BoneBurner
08-08-2001, 08:26 PM
I've been loosing my ability to use my left ring finger, and considerable atrophy in my hand. I cannot raise my left hand up straight up anymore. Had a few MRI's and they have me on Neurontin. Still, they haven't pinpointed the exact root of the problem. Now they're looking at ulnar neuropathy. But.....always seems to be a but...my whole body (joints) ache. They seem to also be sticking Deginerative joint diesease in my diagnosis. I remain confused....any comments would be appreciated.
gonzka
09-06-2001, 11:24 PM
I understand your frustration and problem. I have fibromyalgia which "I" believe has either created or is aggravating my "ulnar neuropathy". My little finger has had no feeling and is pretty much useless and my ring and middle fingers are close to being there now. An ER physician said to "rest it for awhile and it will go away". Hasn't worked. I will be seeing a naturopatic MD soon and hope he can help me. Hope you will find help also. Will keep coming back to see how you fare and let you know what I learn. Sorry I can't be more helpful, only sympathetic.
megastressed
09-21-2001, 08:23 AM
Originally posted by BoneBurner:
I've been loosing my ability to use my left ring finger, and considerable atrophy in my hand. I cannot raise my left hand up straight up anymore. Had a few MRI's and they have me on Neurontin. Still, they haven't pinpointed the exact root of the problem. Now they're looking at ulnar neuropathy. But.....always seems to be a but...my whole body (joints) ache. They seem to also be sticking Deginerative joint diesease in my diagnosis. I remain confused....any comments would be appreciated.
megastressed
09-21-2001, 08:34 AM
I have suffered from similar symptoms and at this point do not have the use of my right hand or wrist the nerve conduction test that was done show the radial nerve above my elbow is cut and this is the nerve that makes the hand and wrist function. My other hand was like this for 2-3 wks but has come back. This on will be permanent. My Doctor is doing a nerve biopsy - he believes it is a blood disorder. I have continual pins and needles and tingling in my arms and legs right down. I'm hoping there will be a medication to stop whats happening. Maybe something like what I'm having done would help you
Good Luck
fatcat
09-22-2001, 09:31 AM
Boneburner, can you tell about the types of nerve conduction tests you have had, like EMG ? I read somewhere that you had these. I have only been on this board for a short time, but already I feel like the entire area of neurology is just a 'practice' session for the docs,,, I hear so much dispair, angst, frustration because so many of these difficulties seem to be treated as 'just in your head' or not worthy of the determination of the health care professional to find a solution.
Keep us updated on new findings with what you are going thru now! God Bless!!
v. dobbs
10-23-2001, 12:06 AM
Hi Fatcat
Know how you feel. I have idiopathic neuropathy. When I was diagnosed 8 years ago, I didn't even know what they were talking about. I became a co-founder the local neuropathy support group in my city. If you need more info. about pn find a support group and talk with anyone you can about this disorder. That is one of the best ways to learn more. I have heard so many people say they have a doctor that cannot help them. Then find one who can. I was lucky and got a neurologist that is very good and has helped me a lot.
If I can help with Q's let me know.