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karen53
11-16-2000, 05:26 PM
Hi everyone. I've been dx'd rrms for 3 years now, my neurologist just prescribed Symmetrel for my fatigue. Anyone out there with any experience with this drug? I'm really hoping it helps me make it thru the day.... it takes all the energy I have to get thru my working day and there's nothing left over for anything else.

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Ray7504
11-16-2000, 10:56 PM
Hi, Karen. Welcome aboard.

Fatigue has been one of my biggest problems. NeuroQuack tried Amantadine-- nut'tin. He next put me on Prozac. That helps. Trying to get him to script Provigil (Pro-Vigil.) Won't do it until the hand tremors die down. Never ends.

Ray

Robert
11-19-2000, 02:04 AM
Originally posted by karen53:
Hi everyone. I've been dx'd rrms for 3 years now, my neurologist just prescribed Symmetrel for my fatigue. Anyone out there with any experience with this drug? I'm really hoping it helps me make it thru the day.... it takes all the energy I have to get thru my working day and there's nothing left over for anything else.

Hi Karen You speak about not having energy the best product I know to boost your energy level is microhydrin it works at the cellular level and is a non prescription item

nrvwoman
11-19-2000, 11:18 AM
Boy, Karen, do I EVER understand the fatigue. That and the heat sensitivity. I have been dx for a year. It DOES take all you have to go to work, and then come home and attempt to do anything besides collapse. My neuro rx'd Provigil, and I started on it yesterday. Too soon to be really sure, but I think it is helping. (Either that or being the weekend helps!). But, I am not having any weird reactions, like I feared---no nervousness or jittery feelings...I am also trying some dietary changes (Zone diet) and supplements for MS in general. Robert, I am not familiar with microhydrin, could you tell me who makes it, where I could buy it, or get information on it? Thanks! Rhonda

karen53
11-21-2000, 05:22 PM
Thanks for your responses. I've been taking the Symmetrel since Friday and while I don't notice that I'm jumping around with energy, I do notice that I don't have that draggy, wiped out feeling that typically would start at about 2 p.m. I've also noticed something else which is GREAT - - I have no appetite! I am not hungry! If this keeps up I'm going to send my doctor a bouquet of flowers!!!

andreamc
01-16-2001, 12:21 AM
Thank you guys so much! Last summer I wad hospitalized twice for fatigue to the point of dehydration needing IV treatment. My neurologist never even thought of prescribing anything! He said that he puts many of his patients in for IV treatment because they get so "drained". Now I know. I was so sick, 101 pounds! Ended up quitting my job because I would have been fired anyway. I took Zoloft for a couple of months for depression and it took away my weakness for a little while and gave me an appetite, but it puts you to sleep. Does these meds that everyone talks about cause drowsiness? I have 2 kids and cannot be sleepy all the time. I need energy! Please let me know. I really hate feeling like this! andreamc@cros.net

General_Confusion
03-09-2001, 06:32 PM
Hi all! nrvwoman, how is the provigil going? I just started taking it 2 days ago for fatigue, and it seems to be helping tremendously. You mentioned that it did not make you nervous or jittery, but I can't say that my experience has been the same. I am not always hopped up (so far) after taking it, but I noticed yesterday (2nd day) that I was mildly speedy about 6 hours after I swallowed it. My gut tells me that I was probably a bit euphoric since I finally had a bit of energy and I felt *NORMAL*, which I hadn't felt for a long time, but I guess time will tell if I was just happy to feel good or if the drug is responsible for me feeling restless. I know I am new to taking this, but I'd bite anyone that tried to take the provigil away now. I can drive home from work better now (helps with tiredness/being tired makes it hard to scan and change lanes safely), do my laundry and dishes, and play with my dogs a little bit before I need to rest. Sorry if I'm rambling, I'm just kind of jazzed about feeling normal again and want to share with people that understand what it's like to feel (MS related) fatigue rather than think that it's the same as being tired or sleepy. I wish you all good health!

Jason

General_Confusion
03-14-2001, 03:12 PM
Howdy all, thought I'd toss in an update. I've now been on the Provigil for a week, and am not "speedy" anymore. It is still working well! Anyhow, I like it. Andrea, I know this doesn't directly apply to your situation (antidepressants causing drowsiness) but I think it's worth exploring with your neuro. Good luck!

Jason





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