of ibuprophen for pain. I have that on the list to tell the Kidney specialist. My three boys are adopted because of some of these early issues. In 2004 I also took many pain meds due to cancer surgery. The many Ctscans were to check for a recurrence and they were all in 05,06. I am sure that the contrast media has long been cleared from my system. So there goes that theory. Dang'. You think that I stayed in the same range from last year to this means my GLR might be stable? However, I guess once you have kidney damage the damage continues as your kidneys continue to hurt themselves by working so hard to filter your toxins out.
Writeleft- I laughed at your initial comments. You were basically saying...never fear for I am here with some positive info. I just thought it was funny how you said it. ie writeleft coming to the rescue. Again, your stories are inspiring and your attitude is amazing. I'm like a dog with a bone in finding out as much information as I can. Even though it can scare you to death....it is also impowering to have all the knowledge possible. After being on the GYN cancer message boards for close to 6 years you learn that medical practice is not infallible. Not all Doctors are created equal. So many women had been misdiagnosed for so long and treatments were varied. Getting educated is the only thing that helps me cope at this point and allows me to be proactive in my own health care. Hey, call me OCD if you will...ha ha ha. Thanks for sharing your journey. I've learned so much by these exchanges of information. ie an example would be that somewhere down the road I will remember Cora's comment about her endometrosis and her experience with periodontal dialysis. I'm filing all this stuff away.
Also, my father passed away at 56 ( this was in the late 70's) from malignant blood pressure and it's effects. I'm sure they have come a long way from then in terms of treatment/meds. So did his father and brother. I did have nuclear stress test with media contrast to check my heart ( can't seem to get away from that poison) and it turned out all clear. This is the first time I have heard that term again in all these years. I was much younger then so was not really medically savvy enough to understand the magnitude of his illness.
Thanks again to both you and Cora.
Diane
12Bravo
07-08-2009, 06:43 PM
Diane,
Let me start by saying, wow! If it were ever true that people have a twin in this world you would be mine :-P You have so clearly put into words how I feel at this moment. I have been searching online for information like a mad person and honestly, for a little hope too. This is the first message board I have come across that is very inspirational and current.
A little history is in order I suppose. I am a 28 year old male in the Chicago land area. Recently I made an appointment for a genaral physical. I really hadn't had a primary doctor since I was a kid. I spent 4 years in the military, and when I got out I went to the VA hospital for any health issue and dental work. I was feeling a little sick lately (fatigue, shortness of breath, an a bit lightheaded) so I made an appointment with a doctor in the neighborhood. He did all the usual, including bloodwork. About 2 years ago while at the VA hospital they told me my blood pressure was a little high, I did not know the numbers at the time and back then did not ask for them. They really didn't say much about it so I assumed it was fine. The neighborhood doctor told me that my blood pressure was a bit high 146/81 and that I should start excersing, cut out the salt, fatty foods, alcohol...etc. The numbers came back and everything was exceptional except for my creatinine.... 1.6. Not knowing what this meant I immediatly went online and started searching for answers.
The normal range for adult males is .06 - 1.4. Upon reading more and more, I learned that once your creatinine is elevated above the normal range you have basically lost up to 50% of your kydney function.......scary. Tons and tons of thoughts went through my head, from dialysis to transplantaion, to ... well, the worst. I thought, "I am only 28! I want to get married. I want to have kids and if I do either will I be around to take care of them?!"
Now I am a big guy, 5'9 238 lbs of kind of muscular build....but definatly not an athlete or body builder by any means. I know that muscle mass does effect this number somewhat, but it is mostly seen in body builders. I had excersied pretty intense the morning before had been taking a multivitamin with 90 mg of Vitamin C in it about 150 % of the daily value and maybe and aspirin for a headache. I think I might have been dehydrated, I only had a 16 oz bottle of water that morning although, my urine was pretty clear not too yellow, however I have always been quick to pee. I have had a pretty sensitive bladder all my life and fluids seems to go right through me. I am also very quick to go to the bathroom at any discomfort, mostly I am still a little traumatized of the forced hydration in the military and the having to "hold" for no apparent reason other than to make one suffer....those darn Drill Sargeants.
