NeedAnswers
06-21-2003, 02:22 PM
I have considered so many possibilities for my arm and leg numbness, but I still have no answers. Please help.
In June 2002, I started having lower left back pain and left leg numbness/weakness. Leg EMG was normal. Lumbar MRI showed no stenosis (2 hemangiomas-L1, L4---but orthopedic surgeon said this cannot be causing my symptoms). Pelvic CT showed no hemangiomas or occlusions. December 2002, the numbness/weakness spread to include my right leg. Full-body bone scan showed nothing abnormal. March 2003, numbness/weakness spread to include both hands and forearms. Brain and cervical MRI showed nothing abnormal. Neurologist said I don't have MS, and he doesn't know what I have, but there is nerve involvement.
The arm and leg numbness is not positional (I have it walking, jogging, sleeping, etc), affects my sleep, has affected my coordination just enough that I don't trust myself playing sports anymore, and has no known triggers (occurs about 20 hours of the day). What is it and will it go away?
I also have been having a "full" feeling in my head, with bad headaches and neck muscle pain for the past 3 weeks (since May 2003), not due to physical exersion. Ibuprofin and a muscle relaxant don't help. I told the internal med Dr about my neurologic symptoms, and her friend is going through the same situation at Hopkins. I have a feeling that many people are feeling the same symptoms, but the neurologists shrug us off as individual cases, when there might be a new disease out there.
The Drs don't feel an LP would help, since there is no treatment for neurologic viruses (ie arboviruses) anyway.
What should I do? Who should I see? What do I have? Can I stop it?
Thank you.
In June 2002, I started having lower left back pain and left leg numbness/weakness. Leg EMG was normal. Lumbar MRI showed no stenosis (2 hemangiomas-L1, L4---but orthopedic surgeon said this cannot be causing my symptoms). Pelvic CT showed no hemangiomas or occlusions. December 2002, the numbness/weakness spread to include my right leg. Full-body bone scan showed nothing abnormal. March 2003, numbness/weakness spread to include both hands and forearms. Brain and cervical MRI showed nothing abnormal. Neurologist said I don't have MS, and he doesn't know what I have, but there is nerve involvement.
The arm and leg numbness is not positional (I have it walking, jogging, sleeping, etc), affects my sleep, has affected my coordination just enough that I don't trust myself playing sports anymore, and has no known triggers (occurs about 20 hours of the day). What is it and will it go away?
I also have been having a "full" feeling in my head, with bad headaches and neck muscle pain for the past 3 weeks (since May 2003), not due to physical exersion. Ibuprofin and a muscle relaxant don't help. I told the internal med Dr about my neurologic symptoms, and her friend is going through the same situation at Hopkins. I have a feeling that many people are feeling the same symptoms, but the neurologists shrug us off as individual cases, when there might be a new disease out there.
The Drs don't feel an LP would help, since there is no treatment for neurologic viruses (ie arboviruses) anyway.
What should I do? Who should I see? What do I have? Can I stop it?
Thank you.
Sponsor
avia
06-21-2003, 03:49 PM
Are you B12 deficient? There is alot of info out there about the ill effects of being so. I have read that even if your range is normal sometimes that is not good enough. You could try taking 1000 mg. per day of B12 or start some shots. Talk to your doctor about this (if hh/she is open minded).
cntrykid44
07-01-2003, 05:05 AM
Ask your neurologist to check you for CMT (Charcot-Marie-Tooth Disease). Does anyone else in your family have these symptoms, maybe not as bad or worse? This particular disease runs in families but affects each family member differently.
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Peace & Love - cntrykid44
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Peace & Love - cntrykid44