Hi Hilaary sorry to hear that someone else has to deal with this disease. My husband has it as did family members going back many generations. Dr. Drachman with Johns Hopkins it to be the [QUOTE]expert in eastern U.S. He seems to be into research more than treatment. Maybe because there isn"t much to be done except treat the symptoms as they show up. You don"t say how old your husband is but Dr. Drachman told us opmd is agood md since most syptoms aren't bad until advanced old age.