I am just so nervous about the possibility of having CKD. My best friend just passed away last year unexpectedly right around this time. My brother was just diagnosed with diabetes. I am usually the one who keeps his cool and helps out the rest of my family. But everything is just kind of coming together all at once and I feel helpless.
Reading all the post so far has been such a great help. There are so many brave people on here that have had cancer, kidney disease, heart attacks and strokes and are still living and with such positive attitudes, it is truly inspirational. This is the first day in many that I have not been completely anxious.
I will be going back to the doctor August 3rd. I am going to try and stay calm until then.
Thanks all,
Bravo :)
Let me start by saying, wow! If it were ever true that people have a twin in this world you would be mine :-P You have so clearly put into words how I feel at this moment. I have been searching online for information like a mad person and honestly, for a little hope too. This is the first message board I have come across that is very inspirational and current.
A little history is in order I suppose. I am a 28 year old male in the Chicago land area. Recently I made an appointment for a genaral physical. I really hadn't had a primary doctor since I was a kid. I spent 4 years in the military, and when I got out I went to the VA hospital for any health issue and dental work. I was feeling a little sick lately (fatigue, shortness of breath, an a bit lightheaded) so I made an appointment with a doctor in the neighborhood. He did all the usual, including bloodwork. About 2 years ago while at the VA hospital they told me my blood pressure was a little high, I did not know the numbers at the time and back then did not ask for them. They really didn't say much about it so I assumed it was fine. The neighborhood doctor told me that my blood pressure was a bit high 146/81 and that I should start excersing, cut out the salt, fatty foods, alcohol...etc. The numbers came back and everything was exceptional except for my creatinine.... 1.6. Not knowing what this meant I immediatly went online and started searching for answers.
The normal range for adult males is .06 - 1.4. Upon reading more and more, I learned that once your creatinine is elevated above the normal range you have basically lost up to 50% of your kydney function.......scary. Tons and tons of thoughts went through my head, from dialysis to transplantaion, to ... well, the worst. I thought, "I am only 28! I want to get married. I want to have kids and if I do either will I be around to take care of them?!"
Now I am a big guy, 5'9 238 lbs of kind of muscular build....but definatly not an athlete or body builder by any means. I know that muscle mass does effect this number somewhat, but it is mostly seen in body builders. I had excersied pretty intense the morning before had been taking a multivitamin with 90 mg of Vitamin C in it about 150 % of the daily value and maybe and aspirin for a headache. I think I might have been dehydrated, I only had a 16 oz bottle of water that morning although, my urine was pretty clear not too yellow, however I have always been quick to pee. I have had a pretty sensitive bladder all my life and fluids seems to go right through me. I am also very quick to go to the bathroom at any discomfort, mostly I am still a little traumatized of the forced hydration in the military and the having to "hold" for no apparent reason other than to make one suffer....those darn Drill Sargeants.
I am just so nervous about the possibility of having CKD. My best friend just passed away last year unexpectedly right around this time. My brother was just diagnosed with diabetes. I am usually the one who keeps his cool and helps out the rest of my family. But everything is just kind of coming together all at once and I feel helpless.
Reading all the post so far has been such a great help. There are so many brave people on here that have had cancer, kidney disease, heart attacks and strokes and are still living and with such positive attitudes, it is truly inspirational. This is the first day in many that I have not been completely anxious.
I will be going back to the doctor August 3rd. I am going to try and stay calm until then.
Thanks all,
Bravo :)
Coravh
07-08-2009, 06:50 PM
Hey Bravo.
Like I told Diane - feel free to ask any questions you have. Most likely someone here will have the answer for you.
Welcome.
Like I told Diane - feel free to ask any questions you have. Most likely someone here will have the answer for you.
Welcome.
12Bravo
07-08-2009, 07:11 PM
Cora,
Thanks for the quick response. It is kinda weird how it is posted on the first page. This is different from other boards where your post is automatically goes to the end....I guess you can reply to any one particular post. I feel really good after reading everyones posts today. I will definitely keep following this thread.
