JJones
01-02-2001, 05:09 PM
I am interested in knowing if anyone who has stopped taking Fosamax has had the side effects to get better but then has experienced them again even after the drug was discontinued. Thanks
Sponsor
Edward
03-03-2001, 06:14 PM
My Mother in Law has had separate surgeries for two cracks in her hip, two colon cancer
operations, a kidney operation, a mild stroke, etc during the past twelve years. As a result of the cancer operations with radiation treatments she has an ostomy and a colostomy. My point thusly is that this 83
year old woman has a heavy medical history. I note that Fosmax is not recommended for some one with renal insufficiency.
She wears a stint with her ostomy that must be replaced every six weeks. One of her kidneys was pretty much burned out from the cancer radiation some years ago. Her kidneys have been operated on because of the problems. That was several years
ago.
About three months ago she started the 10 mg per day dosage of Fosamax. No significant side effects, but this program was
changed to taking one 70 mg tablet once per week. Since taking the second 70 mg tablet about five weeks ago [she stopped
taking them then] she has gone from 93 pounds to 83, all of the bad side effects of Fasamax, per the brochure, gagging, can't hold down food or drink, blood in stool and urine and finally hospitalization. Now after five days in the hospital, she is told that she must be discharged as they can find nothing treatable. The doctors ecommendation is for her to be put into a nursing home as she is so week after the five weeks of suffering which she feels started with the weekly dose of fosamax.The doctors really don't say much about the fosamax other than it should be out of her system since she has not taken the drug for five weeks. Any comments would be appreciated. My email address is
etimes@midsouth.rr.com
operations, a kidney operation, a mild stroke, etc during the past twelve years. As a result of the cancer operations with radiation treatments she has an ostomy and a colostomy. My point thusly is that this 83
year old woman has a heavy medical history. I note that Fosmax is not recommended for some one with renal insufficiency.
She wears a stint with her ostomy that must be replaced every six weeks. One of her kidneys was pretty much burned out from the cancer radiation some years ago. Her kidneys have been operated on because of the problems. That was several years
ago.
About three months ago she started the 10 mg per day dosage of Fosamax. No significant side effects, but this program was
changed to taking one 70 mg tablet once per week. Since taking the second 70 mg tablet about five weeks ago [she stopped
taking them then] she has gone from 93 pounds to 83, all of the bad side effects of Fasamax, per the brochure, gagging, can't hold down food or drink, blood in stool and urine and finally hospitalization. Now after five days in the hospital, she is told that she must be discharged as they can find nothing treatable. The doctors ecommendation is for her to be put into a nursing home as she is so week after the five weeks of suffering which she feels started with the weekly dose of fosamax.The doctors really don't say much about the fosamax other than it should be out of her system since she has not taken the drug for five weeks. Any comments would be appreciated. My email address is
etimes@midsouth.rr.com
Mattsmummum
03-03-2001, 09:43 PM
My husband has been on Fosomax for over a year without any side effects. He just switched over 3 weeks ago to the 70mg. once a week dose and still no problems. I guess we can consider ourselves lucky.
prisa
05-29-2001, 11:26 PM
I have been on fosamax for 4months. Last week I became ill and was sent to the hospital with stomach pain and bloody stools. I did some research on the web, and found it could be a side effect from the fosamax. I am scheduled for a berium enema to find the cause. My doctor doesn't believe it could be the fosamax. I have stopped taking it and after reading this message board I don't think I will resume it.
Mattsmummum
05-30-2001, 06:55 PM
My husband has now been on the 70 mg. for 3 full months, without side effects. Before that he was on the daily 10 mg. for over a year. He has also had the Mialcalcin nasal spray added to the equation now. My mother-in-law is also on 70 mg.....no side effects.
L.I. Gal
06-01-2001, 10:43 PM
Originally posted by prisa:
I have been on fosamax for 4months. Last week I became ill and was sent to the hospital with stomach pain and bloody stools. I did some research on the web, and found it could be a side effect from the fosamax. I am scheduled for a berium enema to find the cause. My doctor doesn't believe it could be the fosamax. I have stopped taking it and after reading this message board I don't think I will resume it.
Your doctor better do more research on the side effects of this drug. I had trouble swallowing after about a week. A friend developed severe stomach ulcers from Fossamax and all sorts of digestive problems from it, as it is very acidic. Always read the drug inserts that come with these prescriptions. And remember, all drugs have side effects!
I have been on fosamax for 4months. Last week I became ill and was sent to the hospital with stomach pain and bloody stools. I did some research on the web, and found it could be a side effect from the fosamax. I am scheduled for a berium enema to find the cause. My doctor doesn't believe it could be the fosamax. I have stopped taking it and after reading this message board I don't think I will resume it.
Your doctor better do more research on the side effects of this drug. I had trouble swallowing after about a week. A friend developed severe stomach ulcers from Fossamax and all sorts of digestive problems from it, as it is very acidic. Always read the drug inserts that come with these prescriptions. And remember, all drugs have side effects!
rosarobin
06-03-2001, 09:04 AM
I have been diagnosed with osteopenia (I'm 63) and am agonizing over this very issue - whether or not to start taking Fosamax and continue for the rest of my life. Should I risk the side effects in the hope of preventing bone-loss or go the natural route by consuming more calcium-rich foods and daily physical activity? I lean toward the natural approach but appreciate everyone's comments! (Rosalee)
Funny Fat Lady
06-18-2001, 01:03 PM
I am trying to help a friend. She is on Fosamax 20 mg daily. Her latest test shows continued bone loss and her doc wants to increase the dosage. My friend is concerned about damage to the esophagus. Would Actonel do the same thing? Are there any safer, more effective treatments she should look into? Any help would be appreciated! Thanks!
funnyfatlady@yahoo.com
funnyfatlady@yahoo.com
Rose Alles
06-22-2001, 04:36 PM
You guys have me really worried. My mom is going to start 1 weekly fosamax tomorrow. She already is taking 3 other meds that cause dry mouth and she has non-viral hepatitis and insulin dependent diabetes. I'll keep a close eye on her for side effects. Glad I found this site.
carrie63
07-05-2001, 01:49 AM
Originally posted by rosarobin:
I have been diagnosed with osteopenia (I'm 63) and am agonizing over this very issue - whether or not to start taking Fosamax and continue for the rest of my life. Should I risk the side effects in the hope of preventing bone-loss or go the natural route by consuming more calcium-rich foods and daily physical activity? I lean toward the natural approach but appreciate everyone's comments! (Rosalee)
I am also 63 and also have osteopenia. I am not on Fosamax, and from what I have read and heard about the side effects, I don't ever want to be! I agree with you that the natural approach is the way to go...more calcium, more daily physical activity. Good luck!
I have been diagnosed with osteopenia (I'm 63) and am agonizing over this very issue - whether or not to start taking Fosamax and continue for the rest of my life. Should I risk the side effects in the hope of preventing bone-loss or go the natural route by consuming more calcium-rich foods and daily physical activity? I lean toward the natural approach but appreciate everyone's comments! (Rosalee)
I am also 63 and also have osteopenia. I am not on Fosamax, and from what I have read and heard about the side effects, I don't ever want to be! I agree with you that the natural approach is the way to go...more calcium, more daily physical activity. Good luck!
Storyman
07-25-2001, 10:46 AM
Need some assistance. My wife was given Fosamax recently - after never having taken anything stronger than aspirin for years (and favoring natural alternatives to healing) and quit after her second (weekly) pill. symptoms: fatigue, alligatoring patterns on skin, nausea, headaches, abdominal aches and assorted other side effects. From reading this BB it appears Foxamax is the worst development since cyanide.
Is there anyone with guidance to natural or alternate methods to rebuild bone tissue? We do not favor dealing the the "Secret Medical Priesthood" and only see an MD for a second (or third) opinion. Medicine is nice in its place - but it is rarely in first place with us and MDs are very suspect of someone who manages their own case with information and common sense.
Is there anyone with guidance to natural or alternate methods to rebuild bone tissue? We do not favor dealing the the "Secret Medical Priesthood" and only see an MD for a second (or third) opinion. Medicine is nice in its place - but it is rarely in first place with us and MDs are very suspect of someone who manages their own case with information and common sense.
syoung
07-25-2001, 06:36 PM
I have been on fosamax 70 mg weekly for 6 months and have gained 15 pounds. I am also having joint pain which did not show up at first but in the last 2 months it has developed and gotten worse by the day. My doctor thinks its part of aging but I am only 49 years old and the onset seems too quick to be age-related.
