kateuk
06-27-2002, 09:24 PM
Hi everyone - I'm new here so bear with me. Basically, I'd been feeling weird for about 2 years. I visited my doctor many times only to be told it was anxiety or stress. Then when I finally couldn't walk properly from dizziness/weird vision/tiredness etc he referred me to a neurologist. I haven't even mentioned the tingling, numbness and the feeling that "someone is climbing up my spine"! On my first visit to the N (neuro) I could tell he suspected something as he immediately sent me for an MRI/LP etc. The 2 MRI's came back pretty clean
but he said he had ruled everything else out and had come to the conclusion I had MS - I had failed the Babinski's Test (Info about that?) and my evoked tests - whatever they are. I told my husband and certain members of my family but then my mother-in-law (who I have never got on with) phoned everyone ti tell them. Not cool. But then it get's worse. She actually phonrd my husband and asked him if I really had this?!!!!! She had come over a few days earlier and seen me cleaning the floor - what am I supposed to do - lie in bed with the covers over my head.? But the thing that bothers me so much is that she could dare even say that - and to my husband! I've been diagnosed with MS and she's second guessing everything. I mean, I know she hates me, but surely there is a limit?
but he said he had ruled everything else out and had come to the conclusion I had MS - I had failed the Babinski's Test (Info about that?) and my evoked tests - whatever they are. I told my husband and certain members of my family but then my mother-in-law (who I have never got on with) phoned everyone ti tell them. Not cool. But then it get's worse. She actually phonrd my husband and asked him if I really had this?!!!!! She had come over a few days earlier and seen me cleaning the floor - what am I supposed to do - lie in bed with the covers over my head.? But the thing that bothers me so much is that she could dare even say that - and to my husband! I've been diagnosed with MS and she's second guessing everything. I mean, I know she hates me, but surely there is a limit?
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F-Man
06-28-2002, 02:38 PM
The babinski test involves dragging a pointed instrument along the sole of your foot and seeing the flex reaction. somewhat similar to when the doctor taps your knee with a mallot. If you do a search in babinski you'll find a description.
I was diagnosed 8 years ago, and took both the video and audio evoked response tests. I think the way they work is that your are given video and audio stimulus, and somehow they are able to measure how it is processed through your nervous system. If it is processed slowly or intermittantly, then that is an indication of nerve damage. It doesn't necessarily mean MS, but means your nervous system is not functioning properly.
As far as your mother in law goes, if she hates you then there may be no limit to what she will say/do. MS symptoms can vary greatly from patient to patient and can also vary from month to month, day to day, even hour to hour for a single person. If she is not willing to talk openly and honestly with you and do research on her own about MS, then dealing with her is going to be difficult I would think.
hope some of this helped.
I was diagnosed 8 years ago, and took both the video and audio evoked response tests. I think the way they work is that your are given video and audio stimulus, and somehow they are able to measure how it is processed through your nervous system. If it is processed slowly or intermittantly, then that is an indication of nerve damage. It doesn't necessarily mean MS, but means your nervous system is not functioning properly.
As far as your mother in law goes, if she hates you then there may be no limit to what she will say/do. MS symptoms can vary greatly from patient to patient and can also vary from month to month, day to day, even hour to hour for a single person. If she is not willing to talk openly and honestly with you and do research on her own about MS, then dealing with her is going to be difficult I would think.
hope some of this helped.
skan881
07-01-2002, 04:22 PM
i am right with you on the mil part. my foot has become numb from the ankle bone to my three small toes. she tells me if my toes were numb, i wouldn't be able to walk. she acts as if i am lying. after i was dx with ms, i had an appt the foloowing week with the neuro and she said i hope they have good news for you. then she said oh they are telling you what is wrong aren't they? what didnt she get, they told me the week before that i had ms. just for alittle laugh:
what's the difference between a dead dog in the road and a dead mil in the road?
there's skid marks in front of the dog!
what's the difference between a dead dog in the road and a dead mil in the road?
there's skid marks in front of the dog!
kateuk
07-01-2002, 11:27 PM
I thought that I'd sent a reply previously but it obviously didn't do through, Thank you for responding to my e-mail. I'm very alone here - no family to talk of) apart from my husband's family. I feel very isolated and I would like to talk to anybody who is going through the same thing that I am. MYy legs don't feel like they are working and this (drunk) - I haven't been drinking) thing are freaking me out. Sm I going to feel like a drunk fool for thr rest of my life? Will I be able to walk through (sorry - english spelling!) - the store without feeling that I am going to pass out. And what about those burning feelings?