Best,
Bravo
Thanks for the quick response. It is kinda weird how it is posted on the first page. This is different from other boards where your post is automatically goes to the end....I guess you can reply to any one particular post. I feel really good after reading everyones posts today. I will definitely keep following this thread.
Best,
Bravo
baylee6
07-08-2009, 08:22 PM
Dear Bravo,
I never thought I would have a male 28 year old twin ;-)). But, I think your saying that my feelings ( ie scared to death) are the same. No kidding.... this is scary stuff. I wake up in the middle of the night and can't go back to sleep. My body feels like it has been plugged into a light socket. I think it is perfectly normal to feel like someone has pulled a fast one on ya'. Just doesn't seem real to me yet.
I think at some point you just get used to the idea and do the best you can. If it is true you will need to be very proactive. Best outcomes are getting to a Nephrologist (sp?) Kidney Doctor if you do find out that you have CKD. A good specialist will work with you to get the best treatment plan possible. It's crappy, I know....but you have to do...what you gotta' do.
There is something called a 24 hour Creatinine Clearence test that is often given as a follow up test. I know I was told not to do any excercise ( fat chance I would..lol) as that will skew the protein in the urine. And so will dehydration. Hopefully that's what happened to you.
There are so many treatments now that you can hang on for a very long time. I believe there are going to be new treatments on the horizon in the near future.
My husband looked at me this morning ( after I have been talking, thinking, breathing about this and said " I think the reports of your demise are greatly exaggerated". I had to laugh.
I completely understand your fears of the future. I am so much older than you but I think about that too. I mean...I've worked hard all my life. I'm ready to have some fun.
Anyway, Bravo.... I hear you. I feel your pain. We will get through this.
You know...it would be good to make your own post so what you are saying does not get lost in this thread. A new subject heading and ask some of the questions you would like to know. If you haven't had the 24 hour urine CC test you should have it done. If that is what you had done...you should ask to have it again without being dehydrated and exercising.
Keep us posted.... my new twin!!!! I would like to follow how it goes with you.
Diane
I never thought I would have a male 28 year old twin ;-)). But, I think your saying that my feelings ( ie scared to death) are the same. No kidding.... this is scary stuff. I wake up in the middle of the night and can't go back to sleep. My body feels like it has been plugged into a light socket. I think it is perfectly normal to feel like someone has pulled a fast one on ya'. Just doesn't seem real to me yet.
I think at some point you just get used to the idea and do the best you can. If it is true you will need to be very proactive. Best outcomes are getting to a Nephrologist (sp?) Kidney Doctor if you do find out that you have CKD. A good specialist will work with you to get the best treatment plan possible. It's crappy, I know....but you have to do...what you gotta' do.
There is something called a 24 hour Creatinine Clearence test that is often given as a follow up test. I know I was told not to do any excercise ( fat chance I would..lol) as that will skew the protein in the urine. And so will dehydration. Hopefully that's what happened to you.
There are so many treatments now that you can hang on for a very long time. I believe there are going to be new treatments on the horizon in the near future.
My husband looked at me this morning ( after I have been talking, thinking, breathing about this and said " I think the reports of your demise are greatly exaggerated". I had to laugh.
I completely understand your fears of the future. I am so much older than you but I think about that too. I mean...I've worked hard all my life. I'm ready to have some fun.
Anyway, Bravo.... I hear you. I feel your pain. We will get through this.
You know...it would be good to make your own post so what you are saying does not get lost in this thread. A new subject heading and ask some of the questions you would like to know. If you haven't had the 24 hour urine CC test you should have it done. If that is what you had done...you should ask to have it again without being dehydrated and exercising.
Keep us posted.... my new twin!!!! I would like to follow how it goes with you.