Cheryl
07-30-2001, 09:28 PM
I have been on Fosamax for 11 months with no side effects, but after reading some of your comments I am beginning to worry that this drug could possibly be hurting all of us in the long run. How can we really get the right information needed to make the choices of using this drug. How much do doctors really know?
mariah
08-05-2001, 07:52 PM
I tried the fosamax but could not tolerate the side effects. After research on the web, I decided to take ipriflavone which is approved in other countries for treating osteoporosis. Type in any search engine and read about it. Also am using progesterone cream. Several books to read are "Preventing and Treating Osterporosis" by Dr. Alan Gaby, "What Your Doctor May Not Tell You About Menopause" by Dr. John Lee. Much good information about what you can do to help yourself. Both available from Amazon.com. I also take calcium, vit. D., a multivitamin, don't eat much meat, no caffeine, sodas,tobacco, low salt and sugar-that is the toughest! Weight bearing exercise plus strength training. My back and hip do not hurt like they used to so hopefully I am making progess. Due to be retested in December. You can make a difference in your health if you are committed. Good luck!
hotwheels
08-06-2001, 12:47 AM
I have been taking one weekly dose of 80mg fosamax for the past 6months for osteo in my legs. I had been off fosamax for about a year and before that took a daily dose of 10mg. I have not experienced any problems with it and it has done great things for the strength of my bones. My Dr told me that after taking it for a year it will generally keep on working for at least another year without having to take it. His words were it sticks to the bones. I hope that we will all not have any long term effects from this as it has been the best drug so far for me. I have not had a bone break in 6 years. Good luck guys.
Vickie
10-16-2001, 04:38 PM
I have been taking Fosamax for about 7 seven months. I take the weekly pill. There haven't been any side effects that I know of. Just had my one year scan after first being diagnosed with osteo and was told my bones look better already. Just out of the osteo zone so still have to work on it. (I am 42).
It is important to take the Fosamax on an empty stomach and with a glass of water, nothing else. Don't lay down, eat, take other meds or vitamins for at least 30 mins. The meds and vits. can interfere and maybe that is part of the problem. Also, some people just can't tolerate certain kinds of medicines.
I also take migraine medication which makes it difficult when I wake up with a migraine and have to take the Fosamax. I have to wait at least 30 mins. before I can take care of my migraine!
I am sorry for those who have had problems with Fosamax. I hope you will find something you can take.
It is important to take the Fosamax on an empty stomach and with a glass of water, nothing else. Don't lay down, eat, take other meds or vitamins for at least 30 mins. The meds and vits. can interfere and maybe that is part of the problem. Also, some people just can't tolerate certain kinds of medicines.
I also take migraine medication which makes it difficult when I wake up with a migraine and have to take the Fosamax. I have to wait at least 30 mins. before I can take care of my migraine!
I am sorry for those who have had problems with Fosamax. I hope you will find something you can take.
linda.b
11-03-2001, 11:00 AM
Fosamax and eye damage?
Nov.3. 2001
I found your old Health Boards sites on, Fosamax side effect & impaired vision , and Fosamax and eye damage .
It seems Joan (October 16, 2000.) Erica et al ( replies on October 20, 2000.) and others ,have "made things happen". The Fosamax patient leaflet now says---
" Some patients may experience eye pain, diminished or hazy vision, and/ or see black floating spots."
I have experienced the following ---
I took Fosamax for 6 months. I stopped taking it 2 months ago , because it was badly affecting my recovery from symptomatic hyperparathyroid disease.
I then developed conjunctivitis , in first one eye then the other eye. Dr prescribed chloramphenicol which cleared infection. At this time I became aware of strained, blurred vision in my right eye.
My optician prescribed new glasses because vision in my right eye had become inadequate for driving When I collected my new glasses, 2 weeks later , the vision in my right eye had changed again, and the new glasses were not right .
On further careful examination my optician found that my cornea had changed shape since the first test . The eye was otherwise healthy. He could not explain this rapid change in my eye. I have not had any problems of this kind before. He will repeat measurements on my cornea in 2 weeks time, to see whether there are further changes.
He says I need to see an eye specialist.
I have only needed a small, simple prescription for reading glasses previously.
I wonder if this sudden, unexplained eye damage is related to Fosamax?
Interestingly , neither my optician or my Doctor ,were aware of the link between eye damage and Fosamax.
Is this link a be a bit farfetched? I am beginning to think not!
What happened to Joan and the other peoples eye problems after stopping the Fosamax??
Which strength tablets were they taking?
How does Fosamax cause these eye problems? Are they reversible , and if so, how long does recovery take?
Can doctors help the patient once this eye damage has occurred?
I am now somewhat concerned since it seems likely this drug may have affected me in two quite separate ways.
I wait , with interest, to see the specialist.
Linda.
Fosamax and primary hyperparathyroid disease. My experience so far.
I have had symptomatic primary hyperparathyroidism (pHPT) .This is an endocrine disorder, involving calcium metabolism. The resulting raised parathyroid hormone levels and raised serum calcium levels can cause many problems. I had an operation to remove one enlarged, overactive parathyroid gland, and a thyroid nodule, 14 months ago.
After 6 months my many symptoms of pHPT were beginning to improve quite well. These symptoms included anxiety, fatigue , sleeplessness, lethargy, joint pain, bone pain and neuromuscular weakness. They make everyday living pretty trying!
At this time, due to severe osteoporosis ,resulting from pHPT, I was prescribed Fosamax . I took 10mg each day for 4 months, then 70mg once weekly for 2 months.
I was anxious about taking this drug since it would be interfering with the metabolic pathway which had , by malfunctioning, caused my original problems. My Drs didn’t seem concerned about this.
I took the Fosamax, but, after a few months, I began to suspect my recovery was slowing down
Then, on changing to 70mg, I knew my symptoms were actually deteriorating. I felt really bad 24 hours after taking the once weekly tablet.
Finally , 2 months ago ,I decided to stop the Fosamax after checking with my GP.
To my relief, I now find all my symptoms improving again.
My serum calcium levels have remained normal since my operation. Parathyroid hormone levels have not been checked.
I have discovered that Fosamax 5mg. causes a significant increase in nocturnal secretion of parathyroid hormone - 20% above that of placebo! ( Thought to be one of the reasons for it’s continued efficacy with time.) Could this explain the slowdown in my recovery? I think so!! My doctors didn’t really comment when I drew attention to this article.
In fact, my consultant now wants me to take Actonel , which is again, like Fosamax , a bisphosphonate . I have checked the manufacturers data. Again serum parathyroid hormone levels are increased, so I am not prepared to risk a repeat of my last experience.
Are these treatments (bisphosphonates) inappropriate for patients who have not recovered from the physical and mental symptoms of hyperparathyriod disease?
Since I have no fractures to date, and am now more mobile, I think a policy of " wait and see " to find out if my bone density ( post parathyroidectomy )begins to recover, is my best short term bet!
I find these experiences have undermined my confidence in the post operative management of my disease. I feel very lucky to have managed to work out what was going on !!!
The Internet has been so useful in providing access to GOOD information on pHPT disease.
Has anyone else out there had similar experiences with hyperparathyroid disease and Fosamax??
I would be most interested to hear!
Linda .
Nov.3. 2001
I found your old Health Boards sites on, Fosamax side effect & impaired vision , and Fosamax and eye damage .
It seems Joan (October 16, 2000.) Erica et al ( replies on October 20, 2000.) and others ,have "made things happen". The Fosamax patient leaflet now says---
" Some patients may experience eye pain, diminished or hazy vision, and/ or see black floating spots."
I have experienced the following ---
I took Fosamax for 6 months. I stopped taking it 2 months ago , because it was badly affecting my recovery from symptomatic hyperparathyroid disease.
I then developed conjunctivitis , in first one eye then the other eye. Dr prescribed chloramphenicol which cleared infection. At this time I became aware of strained, blurred vision in my right eye.
My optician prescribed new glasses because vision in my right eye had become inadequate for driving When I collected my new glasses, 2 weeks later , the vision in my right eye had changed again, and the new glasses were not right .
On further careful examination my optician found that my cornea had changed shape since the first test . The eye was otherwise healthy. He could not explain this rapid change in my eye. I have not had any problems of this kind before. He will repeat measurements on my cornea in 2 weeks time, to see whether there are further changes.
He says I need to see an eye specialist.
I have only needed a small, simple prescription for reading glasses previously.
I wonder if this sudden, unexplained eye damage is related to Fosamax?
Interestingly , neither my optician or my Doctor ,were aware of the link between eye damage and Fosamax.
Is this link a be a bit farfetched? I am beginning to think not!
What happened to Joan and the other peoples eye problems after stopping the Fosamax??
Which strength tablets were they taking?
How does Fosamax cause these eye problems? Are they reversible , and if so, how long does recovery take?
Can doctors help the patient once this eye damage has occurred?
I am now somewhat concerned since it seems likely this drug may have affected me in two quite separate ways.
I wait , with interest, to see the specialist.
Linda.
Fosamax and primary hyperparathyroid disease. My experience so far.
I have had symptomatic primary hyperparathyroidism (pHPT) .This is an endocrine disorder, involving calcium metabolism. The resulting raised parathyroid hormone levels and raised serum calcium levels can cause many problems. I had an operation to remove one enlarged, overactive parathyroid gland, and a thyroid nodule, 14 months ago.
