banjoboy
08-02-2003, 09:06 AM
Hi,
6 months ago, after severe depressions that didn't respond to a/d I was sent for brain scans.
The CT gave concern and they did MRI.
I was told (snd shown) that there were lesions (plaques) present and that the scan looked typical of MS but I didn't have the other symtoms expected. I was tested for everything else like Lymes, Syphilis, you name it. All were negative but the LP showed "bands" indicating autoimmune activity, symptoms and conductivity tests indicate "mononeuritis multiplex". I.e. lesions in several individual nerves.
6 months later they now belive the mechanism is a form of "vasculitis" that is detroying nerves rather than de-myelination. I know about vasculitis and some forms are terrible but we believe this will go away if we "reset" the immune system with chemo and massive steroids so I keep my fingers crossed.
Has anyone else had experience of "cranial vasculitis" or of brain plaques mistaken for MS ???
6 months ago, after severe depressions that didn't respond to a/d I was sent for brain scans.
The CT gave concern and they did MRI.
I was told (snd shown) that there were lesions (plaques) present and that the scan looked typical of MS but I didn't have the other symtoms expected. I was tested for everything else like Lymes, Syphilis, you name it. All were negative but the LP showed "bands" indicating autoimmune activity, symptoms and conductivity tests indicate "mononeuritis multiplex". I.e. lesions in several individual nerves.
6 months later they now belive the mechanism is a form of "vasculitis" that is detroying nerves rather than de-myelination. I know about vasculitis and some forms are terrible but we believe this will go away if we "reset" the immune system with chemo and massive steroids so I keep my fingers crossed.
Has anyone else had experience of "cranial vasculitis" or of brain plaques mistaken for MS ???
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ponyboy
08-03-2003, 11:44 PM
Thanks for your reply. I'm sorry to hear about what you are going through. I wish I could give some medical advice but I really have no idea...new to this problem. Sounds like you have top class doctors...sometimes I worry about mine. I hope everything works out for you and keep your spirits up.
Branwen
12-15-2003, 10:20 AM
Has anyone else had experience of "cranial vasculitis" or of brain plaques mistaken for MS ???
Hi, how ar eyou doing now? I had a form of vasculitis too. How's the chemo/steroid treatment going?
Hi, how ar eyou doing now? I had a form of vasculitis too. How's the chemo/steroid treatment going?