denised
03-29-2001, 01:50 PM
i am shocked to see how many people view eachothers posts but dont bother to reply. the people who are posting need help and information. i myself am dissapointed in the lack of caring. i really am going through a very difficult time and need help and answers. i thought that this board would be a nice place to get help. maybe i am wrong but i dont see that many people offering the helping hand to others.
here is a site that is good try it out: www.albany.com (http://www.albany.com) www.msonly.com/library/rjk/mydiag.html (http://www.msonly.com/library/rjk/mydiag.html) www.msaa.com/Pubs/sympmgmtbook.html (http://www.msaa.com/Pubs/sympmgmtbook.html)
here is a site that is good try it out: www.albany.com (http://www.albany.com) www.msonly.com/library/rjk/mydiag.html (http://www.msonly.com/library/rjk/mydiag.html) www.msaa.com/Pubs/sympmgmtbook.html (http://www.msaa.com/Pubs/sympmgmtbook.html)
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mlg01
03-29-2001, 03:34 PM
I dont think its a lack of caring at all. I have read every post on here but have not replied because frankly I am so newly diagnosed that I dont have any of the symtoms that everyone else seems to be experiencing. I have a little numbness in a few fingers and thats it. Otherwise I feel great. I have Avonex injections once a week and have no side effects from that either. I read these posts because it gives me a better undertanding of what could happen and it makes me feel very thankful that Im doing as good as I am. I found alot of good websites that gave me very good info and my doctor is wonderful and so is my mate. Feel free to email me any time you need to vent.
denised
03-29-2001, 03:42 PM
thank you so much for responding! i am also new to all of this and i also am not experiencing the many things that others have to live with. my symptoms are there but not huge. thanks!
GinniBoBinni
04-02-2001, 12:45 PM
I think also that a reason people do not respond is that they do not have something valuable to say. There are many posts here that I simply do not know enough about to respond. I would hate to post some arbitrary response to a question and have someone rely on it as truth only to find it causes more problems for them.
I do not have bad symptoms, am about to start Betaseron injections, and am hoping for the best. I think this message board is a good place to learn about the disease from real people, with real experiences.
I do not have bad symptoms, am about to start Betaseron injections, and am hoping for the best. I think this message board is a good place to learn about the disease from real people, with real experiences.
yorkiemom
04-02-2001, 02:34 PM
I agree with Ginni. I have read every post here which applies to me at this time. I have been diagnosed only 3 weeks, and I don't know as much about this disease as other people. I beleve we are all compassionate to the situation, but sometimes have nothing new to add.
Pam33
03-01-2005, 04:28 PM
another thing we must all understand, is the magnitude of the disease and the various symptoms it causes, not one single patient will ever have identical symptoms or reactions to meds or on stages. We all come to this sites with the best intentions in mind, to learn more for ourselves or those who we love that are affected, like you guys I do not have many of the symptoms described and I too consider myseldf lucky to be so healthy, therefore I read all the post I can, but will not alwyas reply for fear of not being well informed......
Madonna
03-01-2005, 05:36 PM
I am sorry you feel like people do not care, because I care, very much. Sometimes I might come back and view the same post several times and I know that ups the number of views. Sometimes I dont have anything valuable to add and hope someone else will.
But please dont think that we do not care. I think everyone here cares, or we wouldnt be here. I care very much about your health.
But please dont think that we do not care. I think everyone here cares, or we wouldnt be here. I care very much about your health.
baddoey
03-01-2005, 06:04 PM
sorry that you feel neglected. . that isn't what these boards are about. I view about 90% of the posts. . but many times my answer is "i don't know" bc that IS the answer with MS. There are no rules, answers or definates with this wonderful disease - many of us are dxed, but some are not and are looking for answers - but often there isn't one to be found. I help when I can - or suggest that people search the boards for the answer if i don't know it.
Jewel2
03-01-2005, 06:09 PM
Hey guys, I don't know if you noticed that the original post was made in 2001.
I think we have a great support group here at this time.
:)
Julie
I think we have a great support group here at this time.
:)
Julie
baddoey
03-01-2005, 06:25 PM
well better late than never as far as getting back to her. . . tee-hee. . we all did rally around the cause though .. .
take care all - hope everyone is feeling well today. . .
take care all - hope everyone is feeling well today. . .
purple2067
03-01-2005, 08:55 PM
I respond to as many posts as I possibly can. But if I don't know what to say, I am not going to respond. Also, I'd rather not respond than to give wrong information.
bairdy
03-02-2005, 08:32 AM
Hi
I agree with you about support ive posted today and nobody has replied and i feel so confused and alone
I agree with you about support ive posted today and nobody has replied and i feel so confused and alone
AllyG
03-02-2005, 09:42 AM
I am sorry you feel this way. I think most people only reply when they feel they have something worthwhile to say. I myself am new to this and havent long been diagnosed. Im a bit nervous about giving advice or commenting on some issues as I may not have experienced the same as others yet. I hope you wont let this put you off this site - I personally found it quite helpful and wish I knew about it a year ago. Dont give up hope on us yet and if there is anything any of us can help you with please ask. Hope to hear from you again soon.
Robbie26
03-02-2005, 08:51 PM
well i know that i read alot of posts and dont respond only because i'm not the one with ms...my dad is. i read the posts for information to give to my dad, and also so i can understand the disease more myself.