After 6 months my many symptoms of pHPT were beginning to improve quite well. These symptoms included anxiety, fatigue , sleeplessness, lethargy, joint pain, bone pain and neuromuscular weakness. They make everyday living pretty trying!
At this time, due to severe osteoporosis ,resulting from pHPT, I was prescribed Fosamax . I took 10mg each day for 4 months, then 70mg once weekly for 2 months.
I was anxious about taking this drug since it would be interfering with the metabolic pathway which had , by malfunctioning, caused my original problems. My Drs didn’t seem concerned about this.
I took the Fosamax, but, after a few months, I began to suspect my recovery was slowing down
Then, on changing to 70mg, I knew my symptoms were actually deteriorating. I felt really bad 24 hours after taking the once weekly tablet.
Finally , 2 months ago ,I decided to stop the Fosamax after checking with my GP.
To my relief, I now find all my symptoms improving again.
My serum calcium levels have remained normal since my operation. Parathyroid hormone levels have not been checked.
I have discovered that Fosamax 5mg. causes a significant increase in nocturnal secretion of parathyroid hormone - 20% above that of placebo! ( Thought to be one of the reasons for it’s continued efficacy with time.) Could this explain the slowdown in my recovery? I think so!! My doctors didn’t really comment when I drew attention to this article.
In fact, my consultant now wants me to take Actonel , which is again, like Fosamax , a bisphosphonate . I have checked the manufacturers data. Again serum parathyroid hormone levels are increased, so I am not prepared to risk a repeat of my last experience.
Are these treatments (bisphosphonates) inappropriate for patients who have not recovered from the physical and mental symptoms of hyperparathyriod disease?
Since I have no fractures to date, and am now more mobile, I think a policy of " wait and see " to find out if my bone density ( post parathyroidectomy )begins to recover, is my best short term bet!
I find these experiences have undermined my confidence in the post operative management of my disease. I feel very lucky to have managed to work out what was going on !!!
The Internet has been so useful in providing access to GOOD information on pHPT disease.
Has anyone else out there had similar experiences with hyperparathyroid disease and Fosamax??
I would be most interested to hear!
Linda .
Tree Frog
11-03-2001, 12:36 PM
A friend suffers from osteoporosis, so I was reading this board.
A nurse for an anti-aging physician told me that boron helps calcium get into the bones.
Magnesium does too.
In fact, we don't need more than 50 mg or so of calcium a day, with twice as much magnesium.
Back off both calcium and magnesium if your stools become too loose.
If constipated, take more of each, proportionately.
Magnesium makes the calcium go into the bones, instead of going in the soft tissue causing calcium deposits such as joint and/or foot pain. My husband had painful calcium deposits in the soles of his feet, and they went away in just a couple of weeks when he took magnesium (they had not been there for very long).
Here is an interesting website with lots of info about magnesium: http://www.execpc.com/~magnesum/
From Dr. Mercola's website: http://www.mercola.com/2001/apr/4/ipriflavone.htm
"Building bones is far more complex than just taking calcium or any other supplement. Many minerals are required, such as magnesium, manganese, boron, zinc, copper, phosphorus and others. However, if you are consuming large quantities of high quality organic vegetables it is highly likely you will obtain most all of the mineral base you will need to build your bones.
Exercise and eating plenty of whole vegetables are the most profound ways to build bones.
Don't forget that vitamin D is essential to absorb the minerals and unless you have good sun exposure, particularly in the winter, you will need a supplement to prevent bone loss. Even if the warmer months, if you are indoors all day long you will likely be vitamin D deficient as well."
In light of the damage the drugs for osteo cause, it sure would not hurt to try this. I hope it helps someone.
[This message has been edited by Tree Frog (edited 11-03-2001).]
A nurse for an anti-aging physician told me that boron helps calcium get into the bones.
Magnesium does too.
In fact, we don't need more than 50 mg or so of calcium a day, with twice as much magnesium.
Back off both calcium and magnesium if your stools become too loose.
If constipated, take more of each, proportionately.
Magnesium makes the calcium go into the bones, instead of going in the soft tissue causing calcium deposits such as joint and/or foot pain. My husband had painful calcium deposits in the soles of his feet, and they went away in just a couple of weeks when he took magnesium (they had not been there for very long).
Here is an interesting website with lots of info about magnesium: http://www.execpc.com/~magnesum/
From Dr. Mercola's website: http://www.mercola.com/2001/apr/4/ipriflavone.htm
"Building bones is far more complex than just taking calcium or any other supplement. Many minerals are required, such as magnesium, manganese, boron, zinc, copper, phosphorus and others. However, if you are consuming large quantities of high quality organic vegetables it is highly likely you will obtain most all of the mineral base you will need to build your bones.
Exercise and eating plenty of whole vegetables are the most profound ways to build bones.
Don't forget that vitamin D is essential to absorb the minerals and unless you have good sun exposure, particularly in the winter, you will need a supplement to prevent bone loss. Even if the warmer months, if you are indoors all day long you will likely be vitamin D deficient as well."
In light of the damage the drugs for osteo cause, it sure would not hurt to try this. I hope it helps someone.
[This message has been edited by Tree Frog (edited 11-03-2001).]
GrapevineJoan
11-12-2001, 06:39 PM
There were many messages on the old board about Fosamax and eye problems.I'm pleased to see in Linda's recent message that Merck has now enclosed some information on this problem in the leaflet they enclose with Fosamax. It took me about 6 months to realise that it was Fosamax that was causing my vision problems although doctors didn't want to believe it. I was on 5mg daily for 2 months then 10mg daily. After stopping the Fosamax it took about 6 weeks for my eyesight to return to near normal although I still have a bit of weekness in that eye. Doctors and Pharmacists need to be informed of vision problems while taking Fosamax. Has your eyesight improved Linda? I'm now only taking Calcium, Vitamins and drink soy milk.
Joan
Joan
TCML355
11-20-2001, 12:49 AM
I was recently diagnosed with severe osteoporosis and put on fosomax 70mg. weekly. After two months of taking this med. I began to experience a tremendous heat in my face and eye pressure which would last for hours at a time.
My doctor said these were hot flashes and need to go to gyno for medication.
Since I'm not a fan of taking med. unless completely necessary, I thought that I would stop fosomax to see if there was a connection.....Almost as soon as I stopped taking fosomax the problem disappeared.
Unfortunately I still need a medication so I am now on Miacalsin(nasal spray for osteoporosis) So far no side effects.
Boy, this is really scary at times!
My doctor said these were hot flashes and need to go to gyno for medication.
Since I'm not a fan of taking med. unless completely necessary, I thought that I would stop fosomax to see if there was a connection.....Almost as soon as I stopped taking fosomax the problem disappeared.
Unfortunately I still need a medication so I am now on Miacalsin(nasal spray for osteoporosis) So far no side effects.
Boy, this is really scary at times!
linda.b
11-25-2001, 06:47 AM
I was glad to see Joan’s reply, and to read that her eyesight returned to near normal 6 weeks after stopping Fosamax. I wonder if I might have to wait longer for mine to mend . If the effect on the eyes is dose related, and Fosamax has caused the problem, could the 70mg. once weekly tablet cause more eye damage than 10mg daily dose ? This was the case with Fosamax and my hyperparathyroid symptoms.
I only noticed my eye problems, pain and blurred vision, just after I stopped the drug, three months ago. There were slight improvements in my vision last time I saw the optician, he is monitoring the shape of my cornea . Keeping fingers crossed that this continues.
I am now waiting to see an opthalmologist.
Like Joan, I have written to Merck about my problems with Fosamax.
Joan, did your doctors ever explain the underlying reasons for your eye problems ?
What has happened to your bone density ? Did the Fosamax make any difference in the time you took it? Did you have any fractures? Are you tempted to try another osteoporosis treatment?
Like you I take calcium . I get a bone density reading early next year so will find out about any improvements then. I am considering HRT, if I must take something. This seems to have a safer and longer track record of use in treating osteoporosis. My doctors have also suggested Evista but I’m not inspired by the info in the pamphlet so far!
Like … "scary at times"…… I’m finding, at 55, I’m in a great dilemma over osteoporosis…….One option is - no treatment , risking potential short, or long term problems of fractures, which cannot be predicted or quantified, but which could be potentially and permanently debilitating . The alternative is - take an osteoporosis treatment, some of which have not been tested in the long term, and risk side effects, some possibly permanent, unpleasant, and unknown, and get, as I see it, an unpredictable and sometimes small reduction in fracture risk in the future. My doctors have not been forthcoming with convincing information for me to really make a sensible decision -- so far. Maybe I have just lost faith in the system ?? Maybe I expect too much?? I shall be checking on the Internet again!
Hope others have had more luck than me with their treatments!!!