Best Wishes
KsteUK
Best Wishes
KsteUK
Pylo
07-28-2002, 01:32 PM
Hello Kate,
I recognise your feelings of isolation. I am lucky to have lots of good mates and suchlike, but even so having a diagnosis like this is so *BIG* that it is hard to get to grips with even so.
Have you got a confirmed diagnosis yet? I found that I felt better once I had a name for my pain....
The funny walk (I think of it as the "drunken sailor" gait) might come from peripheral neuropathy (screwed up nerves in your extremities) which can come and go. I have it bad at the mo if I go further than 50m, but otherwise its OK. I use a stick to get about with for "long distances" (i.e. outside the house) but MS is such a weird illness that this might go away.....
Don't let your mother in law get you down. Look upon this new part of your life as an excuse to come down on her like a ton of bricks when she is a cow. If your husband looks badly on your shooting his mum down in flames, blame it on your illness ("I am so upset about this...she didnt realise how fragile I am...." blah blah.... Lets face it, if you *HAVE* to be ill, at least you should be able to enjoy some of it :))
Look after yourself and TAKE IT EASY.
Pylo (Phill)
------------------
.ekoj a ekat t'nac yeht fi me' kcuF
I recognise your feelings of isolation. I am lucky to have lots of good mates and suchlike, but even so having a diagnosis like this is so *BIG* that it is hard to get to grips with even so.
Have you got a confirmed diagnosis yet? I found that I felt better once I had a name for my pain....
The funny walk (I think of it as the "drunken sailor" gait) might come from peripheral neuropathy (screwed up nerves in your extremities) which can come and go. I have it bad at the mo if I go further than 50m, but otherwise its OK. I use a stick to get about with for "long distances" (i.e. outside the house) but MS is such a weird illness that this might go away.....
Don't let your mother in law get you down. Look upon this new part of your life as an excuse to come down on her like a ton of bricks when she is a cow. If your husband looks badly on your shooting his mum down in flames, blame it on your illness ("I am so upset about this...she didnt realise how fragile I am...." blah blah.... Lets face it, if you *HAVE* to be ill, at least you should be able to enjoy some of it :))
Look after yourself and TAKE IT EASY.
Pylo (Phill)
------------------
.ekoj a ekat t'nac yeht fi me' kcuF
LizB
07-28-2002, 11:15 PM
Hi K, Sorry to hear about your MIL troubles, I live in Tacoma and would be happy to speak with you but unfortunately can't give out email addresses on this board..call the MS society in Seattle, they have a lot of support groups going that i know will help..your friend, LizB
jzurini
08-06-2002, 03:20 PM
Oh the doubting Mother-in law
Ignore her, and anyone else who hasn't read a thing about MS. When I was first told that I had it, I could barely believe it myself. It all sounds so dramatic. Just try and explain what you can, be calm and whatever you do DON'T let her stress you out! It only makes your MS symptoms feel worse.
My mother-in-law is an angel...it's my own mother that treats me the way you described. Everyone has somebody who drives them wild.
Hope you are doing well. Just smile when she bugs you. Thats what I do and secretly imagine all the things you'd like like to say to her. :)
Ignore her, and anyone else who hasn't read a thing about MS. When I was first told that I had it, I could barely believe it myself. It all sounds so dramatic. Just try and explain what you can, be calm and whatever you do DON'T let her stress you out! It only makes your MS symptoms feel worse.
My mother-in-law is an angel...it's my own mother that treats me the way you described. Everyone has somebody who drives them wild.
Hope you are doing well. Just smile when she bugs you. Thats what I do and secretly imagine all the things you'd like like to say to her. :)
kateuk
08-27-2002, 11:41 PM
to everyone who replied to me - YOU ALL RULE!!!
I am so happy that not only would someone take the time to read my messages, but they would actually reply! Thank you all so much - when I first posted the message I didn't get many (2) replies and then - nothing. But once again - thank you. My symptoms are really bad right now but that's life I suppose. I hope you all are feeling OK out there - let me know how you're doing. The mother in law situation has been taken care of - she just doesn't come in the house any more - she waits until she has my kids in the car or her house to ***** about me and my 'problems'! Gotta love her!
Anyway - replies appreciated!
