Maria Leach
11-07-2001, 05:21 PM
I am 35 and have Charcot-Marie-Tooth disorder and do not have much information would like to here from anyone else with this Disorder.
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gidget
01-04-2002, 10:43 AM
Hello, I just read your post and I had to look up your dx and I am wondering if I might be classified with it too, I have had muscle biopsy, spinal tap and lots of blood work and have confirmed dx of paraneoplastic syndrome and I am from the lymphoma board. I have a great neroulogist and I go to the pain clinic where I am a lymphoma patient at M.D.Anderson Cancer Center in Houston, Texas.
I am in final stages and wheelchair bound. My legs are getting weaker and weaker. I can feel the weakness in my thighs when I walk. I also live with lymphoma symptoms cause I can not take treatment at this time nor do I want to take treatment. My pain onc keeps me comfortable as possible. I will post dx later must rest now,.gidget
[This message has been edited by moderator3 (edited 01-04-2002).]
I am in final stages and wheelchair bound. My legs are getting weaker and weaker. I can feel the weakness in my thighs when I walk. I also live with lymphoma symptoms cause I can not take treatment at this time nor do I want to take treatment. My pain onc keeps me comfortable as possible. I will post dx later must rest now,.gidget
[This message has been edited by moderator3 (edited 01-04-2002).]
Maria Leach
01-17-2002, 06:51 PM
Hi, Dont think its the same thing, im still relatively able bodied and can do most things except run. Maria