I only noticed my eye problems, pain and blurred vision, just after I stopped the drug, three months ago. There were slight improvements in my vision last time I saw the optician, he is monitoring the shape of my cornea . Keeping fingers crossed that this continues.
I am now waiting to see an opthalmologist.
Like Joan, I have written to Merck about my problems with Fosamax.
Joan, did your doctors ever explain the underlying reasons for your eye problems ?
What has happened to your bone density ? Did the Fosamax make any difference in the time you took it? Did you have any fractures? Are you tempted to try another osteoporosis treatment?
Like you I take calcium . I get a bone density reading early next year so will find out about any improvements then. I am considering HRT, if I must take something. This seems to have a safer and longer track record of use in treating osteoporosis. My doctors have also suggested Evista but I’m not inspired by the info in the pamphlet so far!
Like … "scary at times"…… I’m finding, at 55, I’m in a great dilemma over osteoporosis…….One option is - no treatment , risking potential short, or long term problems of fractures, which cannot be predicted or quantified, but which could be potentially and permanently debilitating . The alternative is - take an osteoporosis treatment, some of which have not been tested in the long term, and risk side effects, some possibly permanent, unpleasant, and unknown, and get, as I see it, an unpredictable and sometimes small reduction in fracture risk in the future. My doctors have not been forthcoming with convincing information for me to really make a sensible decision -- so far. Maybe I have just lost faith in the system ?? Maybe I expect too much?? I shall be checking on the Internet again!
Hope others have had more luck than me with their treatments!!!
arkie6
11-25-2001, 12:15 PM
Here is an interesting article I came across at Dr. Mercola's site that discusses bone health, Premarin, and Fosamax > http://www.mercola.com/2001/jun/23/premarin.htm . At the end of that article are several related articles on Fosamax and its side effects. For even more info regarding Fosamax, just type in "fosamax" in Dr. Mercola's search engine and you will get lots of information on it.
Alan
Alan
Vickie
12-06-2001, 04:11 PM
This is really amazing all the people that have these side effects taking Fosamax. I have been taking it for almost a year (70mg once a week). My osteoporosis has improved and I have no side effects that I know of. Just had my eyes checked about 2 wks ago and they haven't changed since my last exam 2yrs ago. Sorry about all of you who have so many problems with this drug. I am glad that (so far) I am having good results with it. If anything changes, I will let you know. I also take vit. D and Tums EX per my doctor's advice.
carer
12-26-2001, 04:47 PM
--------------------------------------------------------------------------------
I am seeking more information about the problem of Calcium deposits building up in the brain, after long term use of Calcium suppliment drugs, used for increasing a persons bone density in deseases such as Osteoporosis. I heard of a Geriatrician who noted that several patients who had an "unusual" form of Dimentia, and who had died, after autopsey, showed large amounts of Calcium deposits in the brain. All their histories showed they had been on long-term calcium suppliments. I guess the theory is that the body excretes any 'unused' calcium and therefore there is no danger. But what happens in a case where the "norm." does not happen? Where is this extra calcium stored in the body? Can anyone point me in the direction of research done on this subject. I don't want to be a party-pooper, but the medical profession often tend to be a bit blase regarding the unknown dangers with some of the drugs we take.
I am seeking more information about the problem of Calcium deposits building up in the brain, after long term use of Calcium suppliment drugs, used for increasing a persons bone density in deseases such as Osteoporosis. I heard of a Geriatrician who noted that several patients who had an "unusual" form of Dimentia, and who had died, after autopsey, showed large amounts of Calcium deposits in the brain. All their histories showed they had been on long-term calcium suppliments. I guess the theory is that the body excretes any 'unused' calcium and therefore there is no danger. But what happens in a case where the "norm." does not happen? Where is this extra calcium stored in the body? Can anyone point me in the direction of research done on this subject. I don't want to be a party-pooper, but the medical profession often tend to be a bit blase regarding the unknown dangers with some of the drugs we take.
debbieb688
01-10-2002, 04:05 PM
I have been diagnosed with osteopenia. I lean toward the natural approach but appreciate everyone's comments! (Rosalee)
Rosalee,
My name is Debbie Blais and I have used natural methods to go from 40% bone loss to 20% bone loss in one year. I saw an applied kinesiologist -- Dr. Scott Einhorn in South Miami (I live in Hollywood) and he made sure my intestines were absorbing and then he gave me bone supplements and suggested I avoid dairy and get my calcium from green leafy vegetables and do weight bearing exercises. I did all of this with the amazing above results. His phone number is 305-666-8881. Insurance covered most everything and he was very knowledgeable and reasonably priced.
Good luck, Debbie
Rosalee,
My name is Debbie Blais and I have used natural methods to go from 40% bone loss to 20% bone loss in one year. I saw an applied kinesiologist -- Dr. Scott Einhorn in South Miami (I live in Hollywood) and he made sure my intestines were absorbing and then he gave me bone supplements and suggested I avoid dairy and get my calcium from green leafy vegetables and do weight bearing exercises. I did all of this with the amazing above results. His phone number is 305-666-8881. Insurance covered most everything and he was very knowledgeable and reasonably priced.
Good luck, Debbie
12828rabbit
01-14-2002, 04:01 AM
I am 52 years old. My daughter who is an RN asked me to start Fosomax. I have had several years of bone pain in my lower back. My doctor ran some tests before he would prescribe fosomax for me. My tests showed that my lower spine was osteoporosis, and my hips are osteopenia. I was given a 1 month supply free, plus a prescription for another month. I took the 1 month sample and called in the prescription when I was out. The pharmacy said that my prescription was not authorized by my doctor and the insurance company needed to be contacted for authorization. In the meantime I have had no fosomax for three weeks. Is this lapse in taking this medication harmful? Does anyone know the answer to this?. I would need to pay $72.00 for a month supply if my insurance company won't authorize my perscription.
My frustration is that my doctor took tests, and gave me a month supply based on those results, yet still doesn't follow thru with the insurance co. to cover medication. Thanks, 12828rabbit
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My frustration is that my doctor took tests, and gave me a month supply based on those results, yet still doesn't follow thru with the insurance co. to cover medication. Thanks, 12828rabbit
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Vinny
03-30-2002, 05:36 PM
My grandmother has osteoporosis, and was on Fosamax for almost three years. She has also been on a blood-thinning medication because she is prone to minor strokes. Recently, her high blood pressure caused her to have a headache, so her doctor gave her a pill to lower her blood pressure. After half an hour, she was vomitting blood several times over. She was admitted into emergency, but was not given a scopy. Now she is off all medications, including Fosamax, except for her high blood pressure medication. Question: does Fosamax cause the blood to thicken? Does this cause stroke in the elderly? If she is told to take asprin, what would that do to the gastrointestinal bleeding? What is the best solution to her osteoporosis now? Forbear my ignorance, I am asking on behalf of my family, and I know only a little about the situation. But any answer would be greatly appreciated by them because we are in the dark as to what is happening, what Fosamax does to the body (side effects) and what is the best course of action now that she must stop all medication.
Thank you
Thank you
Vinny
03-30-2002, 06:45 PM
Oops, she is not on high blood pressure medication but on stomach (antacid) medication only. Sorry for the confusion.
Vinny
Vinny
bjg
03-31-2002, 08:57 AM
does fosamax cause the blood to thicken..a serious ?..why not call merck the manufacturer and ask them..they have customer support people available at 800-672-6372
EPW
06-06-2002, 06:40 PM
I am also experiencing weight gain with Fosamax after only six weeks of taking the weekly dosage. This is VERY worrisome -- I am young and very active (taking Fosamax to improve bone density after repeated stress fractures, I am 27) and have changed not a thing save for the Fosamax. Any potential explanations or related experiences would be so very helpful. Many thanks.
rosarobin
06-27-2002, 05:36 PM
I knew I had osteopenia, but recently have been diagnosed with "severe"; so I gave in and started the daily Fosamas. Well after day-7 I had a slight upset stomach so stopped taking it. I know that's not a very long time to give it a chance, but the daily mental-anguish and worry about what it's doing to my body in a negative way is just more than I can bear. Increasing calcium & weight-bearing activity! Maybe I'll give it another try someday. Any recent updates on anyone who posted here?
Biblioann
08-12-2002, 09:47 PM
In doing research for my 90-year-old Mom's osteoporosis, I discovered that NATURAL progesterone actually builds bone. - NOT the pharmaceutical company's synthetic "progestIN" which is very harmful to your heart among other things, as has been demonstrated by the recently published study. (OB/GYN)Dr. Uzzi Reiss' book "Natural Hormone Balance for Women," c2001, builds on Dr. John Lee's earlier book about natural progesterone, and says that researchers are beginning to wonder if osteoporosis might actually be a progesterone-deficiency disease, due to the drastic drop in progesterone after menopause, greater than the estrogen drop, and the fact that progesterone is a major component in building bone. Best of all, so far they have found no serious side effects from it, any side effects restricted to very slight drowsiness....So I invite you to pursue this promising possibility. This is in reply to the following:
: I have Oseopinea and Osteoporosis and my doctor started me on Fosomax. I am afraid to take it, or any
: other meds because of all the side effects. He told me that there are a lot of women who are refusing to
: take them also and they are going the "natural" route. This includes soy supplements and food, exercise
: and I do not know what else. Has anyone tried to go the "soy" way? The only things I can find on the web
: about using soy make it sound as though it is the answer, however, everything I read is also coming from
: the people who are selling it. I would like to find an unbiased opinion. Thanks!