------------------
I am so happy that not only would someone take the time to read my messages, but they would actually reply! Thank you all so much - when I first posted the message I didn't get many (2) replies and then - nothing. But once again - thank you. My symptoms are really bad right now but that's life I suppose. I hope you all are feeling OK out there - let me know how you're doing. The mother in law situation has been taken care of - she just doesn't come in the house any more - she waits until she has my kids in the car or her house to ***** about me and my 'problems'! Gotta love her!
Anyway - replies appreciated!
------------------
suepie
08-28-2002, 10:59 AM
Originally posted by kateuk:
Hi everyone - I'm new here so bear with me. Basically, I'd been feeling weird for about 2 years. I visited my doctor many times only to be told it was anxiety or stress. Then when I finally couldn't walk properly from dizziness/weird vision/tiredness etc he referred me to a neurologist. I haven't even mentioned the tingling, numbness and the feeling that "someone is climbing up my spine"! On my first visit to the N (neuro) I could tell he suspected something as he immediately sent me for an MRI/LP etc. The 2 MRI's came back pretty clean
but he said he had ruled everything else out and had come to the conclusion I had MS - I had failed the Babinski's Test (Info about that?) and my evoked tests - whatever they are. I told my husband and certain members of my family but then my mother-in-law (who I have never got on with) phoned everyone ti tell them. Not cool. But then it get's worse. She actually phonrd my husband and asked him if I really had this?!!!!! She had come over a few days earlier and seen me cleaning the floor - what am I supposed to do - lie in bed with the covers over my head.? But the thing that bothers me so much is that she could dare even say that - and to my husband! I've been diagnosed with MS and she's second guessing everything. I mean, I know she hates me, but surely there is a limit?
Hi Kat- i too have had a burning in my good leg! as a matter of fact i had to go to the er room it was so bad. after 2 weeks today it is almost gone. i couldnt put any pressure on it. i was scared id lose use of it. i use a walker for small distances and mostly a wheel chair. guess what my prob is! my husband of 28 yrs divorced me and i am very lucky that my parents took me in right away. they are great. they are 71 yrs old but they run and my dad bikes 20 miles every day so they are so physically fit. as for your mother in law -i feel the same as that about my ex although he knew very well what was happening.i think i was too much of a problem. well i hope you are doing better and be patient - sue
Hi everyone - I'm new here so bear with me. Basically, I'd been feeling weird for about 2 years. I visited my doctor many times only to be told it was anxiety or stress. Then when I finally couldn't walk properly from dizziness/weird vision/tiredness etc he referred me to a neurologist. I haven't even mentioned the tingling, numbness and the feeling that "someone is climbing up my spine"! On my first visit to the N (neuro) I could tell he suspected something as he immediately sent me for an MRI/LP etc. The 2 MRI's came back pretty clean
but he said he had ruled everything else out and had come to the conclusion I had MS - I had failed the Babinski's Test (Info about that?) and my evoked tests - whatever they are. I told my husband and certain members of my family but then my mother-in-law (who I have never got on with) phoned everyone ti tell them. Not cool. But then it get's worse. She actually phonrd my husband and asked him if I really had this?!!!!! She had come over a few days earlier and seen me cleaning the floor - what am I supposed to do - lie in bed with the covers over my head.? But the thing that bothers me so much is that she could dare even say that - and to my husband! I've been diagnosed with MS and she's second guessing everything. I mean, I know she hates me, but surely there is a limit?
Hi Kat- i too have had a burning in my good leg! as a matter of fact i had to go to the er room it was so bad. after 2 weeks today it is almost gone. i couldnt put any pressure on it. i was scared id lose use of it. i use a walker for small distances and mostly a wheel chair. guess what my prob is! my husband of 28 yrs divorced me and i am very lucky that my parents took me in right away. they are great. they are 71 yrs old but they run and my dad bikes 20 miles every day so they are so physically fit. as for your mother in law -i feel the same as that about my ex although he knew very well what was happening.i think i was too much of a problem. well i hope you are doing better and be patient - sue
zenith
10-16-2002, 10:41 PM
Hi kat, Too bad about your mother in law (TO HELL WITH PEOPLE LIKE THAT) LOL!! Acyually I have been diagnosed for 14 yrs, my ex-mother in law and ex-wife both told my kids (at the time around 9 an 11) that i was just lazy, never mentioning I have ms. Gotta love 'em ! My symptoms come and go, sometimes staying longer than others. but I guess it could be worse. Anyway good luck and all the best!