Diane
12Bravo
07-09-2009, 01:00 PM
Diane,
The reason I came across this post/boards was because I was searching on-line for information on Stage 3 KD. While reading your post it seemed as though we had been through all the same boards and websites for info. I especially remember you writing that unfortunately most people with CKD suffer heart problems before ever reaching end stage renal failure....I came across that same website. Very scary stuff, especially considering that men are at higher risk.
I haven't had any other test done other than the initial blood test. When I go back in August I would like my doctor to repeat it. And, if I get the same result, I hope he will refer me to a nephrologists for futher testing. If not I will surely ask. I know the 24 creatinine clearance test is used as well as a BUN/Creatinine ratio for futher testing, ultra sounds and blood flow can also be checked to diagnose. It's funny because I don't ever think I would have ever prayed for a kydney infection more in my life, something where it is possible for my kidneys to recover.
Can creatinine clearance alone be used to diagnose, I would imagine that a battery of test will be done in order to determine if one has kidney disease?
Like you said I am just so scared at the possibilities. My mother side of the family has had a history of cancer, my grandmother died of uterine cancer. My father has had high blood pressure in the past, took medication for a while, changed his diet an is now off the medication. However, my father was adopted, so as far as his family health history....it's a crapshoot. I worry about any possible heart issue, cancer, or any other thing that might pop up.
My best friend passed away last july, he had just turned 27. I was very close with him, he was like an older brother. I didn't really get spooked about life and death much at the time. Only now after all this, and the year anniversary right around the corner have I really been quite worried. I think of how wonderful life is, yet so fragile. I think of all the things I have yet to do. I have a wonderful girlfriend who is very supportive. I want to get married in the future and have children.....just so much to think about.
......Sorry for hi-jacking the thread Diane :-P.
Best,
Bravo
The reason I came across this post/boards was because I was searching on-line for information on Stage 3 KD. While reading your post it seemed as though we had been through all the same boards and websites for info. I especially remember you writing that unfortunately most people with CKD suffer heart problems before ever reaching end stage renal failure....I came across that same website. Very scary stuff, especially considering that men are at higher risk.
I haven't had any other test done other than the initial blood test. When I go back in August I would like my doctor to repeat it. And, if I get the same result, I hope he will refer me to a nephrologists for futher testing. If not I will surely ask. I know the 24 creatinine clearance test is used as well as a BUN/Creatinine ratio for futher testing, ultra sounds and blood flow can also be checked to diagnose. It's funny because I don't ever think I would have ever prayed for a kydney infection more in my life, something where it is possible for my kidneys to recover.
Can creatinine clearance alone be used to diagnose, I would imagine that a battery of test will be done in order to determine if one has kidney disease?
Like you said I am just so scared at the possibilities. My mother side of the family has had a history of cancer, my grandmother died of uterine cancer. My father has had high blood pressure in the past, took medication for a while, changed his diet an is now off the medication. However, my father was adopted, so as far as his family health history....it's a crapshoot. I worry about any possible heart issue, cancer, or any other thing that might pop up.
My best friend passed away last july, he had just turned 27. I was very close with him, he was like an older brother. I didn't really get spooked about life and death much at the time. Only now after all this, and the year anniversary right around the corner have I really been quite worried. I think of how wonderful life is, yet so fragile. I think of all the things I have yet to do. I have a wonderful girlfriend who is very supportive. I want to get married in the future and have children.....just so much to think about.
......Sorry for hi-jacking the thread Diane :-P.
Best,
Bravo
swimmom7
07-09-2009, 04:25 PM
[QUOTE=baylee6;4032503]Dear Bravo,
My husband looked at me this morning ( after I have been talking, thinking, breathing about this and said " I think the reports of your demise are greatly exaggerated". I had to laugh.
i think i like the way your husband thinks!
My husband looked at me this morning ( after I have been talking, thinking, breathing about this and said " I think the reports of your demise are greatly exaggerated". I had to laugh.
i think i like the way your husband thinks!
baylee6
07-09-2009, 04:52 PM
Bravo,
No worries about hi-jacking my thread. I've done it myself a time or two on the other message board I was a member.