: I have Oseopinea and Osteoporosis and my doctor started me on Fosomax. I am afraid to take it, or any
: other meds because of all the side effects. He told me that there are a lot of women who are refusing to
: take them also and they are going the "natural" route. This includes soy supplements and food, exercise
: and I do not know what else. Has anyone tried to go the "soy" way? The only things I can find on the web
: about using soy make it sound as though it is the answer, however, everything I read is also coming from
: the people who are selling it. I would like to find an unbiased opinion. Thanks!
Cricket68
08-12-2002, 10:24 PM
I have read many posts concerning fosamax an eye problems and not until two days ago felt that it applied to me.
I took fosamax once a week 70mg. for about 5 months. I stopped the medication due to flu like symptoms which I experienced every week for the last two months of takin this med. The flu symptoms cleared in only a week. Now, much to my surpise, I find that after 7 months of stopping the Fosamax I no longer need my glasses for distance. I started wearing these glasses at the time I was taking Fosamax.....Two days ago I woke up and no longer needed them. My distance eyesight was back to being just fine!
Time will tell, but for now it would appear that the Fosamax was the cause of my worsening eyesight, not getting older which is what I was told by my Dr.
I am now taking Actonel, but wondering what can happen next!?
I took fosamax once a week 70mg. for about 5 months. I stopped the medication due to flu like symptoms which I experienced every week for the last two months of takin this med. The flu symptoms cleared in only a week. Now, much to my surpise, I find that after 7 months of stopping the Fosamax I no longer need my glasses for distance. I started wearing these glasses at the time I was taking Fosamax.....Two days ago I woke up and no longer needed them. My distance eyesight was back to being just fine!
Time will tell, but for now it would appear that the Fosamax was the cause of my worsening eyesight, not getting older which is what I was told by my Dr.
I am now taking Actonel, but wondering what can happen next!?
maryfran33
08-16-2002, 06:08 PM
I have been on Fosamax for several months with seemingly no adverse side effects except....lately I have been having a strange, metallic taste. (The insert does indicate that there might be an "altered" sense of taste.)
Have any of you experienced this?
Also, I am wondering how long it might take for the body to rid itself of Fosamax. I would suppose that the shorter the duration of taking it, the less amount of time it would take to be free of it???
Thanks!
Mary
Have any of you experienced this?
Also, I am wondering how long it might take for the body to rid itself of Fosamax. I would suppose that the shorter the duration of taking it, the less amount of time it would take to be free of it???
Thanks!
Mary
32skater
08-27-2002, 10:24 PM
I have been on fosamax soon to be 2 years in October.
In the beginning, I said it was not for me; I take
the 70mg. 1 pill a week. My husband said try
breaking it in two. Some is better than none; I did
that for a few weeks and decided I was not having
any problems so I went back to the 70mg. pill and
have stayed on it every since. I, too, was
diagnosed as osteopenia. I am 61 years old and
really in pretty good health, otherwise. I found
it makes a difference to do something, such as
walking, exercise bike, etc., immediately after
taking, to make at least the first half hour, if not
hour go fast; than I am home free. My doctor tells
me you only have to take it for 3 years. Hopefully,
I hold out, as the alternative could be much worse.
Have not had a problem with weight gain, etc. My
biggest problem is that I do not like to take
pills, but sometimes we have no choice. I guess
the idea is that if you haven't been helped in the
3 years, it is useless to continue taking it.
In the beginning, I said it was not for me; I take
the 70mg. 1 pill a week. My husband said try
breaking it in two. Some is better than none; I did
that for a few weeks and decided I was not having
any problems so I went back to the 70mg. pill and
have stayed on it every since. I, too, was
diagnosed as osteopenia. I am 61 years old and
really in pretty good health, otherwise. I found
it makes a difference to do something, such as
walking, exercise bike, etc., immediately after
taking, to make at least the first half hour, if not
hour go fast; than I am home free. My doctor tells
me you only have to take it for 3 years. Hopefully,
I hold out, as the alternative could be much worse.
Have not had a problem with weight gain, etc. My
biggest problem is that I do not like to take
pills, but sometimes we have no choice. I guess
the idea is that if you haven't been helped in the
3 years, it is useless to continue taking it.
rosarobin
09-05-2002, 09:57 PM
I've been taking the daily dose of Fosamax for one month and the only difference I notice is that I have gained some weight in my tummy area (not to my liking). My jeans are all tight!!!! (LOL) well, not really funny! Has anyone else experienced any weight gain on Fosamax?
g'ann
09-08-2002, 10:35 PM
i was taking fosamax without any problems at all ( or so i thought!!) for 4 years. last month i went to the dr for my annual checkup and was told they found blood in my stool. i now have to go thru all kinds of tests, am on all kinds of stomach meds and can no longer take any osteo. meds, aspirin or my arthritis medication. for me, fosamax sure wasnt worth it!
g
g
rosarobin
09-08-2002, 10:44 PM
g'ann, that's scary! Has the DR said that he thought it might have resulted from the Fosamax? Nah, I'm sure a doctor would never admit THAT! Did you even have any improvement in the bone density???? I understand that once stopping the Fosamax, the density reverts to low again..... does anyone know if that's true?
g'ann
09-09-2002, 09:54 PM
i think my dr knows the fosamax caused it. he had no hesitation in telling the dr who is going to do my laposcopy that he would no longer be prescribing fosamax for me.
my bone density tests came back with much to be desired. i did gain some bone ( not much) in my spine, but lost some in my hips.
from what my dr told me, my bones will get worse now that i am off the fosamax, and i will once again be at risk for fractures/breaks, etc.
i am not sure what i will do now. i dont like the things i am reading about evista and i am not overly confident in the 'natural' remedies. i am hoping that before i lose too much density they will have a 'new and much improved' form of fosamax. if they have a weekly pill, why cant they give a weekly, or even monthly injection?
that would eliminate all the bad side effects.
havent had any of the eye problems, thank goodness!
g
my bone density tests came back with much to be desired. i did gain some bone ( not much) in my spine, but lost some in my hips.
from what my dr told me, my bones will get worse now that i am off the fosamax, and i will once again be at risk for fractures/breaks, etc.
i am not sure what i will do now. i dont like the things i am reading about evista and i am not overly confident in the 'natural' remedies. i am hoping that before i lose too much density they will have a 'new and much improved' form of fosamax. if they have a weekly pill, why cant they give a weekly, or even monthly injection?
that would eliminate all the bad side effects.
havent had any of the eye problems, thank goodness!
g
sweetpotato
09-13-2002, 10:07 PM
I am 41 and have been on Fosamax for almost 3 years. So far I have had good results with few side effects. However, the my liver enzymes have been elevated and are now 298. I stopped taking it about 3 weeks ago. I've tested negative for hepatitis. My OB/GYN says Fosamax can affect the liver and feels it is causing this. I have done alot of research and cannot find anything to document Fosamax affecting the liver. I exercise, am not overweight, eat little sugar, and don't drink alcohol. Does anyone know of Fosamax affecting the liver in this way? Thanks!
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rosarobin
09-14-2002, 12:23 PM
sweetpotato, what led you to have your liver enzymes checked? Were there any symptoms? That's what I like about these boards --- people sharing their experiences about what the DRS don't tell us!
sweetpotato
09-19-2002, 07:49 AM
Last year I went in for a regular physical and he did blood work and it showed a slight elevation. He did two ultrasounds and said I had a hemangioma. He ordered a MRI and the MRI said there was nothing there. He rechecked the blood levels a couple months later and it was down again. He said everything was ok. He didn't check it again until August this year and it was 121 so he sent me back for more tests a month later. The hepatitis was negative, but the ALT had gone to 298 and the AST had become abnormal at 92. He is sending me to a gastroenterologist, but I can't get in until Oct. 11. He didn't tell me to stop taking any medication, avoid alcohol or explain what could be going on. I called my gyn and she said to avoid taking any medication by mouth and we could recheck in a month. That the Fosamax could be causing it, but I've not found any documentation that Fosamax can cause liver problems. I'm just a single parent of two kids and I think I'm just looking for something to ease my mind.
rosarobin
09-19-2002, 12:01 PM
sweetpotato; I guess I would react the same way as you; I'm on pins & needles with taking the daily fosamax. At the first sign of ANY symptoms, I'm going to stop taking it. I wonder if it's worth all this worry - considering the fact that we have to continue consuming it for YEARS? Do you have any abnormal physical symptoms now? (Oh, I see we are both Floridians, are you near Miami?)
