yorkiemom
04-03-2001, 02:35 PM
Hi. Just diagnosed 3 weeks ago. Currently have Optic Neuritis in left eye. Have had one other episode two years ago this month. I am hoping some of you who have dealt with this disease longer can shed some light on these questions: Do you ever have any indications that you are about to have an exacerbation? Do episodes usually come every two years, as mine have been? Does hot water really bother the MS symptoms? Tell me about copaxone. I'm about to start it in about a month. Does anyone take DHEA as part of their supplements? Have any of you ever done oral chelation to detox the body?
I know there are many questions, but this is just so new and overwhelming to me. My husband and I don't discuss MS yet. We're both still sitting around with looks of total abandonment and dismay. You remember the feeling?
Thanks...LW
I know there are many questions, but this is just so new and overwhelming to me. My husband and I don't discuss MS yet. We're both still sitting around with looks of total abandonment and dismay. You remember the feeling?
Thanks...LW
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GinniBoBinni
04-03-2001, 02:55 PM
Hi,
I can tell you that my exacerbations have been spaced similarly. I know that I was under a load of stress each time one came on. My first was only Ocular Neuritis, the second was full-out weakness, tingling, etc. The tingling in my feet came first that time and this current time.
I am about to start Betaseron therapy (this week) and am terrified of the needles. I received the autoject device which is even scarier to me.
Alternately, I see an acupuncturist weekly and asked him about chelation. He said it is very contraversial and he would not recommend it. His reason was that chelation frees up the stored metals that are in your body, such as Mercury. When it is freed by this process, it is unclear as to how it is redistributed, and if it is cleansed or not. Especially when done with oral medicines. Proper chelation is done in the hospital by a doctor. I would definately discuss your thoughts about chelation with your neuro first. Do not self prescribe!!
I have found that juicing (vegetables) daily really helps me. Also, eliminating sugars and other stimulants really helps my energy level and ability to focus. My symptoms, gratefully are very minimal. I am hoping the Betaseron will help keep it that way.
Best luck to you.
Ginni
I can tell you that my exacerbations have been spaced similarly. I know that I was under a load of stress each time one came on. My first was only Ocular Neuritis, the second was full-out weakness, tingling, etc. The tingling in my feet came first that time and this current time.
I am about to start Betaseron therapy (this week) and am terrified of the needles. I received the autoject device which is even scarier to me.
Alternately, I see an acupuncturist weekly and asked him about chelation. He said it is very contraversial and he would not recommend it. His reason was that chelation frees up the stored metals that are in your body, such as Mercury. When it is freed by this process, it is unclear as to how it is redistributed, and if it is cleansed or not. Especially when done with oral medicines. Proper chelation is done in the hospital by a doctor. I would definately discuss your thoughts about chelation with your neuro first. Do not self prescribe!!
I have found that juicing (vegetables) daily really helps me. Also, eliminating sugars and other stimulants really helps my energy level and ability to focus. My symptoms, gratefully are very minimal. I am hoping the Betaseron will help keep it that way.
Best luck to you.
Ginni
yorkiemom
04-03-2001, 03:04 PM
Thanks, Ginni.