After I wrote my response to you before...I felt very remiss in not telling you how very sorry I am about your friends passing. That must have been heartwrenching for you. Life can be so unkind. I'm sure you miss him so much.
Now a couple of thoughts- Sometimes regular Doc's are not that good at referring out patients to a Nephrologist. Don't let yours get away with that. He needs to do a re-test and/or the 24 CC urine test. It is suppose to be more accurate. If that turns out positive in any way you need to insist on a referral. Again, best outcomes are for people who are managed by a specialist.
I think when I go to my visit in August I will ask to be retested ( he will probably suggest that anyway) and also have an ultra sound of my kidneys. Sometimes they will suggest a CTscan but I believe that is what got me in this mess in the first place so I will decline one of those ( for now).
I've been googling again ( my bad!) and this time came up with more hopeful info. One abstract said that even 10 years ago they could do little about CKD. Now they can manage it so much better adding years and years if not halting it's progress sometimes in the mild to moderate stage. They've come such a long way. So, I am hopeful if they can keep you and me going another 10 years or more then maybe newer and better treatment are coming down the pike. If anything they are working hard to stem the escalation of CKD and stop the drain on health care. I'm hoping saving money on expensive care will spur them on to come up with more successful treatments.
This would be such a long story- but my youngest son is 20 and he has had a childhood friend who had glomerulonepritis ( sp?) at least I think that is what it is. I remember when he was 10 years old and he spent the night and his mother told me to be discreet as he needed to cath himself when he went to the bathroom. It has something to do with urine backing up into his kidneys. I only understand this now in hindsite as I have been doing so much research. Anyway, he just had kidney failure and is now on dialysis. So sad really, as he was not watched closely by his parents and lost his health insurance over the years. He still smokes... Again, it would take so long to explain all of this. But, I guess my point is that this boy went over 10 years with very little intervention before he needed dialysis. Therefore, with excellent care, close supervision, the correct meds you could last a very very long time.
Ok...look who is giving you a pep talk. The queen of anxiety. Still, I've worked in the Psych field for many years. I'm always impressed with peoples resilience, and courage in the face of so many hardships. You seem extremely intelligent,articulate and wise beyond your years. You will figure it all out, whatever life throws your way.
Take Care,
Diane
Ps Interesting about your grandmother having uterine cancer ( as that is what I had- but no family history of it) and also your father being adopted. As I mentioned my 3 boys are adopted as well. Heart disease, plenty of that on the male side.
No worries about hi-jacking my thread. I've done it myself a time or two on the other message board I was a member.
After I wrote my response to you before...I felt very remiss in not telling you how very sorry I am about your friends passing. That must have been heartwrenching for you. Life can be so unkind. I'm sure you miss him so much.
Now a couple of thoughts- Sometimes regular Doc's are not that good at referring out patients to a Nephrologist. Don't let yours get away with that. He needs to do a re-test and/or the 24 CC urine test. It is suppose to be more accurate. If that turns out positive in any way you need to insist on a referral. Again, best outcomes are for people who are managed by a specialist.
I think when I go to my visit in August I will ask to be retested ( he will probably suggest that anyway) and also have an ultra sound of my kidneys. Sometimes they will suggest a CTscan but I believe that is what got me in this mess in the first place so I will decline one of those ( for now).
I've been googling again ( my bad!) and this time came up with more hopeful info. One abstract said that even 10 years ago they could do little about CKD. Now they can manage it so much better adding years and years if not halting it's progress sometimes in the mild to moderate stage. They've come such a long way. So, I am hopeful if they can keep you and me going another 10 years or more then maybe newer and better treatment are coming down the pike. If anything they are working hard to stem the escalation of CKD and stop the drain on health care. I'm hoping saving money on expensive care will spur them on to come up with more successful treatments.