sweetpotato
09-19-2002, 07:54 PM
I'm near Cocoa Beach! I would never have guessed that there was a problem. I've not had symptoms of any kind. I was really taken by surprise when he said the levels were so high. Thanks for your input.
g'ann
09-19-2002, 09:37 PM
if you get any ulcers in the back of your mouth, stop taking fosamax and get to a dr.
i erroneously thought the ulcers i was getting near my throat were either due to a flu-type virus going around, or something acidy that i had eaten. it wasnt long after i got ulcers in my mouth ( i got two, about a month apart) that i was told i had blood in my stool.
it is possible they would have caught it sooner, except that i had no symptoms and only went to the dr for an annual visit.
g
i erroneously thought the ulcers i was getting near my throat were either due to a flu-type virus going around, or something acidy that i had eaten. it wasnt long after i got ulcers in my mouth ( i got two, about a month apart) that i was told i had blood in my stool.
it is possible they would have caught it sooner, except that i had no symptoms and only went to the dr for an annual visit.
g
JEANNECAR
09-20-2002, 09:50 PM
Check out this website, this is what my dr. recommended to build bone. I am not taking any of the poisons that most doctors are prescribing.
http://www.metagenics.com/products/catalog/detail.asp?pid=57
Jeanne C
http://www.metagenics.com/products/catalog/detail.asp?pid=57
Jeanne C
bjg
09-26-2002, 05:40 PM
you could call merck the drug co that makes it and ask if they have any info on fosamax causing liver problems......800-672-6372
workitout
11-04-2002, 12:52 AM
I took Fosamax for three weeks and found from the start that I suffered horrible loose stomach for two to three days after my weekly dose. Weirder was that I felt really depressed for two days. I am a 51 year-old man and while I can get depressed I never suffer from the kind of weighty bleakness that oppressed me for those three weeks. I visited an arts festival for a week during that time and everyone kept asking me what was wrong with me (not just in the two day doldrums). As I posted elsewhere, I embraced exercise; vegetables; Vitamin D; and a reduction in meat, fish, and salt. I posted a solid density gain after one year (and lost about 10 pounds, even though my muscles weight more than any fat did). I am not opposed to medication or surgery when it's necessary, but people who can move ought to put the pills and side effects behind them and commit to exercise. Those who lack mobility must do whatever works for them.
ninasmith1
01-20-2003, 12:09 AM
Dear sweetpotato:
I am a 53-year old health woman. But recently after I started taking Fosamax for 6 months, my ALT and AST elevated to 72 and 112, and I also have joint pains and micle aches I try to search information to see if any other people had the similar experience and I found a few emails and postings including yours. I will stop taking Fosamax immediayrly. But Merck did not publish any side effect of lever toxicity of Fosamax.
ninasmith
I am a 53-year old health woman. But recently after I started taking Fosamax for 6 months, my ALT and AST elevated to 72 and 112, and I also have joint pains and micle aches I try to search information to see if any other people had the similar experience and I found a few emails and postings including yours. I will stop taking Fosamax immediayrly. But Merck did not publish any side effect of lever toxicity of Fosamax.
ninasmith
Bitsy
01-23-2003, 01:34 AM
HI
Fosamax goes thru the liver then excreted, unlike Evista . Evisa is excreted from the kidneys.
Fosamax can cause GI bleeding. Iheard the flu like symptoms& bone pain means the drug is working& making the osteoblasts start making new cells to increase the bones. All these meds hve many scarey side ffects. Just be aware of yor body& do not delay calling your DR.
I picked aprt the chemical ingredients of Actonel& found active ingredients (2) that are given for dry eyes& one ingredient is for blood thinning, so it seems some componenents in the drug cause dry eyes& possible blood clots. As I have researched so many drugs, I HINK it's Actonel. Please read the inserts, ask your pharmacist or DR. Most importantly get a DR that wks w/ ALOT of osteo patients or a Osteo Medical center. My friend heared the FDA just approved a new osteo drug yesterday. My r wants to infuse me w/ Zometa, a nion FDA approved drug originally for solid tumors that has shown significant bone regrowth. Supposedly no side effects, maybe for some flu lik smptoms.Fortea wks great& fast, but it has to be injected everyday.It was just FDA approve a couple months ago. Research this stuff, find a support group to see what others have been taking & doing. It helps, just like this healthboard does.
Stay away from the vitamin A. It robs you of bone, also seems to stop the process that reproduces the cells to make new bone. A diet w/ A is fine. I have also heard Boron slowly helps bone strength& builds, but take w/ Cal& D.
Sorry to babble. I'm trying to remember all I read here& answer what I have heard.
Good Luck& God Bless
Fosamax goes thru the liver then excreted, unlike Evista . Evisa is excreted from the kidneys.
Fosamax can cause GI bleeding. Iheard the flu like symptoms& bone pain means the drug is working& making the osteoblasts start making new cells to increase the bones. All these meds hve many scarey side ffects. Just be aware of yor body& do not delay calling your DR.
I picked aprt the chemical ingredients of Actonel& found active ingredients (2) that are given for dry eyes& one ingredient is for blood thinning, so it seems some componenents in the drug cause dry eyes& possible blood clots. As I have researched so many drugs, I HINK it's Actonel. Please read the inserts, ask your pharmacist or DR. Most importantly get a DR that wks w/ ALOT of osteo patients or a Osteo Medical center. My friend heared the FDA just approved a new osteo drug yesterday. My r wants to infuse me w/ Zometa, a nion FDA approved drug originally for solid tumors that has shown significant bone regrowth. Supposedly no side effects, maybe for some flu lik smptoms.Fortea wks great& fast, but it has to be injected everyday.It was just FDA approve a couple months ago. Research this stuff, find a support group to see what others have been taking & doing. It helps, just like this healthboard does.
Stay away from the vitamin A. It robs you of bone, also seems to stop the process that reproduces the cells to make new bone. A diet w/ A is fine. I have also heard Boron slowly helps bone strength& builds, but take w/ Cal& D.
Sorry to babble. I'm trying to remember all I read here& answer what I have heard.
Good Luck& God Bless
Telzey
01-23-2003, 03:14 AM
Hi,
I have been taking Fosamax for 2 years now with no side effects. I showed great improvement in bone density the first year (7% everywhere) and am hoping for the same improvement this year.
I am only 42 and had multiple fragility fractures before being diagnosed, so even if I had some side effects I would have been happy with the Fosamax... for a while I was in a wheelchair but today I can walk again.
I guess I am one of the lucky ones!
http://www.healthboards.com/ubb/heart.gif Telzey
I have been taking Fosamax for 2 years now with no side effects. I showed great improvement in bone density the first year (7% everywhere) and am hoping for the same improvement this year.
I am only 42 and had multiple fragility fractures before being diagnosed, so even if I had some side effects I would have been happy with the Fosamax... for a while I was in a wheelchair but today I can walk again.
I guess I am one of the lucky ones!
http://www.healthboards.com/ubb/heart.gif Telzey
32skater
02-03-2003, 11:45 PM
I, also, have taken Fosamax and it will be three
years in October. I, to my knowledge, have not had
a problem. However, I was told you only have to be
on it for 3 years, is that true? Way back when, I
took the 10 mg. a day and could not tolerate, but
later on went to the 70mg. once a week, and do not
seem to have a problem. Hope it is working.......?
years in October. I, to my knowledge, have not had
a problem. However, I was told you only have to be
on it for 3 years, is that true? Way back when, I
took the 10 mg. a day and could not tolerate, but
later on went to the 70mg. once a week, and do not
seem to have a problem. Hope it is working.......?
Bitsy
02-04-2003, 08:27 PM
Fosamax is excreted through the liver, so that would explain the high liver enzyme. Do you know whick enzyme?
Also, somene metioned another osteo drug. There is onc a day injected Forteo recently FDA approved.
Also Zometa will be apprve later this yr& it's IV infused& I heard on the news from women they had no side effects.
Someone else here questioned an alternative. The nasal spray M-salmon) helps everywhere except the hips& it is more gentle.
Ihave read here that a class action suit was being done by patients ue to that drug approved in other countries IPralovone. (prob. misspelled). Supposedly alot of patiens were experiencing high white cel counts. Read up on it& follow all the links. I thought that was My Miracle Cure& decided against it.
Altho Evista is known for blood clots, I've never heard Actonel or Fosamax to cause that. Look on Merck& Novartis websites to see& they also have number. Novartis will talk to you& send you inserts,etc. Actonel people weren't as kind.
I am still agonizing also about what to take& am severe osteo in the spine.
My Doc said to take a baby asp for the Evista, coated to relieve stomach upset.
I think I am leaning towards the IV Zometa so far. It's infused for 15 min at 4 MG& the women interviewed all said no side effects. I did however see from Novartis during clinical trials they lost people from this drug, but have solved that problem. It was the rate the med was being infused, UNDER 15 min.& because it's excreted thru the kidneys, it caused kidney failure. Again, they now KNOW WHY& sent info to all Dr's that give it./
I hope this helped some of you
Good Luck to us all
Also, somene metioned another osteo drug. There is onc a day injected Forteo recently FDA approved.
Also Zometa will be apprve later this yr& it's IV infused& I heard on the news from women they had no side effects.
Someone else here questioned an alternative. The nasal spray M-salmon) helps everywhere except the hips& it is more gentle.
Ihave read here that a class action suit was being done by patients ue to that drug approved in other countries IPralovone. (prob. misspelled). Supposedly alot of patiens were experiencing high white cel counts. Read up on it& follow all the links. I thought that was My Miracle Cure& decided against it.
Altho Evista is known for blood clots, I've never heard Actonel or Fosamax to cause that. Look on Merck& Novartis websites to see& they also have number. Novartis will talk to you& send you inserts,etc. Actonel people weren't as kind.
I am still agonizing also about what to take& am severe osteo in the spine.
My Doc said to take a baby asp for the Evista, coated to relieve stomach upset.
I think I am leaning towards the IV Zometa so far. It's infused for 15 min at 4 MG& the women interviewed all said no side effects. I did however see from Novartis during clinical trials they lost people from this drug, but have solved that problem. It was the rate the med was being infused, UNDER 15 min.& because it's excreted thru the kidneys, it caused kidney failure. Again, they now KNOW WHY& sent info to all Dr's that give it./
I hope this helped some of you
Good Luck to us all
peregrine
03-09-2003, 10:18 AM
3
peregrine
03-09-2003, 10:23 AM
I have been using Fosamax for 3 months. Approximately 21/2 months ago I starting developing severe abdominal symptoms: sharp pain under my diaphragm,bloating,belching, nausea and vomiting. These symptoms were so severe they would "flatten" me for days, weeks. Then they would disappear for a few days only to appear again with a vengence. I had all sorts of tests performed and no abnormalities were found. I have now gone off of the Fosamax for 3 weeks and all of my symptoms have disappeared. Obviously, this drug is not right for everyone and I would caution those thinking of taking it. My only problem now is that I have severe osteoporosis and I don't absorb calcium, no matter what kind or what other supplements I take along with it to boost its effectiveness. Any suggestions would be greatly appreciated.
peregrine
03-09-2003, 11:18 AM
PS:
I know this may sound strange, but I also gained 15 lbs. while on the Fosamax!
I know this may sound strange, but I also gained 15 lbs. while on the Fosamax!
seasant
03-11-2003, 07:31 AM
Hello everyone,
I was diagnosed with osteoporosis in my early 40s and was put on 10 mg fosamax daily and now take the 70 mg pill once/week. For several years I wasn't very faithful in taking the one/day dosage, but am with the one/week. I've been taking it for a couple of years now and have not experienced any side effects that I know of. Eyes are fine, etc., but it's hard to know how the liver is doing in general. Anyway, after reading about the joint problems experienced by some posters, I'm wondering if my fairly new (within the last year) joint pains are due to the fosamax. When I take Glucosamine for a day or two the joint pains disappear.
Thanks for any info or comments.
Take care,
Kathi
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I was diagnosed with osteoporosis in my early 40s and was put on 10 mg fosamax daily and now take the 70 mg pill once/week. For several years I wasn't very faithful in taking the one/day dosage, but am with the one/week. I've been taking it for a couple of years now and have not experienced any side effects that I know of. Eyes are fine, etc., but it's hard to know how the liver is doing in general. Anyway, after reading about the joint problems experienced by some posters, I'm wondering if my fairly new (within the last year) joint pains are due to the fosamax. When I take Glucosamine for a day or two the joint pains disappear.
Thanks for any info or comments.
Take care,
Kathi
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peregrine
03-11-2003, 08:51 AM
I just decided, and feel very clear, that I do not want to take a chance of having serious organ damage somewhere down the line, especially after my recent symptoms! I am taking the microcrystaline calcium, which is supposed to be most absorbable. Since writing the above, I was told about a woman who had major damage to her esophogous from calcium deposits. I think the natural way is the best.
Deb50
03-26-2003, 11:41 AM
Originally posted by syoung:
I have been on fosamax 70 mg weekly for 6 months and have gained 15 pounds. I am also having joint pain which did not show up at first but in the last 2 months it has developed and gotten worse by the day. My doctor thinks its part of aging but I am only 49 years old and the onset seems too quick to be age-related.
I have been on fosamax 70 mg weekly for 6 months and have gained 15 pounds. I am also having joint pain which did not show up at first but in the last 2 months it has developed and gotten worse by the day. My doctor thinks its part of aging but I am only 49 years old and the onset seems too quick to be age-related.
Deb50
03-26-2003, 11:47 AM
I have been on fosamax 70 mg weekly for 14 months. I have suddenly developed such severe joint and bone pain I am having a hard time getting up in the morning. I am 52 years old. I am convinced it is the fosamax. Have you spoken to your Doctor? I have a call into my Rheumotologist right now. The onset was very quick for me also. Originally posted by syoung:
I have been on fosamax 70 mg weekly for 6 months and have gained 15 pounds. I am also having joint pain which did not show up at first but in the last 2 months it has developed and gotten worse by the day. My doctor thinks its part of aging but I am only 49 years old and the onset seems too quick to be age-related.
I have been on fosamax 70 mg weekly for 6 months and have gained 15 pounds. I am also having joint pain which did not show up at first but in the last 2 months it has developed and gotten worse by the day. My doctor thinks its part of aging but I am only 49 years old and the onset seems too quick to be age-related.
janetm
03-28-2003, 09:19 PM
I'm 51, quit smoking a year ago, after 29 years. I was diagnosed with osteopenia, don't know where my bad bones are though. MD prescribed Fosamax 70 Mg. in a weekly pill. I took it for 3 weeks and am having tiny itching outbreaks here and there, dry cough, dry mouth, and the worst side effect is emotional upheaval. I gained weight stopping smoking and don't need to gain any more because of Fosamax.
There was no post here describing a hormonal effect like PMS from this drug that is supposed to be non-hormonal, but I am here to tell you that my years of depression and crying jags started up again after being post-menopausal (and peaceful) for five + years after only three weeks on this drug. Estrogen started my depression and after menopause stopped it I was not depressed until Fosamax brought it back. I hate it and would rather run the risk of breaks than be depressed again. Bloating and gas don't help win friends either.
Anyone else with this?
J
There was no post here describing a hormonal effect like PMS from this drug that is supposed to be non-hormonal, but I am here to tell you that my years of depression and crying jags started up again after being post-menopausal (and peaceful) for five + years after only three weeks on this drug. Estrogen started my depression and after menopause stopped it I was not depressed until Fosamax brought it back. I hate it and would rather run the risk of breaks than be depressed again. Bloating and gas don't help win friends either.
Anyone else with this?
J
angeleyes42
06-10-2003, 11:26 PM
I have been on Fosamax 35mg once /week for 1 1/12 years. No problem with side effects, and my bone density returned to baseline. Until now, all was well. No symptoms, no illnesses, but on a yearly physical my red blood cell count and white cell count decreased. Also, the size of the red cell changed. Doctor thinks it is bone marrow problem I take no other drugs, Has anyone else experienced this? Could this be Fosamax? Please, please reply, Worried!
[This message has been edited by angeleyes42 (edited 06-10-2003).]
[This message has been edited by angeleyes42 (edited 06-10-2003).]
peregrine
06-11-2003, 06:18 AM
Originally posted by angeleyes42:
I have been on Fosamax 35mg once /week for 1 1/12 years. No problem with side effects, and my bone density returned to baseline. Until now, all was well. No symptoms, no illnesses, but on a yearly physical my red blood cell count and white cell count decreased. Also, the size of the red cell changed. Doctor thinks it is bone marrow problem I take no other drugs, Has anyone else experienced this? Could this be Fosamax? Please, please reply, Worried!
.]
If it were my body, and I received this information, I would stop the Fosamax and see if my blood panel changed. Just like HRT and other drugs, often all the side effects are not known until years later.
I have a friend who had severe abdominal symptoms from Fosamax so her doctor prescribed Prilosec to deal with "those" symptoms. Does this mean whatever was going on with her abdomen is no longer there or is it just masked with yet another drug? This person is literally a walking pharmacy with all the stuff she takes to counteract the effects of all the stuff she takes.
This of course is just my 2 cents. I think one's own instincts have to be exercised to determine the best course of action, and those instincts may indeed be contrary to the physician's dictates.
Wishing you the best.
p
[This message has been edited by peregrine (edited 06-11-2003).]