This would be such a long story- but my youngest son is 20 and he has had a childhood friend who had glomerulonepritis ( sp?) at least I think that is what it is. I remember when he was 10 years old and he spent the night and his mother told me to be discreet as he needed to cath himself when he went to the bathroom. It has something to do with urine backing up into his kidneys. I only understand this now in hindsite as I have been doing so much research. Anyway, he just had kidney failure and is now on dialysis. So sad really, as he was not watched closely by his parents and lost his health insurance over the years. He still smokes... Again, it would take so long to explain all of this. But, I guess my point is that this boy went over 10 years with very little intervention before he needed dialysis. Therefore, with excellent care, close supervision, the correct meds you could last a very very long time.
Ok...look who is giving you a pep talk. The queen of anxiety. Still, I've worked in the Psych field for many years. I'm always impressed with peoples resilience, and courage in the face of so many hardships. You seem extremely intelligent,articulate and wise beyond your years. You will figure it all out, whatever life throws your way.
Take Care,
Diane
Ps Interesting about your grandmother having uterine cancer ( as that is what I had- but no family history of it) and also your father being adopted. As I mentioned my 3 boys are adopted as well. Heart disease, plenty of that on the male side.
12Bravo
07-09-2009, 09:51 PM
I felt very remiss in not telling you how very sorry I am about your friends passing. That must have been heartwrenching for you. Life can be so unkind. I'm sure you miss him so much.
Diane,
No worries. Yes I do miss him very much. He was a very bright and the nicest guy you could ever meet. He had just received his PHD in pharmacology from UIC previous year, and I was to be his best man in his wedding this past October. He passed away from complications during surgery. He had Hydrocephalus, what caused it? The doctors were never able to find out. Might have been viral or bacterial....we never knew. No one except maybe one or two poeple knew that he was suffering from very violent headaches. He kept avoiding the doctor kept saying "I'm o.k" That is partly the reason why I am so worried and I guess going a little overboard on getting myself checked out recently and making sure I do not take my health for granted. We attended a Cubs game on a Saturday was admitted to the hospital that Sunday, and by Wednesday he had passed away.
I am really going to stress my doctor this August to re-test my blood. and if the same results come back, then I am off to a nephrologist.
The story about your sons friend, while sad, is a little inspiring, I mean if a person who does really look out for his/her health can go on 10 years before needing dialysis.....and while smoking too.
My grandmother also never had a gyn. appoitment though. She grew up in Mexico and some superstition along with hard-headness came into play then. My mother has to watch some supicious cells every three months with her gyn, my brother was just diagnosed with diabetes, but he is extremly over weight and lives a poor lifestyle. This has kind of woken him up a bit so hopefully he will start down a more healthy road.
Thanks for all the advise, you sound like are a great counsler :). Talking sometimes makes all the difference in the world....you know? I 'll keep my head up and keep reading.
Best,
Bravo
Diane,
No worries. Yes I do miss him very much. He was a very bright and the nicest guy you could ever meet. He had just received his PHD in pharmacology from UIC previous year, and I was to be his best man in his wedding this past October. He passed away from complications during surgery. He had Hydrocephalus, what caused it? The doctors were never able to find out. Might have been viral or bacterial....we never knew. No one except maybe one or two poeple knew that he was suffering from very violent headaches. He kept avoiding the doctor kept saying "I'm o.k" That is partly the reason why I am so worried and I guess going a little overboard on getting myself checked out recently and making sure I do not take my health for granted. We attended a Cubs game on a Saturday was admitted to the hospital that Sunday, and by Wednesday he had passed away.
I am really going to stress my doctor this August to re-test my blood. and if the same results come back, then I am off to a nephrologist.
The story about your sons friend, while sad, is a little inspiring, I mean if a person who does really look out for his/her health can go on 10 years before needing dialysis.....and while smoking too.
My grandmother also never had a gyn. appoitment though. She grew up in Mexico and some superstition along with hard-headness came into play then. My mother has to watch some supicious cells every three months with her gyn, my brother was just diagnosed with diabetes, but he is extremly over weight and lives a poor lifestyle. This has kind of woken him up a bit so hopefully he will start down a more healthy road.
Thanks for all the advise, you sound like are a great counsler :). Talking sometimes makes all the difference in the world....you know? I 'll keep my head up and keep reading.
Best,
Bravo