I have been on Fosamax 35mg once /week for 1 1/12 years. No problem with side effects, and my bone density returned to baseline. Until now, all was well. No symptoms, no illnesses, but on a yearly physical my red blood cell count and white cell count decreased. Also, the size of the red cell changed. Doctor thinks it is bone marrow problem I take no other drugs, Has anyone else experienced this? Could this be Fosamax? Please, please reply, Worried!
.]
If it were my body, and I received this information, I would stop the Fosamax and see if my blood panel changed. Just like HRT and other drugs, often all the side effects are not known until years later.
I have a friend who had severe abdominal symptoms from Fosamax so her doctor prescribed Prilosec to deal with "those" symptoms. Does this mean whatever was going on with her abdomen is no longer there or is it just masked with yet another drug? This person is literally a walking pharmacy with all the stuff she takes to counteract the effects of all the stuff she takes.
This of course is just my 2 cents. I think one's own instincts have to be exercised to determine the best course of action, and those instincts may indeed be contrary to the physician's dictates.
Wishing you the best.
p
[This message has been edited by peregrine (edited 06-11-2003).]
angeleyes42
06-11-2003, 07:23 AM
To peregrine:
thank you for the encouragement. Have seen a hematologist who thought that the bone marrow changes are unrelated to Fosamax, however he agree that I should stop drug for 1 month to see if the readings change. I was appealing to this forum to bolster my thought that Fosamax is the cause rather than all the more dire alternatives.
Thanks again.
Awaiting other input.
thank you for the encouragement. Have seen a hematologist who thought that the bone marrow changes are unrelated to Fosamax, however he agree that I should stop drug for 1 month to see if the readings change. I was appealing to this forum to bolster my thought that Fosamax is the cause rather than all the more dire alternatives.
Thanks again.
Awaiting other input.
sherridyn
06-29-2003, 07:54 PM
After reading all the messages posted here, I can't help but put my two cents in - especially with the significant number of people reporting weight gain, depression and joint pain. My story is 15 years long, but the short version is that I am all but 100% certain that Actonel (and perhaps Fosamax before it) ruined my thyroid receptors, and I am now required to take mega doses of T3, which otherwise cannot get thru those broken receptors. I've been hypothyroid for many years, and was fine with Armour, till a doctor succumbing to the pharm. pressures changed me to Synthroid, and I began to fall apart - over the next 13 years, I gained 125lbs., had an unnecessary hysterectomy, developed osteoporosis, adrenal insufficiency, Lupus, and myriad other disorders. Since I was on Synthroid during the Fosamax phase, I wasn't getting any T3 anyway, but when we discovered the problem, and I had my current doc change me back to Armour, I was fine until I started taking Actonel (which she had changed me to from Fosamax) again, and it began to block the Armour. I kept raising the Armour dose, until finally we couldn't get enought T3 in without the mega-dose, and I had to changed to Cytomel. It wasn't until I was on this mega-dose, once again taking Actonel that I discovered Actonel completely blocked the Cytomel on the 2nd day - I took a whole 'nother dose of Cytomel, and within hours was okay again.
I was fine on Armour for 12 years, and again fine with it the second time around(lost 25lbs. in a month and a half), until I restarted Actonel, at which point I again gained weight, all my symptoms returned. Since T3 (active thyroid hormone) is responsible for bone resorption, I suspect that it works by blocking T3, thereby making the resorption stop. My new doc, treating me for everything, thinks I may be right about that (he's a big Mercola fan).
Weight gain, joint pain, depression - all symptoms of hypothyroidism. I wouldn't take either Fosamax or Actonel again if I had no bones!
We are in the midst of researching this, so we can stop others from being harmed by these medications if at all possible. I too trust most doctors as far as I can throw them - they nearly killed me. The bottom line for pharm. companies is $$$, not health. If I'd stayed on Armour in the first place, or if just one of the dozens of doctors I went to in the ensuing 13 years had told me that Synthroid was indeed NOT the same thing as Armour (which makes you wonder - did they not know, or did they all just lie to me?), all this could have been prevented.
PLEASE - find your own answers - do not rely on the average doctor - thank goodness for sites like this!!!
------------------
Sherri
I was fine on Armour for 12 years, and again fine with it the second time around(lost 25lbs. in a month and a half), until I restarted Actonel, at which point I again gained weight, all my symptoms returned. Since T3 (active thyroid hormone) is responsible for bone resorption, I suspect that it works by blocking T3, thereby making the resorption stop. My new doc, treating me for everything, thinks I may be right about that (he's a big Mercola fan).
Weight gain, joint pain, depression - all symptoms of hypothyroidism. I wouldn't take either Fosamax or Actonel again if I had no bones!
We are in the midst of researching this, so we can stop others from being harmed by these medications if at all possible. I too trust most doctors as far as I can throw them - they nearly killed me. The bottom line for pharm. companies is $$$, not health. If I'd stayed on Armour in the first place, or if just one of the dozens of doctors I went to in the ensuing 13 years had told me that Synthroid was indeed NOT the same thing as Armour (which makes you wonder - did they not know, or did they all just lie to me?), all this could have been prevented.
PLEASE - find your own answers - do not rely on the average doctor - thank goodness for sites like this!!!
------------------
Sherri
angeleyes42
07-23-2003, 04:13 PM
I was the person who experienced decreased RBC and WBC after being on Fosamax 35mg/wk for 2 1/2 years.
Came off Fosamax for 5 weeks, no change in blood readings - not better, not worse. continuing to stay off. Hematologist doing catscans and bone marrow biopsy to look for cause.NO clinical symptoms. I still think Fosamax is the problem.
Anyone out there have a similar experience with Fosamax?
Please reply.
Came off Fosamax for 5 weeks, no change in blood readings - not better, not worse. continuing to stay off. Hematologist doing catscans and bone marrow biopsy to look for cause.NO clinical symptoms. I still think Fosamax is the problem.
Anyone out there have a similar experience with Fosamax?
Please reply.
emotion sickness
08-22-2003, 06:42 AM
Originally posted by rosarobin:
I have been diagnosed with osteopenia (I'm 63) and am agonizing over this very issue - whether or not to start taking Fosamax and continue for the rest of my life. Should I risk the side effects in the hope of preventing bone-loss or go the natural route by consuming more calcium-rich foods and daily physical activity? I lean toward the natural approach but appreciate everyone's comments! (Rosalee)
This is just my opinion, but I would wait on the Fosamax if I were you. Being 63 and only have ostepenia (vs. osteoporosis) is not that bad considering your age. I would take a good calcium supplement, get plenty of calcium in your food, and also make sure you are getting a lot of vit. D and some healthy fats, which are needed to absorb the calcium. So make sure you don't eat/drink everything fat free, such as cottage cheese, milk, etc.
I have been diagnosed with osteopenia (I'm 63) and am agonizing over this very issue - whether or not to start taking Fosamax and continue for the rest of my life. Should I risk the side effects in the hope of preventing bone-loss or go the natural route by consuming more calcium-rich foods and daily physical activity? I lean toward the natural approach but appreciate everyone's comments! (Rosalee)
This is just my opinion, but I would wait on the Fosamax if I were you. Being 63 and only have ostepenia (vs. osteoporosis) is not that bad considering your age. I would take a good calcium supplement, get plenty of calcium in your food, and also make sure you are getting a lot of vit. D and some healthy fats, which are needed to absorb the calcium. So make sure you don't eat/drink everything fat free, such as cottage cheese, milk, etc.
jukeboy56
08-23-2003, 12:43 PM
I'm a 46 year old male with osteopenia and started on the once-a-week 70 mg. dose of Fosamax three weeks ago. No noticeable side effects.
On a side note, I find it amazing that some of the posters on this board place more trust in those promoting all kinds of "cures" that have no regulation and no scientific testing associated with them than they do their professionally trained doctor and the tested and highly regulated drugs he prescribes. I know there are horror stories associated with the side-effects of FDA approved drugs, but I would much rather take my chances on a drug that has been scientifically tested and proved effective and safe enough to pass FDA approval than some kind of over-the-counter concoction that may do me more harm than good. Just my opinion.
On a side note, I find it amazing that some of the posters on this board place more trust in those promoting all kinds of "cures" that have no regulation and no scientific testing associated with them than they do their professionally trained doctor and the tested and highly regulated drugs he prescribes. I know there are horror stories associated with the side-effects of FDA approved drugs, but I would much rather take my chances on a drug that has been scientifically tested and proved effective and safe enough to pass FDA approval than some kind of over-the-counter concoction that may do me more harm than good. Just my opinion.
ladiedi
08-24-2003, 02:28 AM
I have to agree about trusting in something proven, but the flip side, you know the drug companies are not motivated by kindness and goodness of their heart. It "is all about money for them" . So its not totally unbiased their motivation. Yes the drugs are proven, but they are not yet proven for the test of time, thats what scares me, and yes the alternative is melting away. Scares me even more, so I will atleast for now try to continue on this drug.
Gabriella
08-24-2003, 08:11 PM
Jukeboy56, you took the words right out of my mouth.